posts,predicted,intensity
hello go on 3 week ago I pass bloody mucus in my stool a few small amount over the course of an evening the next morning my stool return to somewhat normal then over the course of the weekend I have many small urgent movement with no blood but the color go from bright green to light brown finally about 4 day after I pass this mucusy blood I do it again and return to normal a short time later now almost 2 week later I have add well food to my diet and have have great bowel movement some with a little more mucus than other but each day they are more normal and less frequent here is what I am worry most about and that is the fact while these have been my only symptom I have not have any pain and I have drop 7 9 pound over the course of this month the only thing I have remove from my diet over the last few week is beer and I always drink 2 4 a day and 5 10 on the weekend I am 6 ft was 185ish and now close to 177ish I have high anxiety and have worry sick over this situation since it have happen and was want to know can my worry cause weight loss even though I have still have a huge appetite I have a colonoscopy sche 2 day from now and I am only 33 sometimes during the day I can not help but think I am go to be a goner and other time I am kick myself for put myself in this state any comfort on the weight loss would be great I have no family history of this either and am fairly atheletic thank,neutral,1
I am 3 month after the chemotherapy prior to the chemotherapy I have a resection of a large colon approximately 8 I am experience a very irregular bm actually I do not feel any urge for the bm I have a flatulance and stool foul smell I have to push pretty hard to get bm the stool is normal but it is float due to an excess of gas a healthy stool is the stool sink after a short time accord to a health information could anyone experience similar situation let I know what remedy should be take to overcome that problem thank you,neutral,1
so my question is if since start to take metamucil my stool have go back to a regular shape and are slowly return my bowel regularity if this would be a good indication that my bowel problem are probably not the result of a cancer of the colon or rectum or could this just be mask the problem I just fail to see how if cancer was powerful and advanced enough to cause symptom how metamucil could then return normalcy unless of course the initial problem was not cancer call it curiosity haha I would appreciate any input on this one hiji,neutral,1
the doctor think it was a lipoma after the colonoscopy then I have the ct scan and next to the lipoma is a 2 cm lump or cyst I will be schedule to have it remove no symptom at all I am 56 now my last colonoscopy was clear and the colon part of the recent one was clear too in the ileum anyone else have this I am nervous,negative,0
hi all sorry for the hypochondria but I think this would be an ideal place to post and get some opinion I am a 24 year old man who have been have an issue since late may start in late may I sometimes been feel throbbing after go to the toilet there is also quite regularly blood on the paper when I go to the toilet though I can not see any in the actual stool sometime the inside feel very itchy and uncomfortable I can go a few day without any of these symptom I have notice there is a correlation with diet only for they to return at first i suspect hemorrhoid and make an appointment last month after a few month of this not sort itself out the doctor do a physical exam and say he could not find hemorrhoid he prescribe hydrocortisone ac which have not stop the bleeding I sometimes have or the itching I am get a referral to a gastroenterologist I am quite scared of being diagnose with colon cancer even though I am tell at my age it would be rare my diet could be well and I get at least an hour or walk in every week day with some run on weekend if hemorrhoid were rule out what else could be cause these symptom is an anal fissure a possibility or something else I have no family history of colon cancer the only person in my family who ever have cancer was my mother uncle who die of lung cancer thank in advance for reading and your thought,negative,0
hello I am a 28 year old female am a bit concerned that I might have colon cancer symptom and would love some advice for the last three month my bowel movement have been irregular basically never firm with intermittent diarrhea there was bright ish blood in my stool only once two month ago and I begin notice pencil thin stool shortly afterwards last week I become quite constipated have a continuously growl stomach really feel like something was block my bowel when I would attempt to have bms however since then I have start take probiotic the constipation have go away and my stool are much thick and slightly more firm though not quite back to normal I still feel like there is incomplete evacuation and I am far from regular so my question is do colon cancer symptom always get progressively bad or could they go into remission for a while can they come and go there is no history of colon cancer in my family I have not been to a doctor yet because I am wait for my health insurance to kick in which will still take about a month in the meantime I would be very very grateful for any feedback from anyone who have idea about this thank you so much,neutral,1
I am male and 44 year old I have some pretty bad gas in the spring so I have my 2nd colonoscopy in april one almost 5 year ago I have 2 the same day due to bleeding and was admit to the hospital polyp were remove and I have my 3rd one 2 week ago 3 more polyp were remove and one was precancerous I have my 4th one on the book for october doc say this is the right thing to do keep do these till none are there plan was if none was there do one more in 6 month and if none there once a year dad have colon cancer in his 70 this do not kill he is this doctor do the right thing I guess this is not normal to do they every 3 month but on the other hand seem it is being catch go to regular doc for a physical in august and to get his feedback although he only work 2 day a week and close to retirement so what else should I do,neutral,1
hello this is my 1st post on aug 2nd I was diagnose with colon cancer stage 4 spread to the omentum in several spot I was wonder what my chance are of survive scientifically speak I have hear it could be only about 8 I know it vary case to case and I am under the care and treatment of an oncologist I am very tired most of the time and get severe abdominal cramp I am still work as much as I can I am on folfox 5 with 46 hour pump 14 day plus trial drug tevozanib on my 4th 14 day cycle now what should I do,neutral,1
hello allsorry about being paranoid and a bit of a hypochondriac I will explain my case in pointer hope I can get some feedback and positivism to ease my extreme anxiety oh I am a very healthy fit 41 year old male I am from mexico but been in singapore for 4 year now I go back to mexico once every 15 month or so I go back last late august and eat on the street all day I get severe diarrhea on sep 1st and no other symptom at all the diarrhea continue for 5 day then I take pepto and it stop it so I stop the pepto the diarrhea was back for another 4 day and 1 week after I return to singapore still no other symptom at all total of 3 week with explosive 6 8 time a day watery diarrhea dr in singapore give I a round of 5 day of cipro and flagyl antibiotic poison after the round of antibiotic the explosive diarrhea stop but 2 day after I was do with the antibiotic hell start off with side effect explosive diarrhea which was my issue stop but then the antibiotic kill all the good bacteria so I have 14 day of ton of terrible side effect like anxiety panic attack weakness metal taste so many to count it also give I loose stool like most antibiotic do I have been take probiotic for 3 week and natural supplement to nourish my gi track for 5 day today is exactly 3 week after I finish the antibiotic course and all the side effect are go except that I seem to have get ibs dr explain that after battle a strong gastro infection plus de antibiotic all together I develop ibs 3 different drs say this a westerner medicine dr in singapore a westerner natural doctor in singapore and my gi dr in mexico over the phone I am just concerned because after 3 week I want to feel normal again and this is make I tremendously anxious and now I get in my head I get colon cancer go figure these are my current symptom that have prevail for 3 week now 1 loose stool every 3 or 4 time I have bm twice or 3 time a day as my normal usual habit for the last 20 year when I go solid the size is thick as a thick marker never have have pencil long stool only a couple of time small thin pallet then again I read an article that pencil long stool are misleading and not really indicative of colon cancer as it have been think a tiny discomfort under my left rib cage that go off and on but do not stop I from do my normal life it just bug I on the positive I only lose a total of 6 pound and 1 pant size in 1 5 month assume that is due to the diarrhea that do not stop for 3 week plus now I am eat very clean no more sweet no more coke no that is cream not too much carb and so on also I go to the gym every day with full energy and carry the same weight I also play tennis and I do not struggle with it at all I have not been lethargic nor do I ever feel fast heart palpitation and I do not have any sign of anemia also I have never pass blood or have see blood in stool and my initial stool culture for the initial diarrhea show no blood hide more on the positive I am not a smoker have never smoke I exercise 3 4 time a week for the last 20 year I have no history of colon cancer or bowel issue in my family I have always have a rock stomach and I always brag about my regular healthy gut I have 2 to 4 bm per day ever since I can remember I am now have about the same bm per day the majority are not too soft not too hard easy to pass thick marker size not long one though and some are soft mushy no more watery diarrhea that you can not control and a few are nor form just diarrhea kind not watery after I just read what I write here seem that I am fine but once my anxiety kick in I am very apprehensive anxiety kick in only few time a year when justify I am a very mentally stable person but after this I feel I am obsess with my poop if I poop well I feel happy and totally healthy if I have a loose stool then I get depressed and I feel sick this have been go on for 3 week and it have been keep I insane I have start to take just 14 of a diazepam pill to control anxiety and avoid the horrible nervousness attack my poor gut and make thing much bad this may help I not care and have my normal life I feel that many of my symptom may be anxiety cause agree also we all are look up our symptom and this is bad really bad we should do it moderately because all we are do is stress ourselves more anyway hope to hear from you guy any input will be much appreciate and if anyone can share similar case or knowledge even well thank a lot alex,negative,0
hi I am a 47 year old man I have been have pain deep in my rectum for a few week now it is hard to sit and if I push my butt cheek together the pain get bad I have a digital exam by a proctologist who do not find anything and have no idea what the pain would be he say I do have some internal hemorrhoid but this would not be cause the pain I also have a change in bowel movement 2 4 per day instead of one and the stole was very thin this happen for approximately 1 week but have now go back to normal there is no blood my doctor and proctologist are recommend a colonoscopy I am worried that I may have colon cancer any idea or thought,negative,0
hello my other grandfather have colon cancer now my brother we think he will get it he already have sleep apnea do it skip generation too,neutral,1
so I have not post on my current health issue because I feel if I write about it I would be admit that this have take over my body well it have my doctor have diagnose I with acute myeloid leukemia I still have to have the bone marrow biopsy to see wich subtype I have and a spinal tap to see if its invade my spnal fluid this is very scarey for I as oif have m s and fibro and heart issue was not enough I fear for my child I fear the chemo I fear life itself with this horrid thing that s overtake my blood and I m very angry my two little one meg and tyler know about this that is tell they I will see an ocologist next week he will decide when to start chemo but the bone marrow and spinal are first I tell they I may lose my hair but it will grow back I tell they I would be no more sick than I already am wich is pretty darn sick I see the lung doc today I have the cat scan of my lung yesterday to see if thier a mass or something there also as my breathing is really bad my pain is horrid bone pain sometimes the massive amount of med help sometimes they just do not I m here for support I m scared I do not want to die not anytime soon hug amy,negative,0
I know as parent of child with down syndrome that you have all hear that our child are at a high risk of leukemia as parent we read up on it and then say well that will not happen to my child well when will have just turn 2yr old he start bruise the thought of leukemia breafly cross my mind but I quickly push it out of my mind and rationalize it by say that he was a rough playing 2yr old and it was normal to bruise now and then I have just go to work a few month before and will have get a little more fussy and whinny but that is normal to right well then he get sick and like a lot of child with down when he get sick he get sick so we take he to the doc on a friday they say he have a cold and I tell my boss that he was sick and not to be surpise if I call and say he was in the hospital because they offten have to do that when he get sick she say ok and when sit get there sure enough he was much sicker and we take he to the er they tell we he have rsv and send we home with some med by the time we get home he was much bad and we take he back this time they order more test and put he in the hospital then my world start come down around I first they say that some of his blood work come back bad that they want to retest but it was probley nothing then that come back and they say they want to move he to icu just to keep a well I on he I start get scared that thought come back leukemia put again I try to push it out of my mind because no one want to think the bad well it was not long at all before the doc come in and say we believe william have leukemia they quickly fly he from beaumont tx to houston tx texas childrens hospital will is do really well now he is in remision but still have 3 1 2 yrs of chemo he was up run around but now can not walk anymore due to one of the chemos vinchristin but it will come back and he have just find other way to get around nothing is go to slow he down I write all of this to say please do not dwell on it but if you see any symptom of leukemia in your child please get it check out it is well to find out because you are look for it than to find out like I and most other parent I have talk to by accident,negative,0
hi might be over react but about a month ago my old brother was diagnose with acute leukemia I have miss and very low white blood cell is this maybe what s been wrong to start with humm I go in a couple week to laugh out loud count dracula blood dr just sure get I wonder for 4 month its not comme up like it should is it heriditary he look awful like its suck the life out of he,negative,0
sign of leukemia are they differ for each type of leukemia but common leukemia symptom include fever or chill persistent fatigue weakness frequent infection loss of appetite or weight swollen lymph node enlarge liver or spleen easy bleeding or bruise shortness of breath when you re physically active as while climb step tiny red spot in your skin petechiae excessive sweating especially at night bone pain or tenderness the severity of sign and symptom depend on the number of abnormal blood cell and where they collect you may overlook early symptom of leukemia because they may resemble symptom of the flu and other common illness william have the petechiae bone pain fatigu and weakness,neutral,1
hi I was wonder if anyone here have been diagnose with apl leukemia I have a question on atra the medication use to treat this type of leukemia thank you very much,neutral,1
but in my heart I know this is the future promise article regardless http ottawa ctvnew can ottawa researcher hopeful nano particle can cure leukemia 1 1409330ottawa researcher hopeful nano particle can cure leukemiamedical breakthroughctvs joanne schnurr on homegrown research that is close to cure leukemia medical leader around the world have their eye on ottawa blood cancer breakthrough ottawa doctor talk curesdoctor at the ottawa research institute call it a major finding in the battle against the blood cancer leukemia share 8text share on printshare on email 0 joanne schnurr ctv ottawa publish tuesday august 13 2013 4 05pm edt last update tuesday august 13 2013 6 22pm edtottawa researcher are cautiously use the word cure when talk about new research into leukemia the research is new and a long way from help human patient but in mouse they ve develop tiny particle that in the lab cause cancerous white blood cell to kill themselves for patient with acute myeloid leukemia stem cell transplant and heavy chemotherapy have been the only hope for a cure but even at that the survival rate is among the bad of all the cancer at 22 what s happen inside a lab at the ottawa hospital research institute is give new hope though for a cure for even the tough type of leukemia doctor david conrad and john bell have develop a tiny nano particle that cause human blood cancer cell to kill themselves the result on mouse have been dramatic photosdr david conrad at ottawa labdr david conrad at ottawa labcancer cell kill themselvescancer cell kill themselvesin 60 percent of the mouse we have a cure explain dr david conrad a hematologist conduct research in the blood and marrow transplant program at the ottawa hospital so in other word if we leave these mouse to continue live in the lab they would live out their normal lifespan and were essentially cure of the leukemia all the other untreated mouse die within 21 day the particle were able to kill multiple form of leukemia in the lab include sample take from local patient who have fail all other form of therapy it have not yet been try on human and likely would not for a couple more year dr conrad have capture on video what happen to the leukemia cell when they are expose to the killer nano particle at first he say the cell are happy and move once the agent is introduce very rapidly they change behavior they become bloated and they shrivel up and you see all there is no movement and you see all the cancer cell in the plate completely dead they think this agent is def con 5 and they undergo suicide say dr conrad for biomedical science student mina rizk work alongside the researcher in a potential cure for leukemia is a once in a lifetime opportunity I m grateful to have find this opportunity say rizk I am very aware that not many student have the chance I do while their focus have been blood cancer the researcher say they have have some success on solid cancer tumor too the next step though are clinical trial to see if they can kill the cancer cell in human the same way they do in mouse read more http ottawa ctvnew can ottawa researcher hopeful nano particle can cure leukemia 1 1409330 ixzz2btqkefrh,neutral,1
I get epilepsy almost 13 year ago from m c accident piece oh my head go bone break all over and about7 8 month ago get this leukemia cal it have increase the pain all over have a hard time to get drug to stop they they would have to be strong I am on 2 a day of hydrocone do not remember exact name but I still have incredible pain with that one have to move up with hard pain pill,negative,0
this was a story I find on another site and I think I would pass the info along leukemia vaccine triple event free survival december 11 2007 by martha kerr new york reuters health a new leukemia vaccine under investigation extend patient event free survival by more than three fold from 2 4 month with convention treatment to 8 7 month investigator at the university of texas m d anderson cancer center in houston report this week at the 49th annual meeting of the american society of hematology underway in atlanta the phase I ii trial involve 66 patient with acute myeloid leukemia chronic myeloid leukemia or myelodysplastic syndrome among they 53 have active disease and 13 were in remission the vaccine was design to stimulate the bodys own immune system to recognize and mount a defense against tumor cell result in their destruction accord to the researcher at national cancer institute the first 54 patient receive three vaccine injection and the last 12 receive six vaccine injection all give three week apart three different dosage were test an immune response was observe in 25 of the 53 patient with active disease 47 percent there were clinical response in 9 of those 25 patient 36 percent compare with 3 of 28 patient 10 percent who do not have an immune response as note the vaccine induce immune response was associate with a long event free survival of 8 7 month compare with 2 4 month and was also associate with a trend toward long overall survival among the 13 patient who were in complete remission at the beginning of the study 4 have remain in remission for an average of 30 5 month with a range of 11 to 59 month among all 13 patient the vaccine induce immune response have last for up to 4 year in some patient a low level of blast cell in the bone marrow is a significant predictor of an immune response and a long event free survival lead investigator dr muzaffar qazilbash tell reuters health patient with an immune response also show a clinical response and long overall survival this vaccine supplement the bodys immune system rather than target the leukemia cell specifically he say we have see some relapse in these patient but few than expect and few than in those who do not have a clinical response after immunization the residual leukemia cell disappear over time in the responder and we can not detect they after a time qazilbash say the molecular marker of leukemia disappear the good time to use the vaccine is after first line treatment fail he suggest we do not see this use as first line treatment phase iii trial large more advanced study that are usually the last stage before submission for regulatory approval with this peptide vaccine are already ongoing copyright 2008 reuter limit all right reserve republication or redistribution of reuter content include by framing or similar mean is expressly prohibit without the prior write consent of reuters reuter shall not be liable for any error or delay in the content or for any action take in reliance thereon reuters and the reuters sphere logo are register trademark and trademark of the reuters group of company around the world,positive,2
hi my son is 14 and I am rather worried about he h have have a cough which just will not go away he have start have night sweat and have now start to complain about his side hurt he leave side just below rib I am sure this is where the spleen is we have a docs application today but I do not want to come across as being overly protective but leukemia have play a big part in my life with my hubby and mother both having go through this cancer I am aware that people with ds are at a high risk or get leukemia so I am really worried and have a feeling that something is wrong with he he is also very tierd more than normal for he and quiet pale am I being silly or do you think there is cause for concern thank nikkijack,negative,0
okay my doctor tell we that emma was at an increase risk for leukemia because of her down and I meet another mom in the pe office last week and her ds baby have it so I just want to know how seriously I should be worre about this,negative,0
have anyone have possible leukemia cell find in the lung how do it resolve what action were take in the week after go standard induction therapy my mother 74 start to accumulate a lot of fluid in her lung pleural effusion breathing problem and oxygen drop her weight was up 18 pound even though she have not eat in a week they decide to drain one of pleural effusion and test the fluid it come up negative for all infection but reveal 15 blast or cell that could be blast a few day later the fluid in that lung have re accumulate and they drain the fluid and instal a chest tube fluid was test again with the same result chest tube stay for 10 day and is being remove today as the fluid have stop drain they are worried that it might be leukemia in her lung although they say the result are not conclusive they could be die leukemia cell and not necessarily leukemia in her lung if it is leukemia in her lung then they say we are do here,negative,0
I have mylefibrosis which turn to leukemia they want to do a stem cell transplant stc on I but want the leukemia in remission first I have induction chemo hard chemo for a week in the hospital follow by three week in hosp in recovery this do not put leukemia in remission for some reason this round of chemo hit I hard I get a pnemonia I have asthma and some blood clot around my pic line a few week later I go in for a second round of chemo for a week in hospital I have very few side effect from this and the bad part was sit around recover for three week in that tiny room with two kid at home my leukemia still do not go in remission so they schedule I for a stc and tell I I have about a 10 percent chance it would work it do it is 120 day from transplant and I have no trace of leukemia in my system I get to know slightly five people who have sct at the same time I do they have various cancer all of we agree the fear of it was bad than the actual experience an stc consist of a week of chemo at the end of which the put the stem cell in you just like they would give you a blood transfusion it drip in like an iv and take about 2 hour the five people I was with all make it through and meet again in recovery you have to come in every day for awhile then every other day then every week and so on 4 of we get great result one person still have leukemia when it was finish I encourage you to get a second opinion when you make big decision after mayo clinic scottsdale want I to do a second round of chemo I go to md anderson for a second opinion they tell I I was chemo reisitant and that they would suggest an experimental jak2 inhibitor I do not even have the jak2 gene or mutation or whatever I say have that ever work at put leukemia in remission and they say no I have two little kid and need a decent chance to beat this I go back to mayo and my doctor dr reeder assure I I have a chance and he was right I shudder to think I might have go with md anderson recommendation I would also recommend dr slack at mayo scottsdale oh and by the way 3 of the 5 people who have sct with I were between 66 and 71 year old anyhow good luck in your journey kathy42 year old,neutral,1
these are 3 good site which couple with search on specific disease or condition will fill your brain quickly hardin md dermatology picture http www lib uiowa edu hardin md dermpicture html a good way to use this site is through this series of selection leukemia leukemia picture leukemia specific skin lesion this will bring up a page with leukemia picture but on the right side of the page you ll see a list of differential diagnosis basically condition that are similar amazing stuff derm atlas http dermatlas med jhmi edu derm atlas of dermatology https atlase muni cz you need to set up a profile and password for this I use this to diagnose my rash after look at hundred maybe thousand of photo and follow that with text search I hope this help someone else doug,neutral,1
I read an interesting story on russian web site twin girl develop all lacute lymphocytic leukemia at the age of three what is really amazing to I about this case is that one girl get sick and then after a few month another get sick with the same kind of leukemia fortunately treatment is work well for they and they are recover the parent go through a lot with both child being so sick I do not believe that leukemia is contagious but a story like this show that genetic play a major part in development of this disease I can not wrap my mind around this but it seem that not only the type of the disease but also the timing when the cancer will develop is write in our gene,neutral,1
my young mom die suddenly a couple of week ago my dad say it was from a sudden onset of aggressive leukemia I am not sure if it was all or aml from what my dad say during our short conversation she was tired and have a loss of strength for a few day so have some test do and was diagnose and give only a few hour to live a couple week later I am still completely heartbroken angry and confused have anyone ever hear of someone leukemia being so quick and aggressive that they die in a matter of day is there anything that could have cause the leukemia to form such as maybe radiation from somewhere there is no history of any type of cancer in our family so this cause of death is very surprising is this genetic meaning there is a big chance that I will get leukemia too if anyone have any answer or a similar experience I would so appreciate it this is so unfair I tear up now whenever I see an old lady anywhere I go I think to myself why could not my mom have grow old too my dad is devastate they have just celebrate their 39th wedding anniversary and were still so in love,negative,0
from one of my health groupssubject wayne dyer leukemiain case anyone here is not aware wayne have announce that he have chronic lymphocytic leukemia he is being see by an oncologist at the deepak chopra center just think I would send in case anyone would like to send he healing or contribute to his wellness blessing trishwayne dyer reveal that he have leukemiaa couple of week ago motivational speaker and author dr wayne dyer state on his radio show excuse begone that he have some thing go on in his body he do not elaborate on it at that time however early today during dr dyers program on hay house radio a caller reference the aforementione comment this time dyer provide some detail behind his health situation dyer state that he have chronic lymphocytic leukemia cll which he say is not life threaten for he while many people would certainly fear this type of news dr dyer appear nonplussed state that he is totally confident and at peace with it he will be spend some time at the chopra center operate by dyer longtime friend dr deepak chopra chopra have been in touch with he nearly every day since dyer learn of the condition dyer say that he will be work with a holistic oncologist while at the chopra center while conclude his short talk about this situation dr dyer say that he is excited about the prospect of deal with it in the good case scenario dyer note that he can live the rest of his life without any difficulty from it the condition dr dyer have help thousand of people around the world for many year let we pray for he and keep he in our thought source http www allvoice com contribute news 3778829 wayne dyer reveal that he have leukemia,neutral,1
my husband was diagnose with large granular lymphositic leukemia in october 2006 three week before our wedding fortunately doctor at stanford university find that this rare form of leukemia is treatable and possibly curable there are many people out there though that do not receive such a hopeful diagnosis do you know that more than 785 000 americans have leukemia lymphoma or myeloma do you know that every five minute someone new is diagnose every ten minute someone die leukemia is the lead cause of cancer death among child and young adult under the age of 20 please help tom and I raise awareness of an event call light the night thousand of people around fresno will gather at fresno state on october 6 2007 to pay tribute and bring hope to people battle cancer around 7 00 after midday we will make a two mile walk hold illuminate balloon white for survivor and red for supporter and light the night with hope more than that the evening include music food and family activity as team captain I encourage you to become involved in this worthwhile endeavor and to give yourself the experience of help other you will be glad you join we call I or register online with I erin gustafson or my team gustafson gang at www lightthenight org,positive,2
gmos now link to leukemiahttp nsnbc I 2013 07 17 gmo now link to leukemia barry,neutral,1
here is a link for an interesting article and sound bite regard aml specifically I think it would be of interest to many http wrbw membercenter worldnow com story 23452398 the leukemia lymphoma society and the knight cancer institute launch groundbreaking collaboration to improve outcome for acute myeloid leukemiapeace andrea,neutral,1
I recently have a spinal tap and I am see my neurologist on monday I talk to he over the phone today and he say there were some abnormality in the test he want to do more test to rule out meningitis and leukemia I do not feel sick at all except my vision it kind of scare I when he say that leukemia I mean that is cancer have anyone else have any similar experience,negative,0
the case are too long to post here so I copy the url take a look at they I hope they can be helpful and feel free to ask question here if you have any about aml I know some doctor specialize in treat aml always keep faith http www peoplehealthconsulting com mr070415 acute myeloid leukemia http www peoplehealthconsulte com leukemia,neutral,1
genetic difference associate with outcome in acute myeloid leukemiaby charles h weaver mdit appear that different genetic mutation alteration affect outcome among patient with acute myeloid leukemia these result were recently publish in the new england journal of medicine acute myeloid leukemia aml is a cancer of the blood and bone marrow spongy portion find in the middle of bone it is characterize by the rapid uncontrolled growth of immature white blood cell know as myelocyte the disease is more common in adult than in child average age at diagnosis is old than age 65 as cancer therapy become more individualized researcher continue to evaluate outcome associate with different mutation along with other patient and disease variable know mutation occur in the follow gene involve in aml the nucleophosmingene npm1 the fms relate tyrosine kinase 3 gene flt3 the ccaat enhancer bind protein alpha gene cebpa the myeloidlymphoidor mixed lineage leukemia gene mll the neuroblastomaras viral oncogene homolog nra researcher from germany recently conduct a clinical study to explore the potential association between the npm1 flt3 cebpa mll and nra mutation and outcome among young adult with aml this study include 872 adult who were young than 60 year of age and have enter one of four clinical trial for aml 53 of patient have npm1 mutation 31 have flt3 internal tandem duplication itd 11 have flt tyrosine kinase domain mutation 13 have cebpa mutation 7 have mll partial tandem duplication ptds and 13 have nras mutation significant improvement in complete disappearance of cancer was demonstrate in patient with a mutate npm1 gene without flt3 it d and with the mutant cebpa gene as well as in young patient the benefit of a stem cell transplant was limit to individual with the flt3 it d mutation non mutate npm1 and cebpa gene without an flt3 i d mutation the researcher conclude that the mutation status of the specific gene study is associate with outcome for patient with aml these result provide more evidence that a cancer diagnosis often need to be far define so that individualized therapy can be administer and potentially provide optimal outcome patient diagnose with aml may wish to discuss these result with their healthcare provider reference schlenk r dohner k krauter j et al mutation and treatment outcome in cytogenetically normal acute myeloid leukemia new england journal of medicine 2008 358 1909 1918,neutral,1
I am a mother of 6 and am partially separate from my husband their father we were go through divorce and I still have an order of protection on he he was abusive physically and emotionally to I and the kid the kid and I have been through counseling for that my issue is that he is in the hospital with leukemia which he have before he leave the leukemia make he more abusive and is not do well we kind of make up before the leukemia come back recently he find god I do not want to get back together with he however I do not really care if he live or die I have donate platelet as well as make sure our son was able to donate stem cell as part of his treatment I make sure he get the good help in the area have help he get insurance if he can by say we are still together the doctor think we are together so he would do this current treatment but my heart is not in it it is start to eat at I that I feel this way but am not act that way he now have a blood infection and it definitely would not help his situation I feel guilty and I do not I stop short of wish he would die how horrible am I,negative,0
turn out being treat for leukemia cure your psoriasis so there is that on a more serious note my leukemia was diagnose late the doctor say I should not have survive as long as I do and it is likely the psoriasis was what hold the disease at bay long enough so while I am likely one of very few case psoriasis save my life noodle that one,positive,2
a couple of month ago the fda approve the late drug to treat chronic myeloid leukemia cml call ponatinib brand name iclusig make by ariad the drug is a third generation tyrosine kinase inhibitor the late in a class of agent found in 2001 with the approval of imatinib gleevec novartis imatinib follow by dasatinib and nilotinib and now ponatinib are tyrosine kinase inhibitor http blog plos org workinprogress 2013 02 06 borne out of necessity and datum conquering mutation in leukemia,neutral,1
cll survival rate statistical informationchronic lymphocytic leukemiait is estimate that 15 340 man and woman 8 960 man and 6 380 woman will be diagnose with and 4 500 man and woman will die of chronic lymphocytic leukemia in 2007 incidence mortalityfrom 2000 2004 the median age at diagnosis for chronic lymphocytic leukemia was 72 year of age approximately 0 0 were diagnose under age 20 0 3 between 20 and 34 1 9 between 35 and 44 8 9 between 45 and 54 19 0 between 55 and 64 27 0 between 65 and 74 30 1 between 75 and 84 and 12 8 85 year of age these rate are base on case diagnose in 2000 2004 from 17 seer geographic area us mortality from 2000 2004 the median age at death for chronic lymphocytic leukemia was 78 year of age approximately 0 0 die under age 20 0 1 between 20 and 34 0 5 between 35 and 44 3 1 between 45 and 54 9 9 between 55 and 64 22 6 between 65 and 74 36 4 between 75 and 84 and 27 4 85 year of age discussion poster note I could not get table to paste up on here the number come out all over the place when I try also in the interest of space I ommitte many part of this report describe how they arrive at their number and so on if you want to see the entire report please go to the following link and you can print it out http seer cancer gov statfact html clyl_print htmlthank referencesall statistic in this report are base on seer incidence and nch mortality statistic most can be find within rie lag melbert d krapcho m mariotto a miller ba feuer ej clegg l horner mj howlader and eisner mp reichman m edwards bk ed seer cancer statistic review 1975 2004 national cancer institute bethesda md http seer cancer gov csr 1975_2004 base on november 2006 seer datum submission post to the seer web site 2007,neutral,1
hi I just think I would let you know about a site my friend have find great comfort in http leukemia angel gonetoosoon co uk is a memorial site for anybody who have die from leukemia you can add your angel detail and they will remember they daily and light candle for they and so on my friend have find great comfort in this site so think I would pass it on to you all,neutral,1
the leukemia lymphoma societys free web education program aml update treatment and side effect this webcast will take place on tuesday january 11 2011 from 1 00 prime minister to 2 00 prime minister eastern time please log in to the link below 10 minute prior to the program start time http www visualwebcaster com event asp i d 74619 we also encourage you to take a moment to visit the above link to ensure your computer compatibility with the web program webcast program material will be available at http register rmei com llsaml webcastmaterial html no later than january 4 2011 to add this program to your outlook calendar visit http register rmei com llsamlwcoutlook click open and save to add the event to your calendar any question please call registration at 866 992 9950 ext 305 thank you lauren berger mile per hour senior director patient service program the leukemia lymphoma society for more information regard the leukemia lymphoma societys education program and support service please call an lls information specialist at 800 955 4572,neutral,1
my dad was diagnose with aml in january of 2011 and less then two month later he was go before the leukemia he have been diagnose with lymphoma two year prior with the leukemia he do chemo and have been in remission and everything have been go good I was shock how quick it take he since his death I spend hour and hour every week research aml and am astonish at how much info is out there that if only we would have know about I can not help but think we could of have a really good chance at save he I have have a really hard time come to term with his death mostly because I feel like if I would have try I could have make a difference have anyone on here try anything like alkaline diet are you guy aware of all the research out there that suggest chemo is not the way to go after go over my dad medical record I learn that he do not actually die from leukemia I believe the chemo leave he suseptible to infection and that was what do it interestingly enough his death certificate list copd as his cause of death his oncologist stop communicate with we when he go to hospice,negative,0
my brother who is 44 find out this past march he have aml acute myeloid leukemia an aggressive form of leukemia they treat he with intense chemo hope to cure he his treatment end in sept we find out yesterday the leukemia is back now his only option is a bone marrow transplant he and I are adopt so I m not a blood match his wife who is one of the most selfish cruel woman only make this bad its really to much to even go into I keep a strong face and attitude for my folk my brother its feel lonely deal with all that is go on I am not married I do not have kid I have my brother and my parent I just get tired of hide my crying or have to find the ok time to do it I always feel a need to make people feel ok or comfortable crying do not make people comfortable it hurt and upset they I feel like I am ramble now and probably not express very well how I am feel as always thank you for the kindness I always find here you are all very precious,negative,0
I am 47 and newly diagnose with ra which have been a painful depress experience one of my old sister was diagnose many yr ago with rsd and have many surgery to stop the pain she die in 2005 from leukemia I wonder if she was miss diagnose and really have ra she have constant fatigue was depress from all the pain and from what I can remember she have swell intermittently in her joint untreated ra can lead to leukemia have anyone ever hear of this happen,negative,0
I have four of the sleek healthy guinea pig buet soon that will change I have been tell by two vet and a biopsy that one of my piggy daisy have cavy leukemia and that treatment would not help I have to hide what I feel as my mum on holiday now and say that last time she was on holiday it was all about the rabbit die so I have no one to talk to about this and all I want to do is cry no one is do anything to help daisy and every day the lump get big and more appear I am not ready to let she go and she s only 4 5 year old that s too young to loose a piggie once she go it will be the begginning of the end as I want to move out and landlord would not take pet so I would not be able to have they but they keep I go if I have not have have they then the day my dog die so would have I they need I and I need they as without they I have no one I can not loose she yet I have no idea what to do other than love her feed her nice thing and cuddle she I have have pig die from illness before but never like this once they get sick then they eaither recover or die within a week I have plan to go away while mum have her holiday but I can not leave daisy not like this and with my mum she would never hurt she but daisy would not get the care and devotion that I give she from my mum mum see daisy as just a guinea pig where as I see they as my family when I name they and do not go with the name she suggest she never bother to learn their actual name even after 4 year I love my fur baby they have never yell at I or play mind game and have always greet I with love and happy noise see mum have some strange view in her world I can only grieve for an animal for so long usualy 10 to 14 day before it stop being grieve and become emotional baggage that I carry around forever at least in her mind greif have many stage and can come and go over many year its been over six year since my dog die and nearly 5 year since my last male piggie die yet I still miss they I do not cry much but I still love they and always will I do not understand why no one will fight for she there must be drug that can help she especially consider how much cancer reaserch is do on they why have neither vet say anything I want to be angry with someone so much I have care for they since they day I get they feed they the good food and care for they beyond what most owner would do so why must she be take from I and why am I force to hide my true feeling I do not choose when they die yet I am blame for ruin mum holiday I do not bonnie do not die during mum hol not that it matter I need my quartet of piggy and I need daisy to live so that I can live for they their shed is already too quiet from loose bonnie I can not bear the thought of loose another I am cry rage on the inside,negative,0
I see this post on the lls website the guy give the presentation is very entertaining too http www 4shared com video j9rctiux hematology_ch_06_07_acute_luke html locale en julie,neutral,1
do anyone know anything about the incidence of leukemia after a person have been treat for lymphoma,neutral,1
I have been fight aml leukemia since nov 2016 I am currently still in the hospital you can read my story at https www leukemiafighter org,neutral,1
send out an extra special prayer today mother day for all the mom who are either battle their own leukemia diagnosis or who are help a family member battle through their treatment I wish that a bowl of mom home make chicken soup a band aid and a few kiss would make this leukemia boo boo go away I pray an extra dose of strength and grace for mom today gloria,positive,2
is this because I have inflammation every time I get blood test my white blood cell are high about double the normal person I have a cousin with leukemia so I will discuss it with my doctor do anyone know what kind of test you take for leukemia do anyone else always have high white blood cell,neutral,1
for your information the leukemia lymphoma society is present an on line virtual lecture on cll here is the description from the email I receive the leukemia lymphoma society is pleased to present cllunderstande diagnosis and treatment a virtual lecture feature a presentation by michael j keating mb bs of the university of texas md anderson cancer center in houston texas I have hear dr keating speak several time and he is informative and not overly dense positive about the progress treatment is make you should be able to log in thru the website of lls I also suggest sign up to receive email from both lrf lymphoma research foundation and leukemia lymphoma society their website are ok but I have find well information elsewhere like clltopics org but both of these group sponsor lecture research and send update regard clinical trial resource and if I get an email on those day I feel too fragile or overwhelmed I just wait to open it until I feel ready keep the faith and good luck to we all,positive,2
acute myeloid leukemia community support the leukemia lymphoma society interesting article aml http www dailymail co uk health article 3631703 big breakthrough personalise cancer medicine scientist develop tailor treatment leukaemia patient html I am very curious how this differ from the current cytogenetic sub type and mutation that are use to categorize determine favorable intermediate and unfavourable category when I was dxd 3 1 2 year ago my med team was very specific about what cytogenetic were favorable e g inversion 16 and translocation 18 21 after my cytogenetic come back as inversion 16 they explain that until the result of all the mutation come back the decision to go chemo or sct would not be make my lead onc who have 30 year specialize in acute leukemia write on the stainless board on my room the probability of each mutation ckit and flt3 33 once they come back negative my team present I with a treatment plan in write with four session of consolidation and a subsequent cure probability of 70 I reread that letter often to I the article reference 11 different disease which could be the different combination of subtype and associate mutation blessing julie,neutral,1
hello I was recently diagnose with melanoma and the spot is on my lip I am about as fair skinned as one can be and cover in freckle about 5 year ago I lose my father to leukemia it start as lymphoma and they do the initial biopsy and with in two month the cancer have metastasize to his lung and stomach which lead I to believe the once air hit cancer it spread like fire some doctor have absolutely agree that is correct other deny it he was in remission for about three year then in january of 2011 he think he he the flu and it turn out to be acute leukemia within a month he was go I remember look up the brand of chemo he was give I will go check and repost it here but it say one of the known side effect of this particular chemo was leukemia it feel like the doctor who give he that have murder he I feel so wrong and swear to never trust american medicine again I still do not what should I do I am so scared I am only 34 and have a six year old little boy who is my whole world I am just really really scared,negative,0
the third know human retrovirus xmrv seem to be emerge as a player in many illness a link have already been make to a certain type of prostate cancer in a recent study dr ila singh document that xmrv have a strong link to human cancer and may be associate with cervical cancer lymphomas leukemia and breast cancer and of course the wpi have make the link to I cfs on tuesday december 14 the fda blood product advisory committee will be hold a meeting to discuss the potential danger of murine leukemia virus mlvs in the blood supply the public is invite to participatehttp cfsuntie com blog2 2010 12 01 retrovirus victim uniteit in the blood al,neutral,1
take my daughter to the doctor last night for result of her bloodwork he think she may have leukemia I am so scared I have so much anxiety right now I could not sleep have to take she for more bloodwork which will run a specific test for leukemia I am so angry at the medical profession for not look into this soon her white blood cell count have been come up high for nearly two year now and then they would retest she and it would be normal please pray for she and for I she is cope well than I am laugh out loud,negative,0
our daughter was diagnose at 4 month with aml we were in complete shock we sign up for a clinical trial and she have go through 3 round of chemotherapy with one more to go she do so well at first and go into complete remission with no sign of leukemia as we were plan the last round she develop a rash that look like leukemia cutis this mean a less favourable prognosis and we are go to need a transplant do anyone have any story to share about infant fight aml any success story on bmt what can we expect,negative,0
I am at stage 2 6 month ago my count was at 19 and now it have jump up to 47 I know that is not high but I am in no treatment I want to wait until I absolutely need it I go every 6 week now because it is go up pretty fast the doc say it may be full blow and I have no idea what that mean I was too much in shock from hear my count to ask what that mean I still do not know much about this leukemia do anyone know what full blow leukemia mean I sign up for this group a few day ago I guess I need friend do not know how to get they I have give this to god so I do not stress about it but I would like to know what is go on they may do another bone marrow test soon to see if it is full blow what ever that mean how do I get response and make friend gbu all and take care,negative,0
hi all my cousin come across this piece of news and think it may be useful information the new drug is report to show encouraging result in the phase 1 trial I wonder if anybody here is in the trial here is the link to the news http www monash edu au news show anti leukemia drug in australian and we clinical trial and link to the clinical trial http clinicaltrial gov show nct01211691 cheers tina tan,neutral,1
an information video pregnancy in chronic myeloid leukemia jane apperley imperial college london uk http cml foundation org index php virtual education program 52 vep english 182 vep apperley pregnancy,neutral,1
thank you for all of your feedback and support concern my skin issue I have a biopsy do on it and heartbreakingly it have been diagnose as leukemia cutis I just do not understand how it keep come back I have have so much chemo and a bone marrow transplant I hate the r word but this is the second time it have return now I just do not get it I feel so healthy and normal despite these skin lesion but I have also develop some swollen lymph node in my groin area my doctor call yesterday say he want I admit as soon as possible for more chemo this was devastating to hear as my birthday is approach soon and I can not imagine spend my 26th birthday in the hospital my mom tell he that his phone call make I hysterical which it do and then he change his stance he is now go to meet with we on saturday to discuss treatment option have anyone hear of do chemotherapy for aml as outpatient I know it sound bad but I do not know what I would do to myself if I have to go back in the hospital again I hate the way I am treat in there like I am helpless and incompetent and I lose my dignity every time my doctor is also think about do another bone marrow transplant but this time from my other brother who was also a 10 10 match I know I should be grateful that my doctor still think I will be okay in the long run and that he still have option to treat I he say my blood and bone marrow and spinal fluid are still clear so I do not know how this is happen finally I am wonder if anyone know of any sedation drug that I could receive if I do have to go back into the hospital I just can not do this anymore and I know I will not be psychologically well or a very good patient if I have to go back in it might sound crazy but I want to ask my doctor if he can just keep I on something while I am in the hospital just so I can get through it without completely lose my mind,negative,0
good morning friend I was read the news this morning when I come across an article relate to a leukemia drug that have been suspend I do not know if anyone is on this drug and I am sure that if you are your doctor would have give you this information early than now at least I would hope so I am include the link to the article below I hesitate to post this because I do not want to cause unnecessary angst but being that I consider you my extended family I think it good to share knowledge is power happy november hope you are feel well http www medscape com viewarticle 813531,neutral,1
on 12 20 2009 my friend die of leukemia I have not hear from she in a couple of week so I find out in january of 2010 when people were talk about miss she I feel angry that no one could have tell I back then and I have been battle grief ever since once in a while when I am alone I will cry over how much I miss she it still hurt that I could not say goodbye to she I do know I could go to where she was bury I also know there is really no one I can turn to for help besides a grief counselor anytime I vent to my fiancee about anything I feel as though she do not want to hear it she even suggest other people for I to talk to even though it have been a year and a half since her death it still affect I to this day I know I can not even think about she or talk about she without tear up I know what I can do to cope with it and I will I just actually hate feel like there are not true people in my life who would console I and comfort I and tell I it is ok,negative,0
I was first tell I have mds however when I get my first bone marrow I was tell I have aml and start induction chemo which later my bone marrow was not all the way heal and they do bmb again and it was inclusive so after get out of the hospital and count start go in the right direction they give I to another doctor and he have another bmb do to find out if the blast were go the result of that show 9 blast now this doctor is question if I even have aml which other doctor at the hostpital diagnose I with he is think I have cmml now and is start I monday on a 5 day decitabine treatment is this weird to be diagnose so many different way should I seek some other hospital I do not understand how I can be diagnose with one thing and then get diagnose differently he say in order to be diagnose with aml you have to have 20 or more blast again mine at 9 now can anyone give I any advice about this also any advice on the 5 day decitabine drug treatment I am wonder if I do this treatment and later come to find out I have aml if it change anything also the dr say I will need a stem cell transplant to cure this cmml that the treatment will not cure it just slow it down,neutral,1
http www dailystrength org c myelodysplasia forum 10141394 caregiver group for detail about my mother I keep forget to ask her hematologist and he is never refer to it as being cancer nor have any other medical person we ve encounter however since the old name was pre leukemia and I know leukemia is cancer I suspect mds is cancer I get ask this a lot and think I would find out if mds is consider cancerous technicality really since the course of the disease mimic cancerous disease in most way just want to be able to say yes or no to the question instead of I do not know,neutral,1
my 74 year old mother go through standard induction therapy day 14 bone marrow biopsy show 5 cellularity and 2 blast they start neupogen and after 14 day on it her wbc is still 0 6 they say they will give it a couple of day and if not go up will repeat bone marrow biopsy one of the hematologist say it is possible that leukemia is keep it back I am interested in other people experience with neupogen and how quickly it work do it take long to take effect in old adult how can leukemia be hold it back,negative,0
my grandmother 76 y o have been do treatment for mds since june 2008 on vidaza it is been 10 day since she find out that mds have progress to acute leukemia she do not know what type of acute leukemia and from what I am find it is aml do anyone know if it could be something else her result of her bone marrow test was 38 cancer cell to every 100 so do that mean her blast were 38 also she was suppose to go into hospital immediately for 7 10 treatment could that have been the 7 3 treatment or the induction phase my grandmother do get a second opinion and it was the same do the 7 10 treatment with 2 week recovery she have been tell she is too old for a bone marrow transplant she stall on get the 7 10 treatment as my grandfather can not be leave alone for too long she tell I her hbg 8 9 and platelet 22 this past friday she is meet with the dr again this come friday to see if she have other option for treatment I have never like her dr and can not believe she is wait so long to see she again especially since she want to get she into the hospital immediately I have been read a lot on the internet and forum try to get an idea of how fast this can progress and would love to get some feedback from other that have go through this or know someone that have I live over 2 000 mile away and want to get an idea of when I should go see she before she get too sick appreciate any assistance brandy,negative,0
any tip on useful treatement other than getting rid of the leukemia my mom show up first on her back and low leg now have spread to her face and much of her body she say it is not bother she much but she have a pretty high discomfort threshold everything I have find on line talk about diagnosis symptom cause and so on but nothing about try to manage it if that is even possible,neutral,1
I just find out t hat my brother who is 54 year old have leukemia they say it is the bad kind and he need as bone marrow transplant they are give he a lot of transfusion right now I guess I do not know what to expect my brother have resign to the fact that he will die soon I want to know what the successful cure rate is or at least remission thank you for any support,negative,0
do anyone out there have any info on case where hcv was treat in leukemia patient I am being rreferre to a hepatologist at you of m for a 2nd opinion to see if I can even be treat at all he say he have not have anypatient with lleukemia i m glad all precaution are been take but am cuious if I will be force to allow this disesase to win hs fight because of the immuno suppressant med possibly cause I to relapse I am glad the dr is being thorough but I m mad about possibly not being able totreat ever,neutral,1
tomorrow I am go to the wake of a classmate one who die of leukemia the same type of leukemia I have as a very young child he is the fourth kid in our age group over a 12 year span to have develop a type of cancer he is the first to have die though I am break down over it he have the same cancer I do and go to his funeral is I guess my way of closure I just do not know if I can do it I am lose sleep and I can barely eat and I just want to die he get that peace while it was deny to I survivor guilt bad and my medication are not even hold I up help grief is a feeling I know all too well but this time it is more than almost any time only my grandma beat it a decade ago and I am not over it,negative,0
leukemia survivor meet his bone marrow donorwatch this touching meeting between two stranger who share an unbreakable bond luis have undergo 9 month of intense chemotherapy to treat his leukemia but it was have no effect doctor determine that unless a viable bone marrow donor could be find luis would die fortunately through the be the match marrow registry they were able to find a donor whose marrow would provide luis the life save stem cell he need to live watch as luis and the woman whose selflessness and generosity have he a second chance at life meet for the first time this is truly a touching video if you would like to consider being a bone marrow donor sign up with the be the match registry today http www youtube com watch v hi14ug_8_paplease watch thank you,neutral,1
my little angel die of leukemia last april and I am devastate angry and confused he was the happy cheeky little boy that make everyone around he smile and feel warm inside he was a wonder to everyone how meet he you see he have four limb cerebral palsy plus a long list of other condition so when my partner and I find out he have leukemia we could not believe it how could the world be so cruel to such a little angel I am find it hard to think straight let alone write anymore there is so much more to share but I can not at the moment I need advise please do it get any easy,negative,0
at last she may rest in peace the music industry lose a legend today from cnn etta james whose assertive earthy voice light up such hit as the wallflower something get a hold on I and the wedding favorite at last have die accord to her longtime friend and manager lupe de leon she was 73 she die from complication from leukemia with her husband artis mill and her son by her side de leon say she was diagnose with leukemia in 2010 and also suffer from dementia and hepatitis c james die at a hospital in riverside california she would have turn 74 wednesday http www youtube com watch v _ 1uunrdq61 m,neutral,1
feb 26 2013 researcher from the college of pharmacy and medical school work within the masonic cancer center university of minnesota have partner to identify genetic variation that may help signal which acute myeloid leukemia aml patient will benefit or not benefit from one of the new antileukemic agent share this their study is publish february 26 in clinical cancer research in the late study you of m researcher evaluate how inherit genetic polymorphism in cd33 a protein that naturally occur in most leukemia cell could affect clinical outcome of patient treat with an exist chemotherapy drug gemtuzumab ozogamicin go an immuno conjugate between anti cd33 antibody and a cytotoxin know as calicheamicin which bind to cd33 on leukemic cell as go is internalize by leukemia cell the cytotoxin is release cause dna damage and generate leukemic cell death in recent clinical trial go have been show to induce remission and improve survival in subset of patient with aml however there is wide int patient variation in response jatinder lamba ph d and colleague identify and evaluate three genetic variation of cd33 in two group of patient with pediatric aml one group that receive the drug go and one group that do not they find that specific genetic variation in cd33 that significantly affect the clinical outcome of aml patient who receive go base chemotherapy understand how genetic play a role in how drug work is extremely useful particularly for a drug like go which have show a very heterogeneous response in aml patient say jatinder lamba ph d the studys lead author and a researcher who hold appointment in both the college of pharmacy and the masonic cancer center university of minnesota our late finding lead we to believe that genetic variation in cd33 influence how aml patient leukemic cell respond to go aml is a cancer of the blood and bone marrow and is the second most common form of leukemia in child though the most common type of treatment for aml is chemotherapy lamba say the disease remain hard to treat and new more effective therapy are need the overall goal of our study was to use genetic datum to predict beneficial or adverse response to a specific drug thus open up opportunity to use this information for drug optimization to achieve maximum therapeutic efficacy and minimum toxicity our hope is that our research could serve as a marker of prognostic significance for clinician to select the therapy that have the great odd of being effective for individual patient base on their cd33 genotype,neutral,1
melt down can not stop the water work today I find out dr wayne dyer die last saturday I feel so terribly sad what a great spirit I think one day I might be able to meet he I do not know he have leukemia I believe he was schedule to lecture this november in new york city I want to go see he he help so many people include I thank you so much dr dyer x leukemia is a type of cancer that affect the blood and bone marrow https www ll org leukemia the quality of my life hasn t change at all he continue the quality of my life have always been good because I ve always make it good when I was dirt poor as a little kid I can never remember being unhappy dr wayne dyer ny times http www nytime com 2015 09 01 art wayne w dyer prolific author of self help book die at 75 html _ r 0 when I think about how wayne would most like to be remember I believe he would want we all to continue to learn to realize to embody the fact that quote wayne we are not our body our possession or our career who we are is divine love and that is infinite nicolas ortnera dedication to wayne an amazing spirit xthe bad plus make possible hq https www youtube com watch v skoxnxirokyjoshua redman soul dance https www youtube com watch v c6_owfsnczqlynyrd skynyrd free bird hd studio version https www youtube com watch v iean9dnavt4my deep condolence to his family and friend h,neutral,1
I am currently work on my senior thesis exhibition at the art academy of cincinnati this spring my exhibition will be hold for my school and the public as a part of I get my bachelor degree in photography someone I know recently pass away from leukemia and my stepfather is currently fight leukemia so I understand how it is to interact with and support people go through such a difficult time with their health especially when the illness is in their blood this cause I to want to do something positive with the negative situation I am want to meet and interview people with blood cancer and ultimately photograph they once they share their story with I the message I want to get across is strength and empowerment I want to show the world how strong people can be and how one can overcome so much when it seem impossible then I hope to include the story and photograph of the people I connect with into my exhibition in the spring there I will donate all of the money I make to the leukemia and lymphoma society I will also have donation spot for people who do not want to buy any art but still want to donate I want to raise awareness raise money and empower people to get close to find a cure I will treat your story with respect and will not display anything without your permission or consent I know from first hand that it is hard to talk about and share with people thank so much for your time and I hope everyone here get well,positive,2
hello aml team I am report back as order and since I do not have a support group on daily strength I hope that the aml team will officially allow for I to become part of this group to be support and to support in return some of you know that my journey begin with a trip to the er in december of 2014 my wbc were at 22000 and my aec absolute eosinophil count around 14000 I reach out to all of you in january as we begin the process of diagnosis we learn it was not aml after my first bone marrow biopsy but was diagnose with myeologeneous hypereosinophilic syndrome chronic eosinophilic leukemia m he s cel in early february I promise everyone to check in as thing move forward so here I am since my first bone marrow biopsy in january I was send from walter reed to the national institutes of health where my doctor try everything to see what might work on I prednisone imatinib and interferon have all fail additionally mris have reveal that I also have probable multiple sclerosis with lesion on my brain in the right spot a couple of other lesion on my spine and oligoclonal band in my spinal column after a spinal tap no blast or immature white cell in my csf so they are confident that the lesion are not leukemic in origin it appear to be a case of a very rare disease on top of a pretty rare disease that are independent from each other so where we are now is head to a bmt unlike the nasty leukemia that you all have m he s cel generally cause problem with either blood clot eosinophil are sticky and blood thinner do not work or organ damage specifically heart valve and pulmonary since they can not get the eosinophilia under control bmt is the only viable option I am still active duty navy currently station at the pentagon the navy have put I on limdu limited duty and is transfer I to stanford university hospital for bmt I have a remarkable 53 initial 10 of 10 match and they are narrow down for the good match current plan is for bmt in late june or early july even more remarkable is that my neurologist have say that the bmt when successful will likely cure my leukemia and the multiple sclerosis normally miss is not treat with bmt give risk but in certain extreme case it is if you all think that there is a more appropriate support group for I please let I know otherwise I would like to be part of this group as we all tackle the challenge of leukemia regardless of the specific variety v rjohn,neutral,1
hi I am new here and am look for support as a caregiver to my husband who have relapse acute lymphoblastic leukemia with the philadelphia marker all ph this have been nearly a 3 year up and down battle I can find no support group that I can attend either they are too far away 50 mile or meet during the day while I am either at work or at the doctor with my husband or both anyone here I can chat with cry with give and get encouragement with,negative,0
just curious how many of you out there may be former leukemia patient who have previously or are now treat for hcv my analytical mind is curious about how side have been for you big complaint or problem during treatment if you think you re previous battle with cancer have any bearing on how you are or were affect by this disease or treatment,neutral,1
anyone in the us who have been diagnose with cll can get up to 500 00 a year to help with their medical bill call your local chapter of the american leukemia lymphoma society for the application and information on how to get start it is not alot but it help let we fight the good fight,neutral,1
ayurveda the indian indigenous and ancient health science is probably the only remedy where leukemia is cure with out side effect there are vaidyas traditional ayurveda practitioner in indian rural though their number nowadays are very few who are successfully do this amazing healing when we use the word cure for leukemia it must mean much more than remission modern medical doctor are not use the word cure because the disease often relapse even in ideal case of apml or aml with blast count less than 20 percent and age below 40 in indian remedy such case are sure success it often take less than 30 day to bring down the blast to 0 level simultaneously build up the other blood count and general health the patient will have to continue the treatment for many more month with diet restriction and under close observation so that the disease shall not relapse one may get abundance of excellent introduction and overview of the profound ancient healing system in the net these give the reader a chance to sense the work principle of ayurveda and see how ayurveda can be adapt and integrate into life in a practical way for today health need also many book are available both ancient palm leaf literature now in print form and the new age interpretation the word ayurveda can be translate as the knowledge of life or more correctly as the knowledge of longevity ayurveda healing look at the whole person the body the mind and the spirit and help to develop an individual program to bring balance good health and at least a taste of immortality there are still hidden secret of ayurveda which are seldom reveal in the net nor in any book but keep for privileged private handling of master in the linage of guruparampara disciple is learn sit at the foot of teacher for generation when it come leukemia or other difficult disease there are still unique people successfully do healing while there are many thousand of ayurveda main stream practitioner those who have formally study the codify syllabus in the numerous ayurveda college of the country along the vast of the land the one in the first category is know as ayurveda vaidya and the second ayurveda doctor who are general practitioner those who are not acquaint with the concept of enrichment of ayurveda formulation through intricate course of repeat refining awakening of vital energy point the marma for revitalize sapta dhatus and enliven energy field of chakra may find it difficult to comprehend amazing therapeutic success of leukemia treatment compare the methodology of treat in vedavidhya with modern medicine practice and attempt to seek scientific explanation as to how this healing system work could be a difficult task this is entirely a different version of understand ancient seer develop through deep meditation tapas and prana njana supreme intelligence as a vaidya I am glad to participate in study program of molecular biology or cancer genetic of university of advanced nation to see scientifically how this healing reinstate normal cell function even in disease that do not respond to any treatment currently available they can research if this healing stop trans location of genetic matter in human chromosome they also can see how this therapy act selectively induce cell death in only the malignant cell and not affect neighbor healthy cell it is my sincere request to international scientific community to focus on what can be do to expand the current research environment so that practice that lie outside conventional science are appropriately address vaidyan from cochin india,neutral,1
so my new illness lymphoma start out as flesh eat bacteria I was fine until I watch something on tv about a lady with flesh eat bacteria that turn into leukemia when I realize my before midday was not rot off but my joint were hurt and now that have become lymphoma I even have a cbc do to convince myself I do not have leukemia I do not know for the life of I why but once I was clear of leukemia and extensively ask dr google about my cbc result even after my dr literally say I promise you will live I find that itching can be a sign of lymphoma so wham now I am itch all over oh and I find some small red dot on my that I visit 2 drs and ask the doc I work for about because I was am convinced they are petechiae everyone keep tell I I am fine and I should know I am but I can not shake the feeling that I am not or the urge to google junk which I know is bad and I have this stupid itch that I know I simply invent in my brain because I do not itch until I read about it I need help at 22 I am much to young for this and I am not resort to med to control my fear and anxiety I want to fix this on my own,neutral,1
hi everyone okay this is not one of my more usual upbeat and cheerful message sigh but an update on goose I just get off the phone with he I do not want to go into great detail with anyone without first ask his permission to do so I m sure you can all understand sigh he have been book into princess margret hospital in toronto today for aml explaination follow acute myeloid leukemia aml also know as acute myelogenous leukemia is a cancer ofthe myeloid line of white blood cell characterizedby the rapid proliferation of abnormal cell whichaccumulate in the bone marrow and interfere withthe production of normal blood cell aml is themost common acute leukemia affect adult and its incidence increase with age although aml is a relatively rare disease account forapproximately 1 2 of cancer death in the united states 1 its incidence is expect toincrease as the population age last week was a battery of blood work bone marrow test for he and this is the result of this thing move very fast for he and for once so do the canadian medical system I will be go to see he on saturday and sunday comme up and apparently they have internet access at the hospital where he is so I will be take my laptop to he hopefully he will be able to use it to get on line as it look like he will be there for aproximately 8 week at this time and this was if it work he will be able to keep in contact with everyone on ds also if anyone wish to send he a private message please just send it to my private email address and I will deliver it to he on the weekend other than that he seem to be hold up as well as can be expect know that personally I love and respect you all dearly but please no one no one tell I that god do not give we more than we can handle I just do not wish to hear that at this time sorry if that offend anyone but it have been a hell of a rough week emotionally and I am do handle anything at this point and I can say with almost certinaly that goose is as well sigh hugsheather,negative,0
hi I would like some advice support about anemia my husband have been stuggle with anemia for quite a while now approximately 2 year he is take daily supplement of iron 150 everyday and his level are still low he was diagnose with chronic myloid leukemia nearly a year ago he also have a colon resection about 2 year ago he have the anemia before the cancer diagnosis the oncologist want to find answer to where the anemia is come from he say its not likely from the leukemia he do an upper gi scope small intestine scope and another colonscopy all test were negative for abnormality now what is it common not to find answer as to where the anemia is come from his level are low but not to extent where he need treatment yet any help or advice I would appreciate rainie42066,neutral,1
hi everyone this is my first post my father was diagnose in december with myelodysplasia he start chemo in january for four month a week ago monday we meet with the doctor and were inform the chemo was not work and he will develop leukemia in six to twelve month the doctor advise at the time he develop leukemia he should be place in hospice immediately as you can imagine we are all in shock heart break and I feel the doctor just give up on he sorry we can not help you he say I am reach out to other to ask for advice direction or suggestion he is 69 and the doctor say he is too old for a bone marrow transplant our family is willing to explore our option I know there is no cure but do anyone have any idea to help we thank you for listen and I look forward to hear from all of you,negative,0
I have not been on the forum in a long time I have been try to get my life together and move on from my cancer I am in a second remission and my last bone marrow biopsy was clear I have been receive intrathecal methotrexate biweekly for several month to prevent leukemia from return to cns my last lumbar puncture show atypical cell my doctor do not know what s go on so send my cell for further testing I am meet with he tuesday and hopefully he will have an answer for I here is the issue I am feel perfectly normal and healthy so would think hope that there is nothing wrong and that it was just some funky cell as I say my bone marrow is clear and all my blood work have been good my appetite is great and I exercise almost every day however I have develop some skin lesion on my abdoman and back I have not tell anyone about they or show my doctor I will show he on tuesday I am so scared that it may be leukemia in my skin cell the lesion are small and circular w a caf au lait tint have anyone have these before can anyone tell I that maybe they are not leukemia is there anything else it could be how could I have it again when it is not show in my biopsy or blood work I am really freak out about it I could really use some reassurance or advice thank you so much,negative,0
how is this eulogy draft its funny you know for year you are warn by every doctor any minute now shell be go you research leukemia maybe think you will find out something to help you keep the hope no matter what they say you keep the hope you know but you do not really know you reject it all yet you know but until that hysterical call come you do not know a thing and even then you re not sure its real you re still keep the hope bone marrow transplant and blood count later and you still keep the hope denial will save you certainly no bad thing will come certainly all will be restore there is a verse in the bible bless are they that mourn for they shall be comfort they will be comfort tis true because they will accept that lorena is no long suffer with leukemia no more pain no more illness just the perfect soothe white light of her creator she is with pappaw and terry and great grandmother all her love one are surround she now she have eternal peace there is no easy answer no magic word when our love one move on without we but if you believe at least you have some comfort in know that when they change world they are happy lorena was affectionate and warm she have the goodness of child in her soul she was always happy to see any visitor but let we not forget that she was also a warrior she fight leukemia with everything she have she never complain she say instead I feel fine I m okay do not worry this she tell I all the time and I love that she say it because in the denial that she was die she find the strength and faith to live on for many year after her diagnosis lorena live on and though she is not physically here with we that hope that faith and that warrior spirit of hers will live on in our soul just as she will live on in our heart god rest you,neutral,1
I have been want to get on the bone marrow donor registary for a long time so I see in the paper they were have a bone marrow drive for a 19yr old with leukemia today I go down there and they have I read the health question to see if I was healthy enough to donate and the very last question was do you have any severe back problem or chronic back pain I have no idea that need to be consider I get that they go into the bone at the hip but I still do not quite understand why someone with back problem can not donate so they have a medical assistant talk to I and he say I could not be a donor because of my back deg disc disease was list specifically I am soo disappoint my hubby say and I know I can do so many other thing and still do for other but for I this was really something I want to do one of my big fear is one of my girl get leukemia my mom die of multiple meyloma and that is close in the sense that it is in the bone marrow I would never be able to donate to they I also try last month to see if I was a match for my cousin who is in liver failure and because of my health they would not even test I I guess I am tired of say I can not because of my back they people at the drive were very nice and thank I and say they were sorry for all the back pain and I feel uncomfortable because no amount of back pain to I could be as bad as your child suffer with leukemia I do not want my issue to be any part of what I was try to do or in any way make it about I then I feel emotional and want to leave as quick as possible my heart go out to the family and any family suffer with such a terrible and frightne disease,negative,0
in australia the leukemia foundation have a annual fund raising event call light the night people gather at various site across the country and light lantern to support and to raise awareness around leukemia gold lantern are carry if you are honor someone who have pass from the disease blue lantern are carry if you are support someone with the disease white lantern are hold if you have have leukemia last year whilst I was fight this disease in hospital my work buddy go to the event and carry lantern in support of I this year I am so excited that I am fit and healthy and am able to attend the event together with my family and friend I register to raise money for the event and in just a few day via facebook posting and email send to work collegue by my family and friend we have manage to raise approximately 2000 I am so touch by this support and it highlight to I that we are never alone whilst we may be suffer from this desease and have to endure the treatment our family and friend and their friend and work mate are there on the side line cheer for we to get through this the walk is on 19 september and I can not wait to walk with pride and carry my white lantern and say I have survive at the same time I will look at all the gold lantern hold to honor those that were not so lucky and say we have so much more work to do to find a cure here is a link for those that want to read about the event I am also interested to see what is do around the world to raise awareness and help find a cure http www lightthenight org au lisa,positive,2
hi everyone my name is victor and my family life have change overnight my 64yo father go to the doctor a few day ago with flue like symptom and was just 9 5 13 diagnose with acute leukemia needless to say this news have turn our world upside down and have leave we in a very dark and ominous state of mind the only information we have at this time is that the bone marrow biopsy result indicate that the total percentage of blast cell present exceed 90 and that he likely have acute monoblastic leukemia a subtype of aml prior to this my father never have any medical issue or condition and have live very healthy life till now in fact he have his yearly physical,negative,0
new video from patient power study bring positive result for the most resistant type of cmla promise new treatment bring hope for patient with a rare form of leukemia who have run out of treatment option result report for a third line treatment for chronic myelogenous leukemia cml show the investigational drug ponatinib help patient with relapsed or resistant response to prior treatment overcome the resistance include those with the previously invincible t35i mutation lead trial investigator jorge corte md from md anderson cancer center present finding at the american society of hematology annual meeting he say the drug was effective in both patient with a wide variety of mutation as well those with none and put the new datum in perspective for cml patient currently in treatment see the video with dr corte at http www patientpower info video study bring positive result for the most resistant type of cml,positive,2
my boyfriend was diagnose with aml on january 3rd 2017 so we are new to this community for those of you who have time to read this I am go to try my good to describe our experience thus far and hopefully someone will have some advice to give I if you have any question please feel free to ask as there is a lot of information we have obtain in a short period of time and it is easy for I to miss something a little back round greg and I have been together for 7 month and we have a bit of an age gap between the two of we I just have my 22nd birthday on the 16th of december and he just have his 35th birthday the 30th of december we were both bear and raise in alaska and the both of we have never been married nor have kid often in alaska people form a type of seasonal depression in the wintertime because of the lack of sunshine and constant darkness mid november is kind of when greg start act weird in the sense that he was pretty tired most of the time and keep talk about how hard it was to get up the stair and little thing like that as athletic and active as he is I have assumption that he was develop a seasonal depression at the time he have no health insurance and as most man are do not want to see a doctor anyways as time go on his tan complexion become very pale and he develop serious lack of appetite and energy I was so confused and concerned by his behavior and tell he he need to either apply for health insurance or go to the er without insurance I think he must have some sort of anemia with the way he bruise so easily and that maybe he was depressed as well it was not only concern but it was affect our relationship I remember a couple day before christmas greg and I were lay in bed and he just flat out tell I that he know he have leukemia base on what he have read of the internet we both cry together that night especially I because the thought that my boyfriend might have cancer never even cross my mind it have hit I hard after I have read the symptom of leukemia but the possibility was so scary I just shrug it off it wasn t until the 3rd of january when he have hardly been out of bed for 3 day except to go to the bathroom and shower that I give he the ultimatum and say that he was either go to the hospital or I was go to leave he it seem like he was die before my own eye and I was not go to watch he suffer any more diagnosis it take a little less than an hour from the time we get to the er to diagnose he with leukemia fear run through I know that greg do not have any health insurance and I know this was far more than just get help for depression or anemia the news was a shock and emotion were high alaska do treat leukemia patient but I suppose that his count alarm the doctor enough that they feel as if he need to be medevac d as soon as possible to the university of washington medical center the problem was that he have a hemoglobin the amount of oxygen in his blood of 3 where as you and I have a hemoglobin of 15 16 in order for any person to fly they at least need hemoglobin of 7 so 4 blood infusion later he was at hemoglobin of 7 and we were fly out in a leer jet around 6 am on january the 4th by some miracle greg have apply for medicaid about mid december and we have not hear from they since so he and I both assume that he was still uninsured before we leave the er a lady pop her head into our room and say something as simple as alaska medicaid is go to take care of you do not worry about anything I remember my jaw drop and this huge weight was lift of our chest duration in the hospital we arrive at the uw medical center early in the morning on january 4th our room was beautiful with a great view of a harbor and mt rainier greg was so full of energy and he finally have color in his skin again think back I was so naive yes people become pale in the winter in alaska but I should have been more alarmed when he look almost transparent and his lip were kind of a yellowish color those 4 blood bag have give he so much life our attend doctor dr pamela becker so I am tell and truly believe it is the good in the country and we are fortunate enough to have she my understanding is that the typical way that they diagnose the type of leukemia a patient have is a bone marrow biopsy but because his blood was 60 leukemia cell it mean his bone marrow was at least 60 90 leukemia cell so they do not see the need for a bone marrow biopsy as they want to start chemo as soon as possible another thing you guy should know is that on january 1st twenty one year ago greg mom pass away after a little over a year fight with all leukemia before dr becker know the type of leukemia he have they really want to look into see if his leukemia was genetic when it come back as an aml diagnosis they wipe that possibility off the table they begin his g clam chemo regiman on the 7th of january which is administer daily for 5 day the first day of chemo he have so much energy that he walk 4 mile around the oncology floor which we learn about 2 day later was a huge mistake he have do such little activity the past couple month that his calf s have become so sore and stiff from the 4 mile walk that he literally could not walk his body could not heal he like a normal healthy person body would and it very much affect he with his symptom to come from the chemo the following night he was unable to control his bowel and I was not strong enough to be able to carry he to the restroom the first night this was happen was probably the first time in a long time that we have actually have an uncontrollable laugh I remember we were in the middle of a conversation and he sneeze and look at I in shock say hannah I just shit myself the bad part was that he couldn t lift himself up because of the condition of his calf s so the scene was a messy one it was a little early in life than I expect but here I was change my boyfriend s diaper which we still get a good laugh at at the same time he was run a high fever get up to 104 7 at it is high for about 4 day and have sever rigger which make his body even more sore by the 5th or 6th day he was still unable to walk but we have kind of get the diarrhea under control and we finally get some help from a physical therapist to help he get the strength to walk again on top of everything else greg is naturally a thin guy normally weigh 160 165lb at a height of 61 he weigh about 145lbs when he was admit into the hospital and if I think it was hard to get food down his throat before diagnosis chemo and fever cause by the chemo definitely do not help the situation when he was finally stabilize enough to be discharge from the hospital two week from the time we were admit he weigh 137lbs this time in the hospital all seem like a blur I was frustrate with myself because I was suppose to be the person to support he and be strong for he and I often find myself in the bathroom or hallway sobbing of course now I realize that those feeling are all very natural and for those of you read this that are the front line for your love one and feel the same way that this is all okay and we need to let ourselves feel that way now he now is an outpatient at the seattle cancer care alliance and go there every other day when he first become an outpatient we were tell that his disease itself is categorize as trisomy 6 we do his bone marrow biopsy on the 8th of february and the result come back that he still have 12 leukemia cell in his bone marrow and 0 in his blood I have hope he would be in remission so this was not the good news however the doctor reassure we that this is normal for a person who have such a high volume when he was first admit so on the 15th we start his second round of his g clam regimen he say he honestly have not feel this good in over a year and the chemo have yet to affect this I hope that since the chemo do not have as much to kill off this round that he doesn t have such a hard time with all of this like he do last time he also have gain weight since he was last in the hospital and now weigh 150lbs and look so much well than he have this past couple month his face is full and bright and is just very happy for someone with an aggressive cancer greg is an only child so they are currently look for a bone marrow donor for he right now we have 3 scenario as to what is go to happen next scenario 1 greg go into remission after this treatment and if they have a donor match then he will go straight to transplant scenario 2 greg go into remission but they have not find a donor match for he if that happen they will send we back to alaska to receive chemo treatment to keep he in remission until they find he a donor then we will go back to seattle and he will receive his transplant scenario 3 greg do not go into remission and we continue to attack the cancer with chemo treatment in seattle until he do go into remission and can get he into transplant we will not find out any of this for another 4 week when they can get a bone marrow biopsy and see where he is if he is able to go into transplant he will do the prep for transplant which I am completely unsure what this really consist of the 20 30 day prior to transplant and then when he receive his stem cell transplant he stay in transplant housing for another 100 day,neutral,1
its funny you know for year you are warn by every doctor any minute now shell be go you research leukemia maybe think you will find out something to help you keep the hope no matter what they say you keep the hope you know but you do not really know you reject it all yet you know but until that hysterical call come you do not know a thing and even then you re not sure its real you re still keep the hope bone marrow transplant and blood count later and you still keep the hope denial will save you certainly no bad thing will come certainly all will be restore there is a verse in the bible bless are they that mourn for they shall be comfort they will be comfort tis true because they will accept that lorena is no long suffer with leukemia no more pain no more illness just the perfect soothe white light of her creator she is with pappaw and terry and great grandmother all her love one are surround she now she have eternal peace there is no easy answer no magic word when our love one move on without we but if you believe at least you have some comfort in know that when they change world they are happy lorena was affectionate and warm she have the goodness of child in her soul she was always happy to see any visitor but let we not forget that she was also a warrior she fight leukemia with everything she have she never complain she say instead I feel fine I m okay do not worry this she tell I all the time and I love that she say it because in the denial that she was die she find the strength and faith to live on for many year after her diagnosis lorena live on and though she is not physically here with we that hope that faith and that warrior spirit of hers will live on in our soul just as she will live on in our heart god rest you,neutral,1
first I want to start off by say that my aunt have been diagnose with leukemia a few week ago before that I think there was only one kind so I honestly do not know if cml is the type she have if my question have answer that need to know what type of leukemia she have I will try to find out I have not do any research on it either mostly because I am not sure what to look for to find the answer when I do not know a lot about her case well when her doctor tell she about it he tell she they catch it early which I think leukemia was a form of cancer and cancer is good to find early because they can treat it before it get bad her doctor tell she not to change her daily routine she need to keep do what she always do he give she a list of thing to watch out for incase any of they start to worsen well her doctor is not give she any medicine all he seem to do is tell she to do is keep do her daily routine is that normal I think they would be able to do something while it is still early but her doctor is just let she go until it get bad thank you all in advance,neutral,1
http www cdc gov ncidod dhqp bp_xmrv htmllook like progress at last xenotropic murine leukemia virus relate virus xmrv overview question answersxenotropic murine leukemia virus relate virus xmrv xmrv is a newly identify human retrovirus that is similar to a mouse retrovirus that scientist have know about for year xmrv refer to xenotropic murine leukemia virus relate virus it was first identify in sample of human prostate cancer tissue in a study publish in october 2009 scientist report a potential association of xmrv with chronic fatigue syndrome cfs in this study xmrv was detect in approximately two third of patient diagnose with cfs and 3 7 percent of control the frequency of xmrv infection in healthy person and the potential role of this virus in cause disease such as prostate cancer and cfs are unknown at this time if it is determined that xmrv may have a role in cause disease and illness prevention recommendation can be make the report of the october 2009 publish study also identify dna of xmrv in the blood cell of some healthy person and suggest a potential for xmrv transmission by transfusion or transplantation at present although it is theoretically plausible that xmrv can be transmit through blood transfusion no such transmission event have been identify and there is no known evidence of xmrv infection or xmrv relate illness in transfusion recipient these recent finding and a potential link with prostate cancer and cfs must be scientifically and independently evaluate several study are underway to evaluate the risk of xmrv transmission through blood transfusion agency within the department of health and human service hhs are conduct study to determine the prevalence of xmrv in the blood donor population hhs scientist are also work with scientist in industry and academia to determine if xmrv can be transmit by blood transfusion if a link between xmrv and transfusion is establish action will be take to reduce the risk additionally a public health service ph work group plan to coordinate testing of specimen to assess transfusion transmissibility of xmrv if an agent is find to be transmissible by blood study must begin quickly to evaluate if the agent cause disease in transfusion recipient hhs agency include cdc will continue to keep the public update and inform as more information become accessible from each of the study being conduct,neutral,1
have anyone else out there been affect by large granular lymphocytic leukemia,neutral,1
my friend lose his fight with leukemia saturday evening please keep his family in your thought and prayer,negative,0
where can I find an all group my nephew have all acute lymphocytic leukemia thank you divalee,neutral,1
I almost feel bad to go to one forum and advertise another one but I will do it anyway because what is helpful for I can be helpful for other I have encounter quite a few forum specifically for cml this one was my first the one that I have find to be the most active is the one from the leukemia and lymphoma society http leukemia org hm_ll more specifically the cml forum within that website http community ll org community bloodcancer livingwith cml this is for anyone that do not know and just want to browse the large amount of information support sharing that go on there there are forum there for aml cml all and so on all type of leukemia and blood cancer this is just another option for all of we deal with cml there is a lot of information there and it seem to be the most active so if any of you need to ask a question or search an answer you will probably receive a response very quickly it is not my only source obviously since I am on this site now but just want to share,neutral,1
hello I recently weny in to my doc for abnormal period like bleed that was go on for over 2 month he run a cbc plus a slew of other blood test just because I guess well he say it would be a week or so before the result come back but then he call just two day later tell I to come back in this was his concern my wbc count is 20 000 my absolute neutrophil is 15 4 k ul and my band are at 5 he say this may indicate leukemia and I am go to the hematologist this thursday probably go to check my bone marrow I am very nervous about this I try google anything and everything but I still feel like I have not get any answer that are close to my situation I ask both my mom and my sister who are both rn but they do not want to answer I which really worry I because we always share all our medical thought together do this really indicate leukemia what are band and neutrophil,negative,0
hello I recently go in to my doc for abnormal period like bleed that was go on for over 2 month he run a cbc plus a slew of other blood test just because I guess well he say it would be a week or so before the result come back but then he call just two day later tell I to come back in this was his concern my wbc count is 20 000 my absolute neutrophil is 15 4 k ul and my band are at 5 he say this may indicate leukemia and I am go to the hematologist this thursday probably go to check my bone marrow I am very nervous about this I try google anything and everything but I still feel like I have not get any answer that are close to my situation I ask both my mom and my sister who are both rn but they do not want to answer I which really worry I because we always share all our medical thought together do this really indicate leukemia what are band and neutrophil,negative,0
just find out last night that my brother who live 1500 mile from I have leukemia he go to the hospital yesterday because he have been really tired the last few week they have to give he many blood transfusion and discover he have end stage leukemia they think he have it for about a year but my brother never go to doctor he is in the hospital now and they tell he that if he do not do chemo radiation that he have 2 6 week to live if he do treatment he might make it 2 year they would not do a bone marrow transplant because he have no insurance we just bury our mom 2 1 2 year ago and it feel like yesterday I have two more brother and a father who all live in orlando it just bring back all the pain of my mom another holiday without she I know that this happen to a lot of people but it is so painful he is 54 year old but have have so many emotional issue his life and have a maturity level of about a 12 year old I have always feel protective of he so I guess I am look for support thank you in advance so a,negative,0
http www rferl org content kazakhstan leukemia patient expose hepatitis c 25056932 html,neutral,1
let we take an impromptu poll who would rather be diagnose with bpd as oppose to something like skin cancer or leukemia be honest,neutral,1
if you have a low white blood count but all the other count are normal can you still have leukemia,neutral,1
http www foxnew com health 2014 11 21 hookah smoke may significantly increase leukemia risk study say,neutral,1
hi I am 26 yrs old mum of two boy one who is two the other is 7 week during pregnancy I was excessively tired they do a blood test it was notice that my wbc was a bit high 17000 blood take at birth show it have increase to 20000 I am not sick and I do not have any infection which I now understand is the worrying part I have another blood test on friday and am now wait for the result and am desperately hope the count have lower hope that it was just some freak pregnancy symptom my other symptom have been anemia and weight loss I just think the anemia was from pregnancy and the weight loss because I have been so busy I have recently notice a handfull of red blood dot on my leg but this could all just be a coincidence right I know leukemia is a bad case senario but I can not get it out of my head I want to be prepare just in case how do you discover you have leukemia and do you remember what your white blood count was at the begining thank you,negative,0
my granddaughter graduate from 6th grade last night and wish my husband was there to celebrate with we every milestone she achieve is special because at age 2 she was diagnose with acute lymphoblastic leukemia and a week later my husband diagnose with pancreatic cancer they go through chemotherapy together become bald together and both endure many painful procedure tonight my granddaughter is alive thrive and is 11 a leukemia survivor but alas john pass after 9 month they bond together over cancer face death one pass one survive I hope john was look down over we smile as he watch abby cross the stage for her graduation alive a survivor sometimes I think john know if god want another soul in heaven he would go and have abby stay I hope john is able to see abby thrive laugh just being a normal young lady and I know john would be so proud wish he was here to celebrate abbys life and future we miss he and love he so much today I learn we meet again,negative,0
hi my name is jen and I was diagnose with aml on july 25th enter into treatment the next day go through induction fairly well no fever or infection fairly minor side affect bone marrow biopsy on day 15 show no leukemia since I was able to stay healthy through induction was able to go home on day 19 return to work a week later third bone marrow biopsy on day 30 still show no leukemia I will start consolidation chemo in 2 week I am not sure of all my genetic marker but I would not need a bmt which was a huge relief as a 40 year old woman aml was not on my radar it is been a whirlwind of emotion and a crash course in learn about the disease so far I am tolerate treatment well but realize that can change with each treatment I look forward to meet all of you I have already learn so much from read past thread thank you all for share yourself with this group,positive,2
hi everyone I have not post in awhile wait for the result of my mom 2nd induction on a clinical study she is again refractory have anyone hear of any potential next step that could be viable my mom is 74 she was diagnose in november 2012 and go through 3 7 but was consider refractory with 1 blast at day 14 bone marrow biopsy she have a very rough time go through 3 7 and for the 2nd induction the doctor recommend participate in a clinical trial the 2nd induction consist on intermediate dose cytarabine plus or minus the new study drug vosaroxin her day 14 bmb show hypocellular bone marrow with 20 blast of what remain she have just finish go through this treatment and her count recover the doctor want to see what she recover with now that she have insurance bone marrow transplant is an option from the financial perspective at her hospital they actually do transplant for old people as long as they function like 70 year old with their old patient being 78 however with active leukemia transplant may not happen now I wonder what else is leave anyone have 3 induction or a transplant with active leukemia,negative,0
is there any relationship between dvts pes factor v leiden and then leukemia,neutral,1
do you know splenda can give you leukemia it was test on mouse,neutral,1
wow laugh out loud http townhall com tipsheet katehick 2013 02 01 sandra fluke oppose the contraception mandate is just like oppose leukemia coverage n1503446,neutral,1
http news yahoo com bush 41 shave head solidarity 2 old leukemia 215243580 abc news politics html _ ylt a2kj2pyqupbrdksalozqtdmd 20 20target,neutral,1
interesting article online connect splenda with leukemia I swear we are kill ourselves with our artificial food and chemically modify food,neutral,1
tell we about your personal experience with sprycel as a treatment have it work have you have any issue any recommendation or tip,neutral,1
http abc7 com health fitness trainer with leukemia lead hospital staff in squat challenge 1008716 read this in the news and was so inspire by her attitude and strength think I would share with you all good to everyone,neutral,1
it is not entirely too late here but I can not seem to sleep so I am write a leter to a guy that I like finally tell he that I have leukemia it is probably not the right choice but I am do it anyways,positive,2
jean s grandson with leukemia have make a turn for the bad she ask her friend for their prayer,negative,0
my sister age 32 on march 4th on normal blood test wbc count go up to 28 000 again she do a blood test on march 15 it go upto 140000 and it reduce to 130000 on march 21 and again go back to 250000 her platlet and rbc count is normal she do not have any symptom like fever night sweat weight loss 1 lymph node on neck biopsy 2 bone marrow aspiration and biopsy 3 ecg x ray and scan on stomach they give her hydroxurea to reduce wbc count on april 9 the count reduce it to 78 000 now lymph node biopsy report show tuberculosis symtom but they tell bone marrow aspiration show leukemia cml and still wait for bone marrow biopsy report need help whether somone can be diagonse with both tuberculosis and leukemia cml at the same time she do not have any symptom no weight loss night sweat fever or joint paint her ecg and scan report look normal,negative,0
I am not sure youall remember how confusing the name change were for ampyra when it first come out campath is another one that will be confuse just let folk know what they are look for campath is that med in phase iii trial predict to be on the market in the first quater of next year because it have been give fda fast track status in trial it have reduce miss lesion more than any other drug at 86 its the one that is 5 consecutive day of iv infusion the first year than 3 consective day every year after that but miss treatment only 1x a year kind of set it every year and forget it kind of med that is campath it is currently use to treat leukemia when it is release to treat miss it will be call lemtrada campath for leukemia lemtrada for miss the back ground on this name change is a little less ethical but expect campath is about a third of the cost of any miss me on the market so if they begin to sell it for miss treatment they have to raise the price hence the name change campath will be a third of the cost of lemtrada they need separate name to do that http www bloomberg com news 2011 02 16 genzyme s experimental miss drug to profit investor only if it have success html,neutral,1
my white blood cell count have gradually been climb over the past two year we have watch it go from 11 then 15 18 back to 11 then on up again and it is now up to 23 last week I wake up with the bad migraine that I have ever have I think I was have a stroke because it was so bad early that week I have start to develop this strange rash all over my body my dr send I for a ct scan of my head and chest x ray and those both come back o k she still think that I probably have leukemia and have send my blood work from yesterday to a hematologist and is talk about send I to an oncologist with that being say if I do get a diagnosis of leukemia what next are patient usually admit to the hospital for a certain period of time do they get thing go quickly I hope I have been marry 8 year to my wonderful husband and we have two little girl 5 and 6 yrs old my main fear is for they I know it will be hard on they if I have to be in the hospital for an extended amount of time luckily my parent help out a lot,negative,0
ok so here the story I am a 26 year old woman who recently lose her fiance to complication due to leukemia we have a 6 month old daughter together but do not make it to our fall wedding as we only know nichola have leukemia for 5 day and never know this would be fatal no planning was ever do so here my question I have to decide now where to bury he in my heart right now I want to purchase 3 plot together so the three of we can be together forever realistically I know that can not happen because of my age I must assume that I will marry at some point down the road and will then have to make the choice of who to be bury next to if I was to have more child how do I choose between they and my daughter I have now have anyone ever have to deal with this choice or currently have to make this same decision I have come to really appreciate the thought and opinion of you all ln this site thank you for your advice and support jacqui,neutral,1
this is kind of scary to I virology 2009 dec 1 xenotropic murine leukemia virus relate virus is susceptible to azt sakuma r sakuma t ohmine s silverman rh ikeda y department of molecular medicine mayo clinic 200 first street sw rochester mn 55906 usa the xenotropic murine leukemia virus relate virus xmrv is a human retrovirus recently isolate from tissue of prostate cancer patient with impair rnase l activity in this study we evaluate 10 license anti hiv 1 compound for their activity against xmrv include protease inhibitor pi nucleoside reverse transcriptase retweet inhibitor nrti non nucleoside retweet inhibitor nnrti and an integrase inhibitor no pi affect xmrv production even high concentration of ritonavir fail to inhibit the maturation of xmrv gag polyprotein among the nrti nnrti and integrase inhibitor use in this study only azt block xmrv infection and replication through inhibition of viral reverse transcription this sensitivity of xmrv to azt may be explain by the modest homology in the motif d sequence of hiv 1 and xmrv reverse transcriptase if xmrv becomes establish as an etiological agent for prostate cancer or other disease azt may be useful for prevent or treat xmrv infection in human pmid 19959199 pubme as supply by publisher,negative,0
please go to this web site my sister set up www funpastafundraise com shop finkz fight against leukemia it was set up too help pay med bill,neutral,1
my friend have leukemia and she recently break she before midday and she just find out she have a malignant tumor http dailystrength org people 115872,negative,0
for those of you old enough to remember the rock group yes I just find out that chris pass away yesterday at 67 from leukemia I have been listen to the group since I was a teenager,negative,0
pbs is show this documentary series I see the first part quite a bit about childhood leukemia very interesting but might be hard to watch some part for a sensitive soul,neutral,1
I have been suffer with this dreadful fear that I have leukemia lately and I have a lot of the symptom which do not help should I go to the doctor and also what do you guy do to help it,negative,0
remember ranaesheart her granddaughter kalista was just diagnose with leukemia you can check her website out at http www caringbridge org visit kalistavesely,neutral,1
breakthrough miracle cancer drug could reverse parkinsonsoctober 18 2015 by dan taylorit is a huge finding that could change how parkinson is treat a drug that is typically use to battle leukemia could help people reduce symptom of parkinson or dementia a groundbreake new study have find researcher give nilotinib common in the treatment of leukemia to 12 patient in a pilot study and find that there was movement and mental improvement in all 11 people who go through with the trial over a period of six month accord to an npr report they report their finding at the society for neuroscience meeting in chicago which take place this past saturday and they were not minor improvement either the studys author fernando pagan who is the director of the movement disorder program at georgetown university medical center say that one woman actually was able to feed herself again after lose that ability and another man stop use his walker three more patient who have become mute were suddenly able to speak again he say it was the most excited that is ever been in 25 year of parkinson research accord to the report parkinson patient show improvement after take cancer drugby claire zillman clairezillman october 19 2015 5 00 prime minister edtsome of the improvement were dramatic researcher at georgetown university medical center on saturday reveal what could be a major breakthrough in the treatment of parkinson disease a study unveil at the society for neuroscience annual meeting find that 11 patient with parkinson disease with dementia who were give nilotinib an fda approve drug for leukemia that s sell by novartis as tasigna experience improved cognition motor skill and non motor function in a 12 patient six month trial fernando pagan a gumc associate professor of neurology who direct the movement disorder program at medstar georgetown university hospital say that to his knowledge the study represent the first time a therapy appear to reverseto a great or less degree depend on stage of diseasecognitive and motor decline in patient with these neurodegenerative disorder in some patient the result of the treatment were rather dramatic a release from gumc say that one patient who was confine to a wheelchair was able to walk again and that three other patient who could not speak were able to hold conversation one patient in the trial alan hoffman a professor emeritus of social science education at georgia state university was diagnose with parkinson disease in 1997 before take nilotinib he say he do not do much around the house now he tell gumc I empty the garbage unload the dishwasher load the washer and the dryer set the table even take responsibility for grill peacebrer t,positive,2
cll how severe overall survival do anyone understand this article clinical and molecular predictor of disease severity and survival in chronic lymphocytic leukemia weinberg jb volkheimer ad chen y beasley be jiang and lanasa mc friedman d vaccaro g rehder cw decastro cm rizzieri da diehl lf gockerman jp moore jo goodman bk levesque mc department of medicine division of hematology va and duke university medical center 508 fulton street durham north carolina several parameter may predict disease severity and overall survival in chronic lymphocytic leukemia cll the purpose of our study of 190 cll patient was to compare immunoglobulin heavy chain variable region igv h mutation status cytogenetic abnormality and leukemia cell cd38 and zap 70 to old traditional parameter we also want to construct a simple inexpensive prognosis score that would significantly predict ttt and survival in patient at the time of diagnosis and help practice clinician in univariate analysis patient with high clinical stage high leukocyte count at diagnosis short leukocyte double time elevate serum lactate dehydrogenase ldh unmutated immunoglobulin heavy chain variable region igv h gene and high cd38 have a short overall survival and time to treatment ttt cll cell zap 70 expression was high in patient with unmutated igv h and those with high zap 70 tend to have short survival igv h 4 34 or igv h 1 69 was the most common igv h gene use 16 and 12 respectively of those with igv h 1 69 86 have unmutated igv h and have a significantly short ttt a cytogenetic abnormality was note in 71 of the patient test patient with 11q22 del and 17p13 del or complex abnormality were significantly more likely to have unmutated igv h we find that a prognostic score construct use modify rai stage cellular cd38 and serum ldh parameter easily obtain clinically significantly predict ttt and survival in patient at the time of diagnosis and perform as well or well than model use the new marker am j hematol 2007 c 2007 wiley liss inc,neutral,1
my 88 year old dad have acute leukemia which evolve from myelodysplastic syndrome diagnose in 2006 he stop chemo in 2007 due to constant illness and infection that same year he start take turmeric as I have read about it in the book how to prevent and treat cancer with natural medicine by drs michael murray tim birdsall joseph pizzorno and paul reilly turmeric is an ingredient in curry an spice use heavily in india m d anderson cancer center note that people in india do not get cancer as often as we do in the you s they have now do several study on turmeric and it is an exciting cancer fighter see http www mdanderson org education and research research at md anderson early detection and treatment center center for targeted therapy archive target therapy article html http www2 mdanderson org cancerwise 2011 01 turmeric add spice to your health html http www webmd com cancer news 20040909 food that may help fight childhood leukemia http www mdanderson org newsroom news release 2005 10 14 05 curcumin halt spread of breast cancer in mouse news release html http www mdanderson org publication cancerwise archive 2008 september cancerwise september 2008 curcumin temporarily slow pancreatic cancer html http timesfreepress com news 2008 sep 03 packing punch taste and health add turmeric your d I believe the turmeric is what enable my dad to hang on this long his doctor have been amazed that an 88 year old man with leukemia could last 4 year and count without take chemo unfortunately in 2011 his blood count get so low we decide we d well take he off it it have a slight blood thinning property since he stop take turmeric he have decline much more rapidly and now need blood transfusion every week but if your blood count are not bad I would highly recommend take turmeric there s no toxicity and no side effect except diarrhea in very high dose it have anti inflammatory property and so it help with pain too dad take 300 mg a day other cancer fighter m d anderson identify in that first article include resveratrol red grape peanut and berry genistein soybean diallyl sulfide allium s allyl cysteine allium allicin garlic lycopene tomato capsaicin red chilli diosgenin fenugreek 6 gingerol ginger ellagic acid pomegranate ursolic acid apple pear prune silymarin milk thistle anethol anise camphor fennel catechin green tea eugenol clove indole 3 carbinol cruciferous vegetable limonene citrus fruit beta carotene carrot and dietary fiber,positive,2
http video google com videoplay docid 9014552245997479572 I drink load of cow milk prior to my diagnosis more than a pint a day sometimes 3 my consultant will not even discuss the matter,neutral,1
tell we about your personal experience with gleevec as a treatment have it work have you have any issue any recommendation or tip,neutral,1
four time cancer survivor go from heart transplant to ironman editorby sarah beston shine staff diagnosis one kyle was first diagnose with hodgkin s disease five week after his 18th birthday you kind of step outside of yourself for a bit you are eighteen and you think are indestructible plan the next seventy year of your life then all of a sudden you hear a cancer diagnosis and it doesn t feel real it feel like you are live in an after school special you are stunned it is a shot to the gut it knock the wind out of you I go and spend the afternoon with friend just kind of laugh and make the transition from wow this is really bad to ok this is something we have to do so we ll figure out how to do it every day after school for the next five month kyle drive to the hospital for radiation therapy diagnosis two he attend the university of missouri and remain cancer free during his freshman year but in june of 1991 he was re diagnose with hodgkin s I exist somewhat normally my first time around my second time around I was 100 a cancer patient at that point I go through six month of chemotherapy and that was a very different thing I lose all of my hair I look very sick I was on high dosage of the steroid prednisone which cause I to swell up and get what they call a moon face I lose all strength I was sick all the time so for that year I didn t go to school diagnosis three in november of 1994 after almost three year of being cancer free the hodgkin s disease return for a third time both radiation and chemotherapy have fail and with few other option to explore doctor decide to do a bone marrow transplant the transplant involve a course of intense chemotherapy destroy nearly every cell of bone marrow before the stem cell could restart the system at a certain point all of your blood count crash and then they just wipe out your immune system it s like they throw you off a boat into the water you sit there and start to sink and then they throw you the life preserver that s kind of how the treatment go and hopefully you are lucky enough to catch the life preserver I was lucky enough to catch the preserver and make it through the bone marrow transplant diagnosis four more than two year remove from the bone marrow transplant kyle have graduate from college and was work as a sport writer at fox sport net when he was diagnose with a secondary leukemia on july 23 1997 the acute lymphocytic leukemia have been cause by the chemotherapy drug vp 16 which was give to kyle during the bone marrow transplant I truly believe I have been hand my death sentence I was no long a rookie I have read a lot about it I know what kind of thing were happen to my body and I know what leukemia mean I also know that get leukemia from chemotherapy make it even bad and I know that because of my weak heart due to the chemo drug adriamycin they couldn t treat I as aggressively as they might have someone healthy I really think when the doctor tell I that I have leukemia that he was basically tell I that I was go to die three long year of chemotherapy follow most day were pretty long and I was pretty sick and there was a lot of pain involve so what I try to do was just focus on try to have a good half an hour every day then I could use that to get I to the next day that half hour could be a friend come by to talk baseball each morning when I would wake up I would try to figure out where I could find those thirty minute it was really about the people in my life I really enjoy my time with they and I wasn t ready to quit at that point I have think a lot about my own death and I d come to the realization that I wasn t afraid of die but I was sure not ready to be do live doctor come up with a course of chemotherapy that cure the leukemia without cause any further damage his already weaken heart after four bout with two different kind of blood cancer kyle was free of cancer but his heart condition was continue to deteriorate it eventually land he on a heart transplant list in 2001 more than five year later kyle get the call a donor heart have been find and was wait for he the heart transplant was different because they were actually go to be restore I it was scary but there was also some excitement because I know eventually the cloud would lift and on the other side of the cloud I would find what could pass for normal life I would be get strong as each day pass throughout his battle kyle recognize that the meaning in our own life come from help other he have since devote his life to serve other through his motivational speak his write his memoir heart of iron come out this november and a commitment to the leukemia lymphoma society and their team in training program team in training help train nearly half a million runner walker triathlete cyclist and hiker who raise money to fund lifesave cancer research kyle begin train and compete in triathlon eleven month after his heart transplant kyle cross the finish line of his first race as a triathlete in the 2007 nautica malibu triathlon and is now train for his everest to be the first heart transplant recipient to complete the kona ironman in hawaii why because I can because I shouldn t be able to because for so long I couldn t because there are so many I know who never will because the scar on my chest hip and shoulder tell my story they tell the story of my heart donor a man who exit this world far too early but in death leave behind the most precious gift imaginable kyle believe that the strength of the human spirit is what get we through the tough time the nice thing about being down in the valley is that there is always a mountain on the other side of it you just have to get through that valley and once you do you can start to climb out again no sadness or pain or fear is permanent there is always something good around the corner there is a lot of beauty in life most of it can be find in the people that populate our life the close relationship but even in the total stranger never give up never ever,neutral,1
do having leukemia inadvertently turn we into hypochondriacs or are we just more in tune to the sign that something is wrong in our body when I relapse back in august although I appear fine I just have a gut feeling that something was wrong just want to know everyone else thought,neutral,1
do anyone know if there s a connection between lupron lymphoma I was in remission for chronic lymphatic leukemia from jan 2012 now I am get symptom again my oncologist think its return though I need to get a scan do to confirm any info would be appreciate thank,neutral,1
I been up almost all night again with severe pain my pain med just do not cut it they will not give I anything strong right now my type of leukemia cause extreme pain plus I have fibro and chronic back pain so frustrated and wear out,negative,0
http www ll org news the leukemia lymphoma society applaud house approval of 21st century cure act news news newsid 12355 please contact your senator to request support of the 21st century cure act this is specific to blood cancer research and fda approval fast track thank you all julie,neutral,1
I am new to this so far I love this site I ahve meet a beautiful young lady battlein leukemia she is my first friend so anyways my mother have been recently diagnose with hiv and I am look for frien and suport jsut someone to tak to that have knowlege on the subject,positive,2
not sure if anyone will read this but give it a shot have anyone come down with a secondary cancer after have ovarian cancer I was read about cisplatin and that it can cause mal a form of leukemia thank you cheryl,neutral,1
dear all 7 year chemo only survivor from the lymphoma leukemia support group these story always give I so much hope http community ll org topic 15886 7 year blessing julie,positive,2
my wife is lose her father today 82 long life leukemia yada yada this is the first of our parent to go and I do not know how to well help she through it any suggestion,negative,0
I am so tired lately so very tired even when I sleep a decent amount of hour I am still tired and weak and my stomach hurt off and on and I have bruise lot of they leukemia perhaps anemia maybe I am a vegetarian so anemia can be likely yes,negative,0
ap mary traver who as one third of the hugely popular 1960 folk trio peter paul and mary helped popularize such tune as puff the magic dragon and if I have a hammer die in a connecticut hospital wednesday after battle leukemia for several year she was 72,neutral,1
I was interview and do not say I am go through test dr say maybe leukemia I feel guily I do not tell she and probably shouldwait they ask about medical I feel guilty do this sound right,negative,0
if your girlfriend have been tell she might have cervical cancer and need to have a cervical biopsy do and if your girlfriend is being test for a type of leukemia the next day would you go with she to these application or would you go to work and call home to get the result from your gf,neutral,1
that is have two previous miscarriage one at 7 week and one at 17 week my fiance have leukemia and a blood disease as a child that make he have low sperm count we have been try again since january to get pregnant and still nothing I m so frustrated help,neutral,1
my kitty princess is dyiong my source for unconditional love for the last four year and I am lose she a little each day the vet want to test she for feline leukemia and aid I am so upset 1 can not cry explain it to my sister and niece whom I live with and there is no emotional support,negative,0
hi I am suppose to start get shot for my knee arthritis and he want to give I orthovisc shot orthovisc is derive from bacterial cell rather than from bird to avoid a allergic reaction to some patient I am concern if it could interfere with my tki or the leukemia itself,negative,0
she completely hate I and blame I for all her misfortune she is in the 2nd stage of leukemia she do not take medicine from I my husband think that I am not take care of she I am in the middle of a mental break down please help I,negative,0
I have cancer when I was 10 12 aml leukemia I m 17 now its hack I m scared piss all that stuff but nowne of it help I guess I m just real down about this after 5 year I do not,negative,0
I got prescribe lasix furosemide because I retain load of water because of the med gleevec for my leukemia my dosage is 40 mg day and I stick to it but it is so wonderful to see the pound melt away anyways advice on the use of diuretics while have an ed,neutral,1
I just find out that my cousin have been diagnoise with leukemia they are not sure what type it is so no treatment have been decide on I just do not know what to do or how to feel I am angry and mad and sad all at the same time,negative,0
I am severly depressed I have find out I have leukemia I m terrified as to who will care for my mother if anything happen to I love all of my friend ill get back to you soon on the diagnose and what s go to happen,negative,0
my dad was recently diagnose with cll and I am so confused I keep hear that this is the good kind of leukemia to have and that you do not die from it but that just do not seem true to I do anyone have any info on good resource and no where the good doctor are I am guess mayo thank you,neutral,1
my son jeb call to tell we his bosss son he work in a camp for disabled child in the summer have leukemia jeb create a facebook page for jj ryan and it is already go viral with amazing support for this family since jeb have been in the hospital himself so many time he say all child get scared and all the prayer in the world mister ryan is a fireman in florida I know from live there that vacation time can be donate so family with medical problem can be with their love one prayer for the ryan family I am so proud of jeb shave his head in support and everything he is do for the family joanne,positive,2
http forum phoenixrise I showthread php 11634 lombardi et al 2011 cytokine signature in cfs p 178976avoid the controversy just read the fact the fact speak for themselves lombardi et al 2011 cytokine signature in cfs in vivo 25 307 314 2011 xenotropic murine leukemia virus relate virus associate chronic fatigue syndrome reveal a distinct inflammatory signaturevincent c lombardi1 kathryn s hagen1 kenneth w hunter4 john w diamond2 julie smith gagen3 wei yang3 and judy a mikovits11whittemore peterson institute university of nevada reno miss 0552 1664 and virginia st reno nv 89557 you s a 2triad medical center 4600 kietzke lane m242 reno nv 89502 you s a 3nevada center for health statistic and informatics university of nevada 1664 and virginia st reno nv89557 you s a 4university of nevada reno department of microbiology and immunology apply research facility 1664 and virginia st miss 199 reno nv 89557 you s a abstract background the recent identification of xenotropic murine leukemia virus relate virus xmrv in the blood of patient with chronic fatigue syndrome cfs establish that a retrovirus may play a role in the pathology in this disease knowledge of the immune response might lead to a well understanding of the role xmrv play in this syndrome our objective was to investigate the cytokine and chemokine response in xmrv associate cfs material and method use luminex multi analyte profiling technology we measure cytokine and chemokine value in the plasma of xmrv infect cfs patient and compare these datum to those of healthy control analysis was perform use the gene expression pattern analysis suite and the random forest tree classification algorithm result this study identify a signature of 10 cytokine and chemokine which correctly identify xmrv cfs patient with 93 specificity and 96 sensitivity conclusion these datum show for the first time an immunological pattern associate with xmrv cfs introductionchronic fatigue syndrome cfs is a poorly understand disease of unknown etiology which is commonly characterize by innate immune defect chronic immune activation and dysregulation often lead to neurological malady review in 1 it can also involve other biological system such as the musculoskeletal gastrointestinal and endocrinological system 2 4 although several common symptom are primarily report and predominate they may differ among individual are often intermittent and can persist for year frequently result in substantial disability 5 some of the most commonly report physical symptom include muscle weakness and pain tender or swollen lymph node and chronic flu like symptom 6 memory and concentration impairment blur vision dizziness and sleep abnormality represent some of the cognitive symptom typically observe while immunological symptom often manifest themselves through viral reactivation rnase l dysregulation decrease natural killer nk cell function and susceptibility to opportunistic infection 7 12 nk cell dysregulation may be associate with viral reactivation or viral persistence and may also lead to malignancy 13 14 indeed clinical observation corroborate pathological manifestation in cfs as viral reactivation particularly herpe virus such as cytomegalovirus cmv epstein barr virus ebv and human herpe virus 6 hhv 6 are common occurrence 15 17 moreover epidemiological study have report increase incidence of lymphoma associate with cfs outbreak 18 these clinical observation suggest that a compromise innate immune system may play a role in cfs pathology the completion of the human genome project enable positional cloning study to identify the rnasel gene as the hereditary prostate cancer allele 1 hpc1 19 this discovery prompt robert silverman and his colleague to search for a viral component to hereditary prostate cancer use a viral micro array and tissue biopsy from individual with hereditary prostate cancer they identify and sequence the complete genome of a novel human gammaretrovirus very similar in sequence to xenotropic murine leukemia virus and therefore term the new virus xenotropic murine leukemia virus relate virus xmrv 20 subsequent study perform in our laboratory identify and isolate infectious xmrv in the blood of 67 of cfs patient 21 this work was perform use multiple technique include pcr electron microscopy show bud viral particle western blot analysis of viral protein and serology confirm that infected patient express antibody to xmrv envelope protein in addition gene sequence and phylogenetic analysis confirm these patient were indeed infect with xmrv that was 99 identical to previously publish sequence but was obviously distinct from the only exist xmrv molecular clone vp62 20 take together this work clearly rule out any possibility of gross contamination and additionally represent the first identification and isolation of naturally occur infectious xmrv the connection between cfs and xmrv was far support by the study of lo et al who identify murine leukemia virus mlv relate sequence in the blood of 86 of cfs patient far establish a retroviral association with cfs 22 presently three family of retrovirus are know to infect human the human immunodeficiency viruse hiv the human t cell leukemia viruse htlv and now the human murine leukemia relate virus both hiv and htlv are know to dysregulate the innate immune system and promote the production of inflammatory cytokine and chemokine 23 24 in light of the association between xmrv and cfs it is not surprising that some of the most salient observation in cfs are the difference in cytokine and chemokine when compare to healthy control 8 previous report however address the role ofthese molecule in cfs have produce conflictingresult much of this emerge from such hindrance as small sample size a limited number of cytokine survey at one time insufficient patient population stratification and insufficient negative control subject this have result in inconsistent report in the literature for a number of cytokine include interleukin il 6 10 and 12 in spite of these conflict result a number of cytokine and chemokine have consistently been show to be associate with different subgroup of cfs for instance natelson et al show elevated level of il 8 and il 10 in the cerebral spinal fluid of patient with sudden influenza like onset cfs when compare to healthy control 25 additionally chao et al have show neopterin and il 6 to be up regulate in subset of cfs patient indicative of a pro inflammatory immune condition 26 however these study do not analyze the complex relationship between multiple cytokine and clinical disease by apply conventional statistical analysis and machine logic algorithm to the multiplex datum it is possible to identify cytokine and chemokine that are differentially express between two group to support this premise we have use the xmap multi analyte profiling technology that allow simultaneous measurement of multiple biomarker in serum or plasma in this study a panel of 26 cytokine chemokine and growth and angiogenic factor were analyze in blood plasma of cfs patient and healthy control subject this study reveal a signature of 10 cytokine and chemokine which show a specificity of 93 and sensitivity of 96 in diagnose xmrv associate cfs in this patient cohort full text here http www megaupload com d v980uchyif you are not a member of megaupload you have to wait for about a minute,neutral,1
http www nytime com 2014 10 16 health leukemia patient cell therapy children hospital html horsepower action click pgtype homepage version hpheadline module first column region region top news wt nav top news _ r 0,neutral,1
do anyone know anything about the clinical trial currently go on a johns hopkin I receive treatment there and my oncologist is interested in I start in a clinical trial in october the basis is try to eliminate the residual leukemia once reach mmr use a vaccine and or inerferon in hope of stop all medication thank jennifer,neutral,1
rap send I a message and say hi to everyone she also tell I to tell you she have leukemia and is not do very well she would not be able to get on very much please pray for her thank,negative,0
we just hear back from the cancer doctor there is no lupus and no leukemia she s fine I have never feel so happy in my entire life I am so happy I m shake I can not believe this finally something good have happen,positive,2
my dad 65 is in his second day of 7 3 induction chemotherapy he have acute monocytic leukemia m5 it have all come so fast I am very worried do anyone have any thought or guidance regard this subtype thank you very much,neutral,1
my sister bring this article to my attention at first I tell she that was old news and there was nothing to worry about then I read it and realize this is date today have anyone have a problem get their methotrexate http abcnew go com health cancerpreventionandtreatment critical shortage children leukemia drug story i d 15557922,neutral,1
just want to say hello I am new here lose my husband of 18 year to leukemia in december after we have fight it for a year and a half the first few week have been kind of a blur finally function again good day and bad day love carla,positive,2
I am in canada ontario and do not know if anyone know of any medical insurance that would cover my daughter who have and is being treat with leukemia we were look at go away twice this winter season but I can not find coverage for she can anyone help or have any suggestion,neutral,1
I want to know if the following is part of the process of leukemia or should I worry renald my brother in law was diagnose last thursday for the last two night he is have a high temperature that they have not been able to bring down he was to start chemo on wednesday but they have now bring it forward to tuesday tomorrow I need to know narelle,neutral,1
you always see charity event walk telethon and so on for thing like md miss leukemia and so on I would like to organize one for nf raise awareness and such I am sure a lot of people out there do not even know what it is and I know the nf foundation could use some financial help to help with research and such do anyone know how I would organize something like that maybe not a walk but other fundraising event,neutral,1
1 my friend slit her wrist 2 my uncle kidney are fail 3 my aunt is on oxygen nothing more they can do leukemia 4 I might be back in a wheelchair soon some day it do not pay to get out of bed I am shake I am still sober somehow hand of god,negative,0
how horrible to see my husband deteriorate with ever more violent side effect from leukemia first the disease itself then kidney failure then break rib then deterioration of his digestive track then high blood pressure then pneumonia then stroke it seem like he was being club to death yes the moment of his actual death was utterly beautiful unforgettable but so many memory of his last few year are ghastly to remember,negative,0
day 7 one week big big accomplishment its also the two week anniversary of my mother death so its bittersweet I am still so sad and angry leukemia steal she in fact I am cry as I post I do not want a drink I want my mom back,negative,0
friend I know immunotherapy vaccine trial is nothing new but this documentary is the good example I have see of the progress of cancer treatment it is unbelievably amazing please watch all the way to the end because they end with treatment for leukemia even though they are originally treat all the lead doctor end statement about what s come bring I to tear of joy http www vice com read watch vice on hbos special report on kill cancer 217,neutral,1
I really shouldn t be in this group anymore my mother is a hypochondriac and a liar she doesn t have cancer she never do she just want the attention on another note though my kind of father in law just find out he have leukemia I don t know how to help my boyfriend with this there is just so much go on right now that I m not even sure he s come to term with it yet advice or just someone to talk to would be great,neutral,1
I stop cut 5 month ago but am so tempt to start again my husband die 2 year ago this month I m only 30 and christmas is so hard and on the first I find out I have a type of leukemia everything is go wrong lately and I do not know if I have the fight in I anymore is it worth fight not to do it or well just to give in,negative,0
here an opportunity for you to get involve in a great research project at 23andme com they are currently look for people with the follow disease al celiac disease epilepsy lymphoma and leukemia migraine multiple sclerosis psoriasis rheumatoid arthritis severe food allergy testicular cancer read dr orrange article about the study here http www dailystrength org blog 551 genetic testing good,neutral,1
I see this story on the news today and could hardly keep it together a tough leukemia survivor such a fighter what a beautiful moment for father and daughter I wish I could have do the same with my daddy hope you do not mind I share http www valleynewslive com home headline wheelchair bind dad walk daughter down aisle in big surprise 332980891 html,positive,2
my dad was diagnose with aml in december and have a stem cell transplant in march he is 66 and have have hairy cell leukemia and myelodysplastic syndrome so far the transplant is work but I am terrify the cancer will come back since the doctor origionally give he a 20 survival rate I am only 28 and do not want to lose my dad are there any old long term survivor on here,negative,0
hi all I just receive a copy of the transcript from the leukemia and lymphoma society teleconference on myelodysplasia that was hold early this year it have cut edge information as well as a basic overview of the type of mds and the treatment for the different type here the link http www leukemia lymphoma org graphic national 0209130tlmdstranscript pdf if it do not open from click just copy it into the url space at the top of the page hopefully this will help to answer question for many anne,neutral,1
since that is have oral thrush now 6 time since last november I am being test for autoimmune disorder we ve already rule out hiv if this next round come out clean then we start test for leukemia I am scared out of my mind I can not leave my baby I have get to make it to a relatively old age I am just scared,negative,0
during church this morning an md who is active in cancer research bring this hopeful article from 13 aug 14 to my attention he say although I know your hope is to not relapse however it is great to have a back up plan and I say amen http www bostonglobe com business 2014 08 13 agio get fda fast track designation for its experimental leukemia drug ydh0i5qel9ee31c19a6gok story html julie,positive,2
hi everyone I just want to request everyone keep a girl in my school in your prayer she was diagnose with leukemia on sunday and she is only a sophomore only 15 she is such a sweet girl and everyone at our school is pray for she try to have fundraiser in her honor please pray she have a speedy recovery and join we back at school soon thank xoxo,negative,0
food and drug administration press release today 8 23 2010 1 32 prime minister food and drug administration press release researcher have find murine leukemia virus mlv in blood sample collect from patient diagnose with chronic fatigue syndrome cfs and some healthy blood donor accord to a study publish online today by the scientific journal proceeding of the national academy of sciences pna,neutral,1
terminally ill girl who have 10 000 people sing christmas carol at her home saturday have die http www nydailynews com news national terminally ill girl pennsylvania die article 1 1558176 delaney brown 8 was diagnose with a rare form of leukemia in she last week she was grant a few wish include 10 000 people who sing christmas carol at her house and talk to taylor swift,neutral,1
http www nytime com 2015 01 17 us dorothy thomas the mother of bone marrow transplant die at 92 html _ r 0 I see the story of this woman on the news this morning and go online to learn more there are not enough word to thank she for all that she and her husband have do for those afflict with leukemia and other blood disorder a life well live indeed just think I would share with you all be well,neutral,1
just want to let everyone know I am do well doc say I do not have leukemia still do not know why my white count is so high but they are go to be monitor I I go in the morning to get part of my cervix remove I am scared alittle but I am sure it will all be ok thank for your support and kind word hugggggsss to all,positive,2
its on every news item I listen too today they have incidentally find a drug that dare I say it make miss well a drug that is use to treat some kind of leukemia have been find at trial in cambridge england to slow down halt and in some case improve damage that have been do in the brain for patient who have relapse remit miss is the cure near,neutral,1
week of march 15 2010ten of thousand of vietnam veteran with ischemic heart disease parkinson disease or b cell leukemia should file claim now with the department of veterans affair for disability compensation not wait until va publish a regulation officially link these disease to wartime service veteran advocacy group are urge the swift filing of claim because veteran eventually find eligible for disability pay for these disease will be able to receive compensation back to the date their claim were file read the full article,neutral,1
just want to give everybody an update on what was go on we check out of the hospital on thursday go in for first lab yesterday white 2 6 platelet 219 000 red 11 1 anc 1000 the doc were shock and impressed with his count so they end up a have bone marrow biopsy yesterday to confirm complete remission and she just call and there is no leukemia blast or leukemia in his bone marrow at all confirm complete remission I am so grateful for these result and for all of the support we ve get through our first stage of relapse they are filter through the good 6 of 10 10 match right now and will move forward w transplant in around june 20 I am glad that we have about three week at home together as a family include our wedding anniversary which also fall on father day 6 15 before have to get readmitte for transplant it is bittersweet because we get to spend all of this time together as a family but in the back of our mind we are absolutely terrified about transplant and the possibility of serious gvhd or mortality needless to say this is an area that tony and I do not have experience in and I talk to he about all of you how helpful you ve been and he is eager for I to get as much info from any of you have go through it I am not go to lie some day I am mad as hell I can not believe that this have happen or is still happen to our family but I know in my heart he is go to be okay and that the reason why he relapse now is so that he could get a transplant while he was still young and healthy and he can be cure of this aml monster once and for all I continue to pray for all of you patient caretaker family member and friend and for hope and peace and strength to endure every battle that come our way xx lea,positive,2
hello my father was diagnose with aml 2 week ago we have visit with the doctor and of course the harsh chemotherapy of 1 month treatment this hopefully kill 99 of leukemia then he get to go home for 3 week then back in for 1 month for more chemo to kill the last 1 then 3 week at home then back in for 1 month to kill the rest we are tell this is the mandatory treatment procedure if after the 1st month the test result do not show enough leukemia have been kill then he is off the program as they will not do round 2 3 of course even if he make it thru the 5 month process of chemo he is give only 25 or less chance of live after 2 year so 25 chance to live 1 year and 7 month beyond 5 month of chemo misery my father simply do not want to put himself thru this process therefore we are try to find alternative option I know chrisjb who live in the uk have been take hydroxycarbamide and have have success with it however we live in the us and its not available here do anyone know of other oral anti cancer drug that could help my father extend his life as long as possible while maintain a decent quality of life my father would like to live 2 more year he say he would be on top of the world if that can happen any help much appreciate,neutral,1
I have not been around lately but I m have a rough week the white blood count have increase too much so the dr have cut down on the prednisone in 3 week I will do bloodwork again if it have not go down I will need to have a bone marrow test to see if it is leukemia or lymphatic cancer leukemia have a 50 chance of live for 5 year lymphatic cancer 80 I could get the test soon to find out but it sound very painful so I keep think I can get through 3 week with out go crazy right now though I feel like my life is so miserable maybe it would not be so bad not to have to exist like this for long then I think maybe I should see if I can have the test next week instead of think about it all the time anyway I am just upset and overwhelmed and if one more person tell I to think positive I am go to scream like its a magical thing that will just fix everything besides as soon as I start to feel a little hope something new and disgusting begin I am just so tired of the constant pain and nausea I have not been able to paint for 2 day because I do not have the energy thank for listen quinn,negative,0
I have been try to register on this site for day and today it finally work my son is 33 year old have never been sick and after a recent about with what his primary doctor say was a virus decide to go to the er department since he was not get any well after 2 trip to primary doctor er doctor run a cbc and tell he he have leukemia in the month prior to this his cbc was normal he was admit and take to oncology floor of the hospital where they run more test and tell he he have aml 40 blast and some mds they feel that it was catch very early and immediately start induction 7 3 combo they give he a 60 change of cr with induction for the aml but were unsure about the mds he do achieve cr with induction and was release from the hospital 2 week later a follow up bmb was do the week after he leave the hospital show aml in remission but a small portion of mds was still in his marrow he was send for a consultation with a leukemia specialist who review his record and tell he that his only hope for a cure was a hsct and that he would need to continue to have monthly chemo until a match could be find we are hope that they will find a match for he and that everything will go well and he will be cure have anyone else have aml with mds involvement they tell he that it was very rare for a person his age to have this combo his aml is in the favorable range and even some of the mds respond thank you for any advice you can offer I have been read everyone story and find great hope in read they,positive,2
I will start by say I am in a state of shock and confusion and apologize for any disjointedness they want to delay the transplant 2 week to see if keir heart improve with the med but the cardiologist sign off this is the transplant doctor wish he explain it by say that the procedure itself could be hard on the heart which I understand but the cardiologist feel keir would do well which was what we were tell would be the clearance last week then there was a contradiction in the two biopsy report I am in such shock and confusion that I am not think straight I will talk to his hematologist onc tomorrow the one I speak to this evening she call I from home she start off by say lori I am not worried she then go on to say she feel the one of the two report surgical that have the line evidence of residual leukemia was an error because it contradict itself early in the report it say no increase in blast and the flow cytometry which say no evidence of leukemia she sound very determined that keir was okay to have this transplant and would get a second opinion if the med do not increase the e f in two week she say the cardiologist feel it was safe to proceed she was willing to wait two week but no more and clearly disagree with the transplant doctor I simply do not know what to do or think,negative,0
I write here today with devastating news my aml have relapse after my bmt overall I have have an excellent recovery from my transplant however I never get gvhd which in my case was bad obviously if I would get a little gvhd my donor cell might have been able to fight any bad cell unfortunately my leukemia resurface before my donor cell have a chance to start fight I have been take off cyclosporine in hope that my donor cell will get a chance to fight I have been admit to the hospital I have a lumbar puncture and spinal chemo put in yesterday it turn out that the leukemia is now in my spine it have also cause some nerve paralysis in my face I am go to receive a 6 day regimen of chemo along w spinal chemo two time a week I may also have to get an ommaya reservoir put into my skull what scare I the most is how my doctor are act they were so confident w my prognosis after the bmt everyone think it was a cure for I now the doctor do not seem as confident right now they are tell I the good they can do is try to get I into a second remission and then consider another transplant I do not want to die I can not die I am only 25 I still need to get marry and start a family I still have so much to do what I need right now is hope so much hope I need to hear that other have been in this position and have still beat this despicable monster I am desperate and terrified is there anything else I can do for myself along w the chemo I have read about ayurvedic medicine and endocanna something something w cannabis oil I will do anything and try anything I can to fight this please help I am so scared,negative,0
damage to small intestine is not the bad problem for celiac who cheat see the research below for decade now doctor have know that people with celiac disease face a significantly great risk of develop non hodgkin lymphoma nhl recently though doctor discover that sibling of celiac patient also face an increase risk of develop nhl the research team conduct a study use 37 869 patient with nhl 8 323 with hodgkin lymphoma and 13 842 with chronic lymphocytic leukemia who were diagnose between 1965 and 2004 the study include 236 408 match control and 613 961 first degree relative the result indicate that people with celiac disease develop nhl at rate that were 5 35 time high than non celiac but that they face no increase risk for develop hodgkin lymphoma or chronic lymphocytic leukemia in some good news the doctor find that the nhl risk level for people whose celiac disease was diagnose between 1995 and 2004 drop to just 3 86 time great than for non celiac this is a significant improvement over the 13 2 time great risk of nhl face by people diagnose with celiac disease between 1975 and 1984 however the study also show that sibling of celiac disease patient develop nhl at rate that were more than double those of the general population 2 03 clearly as diagnosis and treatment of celiac disease have improve the risk level for nhl have decrease the study underscore the need for great vigilance on the part of both doctor and patient regard nhl and for great understanding of the mechanism that influence the development of nhl in both celiac and non celiac as diagnosis and treatment and monitoring of celiac disease improve and as understanding of nhl increase it is likely that nhl risk level for celiac patient will drop even far until then celiac patient are encourage to stay informed stay vigilant and to consult with a physician to keep on top of any development that may influence risk level for nhl journal of gastroenterology january 2009 page 91 98,neutral,1
mix feeling write this otoh I feel I am being self center introduce myself instead of reply to a message here conversely my thought is if I do not give a brief introduction of who I am I would be respond as a stranger so here my intro I join the widow widower group because I lose my hubby 11 05 08 due to acute megakaryoblastic leukemia that s acute myeloid leukemia due to fibrosis of the bone marrow myelofibrosis we were never officially marry we live together in phila pa 20years I still miss he I believe he is with I in spirit before he pass he say he hope I would enjoy the holiday so in honor of he I go to holiday party last week it was from the art gallery I belong to he and I use to go there quite often for the open mike event he tell super hero story he never outgrow his love of superman he love sci fi movie especially original journey to the center of the earth time machine superman movie and so on tomorrow I plan to go a holiday party it is with many of his and my friend see some photo of he and in recent year bring back bittersweet memory of when he was handsome healthy and happy some of these were a halloween party a hiking trip and watch a tv ball game with male friend well that is it happy holiday mugwort,negative,0
all this amazing group of people have help I in so many way I want the opportunity to give back by share my personal experience in hope that they will help other as well as I have post previously I have my end of treatment consultation on jan 23rd exactly 10 month after get my hickman and start induction chemo my journey of induction 26 day in the hospital and four session of consolidation take twice as long as expect due to slow platelet recovery but god timing is always perfect during the consult the plan was to discuss the result of my final bmb do a week early my med team warn I in advance that the pcr test is very sensitive and that I could have a false positive fortunately early on during my treatment my med team put I in touch with a patient who have travel the chemo only path she have t18 21 while I have inversion 16 she is now two year in remission but do have a false positive pcr for over one year before it clear sure enough although my bmb was completely clean with no sign of leukemia my pcr show positive for inversion 16 my med team state they were not concerned and I have my hickman remove oh happy day the pcr test result get more interesting as it test positive for inversion 16 sub type d and my initial diagnosis was for sub type e this was the first I would heard that there was a sub type within the sub type my head was spin but because I was prepare for the news I wait for the rest of the story they explain that they would send a second sample to be test at the original lab that diagnose my aml they basically give no credence to the first test due to the d vice e type determination and say not to worry have a phd in worry this was a challenge however god give I the peace that pass all understanding I honestly do not dwell on it I also avoid post here to allow our combine mourning for our precious andrea my issue is so trivial in light of lose such an amazing warrior but after some one on one encouragement from member of this group I have decide to share the happy ending to my story this tuesday I was notify that all test come back negative no sign of leukemia and absolutely no cytogenic sign of inversion 16 praise almighty god he heal I now I have monthly cbc how bizarre it is to not go there weekly as I have from the beginning and a clinic visit every three month my platelet are still low around the 70 but I know it is not link to leukemia I am so grateful for all of you and the wisdom compassion and encouragement you share day in and day out god bless you all julie,positive,2
I have a close friend with fibromyalgia but I do not have it I have start watch a show desperate for a miracle on zlive com tv or I think that is how you find it on computer I get it on satellite as an rn who have see the many time main stream medicine can help people but also the many harm that can come from medication and hospitilaztion I have always been open to alternative treatmetnt I have he was bury yesterday a friend with leukemia and see a story on the above show about a teen girl who have 2 type of leukemia and a bad staph infection and was give 3 day to live in isolation in a hospital her parent have try an alternative tx create by a microbiologist in their home canada when she first become ill and her medical treatment were not work she was in remission for a few month and the 2 leukemia return they go back to traditional medicine only when she was near death do they take she out of the hospital and back to he she was tell that because of the location of the staph infection that have she live she would not live she is now an adult athlete and have 2 child I go to the web site and watch all the video and was amazed at the scientific process behind the product in the long video there is a woman who have fibromyalgia and was cure by use this product I have not remember that until I go back today to look at something else like most people who want to do only what their specialist tell they to do and I understand that completley when I inform our friend wife that there was an alternative product that could be use in conjunction with standard medicine and a brief synopsis of the tv story she have no interest I have zero connection wiht the company but I am have a multitude of health issue myself and want to rebuild my immune system to deal with upcoming challenge and so I do order the product myself for that reason and it arrive next week it is not cheap but I feel strongly that we all need to take control of our own health no prescription is need in the us altho one is require in canada I have been bed bind for almost 2 month and I know what that do to my body I am a christian and my faith have keep my spirit high if anyone want to hear the womans story about her fibromyalgia go to cerebe com and click on medium at the top and watch the first video it is over an hour long but since I love science I was take by the entire thing and the story tell there have been so many story on the show I mention of amazing recovery from all sort of condition from miss rare undiagnosed condition and cancer that were matastisize and all treatment medicne have to offer do and other not the above product that was just one story type of treatment and personal choice make to heal and the show are do when at least 5 year have pass so the healing is complete I highly recommenrd it to anyone who want their eye opend to other modality,neutral,1
the late editorial review of the whole of medical publish literature publish on xmrv wrt cfs is find here http jid oxfordjournals org content 202 10 1463 full the journal of infectious disease march 15 20011 203 6 title current status of xenotropic murine leukemia virus relate retrovirus in chronic fatigue syndrome and prostate cancer reach for a scorecard not a prescription pad mary kearney and frank maldarelli author affiliation hiv drug resistance program national cancer institute national institutes of health bethesda maryland xenotropic murine leukemia virus relate retrovirus xmrv is a newly discover member of the gammaretrovirus genus of retrovirus which have been recently associate with 2 human disorder prostate cancer and chronic fatigue syndrome 1 since it was first report in 2006 xmrv have been intensely investigate but no clear picture of prevalence geographic distribution or disease association have emerge in this issue of the journal 3 study shed new light on the presence of xmrv in human population xmrv was first identify by silverman et al 2 during effort to investigate a role for virus in prostate cancer at that time it was know that a subset of individual with prostate cancer carry a susceptibility variant of the rnase l gene that impair innate immune response to viral infection but no viral candidate have been identify viral gene chip survey of prostate cancer detect sequence similar to murine leukemia virus a gammaretrovirus 2 mouse have been host to retrovirus for million of year and have accumulate hundred perhaps thousand of retrovirus in their genome a number of phylogenetic group with distinct genealogy and virologic characteristic have been identify 3 4 the viral sequence identify by silverman et al in prostate cancer were distinct but closely related to the xenotropic murine retrovirus and thus was designate xenotropic murine leukemia virus relate retrovirus or xmrv singh et al 5 subsequently identify xmrv in patient with prostate cancer but find no association with rnase l variant because individual with chronic fatigue syndrome also have impair rnase l dependent response new study were initiate to investigate the presence of xmrv in patient with chronic fatigue syndrome in 2009 lombardi et al 6 analyze 101 sample from a chronic fatigue syndrome sample repository and detect xmrv in 67 of individual with severe chronic fatigue syndrome accord to center for disease control and prevention criterion xmrv was also detect in 3 7 of control prompt concern about the possibility of iatrogenic or transfusion associate transmission molecular and biological characterization of xmrv have provide some support for its role in human disease human cell especially prostate cell are highly susceptible to an xmrv infectious molecular clone 710 like other replication competent murine leukemia virus xmrv do not appear to encode an oncogene and is detect in some but not all prostate cancer cell in tumor tissue suggest oncogenic mechanism more complex than those use by other gammaretroviruse that is oncogene activation or promoter insertion despite close similarity with xenotropic virus xmrv is genetically distinct from all know xenotropic murine leukemia virus have a 24 nucleotide deletion in gag and a 2 nucleotide deletion in the long terminal repeat analysis of xmrv sequence from different source have reveal limited genetic diversity among patient because retrovirus diversity is dependent on cycle of error prone viral replication the absence of xmrv genetic variability suggest that multiple cycle of infection are not take place in human this lack of genetic diversity is in stark contrast to human immunodeficiency virus hiv infection in which viral diversity rapidly accumulate instead xmrv appear more similar to human t lymphotropic virus htlv a virus that infect million but have low genetic diversity because it undergo limited cycle of virus replication after infection and is maintain largely by division of provirus contain cell xmrv is readily susceptible to hypermutation by the apobec system 11 suggest that xmrv infection would likely take place in cell with low or absent apobec activity take together these datum suggest that xmrv have zoonotic origin in mouse but have replicate to only to a limited degree in human follow the first report of xmrv in the united states new study of patient with chronic fatigue syndrome or prostate cancer were initiate that search for the presence of xmrv in geographically diverse area a flurry of publication in the past year have uncover major complexity in xmrv research several large study of individual with prostate cancer or chronic fatigue syndrome in germany the netherlands mexico and england do not detect any 1214 or detect rare 1517 evidence of xmrv xmrv have also not been detect in individual with other immune deficiency such as hiv infection 18 in the united states arnold et al 19 detect anti xmrv antibodie in 27 of individual with prostate cancer and schlaberg et al 5 report infection in 23 of patient with prostate cancer and 4 of control in contrast switzer et al 20 report no detectable xmrv in united states patient with chronic fatigue syndrome and 51 normal volunteer and 56 or blood donor and 121 lo et al 21 recently report the presence of mouse retroviral sequence in 86 5 of patient with chronic fatigue syndrome add to the mystery the sequence amplify from these patient were distinct from xmrv and appear to be more closely related to different murine endogenous retrovirus in this issue of the journal several new study have assess the presence of xmrv in human population danielsen et al 22 extract prostate tissue from individual who have radical prostatectomy at baylor university medical center houston texas they detect xmrv gag and env by polymerase chain reaction pcr amplification in sample contain 105 cell from 22 8 of these patient a proportion of xmrv positivity that is similar to that in several study of prostate cancer in the united states that do detect xmrv 5 19 in 57 individual tumor and normal tissue was available for analysis intriguingly xmrv was detect in both normal and tumor tissue suggest that xmrv do not target prostate tumor cell specifically in addition the finding that xmrv positivity was coincident in normal and tumor tissue from specific patient and not uniformly distribute among normal and tumor sample in the patient population suggest that the xmrv signal they detect was not a random amplification event two other report in this month journal find no evidence of xmrv in different patient population barne et al 23 investigate patient with hiv or hepatitis c virus infection from switzerland or the united kingdom analysis of 230 patient sample reveal no evidence of xmrv by dna pcr in peripheral blood mononuclear cell from hiv infected and 84 or hepatitis c virus infect and 67 individual and no xmrv rna in plasma of hiv infect person and 79 in addition enzyme link immunospot assay demonstrate no response to overlap xmrv gag peptides henrich et al 24 survey xmrv in patient with chronic fatigue syndrome and severe symptom and 32 recent transplant recipient and 26 hiv infection and 43 rheumatoid arthritis and 97 and match control with use of pcr technology capable of detect 10 copy of xmrv in 1105 cell no xmrv was detect use this sensitive assay in any patient from these datum the author calculate the prevalence of xmrv in these population to be,neutral,1
hello everyone I am not sure if I can post this on here but just but I have been a ds member for some time now about a year ago my dad was diagnose with multiple myeloma I have read all your post and I am learn a lot to pass information to my dad I give you all so much strenght in return I have been donate and try to stay involved and inform on the new research so I am not sure if I can post this on here but I have make a commitment to support the leukemia lymphoma societys ll light the night walk light the night walk is llss annual walk and fundraising event and the nation night to pay tribute and bring hope to people battle cancer team of friend and family or co worker raise fund for cancer research and to provide service in their community locally the walk will take place on november 13th in fort lauderdale lls program help advance an important mission cure leukemia lymphoma hodgkin disease and myeloma and improve the quality of life of patient and their family this is my team page where you can donate and even join I thank you so much just copy and paste below if you have any question at all just message I god bless http page lightthenight org sfl huizenga10 lalbuquerque,positive,2
mportant health benefit for diabtetic date december 23 2009 two new university of illinois study report that lunasin a soy peptide often discard in the waste stream of soy processing plant may have important health benefit that include fight leukemia and block the inflammation that accompany such chronic health condition as diabetes heart disease and stroke we confirm lunasin bioavailability in the human body by do a third study in which man consume 50 gram of soy protein one soy milk shake and a serving of soy chili daily for five day significant level of the peptide in the participant blood give we confidence that lunasin rich soy food can be important in provide these health benefit say elvira de mejia a you of i professor of food science and human nutrition date december 23 2009 I do not know what to make about soy is it good or not some article say yea and some nay I know it is high protein but is there any real benefit in use it well it you believe this article I suppose so I have read the same about tofu yuk two new university of illinois study report that lunasin a soy peptide often discard in the waste stream of soy processing plant may have important health benefit that include fight leukemia and block the inflammation that accompany such chronic health condition as diabetes heart disease and stroke we confirm lunasin bioavailability in the human body by do a third study in which man consume 50 gram of soy protein one soy milk shake and a serving of soy chili daily for five day significant level of the peptide in the participant blood give we confidence that lunasin rich soy food can be important in provide these health benefit say elvira de mejia a you of i professor of food science and human nutrition,neutral,1
hi everyone just want to post an update on jack monday was pre trial screen for the study ucla is do the second part of this study the first part was determine dosage the patient are randomize into three group 100 200 300 if those on the 100 do not respond well then the dosage can be increase but those on the high dose can not be decrease there are only 6 patient in the study at ucla and 230 worldwide we are bless and so thankful for this chance pre test involve echocardiogram ekg bmb dilate eye exam visual field and fundus photo my brother was very worried about getting reject because during his last hospital stay the team discover pericarditis which can happen to long term leukemia patient eye exam demonstrate some mild hemorrhage and anemia in the eye also sign of leukemia all these result are important for baseline the coordinator np have been a saint she was able to get everything together for a wednesday dosage jack receive a phone call to stop the hydrea that day and he receive his first dose of asp 2215 in the afternoon I have been especially busy at work and do not get to speak with he until late thursday and I was shock he sound almost normal on the telephone he even joke with I I have not hear he like that this past year he is a very serious guy he say he have more energy but his rear end was still slightly painful due to the abscess I want to just keep everyone up to date because I know there are several people quite curious about this trial as I was previously there is very limited info on the result and outcome of patient when I was look online I am hope this news will be helpful to those who are interested next appointment is monday thank you everyone for the generous support prayer and concern all of you are so awesome and strong,positive,2
the mouse xenotropic gammaretroviruse and their xpr1 receptor the xenotropic polytropic subgroup of mouse leukemia virus mlvs all rely on the xpr1 receptor for entry but these virus vary in tropism distribution among wild and laboratory mice pathogenicity strategy use for transmission and sensitivity to host restriction factor most but not all isolate have typical xenotropic or polytropic host range and these two mlv tropism type have now been detect in human as viral sequence or as infectious virus term xmrv or xenotropic murine leukemia virus relate virus the mouse xenotropic mlvs x mlvs were originally define by their inability to infect cell of their natural mouse host it is now clear however that x mlvs actually have the broad host range of the mlvs nearly all nonrodent mammal are susceptible to x mlvs and all specie of wild mouse and several common strain of laboratory mouse are x mlv susceptible the polytropic mlvs name for their apparent broad host range show a more limited host range than the x mlvs in that they fail to infect cell of many mouse specie as well as many nonrodent mammal the co evolution of these virus with their receptor and other host factor that affect their replication have produce a heterogeneous group of virus capable of induce various disease as well as endogenize viral genome some of which have been domesticate by their host to serve in antiviral defense the complete article is available as a provisional pdf http www retrovirology com content pdf 1742 4690 7 101 pdf al,neutral,1
I get this off the llc website but I think it would be good information for people that may not know about the llc site for those that do not know its www leukemia lymphoma org but this is information on treatment treatment amp clinical nbsp trial patient diagnose with a blood cancer are require to make many decision about their care they must decide where the care will take place and choose the physician who will take charge of care they also may be ask to participate in many decision about treatment this segment is design to provide information to assist in these decision there are link to other related web site that may assist the patient and family treatment approach for blood cancer may include chemotherapy radiation therapy stem cell or marrow transplantation or immunotherapy these treatment are often give as standard care or in a clinical trial the patient may also seek complementary and alternative therapy brief statement and information about each of these topic follow nbsp food and nutrition nutrition topic before during and after cancer treatment clinical trial service let we help you find a clinical trial use an easy search tool treatment decision treatment decision include choose a treatment center choose a specialist talk to the doctor about treatment and clinical trial get a second opinion and change doctor radiation therapy radiotherapy is sometimes useful to treat localize lymphomas especially hodgkin lymphoma and central nervous system lymphoblastic leukemia chemotherapy learn about the most common form of treament for blood cancer stem cell transplant learn about an important form of treatment immunotherapy immune treatment use antibody direct against leukemia or lymphoma cell have been approve for use by the you s food and drug administration new approach learn how state of the art research is yield promise new treatment for blood cancer pain management this section include tip on work with your healthcare team to manage pain cancer relate fatigue fatigue is the feeling of being tired physically mentally and emotionally mrsa information about methicillin resistant staphylococcus aureus nbsp,neutral,1
I just want to put this out there I know there are a lot of wls youngster who struggle with the weight loss they see day in and out the gain the stall the re loss do not lose faith ok my high weight was 380 pound I decide at 350 pound that I could not do it on my own and I was not go to live like that anymore I would not allow myself to live through leukemia and then to die of obesity forget that so I make the decision to have gastric bypass and on nov 12th 2007 I do life have not been easy since then but after 14 month I have meet my personal weight loss surgery goal weight of 180 pound today as I write this I have just weigh in at 178 8 pound people are call I skinny and I am face with a whole new set of response and reaction and feeling that I have never feel before despite my medical status with leukemia I feel healthy than I ever have so do not give up just keep do what you know to do just keep try your good you do not have to follow a plan perfectly because there is no perfect plan and neer forget the real reason you decide to have gastric bypass especially if it was for your health,positive,2
I am a long time hypo for about 20 year now it start when I was misdiagnose with a condition ever since then I have convince myself that I have have leukemia colon cancer pancreatic cancer al liver cancer stomach cancer and the list go on and on right now it is throat cancer I am on an ssri and it help but sometimes I feel like I am lose the battle I just want to say hi and get some support thank,positive,2
tonight is the first anniversary mass of a young lad whose mum I know from my oa homegroup who die of leukemia age only 22 he was the baby of the family and she take his bad the mum ex husband is possibly a relative of my mum I want to be there as I feel that it is essential for my oa recovery,neutral,1
my sister have develop a lot of pain in one of her arm she can not lift it any high than just above her waist without a great deal of pain they do an ultrasound and determine that it was nothing to do with the muscle but there is a knot there and they are think it have something to do with the bone she is schedule for an mri today she is scared that it have something to do with the leukemia and the cancer move into her actual bone prayer need for good result today debbie,negative,0
I guess I am just discourage about my life in general something about live w my parent still 30 due to illness that is depress weird right yeah not only that I have been think a lot about my past emotional abuser bf and can not let go of the pain he cause I he have a cluster b personality disorder along w narcissistic disorder and would always cut I down and manipulate and exploit I emotionally and sexually and then to make it bad he was sometimes a really like able guy and even witty and charming plus I never seem to measure up to the wife he lose he was a widower or be as hot as the woman that come on to he and try to be all over he when I was not around I just wish I new why he latch on to I so and tell I that he love I and be so need w I but hate so much the same time he was a severe alcoholic and supposedly die of brain cancer but I never really new what the truth was I guess I just figure I owe it two he cus he was a vet and also die just wish I would of been woman enough,negative,0
right now I am in a major flare and I am hurt burn and exhaust my husband brother is graduate law school on friday and it is a good bit of a drive I ask he if he would not mind just take the kid and let I stay home to rest the first thing he say was you are go to leave I with all the kid not oh is it that bad or of course I understand you need a break I am sooo upset his whole family is go to be there so he would not be leave with the kid all by himself I never wish he pain like this but I do wish he was more understanding I just do not want to go feel the way I do from head to toe hurt we just go through a major loss my 6 year old niece die of brain cancer and her birthday is tomorrow so that of course is not help and just the everyday activity and stress what am I to do,negative,0
my husband die of brain cancer on august 25th 2010 we have been marry for 36 year and together for 38 we have live in the same new england town for the last 33 year it wasn t store I could not go to or resterant or theater or a multitude of other place church bike ralley christmas parite meeting you name it we go every where together we also take long motercycle ride down to the ocean or up to the mountain or just any back road when I wake up as a widow my husband was everywhere in my world there was no where to escape so I volunteer to work in dc just so I would not end up where steve kiss I the first time or on the road he tell I he was go to marry I I have work out of town for 3 1 2 month and now it is time to return to new england and have my hip replace I hope I am strong enough to spend 6 to 8 week by my slef in our family home that we have live in the for last 33 year plea say a prayer for I I need god strenght to see I through,negative,0
six month ago today my husband pass away from lung and brain cancer I feel so lost and alone and do not know how I will continue without he I am try to find a place for myself but it is not the same without he he was not only my soul mate but my good friend I feel so lucky we find each other and enjoy each other company we were constantly together I know I was bless to have have such a wonderful life with he which make it even hard to figure out where I go from here everywhere I go and everything I see remind I of our time together I am try to make sense of thing in an unsensible time of my life I know I am not alone with these feeling and I feel grateful I can express myself on here and have so many kind heart here to express myself to thank for listen lynn p s our life together was not always perfect but the fight and determination to get to where we were was worth it,negative,0
since I have tell everyone in my family that my mom have brain cancer and masse all over her body lung liver lymph node stomach abdoman and more it seem like everyone want to come to say goodbye now I feel that is rude to be come to say goodbye I understand they want to see she and I may be in total denial but they are all descend on we just three day after her last radiation treatment I do not thing she is go to be feel great or even good enough for company and visit these people make non refundable reservation without even check with we I am really annoyed that the sister and brother feel they have right to just come and visit without even check with she or I am I being a biotch or protective or unreasonable I feel that they should wait until they are invite but it is their schedule that make it so easy for they to come on may 3rd what would you do I feel like run away and leave a note on the door say I tell you we were not ready but that is not very friendly or family like should I just try to make the good of it help I really need some feedback,negative,0
I lose my husband of 39 year in december 2008 to brain cancer he only live 8 month after it was find it is been almost three year and I still struggle with miss he I meet he when I was 17 and we marry 6 month later we spend a life time together raise three daughter and enjoy life we were good friend and complete each other in so many way I feel like I lose half of I we have a rich life together and it is been hard to move on I do not know how to be single shortly after he die I go to stay with my daughter in another state and a few month later make the move permanent I have 2 grand daughter that are the light of my life I move cross country with they last year but have not been able to make friend or get on with my life I look forward to get to know other in this group,negative,0
next to lose your son or daughter to death there is nothing more sad than lose the one you love the most to something that literally eat their life away like a cancer see your son beg for help with tear in their eye and you can not do anything to help they still have not find the right medicine that help without severe side effect I hate this disorder with a passion it have turn his life upside down I wish I was able to switch place with my son and take his adhd away god I wish I could,negative,0
I was diagnose a little over 2 mo ago with basil cell carcinoma on my face right along my jaw line the dr s office call I on the phone to give I the result all I hear was the word cancer without say it scare I to death as I have a brother who die of brain cancer when he was 10 the nurse just more or less tell I what the dr want to do as far as treatment and at the time of course I do not ask any question my bad the dr choose to use aldara on my face because of my age 44 and the location of the cancer he want to spare I from have to do any plastic surgery if we do mohs well let I tell you I will never automatically do a treatment that a dr feel is good without do my homework the nurse tell I there might be some discomfort and it could make I a little sick well a little discomfort and a little sick my ass and now after the fact I can tell my dr wish he have go ahead with the mohs because the aldara find the live cancer cell and attack they and my area of attack was a lot large then the area appear on my face I am now go to go ahead with mohs which I really wish I have do to begin with but I can not harp on the past have to look ahead to the future my surgery is schedule for sept 28th and though I know it is the 1 treatment for basil cell I am still scared to death,negative,0
I go away this weekend I arrange for respite care for my neighbour who I have a major part in care for and who have advanced lung and brain cancer the respite people were suppose to be there check on he at least three time a day and one or two phone call in between those time usually the amount I go and check on he each day to make sure he is take his medication and thing correctly fede his pet andshowere he and so on he is try to stay at home for as long as it is possible and I am try my damned harde to comp y with his wish despite his change personality from the brain cancer which mean he get a rather bad temper very often anyhow I triple check with respite before I leave that he would be check on to this routine state above and yes yes well do that for you and leave it to we well be ok was the replyi was not convinced but have to trust they because I have to go away ididnt have a choice to stay so I leave it in their hand and ring my neighbour once a day as well to keep in contact only yeterday he do not answer which quite honestly scare the s t out of I my first thought was oh no its happen he is go so I ring his mother who live nearby but have been unwell and was really reliye on the respite carer to go visit she on as well because she is struggle to get out of bed at the moment while she is not well after I ring she she rush over to his house with her spare key and find he unconscious on the floor in front of the tv ambulance take he to hospital where he is now they say he would take an od of his pain medication and at first they think it was a suicide attempt but then he wake up this morning and is say that respite do not come at lunch time and he could not remember if he d take his lunch time med or not and how much morphine elixir to take at a time but he was in pain so he think maybe he have not take they and he guess the amount of elixir to take and get it very wrong now I m wonder if its al my fault because I go away which is sort of crazy thinking because I do not have a choice but to go away this weekend and I have arrange for someone to visit and make sure he have his med but I can not help feel guilty about this it have set he back so far in just one weekend oh and it turn out that respite misplace the instruction and were call on he once a day that s it he propbably have not have a shower for four day and to top it off I check his medication box today and he have miss 4 various dose of med throughout the weekend which will cause problem if he miss one let alne 4 guess I m not go away for a while doc say he can come home in a couple of day sory guy I just have to vent and get this out,negative,0
I do not want to come off as being arrogant but I do not believe that artificial sweetener are as bad as most claim I am not say anyone have to agree with I but I would like to point out a few article some people remain suspicious of all artificial sweetener even though extensive research have not find any significant health concern aspartame sell under the brand name equal and nutrasweet is one of the most test substance ever allow in our food supply its also approve for use in more than 100 other country there s no reason to believe any of the warning fly around the internet that claim aspartame cause alzheimer multiple sclerosis brain damage or any other serious disease and the late research show there s no need to be concerned about cancer last april the national cancer institute release the result of a huge federal study involve more than a half million adult base on that research the institute conclude there is no evidence any artificial sweetener on the market in the you s today is relate to cancer risk in human k so you do not trust the government then consider this the center for science in the public interest the consumer group that have question the safety of aspartame for almost 30 year praise this study say it significantly allay concern about cancer the bottom line is that aspartame is probably safe the center say on its web site product contain aspartame can be harmful to people with phenylketonuria or pku a rare genetic disease so product with aspartame carry a pku warning for everyone else there s nothing to worry about sucralose sell under the brand name splenda is make from sugar that have been chemically engineer to pass through your body without being digest that s why it taste like sugar but is calorie free splenda is now the number one sugar substitute on the market find in salad dressing cereal and beverage as well as those little yellow packet sucralose have been study for a long time say dr john swartzberg head of the editorial board at the uc berkeley wellness letter and there is no evidence of any harm to human being another article aspartame an artificial sweetener distribute under several trade name e g nutrasweet or equal was approve in 1981 by the fda after test show that it do not cause cancer in laboratory animal although not all of the laboratory experiment agree interest in aspartame was renew by a 1996 report suggest that an increase in the number of people with brain tumor between 1975 and 1992 might be associate with the introduction and use of this sweetener in the united states however an analysis of then current nci statistic show that the overall incidence of brain and central nervous system cancer begin to rise in 1973 8 year prior to the approval of aspartame and continue to rise until 1985 moreover increase in overall brain cancer incidence occur primarily in people 70 and old a group that was not expose to the high dose of aspartame since its 1981 introduction these and other datum do not point to a clear link base on animal or human study between the use of aspartame and the development of brain tumor the fda still consider aspartame safe another article like saccharin aspartame is another sweetener that though thoroughly test by the fda and deem safe for the general population have have its share of critic who blame the sweetener for cause everything from brain tumor to chronic fatigue syndrome not so say kava the only people for whom aspartame is a medical problem are those with the genetic condition know as phenylkenoturia pku a disorder of amino acid metabolism those with pku need to keep the level of phenylalanine in the blood low to prevent mental retardation as well as neurological behavioral and dermatological problem since phenylalanine is one of the two amino acid in aspartame people who suffer from pku are advise not to use it if you need to control your sugar and caloric intake artificial sweetener are a safe effective way to do that some people can be sensitive to sweetener and experience symptom such as headache and upset stomach but otherwise there is no credible information that aspartame or any other artificial sweetener cause brain tumor or any other illness say registered dietitian wendy vida with healthplace the health and wellness division of highmark blue cross blue shield in pittsburgh kava say that since sweetener are so much sweet than sugar a very small amount is need to achieve the same sweetness one get from sugar if use normally the amount you take in are so minuscule as to be of no concern at all though there are any number of people quick to point out what they believe are the danger of artificial sweetener other think that they may actually have beneficial property apart from reduce calorie intake and managing diabetes researcher at the oklahoma medical research foundation for example have find in several preliminary study that aspartame is especially effective in relieve pain associate with osteoarthritis multiple sclerosis and sickle cell anemia whether artificial sweetener are show in the future to have therapeutic effect remain to be see say kava for now though their main purpose is to help people reduce caloric intake and or control diabete if you do not need to watch your calorie or your blood sugar there is no real reason to use the sweetener unless you just happen to like the taste say kava but if you need to control your sugar and caloric intake artificial sweetener are a safe effective way to do that,neutral,1
hi all I just join this group because no matter how much time pass I do not seem to improve after get out of an emotionally abusive relationship my second time around I still have nightmare about my first ex of ten year but I think my late ex of two year leave he last february have been the real kicker after being together for a year he was diagnose with terminally I will brain cancer so I feel that I have no choice but to stay and take care of he despite his constant belittling and compulsive lying I would not go into detail right now as I just want to introduce myself and see if there is anyone here that I can talk to I do not have any money or health insurance and can not afford therapy I have been battle cut for the past year and do not wish to use that as my cope method it is also hurt my current relationship with a very nice guy who have been extremely patient but my trigger are just so sensitive thank all for listen I hope to get to know some of you,positive,2
my husband rob decline rapidly after a 16 month battle with brain cancer it was 12 8 when the dr say he have a new tumor on the brainstem somewhere around 1 3 or so while he was lay in the bed in the livingroom he become bedridden and could not find the correct word for thing he keep ask I to take a picture then he would say not that I do get the camera out and take a picture of he today I just upload those photo and see the confusion on his face he was try so desperately to tell I something and it apparently was not to take a picture it eat away at I what was it take a picture a memory I do not know but I wish I could come to term with the last few day I am grateful that it was a short period of those 16 month we do have together will I ever just be able to let it rest,neutral,1
my husband die may 19 2017 which was a friday the monday of the same week my mom was diagnose with brain cancer I think that I have grieve for my husband yeah there were bag day but I get through after my mom surgery to remove the tumor she come home with I and I take care of she my sweet amazing mom pass yesterday without much severing I feel everything that I feel after my husband death all over again like I have never grieve now with my mom go it is all I can do not to be overwhelm by the lose two people that were key in my life are go it hurt and I do not want to feel all this raw emotion and emptiness where ever you turn you re remind that christmas is around the corner the next person that tell I happy holiday should just turn and run it is not their issue but they are in the line of fire,negative,0
I guess I probably just need to talk thing out and since as of right now this is my only way of do so see as I m stuck in a hospital I hope you all do not mind my name is jenny and I m 14 year old I grow up in a pretty good house the second young of nine kid my little sister die on the day after her fourth birthday dad do not make sure all of the kid were out of the way and he run over she it was an accident but it still tear the family apart dad start drink and mom just work hard then ever pretty soon we would only see dad for more then an hour durre the holiday and mom a little more often but it just never was quality time eleven month ago I was diagnose with brain cancer mom and dad send I to st judes and iv been recive treatment ever since my grandmother sign off on any treatment that need a signature but she do not visit I have not see my parent or my old brother since I come here have surgery go through radiation and am now go through chemo I hate go through this,negative,0
so my year is not so good to say the least my dog die of brain cancer my mom was diagnose with alzheimer and my wife leave I wow my plate fill up fast ouch I survive extreme depression 15 year ago and am worried about go through it a second time I remember then I was tell to tell someone when I was in danger just by say it it seem to help and be my wake up call I want to we ds as my way to declare it I hope it will work once again the one thing I have forget about my episode back then was how when thing get their darkest I would physically shake my body is sore I do not wish depression on my bad enemy the downward spiral is so so hard to control I respect those that do not want to fight it jury is still out for I day by day I guess,negative,0
jim grow son age 46 is start to question thing about his father wish vis a vis to have a simple cremation jim want no funeral no wake and to stay here with I after his death since I feel that his soul is still here with I I do not object to his son keep the ashe at his house on the east coast the son is now question why his father do not write this down on a piece of paper and put it in a sealed envelope I think it was pretty clear to everyone that his father was unable to write thing down due to the advanced state of his brain cancer now his son want to bury the ashe and have a tombstone I tell his son that initially I think this might work but I can t go against his father s wish I just can t now I don t even want to attend the memorial that we have plan for he in early july why can t people just follow the wish of a fully grow person,negative,0
we chat with maria this morning and she is sadden by the loss of her step brother father pass away her bother name is karlheinz and his father name was joshua he fight a heroic battle with brain cancer before his spirit go gently back to his heavenly father they are a close family and need our prayer at this sad time of parting with a dear love one our dear heavenly father we come before you today ask for thy comfort love to surround maria her dear brother and all the family that are involve with karlheinzs father pass away may they feel they tender care as they go through the normal mourning process we thank thee for the gift of eternal life and the great knowledge that we will all be reunite in thy great heaven some sweet day we pray always in thy beloved son jesus christ amen,neutral,1
have an appointment today follow up on fill migraine med and I get up my courage to talk to my doctor about my anxiety and depression this is my primary care physician by the time I get out just my issue at work and my issue about my young brother who is suffer with brain cancer and now have to draw disability my fear about his financial security and his health issue I was cry and in the midst of a panic attack the doctor take my heart rate and notice a rapid heart beat he ask if I have get into therapy and I say I have and was try it but it alone was not enough also that I was sporadic with it and was isolate besides work anyway after our conversation he put I on celexa not sure of spelling and say within a week I ought to notice some change hopefully it is for anxiety and depression I hope it help and I am hope I would not gain weight as the wellbutron do not seem to help much and it have a side effect of weight gain just an update thank for read and listen,positive,2
from the virtual desk of dad diary re s o b b s story of baby bear still what an inspiring site I am a father who is also venture down a road less travel journey with my daughter as a result of her brain cancer diagnose at 2 month of age I have an internet radio show call dad diary on cyberstationusa com the theme being embrace life detour at present I am average about 180 000 listener per week globally I would welcome the opportunity to speak with you relate to your inspiring perspective surround faith hope and so on may I suggest that you email I at mydadsdiary gmail com so that we could chat I would also like to give this inspiring page more exposure if you would ever consider being a call in guest to my show thank you in advance for your time please give stephen show a listen today 1 pm if you are unable to tune in at this time the show in its entirety will be available on http cyberstationusa com in care concern and in the name of healing o b b s,positive,2
I am so glad that I have find this group my dear daddy pass away just 2 week ago follow a brave 9 month fight with brain cancer I go back to work just one week after his death I am a teacher and think the child would help my spirit they do but I have been puzzle by my co worker reaction or lack of I should say my workplace is normally generous and care we celebrate birthdays new baby wedding we cook for those who are recover from surgery we have a flower fund and so on I have feel abandon the funeral was in a different state and I understand why no one come to the visitation but they do not respond really just text message and a few hug my first day back I do not understand why I feel this way I think people care but I do not feel support are they afraid to help I my husband is hurt too my father was more his dad than his own,negative,0
my mum was diagnose with brain cancer in july and have been give 4 month to live since then she have now been move to palliative care and her mind is so sharp and here what she say to I the other day it is time for I to go and my job is do I the most lucky woman in the world and I love all you kid and you all have turn out so well I am the young of 7 kid and I am at peace with myself for the first time in my life I have make peace with your dad and know he is now in a good place and when I die do not cry for I but weep on occasion because you miss I it humble I because it remind my what a powerful impact my mum and dad were on my life and now I have been charge with the same responsibility to my child,negative,0
hi everyone first time I feel strong enough to get word write my husband who was my bff for 41 year and marry to for 36 1 2 year pass on march 14 not from covid brain cancer diagnose and pass away within 6 week I go from help he with diagnosis and medical treatment to all of a sudden comfort care and death I am lose I have great support but I am leave in my quiet house that he build go to sleep in my empty bed my husband was a builder so I have much to fix clear out donate because I must sell everywhere I look I see he and his handiwork this heartache couple with covid and work as a teacher virtually is overwhelming at time everywhere I turn nothing is normal and I know would not be for awhile this month particularly suck all my jewish holiday couple with what would have been our 37th anniversary thank you all for listen I need to get my thought out in a neutral zone,negative,0
go to try to cut a long story short I suffer from generalised anxiety attack adrenaline rush vacancy sleeplessness most intensely I suspect is relate to a hypochondria I have develop over a long period of time I think it come from an over address of condition such as brain cancer or heart disease in the medium and public domain as well as my parent both fall seriously ill around the same time about 18 month ago which is when this all start to go far south my mother suffer a subarachnoid spelling please brain hemorrhage which she survive I was witness to the seizure she have when the bleed happen as well as the hospital visit diagnosis surgery and so on was a tough time whilst she was still recover my dad was diagnose with terminal cancer in his liver lung and bowel he is still fight as I write back home before this time I have often been a worrier I would book a consult for my gland being up in case they were tumour stuff like that I start to have or imagine I have a pain in the left side of my head which sometimes occur as a headache and sometimes just as a quick twinge I read an article online which it go without say was a bad idea and apparently singular pain in your head have been know to be indicative of a brain tumour so that was it for I I was freak out every other day at the slight thing you know how it is I eventually convince myself I was have a tumour relate seizure at work in the bathroom which migrate into my first panic attack fond memory which end up with I in the hospital frighten and confused I think I would been drug for a little while not long after I was diagnose with generalised anxiety and the attack begin to happen every other day I soon discover that I was mostly safe from an attack unless I drink alcohol the night before so occasionally I pay fairly dearly for overindulgence they have get I on propranolol currently a beta blocker which is apparently also use to ease anxiety over time it is been ok I am up and down and have period of stress which lend themselves to anxiety and every now and again I return to my friend the brain tumour with its myriad of vague possible symptom my question do we hypochondriac and suffer of anxiety ever get over it or is it something that is always at least vaguely present my mind is start to feel like a prison,negative,0
I was listen to npr the other day and they were discuss the phenomenon of chemo brain basically cancer patient on chemo were experience an erosion of mental function I could not help but equate the description with miss brain fog if you think about it it make sense there is an agent chemo for cancer patient autoimmune destruction with miss that is impact the neural pathway in the brain I wonder if the research for this will translate into treatment for we as well here a related article from ny times http www nytime com 2007 04 29 health 29chemo html ex 1335499200 en 052308156473c531 ei 5088 partner rssnyt emc rssspeaking of brain fog I have have it really bad today I absolutely hate feeling completely shut down this awful disease is completely hold I back from so many thing I want to do in life,negative,0
6 year ago I have my right temporal lobe remove to cure epilepsy well it work the right temporal lobe have your emotional control center in it when I first get home I would cry or laugh at the drop of the hat over the year they have try 7 different med to control it I have fall deep into the crying mode my family have have it tough over the last few year my father in law die of cancer my nephew have an in operable cancer brain tumor my wife just finish a buy of breast cancer and we have lose over 300 000 00 of our own money for medical expense and loss of pay the doctor tell I I have this problem every summer because the brain sack that fill in the part of my brain that was remove swell up this is about the 20th different thing they tell I is wrong have anyone have this type of problem thanksbob,negative,0
she is my parent dog but like one of my own all 5 of there s are I love they so much she have breast cancer and they say if they take it out it will spread and probably already have it do fast well 2 week ago she bite dad we think maybe something hurt when he was hold and pet she been keep she away from people other than we well tonight mom call I and say molly attack one of the other dog for just give she a kiss so that would cause no pain she pin she down but luckily do not bite thru the hair mom is so glad she do not get they hair cut yet mom was able to get molly off of elizabeth in time they are call the vet in the morning for dad to bring she to be put down and he will bury she where we bury all our love animal when they pass over to the rainbow bridge and this will be happen on my birthday I am go to miss molly so much she is such a sweet girl normally I hate cancer we think its go to her brain the cancer now she s not even 12 yet and for small dog that s not real old,negative,0
hello all I am hope this is the place I need to be I have suffer with health anxiety for 20 year and it come and go in intensity but the last 2 and a half year have been severe worry I have al brain tumor brain bleed cancer or heart disease it have consume my life and I need to start get support and help its ruin my relationship with my kid and family let start off by say I have have a sharp pain in my head for over a month now stab type I in the last 20 year have have 12 mri and ct scan of my brain the last being last year always they come back clear but I can not shake this fear that its a tumor a annyuersum or somethin,negative,0
I am so upset the tear will not stop and my stomach is feel every wrench as the pain of life is contract its way out of I so much disappointment and loss in one year I can not think about life in the future if this is the present I now face its unbearable I am wrench with every yearning of the loss I feel I am go to be sick I hold she as she die then after she die I hold another as she die then I hold another as she die cancer I hate the venomous name take too early take too too soon my grandmother my mum and my good friend I wake in the night call on they to come back home but 2007 take they all why whywhy please come back please come back please come back and make life the way it was I can not keep on go where are you all you love I and I love you nan you have a full life and I care for you my wonderful mum you only make 54 year and we have a few week to prepare and my dear flatmate and friend who share my home for 5 year we do not have any notice at all at 22 you have not even begin cancer pancrea liver and brain cancer get you all why all of you why 3 generation of very very special lady all go at once why 2007 why I why now I am go to be sick it just too much,negative,0
I just find this site this is the first grief support group I have look at and my husband have been go two year next month I miss jim so much we were together 12 year from when I was 19 and have two child together we were soul mate from the moment we speak almost never fight and were together all day for so many of our day together I do not let myself grieve when jim was diagnose with brain cancer he reject I and our two kid when I protest and we start fight he say he want a divorce he want to explore all of the thing and relationship that he have leave behind to be with I and have a family after week of argue he become physically violent one night towards our son and when I intervene towards I I get scared and my heart was break I agree to the divorce because of the divorce one that we do without lawyer and fight just divide everything equally and stay friend I do not get support when jim die I have lose our community of friend and even though I do what I do to protect my son I still feel shame at the same time I know I could not have do it any other way I guess I wish I was a different person who could have do it well I got remarry quickly last year and we have a very happy newborn baby I love my husband and we are good partner true friend and serve one another lovingly but I miss jim so much he was the only person that ever truly understand I trust I support I I feel so safe with he do you all know what I mean I think I really need to hear that I am not an awful person for put my kid first violence was such a trigger for I I could not stay once that happen I lose almost all of my friend for do it I could not be so public about why I divorce because I do not want to speak badly about jim so they assume the bad and just go to support jim brain cancer is funny jim was fine without symptom for almost 2 year in fact until a few week before his death he was walk around and even work so now I am focus on my new husband my three kid try to make new friend I am a home maker again and I feel broken compare to the other mom who still have their first family do you understand and I feel like I am not a true wife because I already give my life to someone else and so this is just play act despite my effort to give myself fully,negative,0
may 31 2006 I lose my good friend my mom she fight one hell of a battle for 17month with lung and brain cancer I still hear the phone ring the night my dad call to say she want all the kid that night she agree to go to the hospice house we keep her home for all but the last 6 day she start to slip in and out on a saturday and we just keep pray that she would let go and be at piece 5 31 06 9 am my sister call and tell I I need to get there have to get michael my son with his grandmother and hubby drive I there get to be with she for 20 minute by my self we were tell by the nurse not to be suprise that when she was ready to leave we her eye would open 12 15pm the bad happen my mom lef this world to watch over all of we I do not care what people say it never get any easy how do you tell a now 4 1 2 yr old why memere is in heaven and in his heart mom I miss you so much,negative,0
yesterday I find out that my grandmother on my father side have been dead for 7month and everyone have been lie to I about it make I believe she was still alive she die of lung and brain cancer it hurt cuz also yesterday I find out that my good friend is being put up for adoption I am so depressed right now its not funny and it sure as hell is not help my ulcer any I can not believe my family would wait 7 month to tell I that my grandmother was dead and I can not believe they purposefully lead I to believe she was still alive my father say that she do not want anyone to know she die I swear I sorta think this pain is bad then the pain he my rapist cause I 2 year ago I need some encouraging word I feel like my life is crumble at my very foot and I have no control over it I am cry my freakin eye out why do bad thing always happen to I all at once I miss chelsi and my grandmother r I p grandma I love you and I know you are in a well place tear of sorrow shannah terry,negative,0
hi I do not know if join a support group online will help but I promise my boyfriend I would try and do something to help I move forward with thing I learn that my good friend have brain cancer 3year ago he die last february and I was unable to go to the funeral alex and I meet at high school and quickly just click I could look at he and I know what he was think and vice versa when one of my friend bail on a trip to the uk with I he replace she and since then we were pretty inseparable when we were together I feel as if we were in a bubble just we now I feel as if a part of I is miss and I wish that I have been the one with the tumour I feel I can not move on and I am suffer from panic attack I think I just need someone I can talk to who can understand I and do not make I feel as if I am overreact so I guess that is why I am here hope to get at least one answer that would be great,negative,0
I post on here recently but this just show how quickly thing can change with heart transplantee zoe we speak to in our last transplant clinic today we were tell she is being send home to die this is what happen we see she in october in clinic she was fine we were chat to she today we ve been tell she is being send home to die she have been transplant 4 year ago she start have problem at first they think it was her pace maker now we know its cause by antibody attack her organ and although orginally list for another transplant due to being just 20 year old it have now been change as her organ are fail and the doctor think that someone wait for their first transplant are more likely to survive so once thing are sort out she is being send home to die with hospice at home support its been a horrible december one friend die of unoperable brain cancer another transplantee die whilst give birth to a daughter leave a young widower,negative,0
I am wonder if anybody else have this exact symptom every so often whether I am anxious or not my mind would go completely blank for a 15 to 30 minute period during this time I am only able to process information with great difficulty everything seem to make no sense whether is come out of my mouth or somebody else I have also notice an increase pressure sensation in my forehead and the bridge of my nose sometimes follow by weakness and severe acid reflux during this period my already weak memory is reduce to rubble this would have to be one of my most unpleasant symptom and it have been increase in frequency over the past few month it is also a very frightening sensation I am very young but am convinced that this maybe somehow relate to some kind of premature dementia or neurological disease I am scared to go to the doctor and learn that this is just another part of my anxiety sometimes I would just prefer the doctor to turn around and tell I I have brain cancer than anxiety thank you in advance,negative,0
emotivesashe among ashesstone upon rutty sandsthe life that you once pocesse have one too many demandslife embrace a gift to manybut with one it dignify a heavy dutywith nothing but despair to offer you plentyseepe into the ground become part of the earthwhy must it be this waywith one that always put other emotive firstcrye for you rage for you yearn for you scream and plead for youis something that is meaninglessi am wonder now if you miss I I am now miss you tooface the truth know nothing go to bring you backi want you here with I for you are the one I needwithout you my future is uncertain and not at all intactyou will be miss my dear friendbut if my emotive could bring you backyoud be able to keep return back into the safety of my arm until the very end this is to jasper who was one of my dearest and most close friend he was like a brother to I and he die of brain cancer at the age of 16 I do not know how to deal with his death but write and dedicate a poem to he is something that I feel I must do I hope that wherever he is he is no more in pain r I p jasper may 11th 1994 sept 21 2010,negative,0
I realize it may be work from a stress anxiety reduction point and not at the neurological root but about four joint a day are keep the tic down to about maybe one every day or so and then it is a matter of heavy subject matter of inward think thought blaster laugh out loud I use to call they intrusive guilt natured condemn thought feeling is anyone else here willing to step to the plate here and give some result of their experience with help from cannabis with tic and seizure this should be no surprise to some and even now mainstream as many child are get great result with epilepsy and other similar natured problem with cannabis as we have see nationally televise many are afraid to come out of the closet due to prohibition and it is legal consequence I know a lady hold off brain cancer and shrink a tumor with cannabis oil here in indiana and have tell practically noone due to risk not even the doctor and they keep take pic every so often demonstrate a pattern of shrink every strain is different with vary quality and even that differ between people stay safe be educate take charge of our health personally research ask the right people question be honest to you and true to yourself the life you save may be your own disclaimer no I will not provide cannabis or cannabis product only testimonie knowledge and history,neutral,1
feel a little down today my fiance and I are getting marry in november and as I was plan out some of the detail I realize that I do not have many friend anymore after high school my mom was diagnose with brain cancer so I take care of she for almost 3 year she pass away and after that I do not have my original friend anymore been go to college and I feel like I am too old to be try to make friend some people have so many true friend why can not I just have one it is embarrassing to know that my wedding is come up and I will only have one person in my wedding party and that is my fiance sister I feel like a loser and now my anxiety is start to take over how do you make friend I feel like I am a nice person I am a good listener I am funny I feel like I am too old to be go through this any suggestion,negative,0
hello I join this group two day ago I lose my husband ron to brain cancer in 2010 he was 47 year young we were marry 20 year and have two grow child from the outside look in my friend and family see I as being very strong and resilient but in private I weep I ache for he I can not beleive this is my life the hard hit knee to the floor grief of year one have improve the listening for the door at 5 thinking he will be walk through it have subside the horrible nightmare of his final day have ebb what have take its place though is loneliness I miss he my friend start suggest last year that it was time to get out there again I take their advice and wade into the pool of online date ugh my mind and body are ready to move forward my heart however is quite literally break this can not be my life,negative,0
although iih is technichally not a tumor there is no down play the fact that this is a very painful and serious disease which have greatly effect all of we in one way or another yesterday I recieve word that my close friend since high school who have been battele brain cancer since 2001 have un expectedly psse away after year of go through agressive treatment surgery chemo and radiation the cancer come back and paralyze her entire body leave her unable to talk and in unbearable pain she was just 26 year old she have been battele cancer for 10 year and was a single mom leave behind 2 young brother and a 2 year old son ashely have a heart of gold an infectious smile and a fighting spirit her willingness to fight and never give up should be inspiration for we all to never give up and continue to have hope although some day we wake up with kidney stone elevate pressure nausea vommite dizziness ring in our ear or a host of other unpleasant symptom I can at least be thankful that my condition is bengin its survivable for now I give thank that I still have the abilty to see the sun set over the water or the start twinkle in the sky at night at 26 there is so much in this world I want to see and I fear the day when the room darken and I never again am able to enjoy another beautiful sunset or rainbow after a rainstorm kind of put life in perspective and make you thankful for so much just a thought,negative,0
I have a new great great nephew he was bear yesterday on joe bday 8 pound 14 oz and 22 long name jericho why such a name my great niece who have he is my niece dtr my niece who was only 3 yrs young than I and was much more than a niece she was my sister and we were very close we have a 2nd sense about each other and know when the other was extremely stressed or happy w o even see each other she die of brain cancer at the young age of 38 leave this daughter and a son the son live with I half the time as he was finish high school and now live in my garage apt so say that this new baby is a great great nephew do not mean that we are not still a close family I do not even think of she as a great niece only a niece with a beautiful new baby bear on my joe bday what a blessing,positive,2
hi everyone it is been a rough year for I in may I lose my father after being hospitalize for 6 week I also lose 2 cousin a week before and a week after during that time my brother was diagnose with stage 4 brain cancer and he die 3 month after the diagnosis on july 27 this past saturday my wonderful aunt who was like my 2nd mother die too it was also sudden in between all this I guess my body go into shock because I was diagnose with fibromyalgia sjogren disease and lupus I was very sick until recently when the med start to finally do some good all this stuff begin happen in march and since then 2009 have been nothing but h ll for my family and I I know that lose our love one is all a part of living but it seem so unfair for my family to be hit so hard all within a 6 month period I really hope that 2010 is go to be a lot well than this year thank for listen,negative,0
this is really start to frustrate I I have the great friend who have been incredibly supportive to I through my wife 8 month battle with brain cancer and during the last 6 month after her death I am find that when I mention how helpful this web site have been that they all express their concern that it may not be healthy or that I should watch out for problem e g how do I know if people are being honest and so on these friend are important to I and I want they to understand the value of what we all do here they have not judge I in any other way only this one issue I suspect that there concern are cause by what we read or hear on tv about the danger of facebook and other similar site to teenager do anyone else share there feeling about ds with your friend or family do they react in a similar way have anyone come across any article that promote the value of site like this I realize that friend and family do not have a clue about how hard it is to cope with our loss but these friend have been so great and it bother I if they think I am not cope well because of this issue,negative,0
my name is jamie I am a 21 year old brain cancer survivor after my tx in 2007 I triple my weight I lose half of my hearing in both ear I have learn disability I suffer hypothyroidism I have another tumor in my head in 2012 I have multiple surgery in 2011 and I suffer migraine on a daily basis I suffer peripheral neuropathy as a latter result of chemotherapy and radiation and the pain is indescribable all over my body but especially in my foot leg knee and back I suffer horrific migraine on the daily I am only 21 year old it is become hard for I to walk around place without cry with leg pain I would benefit from have a scooter of some sort but feel like society would judge I I would like to find more people deal with pain and hear how they cope with it I would also like to find friend here,negative,0
I m 16 year old how do you deal with friend and even family mother treat you like a baby that is have brain cancer since I was 12 I m tired of feel like an outcast bc of this and also what do you do when your just so sick and tired of fight I m tired of the throwing up and just feel crummy and miss out on my teen life like dance prom football game being with my friend and everything how do you deal with that I just can not take it anyone that is never been depressed and I believe I m start too bc I do not want to go through this noone any advice I m sorry if I sound pathetic I know other have it bad and they probably feel the same but everytime I believe I m get well I get bad again I do not ever get a break,negative,0
I have an 18 yo daughter who is developmentally at 26 mo I love she and I will take care of she for the rest of my life but since my mother die from brain cancer the same think teddy kennedy have two year ago I have find myself very isolated I also have a normal 15 year old son and I have find that people who do not have our situation developmentally disabled child do not have a clue about what our life are like and do not want to it is like they do not want to admit that except for a twist of fate they could be in my position and that is something that they would rather not think about therefore I often find myself alone and without someone to talk to who get it sooooo to make a long story short I am look for other of like mind who get it to share support up and down and just general conversation with for more info on I see my blog http parentingthedevelopmentallydisable blogspot com teresamother of teenager know why animal eat thi young,negative,0
hi I am new to this site I lose my husband to brain cancer six week and two day ago he was diagnose in december and die in march it was a fast aggressive disease I just have my first holiday weekend with my family I think I underestimate how hard it was go to be it was probably hard than his entire disease death and so on I just feel that there was a huge void the entire weekend I have a very supportive family but they all still have their significant other and child include my parent and sibling I feel so alone in my pain I know my family want to help I but I feel so completely isolate in miss my other half we do not have child and I am 31 year old I am not sure how to deal with this I honestly do not even want to put myself in that family situation again because it feel so isolated and painful have anyone go through this,negative,0
its been a while since I have been on here I have some fun day on vacation in the summer I m at a new university now and this first week is really rough so far I have to walk 2 mile to a class yesterday I got lose and there is no ac in the building I feel like I was go to pass out and I panic and have to leave class I m have a very hard time I can not get out of the spacing out and I have anxiety a lot a friend who a counselor think I might have panic disorder while my mom thing my dizziness and such is a physical problem I m kind of at a loss here life is hard right now a friend of mine have brain cancer I have no clue what s happen to I or how to change it and I m stress,negative,0
my husband of almost 26 year who was my high school sweetheart and my soulmate pass of brain cancer may 19 2017 after 17 month aince being diagnose we live in puerto rico when he was diagnose but he pass in miami I consider myself a pretty strong woman but I have been feel very sad and depressed as the anniversary of his pass approach within less than a year I lose tge love of my life and I have to relocate ro florida due to the situation in puerto rico after the hurricane I m surronde by people but have never feel so lonely I cry all the time can not sleep but do not want to be out of bed so I decide with my sister in lawa s help to reach out I decide to a let it outa my husband would not like I to feel this way but I cana t help it and I havena t been able to find anyone that know how I feel,negative,0
I am new here and would like to introduce myself my name is kat I am 38 year old and have been battle vary degree of anxiety hypochondria my entire adult life I have manage to convince myself that I have have everything from brain cancer to lupus to congestive heart failure and I have very fortunately been wrong every time the widespread body pain muscle spasm and fatigue induce by the ongoing anxiety is plenty real though it is plague and or end many of my relationship because no one seem to want to live with someone who is in constant need of reassurance that they are not die I am bless to have close family that are quick with a hug when I need one it have very recently get bad since I give up alcohol after a decade of hard drinking I drink so I could actually have fun and worry less of course I only manage to give myself more to worry about I am here because I am tired and I need to talk with people that simply get it I look forward to share story and hope I can help some of you as well be well,negative,0
virginia and wash d c is expect to get hit with another storm monday night so I will be go to the hospital in the snow what should I bring with I any suggestion will help please everyone keep I in your prayer my husband who have brain cancer will be home by himself while I am go he is home alone all day any way but I still worry when he dose not answer the phone I am go to see if I can not get his friend to check on he that is the only thing I am worried about but I know wayne and I our in god hand and he will take care of both of we thank you all for your support I know this sight have really calm my spirit about have this surgery have any on ever have this surgery with the da vinci robotic I will let you all know how it go,neutral,1
I post the following message a couple day ago in reply to another topic but I want to repost this to start a new topic I lose my wife 4 month ago after a 9 month battle with brain cancer we were true soul mate and we were together all of the time my big problem is that the memory of her last 9 month have been block the 20 year of great memory that I would rather focus on my wife was a vibrant and brilliant person who gradually become like a 3 year old over the 9 month period as her primary care taker though the entire 9 month I have many many depressing memory of what she go through and it is these memory that haunt I she was at home through the entire 9 month so everything in the house bring back these memory I am wonder if other have this experience and if the good memory eventually push away the bad memory I have many great friend and family who are help I get through my grief but I am anxious for the bad memory to subside and I am start to wonder if they ever stop,negative,0
hi you all well I do not see anyone I know so ill introduce myself I m sherry and I have gastric bypass on july 11 2005 I lose 123 pound and do well for a couple yrs then last yr my mom find out she have brain cancer and was in the hospital and a nurce home for almost a yr before she die I live on the go alot of that time and end up gain 50 pound so that is just been so depressed and on new yrs eve it hit I I look terrible in everything I have so dec 29th I start go by the rule of the pouch and walk a mile a day hand weight and in almost 3 week I have drop 23 pound I have not weigh in over a week now but plan to every 2 week I feel well already but I do not want to go back ward so ill be check in here every day if I can just for support,neutral,1
stupid I know I am a mess right now I do not even know where to begin to speak on this forum I just need help and I can not get it from family and friend and my pdoc think I am cure after emdr I do not want to let he down and tell he that I feel like shit tonight I decide to start cut again after over a year of not I can not take the pain I want to die the funny thing is while I was sharpen the knife I really slice the shit out of my finger the plan was to cut somewhere inconspicuous and not to inconvenience since I have live the last year hide my last incision totally upset about the suicide attempt abusive father all of childhood sexual disorderly conduct early teenage year rape 20 hit by a car while ride a bicycle 19 diagnose bipolar 27 miscarriage 30 house flood 33 house fire 33 husband was diagnose with brain cancer 34 attempt suicide 34 discover bipolar was a misdiagnosis diagnose ptsd 35 currently in a psychologically abusive and neglectful marriage,negative,0
hi I do not know if join a support group online will help but I promise my boyfriend I would try and do something to help I move forward with thing I learn that my good friend have brain cancer 3year ago he die last february and I was unable to go to the funeral alex and I meet at high school and quickly just click I could look at he and I know what he was think and vice versa when one of my friend bail on a trip to the uk with I he replace she and since then we were pretty inseparable when we were together I feel as if we were in a bubble just we now I feel as if a part of I is miss and I wish that I have been the one with the tumour I feel I can not move on and I am suffer from panic attack I think I just need someone I can talk to who can understand I and do not make I feel as if I am overreact so I guess that is why I am here I do not know where to start and what to think now,negative,0
I have yet to join this group but I am look for some advice I have been on a weight roller coaster all my life in high school I was the chubby girl but then my senior year I lose all my weight and feel great september of that year my mom was diagnose with brain cancer and all the weight that I lose was put back on because of the stress a couple of year ago I go through another weight loss again feel great about myself but always feel like something was miss I go back to eat a lot now here I am again I want to lose weight my fiance and I are getting marry in july and I do not want to look like a heifer in all my wedding photo I simply want to lose weight and keep it off any suggestion I really think I have a food addiction I do not know what else to do and I am look for some advice I love to hear success story,neutral,1
yesterday I go to a friend funeral with my daughter he die of non operable brain cancer he was only 35 year old I find it hard go because my daughter is a heart transplant patient and will be dead by the time she is 42 she is 20 year old now the reason she will be dead by the time she is 42 is that the long survive heart transplantee is 32 year she have hers when she was 12 it is very rare to be re list for another heart transplant in uk after 10 year post transplant they expect the heart to start to fail as the transplant is a treatment not a cure which a lot of people think that they are once you have a transplant your ok your not it involve a lot medication a lot of hospital visit and an early death I was sit there shake try to hold myself together think this could be we in a few year you can not get life assurance for a transplant which make matter bad we are only just get by we can not save for her funeral there is no money free in need of support,negative,0
two year after lose my husband to brain cancer I was invite to a friend house to have a reading from a medium the need to hear from my husband was so strong that it surpass all fear I have of the pain this evening would cause I I wait anxiously for my turn when the time come my friend excitedly say your up no no I can not do this I can not but I do I walk to the table sit down and watch her open her phone to ron picture when she gesture to she right at about his height and say he s here I lose it the tear do not stop for the next hour whether I beleive what she tell I or not or whether she know thing that no one else could know none of that matter what matter to I was for a brief period of time I allow myself to beleive that I was once again in his presence as unrealistic as this evening was I want to do it again have anyone else feel the need to reach out in this way and is it helpful thank you lori,negative,0
for the past couple of month I have been follow the story of four well just turn five year old hannah garman she have a very rare and aggressive form of brain cancer they give she a few month to live without treatment and nearly a year with treatment she lose her mother to cancer a few year ago now it is she her dad sibling grandparent and other family before christmas she say all she want for christmas were card it end up on the news and the last count she have receive 160 000 card send from all over the country there is a website to follow her care and they have picture of she and her family also the card counting activity at their church I just check the most recent journal entry for she and it was bad the tumor do not respond to treatment and instead it grow today was her last treatment and the family is go to enjoy the time they have leave with she I am include the link in case any of you want to visit the site my heart is just break for she and her family and all the other family who lose the people they love to cancer and other illness but to be so young and have your life take away when it just barely begin is so sad please keep she and her family in your prayer http www caringbridge org cb viewhome do,negative,0
my cancer was bring on by second hand smoking see my dad smoke until I was 16 he have to die from cancer to finally stop and about a year ago I find out I have lung cancer I go in to see if I have pneumonia since it feel like it well they remove the tumor and say evrythe was okay but apparently they do not find the cancer in my lymph node which cause it to spread to my brain it is ironic that my dad die from cancer my cat have cancer my ex fiance have it and now I have it hmm do any of you start out with lung cancer that migrate to your brain,negative,0
my friend rita is in her 80 and she is frail her husband just pass away a week ago they were tell her husband have a brain tumor and cancer please pray for strength for rita through all of this thank you hug,negative,0
so I am sure everyone have hear that we have a reduce risk for cancer because of our miss but we have an increase risk for brain tumor and urinary cancer do not think you d get off that easily do you,neutral,1
I have been a hypochondriac forever I have been convice I have hiv brain tumor lun cancer and now again brain tumor my last obsession lung cancer I have chest pain and lose week of sleep and stress until my boyfreind finally make I go to the er I get an xray do and nothing but this time I recently get dizzy for 2 day only when I would move my head then I get very ill with a sore throat sore neck headache I get over that and then one day wake up with a buzzing in my ear I google this and somehow put togehter that I have a brain tumor since then I have headache and my foot have been tingle nonstop I have no idea if I am make myself feel these symptom but I have make my whole low body tingle for week last time I think I was ill I know I have a problem and I keep try to tell myself ok you have do this 20 time before and you were fine but I keep think what if this time I am really sick all week I have been see brain tumor on tv in my lecture and now I think its a sign I have it for sure I take a nasal steroid pain to help my symptom and it do now I m convinced that I order for the steroid to have work my symptom must have been cause from a brain tumor my symptom do go along with a brain tumor but also 1000 different thing why can not I beleive I m fine and its probably something else the only thing that will make I feel well is if I go get an mri and that will take week should I just try and get over my fear or should I give in and go get all the test do I m sick nd tired of this take over my life and so is my family but I can not get over the fact that maybe it is a brain tumor and I m go to die in 6 month I do not know what symptom are real or I m cause I just wish I was not like this I m in school and its affect my school my relationship I m so terrify its a brain tumor it keep I up all night I have visit over 100 webstie and it just make I feel more and more like I have one why do this happen all the time I do not know what to do anymore,negative,0
hi all well my son go back to the doctor on tuesday to review his lab and the result were not too encouraging ryan is 20 year old and as I have post in the past have been suffer from major fatigue headache dizzyness joint pain sun sensativity fever numbness in his arm and so on he have a positive ra factor positive ana and low testosterone level 297 normal is a minimum of 600 honestly I was so shocked and upset I forgot to have he get a copy of the lab and need to call to do that so I can see the number of the ra and ana our rheumy is most concerned about the low testosterone at this moment he say that could be cause most if not all of his symptom he also state that low testosterone could also be a sign of brain cancer ryan have an mri of his brain about a year ago because of the complaint of headache and such and it come back normal thank goodness I am not very confident in our radiologist here in my town I have not voice this to my son or rheumy because my son was there but I would feel much more relieved if the mri was redo in san antonio ryan was put on a testosterone patch and go back to the rheumy in six month as the rheumy state it is not uncommon for a sibling or child of a person with an autoimmune disease to have a positive ana which I have read as well so we are hope this is a false positive and the testosterone do wonder I am still kind of numb from the appointment as I am sure you all can understand I feel like I have more question now than before we go I realize this is a slow process and it will take time to get the right answer but I just hate that my son is go through this thank for let I vent some how it help just to share this with other who can relate hug mel,negative,0
do not know if anyone else have any advice on cope with side effect of brain tumor if it was not bad enough that my mom have lung cancer and brain tumor now she is suffer side effect like change in personality and behavior do not know if anyone else could relate,negative,0
I am not very good at put thing into word not a good writer but I want to tell you guy what happen today and I hope I can say it the way it feels feel last week at therapy we were talk about my progressive hair loss she tell I to think about gratitude and that I could be lose my hair because I am die of cancer I tell she I wish I was die of cancer I knowa awful thing to say she tell I about work in an building where people were come to get their chemo and they would have to use a share bathroom in the hall and she would frequently encounter they in there being sick from their treatment she suggest I visit a cancer unit to put thing in to perspective and I tell she I could not do it I am already too depressed today I promise to help an old client decorate her christmas tree because she can not reach over her head on the way I stop in a shop I use to go to but have not been to in a couple year when I walk in the proprietor was sit at her counter and she was bald she tell I she have a seizure and they find tumor in her brain and it was cancer she have brain surgery and chemotherapy some of her hair is grow back except where they do the radiation to kill the tumor that were too deep in her brain to operate on when I leave we hug and I just hold onto she I weep for she but she think I was weep for I and she comfort I this woman die of cancer was hold I and comfort mea a,negative,0
I was diagnose with a brain tumor on 8 20 12 it go from my left eye and is push on my brain stem into the right side of my brain it start at the base of my skull infiltrate and deviate the left side of my brain it is 7 5 cm in diameter 2 95 inch across testing have been do and all I need now is blood work and an operation I am hope that come this next week I am stay strong and will keep everyone inform I survive breast cancer in 2010 and they say the brain tumor do not look like a tumor tumor or a cancer tumor I tell they it was an alien grow in my brain,positive,2
my friend daughter 40ish with 4 small child have her2 or inflammatory breast cancer not sure if they are the same thing but it is very aggressive and have already spread to her brain what is the good cancer center for this on the east coast,neutral,1
I have mull over whether to post or not post since I am here you can see I just could not help myself yesterday I go to the doctor for prescription refill I know I would not have go have it not been that the doctor would not refill without a visit so here a brief recap of my last few year of life in late 2007 my mother unexpectedly pass away after only being in the hospital for a week in 2009 my 41 yr old favorite niece pass away from brain cancer leave behind two small child in march 2010 my beloved husband pass away he only live six month after a diagnosis of renal cancer in november 2010 my young brother pass away from cancer he was only 58 in october 2011 my old brother pass away although in poor health it was not expect and finally just this past june my young brother wife was find deceased in their home she was only 58 to add to this list my sister have been treat for stage 3 ovarian cancer during the past couple year and my old brother wife is currently go through chemo for colon cancer the only reason I share all of this is so that you will understand why I am so pissed off at the doctor doctor can not understand why I can not get myself together be vigilant about a health condition that I have and take well care of myself in answer to the question well why do you think you can not move forward and do what you need to do my answer grief reply from doctor yes but you re still here and live really I was give a list of therapist to contact for counseling but I am think I am not the one who need the therapist it just go to show that you have to walk in someone else shoe to truly understand and I know you all do whew I feel well now roxanne,negative,0
I am cry and sad now though I was do fairly well mom die in dece after a10 month struggle with brain cancer what start the tear her pocketbook I have pile of her stuff in my room that I ignore and read rather than deal with I catch sight of the pocket book she carry with her daily the pocketbook she carry to the hospital in march of 07 to begin the battle the pocketbook I bring home to her apartment that day and then home to my house when we have to empty her apartment after she die mom have a pocketbook set up for every occasion this was her daily pocketbook she have one for atlantic city one for her trailer upstate each contain essential for the designate use this have her change purse with her rosary some medal and religious item a scarf fold bag paper where she write money spend record the last week she could write the writing show the change in her brain unclear almost illegible not she write a pen a pad a mirror I think about the last day she use it how I approach open it with guilt the first time I open it like I was invade her space there were other item in it her life areflection of how she live again I am smack with the pain of her loss I wonder if I should keep the rosary for I change religion my sister do not but she already have all mom other rosary I still value the faith she have I have faith too faith she is in heaven a bible verse spin in my head we mourn not as those that have no hope but I still mourn and the tear come I choke on they and feel the knot in my stomach again it make I feel close to she to keep it but it is a sign that I will see she no more until I die I miss she so much,negative,0
ok I have get to say this or I am go to explode this time I do not know if I can be nice or not but I will try there have been alot of thing go on in my life for the last couple of month and I have been share really what s go on with I in my journal but it is time I put it on the board everything that is I have been take away my career my health my relationship the anniversary of my mom suicide and my dad death of lung cancer and brain cancer and also I try to get through radiation treatment and bu god I do it I am sure alot of you are go through the same thing and I am so very sorry if you are I have try my good to keep on put one foot in front of the other whether I want to or not because for I suicide is not an option for I I think it is a very selfish way to stop the thing in my life from happen aftet my mom suceede at suicide last year I say I would never do it or try to again no matter what anyone is go through there is a reason to live the battle I am choose to fight today is the battle for my life and I hope and pray that you choose to do the same so please I do not know how far ytou have to reach down to pull yourself out of that deep dark hole just do it because you are worth it do as my dad use to say put some more grit in your crawl love and peace to all,positive,2
hi everyone doug doudt is a very good friend of my dad he have been battle brain cancer for quite some time however he is now recieve the very good treatment there is and is begin to go in to remission I believe well he is 50 year old he lose both of his parent and his beloved uncle to medical problem he is also a businessman he is start the douglas rice doudt for hope foundation this is a foudation intend to help people and their family who are sturggle with serious health problem and medical bill it is a non profit organization it is in it is baby step right now just start in howard county md he is an extremely caring and generous man he want to help ease the struggle of very ill people by help with medical bill and help family to stay close by the hospital howard co gen to be near their ill love one he intend to make this a nationwide foundation and I want to help he by encourage everyone to spread the word of his foundation since he have actually help my family a lot with other thing and because he is such a nice person here is the link to his article in the howard county times http www explorehoward com news 69345 with foundation cancer patient leave his mark I think this could also be useful if people would like to seek assistance from he or know someone who might benefit from his help,positive,2
well let we see I am 29 and I can not deal with anxiety and I also believe that I have cancer heart disease and probably any other disease if I hear about it too much my mom is a nurse and ever since I was a little kid I would go up to her thinking that I have brain cancer when the little bump was my skull or whenever I get sick I think I was die I have never have any health issue besides the common cold and a bulging disc in my low back I drink on occasion sometimes too much because I isolate my self and prefer to be alone basically my anxiety get so bad that I have develop a case of ocd and continuously check my pulse think that I am have a heart attack even though I run 4 mile and my leg hurt due to the soreness I think I have blood clot I was sit in my apartment watch a movie and feel my nerve twitch in my leg and think it was a clot and immediately feel my chest tighten heart rate rise and tunnel vision set in I grab my key and jump in my car and drive my self to the emergency room when I get there I was still alive and function so there was no physical health issue only mental I sit in my car and cry like a little kid who lose his dog or someone steal his bike I have been tell that spiritual enlightenment may work like meditation or yoga listen to peaceful music or simply keep a positive mindset hypochondria have help I in a way since I am consistently work out and run along with eat a very healthy diet but at the end of the day I feel trap and lose I know there are people out there that live in the prison but I can not seem to make any progress,negative,0
my husband recently move we to a different state for his job our marriage have been a struggle for year but he tell I that we were go to try to work on it I agree to move but now he recently tell I he want a divorce I have no support system in this state but yet he want I to keep the kid in school there we have 2 young boy I have only 8 hour of work where we are currently locate since he move I away from the work I do have I can move home with my mother if I choose but he kid would need to change school again we just move in oct this all come out during a major family tragedy I lose my father to renal cancer in july my brother wife pass away last week at the young age of 30 from glioblastoma brain cancer after a breif fight she was diagnose just before new year I have been with my husband since I was 18 I do not know life without he I do not want this but he refuse to work on thing how do I start over I miss what we have so much just do not know what to do I know I can not force he to change his mind,negative,0
well its been a busy two week go to chicago and have great time w niece get back and ass munch at work block our ds access the new girl abuse it so they take it away from all how first grade so my fat thumb are a typin on my iphone as you may know my bil have been diagnose with brain cancer it is call gliobastoma not good they say he have 12 18 month good case not good news in my book so please pray for he have my review at work and it go well was tell attendance improve and work is great I take about 75 call a day but they say 35 huh but she will not show I the report fishy to I so get this go to wedding in north carolina in two week take 5 day I bleepin deserve it first two day I get my own room second two day shackin up w brother so maybe get some rest today is the fourth anniversary of my brain hemorraghe grateful to be alive but yet they think I can do two people job at work greedy suckersi hope everyone is do well and I miss my finger cross friend much give I a holler martin,positive,2
I apologize if this is lengthy but ia m just really grateful ia ve find a platform full of people who are go to make I feel comfort with what I deal with regularly over the course of the last 4 year ia ve deal with anxiety heavily but up until about a year or so ago ia ve notice that I start get very anxious about my health which have simply not happen before ia ve always been a healthy person throughout my teen year ia m about to turn 20 now so it surprise I why this suddenly come up but it didna t start get unbearable up until the last few month the most minor pain I feel in my body send I into a massive panic on some occasion even make I physically sick this is something thata s take over my life and ia m try everything I can do to lessen it whether that be reassurance from doctor acupuncture and so on but nothing seem like ita s good enough to make I feel like ia m go to be okay to top it off ia m deal with a nasty sinus infection now along with allergy which is send my brain into complete overdrive with thought of I possibly have a serious illness like sinus brain cancer and so on I was wonder if anybody have find some tip or trick that could possibly lessen the anxiety ia m desperate at this point I am young and I shouldna t be feel like ia m literally wither away every single minute of every single day thank you so much,negative,0
I am new and just find this site I lose my dad very unexpectidly on august 30 2008 we find out six week previously that he have cancer on his liver later we find out it start on his right lunge and then spread to his liver and after that find out he have brain cancer a week before he pass they live in upstate ny where I grow up and after join the navy I move around a lot I end up in wisconsin after seperate after find out that there was no cure or hope for the liver cancer mom and I decide it would be good for my daughter and myself to move in with my mom and dad they give he about three to nine month to live and I want my daughter to know what her grandfather was like being the only grandchild I can honestly say she was his favorite of course find out everything over the phone was the hard I have ever endure we do get to surprise he when he get out of the hospital the first time by visit for a week my husband daughter and I all there the good week he have in awhile we all decide together that he was go to fight it he was go to do the chemo and after find out about the brain cancer radiation I get the call in the early morning of august 30 that I need to get to erie pa where they have move due to his cancer because he was go quickly it take I 11 hour to get there I was suppose to move that wednesday there my job was ready to be transfer and we were ready when I get there after have many friend and family pray I get there in time he was out of it on a lot of pain killer which was a god send because he was in a lot of pain the day before his brother sister their spouse my two sister and brother in law and a family friend were there already he leave we 15 minute later after my daughter tell he she love he and I lead in prayer that he be take I stay in erie for two week then return to wisconsin my mom feel it well for I to be with my husband I think I leave to early when my birthday come around it was the first time I really realize I wuoldnt hear from he of course being a december baby along come the rest of the holiday I have to work and my birthday and at the time I was work at jc penney I was stick in the mature men dept and I feel like my heart have been tear out I want to cry when I see any father daughter come in to the store and tell they that they do not know how lucky they are all the holiday were just as bad when my daughter get out picture of they togther she always say he is dead and with jesus it just break my heart know she would not know he as well as she would have if he have been around a bit long other than feel despair over his death I also feel gip we were suppose to have a few more month with he and we do not get they I know he probably would of been in a lot of pain and I know I sound selfish but I just feel like I should of get that time with he sorry I rambele on I just feel like I lose he yesterday my poor husband do not know what to say since he have not been around death I feel lose thank you,negative,0
hello this is my first entry I unfortunately have the experience of loose my father to cancer 9 year ago since then I think I have grow until two year ago I fall into the grip of grief ridden depression nine year ago I was 18 and I seem to bounce back quickly after my father death year past until I was force to deal with the issue and I am glad I have consolidate many issue and work through many issue as well today I respect the delicate nature of emotion and reality and it call for day to day attention my situation today is also very demand my girlfriend of many year is now care for her father who is fight brain cancer I see the situation as grim yet I try to support she the good I can she is very strong and I fear that she will loose herself in this I am have a hard time keep my past experience with loss at bay I find myself very stress and run down the current situation with my girlfriend family is very reminiscent of my father pass there are strong cue and reminder I keep tell myself that I am not the same person I was 9 year ago and that I have learn skill and build a strong personal relationship with my father memory allow I to grow and move forward I guess I am use this discussion board to express myself and find support thank,positive,2
hello I am in need of some advice on how to help raise my two niece their mother have terminal brain cancer and the girl were take away from their father due to substance abuse problem my husband and I are raise the girl on the weekend and my husband old sister is raise they on the weekday the girl are 4 and 2 they have have no sense of discipline except for yell at they my husband and I have been do time out at my house and they are respond well to it but at their other aunt house there is no discipline and no matter what we try to tell she there will never be discipline at her house and by the time the girl get to my house they are act out a lot they have been though so much with being bounce around to a lot of people house while the mother get cancer treatment and the father not being around I know there is no change the other aunt take care of they but is there a way to make thing a little well when they come to my house I feel like I am fight a lose battle help they behave like they should but during the week its like they get set back far and far I would like to have they full time at my house but with my work schedule it is not possible what can I do to help they behave and help they cope with all of the bad sitation around they thank you very much for your help heather,neutral,1
hi everyone I m new to this site and think I d start out by say hello that is been deal with anxiety for a long time now I recently start see a phyciatrist who hardly understand I at all my first visit with he was horrible all he do was ramble on about thing I was have a hard time understand this last visit was even bad I feel like he was make I feel like an idiot so he tell I to try and journal at my first visit and I do so when I bring it to my last appointment he tell I that s not what he mean by journale he say I would like a 3 column journal I feel he was being rude to I and I feel soo stupid then again I always feel stupid I also was go over some of the side effect I was have from when he change my dosage from 50 mg to 100 mg of zoloft I was tell he I was have headache keep in mind I worry about everything and always think there is something wrong so he s like well maybe you should see a nurologist I m like oh great now I might have a brain tumor now or brain cancer what doctor say something like that to their pactient that have horrible anxiety was that his way of help I in a way I m not aware of I m think about switch doctor what do you guy think am I overthinke thing,negative,0
today have been rough for I I can not get my health anxiety under control I constantly think about cancer brain tumor anuresym heart attack and so on on top of it I am 3 month pregnant and every time someone ask about I or the baby I go straight to think something will go wrong either with myself or the baby I just want a break,negative,0
to those who walk this path with I I am so sorry I have not keep up on this board as you all have experience I have been overwhelmed karl is do well he have refuse all chemo since his induction which bring he to remission he have an doctor come over from india and have been take these powder for the last six month karl continue to see his doc and blood work each month while he is virtually neutrapenic sp he is still cancer free at 6 month I keep his house really clean and he eat well and take nap often my health scare yield very little thank god but have a double corneal transplant on my calendar in april I wake up with double and blurred vision acute onset fuchs dystrophy I go to portland and am scheduling transplant now it seem that the bulk of my problem was work 112 hrs a week I have take alone time for I on the beach I have cut down my hour with my other client bob and I get a little help from my new friend ativan yesterday a friend come to I kim 52yrs old she was just diagnose with stage 4 colon liver lung brain cancer she have her first chemo last thursday and want I to walk this with she and take care of she if and when I feel strong enough to pop in for a hello and let you all know that I think of each of you daily wash karl clothe fix food hand he medicine stare out the window drive down the road I remember each day that you were there during a horrible time I want to say thank you love and light wendy,positive,2
hello everyone so basically my hubby and I decide to have a baby we were both live in mexico and almost everyone think it would be well if I stay with my family and have the baby in the you s it have been about 2 month now since I have arrive here and I have been struggle with really bad anxiety I am constantly worry that something horrible will happen while I am away and I will never see he again I have worry about everything from emp to he die in a car accident these thought are affect my daily life and make it quite hard to enjoy anything I also have been deal with hypochondria as well I never use to be as bad as I am now and I am hope this just have to do with the pregnancy I am worried about every little pain and I have everything from brain cancer to pulmonary embolisms just this week I also worry about illness that I could get sometime in the future especially cancer usually just see the word trigger obsessive worry I just feel like I do not have what it take to deal with this I am go to see a therapist but I only have one meeting with she so far I am suppose to go every two week but I really do not see that being enough my hubby try to help out as well but I do not think he can really understand what I am go through I have about two more month here and I would like to enjoy as much of this time as possible do anyone have any advice or word of encouragement I would greatly appreciate it,negative,0
I do not know if there is anything I can do but maybe you guy have some idea here what s go on I have been friend with my good friend for 14 year she have brain cancer when she was 10 year old she is cancer free now as a result her hair never grow back right it is white and very short and thin she is a little over weight because of the medicine she have to take for the rest of her life she have a hard time try to get a good man so she have sex with all of these loser I have her myspace password because she give it to I and she have sooo many man on there and all they do is talk dirty to she they obviously do not want to date her fall in love ect they just want she to go to their house have sex with she and kick she out it was soo hard for I to not say anything to all these guy I mean I am the kind of girl if some guy I do not know talk dirty to I I will hurt they I have tell her time to time why do you go to their house and if they really were interested in you in the right way they would talk you out to dinner or a movie but she just do not listen I am afraid she is go to end up with a disease if she do not already have one and I really do not want to get a phone call that she is harm or dead from meet stranger online at their house please help,negative,0
hey guy my name is linda and I lose the love of my life my husband carmen the father of my 6 child to brain cancer on july 25 of this year its been 2 and a half month personally I feel I have do well we have three year to prepare and he was so sick nope never prepare and now I feel bad than in the begining I m in 2 support group I have hospice counceling come to the house for I and the kid and I also belong to cancercompass website we have a very large supportive family but yet I feel so alone I have been read post on here the past few day and I feel like I do fit somewhere now you all get it and I can see that its update every few hour which is amazing I keep hear this is all normal but I just want to be leave alone thing irratate I that never do before the phone ring ughh people always stop by without call first its like hi I m here so stop what your do and sit and entertain I goshdoesntdoesnt sound like I that sound like a nasty old lady I m 44 I feel like I must every day on the fake smile and swim against the current anyway I thank you all for welcome I here I think ill stay awhile and get comfortable I see some brilliant people here with feeling that I exactly have god bless all of we on this path tounaskedun ask for life linda wife of carman dx 9 5 08 cancer pass 9 25 11,negative,0
so see the surgeon he seem very nice he shove something down my nose to check my cord he explain all the down side of surgery and all the up side he say that they put a beeper monitor on your vocal cord that beep if you dare to even get close to they I ask he about laparoscopy sp surgery and he say he jst go to a conference at harvard and the most renown thyroid surgeon who regin from italy say that there is my damage do by laparoscopic surgery for the thyroid than regular the surgeon say it will be minimally invasive and there will be one long stitch from the inside he is also a plastic surgeon if I can quit smoking this week he want to do it on march 12 if I am willing he just want I to see another endo that work out of the hospital he do and he will call my endo but he want a endo there after the surgery and my endo do not work there he say it will be much more easy to handle after surgery I will have a scar between 1 and 1 1 2 inch he will put I on beta blocker for 10 day before and lug iodine solution he perform 3 thyroid removal a week so as for experience he have it he was recommend to I by my mother neurosurgeon who do her brain anyerium surgurey and my grandmother brain cancer surgery his own daughter have her thyroid remove by he so I have to try and quit smoking before christ I think I may be ready to get this thyroid out now he do say in my case it was a good idea due to the fact I go hypo on a low dose of atds he also say that it will be easy to keep I euthyroid on replacement my level jst have to be good he say and right now they are not bad so back to my endo on march 12 and to his endo on march 4,neutral,1
sometimes it is hard for I to understand how hard the isolation of this disease is for my sister my sister and I are polar opposite I am very shy and quite and she is a very outgoing life of the party type person she and her husband would have party and bbq by the pool almost every weekend I am happy curl up with a book in my recliner after get over the shock of she have aml we have lose my dad 1 1 2 year ago to brain cancer so it really was a shock to find out we would be battle cancer again so quickly and after her 4 week round of induction in isolation we have cry together and joke that god mess up and give the wrong sister this disease the isolation of this disease is effect she more so than the disease and it is complication it is hard for a quite person to understand how someone need social interaction so much but she just do I am not sure how to combat this for she it just do not seem possible due to the nature of the treatment she is try skype and face time but they just are not the same I order she a blanket with picture of all of her child grandchild and family on it to be able to bring with she to the hospital but I am run out of idea to help she deal with this issue any suggestion or comment on how guy have deal with this she have have minimal complication compare to some in this group and she have so far only hit one speed bump but she is so ready to have her life back from read all of the post on here of other who have complete their treatment and are do well it do take some time once treatment was complete to get back to some semblance of normal some it seem have never make it completely back to normal,neutral,1
few week ago she was diagnose with cancer first a brain tumour then it was discover that was a secondary and she have two more in her bowel she is such a lovely lady and lose her hubby to cancer so please remember sheila in your prayer,negative,0
my brother was diagnose with brain cancer last spring and have now come to the end as he is in hospice now I live far away from he in another state I am take care of our mother as she have a inoperable brain tumor which nothing can be do for I to have 2 people my brother and mother to be give such news is devastating to I it seem like I am live in a dream yet I know this is happen the only thing that keep I go is my faith that it is not I who control thing but god do and I must accept that it is god will that this is happen I also am remind that god never give we more than we can bare this is lot for I to bare right now I try to take each day as it come I know in my heart that I must accept what come yet I try to prepare for the enormous pain that is to follow in the week ahead of I I just come through the grieve process of my father who pass away 1 1 2 year ago and now I am about to enter into grieve once again these are indeed sorrowful time in my life right now and I know I can not run away from sorrow that it must be experience in order to find healing I will once again immerse myself into the sorrowful pit of mourning and pray that god will heal I once again as he do for I in my father grief god bless you all who are in the sorrowful garden I join you once again,negative,0
it have been 27 month and one day since my precious daughter take her journey to the other side olivia was 21 day shy of turn 12 she bravely battle brain cancer for over 8 year the last year of her life we both know something was not right her doctor here insist she was fine they put she on anti depressant finally I take she from our homestate of michigan to duke university it was there I was tell a new type of brain tumor was evident only this time there was no cure no treatment I was tell to expect 3 12 month with olivia grace 42 day after being give that news olivia take her journey to the other side she is the very first person I ever love having come from a background of horrible abuse I am so glad I break the mold of abuse it just seem so pathetic though even as I begin to cry in those last day olivia would comfort I remind I to breathe in the light blow out the darkness it will be okay mommy she would say such a special beautiful young lady four day before she pass she awake and tell I they come for I last night who I ask the angel she reply tell I she see the light but do not want to go yet say she have too much to do yet yes we know you have great thing to do in this lifetime the world is a dark place my soul shatter my heart permanently wound and my own existence far too long it have been a rough few week for I I am not sure why but I have learn to question these thing to just go with they olivias site is www caringbridge org mi oliviasgraceif you want to go meet she or listen to a beautiful song on there try to breathe in the light in honor of my princess wendy,negative,0
to be notice as seriously as other illness all phobia are pretty shitty and I have some pet hate and obbsessive tendancie but out of all the phobia I think being scared of get ill and die all the time is kinda a crap feeling and I m tired of the discrimination most do not even want to talk about it I know I sound like the little old woman who take medication all the time and have a runny nose go oh I think its asian flu yno maybe I should call the doc but try being panic all the time vomit I try not to make a habit of this as people start notice check your eye with light look to see if your skin is yellow and believe that you have mark on your face which is similar to dismorphia or whatever its call be a smartass and tell I I m try to get the sympathy vote nope I m just sick of have glandular cancer cluster headache blood clot on the brain cold flu glandular fever brain tumour child brain tumour immune cancer over active thyroid and schizophrenia sound funny sound over the top all sound real to I there s not many who live in this hell neither am I say I suffer from all of those but I am verge on pyschosis because if I see stranger on the street I think they are give I look as if to say you are die or fuck do she have cancer yep sucksand yes I take vit tablet to try and stop my cancer and yes that is have blood test check up and been to the doctor now hmmm 5 6 time and yes I am go crazy but no one save I from this pyschotic hell are they they think I m some attention seek idiot p s the doctor say my gland are swollen but again this is make it bad are you a hypochondriac too,negative,0
new compound shrink skin cancerswednesday sept 2 healthday news an experimental cancer drug that switch off the so call hedgehog pathway beat back tumor in more than half of patient with advanced basal cell carcinoma a type of skin cancer the drug also help a 26 year old man suffer from medulloblastoma the most common form of brain cancer in child we were both pleased and surprised we have hope that we might see response like this but we in no way anticipate that within the context of a phase 1 clinical trial we would see this level of anti tumor activity say dr charles m rudin who author two paper on the finding that appear in the sept 2 online edition of the new england journal of medicine these are the first report in the literature of any hedgehog inhibitor being use clinically phase 1 trial are conduct to look at a drug safety profile and determine the right dose phase 2 and phase 3 trial typically look at effectiveness also exciting however is the fact that the hedgehog pathway have been implicate in other cancer notably colon cancer and ovarian cancer albeit in a different way researcher are go forward to look at the potential of the molecule know as gdc 0449 to treat these type of cancer as a one drug regiman and in combination with other drug for other solid tumor malignancy say rudin who is associate director for clinical research at the sidney kimmel comprehensive cancer center at johns hopkins university in baltimore one expert note that find a compound that might control the hedgehog pathway could have far reach implication these are phase 1 trial so they are quite preliminary but the drug is quite effective in at least a subset of the patient treat say dr andrzej dlugosz author of an accompany editorial and a professor in the department of dermatology at the university of michigan medical school and comprehensive cancer center in ann arbor the reason were so excited is that there are now a large number of cancer that have also been link to abnormality in this pathway include pancreatic colon ovarian and prostate it is quite an impressive list the datum is pretty strong suggest that if you shut down the pathway it can have a pretty profound effect on those tumor cell if it can work in these cancer maybe it can work in other cancer even though the signal there is more complex but another researcher warn that it is premature to get too excited about the result it is great to see something with so much potential but it really is potential say dr clifford perlis director of mohs micrographic surgery and dermatologic surgery at fox chase cancer center in philadelphia however he add there are other company develop hedgehog inhibitor as well so I think people should be pay attention to this the hedgehog gene so name because it was first discover in fly with hair resemble the spike of hedgehog is really important during early embryonic development in pretty much all animal specie from fly to mouse to human and for pretty much every tissue you can imagine explain frederic de sauvage also an author on both paper but remarkably in adult it seem to be mostly turn off de sauvage is vice president of research molecular biology at genentech which develop the molecule and fund the study some 1 million americans get basal cell carcinoma each year it often do not spread but once it have there are no approve treatment medulloblastoma is an aggressive form of brain tumor the first trial enrol 33 individual whose basal cell carcinoma have spread locally or to distant organ half of the participant who have distant metastasis see a reduction in tumor size as do 60 percent of those with locally advanced cancer the rest have either stable or progressive disease after 10 month of follow up but stable in this population may not mean much perlis point out as it is generally a very slow grow cancer the man with medulloblastoma also see a significant shrinkage of his tumor along with vastly improved quality of life but only for two month he later die a third study by some of the same author this one publish online sept 2 in science express discover that treatment with gdc 0449 actually spur another mutation in a gene call smo which cause the brain tumor to become resistant to the drug because the hedgehog pathway do not actually do much in adult side effect were minimal say de sauvage gdc 0449 would likely be use very differently depend on which type of cancer it is target in the case of basal cell carcinoma and medulloblastoma the mutation in the hedgehog pathway really drive the formation of these tumor de sauvage say this molecule inhibit the pathway very specifically and to date we only know of these two type of tumor where the pathway is mutate that mean gdc 0449 is effective on its own but in colon and ovarian cancer he continue the pathway recruit surround cell to promote the cancer in these type of tumor gdc 0449 would have to be combine with other drug more informationthe american academy of dermatology have more on basal cell carcinoma,neutral,1
hi everyone I write in november when I have a spot remove off my face that the derm do not think that need to be remove and two day later ws tell it was before christ I also have agoraphobia and panic disorder they set I wup for mohs which is out of town I try for a month even on medication and could not make it out of town I have not leave my town for 12yr and do not drive alone was houseboubd but make it around my area ok sometimes so I go back to my derm who say it look like a scar let watch it for 3months and see what happen well I have already been to my regular doctor for medication help who make I an appointment with the general sugion here in town I go to he with report and do not tell he about her say watch it well he look at it and say it look like a scar they could have get it all with biopsy come back if anything come up and we will try the cream I ask he about mohs and if he could remove it he say he could but would try crea first my derm have say no to the cream many time she say only hide the surface so I go back to derm last tue I new there was three little white bubble there on top of the pencil eraser size scar from the biosy that have just come back up with a few week before appt out of the whole three month my luck she look and say do you want I to make your appt with the mohs dr in a few week you need to be see by he before you have to have alot of reconstrution work I say no give I a week or two and I will call you back two week prior to my appt I lose my grandmother that I have been take care of and three day after lose my mother in law to brain cancer so it is so much go on plus my anxiety I ask she about the surgeon do it here in town so I could be put alseep she say no because he might not get all the margin I think about go on and call he and let he look at it he have been here for year do remove before christ I do not know the rate of his removal and mine is on my cheek right beside my nose the new place or on cheek two of they the other is a small white bubble sit right above my nostril on my cheek not touch the nose but it scare I I have been want to type on here but been to scared to even sit down and type all this but I am lose it is all I think about or worry how can I ever have this do drive out of town lie to have mohs do I can not even stay in store here when panic hit I have to get in car and race home my heart get up to 175 during panic I picture myself lay there and freak out and leave undone and that s if it can be do there if he say I will need plastic surgery I will have to go over a hour away he will do mohs and then I will go upstairs to plastic so so many what ifs and worry I am scared it is spread it feel like it jump nerve or something and lose an uncle a year ago to brain cancer and a mother in law to lung brain cancer 3 week ago and now a brother in law with lung cancer I am freak it have spread any idea plese let I know I have no idea how I will ever have this do mine is white bubble that was how my first one was they remove just a white spot anyone else like this I have not see picture like it and have anyone return after biopsy thank for the help I will post a new picture of it this week jennifer,negative,0
I am at the hospital after have a crash in my car they think I have a lesion on my front right side of my brain that might be cancerous and could have cause the accident I am go through lot of test to find out what s the cause of all this wish I luck,neutral,1
diagnose with breast cancer in may I just finish 6 round of chemo about 6 week ago I start week 4 of my radiation treatment today my doctor do a routine exam of my thyroid and say it feel enlarge she order a sonogram and discover I have two nodule one the size of a peanut have a fine needle asp and dr say biopsy report say it look cancerous try to wrap my brain around this news have anyone ever experienced have two cancer in such a short time span,neutral,1
source united press international date 20 september 2005 marijuana may spur new brain cellsby steve mitchell washington oct 13 upi scientist say thursday that marijuana appear to promote the development of new brain cell in rat and have anti anxiety and anti depressant effect a finding that could have an impact on the national debate over medical use of the drug other illegal and legal drug include opiate alcohol nicotine and cocaine have been show to suppress the formation of new brain cell when use chronically but marijuanas effect on that process was uncertain now a team lead by xia zhang of the department of psychiatry at the university of saskatchewan in saskatoon may have find evidence the drug spur new brain cell to form in a region of the brain call the hippocampus and this in turn reduce anxiety and depression marijuana appear to be the only illicit drug whose capacity to produce increase neuron is positively correlate with its anti anxiety and anti depressant like effect zhang and colleague write in the november issue of the journal of clinical investigation the paper was post online thursday in the study rat were give injection of hu210 a synthesized version of a cannabinoid chemical find in marijuana twice per day for 10 day zhang tell united press international this would be a high dose of smoke marijuana but he add he is not certain how many equivalent joint it would take or whether patient now use the drug typically would be get this much hu210 although hu210 was inject zhang say there would be no difference if it was obtain by smoke marijuana the rat show evidence of new neuron in the hippocampus dentate gyrus a region of the brain that play a role in develop memory zhang team suspect the new brain cell also might be associate with a reduction in anxiety and depression because previous study have indicate medication use to treat anxiety and depression achieve their effect this way to find out they treat rat with hu210 for 10 day and then test they one month later when place in a new environment the rat were quick to eat their food than rat that do not receive the compound which suggest there was a reduction in anxiety behavior another group of rat treat with hu210 show a reduction in the duration of immobility in a forced swimming test which is an indication the compound have an anti depressant effect ask how he think the finding might impact the debate over use marijuana to treat medical condition zhang say our result indicate cannabinoid could be use for the treatment of anxiety and depression he add that his view is marijuana should be use as alcohol or nicotine note it have been use for treat various disease for year in other country last june the you s supreme court vote 6 3 that the federal ban on marijuana supersede the law of certain state that allow the substance to be use for medicinal purpose such as the treatment of pain nausea in cancer patient and glaucoma eleven state have pass law legalize marijuana use by patient with a doctor approval include california alaska colorado hawaii maine montana nevada oregon vermont and washington the bush administration through the department of justice drug enforcement agency begin conduct raid in california in 2001 on patient use marijuana two of those arrest by the dea angel raich who suffer from brain cancer and diane monson who use the drug to help alleviate chronic back pain sue attorney general john ashcroft request a court order to be allow to grow and smoke marijuana which lead to the supreme court decision paul armentano senior policy analyst with the national organization for the reform of marijuana law tell upi he think the finding would have a positive impact on move forward this debate because it is give a scientific explanation that far support long observe anecdotal evidence and far lend itself to the notion that marijuana unlike so many other prescription drug and control substance appear to have incredibly low toxicity and as a result lack potential harm to the brain that many of these drug have the dea web site however contend that marijuana is a dangerous addictive drug that pose significant health threat to user include cancer and impaired mental function armentano say this is a distortion of what scientific study actually show study in animal indicate marijuana actually may protect against many form of cancer rather than cause the disease he say in addition study in marijuana smoker have find little evidence of cognitive deficit and even when they do the defect disappear if the person stop smoke for 30 day,neutral,1
I was 48 when I get cfs since then I have have many physical and emotional trauma my husband is not supportive and we ve been through many very difficult time we separate once but I was too sick to be on my own health coverage would have been an issue if we divorce my daughter get pregnant at the age of 19 her boyfriend was supportive and they eventually got marry the planning of which was a nightmare none of my family believe in cfs and have all sort of advice for I it is hard to be so sick and have to defend the illness that have take your life as you know it away we move twice cross country move very stressful when we move to our present location I was too sick to get involve in anything so I have no friend I do finally make a friend but two year or so later she was diagnose with brain cancer and die 15 mo later I join a chapter of the red hat society and after six year for no real reason the queen kick I out this happen about 6 week after my friend die now for the medical issue I have back surgery in 2006 the surgeon tell I that surgery could make cfs worse temporarily or permanently then in nov of 2007 I was diagnose with breast cancer I have a mastectomy follow by a tram flap reconstruction that is 8 hour of surgery and a very long recovery in dec of 2008 I have knee surgery then in feb of 2009 I have more surgery to complete the reconstruction of my breast in april I have the last surgery in the series I just have more surgery in april to repair some muscle that were not heal I get sicker with each surgery it is been almost two month and I am still in bed more than out I can pull three weed or vacuum one small section of carpet and I am droop and have to crawl back to bed fortunately I have a golden retriever who know how to help I so now I am 60 and wonder what is age and what is cfs and what is a normal reaction to the medical issue not relate to cfs my hairdresser tell I she see a change in my hair before I was diagnose with breast cancer any thought or experience are appreciate hug,negative,0
my close friend mother was diagnose with lung brain adrenal cancer in february she was give a maximum of 2 year it was a shocking revelation for everyone and it was like a double whammy for myself because my aunt lose her battle with lung lymph node cancer in march after discover she was sick in december I want to help my friend as much as I can but never have word to say as I do not want to sound repetitive or say the common thing like I understand it will be okay and so on I know it will not be okay the tumor are not recede with treatment of the radiation and chemotherapy and there are new one come up as well I wish I could take both of their pain away it is a very sad thing I guess what I am ask is how do I approach a tender situation like this and help deal with the grief that my friend is experience thank you all ahead of time,negative,0
it have been about 14 month I have have up and down this morning I feel genuine fear on top of find my husband dead on the couch 14 month ago 5 week before retirement my sister have cancer in brain and my dog just diagnose with stomach cancer I meet a man I was fall in love with but realize he is pursue multiple relationship as well as live with a woman I retire in march the job force I to get out of bed for the first time today I just cancel exercise class and go back to bed I feel totally despondent and raw anxiety fear last year I think thing would get well now I know well,negative,0
my neurologist who first think and treat for miss have some special test do and discuss they with his buddy they are pretty sure my brainstem lesion is a glioma I am to see a neurosurgeon next week to see if there is a way to do some type of biopsy without stick a needle in it take a piece of tissue would cause something to no long work as the area in question is where our cranial nerve originate that control sight hearing swallow breathing and other stuff I would like to keep work then the follow week I am to see a radiation oncologist for gamma knife when a doc say brain tumor cancer and inoperable all in the same breath it kind of let the air out of you,neutral,1
I am a 21 year old university student and tomorrow is my mom 9th memorial day I was 12 when she die of lung and brain cancer and even though it is been 9 year today I am feel a flood of emotion that I think I have feel behind my mom and I were very close she was my teacher caretaker and good friend I am an only child and my mom have a very turbulent relationship with my dad and on top this all of our relative are in japan so my mom and I rely on each other for everything she was my rock until I was 10 when she become ill will colon cancer at the time I know how severe cancer was but I do not show how sad or scared I was because I do not want my parent and especially my mom to worry that summer I was send away to my grandmother in japan while my mom go through a gruele three month of surgery and chemo luckily the treatment have work and everything was back to normal for the next two year but one day in december of 2004 while visit a family friend in san fransisco my mom become very ill I know something was wrong but being the tough woman that she was she never say anything until come back home the doctor have discover that the cancer have spread to her lung brain and other lymph node it was too late when they discover this and they give she six month to live as a 12 year old I know exactly what was happen but I never shed a tear in front of she the cancer was aggressive and there was not much we could do for she but she want to stay home as much as possible so for about a month or so she have at home care the horrible thing I see and hear are still sear into my memory on day like today I can still hear she scream and cry my name while she slowly lose control of her own body it was so heartbreaking to see she refuse to eat because of the sore in her mouth and struggle to communicate because the cancer was destroy her brain cell each day she was become more and more of a stranger my dad was supportive but he was so helpless and that make I so furious three month after the diagnosis she die in the palliative care unit the last thing she whisper to I at her death bed was that now it was my turn to be the mom and look after the house so I take this to heart and I have been fulfil her wish ever since I was never give the permission to cry or grieve or even speak her name since her death it was just my dad and I leave with no other family member to support we he was always distant from my mom and I so the though of live with basically a stranger was terrify our way of cope was to not speak of this at all and this have continue ever since I never talk to any of my friend about this because I do not want to upset they I feel so alone and depressed but now that I was the mom I become so good at hide the shame guilt and loss if I was not do housework I fill any open time with extra curricular activity so that I do not have to think about it this lead to a self destructive burnout land I in therapy now after a year of therapy I am finally allow myself to grieve and think of she this is the very first memorial day where I am allow myself to be sad and to cry I feel so embarrassed that I am a 21 year old crying for mommy but I think this is something that I prevent myself from do all these year it is finally catch up to I it hard to think of happy time with she because the image of her sickness is still so overwhelming I wish that I have sibling or other family who ve experience this with I since my dad is still unapproachable I am feel so anxious about tomorrow because I want do to something to commemorate she but all I have do in the past year is to ignore the day completely do you have any suggestion of what to do how do you spend your mom memorial day,negative,0
and maybe there is a message in it for all of we when my son was 3 yr old they tell we he have brain cancer and about 2 week to live prepare for the bad we plan his funeral and they would try surgery but if he live he would be blind and a vegetable hold out no hope and one of his doctor actually tell a family member that the good we could ask for would be that he pass away under anesthesia when he was 4 yrs old he have a series of stroke and they tell we he would never walk or climb stair again when he was 5 yrs old they tell we to institutionalize he he would never have a life and if he live at home neither would we besides he would never learn to read count or make a contribution to society when he was 15 yrs old he was diagnose with severe epilepsy when he was 16 yr old last summer he cycle across canada yes 7600 km from vancouver to halifax to raise money for children cancer he personally raise over 50 000 his cause raise 1 2 million dollar tomorrow is andys prom and he is 17 yr old he is graduate from high school with a full grade 12 matriculation he is blind and epileptic but hold down 2 part time job one at mcd and the other at a grocery store he is go to the prom with a friend from cancer camp she is palliative and more than likely would not live to go to her own prom next year he work the 2 part time job all year to raise money to pay for his friend and her mother to fly here from their city halfway across the country he will be wear a white jacket match silver silk vest and tie and black tuxedo pant with shiny shoe he hope the shoe will be comfy so he can dance wheel his date around the dance floor andy love animal with lot of experience have a guide dog he decide to study to be a veterinary assistant next year where there is a will there is a way I am not only proud of he I look to he every day for inspiration if he can do all this I know I can be successful in my gbs journey I just have to share our joy on andys prom with you all here is to all the winner and loser we count here as friend,positive,2
hi I am new to this community I have been go through a rough time lately with many other issue and the infertility is a big issue the issue with our infertility is on my husband side although my age was a concern for the doctor there is absolutly nothing wrong with I I have been through all the test and everything is normal the problem is my hubbys low sperm count and lack of mobility our only hope is ivf we do attempt one ivf cycle back in march of 2007 but it do not work since then both my brother have benn disgnose with cancer one have stage 1 and the other stage 3 both my husband and nephew were on motorcycle accident the late happen last week and have to have this spleen and half his pancreus remove my dad got hurt and have to have sugery my boss have a massive heart attack and die and this week I also find out that a good friend of our have stage 4 brain cancer this have all happen since march my husband is really pressure I to try ivf again but I am just not ready it is hard enough with his pressure let alone people look at I and assume I am the problem I just want to tell everyone that it is not I it is he but I do not out of respect for my husband this last weekend all his family keep do is drop hint about future grandchild ugh it is not my freaking fault is what I want to say to they I take a 6 week leave of absence from work because of all the stress and grieve I have been under lately my hubby do not understand why we can not start another ivf cycle duh my family doctor who have 2 ivf baby tell I it would be a big waste of time and money I guess I am a little bitter because I am the one that have to go through all the treatment when it is not my fault I have been see a theripist and she really want to I talk to my hubby about it because with all the cancer now in our family I am lean toward adoption anyway it feel good to get that out is there anyone here who is in the same situation I could really use your help in deal with this thank,negative,0
I would love some insight and any possible help anyone can offer my mom 68 year old was diagnose with colon cancer last year and after surgery was ok 6 moth later we have move on to metastatic breast cancer as well as brain cancer radiation got rid of all but one tumor she have 12 in her brain her remain tumor is on her right frontal lobe which I am tell is responsible for very little so the good place for it to be her radiation oncologist is go to leave it and see if it also disappear with the latent radiation effect so the breast cancer it is in several different place but not her breast she is on oral chemo xeloda 2 week on 1 week off she is extremely week claim she is always nauseous and is barely eat or drink after go through her pill recently she is five full day behind on her chemo pill she take oxy for pain and is take ativan for her stomach just this monday her radiation doc prescribe marinol to get she off the oxy concern it may be cause her nausea and to increase her appetite it should also calm she and help her sleep which could also get rid of another pill her ambien here the problem she claim she want to live che cry all the time about thing she is worried she will never see again and do not want to miss however she will just do nothing to improve her situation she take the marinol once and do not like the feeling so say she was not take it again my mom and dad and I are very close very close and my kid are also very close with they in fact my 13 year old daughter have been with they in ny all summer for vacation this is all very tough on she my question what if anything can I do to help she or convince she to eat and drink and take her chemo and marinol properly my take is this she have find 2 new lump on her back at this point we do not even know if the chemo would have prevent it because it is not being take properly also the oxy and ativan are zombifye she because she have no food or water in her system to help it process properly I do have a strong medical background and know the odd at this point what can I do if anyone push she she argue with they she is jut so damn stubborn I however am the one person that she will generally listen to without argument so if anyone can talk some sense into she it is I I just do not know what to say to she that have not already been say any thought or insight would be greatly appreciate,negative,0
I lose my father about a month ago to brain and lung cancer now I am back in school and I feel frustrated and depress frustrated in how this diffrent life is extreemly demanding and difficult for I the fact that no one really know what I go through over the summer everyone expect you to act the same as you do last they see you but I just can not be that same person depress because I can not concentrate on my study this is especially difficult for I because I go to school for somthe I love and I just can not concentrate its rip I apart and get bad every day any advice out there,negative,0
my husband die 3 month ago from brain and lung cancer it take he in 6 month we were both in shock with horror we were always together he was always by my side in the end and every minute we enjoy together this was before his diagnosis I feel so angry hurt and confuse since his death I never leave his side till the end for some reason I feel I have no closure with he he was distant from I during his illness I feel destroy between lose he and feel betray by he please help,negative,0
I am really struggle my back and leg pain have now progress into wake up with a dead before midday in addition to that I decide to take some ibuprofen last night before bed and get my bottle of lexapro out instead thank goodness I realize it was lexapro and not ibuprofen before I take it every morning I wake up I want to rush to the emergency room I am not sleep well I keep wake up at all hour stomach in knot I am convinced I have some kind of brain brain stem cancer or some kind of neurological condition my husband is make I mad because he keep tell I there is nothing wrong who can blame he though after all this is the 200th terminal illness I have have I am really struggle with the fact that have anxiety do not make you immune to real illness is this my anxiety or is something really wrong I feel like a hamster who s stick on a wheel with no sign of slow in sight I am in a constant state of fight or flight and I am exhaust,negative,0
I am an almost 40 woman that lose her mother last year will be marry 2 year in august husband is pretty much rebuild my entire home I am loose a good friend to brain cancer at this time and in the past was a domestic abuse victim and my husband and I are both transplant from wv live in wi I have always have some level of anxiety but in the past I work 2 job and have an online and more friend support system my mother and I were never close she was bipolar and even though she try I was the one she take her moment of mania out on I am grateful that I was able to help she be a good grandmother to her only granddaughter grow up I have to also deal with my brother beat I up regularly and he is the only parent to my niece so I worry about her care my father is now single and adjust to being single after 40 yrs of marrage they marry young my husband have have his own childhood turmoil and lose his first wife to complication to spina bifida and I just get he past nightmare we have been marry for 2 yrs this come august have been live together for a little over three year he is the only person other than my parent that I have live with so you figure 18 yrs on my own my anxiety start to increase with the changing of my living situation but until feb of last year I still work 2 job in feb of last year the nursing home I work at close its door then in may my mother pass away and my friend end up with breast cancer 2nd form of cancer that after that clear it go to his brain in april and his wife choose to not let any of his friend be part of the end we also plan a trip down home were my husband was go to be in the same room with my brother for the first time I also go off the birth control pill in late march and know that some of my problem is hormonal my anxiety increase majorly in april and in may it start to decrease during this time I have been work on loose weight and with out the desire to eat well I am down 20 pound just from that time zone and try to get my acid reflux in check right now if I consider the anxiety I have in april beginning of may a 10 close to drive myself to the er or ambulance I would say I am currently a 5 3 I have the tightening of the muscle in my chest area numbness and tingling which seem to be get less my husband is get my on to volunteer at the nursing home he work at real soon I try to walk as much as I can and I come to this support group so that I can learn and communicate my problem just read everything I do last night as I wait for my official email help a lot today was a 3 thank to all the information I was able to read from you guy thank you for have this group and I hope to learn and help other as I get though this new struggle,negative,0
2016 bad year come we come back from holiday to goa have lovely time 3 day later phone call from mk hospital tell we or eld was admit so go to see she she was a heroine addict and have not long get over breast cancer with our help we take she back to look after she and see her 2 child so far so good 6 month later up and whent back to her former life we look but nothing then mk hospital rang and tell we she have cancer of the brain bone liver breast well that was it no hope few week in hospital and we bring she back home with we her kid sister cousin we all help she good we all could and make the most of the time leave she pass august bank holiday plus we have decicide to move house anyway before all this so that was go through we move october nice new house 1 bed wife love it small garden and both come up to retirement anyway then bang wife slip of sofa and bang her head on wall so of to a e scan couple day in hospital then to see consultant who tell we I 2 daughter and wife that she have brain long cancer and not a lot there could do but make she comfortable and she throw everything into do house new kitchen bathroom furniture and so on and make all her own funeral arrangement we talk for hour about what I should do afetwrward she pass dec28 then one week later my daughter turn up with a puppy for I mum say this will keep you busy and company that is where I am now lonely but have 7 grandchild one always stay weekend so it is I in the corner bubble or among the most of it go to be hard but have lot of support plus have to keep eye on my daughter as well so we all look out forr each other plus we are all go to corfu in august my wife wish hat my story just day by day mick,neutral,1
my 5 week old daughter die from this brain tumor 12 12 08 cancer do not run in my family or my husband we do some genetic testing what we could with some of the tumor tissue I know it have almost been a year but I was wonder if anyone have have a child diagnose with medulloblastoma and have surgery and survive if they give you any answer as to what cause the tumor I just do not know how my baby end up with cancer,negative,0
although I am new to the group I am however not new to the ache pain fatigue and so on of fibro it have been a long arduous road to get a fibro diagnosis I would like to give you the short story of the very long road to the diagnosis and would appreciate your input 7 year ago I begin to seek help treatment for chronic fatigue ache pain numbness and burn in foot up to this point I was a race walker and was send the last of our 6 child off to college my initial diagnosis was depression due to impend empty nest syndrome yeah I know I know what kind of diagnosis is that after a year I seek another doctor who seem a little more interested treat the numbness and burn with lyrica and continue the antidepressant med within a year I was send to a rheumatologist this is where thing get interesting after some testing the rheumie say I have lupu I begin methotrexate and plaquenil after several month I begin get treatment for ra infusion I speak with the md about it and he state that I do indeed also have ra for the past 4 year I have been receive infusion and take the monthly med for lupus and ra I constantly complain that I never feel any well and let I tell you those infusion are thousand of dollar per treatment I seek the advice of a disability lawyer who feel I have an excellent case but I have been deny 4 time now come the complicated part 2 year ago my son was diagnose with brain cancer have two brain surgery 12 round of chemo and radiation but through his ordeal I lose my insurance and therby quit see my rheumie although I continue with the med through a patient assistance program still never feel any well but chalk it up to the stress of cancer ridden child he is 24 but still one of my baby go to a new rheumie just last month who do all the normal test the result that come back have baffle I to no end the test come back that I do in fact not have lupu what and my ana show zero for ra what but I do receive the diagnosis for fibro and cfs I mean how do that happen I go back for my 3rd appt in a few week and will ask all the question I was too stunned and in pain to ask at the last appt I do ask he if that is the reason why I never feel like I was get well he of course say yes make I wonder now if I could get approve for disability now I have so many question for you all but will save that for another post,negative,0
the holiday are hard and this year even though it is go on 3 year was hard than the first 2 christmas day 2012 at 11 30 am I have to call the ambulance and it was the last time my hubby was home before pass january 23rd 2013 on christmas eve this year my dad after having have an mri the day before was diagnose with a cancerous brain tumour he is a few month short of 82 and I fully understand that his passing would be part of the circle of life but to have a tumour that have been have he experience headache and make physical change appear to his face already is not a good thing he suffer thank in advance a few year back so already his health is fragile I know that one day I will lose he as well but it is is this bully name cancer I am have issue with,negative,0
my dad was diagnose with lung cancer which have already spread to his brain bone by the time we find out he currently finish radiation for the tumor in the brain and just last week start on tarceva he have a hard time walk and use a walker he do not seem to have any strength in his leg he need assistance get up from a chair or when go up down a few stair have anyone go through this themselves or deal with a love one that have have this same problem,negative,0
hi everyone I guess I am quite a pest but I get an answer to my previous question and do answer back but now I have another question my nerve are so bad right now that I do not know whether I am come or go I write on another post that my husband who is 60 have stage 1v lung cancer he is have brain surgery when it metastisize sp to his brain and is cancer free there but still have the tumor in his lung it will be 2 year in march and after all the chemo and radiation he forget more readilly he was take ativan to calm he down when he can not breathe but I find out today he as forget how many he was take so I go to his radiation oncologist with no appointment anything for my husband he ask I all type of question because bob never say much when he go in for his treatment and I say I do not think he is ever really accept it although he have fight with all his heart god bless he he think he was depress which I already know and put he on paxil he take a pill today but our pulmonologist have he on prednisone which seem to help the cough I am not sure about the 2 together although our oncologist do have his record he is been sleep all evening and I look at he to see if he is breathe ok this is a good thing because he have not been able to sleep however I am worried the doctor say he would sleep with the paxil but this is so fast should I just let thing alone for a few day h,negative,0
I m take citalopram 20 mg and its give I bad side effect I m get very jittery when I m sleep have palpitation and last night I was have a dream that I was watch tv and it explode and I wake up all startled with a giant headache this worry I because my dad have these brain explosion just before he was diagnose with lung cancer that have spread to his brain that is only been take they for 2 day so far not sure whether to keep on or give it a break and see if it help any advice appreciate,neutral,1
my husband just die of brain cancer 2 month ago I m 27 year old and I have a 2 year old son I try so hard to be strong for my son so I mask my grief until he go to bed that s not easy for I but I m pretty much all my son have now and if I cry he cry but I do not feel like I m grieve right if that make any sense at first I surround myself with his stuff every second I get by myself and I cry and read his letter and look at pic it was miserable so I start try to avoid it because it feel like too much to take I think I was get well for a couple of week and then it just hit I hard than it do the first time I just do not what to do I can not live spend every free minute I have cry and make myself miserable but I can not just ignore my pain either I want to get it out but its just too painful to face and my son cry for his dada that he will never see again what do I tell he I do not know I just want to say and do the right thing for he,negative,0
my 13 year old disclose her abuse in late june after her grandfather pass she have start cut and the week her grandpa die very suddenly from a short battle with stage 4 brain cancer our cat get its leg maul by a coyote her brother and I were cry and she say I do not understand why you are all so upset about a cat or bap die people die her old brother is 18 and snap what the hell is wrong with you I feel in that moment that something was seriously not right with she a few day later she disclose her trauma therapist say that she is very composed very well put together she can describe the fact of what happen to she like she would describe a grocery store trip no emotion her feeling are detach she have start sleep during the day and being awake all night despite being on trazedone and prazosin for nightmare she say she can not take the nightmare and feel safe to sleep during the day where she can hear people awake in the house problem is obviously this will not work for her life and do not work for school if anyone have deal with any of this or have any advice please let I know I work in mental health for 15 year and know enough to know that she is compartmentalize and dissociate from the trauma its scary to be so helpless,negative,0
I am approach the 8 month mark and am still extremely challenge by my inability to focus for a sustained period of time my mind is still all over the place and I am just not capable of do anything that require ongoing and sustained focus I can manage with day to day thing the functional thing of life and that is progress because initially that was an impossibility for I but get beyond that is challenge probably what frustrate I the most is a my inability to focus enough to read reading have always been an integral part of I I love nothing more than getting lose in a good book well that was until my husband diagnosis of brain cancer since then I have been incapable of read anything long than a newspaper article when I try I go through the motion seemingly read but after three or four page I realise that nothing have been absorb and I have nothing more than a superficial understanding of what I have read I am a specialist literacy teacher who teach other teacher to help student make meaning from text ironic is not it I obviously have not been able to return to work and am currently on compassionate leave hopefully one day my ability to read will return much more than that I have lose one of the other joy passion in my life and feel at sea with the whole issue how many other have experience a similar issue at what stage along the path are you debbie,negative,0
I do not believe that I have ever post on this site I occasionally comment on the widow and widower site and read comment on this one but have not feel the need to post I am interested in what response I am may have to one thing that I struggle to accept here seven year after my husband pass away in late 2007 I lose my mother in 2009 I lose my 41 year old niece to brain cancer in march 2010 I lose my husband and in november 2010 my young brother in 2011 my old brother pass away in 2013 my young brother wife pass away she was my last connection to my brother in 2015 I lose my old brother wife someone who I have grow very close to after my brother death last year I lose my sister now I am the only remain sibling I know god have a plan for all of we although I know we all have to face other loss I struggle so much with god take my entire family away from I and in such a short period of time I look around I and other family are intact or have only suffer one or two loss and I am so alone I am in my mid sixty never imagine that I would be in this situation and would feel so abandon by god I struggle with the big question of why I am just try to understand roxanne,negative,0
this is a different story than most here in october 05 my first husband die of brain cancer we have been divorce for 7 year at that time and have come to be close friend and good co parent to our daughter in fact while he was sick I was one of only a few people he allow to visit the other were the child and his sister I was with he hold his hand when he die since then I have been agonize I have gain weight and really been drink too much on an almost daily basis my problem is that I feel so much guilt guilt first because when we were marry it was not good I actually use to wish that he would die he is 22 year old than I am and I use to secretly hope he would die the other guilt thing is because we become close later after the divorce and because I am the mom of the kid people have been very nice to I almost treat I like the grieve widow he never remarry after I so I guess people do not know what to do with their own grief and memory and they bring they to I I become the keeper of the flame so to speak I am so ashamed that I once wish he away and also that to be honest my grief over his death is more about the shock and suddenness of it plus the thing of really being on my own as regard the kid I feel terrible and I am really punish myself any thought please do not hold back,negative,0
I am at 8 month of lose my wonderful husband to brain cancer instead of it get well it is bad at first I try to keep busy go out with friend and family take class join a women group and a hospice group these thing are fade now as they could not come close to fill the lonely void I feel winter gloom have been the pit I am so lonely and have such a feeling of pointlessness of my life I have no child only step son and family that we were never very close with there is contact but more dutiful than care I am close with my brother and sil but they have a full life and are an hour away I have one close friend here but she is the one to get I out do thing but not one I can be bluesy with and talk to about my feeling and one close friend that I can talk to and do everyday but she is several state away so in a way I am quite alone my husband and I spend all of our time together and he was my soulmate and very good friend I am just lose without he I am get so tired of fight to do thing stay busy and all but if I do not I can fall into depression but even more into anxiety I can not stand to be alone even for a day the anxiety will build and build I am 67 and feel so anxious about a future of 10 to 15 year with nothing but these terrible feeling of loneliness and anxiety I am so tired of it I wake up to it everyday I just do not know how I can keep go and for what why can not we all live into at least our late 70 or 80 with our spouse like most people will do why do it have to be like this I am so tired of it how do all of you cope,negative,0
I am wonder something have anyone else experience major and traumatic loss around the timing of the estrangement I do lose both my adoptive parent before age 40 have 9 month of mom brain cancer which was terminal to prepare but we never really are lose dad unexpectedly 8 year later divorce ini between their loss from an alcoholic abusive man then my son begin to act out and he spend time away as a teen in juvenile center group home and rehab facility much time of teenage year away he have spend month at a time not contact I not answer his phone not return my call but in the past couple year we have grow close and he have been pretty good about keep in touch he is 34 and settle down now my daughter move across the country marry at 18 he was military she move home 3 year later and ever since she move home there was some sort of chaos or drama go on then she find this bf and now have the 2 kid in between I lose my birth sister I have meet only 6 month prior and a cat I have and was very attached to for 13 year raise he from a month old we move I lose my volunteering at our church outreach since we become a one car family it just seem it have been one thing on top of another which have put I in counseling again of course my husband almost die a year and a half ago and then several month later my heart attack and diagnosis of congestive heart failure two near death experience I have wonder about this situation with my ed if it is punishment for a child I was coerce into give up for adoption 32 year ago what do you think I tend to believe god doest work that way but I am begin to wonder now,negative,0
been off med for about 3 week have to wait at least another week for preauthorization from my insurance company I do not function well with out my med been cry and suicidal for a couple week now but thing go from bad to bad a few day ago when my friend 8 yr old daughter lose her 14month battle with stage 4 brain cancer I completely lose it for a few day have not cry much last day or so I was struggle a long time with faith and whether or not I believe in god an heaven finally decide after much thought and research that I have been give too many sign over the last few year to deny he then the next day she die make I start to wonder and think all over again I will not get into it here way too many thing and too deep a subject to start here but I think I have figure out why I am so miserable and depress all the time well aside from the obvious the bipolar and ptsd I have come to the conclusion that I simply see the world for what it is no blinder just the ugly reality the world suck it is dark depress an god most certainly do not create man in his image I hate the world and even though part of I is afraid of death a big part of I welcome the day I can leave this horrid existence I know I have no choice but wonder how will I survive another week or more without med its kill I,negative,0
I am at a very difficult time in my life bad than it have been in a bit I have depression I have eat disorder symptom still though not as bad as it was at one point I self injure cut hair pull head bang scratching and so on have panic attack general anxiety ocd and I am also have really bad suicidal ideation I do not have intimate relationship obviously and I can not do much although I do go to school 4 class 13 credit and I am in a play right now so I guess I am do good although people my age go to school have a job or two go out with friend and have fun all without go insane it seem I still want to not be here aka die though I also have start smoke and sometimes take vicodin and drink so I can just sleep I am sort of lose it I also within the last year lose my aunt to brain cancer and my grandpa on the operating table I just can not seem to get it together so the question is when is it time to really work these thing out and focus all my attention on it I have a psychologist and psychiatrist but thing do not seem to be work it is not enough what should I do when is enough enough,negative,0
my husband of 15 year together for 23 have tell I recently that he no long love I and want a divorce this all come during a very bad time in my life just lose my father this past summer and lose my brother 30 year old wife last week to brain cancer we have 2 small child he refuse to go to counseling with I say we can not fix thing problem is he move we to a different state in october and I do not know if I should stay here with no family or friend or pull the kid out of school for the second time in 4 month and relocate yet again I do not know what the right answer is I also have 2 dog that I could not take with I this will break the kid heart I do not know what life is like without he he have been my family for so long I am so lonely and afraid I have not been able to find work here as of yet and do not know if I could face see he that often if I choose to say he have offer to let I and the boy stay in the house he will pay so I do not have to pull they out of school midway through the year I do not know I just feel like such a failure,negative,0
I recently lose my wife to brain cancer after help she to fight her battle for 9 month I miss she tremendously but I have a lot of good friend who support I for the last year and they have help a lot I could use some advice about the follow my wife and I were very close to 4 or 5 other couple who play golf go to the movie vacation together and in general we have a great time together one month before my wife die the husband of one of the other couple also die his wife and I are both feel awkward about our situation on one hand we have been able to talk to each other about our grief by phone and it have been very helpful we have been together with our friend on a couple occasion movie dinner but we are feel uneasy about meet alone e g for lunch because we are afraid our friend will think we are date or move ahead too quickly when we talk on the phone we are both able to cry and grieve about our spouse in a way that I can not do with any of my guy friend I suspect that we should minimize the occasion we do meet or even talk about our situation but I would appreciate any advice especially if anyone have been in a similar situation we are both around 60 and each of we have grow child and grandkid our family have know each other for year and I suspect that many of our friend and family are expect we to at least eventually see each other to perpetuate our long friendship both of we want to maintain our close tie to the other couple we have enjoy for year and we will probably be pull together from time to time as our friend invite we out as part of the group,negative,0
ok I need support here besides file for bankruptcy the possibility of loose our home and this being the last christmas here my husband start school and we only have one car so I am stick out here in tim buck two mile from anyone my sponsor leave I this week due to an illness so now I have to find a new one I have no money and tomorrow is my baby b day 16 year but because we have only one car she is stay at someone else house so she can do after school activity therefore we have to celebrate she b day today and I have no gift my brother in law and mother in law are in the hospital and we need to go to a wake at the local pub for a good friend who die this week of brain cancer and the will be people that I have a hard time handle emotionally but I need to do this for our friend whose mother die I am feel a bit overwhelmed to say the least ok as my sponsor say let we turn a negative into a positive I am in my home this christmas and was able to decorate it last christmas I was take care of my husband 24 7 after his motorcycle accident and do not decorate at all my husband is go to school and when it is do he should get and good job all my child are healthy my mother in law do not die and there is at least hope the antibiotic will help my brother in law my insurance will pay for a driver to take I to physical therapy and doctor appointment so my husband can go to school I understand since both of my parent have past one so I might be able to give some comfort to one who have lose a love one it still is a hard day but well thank you for let I vent,negative,0
well I write this really long note about how I feel and this computer all of a sudden have to be shut down and all was lose I do not remember all of the note but wonder how people with other responsibility do it while grieve like this maybe it is because you have a support system build in to your family I see mine but we are not close my friend have become more like acquaintance since I was diagnose with brain cancer 11yr ago I no long work and I have live my life sort of like a hermit girl phoebe was all I have really have no one to talk to about the tremendous pain regret of lose my cat pheobe she was 15 she was not sick die but her behaviour have change so much that I know something was wrong I could not afford to have she look at by a vet so I put she down my decision was too quick I do not do it right I have change my mind a couple of time before in the last few month but this time I just have she put down right after throw away anything that remind I of she instead of bury her little body I keep she ashed in an ern I buy yrs ago at a yard sale people tell I that it was wrong to keep the ashe that they probably are not hers anyways or that I should get another cat immediately never go to happen I feel so alone now and cry every day all day long I do not want another pet though is that so wrong how long do one take to slow the grieving down to where it is barable right now it feel like it will go on forever I will be on here again as this is my only support system thank for read kim,negative,0
a prayer for god comfortnevertheless god that comfort those that are cast down comfort us ii corinthians 7 6when my husband jerry was diagnose with inoperable brain cancer back in october 1982 I could not imagine how I would continue to live fear and pain accompany I everywhere even in sleep I was not angry with god I would go on if only I know how but I do not it seem that I was totally helpless and no escape was possible family friend god word prayer phone call visit casseroles book of inspiration hugsa nothing comfort I I almost stop eat rarely sleep never laugh could not read or concentrate on one particular horrific night when jerry was back in the hospital the fear arrive promptly at three of the clock in the morning I actually flee my bedroom to a guest room I curl into a ball and cry out a god give I somethinga or I can not go on a god plant just one word in my pound heart nevertheless eventually I discover it is use in the bible more than two hundred time I figure out that god is not a god of what if but of nevertheless two month later jerry die but the power of a nevertheless livinga get I through I have come to agree with the astonishing statement of gene edwards in his little gem the inward journey a thank you friend pain a father in the name of jesus I pray for life change comfort for anyone who need to hear from you right now by marion bond west,negative,0
hello all my husband pass away from brain cancer in october december was a terrible month because our only daughter 19th birthday was on the 6th what would have been our 25th wedding anniversary was on the 21st and of course christmas and new year eve I was go to change phone plan and I download all of my husband phone information into the computer so we would have all the text from he through the year and so on when I double check to make sure I get everything I find an email account I do not know about and evidence of an affair which occur several year ago woman several week ago someone texte his phone and because I want to let this person know what happen to my husband if he was a friend I texte he back it seem like the person was not forthcoming long story short I texte this person yesterday and ask he to be honest about the nature of their relationship due to my newfound information indicate my husband have some secret turn out this man have been have a sexual relationship with he I am reel I do not know how to grieve and process all of this at the same time I feel like my marriage was a sham I also find a conversation he have with someone where he say our marriage was a struggle the whole time and when our daughter was through college he was go to change it up believe I when I say I really have no idea all of this was go on our marriage do not seem like a bad one and he never tell I he was unhappy also he was at time very difficult to be married to and I was always supportive,negative,0
on november 22nd my dad was give 4 6 month because of brain cancer as of now he is in the hospital with renal failure but hope to come home to die I am 37 and have not have a good relationship with my father in many year he have suffer alcoholism and drug addiction as well as depression all of which severely affect my childhood and my life now my child 21 16 and 9 know he but have never been close in his life because it is dangerous and there are moment I regret this so much anyhow on top of deal with this my step mom is a meth addict she is getting pay by the state to care for my dad and she is not do it my sister is the one who cook and do laundry for he while our step mom is out run around finding and use meth my father know what she is do and he tell we how we can not take it but it have not change now my step mom want to get custody of her 2 young age 3 and 1 grandchild from protective service and raise they 2 of her own kid were ward of the state and my dad is allow this she can not take care of he let alone 2 baby do not the sate require drug testing when apply for custody I do not understand how this happen today I find out that my step mom is sell my dad pain pill and pain patch I just want to lay down and bawl I do not know what to do I am aware that the right and rational thing to do is call the police as well as in home service and report she but in do that it is a possibility my dad would hate I however it is to the point where I can not keep watch my step mom do this to he even if he is accept her addiction and behavior any advice would be greatly appreciate,negative,0
I do realize that everybody experience miss differently and everybody cope differently so I am not try to step on any toe but I think I would share this if I only touch one person that is ok I just feel I should share I am 22 and was just diagnose in february along with the miss I have deal with a tumor on my thyroid kidney failure and almost lose my son when I was pregnant before the health issue I grow up in a horribly abusive home and was adopt when I was 12 I get very very close to my adoptive parent and at 14 my adoptive father die of brain cancer yesterday was the 8 year anniversary of his pass I do deal with depression as a teenager for obvious reason but what I learn through all of it is none of it was my fault I have no control over anything that have happen to I there was no way I could have change it and ask why never is a good question because it never have an answer I have been tell that I am a very strong person but I do have my day where I just want to cry I give myself moment to cry about everything but otherwise I want to live my life the good I can I try to enjoy every minute of every day because there really is no tell how long we have so why spend it being upset over thing we can not control none of we choose to have this disease but we can choose how we cope I choose to treat it and hope it work and be happy in the meantime I also decide to volunteer at a local shelter because it is rewarding work I want to make a difference in someone life and it just feel good I really hope somebody take something away from this there will come a day when research come through for we we just have to be patient,positive,2
I fight the good fight I manage to keep it at bay since late june now though I can tell it is back my wife yell at I about my drug what I am on what I am not on its giant a pain try to explain every little thing to she I usually do not tell she cause she freak out today she was research brain cancer or something because I have a headache that have not go away for a week now she just do not get it second I am in the middle of one of the most stressful situation I have been in my entire life there is an end in sight but that s month off and any nice weather will be go so really I am stick in this rut until spring thirdly thing at my work at not go well I make a move in feb of this year and in june I move back that feb move was a mistake now however the bloom is off the rose so to speak and I am really have a hard time back at my original job not as bad as job number 2 feb to june but still not great my wife always complain we need more money I feel just hammer emotionally I can only make so much my med are expensive my therapy is expensive I am really at the end of my rope I also give up alcohol as self medication,negative,0
I am encourage by the support of outlet like these it really have been difficult try to convince my boyfriend and family that this is a serious issue for I and that I can not just put my concern out of my mind I have deal with family member have serious illness cancer more specifically my entire life all 4 grandparent and an uncle have pass from cancer my mom have stage 4 breast cancer and my dad have have skin cancer recently during a routine exam my doctor find a lump in my breast which in my mind automatically mean that I have breast cancer thankfully after see a specialist it was determined to only be a cyst but from then on I have been obsess about my health I have always been one to overanalyze and have high anxiety about anything health relate I like many other turn to google as soon as I feel a twinge or pang that was unusual do this do not help much and now my fear of fail liver brain tumor cancer and so on have become so overwhelming that I focus on it constantly I have look into anxiety disorder and since depression anxiety run in my family as well I want to talk to a doctor about a course of treatment since the anxiety is now become such a problem it have seem especially bad within the last few month and I want to make sure that I figure out a way to calm my anxiety before it far impact my health or the health of my relationship have anyone else see a sudden onset of hypochondria such as this after a potentially traumatic situation do it tend to flare up more during unusually stressful time in your life just look for some general experience from other,negative,0
I hate cancer my cousin die from a brain tumor before christmas last year my aunt die from cancer all over right before christmas last year and now a friend of mine is die from cancer and have two week to live my friend is only 52 I wonder why do some people have to leave so early and other live to be very old I know it sound stupid to hate cancer but here in the midw people are die at young age there are some day where most of the obituary are people who have fight a brave battle from cancer and die anywhere from age 26 to 55 it scare I I just need to vent,negative,0
I have join this community today because I was look for a grief group session in my neighborhood but could not find one that meet outside of my work time my grief is get bad insead of well as time go on back in may on my wedding anniversary my father after being hospitalize for nearly 3 month pass away after the hospital put he through a multitude of horror I believe they ultimately kill he before his time was up due to their carelessness and one medical problem on top of another a few day before my father pass away a cousin of mine in her mid 40 pass away and a week after my father funeral another cousin also in her 40 pass away from a massive coronary and a stroke as if this was not enough during the time my father was in the hospital my baby brother 49 year old collapse in my father hospital room and was diagnose with stage 4 brain cancer and have surgery the follow day he die 3 and a half month later on july 30 2009 I watch he slowly wither away I miss my father and brother so much but also find myself feel scared that I could be next I feel physically ill I hurt every where and I am unable to sleep much anyway as I say I think I was suppose to start feel well as time go on but this do not appear to be what is happen at least not so far for I I think I could feel well if I could cry more but I think I am suppose to be at the stage where I should have move on by now at least in everyone else eye I have always have to be so strong and well I just do not feel very strong right now,negative,0
yesterday was a bit of a rough day my boyfriend and I are both stress because of final end the semester we kind of argue yesterday which is something we almost never use to do we ve been together almost a year and a half now he is struggle with depression for a long time and I have finally convince he to try therapy and reach out for further help I have have to hear he say he wish he were dead which is upsetting to hear from the one you love most I also have a friend who is deal with possible brain cancer and surgery after we argue we go to hang out with our friend deal with health problem well call he te ted focus a lot of our conversation on our old highschool we all go to and all the horrible trouble there was small private school I notice that after a while I feel more and more space out I am always deal with depersonalization but this was a time where I was more scared about it I just feel like nothing in my life can go right and I can not be happy I have high hope for this summer though I would not have any school responsibility just my part time job I feel so disconnected from life any advice on deal with disconnection depersonalization,negative,0
how do you handle loneliness my husband is a workaholic so I am alone most of the time I have no friend and no family nearby I watch tv movie on dvd read play game on my laptop and I do have two dog but I was always a very sociable person I am a people person and now I have no people I have three grown kid who are busy with career and kid they call but it is a temporary fix we ve live here for 11 year and the one friend I make die of brain cancer 2 year ago it is hard to make friend when you can not do the thing where you meet people my husband recently tell I that we are now roommate and he is my caretaker lovely forty two year of pray and hope we would somehow become a truly loving couple down the drain in one sentence I feel like the last 42 year were waste and the future is look very grim I spend almost all my time in bed we live in an area where the house are all on 2 acre lot so the near neighbor is not very near we were tell that this was a friendly neighborhood by the realtor she lie but then a realtor in westchester ny tell I they rarely need ac with a sweat bead hang off her nose any help or idea is greatly appreciate,neutral,1
I just join this community I lose my father in sept 2006 he was diagnose with brain cancer in june 2006 and pass away 3 month to the day he was a very strong man and I never think that I would have to live the rest of my life without my daddy I still can not believe that he is go I do have a very hard time walk into the house that he share with my mother I can not stay there for a long period of time because the day he die keep flood back to I I just do not know how to handle the feeling that I am feel my daddy use to always take care of I and now I feel like I have no one to take care of I I feel like I am all alone in the world I still have my mom and my sister but I never would have think that my life would have been change so drastically so quick I feel like I have been live a dream for the last 6 month and that he is sit there in his chair when I walk in that is when it hit again that he is not here I know that he is watch over I and will always be with I but I still miss he with all of my heart,negative,0
I am try hard to cope with my feeling right now a lot have happen I leave an abusive relationship live with a friend from dailystrength and finally am lose my sister to brain cancer I have to travel 6 hour to be with she and she is go to die on my drive home today I get those mixed emotion on what do I do wrong in my relationship for he to have internet affair why do I have to talk about he so much I also have to get something do with he contact I all the time and that end about the time I was in icu with my sister then on my drive home I start feel sad and alone I want what never was he was a fake I want to hear he say that he was sorry about my sister I want somebody to simply care it is a myth man like he who have affair and make the woman pay the bill they never care why am I do this I read where I need to focus on change I and I am try so hard try to get a job in this new town because if I do not my vehicle will be go I feel like I am such a failure and about to lose my vehicle if I do not get my act together I wonder when the hurt will ever end I wonder why he pop up in my mind today and why I feel so alone I will be say goodbye to my sister soon and it was a very very long week with she I know people get tired of hear my word but I am so lose right now I truly am,negative,0
so I start have pain in my left before midday yesterday it was off and on but wake I up at 4 am I call the doctor and am go in to see she at 2 15 today my normal pcp is not in today but I really like this doctor and would like to ask she some question about what is go on with I I am forget thing like yesterday I make an egg and forget to put the egg back in the fridge I forget thing a lot sometimes I feel like I struggle for the right word or forget phone number I am worried I have something really wrong with I like brain cancer I have extreme anxiety and I know that probably play a part I have pain in my joint and bursitis in my heel I really feel like I am fall apart I am about ready to take the lexapro my pcp prescribe for I I have been so afraid to take it but thing can not go on like this the endocrinologist that the ent suggest I could see if I want to still have not call I back and it is been at least two week I do not know if this is the hypo stuff of fibromyalgia I know I have been tell on here that people with hypo can be diagnose with fibro I get a heart monitor yesterday that I have to wear for 30 day I have to call in sick to work today because I have not sleep my pcp would not start I on medcation for hypo because he say my thyroid is still fluctuate too much and was in the normal range from the last bloodwork any advice on thing I can ask the doctor I am see today or what I should do I can not find another endo that do not have a waiting list and am have trouble find a holistic doctor maybe I should just start the lexapro and see if it work,negative,0
happy birthday kevin our son grandson turn 20 tomorrow and we will celebrate the teen year pass we will also celebrate his life which have been difficult from the start he was bear at 2lbs 9 oz and not give many chance to survive he do though and through the first year of his life he grow while his mother our daughter slowly succumb to brain cancer he go through a lot of abuse when his bio dad remarry a mentally ill woman who abuse he mostly emotional she feed he hot sauce if he do not eat and then lock he in his room all night w o food he lose 20 of his body weight in a year he obediently take the mineral oil she give he prior to our fight for court order visit so she could report to pediatrician that he have diarhea from our visit he endure she tell he his bio mother do not exist there is no heaven and we were bad the only parent he know in his young life he have a form of spina bifida that cause chronic back pain he have endure 8 ear surgery because step mom refuse to give antibiotic for frequent infection and lose 70 of his hearing in one ear he is extremely intelligent talented and he is our son the bond we three have form can not be erase we lose a lot financially and put aside our retirement but there are absolutely no regret happy birthday kevin we love you,negative,0
hi I am new to the group my primary diagnosis is cfs but as everyone know it often go hand in hand with fm and it do with I my story is a long one and I am sure with time I will tell more of it suffice it to say right now that I have have this thing since 93 and since that time a lot have happen to I physically and psycologically I have have drug reaction that cause sudden onset ocd under control now thank to intensive cognitive behavioral work at duke 5 different surgery I figure I am almost empty now I have move 4 time and am being force to move yet again and probably most significant I am now a widow after take care of my husband with brain cancer for three year 01 04 it have been over three year since he die and I feel like I am finally get my head together the body do not seem to be followinig suit however but today I take the step to reach out again it have been a long time since I have been active in any group for support I was too concentrated on help my husband and ignore my health for well almost 6 year now it is time to try to get myself back together and on a well track and I need help I hope this group will allow I to help in turn other that struggle through this crazy illness and crazy life that go with it,positive,2
anyone out there have any word of wisdom I lose my father to brain and lung cancer about a month and a half ago and I feel like shitt I have been really depressed and frustrate for the past month unable to sleep barely able to get out of bed in the morning I am always think about every that happen in the past couple of month it just happend so fast being back at school is not help either its hard to talk about it even to my close friend it seem that people my age just do not know how to react to that conversation it just get really awkward and that is so frustrating help out there,negative,0
heloo all I am crohns patient since 2001 I have been treat bu steroid asacol and imuran and have surgery and lot of fistula for the last year and I am 28 now now I start humira 6 month a go and do very good and no pain and energy my quation is am so worried about the side effecte it seem scary and it a dangerous medication it can couse cancer brain damage and sometimes death I am worried how is your thought on this can we carry on risk our life am so confused,negative,0
what is cancer and why do it exist just to bring pain and suffering to the person it strike and their love one around they I have lose way to many people to this deice and I for one am tired of hear the word cancer I am tired of I and my family being hurt by cancer I want to fight for a cure so no one else have to suffer the pain or lose why am I write this now well this morning my cousin lose her life to cancer brain to be exact and I am tired so tired and so sad I want to fight so other people will not suffer but I am one person so how how can I do this I have herd of shave my head which I have always want to do but my hair is not long enough and have been die to many time I have hear of the relay of life and really want to do it but do not have a sweet clue how to,negative,0
hi to all of you I just join the group it is nice to find a group for brain tumor online because here in dubai all the exisitng support group are for breast cancer and ovary cancer only I just want to speak to some people who go throught the same and together we can give each other support I was diagnose with a brain tumor the size of a fist this january it is a oligoastracytoma and it is grade 3 cancer I have a brain surgery where they remove part of the tumor and I am currently undergo chemo and radio therapy I love life and I am convinced that I will be heal totally one day would love to speak to you heidi,positive,2
dear all I m 60 year old I was diagnose with small cell lung cancer in 2001 with brain metastasis after one year consume preventa 105 deuterium deplete water www preventa org my lung cancer and the metastasis was completly disappear I m cancer free 6 year ago of course I do in every year a two month preventa cure maria,positive,2
my mom is show all sort of personality and physical change she sometimes have a hard time focus on one subject and lose word she have cancer and the radiation may have cause some brain damage her physical state although cancer free now is deteriorate but she is still well enough to take care of herself for the most part she can still live alone and go shop and be independent but she is get weak and can not clean her house as well as she use to either that or she do not care anymore and want we to do it for she she have a strongly develop ability to turn family member against each other by tattle on her adult child and grandchild who go far out of their way to help she in her eye no one do anything right and she use this to lay guilt trip and get other to step in and do it right most of we are on the verge of say then hire some help because were not go to do it anymore we do not know if she is develop dementia or if it is the radiation when we take she for doctor visit she act completely normal around they and they do not believe we when we tell they that she is practically incoherent half the time I do convince her cancer doctor to do a brain scan and he find nothing wrong I would love to hear from anyone else with a similar issue as to what this may be and how you deal with it thank,neutral,1
my dad remarry about 10 year ago when I was 15 my mom have die 9 month before after a long battle with brain cancer his new wife was a co worker who help he my dad new wife immediately come in and start criticize my mom redecorate the house and constantly nit pick I my hair my clothe and so on I was a nerdy kid who like reading write short story and was in the band she read one of my short story that was publish in the high school literary magazine and start tell I what was wrong with it I go along with the wedding something my dad keep bring up any time I say I have issue with his wife and even edit together a wedding video for they her response was a huff and say that I should rethink what I want to do for a living working as a film editor the bad is the bashing of my mom she criticize what she let I do as a kid how she raise I and decision she make in the course of her cancer treatment my dad just sit there and ignore she when she go on these rant he say nothing but he is not even listen he tune she out my dad whole life now revolve around his new wife two kid and the step grandkid who have live with they at various time when I call that is all he talk about my dad is not a bad guy he volunteer at his church he is practically raise his step grandkid but he let his wife bully he I have no relationship with my dad and I do not think his wife will let I it was sort of work that I would visit he if his wife was not around but now he would not see I if she is not there I ask he if he want to go visit my mom grave on the anniversary of her death it is next week and he say he have other plan step granddaughter have a ballet recital and it is a five hour drive I can not stop cry I do not know what to do,negative,0
hello there I am let you all know up front that I am let you down today I can not think of one joke nor have any store right now I am sorry for this error on my part I will you can trust make up for this flaw in the morning musing I have a pretty moderate pain level day yesterday yeahhhhhh I hope you have a good day also I discover something I find interesting I was clean out the freezer and find a turkey that was not go to last too much long so I decide to cook it with mashed potato and gravy the family was not so impressed as on thanksgive it was good but not great do the holiday add to the flavor or do turkey only taste good if it is stuff and serve with cranberry sauce soup salad bean and more food than many village in upper mongolia eat in a week I have have some sad news concern one of my life long friend background from about 3rd grade on I have been good friend with 6 guy through the year we all get marry and our group grow to 14 good friend then the kid come I am friend sister aunt to they and their family and they are the same to my family it is an interesting and amazing thing as of today there are 9 of the 14 adult leave my friend chuck lose his 4 year battle with brain cancer 2 year ago and we put he to rest on monday his wife cath learn that she have cancer of the everything 2 year possibly with chemo possibly 6 month without she have a big decision to make and her family take another blow so soon her child are 27 and 30 but they are still her kid and she have a 3 month old grand daughter that have been bring joy into her life again life can really bite the big one sometimes anyway since I am out of joke today you will either have to talk among yourself or send I one to share with you I hope you have a wonderful day today and find 100 reason to smile lot of love,neutral,1
do anyone have experience with their love one lung cancer spread to brain the oncologist say a few month at good for survival but I am try to understand what we really have and what is it like for they my father cancer have spread and we just want to keep he in as little pain as possible and give he a quality end to his life any suggestion thank you wendy,neutral,1
my mother in law was diagnose with breast cancer approximately five year ago she currently is being treat for breast cancer that have spread to the lung and brain she also just learn that there are cancer cell float in the spinal fluid and have been build up in the low spinal area cause she to lose the ability to walk on her own as well as tremendous pain apparently her future is inevitable that she will eventually lose the battle to cancer but she is simply amazing she have remain positive and strong through all the treatment and give this cancer a real fight she is now in the hospital for pain management and receive radiation do anyone have any positive feedback of any sort that I can lend out to the family I am try to be a positive support for they so they can be strong for she but it is get tough especially since I am not ready to lose she either,negative,0
this year have been a very trying time for I I lose my only brother at the young age of 60 to brain cancer while try to comfort my mother in her grief and and yet still manage to deal with my own grief yet also maintain my mother heath on a daily basis if some of you here believe that faith do not play an role in our life each day then look again it could be lose a job and not know where the next one will come you still need faith in order to believe that you will find another job just around the corner faith always play a role in my life why having suffer so many loss of family who by the way were very close and love not some distant relative whom I never see but twice a year family I share everyday of my life with not with just pass phone call each day but spend hour and year together bond and love one another I am say those thing not to bring any of you to a place of regret or shame or guilt by compare my life with your everyone live out their life accord to their belief until one day they discover something new in themselves that they never see before that could change the way they view the world my view of the world have change many time in my lifetime when it change I change along with it those of we who are care for our love one at home know a little about faith get through that difficult moment when we think that we can not get pass any give task with our love one and just that moment suddenly our love one get the strength to over come that obstacle that stand in the way all because we say yes you and I can do this together think I would share with you my thought in how I get through the day yes I am go to say it god bless,negative,0
my mom whom I love dearly was live in az when I was dignose with ih she have just recently move back to ky I can not seem to get she to look at whatever it is you have as she say as a real problem and not just a headache she is a very loving woman maybe it have to so with the fact that 15 year ago we lose my young brother to brain cancer he have a tumor a little while ago while sit here at work I get so sick to my stomach I think I was go to have to make a trip to the restroom I send she a text explae to she how I feel she reply but you do not take that pill today refer to diamox so I tell she that its not the pill that make I sick like this so then she send back you re not pregnant so stop it ugh I give up for an hour today I read off endless info to she about ih so what take she to my neuro with I I do not know anymore she have not see I like this before because since she have been back I have been ok I have a spinal tap do and that mix with diamox keep the fluid down for a good while I have been healthy untill the past month of so I guess I am just tired of try to get she to understand this is not just something I can take tylenol for I would never wish she to feel this so I can not say of she only spend one day in my body that would she cruel I do not know I guess I just need to vent to someone who really understand,negative,0
so my other man is marry his good friend of 15 year is in the hospital and was just diagnose with terminal brain cancer he want to see I he know his wife will not be there for he the way I would be he see his friend wife crawl into the hospital bed with his friend and realize his wife would never do that but I would we see each other last week and have a nice hour or so long to kiss touch and talk it was wonderful but that was before his friend was diagnose now he want to see I tomorrow for lunch and I am go to go he now say he can not live without I and he is unsure of what to do in the future we are in love but are both with other I still love my bf at home and my relationship with the om have been go on long than my relationship with my bf my bf and I have intention on getting engage this summer and getting marry next year I do not know what I am look for here just support is all I guess I am tired of people just say that I should end it with the mm how can I just turn my back on someone I love I am go to try and keep it only emotional and not physical we both say we could not handle go home to our sos after a sexual encounter so we do not let that type of thing happen anymore and have not in over 10 month despite desire to do so just kiss and hug I am afraid of screw something up something with my bf at home something with the mm I do truly love both of they and can visualize end up with either of they I know this sound funny but I know I will be okay with either one I simply do not want to end up without either of they,negative,0
I am read through the various topic and one that repeat itself is being there to see death happen I also rerun in my mind turn my husband over and see death on his face my father have brain cancer he was 84 year old and radiation would have been the treatment it would not have give he any quality time and would have been painful so the family decide that nature would take it is course god will as much as I am sure he hate it my mother have to place he in a nursing facility he have some aweful bed sore and need more care than she could muster we take shift and visit he daily for five week several time get call that we should come quick one of these call turn out to become a reality we were all there all morning all afternoon keep a vigil his condition remain unchanged my sister take my mother home for a brief rest and to eat as she is diabetic barely fifteen minute pass and my father start struggle to breathe it all happend rather quickly with no time to call my mother back three deep breath and a heavy sigh later and I could feel my father spirit leave he it was my first exposure to death and I remember it as vividly as if it was yesterday my mother wish through her grief that she would have been there I do not know if she could live with the memory of those last breath I think god know this and have send her home so he could take my dad when my husband die I do not feel his spirit leave I still feel his spirit I think he was just as shocked by his sudden death as I am I do not know if see death make it more real or just add to the pain,negative,0
hi everyone I am new to this group my name is juliana I am 52 and I live in tn I am originally from detroit grow up in thr city and suburb I miss it so much and want to move home I have some health problem and I am in pain a lot I am try to fix my house up to sell I feel trap in tn because I have family that move here after I do and their health is bad than mine I have no friend here everyone is married and I am not they have kid snd grandkids and I could not have kid we have nothing in common plus the married eoman do not want single frirnd my sadness and loneliness have cause I to develop an eat disorder ihave gain 70 pound in a year I cry everyday and think about the past and my youth and michigan constantly I am in a bad space mentally is this normal menapause just part of get old my sibling that are healthy are so active my mom is very active my dad play tennis everyday till he was diagnose and than pass of brain cancer I truly believe you get out of life what you put in my future is in my hand but how do I move home when my sick brother depend on I and do not want to move back do I just leave he and go this is so hard,negative,0
I want to introduce myself to the group since I do not know how else anyone will know I am here my name is natalie and I lose my husband of 19 yrs to brain cancer in november 2011 he was 44 he fight for 6 yrs and it was the most devastating thing I have ever been through I have a 15 yr old son until recently I think I was handle my grief well I have never go to counseling just rely heavily on my parent for support a few month ago I start have insomnia and anxiety so I go to the doctor after he rule out anything medically wrong he suggest that maybe I have not deal with my grief I have to admit he is probably right I have not do much since dan die I am a stay at home mom so I just continue to do that stay at home except on weekend when I hang out with my parent I guess I really do not know how to move on I live in a small town where not much go on other than my parent I just have a dog and a 15 yr old boy to talk to and neither of they talk much I am consider face to face support group but I am an introverted person and it will hard for I to talk about such personal thing in front of stranger I think maybe join this group might help I to come out of my shell so here go,negative,0
I am new here so I will explain my situation as briefly as I can my mother die feb 16 two month prior to my husband find out he have brain cancer he die a week before christmas the same year we have a business which I sell then the buyer back out last minute I lose everything my mom my husband my job then I have to sell the family cottage have been go there my whole life it have been 3 year and I have been deal with both estate and try to close the business we have it for 33 year and it was important to I to pay everyone off because my husband was a man of integrity I am now just start to truly grieve I think I already have everyone keep tell I how well I was handle thing and how life go on how I will find happiness again blah blah blah I am mentally exhausted and because it is been 3 year no one get it perhaps I am lean on friend too much because they are not call as often have anyone here have a delay grieve period I do not know how to get out of this blue funk I am in I am deperately try to figure thing out but have decide I should join a support group so I do not have to do it alone,negative,0
do not know how to do this have always have on again off again relationship with bio mother she pretty much abandon I as an infant with her aunt and uncle who in turn abuse I severly they eventually adopt I and she was in and out of my life recently very out and I am not really sure why I have been grapple with that for a few year it is been very painful I was just get to the point where I was feel I could let she go when last week I hear through the grapevine of family we are relate not only as mother and daughter but also as cousin a bit complicate her aunt and uncle adopt I that she was die of brain cancer the thing is that she would not talk to I my little sister would not talk to I my aunt would not talk to I no one will talk to I so I am freak out the source is reliable and come directly from my little sister so I know it is true then three day ago my mother call I and tell I that she is fine and not die what the fuck and now no one willl talk so I am yet again send on another emotional rollercoaster ok so now tonight she call I again and say I am not allow to call she or my sister or my aunt who the hell do she think she is my mother I would almost think it was funny if I was not feel so crazy,negative,0
just want to introduce myself and say hello I lose my dad april 10th 2008 from brain cancer I am well was daddys little girl and I miss he so much I know that life would be hard without he but I never think it would be this hard I have start to read some of the other post and it is good to know that what I am feel and experiencing seem to be the norm it is very difficult to see that life is try to be normal but it will never be normal again not the way it use to I have my good day and lately I have have a string of very bad day I know that everyone at work is try to comfort I try to be nice try to explain they have been here before but I really wish they would all leave I the heck alone I know they mean well but I do not want people ask I every day if I am ok or if I need anything I want to make a sign that say no I am not ok and stop ask I just lose my dad I actually have someone yesterday ask if I was piss off at they because I was stand off ish um no not piss at you at the world maybe yes and then I just want to smack he upside the head and remind he what have happen to I in the 3 week oh by the way I also lose my grandfather on 3 31 I was convince my dad and grandpa were in a competition to see who was go to pass away first well guess that is enough for nowthank you,negative,0
my mom doctor keep tell she they do not know when she ask question she have stage iv breast cancer spread to the brain with 2 brain surgery in the last year and still have tumor in her head she say to I tonight that she do not want to die but she was tired of get the run around with the doctor nobody will give she any answer and she is try to get a 2nd opinion but the are go to give they a decision in 7 10 day to see if they will take she on another breast cancer patient what is go on I just want to cry,negative,0
last year my mom was diagnose wtih stage 1 grade three her2nu breast cancer she have a fantastic oncologist and have do great thing for she he was a part of the study that help get herceptin on the market his was a blind study where half get herceptin and half do not he get to know all the lasie in the study well the lady that do not get herceptin all die those that do get herceptin to this day all are still alive that participate in his part of the study today was my mother last day of treatment she have finish chemo radiation and now all her herceptin she have been give a 50 50 chance of not get cancer to return in the next 5 year what he tell she is that she have a 99 percent chance that if it do return it will return in her brain that all his patient that get a return of the cancer that have herceptin have have it return in the brain he tell she that there is a new study of a new drug that they are try to get on the market for woman to take after herceptin is finish to minimize the return of cancer to the brain he wanst she to be a part of the study it was a long year she will have a while to recover and she discuss with I her feeling on being a part of the study in a way she feel obligate since so many woman give up thier life to help get herceptin on the market however she is drug sensitive and have no clue how she would respond to this medicine she is single and must work to keep up with her bill she fear what it might do to she I se she as stuck I do not know what advice to give she if it were you what would feel would you consider it she was so sick this year I do not know if she could handle another year of sick apparently it is a pill,negative,0
I have twin grandson 14 year old m r m is just like his mom look like her act like her r is just like my son same walk talk and attitude have a very smart mouth and very quick to anger m is sneaki and mild manner quick to laugh I really worry most about r both boy have have a rough time r is a brain cancer survivor he is really small for his age do not grow at from 7 today I learn 13 have just start grow in the last year since groth hormone he weigh 74 pound and 6 inch short than r they have a rouhh home life with both parent in and out jail move a lot change school a lot now they are already get in trouble m have so far only get in trouble for no helmet skateboard r have been arrest for shoplifting plus steal 100 from his purse he is do the type of thing his dad at that age I try to get help for my son but he go to live with his dad now he is 45 and been in jail on probation or in prison since 14 I worry r is go down the same path as his dadmight mention both boy are victim of sex abuse from my son that is in prison I have ttie talk to my dil but she think I am over react and is not concerned r is also have trouble in school both grade and fightingdil say just normal for his age any suggestion,negative,0
I am new here and I just need to express my feeling I lose the most wonderful mother in law very unexpectedly feb 2 2011 at this time I immediately move in my sister in law joanie since she was fight brain cancer yes this was an adjustment to our life but I would do it all over again if I have the choice joanie pass away sept 14 2011 she fight her disease for over 2 yr and she was a very brave woman I miss they both everyday still adjust to joanie being go we were tell in july she have a year to live I leave for the weekend on labor day weekend just for a break from caregive unfortunately when I come back she have go downhill and hospice come in our 2 to 3 week was only 5 day with she I am so glad I was with she at the end I do not want she to be alone when she pass she pass away at 4 05 am with I by her side I guess this is hard on I because I take care of she I try to be strong for my husband as I was when mom pass away but it is so hard to do that I know it will take time just write how much they are miss help so much,negative,0
I have never write this down before and I do not even know where to begin I lose my mom on new year eve 2008 12 31 08 at 7 am I will never forget that morning I was 8 month pregnant with my daughter my mom first grandchild she never get to meet her grandaughter grace my mom battle lung and brain cancer for 21 month she go through every surgery test and chemo possible to fight it she was so courageous unlike I I am so lost without she I miss she so much my heart feel so empty I want she back so bad she was my good friend she was so strong and caring and she just know all the right thing to say to I it is not get easy there is not a day or hour that do by when I do not miss she I still try and call she I talk to she all the time my family have seperate since she pass she was the glue that hold we all together I am have such a hard time with she being go I am try to stay strong for my daughter she is what keep I smile and she keep I go everyday I know my mom was die and that she was so sick I just never know how hard it was go to be without she here saturday would have been her 59th birthday I miss you so much mom and I love you and if you can hear I please watch over we especially grace,negative,0
I am new at caretake and I was wonder how all of you keep from resent the person your take care of I know its an awful question but I suppose its a reality that we all deal with I am 23 I just graduate from college and land my dream volunteer job work abroad then my mother was diagnose with brain cancer I come back home to live with she before christ she is single and my sister and she do not get along I have not live with she since I was 10 and while we ve been in touch throughout my life she do not really raise I its very hard she need constant care and is not easy to get along with its even hard before christ I was volunteer abroad mean I have no money and therefore no car to get out of the house I feel trap when all I want to do is be a normal 20 something and work on my career and have fun once in a while its hard too before christ I know that she would never spend this much time with I if she were healthy and do not need I I try to look at this as a wonderful time to get to know she but I often feel myself harbor resentment is there anything you all do to get over this feeling,negative,0
I just want to say hello to everyone I was out on the internet look for something anything that might help I get through this horrible time I lose my young brother on july 17 2006 he was 41 year old and die from aids related issue he go fast really so he do not suffer for too long I have been speak to my mom twice a day since he was in the hospital and we both are have a really hard time and on top of feel so horrible inside because I miss my brother so much I also hurt inside for my parent this is the second time I lose a brother my old brother die in 1990 of brain cancer at the age of 41 also pretty ironic my old brother and my young brother die at the same age 16 year apart I have been read some of the posting and feel that I am in the right place I suffer from depression as well and I was not take any medication when my brother pass away in july but by september I need something it take the edge off and help I to get through the day without cry but it sure do not help to mend my broken heart I start therapy on the 16th,negative,0
it have been 5 week today that the gbm brain cancer consume my the love of my life and ruin any plan and dream we have I have been really lucky can not find it in myself to say bless these day to have a very supportive family I am in mexico visit my sister her treat for I have a very interesting conversation with a woman on the beach today who say that a woman friend of hers have lose her husband and have say it was like lose the witness to her life I just was so strike by the concise way she put it but it really say it for I not the only thing of course but certainly on the list of who my husband was to I and I to he we were witness to each other more than anyone else just want to share this I also have have some very odd association with robs death that I keep noticing rob die on 1 13 at 1 13 at saint francis hospice his room number was 612 his birthday was 621 the safe deposit box assign at the bank is 126 and our last pa address 612 now I walk into the condo that my sister is rent in mexico and there is a life sized sculpture of st francis not to dissimilar than the one in the foyer at the hospice just really odd stuff thank for read donna rob widow,neutral,1
have not post since I initially join the club I take all of your advice am happy to say I am std free that was such a scare such a relief on the other hand I am angry than ever were still together he have been an open book since I find out but I just can not get over the why he say he do it because I was emotionally devastate by family problem brother in law brain cancer diagnosis teenage daughter pregnancy and so on yes I was rightfully devastate so his solution is massage parlor with a happy ending frequent a prostitute all the while play the role of support partner even my counselor have a problem with that say he likely have deep seed emotional issue stem way back he is not in counseling but say he will go then go I do not feel as though I should be the one grab the bull by the horn like find he a therapist make appointment well have a few good week but then some of the stupid thing will trigger my insecurity I worry constantly can not sleep frankly I just do not know if I can do this I do love he so very much but I resent what he have do to we to I all the while hide my hurt from my child who adore he think of he as dad I have not been post but have check in read alot of your post I am so sorry we are all go through this thankful for this place group that is here for all of we to vent share our up down,negative,0
my father pass away two week ago from pulminary fibrosis a side effect of chemo for his brain cancer I feel like I am just go through the motion of the day my dad die in his sleep and I can not get the image of he dead out of my head I go to sleep cry and wake up think about he my mother is not an emotional person so to try to tell she how I feel is not go to help she is grieve as well I feel like I am five year old and lose my dad but really I am 34 my dad was only 53 I feel cheat I want to see and talk to my dad for one minute I can not get it through my head that I will never see he or be able to talk to he I am angry that my dad was take away from I and his granddaughter who is 4 I have no faith in god anymore why when we go to church and my dad was a great man great friend wonderful husband and love everyone would god take he and not some of the scum that do not deserve to live will I ever feel normal and whole will this numbness ever go away will I ever be able to have fun without feel guilty or have a breakdown will my mother ever be able to be happy I have always been a strong independant woman who never show emotion or ask for help now I feel as though I am weak and want to crawl in a hole and not come out the control thing is an issue because I do not have control over this situation nor could I change it why would god take such a great man who want to live people kill themselves every day and do not think about the people who are struggle to survive is that fair what kind of god would do this do anyone feel the same,negative,0
it is been three month since my husband die of brain cancer and everyone else is do well the crisis is over they all go home there is no more frozen meal leave on the front porch no more frequent phone call to check in see how I am do during my husband illness I feel as though I have a concrete reason for my sadness and there was always something that I could do about it fill out a form sit by his bedside hold his hand tell he I love he care for he make sure he was being take care of properly fill out yet another form but now there is nothing to hang my sadness on people do not understand that in many way I feel bad than I do before I feel empty out I am more alone than ever I do buy a new couch today I make sure it was big enough so that my husband would be comfortable he is 63 it do not seem to matter than he is not here anymore it do not feel like he is die it just feel like he is not here right at this moment not that he is go forever a friend texte I today and say how about get together february 8th I want to scream what about tonight and tomorrow feb 8th is not for another two week how do I get through the next two week there do not seem to be much point in call the same kind supportive people who ve been there all along and say again I am grieve I ache for my husband they already know they do not have anything new to say to I to make I feel well I am do everything I can think of grief support group therapy how about an online support group it is great for when it is late at night and I am feel crazy from my loss,negative,0
my brother go into the hospital on friday that night we learn he have a brain tumor yesterday they remove the tumor only to find out that it is cancerous and is aggressive and there is nothing that can be do he is in another state I am here take care of my mother who have a brain tumor only her is not cancerous but is non operable how much can I endure two in my life to leave this world at the same time my mother and brother share the same birthday now they share die also god give I strength to endure this suffering that have been place upon I,positive,2
hello my husband pass away in may from brain cancer I visit this page several time during my early grief I think I am ready now I have many close friend who have been wonderful but I have find in read the post here that I can relate to what you are say and how you are feel I was look forward to continue with the happy life I have however I find myself start over again you live your life with a certain set of expectation but those can be dash rather quickly so I feel like I am in an empty space or a void it seem very surreal because I normally try to be positive and to find some happiness in every day I keep myself busy with work and I have child and grandchild so I feel bless with that I am happy to have make the plunge to join this group I do not think I am a go to a meeting support group type of person I wrestle with deal with the grief on my own rather than feel like I might stay stuck in grief if I attend a meeting or maybe I am just not ready for that this seem safe to I like I dip my toe in the water I always like to keep move forward but there are day that I feel stuck too I look forward to participate with you,positive,2
hi everyone I was a very happily marry woman for 38 year when my husband die suddenly in less than 3 month after diagnosis from brain cancer like many of you I was devastate I could not go to a grief share group because I do look ugly when I cry laugh out loud I do not want to be around people I want to grieve in my own way I want to read everything I could on true story of life after death I read at least 70 book and they all make I feel good that he was in a well place and no long suffer I keep myself busy with yard work and start an organization in his memory of donate stuff bear to homeless shelter bear hug from jack hundred of bear keep pour in from family and friend and they have put so many smile on children face and also home where adult have the mentality of 8 year of age or less I also start a social group for widow and make some wonderful friend I was so amazed how some widow feel since lose their mate some were so upset and angry that they leave I other where flounder on how to survive man complain about learn to cook and woman complain about have to do man thing I have to put one foot in front of the other and help myself as I have no child to rely on my sibling and friend would often say I do not know how you do it you are so strong I would tell they I am a very good actress I too hurt and still get the ugly cry but I am determine from day one to not be a depressing cry sister or aunt in front of people because I want to be invite back laugh out loudhang in there keep busy and help other in need we are here to learn love and help other,positive,2
just to let you know that I have receive a lot of help and support from people here and I want to send out a big thank you to all and to let you all know that today is my son 21st birthday planning on bring he some mcd for supper his request and get he a dq frozen cake decorate with a piano and music note he love to play the piano and is quite good even on the psych ward other patient ask he to play the piano it help his self esteem so much he could take course upon course on self esteem but I find that people with a mental illness are so kind to each other because they totally understand get he a few gift also a bike helmet to replace his old one and some battery and a new set of headphone for his cd player also a ubs cord to connect from his electronic piano keyboard to his computer as he make his own music and record his own song sorry I am go on but just want to thank you all for the hug and letter of support I am hang in there and release my feeling of resentment towards those who do not understand I am take your word of advice that no one really understand unless they have live the experience or a similar one hug and flower to all the past couple of year have just been stressful on I as my son get ill my husband then suffer a stroke my sister die in january of brain cancer and my young brother die of a massive heart attack in april but I have to keep myself in check so I do not end up feel sorry for myself my menta is only control what you can and leave the rest alone,positive,2
I have trouble stay mad at people all people who have been mean to I in my life I need to work on this because I usually break and talk to those who never deserve another chance most people are astonish when they meet my h my friend say they would never speak to he again yet the rejection I feel sometimes is so overwhelming yet I do not even really love he if I have to be honest with myself yet I can not seem to find it in I to stay angry at all the thing he have do to I I fight myself every day to be strong and not have contact with a man and I use that term loosely who if I were in my right my would never have even give a glance at his hook in I was that he was marry for 23 year to his first wife she pass away from brain cancer so I think I was get a good guy with a great track record I know well now I believe we get sick from stress no one in his family include his son speak of she is not that odd who know what she live maybe her life was so stressful it make she sick I am not willing to give my life up for he I do not even like he I am not attract to he and when he would even touch I or kiss I I would cringe yet I do not feel enough anger to not feel reject sound crazy even as I type this I believe with all my heart that I could never be with he again I would hate myself for settle for so much less then I deserve why then am I not seethe mad,negative,0
I do not know what I should be feel or how I should be react I find out in a letter he send I that he was die and I have a dream a horrible one quite a while ago that it would be one of 2 thing and it end up being both not just hiv but brain cancer as well at first I go outside and I cry my eye out for about 1 2 an hour just whisper his name over and over again in my head and all I could see were the horrible vision from my nightmare I have so long ago that I have almost forget about until that day since then I have talk to he quite a few time and he seem emotionally to be do pretty well mentally he is positive and he seem to love his job which I am really happy for and he is get an apartment soon however I can not help but think that his mood is just a facade so that I do not break down I refuse to break down and let he hear I do it he is in arizona and I am in florida and he do not need anymore stress than he already have I do not feel like cry I feel like punch something till my hand bruise or scream to the sky and curse god for what he have do to he and his partner as well as well as for a few other thing that I would like to get off my chest to he there is this deep empty hole in the middle of my chest and I just do not know how to fix it how should I be react,negative,0
I was just make aware that this website exist I was diagnose with bipolar on sept 11 2001 the world trade center bombing really affect I alot I was feel like I was in a comma and do not know what to do I try to kill myself twice that day I end up in the hospital for over two week I have been do well over the year I have learn to control I feeling and action do not get I wrong I have have my down time over the last two month I have been get bad and bad I start out being depress then I start have feeling of hurt myself this last week I get out of control and was determined to kill myself it was so bad that I end up at the hospital yesterday the only thing that was stop I from go through with it was how to tell my family we just suffer a loss this month last year when my baby brother die of brain cancer I know another death in the family would put everyone over the top especially my mom if I could have find a way to tell they I would have kill myself now I am at home alone and my roomie is at work I hope this group is a help and I would appreciate any input or idea that have help other again I am glad to be here and hopefully we can help each othere,negative,0
so I start have pain in my left before midday yesterday it was off and on but wake I up at 4 am I call the doctor and am go in to see she at 2 15 today my normal pcp is not in today but I really like this doctor and would like to ask she some question about what is go on with I I am forget thing like yesterday I make an egg and forget to put the egg back in the fridge I forget thing a lot sometimes I feel like I struggle for the right word or forget phone number I am worried I have something really wrong with I like brain cancer I have extreme anxiety and I know that probably play a part I have pain in my joint and bursitis in my heel I really feel like I am fall apart I am about ready to take the lexapro my pcp prescribe for I I have been so afraid to take it but thing can not go on like this the endocrinologist that the ent suggest I could see if I want to still have not call I back and it is been at least two week I do not know if this is the hypo stuff of fibromyalgia I know I have been tell on here that people with hypo can be diagnose with fibro I get a heart monitor yesterday that I have to wear for 30 day I have to call in sick to work today because I have not sleep my pcp would not start I on medcation for hypo because he say my thyroid is still fluctuate too much and was in the normal range from the last bloodwork any advice on thing I can ask the doctor I am see today or what I should do I can not find another endo that do not have a waiting list and am have trouble find a holistic doctor thank you so much,negative,0
3 year ago my 15 year old die from brain cancer that day the sunshine stop shin my way I am so tired I barely make it through mother day or his birthday but the anniversary of his death is come up and I just wish that day would disappear I am so tired of just barely make it through these day I have no reason to laugh anymore the nighmare watch your kid die just at time take my breath away and I can not breath I see the fear in his still tell this day and I see he look at I and ask I why what do I do wrong I just state nothing life is just not fare sometimes my heart what is leave is so broken that I do not think it will ever heal know this it do not get easy for I it is get hard I am so alone I miss his hug I miss someone need I and love I but I guess someone think I do not need he anymore so they take he from I I could not kiss the booboo and make it go away and I feel like I fail he so by take my son away my beautiful baby they take my sunshine and everything that go with it away,negative,0
hi I need some advice on this matter I have a so call dad that hang over my life like a shadow even poison my 4 and a half year relationship with the kind and most loving woman of all time the thing is that recently I start ma and really struggle with it not because I do not have the brain to do it but beause I do not let myself be happy and move on we figure out this with my beloved my mom die 2 year ago and I think she have the same problem as I do now she do not let herself be happy and could not move on from the mistake of the past like not have a university when she could have and so on she die of brain cancer and the bad type 4 I do not want to end up like she and do not want to srew up my life good relationship on this my relationship with my relative s uck I mean it is really bad and thin I almost literaly grow up myself I have step brother and a sister but they rarely care about I there are 5 of tem and only one of they ever ask I how I am or how I have been do I got use to this no problem the sad thing is that I have a father that I unintentionally hurt because a simple request from my love I have lot of mask on I when I deal with family member and just live in the shadow to avoid realy sunlight then I have to step out and stand for myself and her dad was rage about it and purse his mouth since then I am really a shadow of myself maybe I was not ready for that kind of thing but really when to do it then later later when that is just child play and at some point we have to grow up as far as I know it become hard and hard as time pass I think that is why mom die in the first place thing stick in his head so as of now I struggle with let the past and be happy with my so precious beloved I punish myself because the child in I think this is the right thing to do I do a bad thing to dady and I go and punish myself for the rest of my life sound good huh di am really in need of a good practice to let old fear and shadow go away anyone a well thought on how to not punish ourselves good regard totu,negative,0
I lose my mother on april 30 2010 she begin a fight with breast cancer in 2003 which was remove but return as lung cancer in 2005 and was an on go battle until 2008 when the doctor decide to back off of the aggressive treatment and just monitor she on december 23 2010 out of what seem to be nowhere my mom have a seizure we have no idea at the time that is what it was but when the doctor call I and dad out of the room neither of thought it have anything to with cancer afterall the cancer she have was in her breast and lung and so at least to I why would either of those thing create a seizure when she say tell I about your mom breast cancer I remember think for what that is over it was over and brain cancer have take it is place my mom immdiately undergo radical radiation treatment which start off affect her short term memory we all I my father sister and brother feel like we could deal with that as long as she remember we and she do until a couple of month ago when she start to forget her health deminishe almost overnight I have been fly home once a month just to be near she as often as I could last month my dad say why do not you save up some time so you can have long visit with we instead if these short monthly visit you call I everyday and I give you report on your mother as long as you can hear each other you ll be fine I thouhgt about it but I do not want to wait month to see she I feel time was short and do not want to risk wait month to visit 3 week after my visit my dad call and tell I he want I to see my mom in my mind a flag go up what have happen to save up some time I have plan on fly down the following weekend but my dad want I there soon three day later I fly back home and two hour after I have arrive we were call parmedic because her breathing was so erratic after all night in the er we learn that mother develop pneumonia and have to be admit the next morning her doctor come in and tell we he do not expect she to live through the night she was move to hospice and she live another six day after that we hold her hand we hug she kiss she we tell she what she mean to we and what we d learn from she and we tell she we understand that if she have grow too tired to continue to fight that she could go on that was hard to tell she because part of you want your love one to stay but none of I want she to stay here in pain so 3 week later here I am try to re enter my life and the pretend not to be sad is make I nuts I do not know how to feel or what do I am just go through the motion I am try to honor my mother by move forward and live a full life as she would want but I just feel stuck here in the moment and cloak in a blanket of saddness,negative,0
my mom enter into to rest with jesus last friday due to being on chemo she have a bleed on her brain and brain damage she was diagnose with stage breast cancer in february 2010 it was mestastic breast cancer this jan it spread to her liver please keep my family in your prayer as this was a very sudden loss 12 hour thank,negative,0
a few week ago I post about a family friend that afterbee in remission from cancer find a brain tumor at the base of her skull she have surgery last tuesday and the tumor was find to be malignant she is to start radiation soon as she have already have all the chemo they will let she have from her previous cancer she go home on thursday and was rush back to the hospital by ambulance on friday with a blood clot at the surgery site she have repeat brain surgery on saturday morning to help control the bleeding they have she in a medically induce coma the side effect of this brain bleed are not yet know please any and all prayer for she and her family would be greatly appreciate with this kind of cancer issue we know that her odd are not good of live for more than a few month but even if you could pray to have god let she live long enough to meet her first grandchild her old daughter is due in a few month thank you for the prayer,neutral,1
please pray for we for tim that he remain in the peaceful state he is in and for I wisdom in the final day of his care and the physical ability to keep go for as long as it take he was diagnose with brain met 14 month ago and later find that esophageal cancer was the primary he endure a craniotomy gamma knife for 6 brain met then chemo radiation for the esophagus we think he might have a chance of a remission for awhile but it was only about 4 month until they find 3 more brain met more radiation to the brain stem follow 4 day later by cyberknife to one meet in the cerebellum 2 day later he have a brain bleed and his beautiful mind was go we are christians and tim do not fear death but after 3 month of hospital rehab and hospice I am weary and I know tim is ready to see his first wife who die of cancer his litte boy who die of a brain tumor his parent and other he love thank you for any prayer warrior out there who would lift we up right now,neutral,1
so today my appointment with the endocrinologist and I literally can not get out of my own head I find out about my tumor two day ago and have been deal pretty well with it all albeit behind on my grad work because I absolutely can not focus but now it is real there is no go back to a time before this which is good and bad sure I need to see the big picture I need to get out of my rut but I definitely do not need this scary thing I have wonderful family friend one is go through the same thing with a small one my mother in law have thyroid tumor brain cancer so she know on a scary level my mom been research this since I get the first blood panel back show high prolactin but we all figure it would be nothing on the mri of course for the last month and a half I have been a walk bag of emotion swollen breast already a dd now no bras I own even fit I have a lumbar belt around they because they are throw my shoulder out and crazy other symptom I know that they are not likely cancerous but it was not likely that I have one to begin with I know the dr will try the wait and see bit my mom is the good researcher with medical stuff but I flat out can not do that I have have anxiety my entire life no not just adult life and I am a total worry wort but that have been take care of not so much right now I really do not know what the hell to do with myself I can not do my paper school thing I can not force people to distract I 24 hour a day I can not sleep insomnia is bad for I usually now well yea haha and I have no idea how to tell this doctor that I am totally unwilling to do that bit because I can not fall behind in my life or my degree I do not even know what else to add to my list other than symptom and medication include otc thing any advice out in these vast interwebs or just a simple kind thought or prayer today the first time I have have a panic attack in a year uuugggghhhh side note my mother in law tell I the story behind jason mrazs the remedy it is become a good anthem for I maybe it will help one of you out there,negative,0
my husband is always complain of feel like he have to blow his nose all the time he is do this mostly thru the whole lung cancer experience he is forever use saline solution and other thing to get it open he is always blow it and with everything else happen with he I am about crazy I know he do not have cancer in his brain again because he just have a scan not long ago and everything look fine have any of you or anyone you ve care for ever have this with lung cancer I do not know if it is from the cancer or just anxiety also have anyone ever take ativan to help with their anxiety with their cancer I would appreciate some answer yes or no on both question,neutral,1
my name is amber I am married to matt and we have 3 small child we find out today that my husband have cancer he have a spot on his neck I am sorry I do not know what kind he do not ask the dr typical man thing laugh out loud anyhow he also have a golf ball size tumor on his brain stem I am sorry this is very hard for I to write out anyhow they do not think that the spot on his brain stem is cancer they do a biopsy on the spot on his neck because he call his family physician and let he know that the lump there was grow a bit he is have this spot for about a year and he have also been experience nose bleed and migraine they think those are being cause by the spot on his brain stem they also do a ct scan that is when they find the spot on the brain stem anyhow he do not tell I he was go for any of these test because of mother day and he do not want I to worry and I have been out of town with my sister who have a baby we are look at do an experimental drug I do not know what it is call but I do know it is 6 shot in 1 and it have to be inject into the site of the tumor anyhow they will also have to treat the spot on the brain stem because it is cause problem I know I am pretty much ramble but I can use all the support I can get I do not want to lose my husband and I do not want my baby to lose their daddy,negative,0
while inform friend and family about potnetially have myasthenia gravi these are some of the thing they say I say they are funny only because some time you just have to laugh when I tell my mother in law she say are you around a lot of cat all the time because all the people I know that have that always have cat all over they I have no idea what she is refer too I am pretty sure I do not say I have ringworm I laugh pretty hard about that one an aquaitance from church notce that my leg were wobbly when get up from my chair she ask if I was okay so I explain to she that I may have a neuromuscular disease call myasthenia gravis ofcourse she have never hear of it and so I explain it to she in the shortest easy way I could I say basically my brain can not tell my muscle to work and they get fatigued because of it blah blah blah and she say are there some physical excersise you can do to cure it what I was so tired at that point I just smile I have people say thing like are not you glad it is not a brain tumor are not you glad it is not miss or cancer yes I am glad I do not have a brain tumor cancer miss I am also glad I do not get hit by a bus on the way to my mailbox I am glad my house have not explode with I in it I am glad I have not been shoot in the face at the grocery store but those thing have nothing to do with mg and the good one of all was drum roll please well atleast you get to be a couch potatoe for the rest of your life what ughi know it is a rare disease and most people include myself have not hear of it but I have learn that I will never belittle an illness someone have when you read a stark medical definition of an illness it seem so easy to say thing like oh you have amls luekemia well I read you will be fine with some chemo we have to realize that every illness come with a human being it is a personal devastating experience no matter what it is and it is emotional not just physical so I will just keep laugh,positive,2
fist of all I am so glad I find this group I was just talk to my wife last night about how no one seem to get the strain on step parent so yeah yay and sorry if I am too wordy with that say I was wonder what other experience have been with sporadic bio parent in my case I have been with my wife for 9 year married for 7 and the kid were 10 and 12 when we get together their father at the same time our relationship begin decide to cut they out of his life entirely at the behest of his then new and now ex wife this include not only emotional abandonment but a year where he decide to play child support game only show up in their life again to work out an arrangement with my wife that would keep he from imprisonment then disappear again during that time our daughter experience the onset of epilepsy and was eventually diagnose with brain cancer and throughout all of it he never have anything to do with her care show up for her main brain surgery and ask what kind of seizure do she have anyway when he do show up at the hospital our daughter get her hope up that this time he will care only to be devastate when he show no interest in she after care or offer any bit of assistance with the rigorous chemo radiation process that involve drive 2 hour on a daily basis for treatment throughout all of this I was the primary breadwinner for the family and obviously the child have always come first needless to say I think he is worthless but now after his divorce coincide with the birth of our son son he have pop back up in their life again I understand logically that now that the child are adult they have get every right to determine what their relationship with he is from my end though it is madden because all of a sudden now that there is no financial consequence to he or any real work on his part he is a change man I do not really know where to put this frustration because it is not fair to the kid to berate he much as I would like to but his re appearance seem to have diminish all the hard work and sacrifice I have put in to see they through their formative year have anyone else out there experience this if so how do you cope,negative,0
sister have brain cancer I do care but not go to not take care of myself and my own childern need sister are takingf stress leave next week to take care of she I am suprise at the resentment that I am feel neither one of they have ever been supportive with my son and his seizure and open heart surgery they partie on and make excuse why they could not come over to be supporitve so she was send to st louis with a brain bleed ater a ct scan show a tumor with a small bleed and have a seizure have to work tuesday 12 hour and so I do not go over as I could not loose the cash from this 12 hour shift and my sister say to I why can not you just reschedule so that you can come then she is over there and tell I that everyone is ask if she is alone and where am I but then she add but my good friend that would drop everything at the drop of a hat come over and stay with I as I just could not levea sister alone my immedaite response was in thought was screw you bitch I am not go to be your shoulder to cry on its not all about you she is very very manipulative and I just can not hardly stand being around she she cry all the time and tell sick sister what she should be go all the time so I then find myself feel selfish and petty which is what she want I to feel this is a pattern I have always been the selfish one but they leave out the unsupportive attitude they have always have towards I and my family and person problem I am not take a family medcial leave to help as I have a son with a chronic disease and a pregnant daughter and might need to do this later in the year feel like after my sister pass I will stay away from psycho woman the sick sister have never work and drink her life away and now all is pay for my the state and want to sue her doc next thing I am wait for is for they to ask I to help with funeral and headstone sound bad but not go to let all thi good friend that they partie with at time that my son was critical pay for it anyone been in this type of situation how do I keep from feel guilty about my resentment and find the balance between care and take care of my own need I suppose the answer is in I to do what I can and no more and to know that my action are not base on the resentment that I feel but the need to take care of my own and myself any comment appreicate,negative,0
hello everyone I get home from the hospital and I have been sick with chest congestion I do not get online yesterday as I plan because my internet was down we get it turn back on late last night I think the long trip have wear I down today I plan on answer post a little at a time stay in bed w a box of kleenex and vick vaporub nursing this back that is extremely sore from the drain I have and take the cardiac drug as prescribe to help make my heart strong hopefully I am pray that this is not in some way a side effect of the medication bc I need they these new med I am take list everything from sore throat sinus drainage and hoarseness as possible side effect and I have been hoarse for 2 day I apologize for not being around just been under the weather since I get back the benefit I receive from my stay in the icu at johns hopkins was I find out my shunt is drain I down to safe level upon lie when my pressure are high it just malfunction a bit when I am stand but this do not have to be surgically correct right now it can wait until my ef is improve with the med make it safe for I to undergo anesthesia as determine by my medical team second I was able to test several heart medication safely while being under close medical care to well regulate my heartrate and oxygenation improve my ability to function overall example I am able to walk an additional 50 foot without my wheelchair and have turn my oxygen down to 2 liter instead of 4 yay again I was tell they can not cure this problem but it can be well manage so I am extremely happy about this last but not least I want to share with you something that happen while I was there I meet a beautiful woman who was in the bed next to I with terminal brain cancer also suffer from high intracranial pressure we were able to pray together and she have just lose her husband right before find out she have the cancer she live on the chesapeake bay area and we were able to encourage each other she was there because she have just have brain surgery the day before she is continue her fight to live despite how the doc give she little hope she is not angry about it just determine and I believe she was put in my path to remind I again of this god have a plan for our life and while we do not understand the meaning behind what happen to we sometimes we need to trust he,neutral,1
my sister in law was diagnose with bc 3 yr ago in may of 2012 cancer was decrease and was not in her organ aug of 2012 test were great cancer was stable so she do not have chemo for 2 month oct of 2012 brain cancer return in liver and she was hospitalize nov of 2012 the chemo shrink cancer on liver lung and brain anyone else deal with or deal with this issue her spirit are down and we are worried treatment option,neutral,1
thing that cause I anxiety social situation my morning routine with my son work my relationship with my mother feelibee in situation I can not controli have always feel that anxiety was just a part of I I try my good to handle it everday but for the last 2 week I have not been feel well physically it start with axe pick headache head tenderness and heaviness burning sensation on my scalp and feel light head most of the time I go to my doctor who do not believe there is a physical cause but order a head cat scan to ease my anxiety and rule out any neurological cause I am now wait to get approval from my insurance for the exam but waiting have make my anxiety bad I know long know if these symptom are still there because I over think every sensation and goggle everything to self diagnos I feel like I am loose control and fear of have a brain tumor cancer miss or dying are take over some of my physical symptom have disappeard but the fear just keep intestifye,negative,0
hi my husband die about 13 month ago and am still try to understand why he was 51 when he die after 2 yr brain tumor cancer fight we have 2 child age 15 and 17 amazingly do okay they have it rough the 2 yrs he was sick I do not think emotionally it would be this hard I still remember when he was diagnose and the long two year unfortunatley that is what my daughter remember too I am sure my son is the same I always feel bad for my son before christ he lose his father and I know it must be hard for he especially during boy scout both do very well in school I can not work before christ of disability so I have long day I miss he alot and do not know how to get over it or if I am suppose to my daughter 1 yr old can undersand why I still have his picture in my wallet I also have his ashe in a box in the dresser sorry to get weird I just can not open it I think my daughter know they are in the house but my son never ask anyway thank for listen or in this case read,negative,0
you bring such peace hope and love to so so many people rest in peace my friend you will live on forever in your music if you are ever lose sight of hope just he out on youtube just look under david m bailey my favorite song is one more day I meet david when I was search for hope for my brother who was die from a cancerous brain tumor david was diagnose with the same dreeded disease I will miss you my friend may my brother have meet you at the gate of heaven may your soul have been in heaven before your body grow cold I love you tina marie,negative,0
my anxiety is show up as fear of a serious illness this time especially a cancerous brain tumor not exactly sure how I come up with that one but there it is and I am terrify I have one this anxiety over potential illness is kind of embarrassing as well as debilitate I do not want to admit to it since it feel like a waste of a doctor time and my familys time to focus on symptom that are highly exaggerated but the anxiety about they is still real I keep feel like my head feel heavy like I am about to get a headache I am prone to headache so I know what they are like and I do not even need to take anything for these feeling I decide to paint my dining room to take my mind off of it which work great especially since I have been want to paint the dining room but now that it is night I am back with my thought,negative,0
I am a little late post this but I do not care my aunt finally pass on she have cancer it get to her brain and she pass her funeral was on thanksgive,negative,0
my mom was diagnose with endometrial cancer four month ago and was do really well with her treatment then on july 1 she have a subdural hematoma bleed that affect her right frontal lobe apparently it was cause by coumadin warfarin a blood thin they were use to control a blood clot she have in her leg while the cancer have not metasticize it is stage four and now she is unable to be treat until her brain injury and her pain is control lately I think she is do fight her cancer and she would not get well I live out of town and have been visit for the last month the nurse at the cancer center all seem to have the same dire look on their face I know she is make progress with her brain injury yet every day the cancer is not treat I feel like she is close to die she is in so much pain and my family is not handle any of this well have any of you or people you know have experience with cancer and tbi especially coumadin,positive,2
hi everyone first allow I to share a little history about myself if I may I am a middle aged man and over the year I have been diagnose with gerd ibs gastritis hiatal hernia gad panic disorder tourette syndrome bi polar disorder ocd chronic sinusitis allergic rhinitis cervical arthritis with bone spur at c 4 c 5 and a few other I can not think of at the moment I have have ton of test even rare one and regularly see various specialist I have experience many bout of anxiety and depression over the year I have also fret and worry endlessly about various thing and have my share of panic attack but there are period in between where I do feel pretty good and am able to do the thing I enjoy and carry on with life anyway a few week ago I was feel just fine and then I begin to experience the follow symptom which would wax and wane or get well or bad these symptom come on after a period of intense stress in which I have 4 5 very stressful event occur in my life lack of drive ambition motivation diminish mental clarity brain fog feeling scatter brain disorganized thought process some mild memory issue feel mentally dull retarded loopy in the head lot of anxiety lump in throat sometime feel like throat is tight feeling like I am truly lose my mind or about to die feeling like my head is empty or full of air feeling like my head is under pressure feel zombie ish space out random ache and pain in head neck and chest eye feel buggy and unfocused pressure feelingfor some reason these symptom almost always seem to get much bad late in the evening and at night a few time I even think I was truly lose my mind or die I have been have fear of a brain tumor a stroke mad cow disease brain damage brain cancer dementia and so on sometimes I can be sit there and it is like my mind is just blank and it is difficult to do thing especially if they are complex and require a lot of step other time it feel like my thought are very scrambled like alphabet soup and my head is just an empty void take a sedative seem to relieve some or most of these symptom some day are well than other I would think that maybe all of this is just anxiety but the random ache and pain which are real and not imagine make I wonder sometimes I hope I have cover everything here I think I have can anyone relate to these symptom the really sad part is that all of this start just as I have begin to get interested in a new hobby and was really learn a lot and enjoy myself now quite often I feel like a vegetable well not quite that bad but sometimes it feel that way thank so much for your support and please know your input is greatly appreciate,negative,0
my 25 yr old daughter was tell she probably have ptc she have been have terrible headache and see the eye doctor who say she have abnormal optic nerve and papilledema she have an mri which show fluid she can not get into the neurologist for a month should she push to be see soon could she end up with permanent eye damage from the increase pressure she have a brother who have similar symptom and was diagnose with a cancerous brain tumor when he was 12 he have increase pressure and now have optic nerve atrophy and visual field cut we are not sure how much to push,neutral,1
hi I am new to this group my name is susanne I come here because my mom is die of cancer before my eye and I need the support because I just do not know what to do she have mmmt cancer have brain surgery and have 10 series of radiation ever since the radiation it is like iost my mom she can not hold a conversation anymore dress herself remember much it is hard to lose someone and they are still here it seem thing are get bad she now have been in chemotherapy and she sleep all day would not move and have not eat for 2 month she can not shower she just fight about it I do not know if anyone can offer I anything to console myself I am go through a really hard time thank susanne,negative,0
hi my name is christine and I am a hypochondriac ever since I was a little girl I would worry about everything mostly back then I think I have cancer every time I was sick now within the past year my hypochondria have take over I have think I have a blood clot miss bleeding in the brain anersysm breast cancer diabete and currently right now tetanus after cut myself on a barnacle with all these ailment I have feel symptom and was convince I was the one like only about 50 people each year get tetanu but sure enough my jaw and neck feel tight and I am sure I am one of those 50 it is like every spare moment I get I am think about my symptom every time I get over one ailment some other strange twinge come up and I am back to worry I have try to talk to the dr about it when I go in for a tetanus shoot the other day but he do not really respond by the way he was a new dr and I am not go back to he I know my next step is counsel,negative,0
my mom have this condition and is in the hospital right now because of it she is 84 and this past week friday last another episode start and do not stop despite the fact I was give her med for it for 4 solid day she could not eat except I have to force liquid ensure juice broth to just keep she go she finally get relief in hospital with strong pain medicine and steriod the neuro dr abrams and dr woodard nashville tn are suggest radiation treatment to the nerve as a possible treatment but they have give no guarantee we are so at a loss as my sister and I have never hear of this till mom was diagnose about 2 year ago she is have mri they can not see any reason she do have tumor in the area of brain stem no cancer but they have assure we there is no connection,negative,0
my beloved steve and I were together since 1985 we not only love each other but we genuinely like each other we have very few fight so imagine my dismay in early 2015 when he start act very mean toward I I could not understand it period but I especially could not understand the timing of it my father pass away in march of 2015 after a short about with brain cancer my father was die why would not the person who have always been there for I be especially supportive now I could not understand it our level of argue increase a hundred fold and it often start with I say I do not know what your problem is lately well yeah now I know what his problem was he was scared and in pain and do not know what was happen he was diagnose with cancer in april 2015 once he was diagnose we become a team the meanness stop thank god we go forward from april 2015 until he die in august 2016 a year early in august 2015 I was also diagnose with cancer from october 2015 to january 2016 our son come from out of state to help we because we really were too sick to be alone at that time and so with all the tough stuff that have happen I still feel there were some blessing not everyone have a kid who was not only willing but able also to put his life on hold for three month and come and help we our other son is in the service while he may have been willing he certainly would not have been able to do that at this particular time a beautiful granddaughter was bear in the middle of all of this we manage to keep a roof over our head and food on the table which sometimes neither of we want to eat yes there were blessing despite the fear pain nausea and and sorrow of that last year and although it was terrible there was something about both of we being sick together while face his death together we become more real with each other in that last year than we have for the 30 year that precede it by april of 2016 I was really start to get well by june he was really go downhill when I was diagnose we already know that his condition was terminal but he say he was go to stick around long enough to make sure I was go to make it and I think that is exactly what he do it is very strange to reach that point with cancer treatment when you have stop throw up every day and you are start to feel like a human being again when your partner is die I do rejoice to be feel well how could I not I never feel guilty about it either but it was strange steve rejoice with I he want I to make it when we meet that person that we know is the one most of we think something along the line of this is who I want to spend the rest of my life with I do not think anyone think this is who I want to spend the rest of their life with I and then I will continue without they but that is what happen to half of all marry person just more rambling all of you are in my thought and prayer sylvia,negative,0
so I go to the er today bcus I keep think I have something wrong with my brain some brain damage bcus of all these thing that is been experience for thw past 6mo I been in a state of high anxiety and feel out of it like I m in a dream state while awake or unreality feel unfamiliar and almost lose like I do not know what s goin on I m just so on high alert my ear are ring I m just super wire like I m expect something crazy to happen my vision is in really sharp and weird and I just been feel like someone who just come back from iraq I mean where I live is bad and I been thru alot but that is never have this happen for so long anyways I been dyng for a catscan to rule out any nraon damage or find out if I have a tumor or cancer or something that would be cause this psychosis amd anxiety well I spend the day at a well hospital that have all that mri stuff right there and the dr say let to rule out anything and it come back fine I m so relieved know I do not have brain damage or cancer or bleed so where do I go from here am I just nut how do I gwt well from this state of being the dr say the numbness I m feel in my side is feom being tense and put pressure on my nerve maybe nuropathy but def not a stroke they send I home I m at peace with myself for once in 6mo I cry,negative,0
it is been almost a month since I find out that a spot they do not even want to remove off my face that have been there 2 3 month maybe lonfer I think they say it was 03 cm x 03 cm I go for wart on elbow and ask to have it remove she say she think it was an infection come back in a month I tell she I want it remove that day I have panic disorder so I might not come back two day later they call and say I have skin cancer I freak one I panic two I just have uncle pass away from lung and brain cancer and my husband mother just have tumor remove from brain and it is on her liver and lung the nurse explain it I that if I have to pick a cancer this would be the one and then she go into the treament and say I would have to have mohs because being 31 32 next month and being on my face right beside my nose I ask she what it was she explain then she say I would have to travel out of town probelm I have agoraphobia along with panic disorder I have not been out of my small not have anything thing town in 11yr I do not even drive alone and have been housebound over the past someday I do not make it off my street or to town I run out of store o how am I go to not only make it out of town twice once for consult but lie there for the surgery awake my safeplace is my home panic attack usually come and go usually in dr office bad or place I can not leave easy or in my town being even 2 mile from home my bloodpressurs sky rocket my heartrate gor from normal 90 to as high as 175 which I have check and heart fine but scare I so I have been make practice trip to try and make it to the town I have to see he I have go enough mile drive and turn around that I could have been in three state and make it no where and this is take klonopin that I have been on for four year up to 2 1 2 mg not all at once because I also hate to feel drug silly I am sick about all this I do not know what is bad the cancer or the fear or the worring in gerneral I am scared I will bale out and not be able to go or have the cancer remove I have read and see so many picture online of the moh s I am freak I know I can not lay there or wait the hour in between I go to my dr the other day she give I valium to take to try this weekend to make it over there since I have to be there we d for consult but I read valium is less then klonopin and it is not get I anywhere I pray valium will help I feel like I am doom and I can not do anything normal I usually do daily I have two beautiful daughter 13 and 10 and they are my life I know I have to have this do this is the first site I have find for support any idea or story will be of great help please and since my gland in the back of my neck are like little per annum and my neck hurt I have a cold but could this be from the cancer I forget to ask my dr I can not believe this is in total control of my life I will be glad when it is do I do use tanning bed not all the time but I guess enough my mom have have three spot but not like mine the mohs I am not scared of needle how long do the take skin take I have read it take an hour for the path but nothing about how long it take to take layer of skin and I have to wait to I see he in his other office closet I if he can do it there or if I will have to go to one that is a hour far for plastic surgery after this I know nothing yet not until we d if I can make it there so that scare I more can you give I more detail of moh smine is so close to my nose and nostril that I do not think they can go all the way around it like I have see in pic with out do check nose and nostil sorry for ramble I have no support and no help as I live in a small town and know no one that have have this and also delt with other problem that I have also thanksjennifer,negative,0
just hear from marie mysooner her father have been diagnose with lung cacer in both lung he will have an mri to determine in cancer have move to brain prayer please for her father jack and her sister anf their family she just lose her mother not too long ago,negative,0
my brother 57 was find to have esophageal cancer only when lesion in the brain interfere with his balance and walk lung liver lymph node and so on are all clear and the tumor in his esophagus is 5 cm he is start whole brain radiation in a few day many lesion throughout the brain on steroid now to control swelling but doc plan to reduce steroid as radiation progress input re prognosis or suggestion to help he thank,neutral,1
we were tell on monday of last week that they have deny jim his clemency the whole board approve it but the chairman do not he claim we do not prove that he is in danger of death have a brain tumor and cancer I guess is not enough we have one small chance of get it reopen after his mri this week if the doctor declare that he is terminal we may get our wish how awful is that we must pray that they say he is terminal or he would not come home until june we do not know if he have that much time who can really tell with cancer the first tumor hide and within 2 week of the first symptom he was in surgery I do not know where else to go I do not have the money for a lawyer jim is get more withdraw each time we visit which is only allow 2x a month if they do not release he until june he will have to stay locked in his room he can not go outside or even walk around he have no one to talk to either no wonder he is becoming withdraw even if he live a few more year how long after he come home will it take we to get he back to somewhere close to normal I am so tired,negative,0
hello all so glad I find this group here is my story my first marriage last 14 year and my husband was an abusive alcoholic when the marriage finally end in 2001 I know in my heart that god was prepare someone very special for I and he was prepare I for someone then in january 2009 I meet ricky it was a blind date but there was an instant attraction and connection for both of we we fall deeply in love and he was the love of my life and I was his we meet late in life kid were grow financially more stable getting marry just seem like the natural next step and our wedding on may 15 2011 was the most magical day we were marry in lake tahoe and we could not take our eye off each other during the whole ceremony I was never so sure of absolutely want something more than I want to be his wife we were incredibly happy and act like teenager with no reservation about public display of affection we were in love and want everyone to know it ten month later ricky have a seizure at work he was take to the hospital and an mri indicate a brain tumor he undergo brain surgery on april 4 2012 biopsy show it was malignant glioblastoma he start radiation and chemotherapy the next month the rest of 2012 he do great every mri indicate no tumor re growth but the mri in january 2013 show that the tumor was grow back he try all type of chemotherapy medication whatever the doctor suggest we try but none of they stop the growth he begin develop speech and mobility problem as the tumor start take over his brain his oncologist tell I on august 1 that he have two month leave at the max he endure six more week before he finally lose his battle with brain cancer on september 14 2013 he take a turn for the bad on sunday september 8 hospice bed bring into the home on tuesday september 10 and he was go by saturday september 14 I am so thankful he was not in hospice and suffer very long it was important to I that I take care of he in the home I love he so much and I do not see that ever go away but I am also so angry that god would bring something so wonderful to my life just to take it away so quickly my heart go out to all of you who lose your spouse after 20 30 or 40 year of marriage ricky and I do not have all those year behind we but we love each other unconditionally he will always be my one great love in my heart until we see each other again deanna,negative,0
educate yourself people I can not believe some wannabe self diagnose person say such uneducated drivel on this bp support sitehey for the record my father have cancer and a brain tumour hmmm two for the price of one an that is not a label it is somthe that all human being are bear with from birth it is just dorment in the mjority of we do not bring that type of discussion into a bp forum it is not a physical thing,neutral,1
I should of come here early where to start my other family member my mom dad two sister are all go one sister murder mom die from cancer dad brain tumor one sister just a few month ago I feel lonely I miss my mom so bad mom was only 58 dad 65 one sister 35 the other 63 what on why am I still here life been kinda cruel to I especially if I get stress out then it bother I this is a start hug min,negative,0
I sometimes feel like I am the queen of paranioa and fear I have fear I have cancer a brain tumor that I was go blind was get dementia and now I fear that I might have hiv and I am go to get test tomorrow I pray to god that I am ok I do not like feel that something is always wrong I am a deeply spiritual person and I am on a journey to peace but its hard I really need peace of mind body and spirit,negative,0
help I those who have have brain injury my mil have brain injury cause by a brain tumour and the surgery I pretty much take care of she though she live just down my road she seem to be in denial about the whole thing laugh alot say they think that is get cancer a brain injury can laughter be part of have damage to the brain we have been tell she that she will never really be the old she again but she do not except this she s just wait to get well so she can drive and so on and get back to normal no sleeping and so on its really frustrating she think she can do what she use to to do but contine ova and ova make mistake and then laugh even her own saftey like leave oven on and so on its just a big joke to she can I help she anyway do anyone else go through this its been like this for over a year now is this just part of her injury not understand please help for any idea or suggestuion anything welcome cheer,negative,0
to all of my lifelong friend here on daily strength I just want you to know that my uncle my dad old brother 78 year young pass away two hour ago from the cancer in the brain and that jesus take he home to be with he luckily my parent go up to see he yesterday and spend some time with he and his daughter please keep my family in your thought and prayer as we are grieve right now,negative,0
I have go in to a few of my group try to round up prayer for my cousin her husband was diagnose with stage 4 brain cancer he is leave for cancer center of america tomorrow sadly last night he develop pancreatitis and have to be put back in hospital very worried about ability to fly tomorrow please pray for he his name is john my cousin michelle god bless you all,negative,0
I was just diaganose with cancer it is now eat into the brain I start chemo in a few week time scared to death help,negative,0
I join this site to find people go thru the same thing as I right now my father is 57 and he is in a induce coma he have about a day leave and I just can not deal with it like I feel I should could anyone give I some advice I would appreciate it my mother still feel awful about put he in a hospice because she could not take care of he anymore thank and god bless,negative,0
after have my anxiety under control for a while I am start to get some anxiety again I am wonder if it have anything to do with seasonal effective disorder since I live in a northern climate I was hear my pulse in my ear read up online about it and read all the possible bad thing it could be doctor clean the wax out now it is fine but I am still terrified that I have a brain tumor or other cancer even though I have no indication that I could have that for some reason I am afraid of cancer I recently discover that there is a family history of it on one side and my dog recently pass from cancer I have read that passion flower can have a xanax like effect without the side effect have anyone try it what about vitamin d supplement I am hope if I can fill in what I am not get since it is the middle of winter it might help,positive,2
hi I come on check in now and then and read the story my husband die of ec on september 25th 2009 he was diagnose on april 3rd stage 4b he have chemo for 18 month with a short remission from oct 08 until jan 09 then start chemo again he never suffer terrible side effect no hair loss vomiting just fatigue look back I think he know more than he was share and feel bad than he complain about to protect I in august of 09 he begin have headache dizzy an mri show no brain issue in september we fly to md anderson in houston to have a stent put in and to then start a new chemo cocktail he begin vomit and not eat and complain of the severe pain long story short we finally get a cat scan do on his brain and his cancer have become chronic menangitit of the brain he was then tell there was nothing more they could do and he have 3 month he was go in 3 week and never really speak again due to the massive amount of pain med they have he on I tell my story because I hope you all have the conversation with your family and friend that I so wish I would have have as we always hold out hope that a cure would be find or we would get a miracle and jim would not discuss end of life issue for that mean he was give up I do not ask the question I should have or say the thing I wish I would have for fear he would think I was give up on he I think we were both in denial that he was terminal I tell my story to help other have no regret I am here to help anyone if I can but I also not sure I should offer my thought as my husband do not survive I think of all of you and pray and thank you for read my story sincere regard tracy,negative,0
I have not been on here for a very long time I have have brain cancer for over 11yr now I was on here for support for that today I ask for support about a completely different issue I almost can not even describe the pain I am go through now I back out twice on my this descision to put my cat down as it was just too painful I do not have any idea it would get much bad when I do it I decide that I could not do it myself luckily my parent come to pick she up and do the deed I have decide what to do with she her remain they would pick she up get her euthinized bring her little body back to their house bury she there where I could visit and talk to she anytime I want my mom I agree it give I a little relief she call 3hrs later to say that they have just drop she off give they my and the animal shelter say they would take care of she they lie I could not believe it if I ever would ve think that would happen I never would have let she go with they in the first place I call back scream cry uncontrollably ask they why they would lie to I about something so serious emotional to I my dad just hang up on I there was nothing I could do but I know that I would never be able to forgive he I call shake to every vet and animal hospital I could find no one ever have she so there I sit helpless hopeless not long after my mom tell I that she have call the place where my kitty was dump and go to pick up her ashe to bury in the yard tomorrow I sigh a sigh of relief sort of it was not exactly what I have originally hope for but well than nothing 2 thing still bother I 1 I have a few friend that work in that field and have tell I that all the animal are stack on a board and shove into the incinerator all at once so you would never get just your own cat ashe 2 can I ever trust that it was ever really do I mean they could just put a mound of dirt on their property and tell I that it was pheobe I do not know so now I am completely alone by myself for the 1st time in 16yr with no cat everyone else only have happy story to share have baby next month already marry meanwhile my life is just what it is nothing more than recover from another after effect from the cancer treatment friend die from other cancer now lose my cat I can not say I have much to be happy about I feel so guilty when I know about all the other pain suffering go one in the world I still have a roof over my head food in my cupboard most of my health care is cover here in canada I feel like a big loser but I also have feel lose for a long time and now that my cat is go I do not know what to do she was my world my animal child I have not been able to stop sob for almost oh 12hrs do it get any well please help I,negative,0
hi all I was recently test for thyroid and adrenal gland cancer both were negative my doctor who have I test for these is a nephrologist because I have a left renal artery blockage and he also notice swell under my jawline I was hope you guy might help I out with some of the strange symptom I have been have I do have sjogren and that make your parotid gland swell I am pretty sure I have a left side parotid gland swell that have been there for about 5 6 month during all of this time I have develop these other swelling under my jawline around my left ear far down my neck that are rather large and feel like the swollen lymph nod my mom use to check I for when she think I might be sick I also have some swollen lump here and there down the left side of my spine I have these very strange little lump that are not noticeable but I can feeel they they are in my arm above and below elbow they are in my inner thigh around the groin area and I can feel several around my collarbone now one doctor tell I these were fatty deposit but it seem strange to have these many fatty deposit and the fact that they are all line up together as if on a s string is even more strange also I have livedo regularis on my leg which is a dark lacy like color on my skin I get tired out easily and have notice that I can go a whole week or more and then one day I am absolutely sick I can not even hardly manage to get out of bed to go to the bathroom I will have headache sometimes stomach I will feel sore all over but especially where my lymph gland are this happend to I today at first I was blow it off think it was a big stress release since I find out yesterday that I do not have the other cancer however I was pretty much in the denial stage the entire 2 week I have to wait for the result these extremely tired sick day come on more and more lately and I do not understand they I have been dxe with fibro and chronic fatigue syndrom but I take med for they that control they I always think of the main doctor of the the show er who die of brain cancer he quit his job and he and his family go to hawaii he have lot of fun playing in the sun and then there were day he was sick and could not get out of bed the next day he would be fine again this go on for awhile until one day he was sick for like 2 day and then he die I get scared because it seem like I am follow this strange pattern can this happen also my left ear have been hurt for about 4 year and this occur right after I was dxe with a high virile load of epstein bar virus since then I have been dxe with sjogren raynaud ibs fibro cfs and chronic cytomegalovirus all autoimmune relate I am about to be dxe with ra once my ra factor hit 30 it have climb from 9 all the way to 20 over the last 4 year plus they always check I for lupus and ask question pertain to miss I am so tired of this medical merry go round I just want answer so I can live my life normally any one with any info or advice is highly welcome,negative,0
I am not go to say much right so tiredof course I am a wreck I think I was strongeri will get in more delay maybe tomorrowmarch 17 2007i lose my dad heart disease he was not in my life much but always there I try to help july 29 2008on vacation I watch my brother drown 38 yrs old I try to save he he almost drown I my husband try to save he bad vision of my life and I have to come home and tell my momat this time my mom was sick and no freaking doctor could tell we what was wrong she was just pass out fall no warning jan 9 they finally say her breast cancer spread to her brain she have breast cancer the first time in 1999 and a million test there after they give she 3 to 6 month my 2 daughter 12 and 3 right there with take care of she go so fast she passsd feb 8 my mom was my life at this time is still have not deal with my brother drowning and all my momwould worry about was I the day my mom pass my brother in law he is old than I he was my uncle since I was one find out he have liver cancer he pass 16 day later I try not to be sad and try be strong my sadness ruin my family my husband do not know how to deal with my sadness and depression I think too much have happen I so can not do this and all I can think about is my kid very confused michelle,negative,0
in the presence of a die woman while spend time with someone who s die I wonder what they think and feel I think about how they physically feel as their body is shut down I can not help but wonder if they are fearful of what s about to happen or they have make peace with the fact they are leave this earth in a short while I wonder if they have control over when they allow their body to let go as I sit with my fiance great aunt who is die of brain cancer I could not help just look at she and wonder what the hell could be go through her mind she know what s go on she realize she die she discuss with my soon to be mother in law that the doctor tell she she will die in her sleep have she think about death and the after life do she wonder how it will feel if she will be alone have she find god can she even really talk about how she is feel if no one around she could really comprehend what she is go through do she feel like she is a burden to other around she as she lose her independence is it peaceful to make funeral arrangement before you pass away do it help give you closure is this something people are even able to do fathom lay in a casket or being cremate as I view this ghost white frail skin and bone woman in front of I I can not help but wonder internally what is happen mentally and emotionally what she is feel and think how she perceive other around she who love she who cry at the sight of her unrecognizable figure I wonder if she know her family stay by when she is sleep to make sure her chest is still rise and fall that this is what she will look like when she pass away I wonder if she count the second and fear to fall asleep I question when her body will say I have have enough at this point she is wear diaper due to her incontinence she is use a walker to get around and have no appetite the tumor that I believe are now 9 of they are press on her brain cause she to have a stroke a few month ago from that point she is just go down hill her skin tear because it is so paper thin her thigh are the size of an average woman arm her stomach is now start to protrude I wonder what is shut down in her body what are the sign and symptom is it possible to know when she will pass do she know just make depressed and speechless to see this woman and the anticipatory grief her family is struggle with but at the same time I am interested in how she is feel and what is stir in her brain when she is silent and stare off into space how do someone come to term with die we can imagine how we d feel or what we d do but in reality can we really predict how we would react if we know we have a terminal illness and the clock is tick,negative,0
well I just make my 105 day smoke free since I lose my mother to lung cancer and I have copd I decide to give it a shot so nov 1st I say ill try I think a day or 2 that would be it but here iam today 105 day almost 4 month smoke free mind you guy I smoke 2 3 pks aday for 40 yrs my advice to you guy who still smoke just throw they out give your self a chance to go smoke free if your like I smkoin is all I new I start at 12 by 13 I was a full smoker byin they and hide they in my sock haha boy oh boy as much as people say its not worth it to I it was so I think right I would never get copd or cancer or anything not I boy have I only know that smoking do not discriminate for those of you who do not no I have stage 4 copd and stage 4 emphysema who woulda think I think I was always afriad to quit so my advice to you guy is do not be afraid of the quit go with the flow and be afraid of what can happen if you do not quit for those of you who are goin strong smokin thinkin your ok before christ you can walk around even run some well I was you not to long ago and hopefully not but someday you can be I and this is no fun lung cancer take my mother out in less then 6 wks this past august and iam writin this now before christ I have an aunt who is dyin as I type of brain cancer lung cancer after see she last night it bother I there s so much info and tool to quit smokin and yet people are smokin there life away still wen I start smokin we do not have the info they have today or the tool or the wisdom not to mention knowledge and if we do have they last 2 we sure as hell do not use it well watch cancer suck the life out of my mother scare the crap out of I as I have 4 kid also ever hear that sayin here today go tomm well that s so true I was always afraid of the quit before christ like I say I only new smokin it was like if I was not smokin then I was not normal I do everyte smoke what a sick way of thinkin rght but that s before christ I do not no any well I never give my life the chance to be smoke free for more then 20 min at a time to no the difference and let I tell you guy I will never go back to smokin and believe it or not I have big time urge but I m strong then they and I work they out like cleanin yoga water more clean I once say I have the clean house in new york city hahaha well almost 4 month now I still will not let my guard down got always protect your self and be aleart so guy at least try to quit if you need any help just ask I ill be more then happy to help someone at least try well whoever is not smokin anymore good for you stay strong and reach out and help other to do the same of corse we can lead the horse to water but we can not make he drink it but its worth a try well have a very happy smoke free v day today is the 1st v day smoke free since I m like 12 holy crap hahaha at least for this one I smell pretty dam good hahahaha,negative,0
1 my aunt pass away 2 my grandma is ill 3 my neighbour good friend is in the hospital after have bypass surgery and now have a collapse lung 4 my other good friend cancer have spread to his brain,negative,0
every since my son pass away I can honestly say that I have laugh only 3 time in the past 3 year being able to laugh I miss it but when I laugh it make I feel well but then I feel guilty because I am laugh the one of many thing that I enjoy with my son was is ability to make people laugh he was such a smart ass you either want to kill he or hug he but he have a heart that have no boundary and when some one was scared he make they feel safe and when someone was sad he make they laugh he have the ability to have people fall in love with he because of his kindness people from just baby to all the way to elderly it do not matter they love my son when he pass to say how many people love he he have a standing room only funeral home and I look around and see friend and family member wear shirt that have thing write on they to make other laugh saying that I know my son would have love because of his at time morbid sense of humor it was justin humor and ability to look at thing with a positive out look that get I through those 3 year that he was fight brain cancer it was because he was able to fine humor in what was happen to he even on his death bed when he was between both world he was able to say or do something that would make we all laugh I miss he I miss he make I laugh I do not know what laughter is anymore I do not know if it will ever come back thank you all for listen I need this outlet no one here understand or can help I anymore no one want to talk about my son anymore they are tired of hear about how much it hurt their life go on they have laughter in their home they all have their child and spouse to lean on I am so tired every day my heart feel like it is go to explode and I can not stop it,negative,0
I am scared scared for I and my young child who may never remember my influence I know my eld will perhaps this is not the right forum but I am now a stage iiia with breast cancer still numb however spot have show up on my liver and one of my lung two commom place for breast cancer to spread along with brain and pancrea just so sad crying and sometimes numb if it have metastasize I will be a later stage sorry for vent and tsk up space in thi forum I just have know you guy long and feel more at home with you,negative,0
hi I have a shunt put in in oct 07 after get hydra after a brain tumour removal op I seem to suffer from bad mood swing and wonder if anyone know weather hydra effect people like this I have been tell I still have some non cancerous tumour near the area of brain that control emotion I know tierdness is a factor with hydra but need to know how if effect other please,negative,0
my friend daughter is 10mth old and is not roll reach for thing or even try to sit up my friend have been take she to a chiropractor who specialize in kid and she have refer she to another dr for a diagnosis she have two boy with autism one have cancer in the brain and have a tumor remove so have brain damage too he also have to be feed through a tube in his stomach and have growth hormone injection regularly she have so much on her plate already and being tell this have send her world crash down can anyone give I some info or advice to pass on to my friend,negative,0
hi I want to share the past few yr of my life with you so you d know I well I am 34 and have brain cancer for over 8yrs now in the yrs before I was a really active person I was in the armed force cdn for 5yr go to college for 3yr then become a social worker for another 3yr I move far away from home with a fiance to become a cop my childhood dream only 2wks away from training I was give a death sentence instead I was give only 4 day to live long story short I have to move back home after a few surgery to get treatment move back in with my parent in the 1st few month my fiance leave I and have to re learn how to walk talk write and read again a ton of re hab later and before I turn 30 I move into an apt of my own again I can look after myself with no problem but I can not hold down a full time job I sleep all the time I have never been able to fit in anywhere now even got kick out of a senior centre if you can believe that I have lose most of my friend my family can not really understand why it is been so long I am still not work or back to my old self I have change a lot and become a loner probably to ease the pain of it all I eat now am not very active when I once was 120lbs I now am 160lbs my self esteem is in the toilet I do not go out because I hate to be in the public eye if I have to I wear a disguise of my hat sunglass headphone attach to nothing so that I do not have to talk with anyone either I know that I need some help but I am on a long waiting list to see a psychiatrist it is get more more difficult to wait a lot of little thing can make I happy but only for a while then I go back to this deperate feeling it would be nice to have some understanding friend maybe just once to hear that everything will be all right,negative,0
well my mum is in the final stage of lung brain cancer and I am well aware she is go to pass very soon as in week or day she can not talk eat or anything so yeah my mom have always been my bestfriend and I hers and this is extremely hard for I like I have always joke that I have never quite leave the womb and up today I learn I start home schooling I have major anxiety about leave my mom to go to school my whole entire life were just extremely close so I am just really scared I feel stupid angry selfish like die just everything I know I will never get over this ever I do not expect to but I want to know how to cope the whole entire year of 2011 I was extremely depressed I never leave my room I take excessive amount of pill suicidal et cetera and I just start get over my depression I feel selfish say this but I do not want to be depress again I just want to be happy but I know when my mom pass I am go to seriously be like dead inside I already miss she so much and I do not want to live during the upcoming mothersday my birthday or anything I want to be with she so badly another reason I feel selfish is because I am angry at the rest of my family I think it is not fair that I am only 15 and they are all adult like for some reason I feel like they have it well they have more time with my mommy c it make I sick because I love my sister and brother they are my life but I am still angry in the backof my mind I am completely empathetic when it come to my dad and one of my old sister especially and I am more worried for they the most like I would be fine kill myself to be with my mom but I can not I need to take care of they I am at a loss please help c,negative,0
I am new here and will just introduce myself with my story I was emotionally and physically abuse by my alcoholic stepmother my mother have die when I was 2 and my dad remarry to this woman who never accept I because I was not the fruit of her womb yet legally adopt I probably to collect the social security I was get from my mother pass away besides lie to I about my mother and other aspect of my childhood she would humiliate I in front of my half sibling and push away anyone who try to be friend with I or my family I was kick out of the house by she when I was 17 and my father separate from she and leave with I he was usually work when she abuse I when he was home she would tone it down just a little but he would just try to stop she by ask she nicely he always tell I that my mother have die of brain cancer until I find out a few month ago from a family friend that she really die of aid my dad always lie and do drug but I feel like I am in debt to he for leave with I at 17 now my half sister is in a halfway house after rehab almost 2 year sober I am proud of she but her reason for turn to drug are mainly pertain to being a spectator to my abuse although I am proud of her sobriety I am incredibly resentful of she for have a drug problem in the first place at my expense her parent also rave about how well she is do meanwhile I am on my own and my half sibling and dad do not call unless they want something I am get my masters degree apply to a doctoral program and have been live on my own for year meanwhile I am revert back to my childhood and feel like a second class citizen in my family my life feel so complicated with work and school and no family support and sometimes I wish I have a way out of it I am join this group to get the support that I do not get from my family and to get an understanding of myself during this pivotal time in my life my boyfriend and friend tell I that I am strong and successful but I am afraid that I will always feel the way that my stepmother always say I was weak and a failure,negative,0
hi everyone I am new to this board I need suggestion my neighbor have cancer lung and brain met and is currently undergo chemotherapy she is too weak to cook so I have get some other lady in our neighborhood to agree to cook dinner for she once a week each of we choose a night to prepare dinner for she and her family the only problem is we do not know what to cook any suggestion for food recipe that are chemo friendly that is would not upset her stomach thank,neutral,1
this posting may upset some but I must do this for myself tomorrow is my first appointment with the lung doctor regard the nodule in my lung that was find when check my heart on the ct scan with every day that have pass since my er visit I have been scare worried and also feel in my heart I am just fine I have live with someone have a physical and then 6 month later getting hurt and have to have a chest x ray again and death was quick and brutal my step father was italian so with that he was at home but we all sit at the bed and watch he die it was just a horrible way to go and for what smoke I want to be smart and do everything in my power to think of this as a new beginning and be excited about life and change change is good but to I like with a colonoscopy and growth they can be remove a nodule in my lung can not so since it is not normal to have growth in your lung if I do not stop smoke now I am only ask for trouble I have live with the fact of lung cancer with both my step father we ride the ride for only 4 month with he from the news until watch he die and I have the fun of watch my father survive the lung removal which the surgery you never get over crack your chest bone open to gain access to enter the lung area to have it remove the cut is from the upper middle of your chest around your low rib cage and then all the way around to the middle of your back one big fricken cut with stitch chest tube chemo radiation and then once you finally start to feel 1 19th well from that brutal surgery it go to your brain he fight and spend every single dime he have with hope of beat brain cancer but guess what that is how lung cancer is and I am not go to deal with it I need to keep this fresh and the fact of what I know lung cancer is and do because it will be the only way I can quit tomorrow everyone say use the e cig but to I that is still put something in my lung and it is so new to the market I do not trust they the gum work for I and I can do this I may be a bitch at work hate people and so on for a bit but I do not want to die the big concern for I is the fact that I have smoke since I was 10 year old yes I know but it was a different time we could stand outside of a 7 eleven and ask people to buy we a pack and they would now day if I see a 10 year old smoking in public I would either ask for their parent number or call 9 11 so back to my point since I have smoke that long and I was soooo young I am kind of scared of what my body will do without the toxin I mature with it if that make any sense I am 49 now and from 10 thru present I only have been smoke free for 2 5 year last time I try to quit it was due to work go non smoking so I use chantix the gum and patch and where most would think overdo I still would have 2 a day they were horrible but the mind fuck is what get I it is a life style and I need to figure out how to fix it is amazing how much our life revolve around it if you think about the fact that if we spend as much time on way to make money we would be filthy rich but not have a butt when need oh my god we are pick the large butt that we put out 3 day ago in our ash tray outside because in our mind if we do not smoke in the house we are go good laugh out loud so that is all like I mention I am go to need this site and have turn this all over to the lord I get pay friday so if I the lung doctor do not have any of the gum I might have to wait until saturday because cold turkey is not go to be an option god bless all of we that are suffer and just want to stop I will update when I get home tomorrow thank anyone that happen to read this,neutral,1
just think I would share this with you all I read on a few site the benefit of green tea are help indigestion improve urinary function prevent fatique good for the heart and lower bad cholesterol boost the immune system prevent degradation of cell membrane is an antiditoxant improve brain function think to prevent cancer lung and esophogus increase fat oxidation and wt loss anti age agenti am go to try it and drink it everyday it is good for you and I am hope it help detox my system some too cheer,neutral,1
hi this is my first post I am take some good advice to find an online support group since there is really nothing in person nearby plus its hard for people to really understand how aggressive and truly horrible kidney cancer is it move to fast and seem so little can really be do once its spread throughout the body anyway my husband is 46 and was not diagnose until rcc have already spread to his brain lymph and lung he was admit for emergency brain surgery to remove the large tumor whole brain radiation and now votrient the last scan prior to votrient show brain tumor growth and three new tumor he is been live like this since november 2012 pretty amazing in my opinion I am hope for any possible advice on what to expect we have a four year old its get so hard to live totally day to day there is no way to know what the future hold how much long can he continue with so much cancer in his brain next scan is at the end of april however his doctor suggest only scan the lung and lymph area rather than the brain my gut tell I its because they know votrient is not go to cure those brain tumor and do not want to discourage he as he have fight for his life feel no pain and is still here with we any advice or feedback is so appreciated thank you,negative,0
hello all I recieve my biopsy result today and I was not really sure if I want to share I am not yet ready to share the info w my family especially my child my liver biopsy show that I am third stage and my lung are stage two I am not a candidate for a liver segmentation or transplant because of my hs and lupus I already have a hemotologist and since the oncologist is in the same cancer center I would not have to find someone the three tumor on my lung are barely over two centimeter so they feel they can shrink the tumor the chemo may possibly keep the tumor on my liver from advance while I am type this my hand are tremble not from fear of die but the pain I bury one of my brother a few year ago because of bone cancer and last year I bury two of my sister one from cervical cancer and the other from uterine cancer that is why I have a hemotologist due to the high incidence of cancer in my family my young brother still live have a cancerous brain tumor remove in 05 and he have been in remission since then although it do cause he to have lessen cognitive skill I am write this because I do not have the courage to lay it on my family tonight I want to meditate and pray tonight but right now I can not seem to focus my thought I know that everything happen for a reason and I have never lose my faith thank for listen sandi,negative,0
today I go for my second test yesterday was a brain mri mra today I was test for inner ear problem after the test they tell I the test show it was more of a brain problem I m a little worried about cerebella cancer or some type of disorder have anyone on here have any test or advice they would be willing to share thank you jeff,neutral,1
if you read my profile you will understand what I am talk about when I say do david ever think of I why do not he get in contact with I is he so proud he do not want to think I care when bubba was in iraq he write I and call and I just do not understand what happend to david do the marine tell they not to think about their mom david was the baby and I bust my butt to get he everything he want when the other 2 get jelous and mad I still spoil he oh I was a great mommy but you see tina and bubba was from my 1st marride the illegal mexican would beat I so bad but I stay for 5 year one day I go to the abuse batter home and I stay there where I meet davids dad davids dad was a good man but we have problum and I raise my childern single handly 10 year and then they move with their gram when I find out I have brain cancer and I want they to get the good shcooling and their wildest dream because they was rich and could give my kid everything and I was sickly and could not watch they but every holiday I write and call they always and I tell they that always to remember I love you tell they to look out for each other tina was mommy act when I see they kid and I always give they huge box of stuff it would break my heart everytime they would leave because I love they so much so david was spoil rotten to where as the 1st 2 was yes like ok ill get that but david need this 1st type of deal and then david treat I so bad when all I want to do is stop worry if he s dead today or tommorrow and what I do so bad that he domt even write or call I am sorry but I guess I just need to air out I will get off my soapbox,negative,0
okay so basically my mother pass 10 year ago of brain cancer I was 14 it tear our family up it was just I and my dad leave my dad was very mentally abusive tell I that only two people in this world would ever love I and one of they is dead he being the other he tell I this for year he would come home everyday drink himself to sleep and wake up and do it all over again I never really get a chance to grieve I immediately was throw into you need to do everything around the house and if I ever was sad or upset his response was always life is for the living get over it he was allow to grieve but I guess I was not he finally re marry she was nice at first but that quickly change I meet my husband shortly after they marry when it come time for the engagement long story short thing do not go the way she want so instead of she and my father being happy for we she get mad and ruin it when it come time to look for a wedding dress she tell I to pick one that I like and to show she later when I do show she later she hate it and say she do not get to have the experience of the dress shopping now that the wedding is over she is claim my husband and I do nothing but shit on she and do not give she the recognition she deserve my father and step mother have been and are continue to just make our life miserable she is tell I to go rot my father have tell I I have do nothing but ruin everything I am not saint and there is no way in hell I am perfect I mess up all the time but I never think of myself of a bad person with they I feel like I am not worth the ground I stand on I do not know what I am do wrong any time I try to tell they how I feel the response I get is its all in your head or you re dead wrong I wish I know what to do I am 25 year old but I have panic attack I m depressed I m on 3 different med,negative,0
I stand now at 45 year of age in the process of divorce having come through 16 overall difficult year of marriage to an asian national with no child to our name only four painful miscarriage include two at christmas time with she originally not want child in our first several year of marriage and then afterwards refuse adoption in hope of our own child until desparation set in within the last several year having also do international humanitarian work in an islamic nation distantly in the vicinity of afghnstan for nearly 18 year become even a figure of national controversy in the news medium there due to fallout from the war on terror and the iraq war live under continuous suspicion and questioning and finally leave my career there for my wife sake to move back to her home country where I am still unable after three year of search to find good long term employment in my field only to have my precious young brother die a very tragic death in jan 2007 follow a year later last spring 2008 after a year of counselling by the announcement of the intent to divorce which in turn was follow a month later by news that my very precious aunt at the young age of 63 was diagnose with brain cancer die a very slow and painful death over the span of last summer meanwhile try to cope with ongoing divorce discussion in the midst of that ordeal I sometimes marvel that I still have the will to live yet alone believe in a bright and hope fill future with new beginning but that is indeed where I stand presently as I join this group believe that somehow I will be able to make a new start at this somewhat late and broken hour of my life even find fulfillment of heart and soul in this world before my time come to leave it and to think it is I after nearly five year of ask with little cooperation that we seek marriage counselling in order to save our marriage who is the one request a peaceful end to that sacred trust for reason which I will not devulge in full respect of the intimate trust which my wife place in I for 16 year anyway thank for listen may you find peace hope fulfillment and even joy in this precious though sometimes painful gift of life,negative,0
I could really do with some advice or some hope either would be greatly appreciate I will try and explain my situation my mother age 87 recieve a cortisone injection to her shoulder through a general practitioner on a home visit my mother have a history of numerous ache and pain in her spine over the year as you would expect at 87 year of age and have been reasonably stoop over in her stance for at least 4 year unfortunately I live a four hour flight away and am care for my husband with terminal brain cancer and all enquiry as to my mother health is meet with a no conculsive answer from medical staff and my mother is too ill to know what the hell is go on at the beginning of may this year her gp make a home visit to administer a cortisine injection into her shoulder joint within 12 hour approximately time as my mother was find uncconcious was critically ill as previously state I am try to work what is happen from thousand of mile away so I am totally unsure of my fact and can only relay what my mother have tell I when she have been well enough or what my sister have tell I over the last 12 week my mother have been keep in an isolation ward she have been on an iv up until 2 day ago from what I can gather she end up with a major infection in her shoulder which she receive 4 operation to have the infection flush out septicima endocarditis bladder and bowel operation and numerous skin laceration mainly on her leg there is talk at the moment to replace her heart value and do a re construction on her shoulder neither of which she feel up to she is in a great deal of pain both mentally and physically and long to see sunshine have anyone have a similar incidence happen to they I really am stick in between a rock and a hard place is there anyway I can make the doctor explain what is happen I just get the feeling they are cover something any help appreciate,negative,0
I was look up anxiety online and find this group so here I am basically I have a huge fear of die and it is so bad that it effect my daily life I have have an anxiety problem since I was a small child and I wish my parent would have recognize it maybe I could have get help and would not be in this situation today not only do I have a fear of die I have a fear of doctor mostly because I am scared they are go to tell I I am die in the last week I have look up the symptom for cause of at least 100 thing include congestive heart failure pulmonary hypertension bone cancer brain tumor cancer sleep apnea rapid slow heartbeat miss shake hand tremor shortness of breath tightness in the chest chest pain numbness tingling and many many many more thing I can not remember at this point I have a baby almost 2 month ago and up until then I was pretty good at talk myself out of my anxiety but since she is been bear thing have just get so much bad not only am I scared for myself I am scared for she I have high blood pressure which was only discover because when I get pregnant I have to go to the doctor I was scared to death at every visit and go nuts every time I have to wait for test result I am 50 sure that my high blood pressure is mostly because of my anxiety problem 3 week after I have my daugther I have to have my gallbladder take out I cry the whole time they were do the sonogram to check my gallbladder because I was so sure they were go to find some kind of cancer they do not they have to go down my throat with a scope to remove some stone that have get into my bile duct which cause I to have jaundice imagine how much I freak out about that again I was scared to death before they put I under to insert the scope again they do not find anything and everything was fine I was scared to death when they do xray because I think they were go to find spot on my lung or something equally bad again they do not I can be watch tv or talk to someone and if something is mention about someone being sick I have to google their symptom and I am pretty sure the next day I have exactly the same thing they have have I try to keep my sense of humor my main fear use to be cancer now it is everything my boyfriend use to be good at support I but since it have get so bad he get annoy more than anything I can not say as I blame he I look up the symptom of so much stuff every day when I leave the hospital from have my daughter they prescribe I lexapro I take it for a few day and it seem to just make my anxiety bad I thinkg I freak out twice as much so I stop take it I am debate about whether I should try to see a counselor and get on some different medicine I feel like I absolutely can not live like this anymore especially with have a 7 week old baby that need I at my good my long rant is over I just want to see how many of you feel the way I do,negative,0
hii have not post in here myself yet but here some background I am 20 I go to school full time I am live at home with my parent for now I have have a lot of issue with stress about a year ago I go to the er feeling light head and out of it I get a mri of my head and a chest xray both were fine then I was allergic to a drug they give I and end up have to stay in the hospital with heart issue for a few day they let I leave and just put I on paxil I do not like paxil I have the bad side effect a year go by I go to therapy frequent doctor visit and so on well now I am really worried I have been feel super weak and slow and I feel like my vision is mess up like if I was stare at the sun those little spot show up I have get bad headache usually in the back of my head I feel nauseous too my mouth is always dry I have been have the bad nightmare in addition to all this last night I wake up shake and I do not know what to think do I have like a little seizure or was it just like a spasm I am just straight up scared it could be anything from a vitamin deficiency to brain cancer I go to the doctor again yesterday a new one she s run a bunch of blood test and she suspect I have ovarian cyst so I get an ultrasound too I ask she to do an mri but she say she could not without like a well reason because the insurance would hassle she I have to wait 2 week to go back and I feel like that s way too long I just want to know if something is wrong I also have really bad allergy I do not know I have thing I need to go out and do and get do in my life but I am like afraid to leave the house I just do not want to feel so shitty anymore,negative,0
hey friend I need help please listen I post something back beginning of july and I mention the fact I have no health insurance mention also that I do not qualify for obamacare as our household income is strictly ass death benefit non taxable income also having say that our income is waaayyy over the limit for I to have any medicaid or subsidy that ga offer to those who qualify one or two of my dear friend here at ds write I probate message with potentially helpful information and I have search my message and I do not know which one or two of my dear friend give I this helpful advice if you re read this and you were one of these dear folk please message I I just speak to humana out of sheer desperation and curiosity to get some sort of quote for health insurance for I at 45 non smoker I speak to what I can only describe as a condescending who overtake I and who might I add get his handed to he on a silver platter before I end the phone call I do manage to hear he say it would cost I 500 600 per month at that point the amount was lose on I I prepare to then tell he what I think of his treatment of I anywhoo please I am not good today allow I to say I have not scream at anyone like that in I do not know when year maybe so unlike I however before anyone I would not expect this from folk I know here and care for here throw judgement and or ugliness at I for a not have a job right now after nurse my husband through stage 4 brain cancer for four year and care for four small child who are now only under the age of 8 b post this please be kind I am just have one of those day and you have to know its bad enough for I to open myself up like this thank you in advance for let I vent and for understanding,negative,0
I am 34 year old I turn 35 11 10 it is hard to say if I have a history of depression or deprssive tendency or if there is a difference I have been on ani depressant a few time over the last 15 year mostly they have correlate with issue my now husband then boyfriend fiance husband were have problem I also have a very low self esteem I think that have been long before he and I were together and still exist today I place a lot of my worth in my apperance my weight my social life acceptance of other a friend of mine who I have know for 19 year say he do not know much about I just frivilous thing I choose to share wonder if I know I myself my biological dad I do not know my mom is mentally challenge I was raise by my grandparent my grandmother die in 99 at 57 from brain cancer I watch she die then my pap have to find a small place we were in housing so I have to basically move in with my now husband quick than I would have yes I question what life would be like if that have not happen my aunt die a year later of aid I have been in way too many abusive teen age relationship physical mental sexual I am now a proud mom of an 8 month old she was conceive though during a pende divorce my husband have lie to I and my close friend say he go to see a doctor and was sterile hence unprotected sex hense my daughter I love she and would not change a thing that happen but its not like he and I are back to where we should be yet I am on lorezepam 5 mg for sleep I have have insomnia for around 8 year my husband say short I think long we sleep separately cause he snore loudly and it work for I I have to log off but ill write more latersteph,negative,0
this is my first post here I am 28 year old and lose my mother on january 6 2011 my mother was 48 year old and lose a battle with brain cancer it was unexpected ever since my mom pass away my life have been fall apart ever since I have a counselor and numerous support system but her passing have really take it is toll on I I think I pretty much have have a nervous breakdown I lose my partner that end up take off on I because I mess up our relationship I end up cheat on my partner about a month after my mom passse that is something that is not I he end up get angry and get physically abusive with I I lose my job my home my friend the only thing that I have is my dad and my brother and god if your the christian type but I know that they will eventually leave because they are in the service then I will have no one when time have been rough I have always have my mother to count on it do not matter how bad life was the only thing that matter was she rub my back tell I that everything is go to be okay even though thing seeem to get bad I always have that confidence that they would eventually get okay I find myself get angry and get upset look at other people that have their mother well into their old age I work with this lady that is 60 talk about her 80 year old mother I get so jealous everyone around I talk about their mother and it make I sad all the thing that are apart of life that a mother should be at my mother would not be there I have not get marry I have not have child yet that make I so sad because I would not have a mother to ask about those type of thing think about all the thing that I care about are no long there make I even more sad I sit here and I think why I why do my life have to fall apart the only thing I can be thankful for is that my dad is here and is apart of life because he is the only thing that is not spiritual that I can fall back on it make I scared am I go to lose he too real soon,negative,0
my aunt die this morning she was 53 so only 10 year old than I and more of a friend than an aunt she is my dad young sister we only lose my dad mother last year she was 102 year old my aunt geraldine die of cancer of the brain after fight various cancer for the last ten year of her life we know she would die I go to see she on sunday and was sure when I leave I would not see she alive again I hope I was wrong but I was not the thing is I get the call this morning to say she have die I immediately want to phone my ex I can not believe that I honestly never think that I would look to he for comfort again when my gran die last year he give I no comfort do not come to the funeral with I go away for a boy weekend the same weekend she die and do not call to see how I was and yet he was who I want to comfort I I really think that I was over he that I would never consider he as part of my emotional make up again I suppose as well as being sad today I have learn that its go to take a bit long and a bit more work before he is go for good,negative,0
this have been happen since october headache stomach pain low nausea constipation shortness of breath shoulder pain low back pain incontinence which make I think I have a spinal tumor heavy feeling in legsover the past 4 month I have have spinal tumor meningitis cauda equina sciatica hyperthyroid brain tumor celiac disease osteosarcoma bone cancerhas anyone have these symptom please please help,neutral,1
I find a lump a couple week ago at the top of my left breast it is about the size of a large grape it can move a bit and at time is uncomfortable not really painful but I can feel it though I have a large tolerance to pain I read on here different thing what do movement have to do with it what do hard or soft lump mean what do pain mean I know this may sound stupid to some but I have just recently have brain surgery for aneurysm and I will be go in again for another brain surgery this spring 2 more aneurysm to clip deal with aneurysm and face death have been a lot to deal with and at this point if I now have breast cancer I would rather just lay down and sleep till my box is ready on one hand I want to find out and know on the other I think this may be god way of say I am do now and I should just enjoy what is leave with a smile what are the chance of it being cancer with all the crap I have have to fight in the last couple year I do not think I have the energy to fight this now if I just ignore it how quick would it spread do it spread I know I will be ridicule for not want to go in but with what I am face with these aneurysm 70 90 mortality rate and the risk with the brain surgery to save I I would much rather get that deal with to know if it is even worth try to fight cancer too I feel if it may be cancer I may just skip brain surgery and grab a bottle of wine and spend what time is leave smilin till I pop,neutral,1
let I begin by say that I have enjoy the few day that I have been an member of the esophageal cancer group fred have so much knowledge and suzie get my joke I especially hope that I can stay in this group even though I have a fairly uncommon metastasis esophageal cancer have go to my brain my profile have a brief discussion of the brain surgery last summer there have been ct scan and mris since then and all the news have been good except for today the mri was complete about 3 30pm even though I have an appointment with the neuorsurgeon on wednesday my oncologist call about 6 00pm to ask how I was do and deliver the result six metastatic brain tumor were find and I was instruct to start take steroid to reduce swell immediately I have been take anti seizure medication since last summer the news was really not surprising I have have an almost instinctive feeling while not feel perfect I do not want to cry wolf with esophageal cancer you develop a high threshold for discomfort and pain if you folk let I stick around in this support group and share my brain story it may benefit someone else who survive the first attack of esophageal cancer only to become a head case like I I am do ok with the news and contemplate how to move forward more later and thank for listen patrick,positive,2
okay so basically my mother pass 10 year ago of brain cancer I was 14 it tear our family up it was just I and my dad leave my dad was very mentally abusive tell I that only two people in this world would ever love I and one of they is dead he being the other he tell I this for year he would come home everyday drink himself to sleep and wake up and do it all over again I never really get a chance to grieve I immediately was throw into you need to do everything around the house and if I ever was sad or upset his response was always life is for the living get over it he was allow to grieve but I guess I was not he finally re marry she was nice at first but that quickly change I meet my husband shortly after they marry when it come time for the engagement long story short thing do not go the way she want so instead of she and my father being happy for we she get mad and ruin it when it come time to look for a wedding dress she tell I to pick one that I like and to show she later when I do show she later she hate it and say she do not get to have the experience of the dress shopping now that the wedding is over she is claim my husband and I do nothing but shit on she and do not give she the recognition she deserve my father and step mother have been and are continue to just make our life miserable she is tell I to go rot my father have tell I I have do nothing but ruin everything I am not saint and there is no way in hell I am perfect I mess up all the time but I never think of myself of a bad person with they I feel like I am not worth the ground I stand on I do not know what I am do wrong any time I try to tell they how I feel the response I get is its all in your head or you re dead wrong I wish I know what to do,negative,0
cheryls loopt july 21 2010about meif there really is such a thing as your heart sink I belive mine have in the last couple of day my heart grive for sam I know what it is like to loose a grandparent that your so close to and even if she is still here every one know what the outcome of brain cancer is even with treatment I know were not suppose to qwestion god and his work but when it come to the issue of sickness and death I can not help myself I hate death it is just take so many people that I love away from I I have have to watch other people I care about suffer because they have lose someone they love I do not would not to watch sam suffer she is suffer enough in her life by her own hand and other I wish I could just take it all away for she I wish I know the right word to say or the right thing to do to make she feel well but I do not you might think I would know what to say or do as that I am well aqwante with death scince I was 16 I have lose 2 grandmother 2 grandfather 2 great grandmother 2 uncle I never know eather of my great grandfather they boath die before I was bear my point is we never get use to the idea of death if we do we d be twist sickos anyway I just wonna be able to tell sam all these thing but for some reason I can not I am just as shutdown in that department as she is when it come to matter of the heart even with that being say I have to find away to tell she I love she I am here and would give my left before midday to take all her pain away please god if you ever love I do I this one favor and watch over sam she need you right now this is what I find on my bestfriend loopt today after the cutting liying and decet have almost tear we compleatly apart for 2 month now what do I say to she I have been si for so long I cat just stop but what I am put she trough is kill I on the inside what do I do,negative,0
hi everyone I have been go a long time my mother become very ill two and a half year ago I have been take care of she and my age dog night and day it seem god have been test I I hope I pass just after the flooding was fix my mother was diagnose with brain cancer and need I more than ever I was just wear myself out after she pass away on may the 26th the next day my poor old dog die then I was rush around with my sister get thing arrainge and pick up a stomach virus I throw up and have all of the other unpleasant thing that come with these thing well I just keep get sicker and sicker and sicker until I feel I was at death door I almost call 911 a thousand time but feel that if I drink water and pepto I would soon be fine well that is not true I was tell by my dr yesterday that the medication I have been take since 1997 for my neck injury drunk driver hit I can kill I if I miss one dose well I am furious and want off this garbage I do not know how I miss this important news I remember take as prescribed but not the you could die part I take morphine long last and oxycontin fast release and nuerontin I should say I am get off all of this crap it is not worth it I want my life back it is like being a slave and when she tell I that I was not a drug addict I was just go through withdrawal it do not ring clear or true I need your help what do you all do for severe pain is there anything out there that is not narcotic but work any tip helpful advice will be so appreciated I even may consider the third surgery to fix this nightmare of a neck help I do not want to be one dose away from feel like this every again the bad part of it is I feel like hell and probably grieve ten time as hard for the last two week than normally I would have I am still devistate I just lose my two good friend in the world but I will get my freedom from this pharmacutical slavery thank you for reading and for your comment cynthia paindora,negative,0
we d my son go to see a psychiatrist that his primary care phsyician suggest to help with his adhd now the pshyciatrist is not so sure my son is adhd and have now diagnose he as have social anxiety disorder as well as being depress today I get an email from the school counselor state that his english teacher forward a writing assignment to he that have they all concerned and would like to have a group meeting with myself and all my son teacher the email from the counselor do not give any detail as to what about the assignment concern they or anything just leave it very vague so now I am stick at home all weekend worry about what they heck kind of counselor would communicate a serious concern via email without any type of explanation at the end of the day on a freakin friday I am at a loss and have been all school year even though it have only been 9 week it have been so very stressful assignment not getting do son not want to go to school never ask for help no friend and so on this year for some reason have just been extra rough we both cry try to figure out his homework assignment because he can not seem to focus enough to take note and now a day the teacher get the assignment off the internet and do not follow the book he is on straterra right now but the shrink double the dose and say if no change after 2 week he would take he off of it and then we would start work on cognitive skill and med for the depression right now I am in the guilt stage I make he this way he have a lot of problem that is paralyze in his left hand super emotional touchy subject with his dad with whom I am divorce from who was diagnose in 2002 with brain cancer and although he is do well than expect the 2 craniotomy leave he with several mental and physical disablilitie we move into our new home over 1 year ago and that have been rough on he and so on and son on,negative,0
hello everyone I am new to this board I have been kind of wing it since my partner of 21 year go to be with the angel I have good day and bad day I also suffer from numerous ailment that do not make thing any easy lorie and I were so very close we have never been away from each other even for a night she find out 8 month before she pass that she have brain cancer I go thru the terrible mess that go along with that deadly disease with she I bring her home for hospice I would not have have it any other way but it is extremely hard to watch your love wither away I was in shock for so long I do not know what to feel I just cry and scream for my lorie day go by I get some comfort from talk to friend and her family month go by I begin to feel a closeness with she she was here I experience other little sign that we have discuss before she pass and I was thrill in the past 2 week it seem like she is not as close I still talk to she like I always have I do not feel the blanket of warmth like I was feel I keep wonder if I am do something wrong I cry cry and cry some more I know part of it is that I have general depression but I am on medication for that I also lose both of my fur baby shortly after lorie they were 18 year old and very sick they were brother and sister so I opt to send they across the bridge paw in paw the female was my baby love I was crush when she have to leave she have kidney failure for now I am come back to ds to see if I can find some solice,negative,0
hi I wonder if there is any one out there who have have there esophageal cancer spread to tumor on or just under the skin my brother is 49 yoa he was diagnose 1 yr ago as early stage 3 he go through chemo and radiation and then have an esophagectomy in june 09 everything go as well as it could consider the aggressiveness of it all everything post op show he was free and clear of cancer last month we go back for a follow up he mention to the doctor that he have a knot that have come up on his leg long story short it come back malignant after a pet scan and mri they also find another knot tumor in his shoulder have anyone else have their esophageal cancer come back this way most of the research I have do show it usually spread to the lymph nodes lung brain we ve go from being cancer free to 6 month to live,neutral,1
most of you know between my eye surgery my sister battle with cancer and my conflicted feeling about my ex I really do not need any more hit yesterday my ex inform I that his mother cancer have spread to her brain the outlook is very bleak hospice care is already involve then this morning I find out my grand daughter have been in the hospital with a new issue asthma son do not want to worry I with all that is go on she is out now have an appointment with a specialist tomorrow if nothing else my family is keep the health care industry go,neutral,1
praise our god above dad have an mri of his brain and there in no cancer thank all of you for your thought and prayer for my dad he will see the surgeon on thursday to discuss his biopsy of the bad lung it will be a rough surgery his rib is in the way please continue your prayer and kind thought I can not tell all of you how appreciative we all are if I can pray for any of you please let I know our god is an awesome god he reign from heaven abovewith wisdom power and love our god is an awesome god,positive,2
17 month ago I have an abnormal mamo they do a core biopsy think it was dcis then a partial mast show invasive stage 1 have a second surgery to clean the margin and check lymph node that were clear it is estrogen not genetic they put I on tamoxifen and I have rad for 7 month I do not know if it is the med or rad or the menopause I was throw into but my memory is shoot I feel dull brain I am tired my hair is thin my waist is thicken and now a pelvic ultrasound show that my uterine lining is very thicken which is can be a direct result of the med my gyn do a biopsy on we d and before the result have return want to sched a d c he say the lining is normally less then 5 tamox user 8 1 and mine is 1 6 have anyone else have this thicken uterine cancer similar brain hair issue on tamox rad if so have anything help,neutral,1
my father die a few year ago of lung cancer he live 3 month after his diagnosis and die during his radiation because it have spread to his brain my mother is recently undergo radiation treatment for lung cancer now this have I so scared know that my family is being take from I my thought and feeling are go to burst,negative,0
my mother is start next week since nothing else seem to be work her oncologist give she about 1 year to live and that is with this treatment is there anyone who is on this treatment and can offer some more hope then this postscript her cancer is so aggressive that even with whole brain radiation a new brain tumor have surface,neutral,1
I leave my abuser about a month and 1 2 ago and move in with a friend from ds I admit I hate give up my home but I feel I have to get out the violence the infidelity with woman off tag being compare all the time to these beautiful woman who do not have any problem and how I pay all the bill this have leave I with my depression being severe low self esteem and of course I have a sister die with brain cancer the most difficult part was give up on something which do not exist a major player he give I so much attention all the time when we first I say he was my soul mate and how I need he in my life to make all my decision I have a good pay job and give all that up to be with an abuser from heck he was a mama boy and every stink decision he make related to they I was always put last man all that hurt and what do he tell I I was the selfish one I was the one have the affair and how nobody will ever have I because I have anger issue I leave feel like a dog and I do mean a dog I have to talk about it too I can not just walk away and forget it the scar are unreal I feel like I will be alone forever and how I will never find love again now I am not look for love right away as I have some major issue to work on I am under doctor care get ready to go into counseling again my med have been increase and I have day where I feel so hopeless and worthless I have move to an area and I am out everyday try to get a job and still have not land one I just go to the doctor friday and tell she about my anger issue as I have they she look at I and say you think you do not have a right to be angry and hurt look you have a sister die with cancer you leave an abusive relationship for which she say she was happy for I you foot on the bill he cheat on you and you give up your home however I am dumbfound as to why I get so angry anything that remind I of his woman just make I so angry I know they will all get what I go through but his family hate I so bad and they always insult I I just wish I could find a way to handle my feeling I know there is not a magic cure but I also know that I fall for his lie out of being needy needy for attention it was fake and when it was take away with his other woman it hurt bad how do a person cope I know I learn a valuable lesson but try to find thing to help when I see other happy couple is hard,negative,0
you wake up in the morning and fear the day wonder if it is worth put the kettle on walk the dog eat breakfast you keep check your gland you keep shine light into your eye to see if there is any swelling you get a fever dizzyness soar throat for three month you start to believe you are die well this is I I am 17 and everyone tell I I have the whole world as my oyster but to be honest its hard to believe being a hypochrodiac can be use lighty by people as a joke but it is not funny I have been to a pharmicist for my illness which I am still suffer from whatever it is a walk in centre and have a full check up another check up at my practice then a final one at the hospital accompany by a blood test which come out clear but and this is the funny one I hear you say I still believe I am die I still get weird noise at the back of my head still get migraine and neck stiffness swollen gland so if it is pyschological why have not it go away why do I feel tired all the time why am I constantly fear a brain tumour as the month progress it all get bad I go to see a chiropractor but the expense was too much for I they fuck my neck up and now it crack all the time I keep take paracetmol to mask the pain so I would forget everything I would check obbsessively for type of cancer in teen on the net I still ask people in my house deviously if I look ill or well than yesterday nearly everday even 3 day ago I do have pain in my head all the time that can not be deny but I would rather have something like mild brain damage than cancer at first I think it was cancer of the neck and when it strain on my heart I think it was a heart condition and then finally the dizzyness loss of coordination headache and the like make I fear the bad my actual symptom have improve a bit but now I have short term memory loss which is odd and can not spell as well as I use to so I believe I am a gonner I am too scared to go to the doctor because they will tell I I am die I am have scan soon but am scared about that too but at the same time I just want this all to leave I alone forever I would do anything now to stop everything I think even morphine tranquilizer heavy sed anything please I can not suffer anymore,negative,0
perhaps I have skewed expectation when consult a physician perhaps I am just old I do not know I expect that when I consult any physician I will have any test go over a diagnosis give if one is possible an explanation of the diagnosis treatment option prognosis then any question I have answer when I see the gi doc all that take about 30 minute a luxury in manage care I know but I am lucky I go to the va for care and 30 minute is the standard appointment time but the gi doc go into great detail he draw picture and even hand write list of food include brand name he is a wonder and waaaay over the top the one I see previous to he give the same basic information in about 15 minute you ve get this this is what you need to do and this is the most likely outcome if this happen do this I usually only have a question or two because he was thorough the neuro yesterday tell I I have a pineal cyst and chiari malformation show I the mri which have just been do ask about my symptom take a call and apologize because he is on call he express his sympathy and understand my concern when I say my mother die from brain cancer he do a mini neuro exam then say I would need mris annually for the next few yea but not your whole life and to see an eye doctor because he could not see my brain my pupil are small due to myopia then he say you can call I for the result rather than drive to miami in the rain hand I his card and ask if I have any question uh no I think I have just been dismiss the card have at least 3 phone number on it to schedule surgery for medical record billing and administration he do not mention which one to call so I guess I will have to be goldilock to see which one is just right if you re still read I would very much appreciate your expectation when you visit a physician maybe I am out of touch and this is how they treat patient just tell you this is what s wrong and that is where it is have a nice day now if so I would not contact the patient advocate or ask for another neuro consult with someone else the neuro I am assign to never bother to address the issue she only treat the migraine she have not order the mri so I am unsure she is even aware of the chiari it was the pa who treat I who receive the result and he too act as if it was no big deal although I have symptom I am angry and afraid and want to speak with a physician who will answer my question but if there is little chance of that I do not want to waste my time and become more frustrated and depressed thank so much for read,negative,0
its so exhausting to be strong all day long today was a long day and I was strong and smile and happy and that s just not how I feel so I fake it all day and damn am I exhausted it take so much energy to do that but it was important to my mom we go wig shopping and she have her brain scan today you know what fuck cancer and that s what I have to say today marie,negative,0
my cousin who have cancer recently find out it have go to her brain please sne up prayer heal thought for she and her family,neutral,1
hi friend I just find out my aunt father old sister kidney cancer have now metastisize to her brain there is a tumor behind one optical nerve she was admit immediately for 5 day of radiation she is 80 so this will be really rough on she I do not know what to say except to ask for your prayer and positive thought for she and my cousin were pretty close and one just put an offer on a house here to be close to the family I hate cancer,neutral,1
it is novemberby diana it is november and the bare tree remind I of the wind and the rain and the leave fall like our life fall when we find that you have to fight for your very life and your very breath you foughtit was cold it is november and as people throw wish like snow ball rocket toward the icy sculpture of my being I wish the thunder pound in my mind would quiet to your beam smile and your tip toe would find their way back to my heart I see the picture of you smile at I and for the first time I fear the person that you would see smile back at you sunkin sad eye that know the brutal reality of thing like brain tumor and cancer and chemo therapy and radiation then I feel your hand once more on my heart and in the breeze I hear you softly whisper I am here babe I will always be right here in your heart,neutral,1
hello everyone I have not been here in a while but feel I really need to share I amstill mourn the loss of my mother dec 5th 2007 I think I was handle my grief well but seem to have take a few step back at certain time I am still overcome with grief and miss she so much I just can not explain I guess the last 4 1 2 month have been just plain hell for I and very painful not only have I lose my mom but in the last month I have lose a cousin to suicide a very special auntie have pass a dear close friend have her breast remove and just yesterday find out a very special friend have brain lung cancer I feel so sad empty I do not think I can handle much more I just want to be alone and can not be bother with thing I normaly do anyway thank for listen and allow I to vent,negative,0
have been really out of it lately can not think well can not focus or concentrate can not remember simple thing like how to do the most routine task for work then today I have to take my kid to the airport do not really want to but it was really important because their little half sister was just diagnose with brain tumor and cancer and noone else could take they and I got lose on the way home I am not sure how road just do not look familiar and somehow I miss an exit or turn and I was have a hard time figure how to get back home or even what direction I was go as I get more and more lost I start have acute anxiety my heart was race I finally make it home after a couple of hour of being who know where not even sure how I am so scared now do not want to leave home not diagnose have appt with neuro in few week have a really hard time work is there anything I can do that might help,negative,0
hello all gosh it is been a while since I have spend any appreciable amount of time on here and once again I am remind of how much I love and appreciate daily strength early this year I discover a blog write by another young woman who is struggle with prolactinoma she have take a very non standard route in treat it I was intrigue I know many people will be skeptical but here go anyways she use a combination of different essential oil and certain herb to treat herself she rely primarily on essential oil of frankincense and use other oil to supplement and complement it she also use certain vitamin she is very smart and have do a lot of research into the working behind prolactinoma infertility and the way essential oil work I know most people probably think of the aromatherapy craze about ten year back when they read essential oil but most of that was just hype nice smell lotion and candle can not really heal your spirit real aromatherapy and real essential oil therapy on the other hand do seem to be back up by a lot of science recently I discover an article about an african doctor who is research the anti cancer property of frankincense essential oil turn out frankincense have very strong anti inflammatory property somehow this make it good at fight tumor I am not familiar with the science behind this bit but I have read in many place that essential oil are effective because the small size of the molecule make they able to pass the blood brain barrier brain cancer is assume uncurable because the chemical use to treat cancer in chemotherapy are not able to do this so obviously I am not a doctor and can not tell you that this will work or that you should try this instead of follow your doctor order and neither can the blog writer in other word the blog is not intend to diagnose or treat disease and neither the blog writer nor I can be hold responsible for your decision but I find it very worth investigate especially since this ladys been off her med for a while have finally see her prolactin level drop from the 200s to 6 7 see her blog post on 10 21 see her headache go away her stress level fall and start have her period again check it out http ihaveprolactinoma blogspot com once you start look around you ll find that there is a lot of discussion about what make an essential oil good you can not grab the essential oil down at your grocery store you have to really research the testing and purity of the oil you want to use and make sure your distributor is reliable I am excite I have have a really hard time with my bromocriptine in recent month it seem to have build up in my system or something because I can not even take 2 5 mg in the morning without get dizzy and nauseous to the point of throw up it make I cold and numb and shaky and nervous I hate it and since I am change job soon I am go to lose my health insurance last month I go to a naturopath for the first time it was a really good experience she listen to I she explain thing to I and she seem to have a comprehensive understanding of all the issue surround this disease she do not just say okay you have this disease take six pill of this per day and report back here in a month she explain how menstruation work how prolactinoma develop accord to doctor speculation and how nursing hormone and stress all play into this I would been take vitex for month but she advise I to stop I guess vitex is a tricky thing to prescribe it may or may not work depend on your individual chemistry just the right amount can help you balance your hormone but too little or too much may throw they off and make your prolactinoma worse anyways I am interested to see what you all think I hope you give the idea a chance and check out her website,positive,2
I recently discover one of my child have a learning disability that I am deal with with extra help very expensive and just find out today that my dad cancer have return in his brain can not deal with it already have 5 drink beer do not worry it take alot more than that to get I,negative,0
hello I stumble across this website while do internet research for disease I think I have yes I am a hypochondriac and lately I have been have difficulty keep my anxiety stress down because of my hypochondria I do not really develop anything until last summer when I become ill I research my symptom and give myself an hiv diagnosis without do anything to warrant the virus look back I feel that I fuel the pneumonia with my elevated stress and anxiety level since then hiv have been on my mind off and on part of I still think there is a chance I have it and then I take a step back and think logically and realize it is not possible early this year I suffer from a massive sinus infection I google sinus infection and hiv pop up again scare out of my mind I leave work early and go to the clinic to get re test long story short I recieve an initial false positive and live with this diagnosis for a week until the final test come back I was negative but this take my hypochondria to a whole new level about a week ago I have chest pain for about 3 day no other symptom other than a dull achy pain in my chest I self diagnose myself with a heart attack and right around the time that I make this diagnosis I start feel tingle in my left before midday and foot I go to the emergency room and have an ekg and check up everything was fine look back I think I have a full blow panic attack I was extremely stress during this time and I feel it only make the situation bad my doctor is aware that I am an anxious and otherwise healthy person and say that it is all anxiety induce since then the chest pain have completely go away but the tingling feeling still bother I my stress and anxiety level have not come down al week and I feel it is fuel these pain I am feel when I am out with friend or have a good time the tingling go away when I am sit at home or have a few minute where I am able to think about thing the feeling return sometimes I wonder if the tingling is even real logically I know this is all stress induce but the hypochondriac side of I continue to research thing like brain tumor spinal tumor skin cancer and miss I have self diagnose myself with all of these thing at one point this week it is really a battle in my head that seem to be increase my stress and anxiety I have lose interest in most aspect of my life I tend to just sit at home usually on my computer research thing I feel like I am alienate relationship around I with my obsessive tendancie I am a 24 yr old recent college grad work 50 hour a week at two different job the industry I work in is extremely stressful and I am constanty worry about my financial situation student loan car payment credit card payment on top of all this I have have three different major family health crisis to deal with in the past 3 year lung cancer colon cancer brain tumor that I think spur this obsession with my health instead of worry about my physical health right now I know I should be worry about my mental health but it is just scary and difficult,negative,0
happy new year to all of you may this new year bring more ned to many of we and containment of ec for other were all lucky to still be here and to have learn the preciousness of each day sometimes I think that nothing short of face this beast could bring out the knowing of how valuable our time really is as I have write before I currently have three friend who are terminal one with ec the other with brain and colon cancer I frankly can not imagine my life without this experience though I would wish it on no one for I there have been so many gift and enlightenment from the journey which would otherwise not have manifest in my life would I want to go back nearly four year ago and do it again hell no but I am very grateful to have have something so traumatic happen that I was force to learn just how much of a survivor I really am more than anything I no long fear death even as I embrace the life I do have with gusto and so my fellow traveler allow I to thank each and every one of you who ve become such a special part of this journey for your unending support and responsiveness nancy,positive,2
I am a 5 year breast cancer survivor as of march this year last week go to see my retina doctor due to unusual eye symptom and he is refer I to have an eye mri tomorrow follow by a brain mri in two week I am worried that my cancer may have metastasie to the optic nerve in my brain today I have my melt down and have to take an extra klonopin to take the edge off last week I see my oncologist and just being back in that environment bring it all back to I so I am scared which also bring on a migraine which I am fight off now wish I luck tomorrow thank you for listen,negative,0
I get a phone call yeterday from the oregon clinic that my insurance say they would not pay for my surgery in december 2017 my heart hit the fucking floor I feel so doom right now my credit score have already fall 11 point this year I can not take these past due bill that blue cross blue shield say they will pay but then hma have to say no to first yesterday I get a notice from the people who do genetic testing in may last year state the exact same thing may test and bill is present to I in february the following year I talk to a representative from hma this morning who say that its normal that when they recieve a request from a doctor to cover I that they send I an eob but they do not send it to the insurance company that need to see the eob the actual company who will pay for bill this is not something I was aware of nor do any freaking support group or person advise I of this fact its like I should have only been worried about my health and not I and my daughter well being so I am spend a lot of my day go through a stack of eob that were send to I and send they to who need they its all super tiny print too good thing I can get away with do this at work because it take a long time to remember every doctor you have to see and then find their bill that will be send to you eventually cancer brain do not ever get cancer if you can help it I am go to the doctor as need only for the rest of my life for my seizure only thank to obama I have take the time to follow law and get insurance but the insurance company still make it hard for people who really suffer and have to use their service so I sort of feel like my insurance coverage only make it easy for I to get on the schedule to be cut up I can not go do anymore follow up appointment nor get those nipple or my budget will be mess up again I want to just sit and cry like I do when I was diagnose,negative,0
hi been have abdominal issue for 12yr I should start by mention that I have have brain cancer for 13yr this month and so many of the symptom I have match sooo many other disease dysfunction and what have you I have been get abdominal surgery almost every year at around the same time I have have some massive headache some pretty major bloat along with weight gain almost a different size every year doctor could never figure out my stomach pain was not sure why because it was so bad they have send I for test upon test with no indication of anything over the past few year I have been get blood test for celiac d of course they are always negative as I have recently discover blood test are not accurate enough I live in canada so that is pretty much all there is to test for celiac or so I am tell so since aug 2011 I have been try to stay gluten free I do realize that even one cheat I would still be damage my small intestine the limited amount of food I can eat have not always been tasty and extremely expensive I have lose almost 35 40lb since I start this not exactly how I want to lose weight I have to say I am feel way well there seem to be soooooooooooooo much info that I do not know and do not know if I will ever I am keep track in a binder I get most of my info from a person that I know that actually have celiac disease I hate to call it a disease as this was manmade more like a lifestyle change think I will call it celiac life anyways this friend also have cancer and was actually diagn with celiac life he have a colostomy bag which should I say scare I into try and stay this way as I do not ever want to have that too especially when I hear and see all his struggle somehow he can still stay positive I do not know that I could but then again there would be only 1 other choice if you know what I mean I do have a question though since I am only on this small disability I want to ask about have my fund for medical raise since I am only self diagnose I do not know if that would be possible the disability office send I a form for my dr to fill out I have gather info and reciept and thing but do you think I should wait until I gather more or at least give it more time I do not want to just walk in there and demand more money or anything also I would welcome any other advice that one may not have hear of before,negative,0
I have never see a doctor about my fear I know for a fact I suffer from anxiety but I have never see anyone about it since about 2010 I have have this fear I am die of aid type it now it sound crazy to I I have been to the doctor since then of course and even though no one have say that I have it I always think maybe they forget to check or maybe they forget to call I to tell I that I am sick in recent year I have become convinced I am suffer from a brain tumor and cancer cervical cancer most recently I use to have health insurance but have not get it anymore and have not been to the doctor in about a year I have a real not imagine pain that I sometimes feel only when I bend over but not other time because of this I have been live everyday thinking that I have develop cervical cancer which I sometimes think have spread throughout my entire body and to my brain on day that I have migraine which seem to be a lot lately at least 2 3 time a week maybe every other week sometimes I have ache in my shoulder somestime I have ache throughout my back and arm and leg sometimes my finger sometimes my toe it is cancer I often think it is spread my left knee ache all of the time and progressively over the last several month it is become more and more tight sometimes I feel this pain that shoot all the way up my leg and down to my toe my body is eat my knee I think often the cancer have spread again I am afriad to go to the doctor but then again right now I can not really afford to go because I know it will require testing that I can not pay for the other night I was afraid to go to bed because I think I was go to die in my sleep I have this strange feeling of finality that the brain tumor I might have was go to get I finally on that particular night I have speak to a few friend about this each assure I that I am not die but I can not take they serious because they are suppose to reassure I that I am not die were friend so of course I have also share with my parent that I want to see someone but nobody really take I seriously I have tell they about the pain I am have I have a panick attack in august that was not so bad but it still happen and I tell my dad I can not manage my anxiety on my own anymore but I do not think he really take I serious he gets wrap up in give I unsoliticed advice it is very frustrating anyways I find this website because I was research weak pulse on google I have been feel a little weird tonight convince again something was wrong finally I just think maybe there really is something wrong with I maybe I am a hypochondriac or maybe I just have insufficient health care that have thrust I into a bad cycle of worry maybe both I am not sure exactly what s wrong with I I hope to get the help I need though I have been cope with this for far too long it is become apart of my daily routine so much so that I am not sad or depressed or in a bad mood right now I feel generally fine I just have this shadow of anxiety hang out with I all the time,negative,0
hi all I just join this group because I am really suffer the consequence of severe emotional abuse in my last relationship which end late february I will try to make it short but I tend to blab so if anyone have the time to listen I would be grateful I was with my ex for two year he was never a nice guy very self center and unsupportive I have bipolar and chronic pain almost exactly a year after being together he was diagnose with terminal brain cancer I was horrified I swear I would stick by his side which I do while no family or friend ever come to help I do everything for he financially emotionally take he to all his appointment 9 hour brain surgery week of radiation and terrible chemo it was so drain but I keep at it despite my own issue his emotional abuse go full blow and I discover he was a compulsive liar turn out he lie and was 10 year old than he say he tell I his childhood sweetheart commit suicide know I have suicidal tendency when I later discover on my own that she was still alive and also the father of a 11 year old son which he never tell I about he would threaten to kill himself all the time go out say he was go to jump in front of a bus but then return home shortly all to make I feel bad I start cut and he say I was like a scorn teenage girl and it was disgusting he say he would trade place with I any day he fake hear voice so that i d worry more and think he was schizophrenic once he fake a full blown seizure to scare I out of my mind he would constantly say sorry for ruin your life just to add to the guilt which keep I from leave finally I could not take it anymore after a couple of suicide attempt and destroy thigh tell he he have to move out he say he have a gun and was shoot himself that night but he do not sorry all this is the short version anyway I have now find an amazing man with whom I want to spend the rest of my life I feel the universe bring he to I after all I have been through but I can not seem to heal I feel anger or grief every day I lose all my money when I use to be middle class I have sink into dark depression I have severe trust issue I am just so mad I want to write he a letter and tell he this stuff but I know that could be dangerous if anyone have any advice how do I move on for my own sake and my new relationship I would really appreciate it thank you so muchlollster,negative,0
hello my name is morgan iam new here please excuse the horrible grammar and punctuation this is my personal story about take suboxone I just want people to understand the danger of it I am sure it is work wonder for many people but there are a few of we it is just been something else to get addict to and for I it was an addiction 10 time bad then what I was go through already when I start back in 2005 2006 I find myself with a bit of an opiate addiction I am not go to get into a how all that start that is too long of a story I have hear about this wonder drug call suboxone on a the howard stern show since one of the co host have been take it for his addiction I do some research on it and it seem like it was a wonder drug I make an appointment with a suboxone doctor which is pretty easy and was only pay 60 a month for my visit this doctor really do not care about my back story he really seem just to care about the money I was give he I see he for about 2 year he have I on 16 mg a day for a year and then put I up to 24 mg a day he never tell I when I should take it or how I should take it how many time a day nothing he only tell I to take 3 8 mg tablet at the time everyday so that go on for about 4 year I would go once a month pay my 60 which was eventually raise to 85 and get my prescription sometimes I do not even see the dr I would just call the office walk in and pay the money and prescription was ready for I I would ask the doctor how long he think I might be on the medication and he tell I it depend some people stay on it for month and other year so I think being on it as long as I was was completely normal a few year later my husband and I end up move to a different state and I find out I was pregnant I was pretty freak out about being pregnant and on suboxone but I find a doctor in my new state and he tell I to stay on the suboxone because if I wean while I was pregnant I could have a miscarriage or something could happen to the baby so I stay on the suboxone throughout my whole pregnancy we do lower the dose to 16 mg a day I was actually lucky enough to give birth to a 10 pound baby girl she do show few sign of withdrawal so she have to stay in the hospital for 4 day right now she is a healthy two year old girl thank god during all this time while I was on suboxone I start notice change in myself I was very irritable all the time my sex drive was non existent and I stop talk to all my friend and become very introverted this was completely unlike I to top thing off a few month after have my baby I find out I was diagnose with stage 4 brain cancer I have brain surgery to remove the tumor and I undergo radiation and chemotherapy for a year I am happy to say I have been completely cancer free for the past 6 month it is been about 9 year now that I have been on suboxone I finally decide enough is enough I was so tired of plan my life around my suboxone prescription and worry if I would need a prior authorization if the insurance was go to cover it if I was go to go away what they say early for I ect I get a prescription for something call gabapentin and stop take the suboxone the gabapentin really help with restless leg syndrome and muscle ache my withdrawal have really not been that bad I am only on day 4 but I have hear the bad part of withdrawal are the first 72 hour and I make it past I am extremely tired and a bit irritable and I am have a hard time motivate myself to do thing but other than that I am feel pretty good please wish I good luck I am start therapy next week and I want to be free and clear of this for the rest of my life I am not try to bash suboxone this is my story and what I go through I am sure that it is help million of other people I just want to warn people of what could happen thank you for let I share morgan,negative,0
I post about 4 month ago of my son friend zack who have testicular cancer that spread to his lung stomach and brain after chemo he was do well and the cancer marker were go down a few week ago he have surgery and it go well I just speak with his mom and now the cancer marker are on the way up again I just sit and have a good cry I know we do not know when we come here or when we leave but it is such a short time when you leave in your twenty my heart go out to his mom so kind and loving and zack have always been the sunshine that walk into a room big smile and say nice thing about people in the end if thing get bad he will accept it have too but I am sad for the family and with cptsd I get super sad all day and I know this is not normal any suggestion prayer to please for he and his family thank,negative,0
my mother was diagnose with small cell lung cancer in march this year she have 6 round of chemo each round consist of 3 session and 25 session of radiotherapy to her lung and by all account she respond well lung clear the cancer then spread to her brain and she have since have 5 session of whole brain irradiation again the tumour respond well she was do ok not great but manage a bit and no huge pain she have now suddenly go down hill rapidly trouble walk no appetite tire nauseous and very confused the doctor have say her scan all look clear when ask why she is do so poorly they look at I like am a bit dim and say she have cancer and is die anyway do anyone have experience with whole brain irradiation I think it have give is bring on dementia or my other thought is maybe it have spread elsewhere outside lung brain I do not think she have the strength to go back to hospital for anymore treatment so I think this will be it now due to work family commitment I have not been able to get to she this week and I am out of town next week I feel guilt that I have not do enough for she I plan to quit my job in about 2 week but worry this may be too late have anyone been down this road prognosis I am so sad and I am also constantly nauseous sick with worry I love she so much I do not want to screw up,negative,0
hi everyone my name is megan wygal and I need a miracle my mom have stage four colon cancer it all start in 2007 as stage one she undergo radiation and chemotherapy which seem to be a success she was in remission until last april it turn out that the cancer metastisize in to the brain there lie 2 good sized tumor she have brain surgery which was not effective because the tumor were too close to main artery so they do brain radiation treatment for a few week they were effective in shrink the tumor but definately leave some emotional damage she is in remission now but unfortunatly because the disease is now in her blood stream it can pop up whenever and where ever it want to she have been give a timeline some say 3 year other doctor say 6 or more my mom is only 46 year old and is truely an amazing person my heart go out to all of you it really really do in honor of my mom I am do the 5k cancer walk in l a this year I have make my own web page to try and promote this and get donation if not for my mom then for you I want to surprise she with as much support on my site as I can get because I do not want she to feel alone in this and I really want she to believe that miracle can happen because have a positive outlook really add time to your life my web link is http nationalevents cityofhope org goto meganhope please help the cause to find the cure for cancer and help my mom and help yourself every penny count anyone who is interested in walk with we I would be honor you can join my group hopefordenise the link is on my website my hope and prayer go out to all of you and your family miricale can happen,positive,2
I have been a hypochondriac since I was 8 year old my grandma dying of cancer was what trigger it I do not know if anyone else have trigger but that is how mine have always go I switch from one illness to another cancer when I was 8 heart disease at 10 hiv from 12 all the way through my teen brain aneurysm in my 20 and lung cancer have been my illness so far in my 30 either I know someone with one of these illness or learn of they in health class and I instantly have the symptom I am stricken with constant anxiety everyday sometimes it is all I think about and I will just stay in bed and sleep because if I am asleep I am not freak out anyone else this mess up,negative,0
my dad was diagnose in 2010 with renal cell carcinoma he have kidney and adrenal gland remove and was cancer free for a year and a half but cancer show back up he was start on votrient do well with it but cancer continue to grow so he was switch to affinitor and was have awful aside effect plus cancer was still grow so he was take off of that one then we try nexavar he do well with side effect but once again cancer was grow he now have two tumor on brain have to undergo cyber knife procedure next week oncologist is start he on sutent next month I would like to here from people that have been on this medication and any advice on side effect,neutral,1
in a nutshell when my husband lung cancer spread to his brain he start become emotionally abusive towards I it get to the point where I leave he 10 day ago he only have a few month leave to live and he say without I he have nothing leave to live for so he is forego treatment that could potentially prolong his life I love he and would like to be there for he but his drastic change in personality make that impossible do anyone have advice,neutral,1
first let I just say I am so happy to have find this support group as the internet can be a horrifying place for someone who is new to this disease long story short last month my otherwise healthy 70 year old father was diagnose with stage 4 lung cancer after see his doctor for a persistent cough what was originally a spot on his x ray turn out to be a large mass inside his left lung plus three tumor on the outside of the lung and two tumor on his spine thing only get bad from there as the biopsy result show it is small cell cancer which his doctor tell we at this stage is incurable however they are not give up on he since the cancer have not yet spread to his brain which we are tell small cell cancer can do very rapidly my father doctor are go to first attempt to shrink the exist tumor with chemotherapy and then try and prevent the cancer from spread use radiation he just complete his first round of chemotherapy with no problem so we remain hopeful however his doctor say treatment will not cure his cancer but simply extend the time he have that is the part I just can not get out of my mind I know it is important to remain positive but I also know what we are up against it is just so much to absorb so quickly,negative,0
how do I sit here and watch my sis die I feel like I am go crazy I feel so hopeless she have 2 kid she is fight so hard to live she was diagnose with lung cancer never smoke a day in her life the cancer have go to her brain and bone I do not want to lose my sis I know I am not the only person in the world that is lose lose a sis but there are day that I do not even want to get out of bed we live 2 hour apart so I can not be there all the time it is destroy I anyone have any advice of how to deal with this I am in my 40 and own my own business I have 2 child in their twenty and a wonderful husband they are all supportive but I feel so lonely and afraid,negative,0
my 28 yr old daughter was diagnose with a very rare form of lung cancer in both lung 2 week before my husband die she have a history of benign brain tumor and they believe the lung cancer come from they she is paralyzed on her left side from her second brain surgery she have have 4 in all she have 31 tumor remove from her left lung in november it was very tough as she have no ability to move on her left side she suffer ton of pain till they could get it under control she was to have the right lung do this year but become pregnant she is 5 month so this cancer will have to stay in her lung till after this baby is bear and it really bother I I do not want she to go through with this pregnancy but she have have year of medical problem and want it her idiot husband of 1 year leave so she have move back with I I am worried if something happen to she I am a widow with 2 kid 19 17 still at home to care for and now a baby will be here his family is not an option no way so right now I am wait it out pray for a healthy baby girl and also that my daughter survive and can live to raise her little girl she have never smoke drank or drug nothing but bad luck her cancer can not be treat with chemo or radiation there are only about a few case of this type of lung cancer they have ever find anyone have a pregnant lung cancer family member and if so how are they do,negative,0
how do you help please read my journal lindas husband is pretty much infest with cancer his bone kidney lung and brain how do this happen over night he is a wonderful man linda and al were there through every step of my mom cancer I just am at a loss for word I love the both of they to no end and I feel a positive attitude always help in this situtation it is hard to expect a miracle could happen but I know with cancer you have to keep your head up when you body is infest with it what do you do how do you help your friend what can we say,neutral,1
seven month ago my father was tell he have small cell extensive lung cancer he under go 7 round of chemo respond extremely well the tumor in his liver lung were no long see the doctor were so happy everything was under control so he take a vacation with my mother my mom know on that vacation that something was wrong after many different trip to the er he finally get confirmation that the cancer have spread into the brain under go 10 round of radiation on the brain dad was send back home in a wheel chair use a walker I was full time his care giver which is was completely drain on I but I push on cause I love he to death within two week of he being home his leg have become really week so we take he to the er for an mri soon we find out the cancer have spread to the spine he is now back in the er with no feeling in his left leg and is under go radiation again he is on his 5th round 10 to be completely there are 3 spot of cancer in the spine the doctor are only target on spot to relieve some pain in his leg for comfort he is now set to come home after the radiation is complete with hospice in place I will again become his full time care giver I am completely shock the cancer have spread so fast so quickly and have no idea what I m in for at home most of the rest of my family is in denial along with my father I just need the support friend of new people who are or have deal with this help I,negative,0
I have live and look after my mom for ten year as her health get bad after many many trip to hospital she is in again and now been diagnose with cancer possibly spread to brain I am struggle come home every night to an empty condo she think she is come home and I am scared the hospital will try to discharge she I can no long look after she I feel so guilty for that I need to go to work I can not sleep or eat and have take a week vacation time to be at the hospital I feel guilt that I am not enough,negative,0
hiyai was mean to be have radiosurgery to destroy a particular brain tumour I have one of 9 sit in the brain at the mo but rest are relatively harmless but this have been cancel as it have suddenly grow deeply into te brain and move into a pre cancerous state so for medical reason ant have surgery on it anyway I have already for 2 other brain tumur been through 13 week of radiotherapy and do the whole hair fall out in patch have seizure pattern go bezerk tiredness that I do not think exsiste and feel my whole life just come to a complete standstill so to today I have have dose 1 of 5 this week and then 2 3 dose for the next 10 week after that and the tiredness hit I again but what hit I more was fear fear that I know what s come fear that I do not want life to come to a complete standstill again this may seem petty and I know it is to save my life so I would not have it any other way suppose just wonder if anyone else have have this problem before I am so thankful for my christian faith and friend at home and here because to be frank I feel this is go to be a long 11 week,neutral,1
they bury my x husband today he was 45 and die of cancer lung liver brain and alcoholism I am really have problem deal with this my husband and I both work with he in band in the late 80 and 90 and I was married to he for 4 year we have alot of problem in our marriage because of my bipolar condition and his alcoholism and we finally just split he marry a woman with kid who I might ad put their name in the obituary as child rather than step child I really do not like she she destroy his music career he was a talented and gifted song writer and I and my current husband write and record many beautiful song with he in the 4 year I was married to he I am really upset and I can not talk to anyone about this can you please help I,negative,0
hi my doctor is allow I to have my brain mrid laugh out loud I have a history of cancer and I am beyond dumb and forgetful now then after appt I go to store for dinner and leave my wallett in the cart I mean who do that I have to call my hubby home from work I was soo mad at myself luckily a very nice gentleman find it okay I just need to scream it out thank many thank,neutral,1
hello everyone well wish love to you all I need your love and support right now I have a little friend who s name is kita she is 5 year old and is in surgery as we speak kita have cancer of the brain and now drs feel now it have spread to her liver kidney they are do a liver biopsy to see if they can tell for sure she is such a brave little girl who have fight this for some time I adopt she her grandparent who are raise her last may and they have now become member of my family I love this little girl so much if anyone have teach I to have strength courage it is this little girl any hug prayer for she would be deeply appreciate thank so much,neutral,1
it is certainly been one of those day I receive news this morning that a client of mine a very nice young man of 25 was kill yesterday in a car accident the family have been long time client and this was was hard to deal with as well one of my coworker call today her daughter 37 have cancer and news certainly is not good a cat scan do this week have reveal 5 more tumour involve brain stomach lymph nod a very agressive cancer as 15 day ago there were none so think today hug those that are dear to you one never know what life have in store around the corner and the simple act of say love you to someone dear may be the good thing you can do,neutral,1
I apologize for such a lapse in communicating here just last week I get yet one more ned pet scan that will make probably 10 since my spring 2010 stage 3 ec was catch my pet will be stretch out to twice a year at this point this last one was the first time I experience scanxiety because two woman I know well both have recurrence recently one of metastatic lung cancer to her brain after five year free of recurrence and the other my neighbor who was diagnose with squamous cell ec a year ago initially surgery was not recommend for she but when ec recur a month ago mayo change their mind 14 day ago she have the big surgery but they could not remove some cancer on her trachea she is have many complication been in out of icu on a ventilator and is still hospitalize I think she is only 58 although I too have complication like double pneumonia and was in the hospital for nearly four month I think the only thing bad would be the situation she is in the grueling surgery but know cancer grow somewhere else as to my seizure disorder base on one grand mal seizure last april I have have 10 eeg all of which show persistent abnormal brain wave in my left temporal lobe this monday I am go in patient at mayo for 5 6 day with continuous eeg monitoring in which both anti seizure med will be withhold my only real concern is boredom since I am not allow out of my bed at all except a nurse assist bathroom call it would be different if I feel ill but I do not how many book or laptop activity can fill 24 7 in a bed it is also a bit disconcert to know that they are actively try to provoke a big seizure which sudden withdrawal from these med can trigger,neutral,1
after have a great chinese dinner with my 86 87 year old parent where I tell they about the brain tumor my mother a cancer survivor of ovarion cancer 1968 and a melanoma and a total recovery from a stoke 8 week ago have just one question show I on youtube a brainstem tumor surgery I have too laugh so onto this morning we were get ready for church and my leg would not lift up for I to even get my sock on it is really start to get I upset as my limb are slowly lose function and the pain have not get my mj yet tomorrow is a upper body ultra sound wednesday the pcp and thursday dr torture neurologist do nerve conduction study he is also do a muscle biopsy and I am ask for every single iv nerve block know to man this is just make I upset I can not explain the emotion I am have at this time I know so many of you are wayyyy worse off then I and I am in awe on how you compensate and stay fairly human joanne,negative,0
so I was diagnose april 2011 and let I tell you at first I was not scared but that change let I explain my first symptom was when my eyesight start to slowly go in my left I go to my eye doctor the first one I see in the practice think it was an ocular migraine then I go completely blind see another doctor and he say no this could be 1 of 3 thing I have have thyroid cancer about 12 year ago so he say it could be your thyroid cancer that have spread to your brain I currently have a benign brain lesion your brain lesion have grow or miss so let just say no option was great but I was hope I do not have cancer again so miss it was and here I am over the last year my miss have been very progressive and I have 4 relapse within 8 month and 4 medication change I have struggle with shake constantly bad vision in my left eye which my dr refer to as a tv with bad pixel that come and go weakness and so on and so on I am currently on tysabri and I do not feel great I have not have a relapse thankfully and that is why I continue with it I have have several conversation with my neurologist about how I feel and that I feel I am progress to quickly for rrm but he tell I even if I have a progressive miss tysabri help well I have lose cognitive ability over the last year and I am lose strength in my leg and arm I am scared that I am go to end up debilitate too soon I have 2 young child I do not want to get to that point before we do something about it well I guess that is enough of a back story any advice please I am try to keep the faith and keep fight,negative,0
deb a very close friend she was one of the caregiver that help I with my husband and she s like a mom to I just call I she s in the hospital for pneumonia and they do a scan of her lung tehy find terminal cancer and its spread to her brain now I can not do this she s 4 1 2 hour away I have to find a way to get the money to go see she I just have too,negative,0
my school friend die yesterday find out at 11 30pm last night he have a brain tumor and it was cancerous but he have it remove but they could not take it all away he was leave with severe epilepsy and then at xmas he have a few stroke which make he paralyse down the left hand side and he was blind then the last couple of week it get bad he was totally paralysed apart from the use of his thumb and he was totally blind and now he is dead I do not know why I am write it here I just feel confused he was nineteen last two year of his life have been plague by this its so rubbish totally know I would get that call tell I he s dead at some point but I m still shocked do not know why I m write this I m sorry just so upset just now it suck,negative,0
I watch my dad die from cancer when he was 51 yrs old it was the bad year of my life watch he get so sick and slowly deteriorate over the course of a year now yesterday we just find out that my grandpa my dad dad have leukemia nothing can be do for he I just can not handle have to watch this go through this all over again,negative,0
my kittys gone have to put she down this morning leukemia was kill she slowly and she was severely anemic she is been my source of unconditional love for four year so my day go to hell I will see if I even get up tomorrow may stay in my room besides it is probably go to rain all day and my boyfriend is 400 mile away so no one around to hold I while I cry,negative,0
there have been a lot of loss in my life the two most important were my mom die 21 yr ago from leukemia and my brother 2 yr ago from brain cancer I have been continually busy with work and life since lose my mom now as I am retire I am finally experience intense feeling of grief and loss incredibly sad extremely hard to cope have anyone else experience delay grieve,negative,0
I think I would post this topic in the event it might be find by someone who is research this or approach about this study I am not find much information regard this and I am really not sure how it differ from the standard of care I will be 5 month post transplant tomorrow we can not be 100 certain I recieve this drug it is believe by my side effect that it is most likely so far I have have no gvhd I am extreamly bless and very thankful for that I am not out of the wood yet and yes as I think most would agree I have a tiny bit of worry that I will grow a nubbin I want to do something to help research when I ask my dr why they do not do t cell depleate transplant he tell I at the beginning of his career that was his focus he is acheave the same goal with a complete ablation and the prophylaxis prior to transplant who know the well option science will eventually decide that here is a little info on the study and criterion that I copy viccbmt1218 a randomize prospective double blind placebo control phase 3 study of we atg f prophylaxis as a supplement to standard of care prophylaxis to prevent moderate to severe chronic gvhd in adult acute myeloid leukemia acute lymphoid leukemia and myelodysplastic syndrome patient after allogeneic stem cell transplantation summarythe purpose of this study is to find out if the investigational drug call we atg f an anti t lymphocyte immune globulin or antibody in addition to tacrolimus and methotrexate can be safely use to prevent graft versus host disease gvhd with a focus on moderate to severe chronic gvhd just wonder what other use for prophylaxis and if you have a t cell deplete transplant do you need prophylaxis I am find the science of chemo and transplant very interesting right now trish,neutral,1
ok so I was look up to see why my gum were bleed and I figure it was because I do not brush my tooth at all for like once every few week and eat nasty shit also have 1 swollen tonsil so I look that up and its an infection due to my gingivitis I m almost 19 by the way so that was the only symptom I have right and then I see the link to a website about leukemia so I look it up and it say swollen spleen I have one and find out about it a few month back due to a cat scan but it do not hurt and never have so I freak out I was like oh my god I have leukemia and then all of a sudden after I completely panic about it and have an irrational fear I start to get really bad fatigue can some one worry themself into fatigueplease take note that a few week ago I freak out because I think I have a retinal detachment I think I have one so bad I have a panic attack for 3 day and it was what I describe the bad few day of my life I think I almost create symptom for myself well I go to the eyedoctor and they say I was fine is it possible for a hyperchondriac with panic disorder and this irrational fear to create symptom like fatigue and weakness for myself,negative,0
hello I am new to this site when I was marry my husband and I try 2 yrs to have a baby we each have daughter from previous relationship finally I get pregnant and oh how we wiche for a son there was no boy on my side of the family we were please to find that a son was on the way my father was estatic he have wish for a grandson for a long time my son was bear on christmas eve 2001 he was beautiful he was perferct when he was 4 month old he was diagnose with acute myloid leukemia he go through radiation chemotherapy and a bone marrow transplant he come home from the hospital on thanksgiving day 2002 we have 5 wondermonth of have our boy at home in april of 2002 I notice some little bump on his head everyone try to convince I that it was his hair grow back but I know well test show that his leukemia have return no more treatment was available and my son become a hospice patient at 16 month old my son die in july of 2003 I could not understand how this could happen how a child so want and love have to leave this earth so quickly as everyone in my family my father was devastate 10 month later he die of a ruptured aortic aneurysm at the age of 58 my father was one of my good friend I do have the comfort that they are together but I miss they both so much it hurt,negative,0
I am so glad I stumble upon this website there is so much helpful information here I reluctantly head to the doctor because I was not feel well I was lose weight which as a 49 year old woman that can never really be a bad thing right ha and I have bruise all over I blood test were do and repeat and I was diagnose with chronic lymphocytic leukemia on june 10th during the additional testing for this cat scan full body bone scan bone marrow biopsy and so on and so on I was diagnose with stage iii rcc on june 17th my oncologist send I to the urological oncologist on june 22nd who confirm this diagnosis on june 29th I have a hand assist radical nephrectomy remove the left kidney the 8 5 cm tumor and part of the renal cavity wall the margin come back tumor free as a result of the leukemia they also find mature lymphocyte in the renal cavity not unusual in addition to that they find two small spot on the low lobe of my left lung they are so small that they can not biopsy they at this time although there is concern that it could be mrcc now I have to wait 6 week for repeat cat scan should I be concern have anyone else experience this also when will my belly stop ache from this surgery ha all in all I am feel pretty well although I am not back to work and a bit concerned about go back full time right away any insight would be greatly appreciate,positive,2
my 79 year old aunt have leukemia and is have stomach bleeding she have been in and out of the hospital over the last few week receive blood and or have bleed cauterize while in the hospital this last time she just have a heart attack and now they are say they can not do any more endoscopy to cauterize the bleeding is this accurate if so what should we expect to happen now,negative,0
hi I have not been on this discussion board but I have been involve in other topic I always have problem from a strong medication that I am on for leukemia but have deal with that for 11 year with periodic nausea now I am go through bout of nausea constipation diarrhea once in awhile a bit of cramping but nothing severe it come and go and sometimes I feel well when I eat just want to know if anyone else who suffer from ibs have have this symptom,neutral,1
if I trap nearby homeless cat to adopt then what I can not take he she into my apt building right away a year ago the building was spray for flea with all the tenant out for the day and rabie worry feline leukemia worry neuter doubtful my vet take cat in same day and what if after every test or even day in my apt can not just drop off cat where I find he she,negative,0
for those of you help I wait out the day my dad is out of surgery and in sicu they have to go open and not laproscopically the entire adrenal gland was remove and send to pathology to see if its malignanthis spleen is also enlarge I have no idea if that is due to his leukemia his alcoholism or the adrenal glandbut at least for now he is stable and we wait for the path reportthank to everyone for the support today I would have never get through the wait without you hug nettie,positive,2
I have to child age 3 and 1 year my 3 year old is into dance class and swimming as well as she have leukemia so have many doctor appointment and so on I am also 10 week pregnant so I will have many upcoming drs appt my husband and I both work shift work so with I fast approach to return to work and with so much on the go I am a little stress what keep you organzie and on track,negative,0
hi my name is jessica 22 just start treatment and I was wonder what I should expect if anyone could help I am lose my 70 year old grandmother have leukemia but is refuse chemo and she is the only person I know with any form of cancer I am really confused and scared and lose the oncologist try to explain everything but I was in shock there are so many website to wade through and I do not even know where to start thank in advance everyone,negative,0
I first have leukemia when I was 12 but I go in remission the chemo really eff up my immune system I end up w heart prob cuz of the strain think that was all I have to deal w the other stuf was all over but the cancer back I hate it it effin suck I was normal again but now wah,negative,0
let get rid of cfs sign this petition it will take five second of your time we need to gather 25 000 signature to take this to the white house and we only have 30 day http www thepetitionsite com 255 349 958 fatigue is not a disease here why you need to sign on may12th international cfs I and fm awareness day member of the me cfs community send a letter to the dhhs ask for change they want the old vague definition of cfs to be change to the more accurate canadian consensus criterion for I theirs was a reasonable well argue letter with all the fact and with all the logic that a long suffering population could bring to bear the current definition is simply too broad the letter say and confuse cfs I with fatigue thus lump people with I together with people with depression and simple deconditione the consequence is that leave untreated year after year comorbiditie develop and people with I may end up die from premature heart failure cancer and suicide they also die of I in 2005 sophie mirza become the first person in great britain to officially die of chronic fatigue syndrome the dhhs ignore the letter they ignore sophie mirza they also ignore sophie coldwell in march 2013 17 year old sophie coldwell was diagnose with cfs ten day later she was dead the cause of her death was leukemia but she have not been diagnose with leukemia shed been diagnose with cfs because she was tired is sophie an aberration someone who somehow slip between the crack she is not in the you s over 30 of exist miss patient that s 1 584 people were diagnose with cfs before being correctly diagnose with miss these are people who have they been properly diagnose in the early stage of the illness would have have access to treatment that might have slow or even halt the progression of the disease but instead they were tell they have chronic fatigue syndrome an illness for which there is no treatment those 1 584 people have now have their diagnosis correct to miss just imagine how many people with miss are currently being diagnose with cfs but it do not end with hard to diagnose illness more than 10 of people come to fatigue center in belgium have been find to have physiological injury to their pituitary gland cyst tumor and a shrunken pituitary empty sella they have been diagnose with cfs because they were tired and because they have cfs nobody bother to do an mri of their brain is this gross oversight limit to belgium it is not I personally know one man here in the you s who in fact have no pituitary due to empty sella it was year before a doctor think of do an mri because this man have been diagnose with cfs how many more people have to suffer those of we with I those of we with cancer hashimoto disease leukemia miss simply because the ridiculous diagnosis of chronic fatigue syndrome exist this need to stop now sign this petition ask your family friend neighbor and coworker to sign it tweet it facebook it reddit it let we put an end to this medical malarkey do it for yourself do it for I do it for sophie,positive,2
hello first of all I want you wish all of you a good health and a positive thinking secondly I am sorry for my english as it is not my first language I want to tell you my mother experience in lam m2 1 in april may 2013 she was diagnose with lam m2 and we have confirmation from other hospital abroad as well she have at that time 55 blast she start the first course of chemo in may 2013 7 3 regiman and also together with anti infectious prophylaxis at that time she have some adverse reaction after platelet allergic reaction bone marrow after the first course was 28 blast 2 second therapy june july 2013 the 7 3 regiman have been stop in day 6 follow by severe neutropenia and thrombocytopeinia for 28 day and mild cutaneous reaction to platelet 3 third chemo august 2013 7 3 regiman 7 day of well tollerance fast hemathological recovery 4 chemo 4 therapy with ara c 500 mg and doxorubicin 90 mg bone marrow evaluation 7 5 chemo 5 chemo well tolerate severe neutropenia for 7 day severe thromocytopenia for 10 day alergic shock after platelet transfusion this is one of the bad moment as my mother was near death at that time the doctor need to continue the transfusion but it was impossible at the same time because of the allergic shock in that moment she begin take afa algae complex formula one day later when the doctor check the platelet they conclude that the transfusion is not need anymore the value increase hour by hour day by day they could not explain why when I ask they an opinion on the afa algae and the increase of the vlaue they simply tell I that there is no link whatsoever right now she begin take ahhc as well briefly since then no more transfusion and the hematologyc level were fine some doctor tell I that without afa algae when would have been dead sorry for grammar 6 chemo 6 the doctor decide for a non aggressive regimen 2 5even if the doctor prepare blood product they do not need themthe combination was afa algae 6 pill per day ahcc 2 pill per day in january 2014 the bone marrow show 6 7 blast another chemo at that time and in feb as well as I remember 7 in march my mother tell the doctor that she need a pause of 30 40 day the bone marrow show around 4 blast the blood composition was fine conclusion since nov 2013 since she take afa and ahcc 1 fast recovery after chemo 1 2 day of neutropenia only 2 good and balanced healthright now my mother is in holiday with my father in the mountain she feel perfect she walk all day on the mountain she sleep well she check her blood and all the analysis say that all value are very good few week ago I ask her doctor about the afa algae and ahcc if there is any link between her good state since november and afa and ahcc finally he admit that in any case they contribute to the good health she have now moreover all the doctor discuss and they conclude that they need to prescribe to their patient unofficially ahcc and afa also since february my mother take resveratrol 200 mg as I read in many study the resveratrol is able to provoke the aptosis of the leukemia cell and the remake of the leukemia stem cell my comment after 1 year of reading 1 the chemo alone do not cure it only kill the blast and keep they at a low level this could be in many case a temporarily solution that s why many patience relapse as a metaphor let say we have a lot of rat blast in a room the chemo kill they one by one sometimes 3 at a time sometimes 6 at a time the rat blast keep come though from where they come from the rat hole we have in the wall the leukemia stem cell so in my humble opinion we can use chemo when the level of blast is high and once we get a low level we have to work on kill leukemia stem cell for instance resveratrol provoke the leukemic cell apoptosis and repair the good stem cell,neutral,1
hello team just want to give a quick update I was suppose to be get my first day of chemo today for bmt but the doctor at stanford throw we a curve ball last week my nih doctor have diagnose I with myeologenous hypereosinophilic syndrome chronic eosinophilic leukemia m he s cel this is a type of myeloproliferative neoplasm mpn after my third bone marrow biopsy the doctor at stanford have a slightly different approach their diagnosis is systemic mastocytosis with an associated hematological non mast cell disease that is likely chronic eosinophilic leukemia sm ahnmd cel in addition to the vast number of eosinophil in my bone marrow all of the biopsy have show aggregate of spindle shape mast cell my nih doc say that the differ diagnosis are semantic apparently eosinophil and mast cell hang in the same biological circle so in the absence of specific genetic clonality it is impossible to say whether my disease is primarily eosinophilic with secondary mastocytosis or primarily mastocytosis with secondary eosinophilia welcome to the wonderful world of have an uber rare disease more than six month in and still no diagnosis when I ask my doc for any sort of prognosis they all look at each other and shrug their shoulder with the exception of say that it will eventually kill I if we do not get it under control that could be one month or five year either way we are look at this new option as a blessing despite the uncertainty we are now establish a path to get this new drug midostaurin which is a tki that have have limited success in aml patient the doctor do not want to leave I off of any treatment as my absolute eosinophil count aec continue to slowly rise last cbc I have a wbc of 27 with aec at 20 5 they start I on hydroxyurea 1 gram day to see if that would lower the count as a bridge strategy to get to midostaurin midostaurin just finish phase ii trial and is not approve by the fda novartis is the drug company and they must say yes for compassionate use as well as the fda which may take 2 month or more then another two month to see if it work my doctor who was primary investigator on the trial is unsure if it will work but think it is worth the risk to wait to try of the 116 patient in the trial 5 present in a similar manner sm ahnmd with cel 4 of those 5 have a complete resolution of their eosinophilia additionally for those of you follow the beat aml initiative my doctor also send off my blood for evaluation with jeff tyner use the same technique for aml genome mapping with the hope that another tki might be well suit for I than even midostaurin http www ll org who we are a new approach to drug discovery src1 35591 src2 as I have become more and more versed on this subject I am more and more encouraged by the progress in beat myeologenous leukemia of all form I am fairly certain that in 20 year leukemia of this variety will be treat first with induction then tki to vastly reduce chance of relapse and then bmt only in rare occasion cml have mostly been beat replace by take a pill with few side effect we can do this too with aml I would encourage all of you out there to write your doc to send any blood that may still be store to jeff tyner and the lab if pathway exist I remember dave tell I at the beginning of this journey for I that we are all part of the process to beat this disease I take that to heart and wholeheartedly agree what I would ask of the team for I personally is to continue pray specifically for the wisdom to make the right choice between bmt and drug therapy for protection of my heart and other organ from all the eosinophil for hydroxyurea to work as a bridge strategy and for midostaurin to be approve for I and to work if you have any experience with hydroxyurea or midostaurin I would appreciate any info as well we are so thankful for you all and pray for everyone here daily hope and health for everyone vr john,positive,2
I see this group and want to reach out to see if anyone experience the same situation that our family is go through quick bio of our family my boyfriend and I meet 17yr ago and have our official first date on valentine day he was a single father of 1 boy I was a single mother of 2 boy as a single mother I adopt 8 child overseas we never got marry but he was always the only father the adopt child know and raise my biological child since they were 2yr and 5yrs around christmas my boyfriend of 17yr was sick with a cold he feel fine and work everyday but he could not stop cough the coughing get so bad that I finally convince he to go to the doctor the doctor give he an antibiotic and inhaler and send he home that evening he take the medicine for the first time and we go to dinner at dinner he start hold his chest say that he feel someone was step on his chest within a few minute he start complain about severe pain in his knee I immediately call the doctor after hour and leave a message to call I four hour later the doctor call back and say to stop the inhaler he suspect he was have a reaction to the medicine the follow morning his knee still hurt but he manage to get up and go to work that evening around 8 pm the pain was too much he have I call the doctor for pain pill this time I refuse to wait hour for the doctor to call back I demand that the call the doctor and connect the line the doctor tell I to just give he motrin I tell the doctor no he need something strong he was in terrible pain so he call in a pain pill I go and pick it up a couple of day go by and the pain was still horrible so he return to the doctor this time not only do he still have the cough he have pain in his knee and bruise down his left side and on both knee the doctor look at he and say that he must have bump himself at work and give he another prescription of pain pill and send he home two day later he was out of pain pill and still have the pain bruising and cough we call the doctor and the doctor do not call we back for three day we call 2 4 time per day the following morning he wake up with a really bad sore throat finally I have enough and bring he to a different doctor friday 2 10 12 that doctor immediately take blood for further testing and give he a antibiotic cough syrup and pain pill twenty three hour later the doctor call and say to bring he to the emergency room right away he think he have leukemia we go to the er and they quickly take he back run test and within 1 hour he was diagnose and hospitalize with leukemia that night they take a bone marrow test have numerous medicine in his iv and the cancer doctor come in and say that he think that he may have have it 4 6 week and that they think it was the mild type of leukemia and that by monday we would have the result and they would send he to a cancer center that specialize in leukemia sunday he was perfectly normal other than his throat hurt and he could not eat much monday he was perfectly normal walk the hall at the hospital and eat normal because they give he something to numb his throat tuesday valentine day our 17th anniversary he was perfectly normal eat walk drinking go to the bathroom and so on I leave to go to work at 1 pm I call he on my first break at 5 45pm and we talk for about 10 minute because he have company his good friend and four of our child and by 6 pm he was go he die in front of four of our child and in the arm of his good friend everything happen so fast no sign no warning our family is break and we are try to get through this one day at a time I have lose over 12lbs in the last week and today was the first day that I could face the world and leave our house if you know anyone that is diagnose with this horrible decease regardless what the doctor say the odd of beat it is just make sure you spend each and every moment with your love one that you possibly can and make sure you tell they how much you love they because you never know when they could be go,negative,0
I was talk to a distant relative briefly yesterday he is been very sick I seem to recall my mother talk about leukemia I think recently he have stem cell therapy and have experience a significant improvement but he say to I he think he is develop cfs he tell I 80 of patient who undergo stem cell therapy develop it I have never hear of this have anyone else,neutral,1
is there a connection between plavix and aml I have read online that plavix can cause bone marrow damage and over time cause aml so I am wonder if there are other plavix patient that have leukemia my father have been on plavix for over 3 year and was diagnose on 2 10 2012 with aml m6 thank you silvana,neutral,1
my final bone marrow biopsy result are back and show no sign of leukemia or mutate genetic I am so thankful to god and all of the support I have have from family friend and this amazing support group my picc line was pull today and besides being bald I am back to normal I am tell I have a 50 chance of relapse I will cross that bridge if I come to it keep fight everyone,positive,2
my young sister is in need of a bone marrow transplant due to leukemia since my twin sister and I are she only two full blood sister we are the good possible match for she do I stop take my med so my marrow would not be contaminate for she just in case I have to help she I just do not know,neutral,1
I just find out that my good friend little son caleb have bee diagnose with leukemia the poor child is just three year old I can not even imagine what the family must be go through please keep they in your prayer you are all in mine thank in advance hug jeanie,negative,0
just want to do a quick update I m still here read your post frequently that is been try to focus on bae normal so to speak for a little while I go to you of m in 2 day to see a liver specialist I find out then what my option are since my gi was nervous about treat with my previous leukemia history I will let you all know what the verdict is,neutral,1
I was just dx with leukemia and I do not relly no much about it I know that it is a form of blood cancer and that s really about all that I no I no that my hemotologist is go to be start I on kemo therapy I just feel lose right now I m only 33 yrs old and I have other health issue to deal with on top of this I have fibromyalgia as crone disease and some other health issue I do not have a supportive family either and I m a single mum of 2 thank for listen,negative,0
hey there on sept 3rd I have an appt w a special no not a rheumy this appt is to be check for leukemia and lyphmona I need your help every time I sit to think of question to ask my mind gos blank so if anyone have any suggestion on what I should be ask please feel free and let I know I am also go to talk to this dr about my so call fibro see if he know much about it hope to hear from yas hug,positive,2
this is the basis of one of my fav film can anyone guess which it is synopsis do not be ashamed to cry a father is too busy to share his motherless son love during a holiday the boy collapse and leukemia is diagnose the father fill with guilt because of his neglect stay with his son and they become very close but is it too late,neutral,1
1 you are different and that is bad2 pop go the hamster and other great microwave games3 garfield get feline leukemia4 the kid guide to hitchhiking5 babar meet the taxidermist6 control the playground respect through fear7 some kitten can fly 8 curious george and the high voltage fence9 daddy drink because you cry10 mister fork and miss socket become friend,neutral,1
I believe daily strength is a appropriate name for this group and what we all need affect with this disease I have a hard time get up everyday tell my 18 year old son thing are go to be alright I watch my old son my mother and my father die from cancer I understand that god love we and would not do anything like give my son leukemia how do I get out of this rut,negative,0
you guy have been so supportive thru it all I think it only fair to tell you I have a type of leukemia you do not normally get till you are 60 and I just turn 30 in july I have been a widow for 2 year now I was diagonise on my parent anniversary on the 1st I am so scared I miss my husband but I m not ready to join he,negative,0
hello my name is pamela and I am a 7 1 2 cancer survivor I have been diagnose with mds and aplastic anemia I would love to chat and share my story with other people with my situation it would help I alot as I voluteer for the leukemia lymphoma society as a 1st connection peer counselor I hope to hear from you soon,positive,2
I have been have trouble with my foot and or my toe feel numb to the point that they hurt I have ask the doctor about this but he do not see a reason for it to happen have anyone else have this problem and know of anyone that have this problem that have have leukemia I talk with someone the other day that say they know of someone that have the same problem but I have not see anything about it anywhere else so I guess this is more research then anything thanksjim,negative,0
hi one of the doctor tell my mom that she have no blast in her blood she have aml and just finish her second 10 day cycle of leukemia I know she need to have no blast in her bone marrow to be in remission but do anyone know what have no blast in her blood mean my mom just do not ask the doctor question and I can not be there 24 7 is it good news we need some thank in advance june,positive,2
my dad was diagnose with cll chronic leukemia in 1991 my parent keep it from I for 15 year I accidentally find out in april of 2006 at that point I have my dad go for a second opinion at sloan kettering it was there they find that he have aml a very aggresive leukemia long story short my dad pass away june 9 2006 I am still in shock my dad was my complete hero my go to person my rock I miss he more than I can bear it cut to the core of my soul my heart actually ache I feel so cheat I know they do this to protect I they also do not tell I that the treatment that he have to endure in sloan kettering have only a 5 chance of survival they know how I would take the news so they protect I I do not feel protect I feel jipped I feel betray I am so hurt I wish I know I wish I could have speak to he more about it I cry every day I am grieve so hard I miss he more than I can bear honest I want one more day one more hour even I am so lost without he even though I was 42 when he pass 43 now I was and always will be daddys little girl I still call he daddy I miss he so much and can not believe that he is go forever and that I will never have the honor to sit and talk with he or hug he again I really need help with this one from anyone who can offer any advice thank you all so much for listen,negative,0
my dad is 66 year old and was diagnose with aml in september he start induction therapy within 48 hrs of diagnosis and spend the next 6 week in the hospital battle infection and inflamation the bone biopsy do a few week after the 1st induction show no reduction in leukemia blast since then he is have two cycle of decitabine and have move in with I and my husband he have labwork at least twice a week and receive 2 unit of blood every 10 14 day I am really feel lose in all this because I look at his blood test and see his count go down and down I see his need for regular blood transfusion but the drs keep tell he he is do well and look well I know being positive is important but I also believe in being realistic and honest I have try read everything I can about the disease and it is progression but so much of it is over my head when I ask the drs about his blood count they say it is to be expect from the chemo he is due for a bone biopsy next week and they will decide the next step when they get those result if result are well than the previous they will continue with more round of the decitabine if there is no improvement they will just do blood support I guess I just want some feedback on his experience is it normal for white blood count to be knock down to nearly nothing and to need regular blood transfusion how long do it take for the body to start build back up on it is own I know leukemia is in the blood do that mean it will spread to other part of the body ugh sorry such a long post but I feel so alone in all this sibling find it easy to stay away rather than see dad in the condition he is in right now and they do not even want to talk about it thank you for any advice you might have,neutral,1
hey guy first I just want to say I have been lurk for over a year now think of you all daily really think of ollie right nowwe all know there will be setback smooth sailing would be just too easy this late issue come after we have let our guard down and I can not find any information on what we might be facingmy dad was diagnose early oct 2011 he go through the first round of chemo like a champ but no remission like rocky he go right back in for round 2 and hit remission he get out of the hospital thanksgive day last year he have his stem cell transplant in jan of this year he breeze right through his first 100 day and well past it when it come to the horror story you hear about chemo and transplant my dad just write the clift note version of it well here we are a year later and he go in for his late check up his number are all outta wack white are down platelet are down and bad of all his donor is down the goal is to be 100 of your donoralso his liver number were all outta wack and they think it might be gvh he have to have a biopsy on it he have mds man this is all sound bad they have to make sure he do not have gvh before they can start treat the mds so it do not turn into leukemia also they are say that if its not gvh then he have to have a boost from his donor so he have to have I guess a mini transplantbut all that go out the window if he have gvh of the livera month ago he have a bm check bc his number were kinda stall it show no leukemia but these new blood test that were just do show something is go onany of you get any experience with something like thistrie to keep this shortyou all hang in there I m go toseth,neutral,1
hi I am write to this group to get some idea my brother just today was in the hospital for heart arrythmias pulse jump to 168 episodically he have wpw in the past which is an extra electrical lead of the heart but they fix it through surgery so he is not suppose to have that anymore however the hospital do blood test and tell we that everything was fine except for his potassium which was low I ask for a copy of the blood test and am very confused even though they say he was fine multiple thing are out of normal range here is what is abnormal potassium 3 3 lowglucose blood 102 fast as he have not eat anything so far that day rbc red blood cell 4 43 m ml lowhct hemocrit 39 2 lowthat is odd enough and indicate mild anemia but the abnormality do not stop there neutrophil 43 lowlymphocyte 45 highi use good old google to look at what these result could mean and I keep see leukemia pop up it make I worry so I look at symptom and he do have some of they he is tired a lot is underweight do not seem to have an appetite anymore as well as pain in his bone and joint we always think it was a form of arthritis am I worry too much are result like these indicative of other thing or just slightly off and nothing to worry about or do you think that perhaps he need to be test I keep see that high lymphocyte plus low neutrophil and low red blood cell is indicative of chronic lymphocytic leukemia he have no primary doctor at the moment his doctor apparently is in trouble with the law suddenly and drop all of his patient so I am mainly just try to find out what is wrong with he thank for any idea,neutral,1
hi I am new to this group and so glad to have find it my mom die in the summer of 2006 follow a short but difficult run with leukemia when I have more time I will write more of the story thank you for have this board I appreciate the ability to come here and talk and hopefully give support to other thank sheri,negative,0
my aunt just call I and say my uncle lou pass away last night about 2 00 am he was more than my uncle he was like a father in between all of my step father and my god father he die of leukemia the last time I see he was when he come to see my mother just before she pass away this past february I love you uncle lou I know you are in a well place,negative,0
my mom die of leukemia on jan 27th we have a hard relationship and make amend on her death bed in addition that is stop drink 8 day ago so I m have a hard time I am on the alcohol support group and someone suggest I join this one too I m so mad hurt sad feel cheat cancer do not run in our family we live in rural montana and I m convince the pesticide the farmer use kill she its not fair,negative,0
well I just have some blood test and my blood panel test well the white blood cell keep come back elevated but I do not have an infection or fever as far as I know have any one else have elevate white blood cell that they know of I keep read online that it could mean leukemia I do not know what to think,neutral,1
hi I am also a member of leukemia foundation online support in australia http talkbloodcancer com index php option com_fireboard itemid 2 func view i d 4894 catid 8 and this information that was paste look interesting http www eurekalert org pub_releases 2008 11 mc rfp110608 phpbest wishesgary,neutral,1
sorry it take a few day to get back to answer but my dad was in the hospital because he get pin between a tractor bulldoser and the back of my mom car at work while he was load something in the back and today my neace have surgery to find out if her mass on her shoulder was leukemia and they say it was a rib bone in her shoulder but they still have to test to make sure its bi nine,positive,2
do any one else have issue with sweat when I first was diagnose with leukemia I have terrible fit of sweat and drench night sweat they go away for the most part but no2w are back I sweat with just lift a finger sweat that roll down my face and soak my clothe I will talk to the doc but wonder if anyone else have this I was diagnose 4 year ago and am in remission but still on 400 mg gleevec,positive,2
my husband die april 16th 2021 they remove the tumor for his colon and the surgeon leave clean margin but he keep lose blood too late they find acute myeloid leukemia and he was send home on hospice he die one week to the day of the last diagnosis we were marry 45 year ago and I am lose without he I can not sleep in our bed and I cry on and off all day no one understand why I have not move forward,negative,0
I am always on the look out for new treatment option for aml this is from 2012 but is a very interesting view point from aphysician about the management of aml I hope it might be of interest to some http www healio com hematology oncology hematologic malignancy news print hemonc today 7b0202cf1f 7ddf 4cb3 9a0e 9278817aea9a 7d an evolve view of acute leukemia,neutral,1
remember how several week ago we all pull together for bill young niece calli who was in the terrible accident in kentuckey well if many of you read the message after midday mdladys grandson was just diagnose with leukemia plus jean health have not been too good lately either that is why I am ask you for she for prayer for not only jean mdlady buther grandson as well thank jim,negative,0
I stumble on this article primarily about rrm and a promising drug that reverse the affect of the disease but it do have it is fault and have cause one death via leukemia hope I spell it right so if you were offer would you try this drug or continue as you are today I have include a link to the story below http news before christ co uk 1 hi health 7680641 stm,negative,0
I have have blood in my stool for over 6 month I go to my pcp who blow it off and say I probably have gallstone I get sick of his passive attitude and find another md who refer I for a colonoscopy on 2 16 02 I am terrify I have colon cancer my father pass away from leukemia and now I am afraid that this monster know as cancer is go to take I too,negative,0
jus think I would have a rant I am feel like shite at d mo doc have I on steriod and now they have start I on a new tab puri nethol they are actually for leukemia so my white cell count is down and my hair is fall out big time plus steriod have thin wateva hair I have leave on my head not a gud look am grouchy all the time and I can not seem to concentrate long enough on college work have 3 assignment to get start and I jus can not b bother please tell I thing will start get well,negative,0
I am 35 year old and I was recently diagnose with large granular lymphocytic leukemia I was look to see if anyone can recommend a credible place for information I have a follow up in 2 week with my hemotologist who is go to discuss my option I m still try to wrap my head around the whole thing as it was discover in my annual physical what are the important question to ask can anyone give I feedback on their treatment I am just look for information anywhere I can at the moment,neutral,1
I am in the mist of go thruogh a divorce my exhusband will be serve the divorce paper on sept 16 it will be a year on sept 9 that we have seperate then on thursday I just find out that my parent have seperate they woul have beed marry 41 year on sept 23 my fathre have leukemia and he have stop tack his pill and he have start drink again and mom tell I that sah just can not take his mood swing any long so please keep I and my family in your prayer,negative,0
I please ask everyone to say many many prayer for one of our own twimom aka sammie I just get a upsetting phone call from she she get her blood work test back and the dr say her platelet are very low and they want to send she to a cancer specialist for he think she may have leukemia so please everyone say manyyyyyyyyy prayer for sammie and send her load of hug because she is go through a really tough time right now I thank you all so much,negative,0
I find out a friend I have not see in year got marry on friday her husband pass away on sunday from leukemia they have been engage at some point either before or during his treatment for the past 24 hour I have feel pain for she to have to go through that sadness that anyone should have to lose a love one to any form of cancer and guilt that I have the luxury of go to sleep with my husband by my side and she can I think I would share this because it is tear I apart that something like that happen and I am search for some answer why I feel so terrible,negative,0
dear all I just speak with laarissa who just receive some alarming news just two week after her 100 day bmb show clean and 100 donor leukemia blast have been detect in her peripheral blood her onc is perplexed because her count are well within the normal range he stop her tacrolimus sp and have schedule she for a bmb on tuesday to recap her history she just turn a young 73 is very healthy she was flt 3 positive please please pray for her god bless you julie,negative,0
my grandpa we diagnose with leukemia early this month yesterday he collapse in his home thank god my aunt and cousin where there when this happen they call an ambulance right away he is in icu at the hospital something happen with his heart and he was bleed in his colon that is all the detail I know at the moment I am wait to hear more grandpa do not want any visitor at this time but hopefully he will soon please pray or send positive thought or whatever you are comfortable with for my grandpa and my family,negative,0
my mother have been refractory to two round of induction chemotherapy her oncologist think that her leukemia cell are resistant to chemotherapy and that she is unlikely to respond to anything else and would not do anything else for she so I get we an appointment at memorial sloan they have a phase 1 trial with antibody with radiation have anyone consider or try this or other drug actinium 225 label anti cd 33 monoclonal antibody hum195or antibodie with other radioactive element such as iodine 131 yttrium 90 or bismuth 213,neutral,1
dear all base on your experience with acute myelogenous leukemia you may be interested in share your healthcare or health management experience with we through a focus group session in new york city as the market research team with medivo we are currently conduct a focus group to learn more about patient healthcare experience all qualified participant will be pay and all response will be hold confidential for more information please click http www medivo com surveyconsapp6713 please feel free to share this information with anyone you think will be interested sincerely market research team at medivoproduct medivo com www medivo com,positive,2
I have almost 2 year sober I have 5 1 2 till my husband die 2 year ago I been thru hell and back since I was a baby my life been one thing after another but now I been hit with the hard thing yet I m 30 year old with a type of leukemia you do not get normally till your at least 6o and the chemo is go to make I sterile when I want a child more than anything in this world I am so terrified how do I stay sober,negative,0
my husband have leukemia that cause his cirrhosis he have terrible episode of eh and today he lash out at I physically he have never ever do that before he is sporadic about take his lactulose and I just now get he back on milk thistle and 150 mg of zinc twice a day he is also on xifaxin 550 mg twice a day what can I expect to happen next this is not how I want my marriage of 34 year to end but it is the card we ve been deal,negative,0
a dear fry on mine have leukemia and was on aggressive chemo he is at duke university hospital he have a brain bleed and have garble speech the he get hospital acquire pneumonia which is usually aggressive and nasty he is on a ventilator and his partner ben have decide to take he off of the ventilator today I wish I have tell he how much he mean to I he was so wise and so very special how do you all cope with death I hope their is a memorial service so we can celebrate his life,negative,0
hi lady I am a 30 year old female diagnose with leukemia about a year and a half ago because of all the chemo and radiation I seem to be go into early menopause my heme onc doctor recommend I see my ob gyn and say she would prob put I on hormone I have make my appt but it is not for another 2 week I have hear hormone are link to breast cancer but so many of you are on they just curious if thing have change or what doctor have tell you about they,neutral,1
my dad pass away from leukemia over two year ago around the same time I lose both of my grandparent it was a hard time for I and I end up have panic attack a few month later I have anxiety and have been get help I was do really well but sometimes when I get to work in the morning I feel an overwhelming sense of sadness and I need to cry I do not want to quit my job but its really hard to work like this any advice,negative,0
hello I m new here my 2 year old daughter kaylee was diagnose with high risk all leukemia in july 2008 she go into remission in early september she is currently take 6mp and arac at home she have been so cranky and scream all the time its like she s on steriod again but she s not do anyone know if those chemo can cause crankiness like this I know she s 2 so that have a lot to do with it but its way bad she will not even let I talk to her other sibling without scream and she will not listen to I or her dad at all please someone help,negative,0
in my biology class I am currently learn about karyotypes as a project our class was split into group that are go to research a specific karyotype mutation and present it to the class my group was assign acute mylogenous leukemia which we have research for the past week a question we have on the topic is what kind of advancement have occur in recent year concern the treatment and understanding of aml which we hope someone will answer as a response to this post all response are greatly appreciate and my group and I wish the good for individual who are currently deal with condition,positive,2
today I have an appointment with my dr he say there was no evidence of leukemia in my blood booyah but still want I to see another specialist to rule everything out it was a sigh of relief he test my vision and notice it have improve significantly my right eye use to be frozen and would not gaze to he right now it do I do not even notice it was move again until last night pretty cool anyway he is go to start I on copaxone as soon as I am do with the steroid what kind of reaction should I expect from the copaxone injection aside from the skin irritation he explain may occur,positive,2
I have lose my belief that I will overcome this I am get close and close to the decision of suicide I have been in bed for about a week showerless and just down I just seem to end up in this same place I just want god to accept I and take I out of this pain I even wish I could take the disease from a child who must deal with leukemia or any other cancer I wish I can set they free and take their disease I just do not know anymore,negative,0
I just feel like give up hope on alot of thing right now as thing have get bad since that is been dx with fibromyalgia last yr since my dx of fm I have been dx with a ton of other health issue and I have been have problem with my blood and was just dx with leukemia and I feel like that this is deffinatly the break point for I I do not have any family that is supportive at all what do you girl find that help you get through the day when you feel like this and do not really have any family that understand what you go through day in and day out thank,negative,0
hello everyone my husband have a stroke on dec 10 2019 he aldo hadbrain hemmoraging thank god brain drainage stop for now he currently onky move eye he is in subacute care a few week ago they tell ne he have leukemia on top of everything else oh he slso is on resp machine and have a trache I can not even he on pill they are not cover and wsy to expensive its ridiculously over the top I pray to god everyday for a miracle and strength may god bless you allthank you sandra,positive,2
hey there I know I am gay and I have been through alot and what I was wonder from other is do other have emotional issue and even more tragic event that would add stress on top of their sexual issue like for instance I lose my brother to leukemia when I was 14 and he was almost 17 and he abuse I in every kind of way but I still love he and wish he was in my life and stuff I uhh find fitting in excruciatingly painful and that no one understand my point of view and everything so I wonder what other think and feel,neutral,1
I recently hear on the radio about the team in training group that is part of the leukemia lymphoma society they pay for training to compete in run walk cycling hiking triatholon and I think pay for the travel expense as and you have to raise money for research I was very interested so I check out the website and was even more interested I want to pass it on for my fellow cml pep and their love one I feel who well raise the money than I a cml survior check it out www teamintraining orglet I know what you all think,neutral,1
my husband s donor fall through and now his leukemia dr want he to have another round of chemo while they set up with another donor we feel like the rug have been pull out from under we now it seem like we will have to wait month to get this over we feel like we are never go to have our life back can not seem to ever catch a break in our favor try hard to stay positive but today it seem like a bottomless pit that we will never get out of,negative,0
adam west die at age 88 he do batman campy style and his alter ego intelligently I attend a hollywood wedding a very long time ago it was hold at a home on malibu beach my sister in law was the maid of honor adam west live next door and was one of the many star producer and so on who come he was so handsome and very nice polite but not stuffy at all he actually take time to introduce himself to a young girl from chicago I was star strike he die quietly in his sleep after a short battle with leukemia his family spokesperson say fitting for such a gentleman,negative,0
I am wish every member success in their aml treatment first the terrific news his oncologist tell jerry and I his bone marrow biopsy of his 1st consolidation chemo show no leukemia bad news his myelofibrosis is act up good news they are see if a new drug can help unsure how new I just know its so new its not even in any 2009 prescription drug book professional or layperson unclear if its newly fda approve or experimental do not know if they are give he more chemo or just concentrate on his myelofibrosis I trust the physician professional decision good luck to the member here mugwort,positive,2
my husband was diagnose in 2009 there are time when he is do so good for a moment I forget he have leukemia then there are time like today when I do nothing but worry about he because he is not feel well this week have been really hard on he physically he is so worn down can not help but worry if its the disease or is he just not feel well sometimes I feel like everything is so uncertain is that wrong to feel its like a roller coaster so many mixed emotion I love my husband so much and it kill I to see he suffer,negative,0
tomorrow will be 3 week since my wife pass away from a complication of her bone marrow transplant with leukemia god I miss she she was do so well and then come the sucker punch I have a 16 month old beautiful son when I am with he I escape this place I am in at least for a little while can not seem to feel anything and friend and family treat I different likely because they feel helpless no word will make this sorrow go away I know just bleed and I am sorry for that feel alone out here have the future figure out and now it is turn upside down with piece scatter upon the floor,negative,0
I have been a caregiver for sooo long my late husband die of leukemia in 2006 my two son have suffer from severe injury from motorcycle accident one son break his back the other son suffer from seizure due to damage to his brain from a motorcycle accident my young son was baker act last night due to an aggressive fugue state where he was hallucinate and threaten to punch I in the face he was also just out of his mind right now I just need to vent I do not see an end to this I feel numb inside I am not a whiner but this is tough,negative,0
hello I am new to this group this year mark 10 year since my wonderful husband pass away from leukemia he was only 29 I find myself struggle daily to fight back tear and yet I feel like I am suppose to be move on I have have 1 serious relationship since he pass and yet I could not commit myself to he completely and end the relationship I feel as though my heart have been rip from my chest and I will never be I,negative,0
hi I am new herre I have depression and anxiety and am on med for leukemia so I have some resriction on what med I can take because of this I have have med for everything but add I feel like my add cause so much of my feeling of low self esteem and lack of confidence that much of my depression and anxiety would not even be there if it were not for the add so anyway I guess what I am ask is most add med are stimulant right I am afraid sstimulant would make my anxiety bad any add med out there that are not stimulant,negative,0
it is very sad that modern researcher are not probe in to the efficacy of alternative remedy available for leukemia especially aml and apml are well curable in ayurveda ancient indian remedy probably the most efficient treatment in the whole world myeloblast come down to 0 level with in 10 to 15 day marrow turn up fully functional make different parameter of blood count normal the remission is fast and the patient get recovery with no side effect unless the disease condition is terminally bad chemotherapy and bmt are much inferior to ayurveda when rate of success is count,positive,2
go through some bad time when first diagnose now I take more walk and reflect on the good thing I can still do even with pd a co worker was diagnose with colon cancer a nine year old girl I know was diagnose with leukemia and a very good friend have a blockage in his heart that could rupture and kill he at any time all thing consider pd is not the bad thing that can happen to I I pray every night for other then a quick word ask for a cure for pd I am take every day as it come and refuse to let this disease take away my life,positive,2
yesterday was an anniversary mass for a young lad who die last year age only 22 he die of leukemia and his mum know I from a recovery group and I was have trigger thought when in the chapel then I call lifeline support line in northern ireland and spend a while at the reception only to eat like a pig now I am feel well but a tv show gran have on just now have re trigger I about the stupidity of our society I need to get back to serenity,negative,0
I join the grieve support group and find this one so I think I would also introduce myself here my brother die on april 3rd we both have type 2 diabetes he die of leukemia but I am sure his diabetes do not help because stress trigger his eat disorder as it do mine I am completely out of control with this grief and the only thing that help the instant pain is sugar sometimes I wonder if part of I just want to be with he any suggestion I know I would feel well if I could start take care of myself well,negative,0
do anyone have any experience with either the interleukin 3 study or bmt with active aml we have a friend who s gene mutation look bad and all the regular treatment have fail his cell count have not come down low enough to start the bmt the team have run out of option and they only have the above two choice which is to go ahead with a transplant with his own leukemia cell in the body or the interleukin 3 infusion its been a long ten month since his diagnosis and everything have been extremeky difficult appreciate any thought or knowledge in this matter,negative,0
bone marrow biopsy show no leukemia and no mds very good news now I get my lab once a month and the doc every 3 month my cell count are almost normal now still below but I can live with it where it is at the onc say I have a 70 chance of stay in remission and if I get through this next year without relpase he will expect an 80 to 90 cure I hope this news is inspiration for other on this site that it is possible to put this beast down you are all in my prayer that good news come your way also love lily,positive,2
as I sit here try to be strong for my family I have been watch the we open and know the my father is watch from above I lose he to leukemia this past easter after take care of he for a few week before he pass I do get to talk to he and let he know how much I love he so this is my first father day without he and I can not help but feel lose and alone he was only 64 and loved golf poker and his family I love you pop let we root for that 17 year old and els to come from behind xoxo liza,negative,0
today I have been have my right nostril be all tingly and numb and it scare I I probably would not be so worried if it were not for a family friend when he was in high school he have a persistent numb spot on his face that was a diagnostic factor for his leukemia he die 11 month later I am so scared I have been rub my nose a lot lately allergy and I have raynauds phenomenon which can cause numbness or discoloration in face or extremity so either of those could be it have anyone ever experience this feeling in an over rub or over blown nose,negative,0
my good friend and neighbor tom go into the hospital for throat cancer surgery a week later while still recover he have emergency surgery due to a stomach aneurysm I am very worried about he and pray as I have ask many to do that he will get through this my second prayer request is for my uncle lou who have leukemia there is nothing more they can do for he and my aunt have hospice there to help both of they I would appreciate prayer for both of they thank you and god bless hug gb,negative,0
it is the weekend folk what do you have plan I am go to a therapy appt big deal and maybe out to lunch with people on sunday my mother is 86 and her boyfriend is 92 he have 3 child and his old two are both die of cancer one have acute leukemia and the other have brain cancer how horrible to live to see your child dye before you I would not handle it well if I lose one or both of my child take he out to brunch sunday what are all of you up to this weekend,negative,0
gleevec patent defeat in india is key victory for generic drug http nyti miss 178pwwunew delhi indias supreme court reject a patent application by novartis for a major cancer drug on monday in a landmark ruling that will permit poor patient continue access to many of the world good medicine at least for a while the ruling allow indian maker of generic drug to continue make copycat version of the drug gleevec also spell glivec in europe and elsewhere which provide such a miraculous cure for some form of leukemia that the food and drug administration approve the medicine in the united states in 2001 in record time,positive,2
just feel like give up hope on a lot of thing right now as thing have get bad since that is been dx with fibromyalgia last yr since my dx of fm I have been dx with a ton of other health issue and I have been have problem with my blood and was just dx with leukemia and I feel like that this is definitely the break point for I I do not have any family that is supportive at all what do you girl find that help you get through the day when you feel like this and do not really have any family that understand what you go through day in and day out thank,negative,0
I wake up this morning in terrible pain body ache I get that every once in awhile and just attribute it to fibromyalgia which I have not been diagnose with anyway this morning once again I wake up in pain and in addition have indigestion I guess go to the bathroom twice was sweaty and what not oh have trouble breathe last night and do so this morning a little too I am so afraid I have cancer or leukemia I do smoke and last night I have trouble breathe after smoke a cigarette scared,negative,0
my nephew was diagnose with monosomy 7 and his is in mds status pre leukemia I was wonder if anyone else have gone is go through this I want to be able to help but find that I am deal with so many mixed emotion it is hard for I to pull out of that and be able to focus clearly my son is 10 day young than my sister little boy and this fact is also cause a lot of grief for I any all advice tip tool to cope idea for make her life easy would be greatly appreciate I am so glad to have find this support site thank you and please keep baby hudson in your thought,positive,2
hello have anyone out there lose a sibling to aml or any other type of leukemia or cancer I lose my sweet sister three year ago and I just can not get any rest because I do not have she in my life it is very hard on I I live in ny hate it here my mom live in nc love it there husband do not want to move yet and I do not know why becausehe have no family here and I am completely miserable without my friend and family around I,negative,0
I have a good friend who was just diagnose with stage 4 lung cancer she is 55 year old and have smoke heavily all her life I am familiar with cancer brother pass from leukemia and am still deal with that I find myself feeling very angry at this disease and sometimes angry at god but I know he do not give people cancer I guess I am wonder what kind of a chance she have drs have not give she a time frame thank you in advance for any support,negative,0
there is a 7 year old boy in quebec canada who have leukemia his birthday is come up may 30th and he want to break the world record of most birthday card receive I would like to prevail upon all my friend in the fibro community to help shane realize his dream by send he a birthday card to get information as to where to send card to please visit www shanebernier can please pass this on to your church friend and so on let we make this little boy wish come true thank you,positive,2
these past couple of day have been extremely difficult for I I find out that a very good friend of mine die of leukemia we actually got diagnose with our different illness around the same time so we definitely do our good to support each other I am not deal with the loss very well and just how I feel physically is get bad I am confused sad hurt exhaust and frustrated I am like a zombie and I have completely shut out everyone around I I know people mourn in their own way but I do not think I am mourn properly I just do not know what to do,negative,0
I have a question for those who hear or say it do not matter as long as the baby is healthy do it truly matter if the baby is healthy or not would not you still love the baby the same either way I have say this to people and have have many people say it to I I am ask bc when I was 6 month pregnant with my son my 2 year old daughter was diagnose with leukemia people would still say as long as the baby is healthy and my response become even if it is not healthy I will still love it the same just something to think about,positive,2
just another friendly reminder of the importance of take a prenatal multivitamin mvi fortify with folic acid much research already exist describe the decrease risk of neural tube defect in child of pregnant woman take a mvi with folic acid now a metaanalysis recently publish in the journal clinical pharamacology and therapeutic 2007 81 685 691 have demonstrate a risk reduction of leukemia brain tumor and neuroblastoma in child of mother who take a prenatal mvi with folic acid so please take your mvi with folic acid and all the good to all of you dr j,positive,2
I just find out my cousin have leukemia I am so mad and sad that I am afraid I will sprial down again that is been feel well since that is been take medication but this have hit I really hard my cousin do not deserve this no one do he is a good person who put other before himself he just get make from iraq and was just inform that his resignation request was grant he do not deserve this and I do not know what to do or where to go,negative,0
to those who have have chemo and induction and everything else what have been the good way to deal with fatigue nausea and rash my brother who have relapse two month post bmt is now on the only other drug available which is sorafidine he have a fever for two week which the doctor could not really control it seem like it was from the leukemia since wbc was great than 100 he is wbc now is 1 but he is exhausted feel terrible and do not really eat or sleep well mainly he complain about fatigue do anyone have any idea,negative,0
I just find out my cousin have leukemia I am so mad that I feel like put my fist through the wall I just do not know what to do my cousin do not deserve this no one do he is a good person who put other before himself he just get back from iraq and was just inform that his resignation request was grant he do not deserve this and I do not know what to do or where to go I am so angry right now,negative,0
have anyone or do anyone plan on save the cord blood for their baby we do not save it for my daughter and she was diagnose with leukemia just after her second birthday I was 6 month pregnant and we save my son cord blood we are currently pregnant again and plan on save this babys cord blood with my daughter I do not realize the need or useage for the cord blood but now that my family have need the cord blood we have save it just wonder if anyone else have do this hear of this or plan on do this,neutral,1
my cat have been sick for a while when I first adopt he he was throw up all the time the first vet that I take he to say it was hairball so all this time I have been try to cure his hairball problem he get a lot bad recently when I come home thursday well let we just say it was like something out of the exorcist I take he to my new vet and he run a bunch of test not leukemia not parasite not hairball my kitty have ibd can you believe that I do not know cat could get it too,negative,0
I was tell a year ago that I have chronic lymphocytic leukemia because of this I was not eligible for most hcv clinical trial or a liver transplant if I ever need one since I fail the triple tx for hcv I decide to pursue a cure for my cancer go to md anderson today and the specialist tell I that I do not have cancer just a blood disorder holy cow it pay to get another opinion I have already check with my gastro doctor about the new clinical trial that have open up for people with cirrhosis thing are definitely look up,negative,0
hi all I have a 17yr old use weed to cope with the pain that he get from his leukemia cancer my boyfriend who is 50 try to get recovery we are no long live together move into my own place in august and now my 34yr old nephew have land on my door step he have get off p and is use weed I feel so overwhelmed by all of this I also feel huge angry I will get help from a drug agency so I can cope well I just feel like total crap to be honest,negative,0
my son have been in the hospital for the last 17 month he have all acute lymphoblastic leukemia he was in remission and was able to come home on october 1 2009 but relapse and have to return to the hospital between christmas and new year when we have to break the news to he that he was go to have to go back and do more chemo and more needle I see the light go out in his eye do anybody have any advice on what I could do to try and help he any new thing your boy are into anything would really help,positive,2
good evening my name is robertalynn8 I am new and would like to be involve in this support group I have been sick since july and have have a few hospitalizaion a few bx my hematologist have tell I he is highly suspicious of first stage leukemia my blood test are wbc appro 15 18 one of the bx show a overpopulation of b cell at what time do I get scared of something progress in the meantime I am not well lately comment I would appreciate I would like to know you or your story as well,negative,0
today james cat tuffet is being put to sleep because he have feline aid and leukemia we are so sad about this and depress the cat is back in washington state where james is from and his friend there have tuffet she is take the cat to the vet to be put down at 4 pm central time today I get to spend some time with the cat and he was so loving and sweet I will miss he too it is so sad I guess I just feel at a loss about it and can not get he off of my mind we can use lot of hug and support right now to make it through this thank,negative,0
hi guy it is been a long time after the last two year of deal with medication issue and my liver not tolerate they I just complete the first treatment of campath currently use to treat leukemia when the fda approve it will be probably be know as lemtrada anyway if you are interested in read about the detail from the side effect perspective I have been post the the general miss group under treatment http www dailystrength org c multiple sclerosis miss forum treatment 12320128 start campath todayhope you all are enjoy the summer and stay healthy,neutral,1
think I would never get to this point but I am finally back home the whole bmt experience have humble I tremendously I totally underestimate the procedure day 100 result are leukemia free and 100 percent donor I do not post alot but vist everyday you guy have always give I hope and inspiration and I thank you for that doctor say my chance of relapse is relatively low 20 to 25 and should drop to about 11 after a year never hear this before but I will take it again thank you all on this site and I will look straight ahead at the long road ahead,positive,2
my mother die when I was three year old my father remarry and I was not tell about my mother death until I was twelve every time there is a separation event in my life wedding graduation vacation and so on I have anxiety attack since I was twelve I have have a very low self image I hate myself for cause my mother to leave even though my adult self know she die of leukemia I do not think I will ever get over hate myself and despise live in this skin,negative,0
my eighteen year old granddaughter was diagnose with ra about five month ago she have been feel very tired so her mom get blood work do her platelet were low and her white blood cell count was a little low she was send to a hemo dr by the ra dr leukemia was rule out but blood work is still not good the dr say that there are over two hundred auto immune disease that this could be they are check her blood work every week for two month this is new to all of we and do not know a lot about it this site have been very helpful any idea or suggestion would be appreciate,neutral,1
wpi describe how ampligen boost nk cell activity in xmrv positive cfs patient cellsby isabel barao silvestre et al may 7 2010following is the abstract of a research paper by a team of university of nevada whittemore peterson institute researcher the paper will be present may 9 to immunologist gather in baltimore at immunology 2010 by un wpi lead author isabel barao silvestre note degranulation is release of microbe toxic molecule from granule find inside some immune cell include natural killer cell _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ characterization of the therapeutic increase in natural killer nk activity of xenotropic murine leukemia virus relate virus xmrv positive chronic fatigue syndrome cfs patient effect by poly I poly c12u ampligen source may 9 presentation immunology 2010chronic fatigue syndrome cfs is a debilitate disease of unknown etiology that affect 17 million people worldwide patient suffer persistent viral infection and may develop hematopoietic malignancy the patient have reduce natural killer nk cell activity which could contribute to the disease and if restore potentially reduce symptom we characterize the in vitro effect on nk cell of the interferon inducer poly I poly c12u ampligen which in some cfs patient abate disease symptom the 30 cfs patient were infect with the gammaretrovirus xenotropic murine leukemia virus relate virus xmrv we culture their peripheral blood mononuclear cell with the drug for 24 hrs and monitor nk activity to k562 cell by flow cytometry concurrently measure degranulation by externalization of cd107a and expression of grz b and perforin treatment markedly increase cd107a externalization in the nk cell population as indicate by 5 fold increase in cd107a positive cell frequency and 3 fold increase in their cd107a mfi with slight positive shift in intracellular grz b and perforin in contrast t cell show little change in cd107a externalization our result suggest that degranulation rate may be more affected than the level of cytotoxic protein indicate a novel mechanism by which nk activity was affect by the drug the increase in degranulation per nk cell indicate a mechanism by which ampligen treatment can improve nk cell function source poster for may 9 presentation by isabel barao silvestre at immunology 2010 in baltimore maryland paper by barao silvestre I marshall m hagen ks pfost ma strayer d peterson d hudig d mikovit ja whittemore peterson institute reno university of nevada reno nevada hemispherx biopharma inc philadelphia pennsylvania usa,neutral,1
I realize I do not need to explain anything to you all but I just want to I have often wonder if I should change my pass name from jesus is our saviour to some less in your face type of thing I guess I can not anyway so be it that is the way it is when my precious husband ben was diagnose with aml terminal leukemia in december 2011 we were both devastate he have few symptom except tiredness and a flu type symptom we were tell he may have long if he undertake a bone marrow transplant my husband was the only one who could make all these decision for his life he ask for a night of prayer to get god answer and will for his life I have search frantically on the internet for information on treatment and anything which would give tangible medical answer then I find dsforum for aml leukemia to join I need a password in my frantic state of despair all my mind was on was jesus jesus no this can not be true no no you can not do this do not take my husband away from I I beg of you that is when I quickly write my password jesus is our saviour never think about it it just was after all night prayer the next morning my husband say he open his devotional page to proverb 3 5 8 which say trust in the lord with all thine heart and lean not unto thine own understanding in all thy way acknowledge he and he shall direct thy path be not wise in thine own eye fear the lord and depart from evil it shall be health to thy navel and marrow to thy bone this was ben answer to his prayer he decide to go for treatment he take treatment but after his battle which last 2 and a half year the lord take ben home the doctor have originally give ben approximately 6 month maybe to live I just want to share that story with you love sandra,positive,2
I have suffer from depression and anxiety for 20 year been on different ad and xanax along with they for treatment I also am in counseling I am try and do everything they tell I to do but it always seem to come back currently I am on cymbalta and xanax I have only been on the cymbalta two week I know not long enough to know if it is go to work but today is a bad day for I I have cry several time today who know why I am run out of time for my fmla and fear they are go to fire I I know it would be a blessing because the job is so stessful but I also need the money and insurance I feel myself fall back into my old habit of stay at home and not want to go out I am scared to go out fear of have a panic attack I guess it seem I can control my anxiety well when I am at home I do not understand why that is my mom and some other family member do not understand why I can not just get up and go I have suffer so much in my life it start with being abuse as a child from my father to have twin that were 10 week early and tell they may not make it they do make it but have lot of health issue just when I think they were out of the wood the old twin have a problem the tell we he have a mass on his brain it turn out to be an before midday which is from birth they say it is a cluster of blood vessel that grow together and they have break loose and bleed at some point where it is is to dangerous for surgery so they just watch it as if that was no enough they tell we my husband may have leukemia he is go through the testing now last visit we were tell no sign of leukemia but he is not out of the clear because he will have to have one last test in october that will have to be negative before they can say forsure he do not have it my whole life have been fill with such terrible thing how can one person handle this I try not to lose faith but it is very hard I have feel apart after go through all this I do not know how to get back to normal can anyone help,negative,0
hi everyone my name is dave my wonderful wife melissa have already been on this site and have now introduce myself I was diagnose with cml on may 9 2011 this is all entirely new to I and I am still in shock I appreciate to read all of your inspire message on here but what am I truly in for have leukemia for only three long week I am still not understand on what to expect in the future all I know is that the doctor were kind of happy to diagnose I with chronic and not acute leukemia for the first 2 day in the hospital thru were not tell I if it was acute or chronic to be honest I do not know anything about the two disease they were just say that I might have to stay in the hospital for about a month the next thing you know I was go home on my fifth day I was so happy to go home I was not even pay attention to what the doctor or nurse were tell I thank god for my wonderful wife and support team family I am just so confused because everyone keep tell I how lucky I am but I can not discover were I am lucky when I tell people I am take chemo in a pill form they think I am joke or hey no big deal they respond I never look for attention or for people to feel bad for I I actually limit who I tell about my current health issue I want to try to put this behind an move on to my old lifestyle I just hope this disease allow you to do so my entire life I have rarely ever been sick and I always keep myself in great physical shape I am aggressive in business and positive on life I just do not want to change these quality about myself I feel like I am become a different person towards my family and friend instead of being the one everyone look up to feel like everyone is look at I as this sick man now my appearance other then a few pound less have not even change it is mostly perception of my illness how do everyone this site handle these change how do you adapt and move on with cml I appreciate all recommendation to make I understand what to expect and how to get through this every day with a positive outlook thank youdave,neutral,1
doctor give 11 year old brenden foster two week to live his two week were up day ago I am think I hope I am awake when he decide to pass because I want to make sure I am hold he brenden have survive his leukemia long enough to see his die wish come true people are call and email all of they are inspire by his story when I see how brave and special brenden is especially in his darkest hour I was remind what bravery really is I think that is great you think that is great all over the country he make my dream come true in my lifetime I want to change the world and my son do that brenden can barely keep his eye open as he watch seattle homeless being feed over the weekend I do not need to worry until the time is come so I do not have to think about it if I am still alive now brenden foster is in his final day I should be go in a week or so brenden was a normal kid dream of become a marine photographer then last year he was diagnose with leukemia as he face death he is think of other this homeless camp capture brenden heart well I was get back from one of my appointment and I see this big thing full of homeless people and then I think I should just get they something but brenden is too sick to leave his bed so volunteer who hear about his story are gather to feed the homeless in his honor were make two hundred sandwich half ham and cheese half peanut butter and jelly he say he do not want to do all peanut butter and jelly because what if someone was allergic to peanut butter they are probably starve so they are my friend brenden is surround by love as he show what real love is all about he have another wish for everyone to follow their dream mine already come true he is relapse for the last time no more chemo just pain medication to keep he comfortable it is devastating but I find great peace in know we ve have our time together and that we will see each other again I have a great time and until my time is come I am go to keep have a good time,positive,2
my background 52yo philly area newly widow my amazing wife pass on jan 31st after an 18 month battle with leukemia it come out of nowhere hit she hard she hit back have a bone marrow transplant do well for a year relapse and pass away in less than two week it was crush but she have world class medicine and we ve have amazing support two kid 23 and 18 both kid are do reasonably well and in counsel the lengthy hospital stay and andrea amazing guidance help I to learn how to manage work the house a high school senior and the dog who might as well be a third kid the past few week have been a blur of paperwork and thank yous and try to figure out the new normal of daily life as for I I am somewhat confused I expect to be devastate in the week that follow her funeral instead I find myself to be a mixture of sad relieve guilty calm and anxious part of I think that I grieve throughout the 18 month she was sick her diagnosis was grave from the beginning so I have to plan for the bad and pray for the good I cry many night drive home from the hospital and certainly in the last week of her life through the funeral but I have sleep well and do not feel like I am in the abyss as so many other mention my concern is that I am in deep denial and am go to get hit hard at some point I feel incredibly guilty that I am not throw myself off the roof I am sad at time and other time the kid and I laugh at story memory of wife mom I do not hesitate to talk about she I do get counseling when she first get sick thought I was have a nervous breakdown and it help have focus on the kid in the near term and have not seek professional support as of yet what say ye about my frame of mind am I set myself up for a big fall later other with similar experience feeling for your information I am familiar with ds my wife was active in the ds leukemia site thank all and happy to be in the club nobody want to be in john,negative,0
I am have a really hard time I have been sick for almost a year and the dr is go to put in for cimzia this will be the 4th biologic so far I continue to decline when this start my right knee was enormous and hurt constantly but I was fine other than that I was drive work full time I could still take care of myself now I am basically home bind and mostly in bed I am 43 and my parent have to take care of I because there is very little that I can do on top of that I need a hysterectomy and wear a diaper once a month because I would not be able to clean up the mess I have a difficult situation where I wake up and the bed look like a scene from criminal mind it was very disturbing probably tmi I am angry all the time most people I meet that go through this seem to be on pain for 10 or 20 year I can not imagine live like this for that long at the same time if the neutrafil level increase then I will need to be test for leukemia and lymphatic cancer leukemia scare I more because there is only a 58 chance that people live for 5 year at least I would not have 20 year of constant pain in my whole body if none of the biologic work I am so sick of this I gain weight back I can not shower often enough or by myself so I stink I have diarrhea daily I am delirious most of the time now I am angry about my entire life I am in therapy and on 1 antidepressant but nothing really help now I prefer to be alone because it is exhausting when someone is here talk on the phone is exhaust I just have no hope that thing are go to ever be ok I am not suicidal I just do not know what to do anymore I think I drop a dish the other day and it feel good so I break every bit of one and chip my sink I feel so trap in bed my ex was visit once a week but she have her own problem and I think she is go to move out of state and then I will really be alone my crazy parent are the only other people that will come and help I any advice would be appreciate thank quinn,negative,0
I am here for camaraderie I guess what a terrible thing to seek is not it for this purpose I lose my daughter at her age 23 five year go to complex mental illness suicide there is a stigma associate with mental illness that is downright idiotic no on want cardiac failure cancer diabete leukemia kidney failure brain tumor but when they get these thing people at least try to be understand no one want mental illness either and furthermore medical science know virtually nothing about it nor are the medication adequate to do anything but treat it and that right poorly when my child the heart of my heart who love I so much and whom I would have die for become clearly ill I could no long deny it I do everything humanly possible to help she to protect she and to keep she alive if she have die of leukemia my neighbor and her pathetic family on her father side would no doubt have been and may still be supportive and caring of I but because she take her own life that is not the case nor will it ever be I have learn an awful lot about mental illness and suicide more than I ever want to know and probably more than most therapist the impulse is not rational and the mental state of a person who do this is call dissociation this mean the rational thought is impossible further decompensation enter in and this mean the personality the i of the person afflict disappear and behavior then become the result of pure terror horror and the need for instant relief the person will most likely should he or she survive as do my daughter four time not even be able to admit that s he was attempt suicide that is the nature of serious mental illness I just speak with a woman who take an entire bottle of pill under extreme stress daughter suffer from mental illness at age 13 both parent old and ill and have absolutely no memory of having do it all she know is she wake up in the er there is no grief bad than the loss of a child I do not mean to dismiss the grief of those who lose parent sibling belove relative or friend but the grief of child loss is lifelong there is no end to it whereas the loss of other whom we love we are someday able to accommodate I have work very hard for five year to accommodate this and the realization this year that this will never happen is terrify g k chesterton have been quote as say that grief feel an awful lot like fear oh yes in fact it feel like terror ty for read,negative,0
milk thistle herb protect cancer patient from chemotherapy associate liver toxicitysciencedaily dec 27 2009 a new study find that the herb milk thistle may help treat liver inflammation in cancer patient who receive chemotherapy publish early online in cancer a peer review journal of the american cancer society the study indicate that the herb could allow patient to take potent dose of chemotherapy without damage their liver chemotherapy drug frequently cause inflammation in the liver and when they do doctor must often lower patient dose or stop administer the therapy altogether clinical study have investigate use milk thistle to treat liver damage from cirrhosis from alcohol or toxin such as mushroom poisoning despite limited study datum the herb is often use for the treatment of chemotherapy associate liver problem to test whether milk thistle could help treat chemotherapy associate liver problem kara kelly md of the new york presbyterian hospital columbia university medical center herbert irving comprehensive cancer center in new york city and colleague conduct a randomize control double blind study in child with acute lymphoblastic leukemia all who commonly experience this side effect fifty child with all were enrol in the study and were randomize to receive milk thistle or placebo for 28 day at the start of the study all of the child have evidence of liver inflammation as measure by elevation in blood level of the liver enzyme aspartate amino transferase ast and amino alanine transferase alt when the investigator perform liver function test on the child at day 56 28 day after receive the herb or placebo child receive milk thistle have improvement in their liver enzyme compare with child receive a placebo specifically the group that take milk thistle have significantly low level of ast and a trend towards significantly low level of alt take milk thistle also seem to help keep few patient from have to lower the dose of their medication chemotherapy dose were reduce in 61 percent of the group receive milk thistle compare with 72 percent of the placebo group in addition milk thistle appear to be safe for consumption the researcher also study the effect of combine milk thistle with chemotherapy on leukemia cell grow in the laboratory they find that milk thistle do not interfere with the cancer fighting property of chemotherapy milk thistle need to be study far to see how effective it is for a long course of treatment and whether it work well in reduce liver inflammation in other type of cancer and with other type of chemotherapy say dr kelly however our result are promise as there are no substitute medication for treat liver toxicity,neutral,1
okay I was wait to say anything until I know more we find out what s wrong with I finally I have a form of cancer call myeloproliferative leukemia it cause a lot of pain and fatigue and explain why I am sick all the time it also explain all my migraine it is high white count and platelet I am say something on here because I am ask for your prayer and good thought please I will do chemo just not start it yet they are wait until I have a set up date for my gastric bypass surgery so that my blood level are good to have it they are go to try chemo pill and I will be stay with my parent when I am on it thank you everyone,negative,0
although I was not admit for chemo I am cautiously optimistic that my count are improve I am at day 62 since the start of my last consolidation here are my stat wbc from 3 4 to 4 4hematocrits from 29 8 to 32 0neut from 2 3 to 2 7platelets from 73 to 84the drs plan is to wait a week and if the platelet are not to 100 preform my 6th bmb to ensure the leukemia have not return he believe that is unlikely because I have a normal bmb on 6 june and the marrow is produce cell he state that most patience get subsequent round between day 28 to 35 I am official outside of the bell curve but he also add that my favorable cytogetic are in my favor I am confident in god divine providence for I and my family please please pray for meblessing julieblessing julie,positive,2
the countdown have begin my appt with the leukemia specialist is on monday the 25th I would be lie if I do not admit to being very nervous my husband say he would think there was something wrong with I if I was not nervous because I am the queen of worry pray for good news as he will be run a fish test and an igg along with a lot of other test that I know nothing about I have my medical file in a binder and we purchase a digital voice recorder to record the whole appointment they are predict a snowstorm on sunday night and I am hope it will stay well south so it will not add to my anxiety of have to drive over 2 hour in the snow anybody have any question that I should be sure to ask my specialist any suggestion are welcome and appreciate thank and I hope you are all do well,positive,2
while not new to loss I lose a brother as a teenager to leukemia and my mother 9 year ago lose my father have been the tough maybe it is because he was the last parent maybe its because I was the primary caregiver and spend the last 4 month of his life take care of he maybe it is the overwhelming presence of free time morning evening night when I use to have he at the forefront of my concern still wake at night a habit I guess I form during the month of care for he in the wee hour when need I am a light sleeper now 2 brother of no use before during or after it is all on I to dissolve all he have was they just wait on a check I have the memory and time spend with he something they will not have,negative,0
find this post by liane999 on parenting teensit will only take a minute or two and a few centsthere is a 7 year old boy in quebec canada who have leukemia his birthday is come up may 30th and he want to break the world record of most birthday card receive I would like to prevail upon all my friend in the fibro community to help shane realize his dream by send he a birthday card to get information as to where to send card to please visit www shanebernier can please pass this on to your church friend and so on let we make this little boy wish come true thank you post on 04 23 07 06 04 prime minister,positive,2
I need to stop go to the doctor everytime I go it is something new I go the first time and it hypothyroidism I try to get that take care of and the dose was good and now its bad again I go to doc to get the job physical and my white red and platelet come back low same day go to a pre op exam with the result from the blood work can not get the surgery kind of funny because the surgery can help my blood count next day in the hemotolgist office they say could be anything from a viral infection to leukemia more detail then that but to much to write now wait for friday to get more blood work and more result cross my finger I guess 30 is over the hill for I,positive,2
my father is 84 have chronic arthritis leukemia and suffer chf he s make a satisfactory recovery from the chf but he have take so much of my life and my brother life love he madly but we both equally do the good we can to accommdate our father but its take its toll luckily I am single so I am do most of the physical caregiving and my brother and his wife the financial I have no life my dad have a habit of ask one to do something for he and its just would not stop I need this I need that son pick this up for I ahh I bite my lip so many time anger guilt with his blessing set up move he into a home alot of interview right now just try to stay sane my brother go through the same situation his marriage shaky suggestion thank you,negative,0
my husbband die on jan 12 2007 of a sudden diagnosis of aml leukemia at age 49 I am 42 we have a 12 year old son I just want to know at what point I should start to date again I do not know when would be the time I guess when I am ready if anyone ah any answer please help I I have have a couple date offer but I am hold off I want to meet someone that I like I do not know what to do I have never been in this situation before have not date anyone since I meet my husband 12 year ago,negative,0
hello my husband is 34 year old and was just diagnose with polycythemia vera he have high platelet red blood cell and a enlarged spleen yesterday he have a bone marrow test do so we are wait I guess to see if he have leukemia or myleofibrosis I am so scared he have no symptom maybe fatigue but we have 2 daughter 2 year old 4 year old so we are both always tired the doctor was not very reassuring about anything although I have find a few web site like this one to read so I am so happy to be able to talk to other about this jennifer,negative,0
hi I am new to this forum but I am so glad I find it I have just have my first and hopefully last miscarriage my child before this was bear with leukemia and pass away when she was 5 month old I am wonder about successful pregnancy after a miscarriage how long have people wait after the miscarriage to try again have anyone have hot flash after a d c what is this rumor about being more fertile after before midday c I am sad angry and generally miserable I am an ultrasound tech and see this all the time with my patient but I never think I would end up on the patient side of this thank for being here,negative,0
so I find out this week that my exhaustion and confusion is likely macrocytosis big blood cell that are not divide at the right time it can be a form of anemia but in my case it is cause by the chemo drug I am take for my ra this mean I have fail the last drug as I know they will not let I stay on it because it could lead to leukemia I am have judgment issue inability to make decision from the macrocytosis but once the rituxan is out of my system there are no drug leave I am so severe I can not get out of bed or dress myself so please pray this condition will go away without intervention and I will be able to continue on the med and that I would not be so exhausted 24 7,negative,0
hello I am new to this board and I am at a loss of what to do my brother was diagnose with aml 70 day ago and today we were tell his leukemia was back after two round of chemo we were basically tell today that all they can do is a band aid fix and prolong his life I have read so many story on here about success and I just can not wrap my head around the fact that there is nothing more they can do for he he is have so many infection and is unable to go home because they are concern they will come back and he will be back in the hospital they are wait for the result of the fish test result to come back and then they will start a low dose of chemo for 7 day but that he will still have the cancer and it will not go away have anyone ever been thru this,negative,0
childhood cancer awareness monthchildren eye health and safety monthchildren good manner monthcholesterol education monthgerman american heritage month september 15 october 15 guide dog monthgynecological cancer awareness monthhispanic heritage month september 15 to october 15 leukemia and lymphoma awareness monthlibrary card sign up monthmenopause awareness monthovarian cancer awareness monthpediculosis prevention monthpolycystic ovarian syndrome awareness monthpreparedness monthproject aware month marine conservation prostate cancer awareness monthself awareness monthself improvement monthsickle cell awareness monthyoga monthbe aware,neutral,1
we are schedule for the first dose of the clinical trial preemptive donor lymphocyte infusion that tony sign up for this monday at noon we have mixed emotion as we know the lymph count is low after transplsnt and this will help w viral protection and establish the gvl effect but could also increase risk of gvh or exasperate any current gvh all we know is the reward outweigh the risk as we know we never ever want to face leukemia again and if this in theory help then we want to do it pray he tolerate the first dose well and the cell get along harmoniously with tony body as well as circulate and do any seek and destroy mission they are suppose to,neutral,1
my husband pass away on sept 21st this year after a two year fight with leukemia the pain that day was devastating watch he slip away during the next couple of week it would come and go but I was so busy tie up loose end I figure that once I start into a normal routine I would be flood with grief other than one day a couple of week ago which was very bad I m fine I miss my husband every day and think of he always but it just feel like I should be madder or more devastated I know that I love he with all I have so I am so confused by this,negative,0
I start with severe headache in jan and was fortunate to have dr that know something was not right and send I to er in the first week dx with possible pseudotumor cerebri I end up with lp and they say they were unable to obtain opening pressure due to they have to hub the needle too tough skin and have to really push against needle was tell test come back clear as optho order a full gammett of test I was give a test result yesterday state that 1 hypocellular speciman with rare mature lymphocytes2 no carcinoma identify optho say he was not clear what the extent was so I need to ask neuro on fri I am try to gather info and not freak out but from read it is say central nervous system cns involvement by lymphoma leukemia now those are scary word no matter how you look at they,negative,0
I am dread my due date and while I know its a while off I can not think of october without hyperventilate you see my sister die on the 11th of october from leukemia when I was 14 my father birthday who pass away from cancer is on the 27th of october and my due date is on the 20th of the same month I really do not know how the hell I am go to cope with october from now on it all feel like too much an like I say while I know that it is a while off yet I also realise how quickly time is go by its drive I insane,negative,0
okay so at the marathon yesterday I meet a woman who see my nf team shirt and want to thank I I ask if she was on the team even though she was wear a different shirt she say no because that was ctf childrens tumor foundation and she was on her local nf inc board apprently they are not work together and in fact are feud have you ever hear anything so stupid should not we all be on the same team she make the comment that she have try to talk to people from nf inc but to no avail she say look at leukemia and lymphona you do not see they fight laugh out loud anyway I do not get it just wonder if anyone else have hear anything about this,neutral,1
my husband and I are slowly progress and learn more and more about adoption we are not in a hurry but have been try to learn more about home study and so on and I have a panic attack I understand it need a full medical history and family history of potential parent it just make sense but my history is so crazy from recent leukemia I have not even been in complete remission for a year yet a history of depression I start freak out feeling like these thing will completely make our dream of adoption null and void I am aware there is a high probability that I am over exaggerate and this fear is not go to stop we from continue with our goal of have a family but it is still just freak I out any thought,negative,0
hello everyone I know this have nothing to do with fibro but this is something that is very close to my heart and I am very passionate about when I was 13 I lose my grandfather to lymphoma and since then my sister and I have been determine to do something about it we both volunteer for the leukemia lymphoma society recently I receive a notice that the us senate is introduce an improve cancer care act but it need the vote to pass it what I am ask you all to do if you live in the us anyways is to email your senator tell they to support this act the website to do this is here http action ll org c lkl1j8mlkrh b 1492167 siteapps advocacy actionitem aspx aid 10225i promise you this is not some hoax or anything it is just a plea to help cancer patient thank for your time and hopefully support and have a bless day allie,positive,2
tomorrow sept 9 will be one year since I leave my husband for cheste on I three time in the eleven year that we were marry then on next tuesday I go to court with my divorce paper to have my husband serve and it hurt so much then to top everytheng else off I find out on thursday sept 4 that my parent have just seperate my father have leukemia and he have stop take his pill and he have start to drink again this is just to much for I to handle I love my father and I do not want to see he give up and that is what I feel like he is do since he have stop take his pill please help I get thrpugh thishurtingbad2,negative,0
I was wonder if anyone on here have experience with an ommaya reservoir I have constantly opt out of they and have choose lumbar puncture instead to date I have probably have almost 30 lumber puncture I think I was finally do with they but what do you know my leukemia decide to pop up in my spine again so look like I have get many more lumbar puncture ahead of I I am now wonder at this point if an ommaya reservoir would really be the well option for I I know the treatment is more convenient but the thought of have surgery and something put into my brain really freak I out if anyone see this who have have an ommaya reservoir or know someone that have I would really appreciate if you could tell I about your experience and if it was a well choice for you than the lumbar puncture thank,negative,0
my mom is unable to absorb iron so she have get iron infusion and even blood 2 pint she s been battle this for year and it s only get bad she s being treat by a hemotologist oncologist and he can t even help he say it is not leukemia which is good news and when she receive the blood her level were normal her energy last 5 week but have crash again she just go back and receive a double dose of iron infusion but she is not feel at all well I don t know what or where to take she next I think her diagnosis is that she is lose blood from the small intestante but microscopically everything else is negative colonoscopy endoscopy and so on where do we go from here,negative,0
I just want you all to know my husband pass away this morning they call I in the morning and tell I he was not do well they ask to pick I up to come see he I was get dress and I get another call tell I he was go he was diagnose with leukemia on may 16th he do not even make it 3 month I do not expect to lose he so soon I am feel so guilty because I have not been to see he because I can not drive right now hospice come to visit I they say do not feel guilty he may have go quickly to protect I I am have a real difficult time with this I just keep cry,negative,0
my cat is horribly ill from our past experience we are pretty sure he have feline leukemia sp I have been spend as much time as possible with my cat and try to treat he make he comfortable I apologize for lack of time spend here I try to be as attentive as possible even when feel well to help support other but these past couple week thing keep pop up long story short if you have a spare 30 second if you could send a prayer or think good thought and so on for my kitty his name is alex but we also call he mister tub because he like to hang out in the bathtub thank you t_t,neutral,1
I just speak with a friend of mine who I have not been able to get a hold of for a few week to make a long story short she tell I that her son justin 7 was diagnose with leukemia just before easter and they have been in and out of the hospital I was speechless what do you say I offer my love and encouragement of course we live quite a few hour away but our son were bear within 2 week of each other sit here think of poor little justin and the pain of chemotherapy and treatment that he will have to endure make I feel guilty for feel bad about anything please if you pray say a prayer for this little guy and if you do not just please add he to your thought for the day thanksstephanie,negative,0
ok so how do I convince my dad that I m old enough to date I m 14years old dad say I can not date till I m 16 in a way I can understand but its frustrating I meet this really amazing guy he is sweet and funny and smart we talk for hour at a time about everything under the sun there is also a set of special circumstance with both I and timmy the guy I want to date and who have ask I out for movie night that happen in a few week I have breast cancer and he have leukemia I do not want to pull the guilt trip thing on dad to get he to let I date but at the same time I m not sure if he will let I date if I do not use the guilt trip any idea sorry if none of this make sense,negative,0
I am curious about how people deal with the first few week month year after diagnosis also how people end up in the doctor office to begin with whether or not they have any symptom what their initial wbc was what their initial reaction were to the diagnosis and the chemotherapy I should introduce myself my name is joe and I am 29 I was just recently diagnose with cml on leap day feb 29 I go to the doc twice over the course of two month due to seven episode of unexplained bump and bruise some severe that mostly occur on my leg the first time I go in I have my leg ultrasounde to look for blood clot no blood test were do and I was tell that I was healthy fast forward two month and another big bump appear on my back just above my waistline this one turn in a 12 diameter purple bruise and it feel like I was sleep on a tennis ball next step blood test the doc call I at home and tell I to pack a suitcase and head to the hospital he say my wbc was 250 000 and I have leukemia upon get an examination the next day in the hospital I also find out my spleen was massive it extend from ribcage to waistline and cover both side of my abdoman equally it was the big spleen my oncologist have see in 20 year I have been diet heavily and work out 6 day a week for the previous 4 month and I have lose the extra 50 pound I have been carry I think the soreness and firmness of my abdomen was due to the thousand of rep of abdominal workout I have do I have to admit I was not very familiar with leukemia at the time of diagnosis I know it was a blood disorder of some sort but was not aware that it was actually cancer I have to ask the admit nurse what it was while she was hook I up to an iv I am now back to work full time and take a regimen of 600 mg of gleevec and 4000 mg of hydroxyurea daily along with allopurinol to flush my kidney my last wbc was 150 000 and drop I reach a peak of 350 000 right before chemo begin my side effect from the med have been pretty mild with no significant nausea or stomach issue to speak of as a whole my side effect have been anxiety trouble sleep loss of taste and some concentration and memory issue I am not sure if it is the med cause this or the shock of a surprise cancer diagnosis now that you know my story it is your turn joe,negative,0
I think I may have give some bad info on stem cell and I think this is the good way to correct it I am on another list call inspire not nearly as good as daily strength but it do provide opportunity anyway this participant name mike seem to really have a handle on it and so I pose the question to he and this was his response he is also high on the work they are do at upenn upenn anti cd123 car aml that might be something that some of you would want to look into as an alternative if you are at that point most of we are not anyway here it is and I hope it do some benefit to all of you daveby ls1c5reply 4407421 inspire vidaza august 22 2013today at 9 21 amreport postthe cancer stem cell population is a fraction of a percent but that is enough to cause relapse cancer stem cell have not been find yet in every cancer but aml was one of the first cancer where they conclusively isolate the cancer stem cell csc or leukemia stem cell lsc in the literature chemo kill off rapidly divide cell which would be blast actual tumor cell but cancer stem cell like normal stem cell do not rapidly divide and so they are insensitive to chemo they like normal stem cell are also good at evade poison and remove poison so when a treatment come along that can kill off that cancer stem cell population there is real chance for a cure it do not look like a upenn anti cd123 car aml trial is start I hear from name withhold mom that they have ask about it too for a friend and nothing is ready yet dr junes team and other are look at tandem car to get around off target toxicity they will chose two target that are both express by the cancer cell and not healthy cell in other word for a cell to be targette it will have to express 2 out 2 target I do not believe they have identify a leukemia stem cell for cll and all therefore for the few lucky people who have benefit from the anti cd19 car therapie their car t cell have to stick around to kill off blast because their bone marrow is probably still produce they in addition to try to make normal b cell mike,neutral,1
finally the us is follow canada australia and uk by ban cfs patient from donate blood do this mean we will be put in a national database washington post todayre cross bar chronic fatigue patient from donate bloodby rob steinthe american red cross announce friday that it is bar people with chronic fatigue syndrome from donate blood to reduce the risk of transmit a virus that have been associate with the disease the virus is know as xenotropic murine leukemia virus relate virus or xmrv some study have find that people with chronic fatigue syndrome are more likely to carry the virus but it remain far from clear whether the virus cause the disease nevertheless the red cross decide to bar people with the syndrome from donate in the interest of patient and donor safety accord to an announcement from the organization a man give blood for the red cross james a parcell for the washington post at present there are no specific federal recommendation regard deferral of individual with chronic fatigue syndrome cfs or other disease that have been associate with murine leukemia virus relate virus xmrv infection nevertheless in the interest of patient and donor safety the american red cross will defer indefinitely any donor who reveal during the donor interview that they have been diagnose with cfs the statement say there is currently insufficient datum to conclude that xmrv is transmit through blood transfusion however the national heart lung and blood institute nhlbi task force is conduct research to determine the frequency of the virus in the donor population whether it is transfusion transmit and whether recipient become infected and develop the disease it say a task force that review blood safety for an organization know as the aabb recommend in june that blood collect organization actively discourage potential donor who have ever been diagnose by a physician with chronic fatigue syndrome or myalgic encephalomyelitis I from donate blood or blood component in addition any donor with symptom of cfs would be defer if on the day of donation they respond negatively to the question are you feel well today the agency say the recommendation come after new research strengthen the possible connection between the virus and the syndrome the red cross have implement the aabb recommendation and have go far to implement indefinite deferral for donor who reveal a history of a medical diagnosis of cfs the statement say the food and drug administration which regulate blood safety have no immediate comment on the decision the agency is convene a panel of outside expert to review the issue later this month by rob stein december 3 2010 4 23 prime minister et,neutral,1
I am so happy I find this website after read through some of the post here I am confident that I can find some much needed support on june 17th I notice a few little red spot on my 5 month old son I just assume it was some sort of rash and keep an eye on it on the 18th it was a lot bad so I call his dr office and they say it sound like a viral rash and that it would go away on its own on the 19th he have litterly hundred if not thousand of this little spot all over he so I call back and make an appt to take he in on the 20th by the time we get to our appt that morning he have start bleed from his mouth and I was terrify I have no clue what was wrong with my baby the minute his pediatrician see he she send we to the lab to have blood draw his platelet were down to 6000 so he was admit to the hospital where they start ivig he have 2 dose while there and his count go up to 67000 by the time we leave on the 22nd we go back to the dr on the 25th and have blood draw again and his platelet were in the normal range 160000 well early this week I start to notice the petechaie comme back so I take he back to the dr yesterday and his count is back down to 39000 we wendt today for another cbc and his count drop to 37000 the pediatrician do not seem concerned about the slight drop since monday but we have to go yet again on friday to have they check again his dr say that unless his count go below 20000 they would not really do anything is it normal for his platelet to drop so low again after have the ivig when they diagnose he I come home and look it up on the internet something I probably should not have do and scare the crap out of myself I was afraid it may be something bad like leukemia or something but his dr say she highly doubt it since everything was normal except his platelet she also say that if it was leukemia that he would not have respond to the ivig I am have a hard time accept that there is something wrong with my perfect little man and it break my heart everytime I have to take he in to have blood draw I am hope and pray that this will be a short live ordeal for we his dr say that most child who get this it turn out to be an accute case that is sure what I am hope for thank for any feedback and or advice,positive,2
I am try to figure out if I have fibromyalgia or not I was hospitalize this summer with an acute headache and a blood clot was discover in my brain and subsequently I find out I have a genetic blood clot disorder I have delat with depression and anxiety my entire life although my symptom have never really been somatic other than fatigue I initially assume it was a reaction to the blood thinner I now have to take and those med interfere with my other one but the doc are say no I have alot of joint pain extreme fatiuge my muscle fatigue more quickly and are stiff and sore all the time I am an avid exerciser and am very in tune with my body in many way so I notice a drastic difference in how I feel I am being test for lyme disease and I am concerned about lupus one of my blood test come back a low positive but the doc say that was normal or chronic leukemia but the fibro make sense what w the whole cortisol and stress thing I am also have weird memory blank not being able to rememebr people name what I was do 5 mintue ago at work little thing like that the one thing I do not experience is have place on my body that hurt to touch other than my joint when I put any pressure on they but I can not sit in any one position to long even w my leg strectche out and on my bed cuz my butt start to hurt and my leg cramp up I know I need to bring this up with my doctor but I also want to hear about other people experience as I have little trust in doctor anymore after they fail to inform I of the lab result that say I have a genetic clotting disorder and for month were tell I they all come back fine do any of this sound familiar to anyone I test negative supposedly for arthritis or any kind of internal inflammation the one odd test result was a high white blood count which make I think lupus or leukemia just try to gather some information as I now know I really have to advoacte for myself as a patient to a get a diagnosis and the appropriate treatment some I kno have been share their vicodin with I other than that I do not think I would be able to work exercise or get out of bed at all any of this sound familiar to anyone,negative,0
all I hope this do not seem like a stupid question but your perspective advice is truly appreciate on jan 23rd I was deem in full remission with no sign of leukemia nor the inversion 16 cytogenic I was diagnose with on march 22 2013 praise god originally I was count my remission from april 27 2013 the date I go into remission after induction but I have read that some count remission after all chemo is complete and the final bmb is do of course I would love to think that my one year remission anniversary is just around the corner in april but if I need a reality check please give I one thank you in advance for the help julie,positive,2
I am 43 yrs old and I am have a hard time get a diagnosis what type of specialist do I need to go to I have see my shrink he say its not my depression I have have a sleep study its not sleep apnea I have have bazillion blood test and it all show nothing I do have chronic myeloid leukemia which I was diagnose with march 30th my blood work look great today because of my medicine but I am still super fatigued I have been tired for 7 year and its only get bad my house is fall apart my relationship are in the toilet and I feel like the bad mother in the world,negative,0
there is noone to talk to my good freind is die of cll leukemia terminal no family marry 24 yr of abuse and counting work my way out everything hard no cheap apartment no job my plan were secret but this morning he tell I he is in love with someone else he dump I I do not have to run everything kinda the same I still need a job and a place now he is focus on someone else I am hurt and sad and know I should be grateful or relieve but I am scared and lonely and worry more than ever I need everything to turn around now job apartment ty for being here,negative,0
I am in shock today I recently have a stress test and go to my cardiologist today for result I was stun when I was tell they find something my heart was damage by a heart attack probably sometime in june when I lose my husband to leukemia this could be cause by something call broken heart syndrome the bottom leave side of my heart was damage and I need to have an angiogram to determine if this was the cause it could be a blockage but they believe it may be break heart syndrome which can occur with the stress of lose a spouse have anyone else have this experience I know that I was struggle with my health and energy level but I never expect this annie,negative,0
could not think of a more creative title so I am a week shy of three month and I can not seem to purge the cycle of think about andrea last week from her relapse leukemia to she re admittance to the hospital the rapid deterioration to a ventilator then the final act I keep play and re play over and over I know nothing change duh but its as if its program to play daily and completely random I think about my talk with her her final chat with our kid the conversation with the nurse and doctor I suspect its part of the trauma but hope it fade over time pretty unsettling to be honest handle the grief ok kid are great not affect daily life but just this nagging re trace of step guess its part of the process thank for listen and being here gang really cool people here john,positive,2
hi folk my worker daughter have suffer a rare form of leukemia she was fortunate to find a donor but many people are have a difficult time because 16 yr old cece is a girl who can make a negative situation into a positive she have start a crusade to get everyone out there to email oprah on 9 29 this will help raise awareness for the national marrow registry in do this you can help save many liveshave you email oprah yet help join cecis climb to bring awareness to the national marrow registry and help save a life plz email oprah today www emailoprah org join www cecisclimb com and save life thank you yaya,positive,2
hello you all I would like to introduce myself I am a mother of a four year old son college graduate and newly dxe with sle lupus leukemia some form of skin cancer sjorgern and possibly scleroderma I recently go to my first rheumatologist appt for the lupus and leave with all kind of diagnosis I first concentrate on all of the lupus info and put the scleroderma on the back burner after read some more about the scleroderma I am pretty sure that it is a possibility the rheumies nurse tell I that a neurologist would have to dx scleroderma is that true my gp quit on I she tell I that I was too much for she to deal with after the rheumie appt so now am search for new gp to get a referral to neurologist and hematologist I hope you are all have a good day and I would appreciate any and all response kim,neutral,1
I find this on a gay men health blog think I would share this with you can this really be true accord to numerous report doctor believe an hiv positive man who undergo a stem cell transplant have been cure as a result of the procedure accord to the huffington post report timothy ray brown also know as the berlin patient receive the transplant in 2007 as part of a lengthy treatment course for leukemia these finding were then recently publish in the journal blood affirm that the result of extensive testing strongly suggest that cure of hiv infection have been achieve this along with another stunning recent report that indicate that healthy individual who take antiretroviral medicine commonly prescribe for treat hiv can reduce their risk of contract the disease by up to 73 percent are incredibly exciting development what do you think of these report will hiv actually be cure through genetically engineer stem cell,neutral,1
I have been linger in this forum for a while ready all of the post I find out that I have hemochromatosis about 6 week ago I am also a 15 year cancer survivor of leukemia I do my first bloodlette today and it will be do on a weekly basis under my iron is 50 or below I am go to have a port put in because I have no vein really to do this with because of the chemo that I endure during cancer have make my vein a hard stick I have feel extremely exhausted since they withdraw the blood today and have a headache as well is this a normal thing to be deal with any information that you all have is a huge help to I talk to you all very soon thank you in advance,negative,0
my gf of almost 6 year and I have been have some trouble get along lately we argue more often than not these day we are both very aware of the issue and we are work together to extinguish they I want to get back to the butterfly I want to want she I want to feel love on instead of annoyed we hardly ever touch one another never hold hand hug and so on how do we get here how do we go back what can I do to change this p s a little insight into why life have been so out of whack 1 I have been diagnose with leukemia 2 we have been displace home wise 3 money is so tight due to housing and medical bill,negative,0
are any of you consider save the cord blood of your baby or if not donate it it can save the life of your baby if heaven forbid they ever get sick with something like leukemia it can be save for upto 25 year and can offer protection against over 70 different illness I just think I would let you lady know about it it is quite expensive at 1000 uk pound but personally if I can not afford if I am save I will donate so it could save the life of another baby I think it would be especially useful because my baby would not have a 100 biological sibling at any point due to his dad leave I and biological brother and sister are the close match for anyone I have read some amazing success story of this and just want to let you guy know,positive,2
have anyone here try a doctor that is not traditional medicine but go more towards the natural approach a year ago I try one but then I get really sick and got diagnose with the leukemia in the emergency room and with all that I just never go back to the natural doctor lucky my fibro do not seem as bad as everyone here and I am hope it do not get bad but it seem like I have read article about natural stuff work but since insurance do not cover that type of care most of the time a lot of people can not afford to do it just curious if anyone have any luck so if I ever win the lottery maybe I can afford to try it,negative,0
I am 55 on the verge of divorce and do not have a penny to my name I quit my job feb before last after I got marry he actually say I could since I was so unhappy there I then cash in my life saving so we could live on it now I am look divorce in the face no job no money other than what I get on unemployment and alone I am look for another job but I am scared to death there is no way in hell that I will ever have enough retirement at this stage of my life is there anyone out there that can advise I that can relate I wake up every morning scare to death I am live with my 80 year old mother who have leukemia she do not need this I feel so hopeless,negative,0
this poem is one I write after I lose my step son to a rare form of leukemia I recite this poem and lite a candle on the anniversary of his pass sept 27 1998 sept 13 1999 I hold he in my arm while he take his last breath it still hurt to this day a child questionwhat is a caveman am I one what is daddy cry about do something happen what is mommy cry about is she cry because daddy is what is this needle do in my hand am I sick what is the doctor do is he cry too what is the angel say is she tell I it is time to go what is heaven is grandpa and everyone else there what is were the last word of a die child I dedicate this poem to all parent who have ever lose a child and in love memory of my son christopher,negative,0
yesterday I go and have my first of yearly bone marrow test I am sure it will turn out good because I have no reason to believe otherwise I was scared at first think it would hurt more then it do and I am sore now but I know it would not last do anyone here that have leukemia have other thing they deal with as well is there anyone not able to work because of cml and med side effect sometimes I feel bad because I wish I do not have to work because I am tired all the time but I should turn that into being thankful that I can work and that I have a job thank anyone who comment this site I notice have no activity at all so I guess the member here are all do pretty well and are not complainer,negative,0
hi I am brand new here a little background 46 year old male history of crohns leukemia bone marrow transplant in 1999 which cure my crohns present have have pain in my hand and foot for some time hand more severe past year or so pain in my finger have get so bad there are time I can not open jar there are time the pain make I nauseous and of course quite frustrated and angry have been to rheumatologist neurologist two primary no arthritis osteo or rheumatoid and nothing neurological was find currently classify as fibromyalgia but I know it is not that on gabapentin for now which help but I seem to be take more and more of it to help control the pain also I live in a community I move to in 2013 and really have no close local support I can count on would love to hear from other with similar symptom steve,negative,0
I think that I was the only one that do not eat meal because there is no one to eat with or cook for or have they cooking read the hard part of the day entry and several people say they do not cook eat now I just want to put it out there that this can be deadly after my son die I stop eat meal and after my husband die he was not there to cook for I I end up get cml cronic leukemia from being so malnourished I find that eat with family is the good way to get a meal I do not feel hunger or thirst so I have to make myself do it any other tip on eat well when there is no one to eat with,negative,0
my hubby die 12 17 14 after an 18 month battle with leukemia we have 3 daughter age 16 12 10 I try to explain this overwhelming feeling to my friend and I feel like they think I am crazy I am not lonely anxious depress at time I have total terror like I am a child have the bad nightmare of my life I am not scared of sleep alone not scared of care for my house or child well a friend finally get it she tell I a priest once tell she lose a spouse is the same feeling as if you are run out of a burn building that is the exact feeling I have occasionally get less thank god,negative,0
okay as some of you may know I have an mri because of vertigo the mri show a small non specific brain lesion the report mention getting test for lyme my doctor have give I a blood test paper to take to the lab the test she is order are for rheumatoid and thyroid she also order for lyme the test check is lyme igg igm with reflex western blot I know that there are certain test that must be order to detect lyme as some show false negative is this the correct test the test you recommend or should I try something else I so want this to be lyme nothing more serious like leukemia which is another test she is take I think anyway with lyme it will explain all my ache pain tiredness and so on thank thank,neutral,1
I just turn 28 last week and was diagnose last month I have been in a bit of denial I guess as thing have not seem much different I have feel bad for such a long time I do not really know what to say other than I feel pretty alone because most research I have do refer to cll as an elderly person leukemia or at least people over 40 I am just lose it is bring up a lot of hard question the main one being at 28 I was go to start try to have a baby is it selfish for I to become a mother with this diagnosis I do not want to stop all my plan and just wait for it to take over I think the denial phase is wear off now thank for listen lind,negative,0
I was just diagnose 2 1 2 week ago with cml my little boy just turn 3 and have been have what appear to be anxiety attack after never being apart I was suddenly whisk away from he and our baby for a week and have to stop breast feed cold turkey it break my heart to see he suffer like this he is ask my husband if my husband have leukemia too do anyone out there know of any good mental health resource for little child who have a parent with a chronic disease I am very afraid for he luckily my daughter is just a baby and do not know what is go on it greatly sadden I though not to be able to take she to my breast anymore and comfort her,negative,0
have anyone ever hear of anyone have radiotherapy and or cemotherapy like a leukemia patient treatment in order to combat fibro accord to hilda clark all pathogen bacteria mycroplasma have a terminal frequancy one frequancy at which they die check out http www stenulson net althealth hcfreq txta list of hulda clark frequency that I use by doug clean for his zapping these number come from I scan with the f scan2 some of the name might be wrong but not the number note some number have more than one bug mycoplasma 324khz epstine bar 380khz ecoli 392khz chlamydia staph alpha streptococcus 381khz trypanosoma gambieense 396khz plasmodium cynom 422khz trypanosoma rhodesiense 426khz taenia soli pork tapeworm 444khz cystericu fasci 437khz food for thaughtali5tair,neutral,1
I just watch a movie call new york doll about the bassist for that band arthur killer cain I was never into that particular type of music but it was on hbo and I just watch it it was heartbreake this man life was a nightmare however at the end of the movie after this poor man have go through a nightmare of a life morrisey and bob geldolf arrange a reunion tour where they were feature people come out it was amazing people pour love on this man after all of these year and I was just in tear he die six month later of undiagnosed leukemia but I know what a send off he must have have after all of those year of misery my point I suppose is the power of love and support is phenomenomal and whoever you believe god to be there is one,negative,0
I do not know how but I forgot to mention that charlie is in the icu in an induce coma for pneumonia and a blood clot in his lung he is struggle since he already have been weaken by the leukemia they put he on a ventilator which we all know is harsh and they need for the coma because he put too much energy towards fight it wilma is beside herself and was feel bad she just call I yesterday and have not call other yet I try my good to tell she myself and other understand emergency are important to they over other so do not worry I know we all go sometime but I am not ready to let my old buddy go and I feel like it is his time with covid they would not let I up there please say prayer for charlie and his family,negative,0
this is my only real grandaughter that god give I through my son who have leukemia as a child we were tell he would never have any from radiation she s god special gift to I she just leave with dad today his only child she spend 4 day with I and we have a great time we sing a lot of christmas song shell be back xmas day her name is taylor dad is trevor he is the same one that was also my gift from god he is also the one who lose his right before midday in iraq I was tell he would not live today I learn he was 6 he s now 31,positive,2
hi all not too proud of have to join this but I really need the support and peer accountability plus maybe learn few thing too two and half year ago diagnose with an eat disorder skip meal daily average maybe one full meal I am one that do not eat when I am stress depressed or alone all of which are very prevalent in my life right now I have been in remission from aml leukemia for 2 year now I know I have to eat to survive but I can not seem to change the habit I have been in most of my adult life I am 42 I am a size 14 but still see nothing but fat plus my emotion leave I lack the desire to eat so that is I in a nutshell,negative,0
hi everyoneyesterday my young daughter ali phone I and tell some not so good news she have a hard time tell I but I encourage she that I listen and tell she tell I she say that their dad girlfriend ow have a very rare leukemia and is in the hospital for 1 month solid and will be go through treatment I have so many mixed feeling right now I just respond to my stbx answer to my application for a divorce he want custody of our 14 year old also alot of thing write in his documentation are not true I write 7 page to e mail to my lawyer yesterday to respond to his answer to my application I really could use anything you have to offer advice encouragement hug prayer anything is appreciate thank mk,positive,2
okay this may be a bit tacky but I read the book a long time ago a mother would ask her daughter who have leukemia at the end of every day what was good about today here a review of the book that sum it up the author ask her daughter at the end of each day in the hospital what was good about today which make I see the importance of focus on the positive some day the only good thing sara could find to say was that she have lime jello which really drive home how lucky the rest of we are think it would be a good topic for a thread today it was nice weather and I exercise so much that now I feel the calm and contented feeling that come from having use up all of my energy which I love so much anyone get anything,positive,2
my sister in law dh sister is die of cancer my semi ed who I decide I would just become the big person and call she her daughter my gd is quite ill she sill be 6 next month come down with a uti with blood and pus take an antibiotic it recur with blood she have swollen gum stomach pain lethargic anorexic weak my semi ed is worried she have leukemia as am I and dh my gd have sweat now at night with no fever the dr brush it off my husband have pneumonia a couple of moth ago that drs brush off it turn out he have heart damage as well I am feel so overwhelmed lately life is short my poor granddaughter is so sick,negative,0
lot have happen in the last 2 week and I just seem to not be able to catch a break my family find out about my si and I go to a doc and he put I on prozac my classmate die from leukemia on sunday and I go to the funeral wednesday I have not been totally myself since the depression just seem to be get bad at the moment and I am now physically and mentally sick at the same time I just want to cry and let it all out I want someone to hold I and tell I its go to be alright and that they care I just do not feel like thing are get any well maybe its the prozac and maybe I am just being paranoid but I just feel so sick at the moment I do not understand why I have to feel this way all the time,negative,0
http www iherb com ahccnational broadcasting company news video explain how this is a good substitute for the flu shot which do not necessarily work since there are so many strain of flu virus ahcc is a nutritional food supplement develop from the mycelium of several specie of mushroom include the shiitake and is obtain by culture basidiomycete mycelium in large scale tank for an extended period of time ahcc active hexose correlate compound is process exclusively in japan by amino up sapporo japan since ahcc is costly to produce make sure the brand you buy is nationally know and reputable scroll down and there are 2 link for more information scroll down to quality of life kinoko gold click on that then read the ingredient and information also be sure to read the customer review someone cure a cat of feline leukemia with ahcc if it boost the immune system it is get to help destroy the hep c virus do not you think,neutral,1
question for the depress out there do not it drive you crazy when the normal people around you stay away from you because you are sad it make I feel like a freak outcast or something I find that because I have leukemia cardiomyopathy depression and so on folk think that they will catch something from I so they stay away most of the time I guess in a way I can understand it it is human nature fear and so on but it still hurt sometimes when I catch a story on tv or in the newspaper about people come together for other in time of need I feel jealous I think like what about I where are all my friend when I need they but thank god I find this site maybe I can find some true friend here anyone else know what this feel like,neutral,1
hi my name is martha was diagnose with leukemia almost 2 year ago while 4 month pregnant with my son under go chemo therapy while pregnant deliver my son 4 week early everything go well have 13 year old autistic son that require a lot of work and a 9 year year daughter as well go into remission dec 2015 jan 3 2016 find out my husband crash his motorcycle and die on impact now I am still struggle with my illness and alone with 3 kid I just am lose of word and suffer from shock and depression it is hard to explain how I feel cry each day and I miss my husband of 16 year he was 42 and I am 34 life suck,negative,0
my father sister have iron deficiency anemia she receive several transfusion in try to battle this it then turn into aplastic anemia and finally leukemia which we lose she to 2 year ago I was diagnose with iron deficiency anemia I recently receive my first transfusion but they can not find a cause for the blood loss incidentally my cousin who is an lpn also research holistic option with her ail mother and read that they find the fluke parasite in the liver of many cancer patient my father by the way die of lung cancer I have no insurance and have minimal income and do not know where to begin right now other than take my ferrous sulfate 4 time a day and colace so I can stand it when I approach in the hospital about my aunt the doctor do not think there was any genetic possibility of condition progress like my aunt is there anyone here with something similar,negative,0
I am the caretaker for my boyfriend who have multiple myeloma and plasma cell leukemia the disease are very aggressive but so is the treatment my problem is with his family who do not seem to realize his need for rest they come often and stay for long period of time instead of lie down and completely rest he is force to interact and talk with they when he would rather be need to be rest he is too nice to tell they not to come yesterday for mother day he was suppose to go to his brother house for 15 30 minute but they do not bring he back for 2 hour am I wrong in think that rest quality rest is essential in his recovery if I say too much on this subject they think I am being control and try to keep they from he advice,positive,2
always check with your doctor or pharmacist first before take any herb ginseng increase cognitive functionperiwinkle the herb not the flowering plant increase cognitive functionvincristine the main ingredient in periwinkle improve cognitive function and is one of the most anti cancer drug in the world increase the survival rate among child with leukemia and have prove to reduce brain tumor gotu kola not only boost the brain think process but lower stress rosemary just smell rosemary improve speed and accuracy while perform mental task gingko biloba improve memory check with your doctor first if your on blood thinner other than that it is very safe to use remember check with your doctor before take any of these herb if you are take any type of prescription drug you should be able to find these herb at your local health food store,neutral,1
I have been have fever on and off last for about a week for the last 6month or more it is like I have no control over my body temperature now that it is get warm outside it is even bad I have been to the doctor and have been blow off they just thinkmit anxiety it can not be this is not normal I am 18 I should not feel like I m burn up in short and a tank top I m scared because I m do some research I find that unregulated body temp and fever that come and go are symptom of leukemia and lymphoma everyone tell I I m overreact and that it is nothing but I m really uncomfortable every day and I just hate getting blow off when a doctor know that I have anxiety maybe I should get a new doctor and just not tell they this just suck and no one will halp I or listen to I thank for readingkaty,negative,0
I just discover this site though I was diagnose back in february basically my leukemia relapse and I have to get a bone marrow transplant they have a donor but the first re induction chemo do not put I into enough remission so I am kind of look for word of wisdom or advice for those of you who have experience a similar path it is so frustrating to have a donor who is a perfect match but the cancer seem to be outsmart the chemo and each chemo take away that much more strength then if I do get a transplant I am freak out about the hospital stay how do one survive week in the hospital without go stir crazy any advice on how to make the stay easy especially since it will be over the holiday,negative,0
hi girl I have never do this before but think it was worth a try brianna my daughter is in remission from leukemia actually she is get her wisdom tooth remove today and I am a very worried mom I am try to find out where and how I can obtain a 3 g I pod for she when she was first diagnose her church give she a regular nano which is die on she I want to get she the 3 g with screen as a surprise do anyone know where I can go to get help I do not have that kind of money being disable and all as you all know if anyone have any idea at all please let I know and no I would not go back to my old way to obtain one,negative,0
I trust you are all glad that 2010 is over and look forward to a well 2011 last year my son sign I up with the leukemia and lymphoma society that send I a packet of booklet on aml one for the caregiver question to ask dr s really good stuff now I get newsletter and update like the one being offer on jan 11th on aml treatment and side effect present via phone or web register by go to www ll org leukemiaeducation they will discuss current an emerge treatment option strategy for side effect and management and the role of clinical trialsregister by jan 7th by phone or web 866 992 9950 ext 305 orwww ll org leukemiaeducationyou can call ll info specialist 800 955 4572 for more info or a packet on amlcheck it out I am go to register tomorrow by web for the web presentation keep the positive attitude go darla,neutral,1
well I may be in a pickle my former leukemia doctor would still order test to be run on bone marrow research I suppose well it was just post to my mda online account today and it reveal two mutation tp53 and gna11 the scary part is that I have never have these mutation before my blast count on my most recent bone marrow was 1 and no bone marrow cancer mutation were detect the bone marrow complete in december do not have these mutation present I think what ultimately make it bad is that the tp53 mutation is often assort with other cancer outside of the bone marrow I am await my doctor response on next step please keep I and tony in your prayer as we journey through uncharted water andy,negative,0
my brother owe I money and keep tryingto keep it constant email he take all my belonging and sell house behind backat one point I need as attorneyi have trustee that tell I what it is aboutandnhe owe I moneysince death family have not been supportivemean email no thank yous when I sendgift they were mean to I when motherdied sisinlaw was always yell and tellin I what to do she is awful it was 3 year ago and ongoing problemstrustee is provide hopei will stop all contact with they or justa card on birthday and xmasbeaten down and wear out grief couselorssaid that I should have no coontact withfamily they know the whole storybecause we have hospice and help in homefor parentsi recevently find out I have form of leukemia,negative,0
was enough to send I into a tizzy last week I am in such a h a turmoil lately anything will put I over the top what is wrong with I I can not seem to come out of it this time I was go to spend a nice day with myself shop and go to a movie but then I look down on my hand and see a tiny little white spot on the nailbed of my ring finger I freak out it was about the size of an ant and I was over the top with anxiety I feel I have read somewhere that it was a sign of leukemia and I have to run home and google it more than likely its a sign that your nail do not like the nail polish or and p remover that you use or something benign like that just think I wreck a whole fun day due to something the size of an ant I have to shake myself out of this,negative,0
last december my brother was diagnose with late stage leukemia and give 2 6 week to live then they bombard he with a really potent treatment that work in 70 of patient and it do kill the cancer he have been do fine feeling pretty good put on some weight now he is back in because bone marrow test recently come back with cancer again the cancer stay away as long as he was on chemo drs are now look at bone marrow transplant anyone here have experience with this procedure how do they get the bone marrow from family member I hate this wicked disease he also have a bleeding ulcer and have been throw up blood he live in florida and I live in iowa which make it hard I dod plan to fly down shortly and spend whatever time I can with he thank you for any thought and share experience,negative,0
hi everyone I m a 17 year old femal diagnose with acute myloie leukemia on march 30th 2011 I m from dubai bear and raise there I come to the state seek treatment transplant in particular I hope I overcome this horrific disease and go back to my country and fiancee as fast as possible so I was wonder how long it would take for 1 my 3rd cycle of chemo2 bone marrow transplant 3 recovery all together at least an approximate number of day or month or what ever as well as what I should be expect in my last chemo dose as I hear it the bad thank you and may god bless everyone,positive,2
I am a 19 year old female and I have itp my platelet level are extremely low they are 11 000 right now and the doctor have I on iv steroid until I get my bone marrow biopsy and aspiration they think I have acute lymphocytic leukemia if so then ill have to get a porta cath insert in my chest and start chemo right away they say if I do not have it then I will still have to get the porta cath insert in my chest and I will have to get ivig treatment I have do a little research on ivig but do not know anyone who have every have to get it if any of you have get ivig treatment please tell I everything I would love to know your story thank,neutral,1
marybe11 ask I to post this she have stage 4 lung cancer and have survive thus far with an experimental treatment in a control group she is the only survivor her cancer have return in her left lung she have opt for surgery which will remove the upper lobe of her left lung she ask for all of your prayer and positive thought as she face this challenge last november we have a chance to meet she and her husband they are on our photo page and are very dear to we all thank papa and mama,neutral,1
hi everyone first of all I am here because I have lose soooo many love one to this horrible disease 2 month ago I lose my sweet preceous aunt cindy side bar she never smoke a day in her life anyway this past 6 month I have lose 5 people to lung cancer instead of being sad I was angry and I do not like being angry so I do some research and I find some stufff ok I will not go into that now the thing is I am on a crusade to make lung cancer awareness know big anyway I join this group and post my finding and stuff I guess maybe I was too strong or something and probably hurt people who are in pain and or are grieve and I was no long a member so now I join again my reason for being here is not to hurt anyone and I am soooo sorry if I do I learn something I write a strong email about my finding to everyone in my email list most are family whom also just lose aunt cindy and a lot are family and friend whom we recently lose lester only 55 year old I do not realize what I do wrong I was confused that I do not get any reply so today I speak persoanlly with a few and they say it was just too sad and they are in a grieve process and its too soon for what I am try to do I tend to forget that everyone is diferent I mean no harm so I am hear to love and support if anyone is interested in my work of course private message I but I will no long publicly discuss it I am soooo sorry for those I upset peace and love allison postscript I do not have lung cancer yet but due to my smoking I find out yesterday at the doc that I have severe damage to my vocal cord I can barely talk and it hurt to talk,negative,0
I lose my grandmother to bone and lung cancer this past in november just before thanksgive I am so distraught over it I can hardly see straight then I turn around and my ex boyfriend mom whom I am still close to has lung cancer it is stage 3 she is undergo daily radiation treatment and I do not know what to do with all this pain I lose an aunt to breast cancer almost 10 yr ago and I just do not know how why cancer seem to be haunt I so right now I just wanna curl up in a ball and cry or run and hide but I have to go see my exs mom this weekend cause if I do not and something happen I will be upset that I do not he tell I about her condition back over the summer but it have progress so quickly that I can not see straight,negative,0
I feel angry because my beloved aunt die of stage 4 lung cancer on march 7 2014 now that I have just come out of the bad depression of my life from my aunt death my mom give I very bad news about my dad my dad have been diagnose with stage 4 lung cancer my dad is do his 2nd round of chemo and he is in so much pain that the medical professional at the hospital have give he a pain pump one thing that make I rather nervous is that the doctor have take out my dad pace maker so he can get a full course of a chemo therapy if my dad should develop a lethal heart beat disorder like bradycardia low heartbeat or other stuff like that I can lose my dad even before the cancer end up kill he I do not want medical condition to kill my dad because I love he so I pray everyday for my father well being to improve thank you for read what I have to write about what s go on with my dad have a blessed day,negative,0
my cousin die tody of lung cancer and I feel so unconsoleable,negative,0
my wife of 55 year was just inform that she have a recurrence of lung cancer she have surgery for lung cancer 4 1 2 year ago and have the upper lobe of the left lung remove no chemo or radiation she receive checkup at 6 month interval kaiser permanente clean until the last one in mid december cat scan show tumor about size of 50 cent piece in remain lobe of left lung same size as first one try to schedule pet scan now to see if cancer find anywhere else pulmonary doctor have suggest removal of remain lobe of left lung leave only one lung that have terrify my wife she is also afraid they will find cancer elsewhere when they do the pet scan her stress level is very high and I am at a loss as to what I should say or do to try and reduce that stress and anxiety sometimes she just cry she have many many friend in our small community but she do not want to discuss this with they she have ask I to screen all phone call and all her email I feel her anxiety and I do not know where to turn the close support group is in salem or but she will not go with I I need some suggestion anything please verboort,negative,0
review of tarceva tarceva is an important drug for lung cancer and here is my summary of its use 1 egfr positive patient tarcevas effectiveness is primarily determine by the patient egfr status patient with a mutate epidermal growth factor receptor egfr have a response rate of over 60 to tarceva more than double that of conventional chemotherapy in contrast egfr negative patient have a response rate of 10 or less though some argue its have some efficacy in stabilize disease not reflect in the response rate whether tarceva should be use first or after chemotherapy is being debate clearly it is a central part of treatment for egfr positive patient 2 testing for egfr status egfr positive patient are generally non smoker and very light former smoker with adenocarcinoma however a few smoker are egfr positive and some non smoker are not test to confirm the patient status make sense 3 t790 m and meet as source of resistance sadly resistance frequently appear after patient respond the cancer find way to restore the aberrant signal two primary source of resistance are the t790 m mutation and meet mutation 4 testing testing to determine the source of resistance and evaluate what drug hold out promise drug may differ as to their effectiveness with each mutation for example one study find generally disappointing result with a dual inhibitor call neratinib but response were see in patient with the rare g719x egfr mutation highlight the importance of obtain comprehensive genetic information on trial of target agent seequist neratinib an irreversible pan erbb receptor tyrosine kinase inhibitor result of a phase ii trial in patient with advanced non small cell lung cancer j clin oncol 2010 jun 20 28 18 3076 83 see also gazdar epidermal growth factor receptor inhibition in lung cancer the evolve role of individualized therapy cancer and metastasis review volume 29 number 1 march 2010 since different drug impact different area test is increase being evaluate and use 5 initial clinical trial with pan inhibitor a new generation of drug was design in part to combat this type of resistance they are call irreversible pan inhibitor and show promise in cell study the name irreversible is confusing and refer to its mode of action one can apparently withdraw from the drug without significant consequence after show promise in cell study the drug have show only limited effectiveness in human trial see yun the t790 m mutation in egfr kinase cause drug resistance by increase the affinity for atp pnas february 12 2008 vol 105 no 6 2070 2075 analysis of the t790 m mutant show how it can adapt to accommodate tight binding of diverse inhibitor include the irreversible inhibitor hki 272 6 combination therapy combination are the late word on address tarceva resistance in contrast to the reversible tkis like gefitinib and erlotinib the second generation egfr inhibitor the irreversible tkis such as cl387 785 ekb 569 pf00299804 bibw2992 and hki 272 seem to effectively inhibit egfr t790 m and block the growth of nsclc cell line harbor t790 m mutation preclinical work in mouse suggest that irreversible egfr inhibitor such as hki 272 might not be potent enough to completely block egfr t790 m signal in vivo and the combinational therapy with inhibitor block downstream signal such as rapamycin improve efficacy interestingly a novel egfr tki wz4002 efficiently inhibit egfr phosphorylation and induce significant tumor regression in murine model of egfr t790 m additionally hsp90 inhibitor may effectively target egfr mutant for degradation and thus overcome the t790 m mutation as t790 m remain as a good target a well design drug or combinational therapeutic strategy are necessary to overcome drug resistance ji mechanistic insight into acquire drug resistance in epidermal growth factor receptor mutation target lung cancer therapy cancer science april 27 2010 7 use of other egfr drug include erbitux since aberrant egfr signal appear to be the culprit and egfr drug have show effectiveness other anti egfr drug like erbitux are being closely evaluate combination use erbitux are show promise but again the result can vary base upon the specific cellular characteristic of the patient regale dual targeting of egfr can overcome a major drug resistance mutation in mouse model of egfr mutant lung cancer j clin invest 2009 october 1 119 10 30003010 see also steiner tumor growth inhibition with cetuximab and chemotherapy in nonsmall cell lung cancer xenograft express wild type and mutate epidermal growth factor receptor clinical cancer research march 2007 13 1540 another study suggest combine hki 272 with a drug call rapamycin also know as sirolimus the combination of hki 272 and rapamycin result in significant regression of both type of lung tumor this combination therapy may potentially benefit lung cancer patient with the egfr t790 m mutation sos chemogenomic profiling provide insight into the limited activity of irreversible egfr inhibitor in tumor cell express the t790 m egfr resistance mutation there is no consensus on combination and sometimes it seem difficult to get two manufacturer of different drug to get together for a clinical trial in my view a careful review of article combine with testing can increase the patient chance of find a beneficial treatment understand the probable source of resistance and select a clinical trial or treatment plan which have show some promise with that particular oncogene make sense,neutral,1
get dad pet scan result after is lung cancer lobectomy all clear no sign of cancer I know we have many more pet scan to go through for the next 5 year but good news is good news I do have a question about his pft result though as you know my dad is suppose to use oxygen his doctor say he is severe what I do not understand is his fev1 is 66 percent this is good compare to what I have see other people have on this site I am very surprised so why is he consider severe and on oxy is it because his removal of the cancerous lung his dlco is quite low too with 66 percent why is he so out of breath thankyou everyone hug candi,neutral,1
well today is day 2 of no smoking I have to do this m y lung are not goo d r say and I may have alpa1 a genatic d which mean get lung cancer or liver cancer just hope and pray I do not got it will not know till nexted week I am just so stress about all this,negative,0
cleveland clinic live chat late advance in lung disease october 16 2008 at 12 noon est from westley stump copd support newsletter subscriber may be interested to know cleveland clinic will host an online health chat on lung surgery advance and option the chat will be hold thursday october 16 2008 at 12 noon e and will be lead by dr david mason a staff surgeon in the cleveland clinic department of thoracic and cardiovascular surgery during this chat dr david mason will take question on the late advance in the treatment of lung disease some of the late advance include improvement in diagnostic technique medical management and new surgical technique include minimally invasive surgery dr mason hold joint appointment as a staff surgeon in the clinic transplantation center in the division of surgery and in the cleveland clinic cancer center he specialize in general thoracic surgery minimally invasive thoracoscopic and laparoscopic surgery lung cancer esophageal cancer malignant mesothelioma and lung transplantation dr mason is board certify in general and thoracic surgery lung disease can take the form of cancer chronic breathing condition and even lung failure determine the appropriate treatment option for the vast variety of lung disease can be overwhelming to patient dr mason will join we on october 16th to take your question on the late advance have been make in the treatment of lung disease these include improvement in diagnostic technique medical management and new surgical technique include minimally invasive surgery this health chat will open on october 15 2008 to allow you to submit question we will try to answer as many question as possible during the chat please create an account to attend the chat and submit your question scroll down at http www clevelandclinic org health chatreg mason html each day listen with compassion speak form your heart see with your soul touch with tenderness bring light into the darkness be generous with love and kindness leave behind a smile,neutral,1
my coisun lose her husbune this more to lung cancer the family could use paryer hug minnie,negative,0
lose family member this more from lung cancer family could use prayer,negative,0
please pray for my hubby is wait on his bone scan result he find out he have lung cancer,negative,0
hi everyone test result come back today and mum suspect lung cancer was a false alarm good news,positive,2
if someone send something particularly about lung cancer they disapear is this whole thing a scamm,neutral,1
male recently diagnose with lung cancer small cell I see my onc this friday 1st visitbob,neutral,1
at 20 minute after quit blood pressure decrease pulse rate drop body temperature of hand and foot increase at 8 hour carbon monoxide level in blood drop to normal oxygen level in blood increase to normal at 24 hour chance of a heart attack decrease at 48 hour nerve ending begin regrowth ability to smell and taste improve the benefit of quit smoking are just begin between 2 week and 3 month circulation improve walking become easy lung function increase between 1 to 9 month smoke free start as early as a month after you quit smoking and continue for the next several month you may notice significant improvement in these area cough sinus congestion fatigue shortness of breath at one year smoke free your excess risk of coronary heart disease is decrease to half that of a smoker after one year at 5 year smoke free from 5 to 15 year after quit tobacco stroke risk is reduce to that of people who have never smoke t 10 year smoke free risk of lung cancer drop to as little as one half that of continue smoker t 10 year smoke free risk of lung cancer drop to as little as one half that of continue smoker is not it great hugsssssssssssss deb,neutral,1
http www huliq com 9501 inositol lung cancer gene discover,neutral,1
have anyone else have this treatment for lung cancer how do it go,neutral,1
do any one have any information on target therapy for lung cancer,neutral,1
I never would throw anyone under the bus let alone my own family member but now she is go and is finally at peace my favorite auntie die of lung cancer and was forever drink look back at the past she was always drink and smoke she only like or associate with folk who drink or smoke you do not smoke or drink she have no interest in you she start off giggly but then she get bad and bad a rude nervous wreck accord to my father his sister she start smoke and drink at 16 till the day she could no long drink or smoke where she pass away in hospice 76 as a matter of fact the doctor actually cure her stage 1 lung cancer the doctor tell she he remove her cancer and she would be ok if she stop all the drinking and smoke she tell the doctor are you kid I will be dead before I quit drinking and smoke the doctor say if that is the case you are free to go and I can not help you anymore and you might as well light up now and get your favorite bottle of vodka she continue to drink and smoke she was diagnose with stage 4 lung cancer I never think I would be push my glamorous favorite auntie in awheel chair outside to smoke a cigerette with a bib on she because she have ashe fall on she and could have care less that is a very very big reason why I quit the glamorous life a perfect example of someone you truly love look up to and admire who you do not want to end up like I was totally go down the same path I see my future this happen awhile ago this is why I can share now I do not know why I am share today the nightlife and fun time are truly not what they may seem to be I am so happy I no long live like that soon or later it all catch up to you quit while your ahead this is a true story of someone you love who I would truly an addict,neutral,1
recently inform that my lung cancer have return in lymph node 18 month ago have complete removal of left lung and then chemotherapy anybody else deal with a reacurrance,negative,0
I quit smoking weed 4 day ago I would smoke for pain mostly because I have a bad shoulder from an injury because I am allergic to every pain medication out there I have not have any craving for anything but I am have anxiety about lung cancer and respiratory failure I have been have on and off chest pain and a weird discomfort near my breastbone on the right side I cough for day on and off and nothing come up so tonight I force myself to cough and some mucus come up with attention of orange I am worried that it might be blood which might mean lung cancer I smoke on and off for five year I never smoke cigarette in high school a few time but I never like it I am try not to freak out but it is impossible not to when I feel this discomfort I am try not to look on the internet google my symptom have make it bad if anyone understand what I am go through please help I am desperate and I am tired of freak out,negative,0
I was think today about how 3 year ago a good friend of my daughter father die my husband and I go to the funeral it was of course heartbreake I do not know my daughter friend mother very well at all and as we go through the recieving line to give our sympathy she reach out to I hug I and whisper in my ear my life will never be the same I tell my husband how odd it was for she to be so intimate with I at such a horrific time in her life 2 year later I am wait for my husband to come out of radiation and strike up a conversation with a sweet old woman who was wait for her husband the fact that my husband have lung cancer come up and she tell I her first husband have lung cancer and die 9 month later at 48 it was the intimate way she look at I that I remember now my husband last a year and die at 49 look back now I can not help but wonder if god was send those people to I to give I a sign I will never know here on earth but do anyone else have thing they now think of that might have been sign I might be reach but so what,neutral,1
what is people thought on the ecig some people I know have quit on they and some people have been tell I they are bad for you last week a family friend die of lung cancer he find out he have stage 4 lung cancer and was take within week it have prompt I my mother her partner and my close friend to quit so we order the ecig and will be here friday is it easy to quit also my 15 yr old daughter have been smoke since she was 13 I have try to get she to quit too but she will not so my mother and I have take she to youth quit smoking clinic and so on but she just do not want to we order she a ecig too but say she will not use it so how can I get she to quit to she is a very strong willed kid and stubborn and she s a hard nut to crack any idea please thank for read,negative,0
I am still grieve the loss of my husband who die from lung cancer july 27 2013 and on monday was tell my chest x ray is abnormal I am go for a cat scan but have some of the symptom remember this time last year with my husband I really have no fear of die I am 74 year and have live a wonderfully bless life I have four successful child who have been very good to I my big concern is tell my adult child age 50 57 my son are on opposite end of the country but my two daughter are live in the same city as I and have been so protective call I take I out and so on since their dad pass away what I do learn deal with the big three hospital in our city is that at one surgery was do before the mri was read he have the mri on friday and the surgeon perform the surgery on monday and in the process cut a nerve for which he turn into a zombie from morphine and methadone to kill the pain this was in addition to the lung cancer these were all teach hospital and were very detached a very unpleasant experience I am pray that this new hospital will give I the comfort I need at this time,negative,0
how was your lung cancer diagnose,neutral,1
what happen after you quit smoke the benefit of quit smoke timeline 20 minutesblood pressure drop to normalpulse rate drop to normalbody temperature of hand and foot increase to normal8 hourscarbon monoxide level in blood drop to normaloxygen level in blood increase to normal24 hourschance of heart attack decreases48 hoursnerve ending start regrowingability to smell and taste is enhanced2 week to 3 monthscirculation improveswalke become easierlung function increase up to 30 percent1 to 9 monthscoughe sinus congestion fatigue and shortness of breath decreasecilia regrow in lung increase their ability to handle mucus clean the lung and reduce infectionbodys overall energy increases1 yearexcess risk of coronary heart disease is half that of a smoker5 yearslung cancer death rate for an average former smoker one pack a day decrease by almost halfstroke risk is reduce to that of a non smoker five to 15 year after quittingrisk of cancer of the mouth throat and esophagus is half that of a smokers10 yearslung cancer death rate is similar to that of a non smokerprecancerous cell are replacedrisk of cancer of the mouth throat esophagus bladder kidney cervix and pancreas decreases15 yearsrisk of coronary heart disease is that of a non smoker hope this help someone I am sure its have been post before quit smoking breath more easily and have a great day holly,neutral,1
my sister age 62 begin have numbness episode in her hand arm and foot a few year ago she finally see a neurosurgeon who send she for some mris see lesion on her brain and diagnose she with miss however test result send to the mayo clinic come back as negative so the only other two possibility could be a brain infection or cancer in the brain numerous test later include more mris ct scan and finally a lung biopsy have lead to a diagnosis of metastatic cancer adenocarcinoma she is a non smoker but we do know that non smoker can get lung cancer the fact that it have spread to her brain mean she is have it for a while and is likely in stage 4 thing is she have have no breathing issue of any kind as a matter of fact her oxygen level register a 98 when they test she last week she is not cough up blood nor cough at all she have some fatigue and back pain but say it is not a serious pain she have not see an oncologist yet will see one next we d but the doctor she do see a neurologist give she 6 mos to a year and recommend a round of chemo which may or may not buy she another year she is to have another ct scan and bone scan next week to determine if the cancer have spread anywhere else do anyone here know of stage 4 lung cancer without the symptom I mention above any word of wisdom or education from any of you would be greatly appreciate thank maggie,neutral,1
please pray for my friend faya the dr think she might have lung cancer,negative,0
my aunt recently die of lung cancer and I just can not get over it,negative,0
the first owner of the marlboro company die of lung cancer so do the first marlboro man just think I would pass that on,neutral,1
one of my staff have lung cancer so this is close to my heart I just want to get to support people my name is colleen and I have cp and some reason cancer in general keep pop up in my life,negative,0
my dad have lung cancer met to brain bone his face is and have been swollen for a while now more than 2 month his doctor say the swelling is due to the cancer in his brain have anyone experience this before if so is there anything that can be do about that,negative,0
my hubby is fight chron disease he is in the hospital I take he in great pain dr do not know what is go on yet sept 12 we go see the cancer dr for his lung cancer I so need prayer and I hope and wish god hear they soon please,negative,0
hi all I m ava 55yr old mom and grandmom I just find out that I have lung cancer a 17 mm on left lung just the word cancer is scarry sure wood like to have someone to talk to my e mail addy is handleyava yahoo com anyone from new mexico,negative,0
smoke cessation timeline a the health benefit over time a in 20 minute your blood pressure and pulse rate decrease and the body temperature of your hand and foot increase a carbon monoxide in cigarette smoke reduce the blooda ability to carry oxygen at 8 hour the carbon monoxide level in your blood decrease to normal with the decrease in carbon monoxide your blood oxygen level increase to normal a at 24 hour your risk of have a heart attack decrease a at 48 hour nerve ending start to regrow and the ability to smell and taste is enhance a between 2 week and 3 month your circulation improve walking become easy and you donat cough or wheeze as often phlegm production decrease within several month you have significant improvement in lung function a in 1 to 9 month cough sinus congestion fatigue and shortness of breath decrease as you continue to see significant improvement in lung function cilia tiny hair like structure that move mucus out of the lung regain normal function a in 1 year risk of coronary heart disease and heart attack is reduce to half that of a smoker a between 5 and 15 year after quit your risk of have a stroke return to that of a non smoker a in 10 year your risk of lung cancer drop additionally your risk of cancer of the mouth throat esophagus bladder kidney and pancrea decrease even after a decade of not smoke however your risk of lung cancer remain high than in people who have never smoke your risk of ulcer also decrease a in 15 year your risk of coronary heart disease and heart attack in similar to that of people who have never smoke the risk of death return to nearly the level of a non smoker,neutral,1
http www picbadge com asthma copd lung cancer 2411966,neutral,1
I was do good I was do great finish college get a job look at a second well pay job yesterday I get the call he is get lung cancer cj my mom tell I first thing upon wake up dad get lung cancer I could lose my dad I still do not feel anything though I am still so numb inside should not I be angry sad something I do not now what to do I do not know how to feel I do not know how to cope I just do not know I can not lose he he is everything he do not have to be my dad he do not have to be with my mom he do not have to treat we like his own but he do and if I lose he I do not know what I will do I do not know if I can make it without he right now,negative,0
I obsess on the bad possible case scenario to the point that I cause my own panic attack I am new to this site and post a journal entry if you ne to know more aobut I right now winter is kick off here and I have a cold that have move to my chest today I catch myslef make myself cough at work to see if I could try and tell what color my mucus was what the fuck then I go online and start look through webmd to see the symptom of lung cancer then I start obsess in my head how my husband would be able to cope if I have lung cancer and so forth and so on that end up with I go through a panic attack I am schedule to see my doctor next monday and I am go to tell she what is go on in my head to maybe start some help with medication I just feel defeat when I think about go back on pill to help I function anyone else go through this,negative,0
we lose our cat daniel on wednesday august 18th just five week after he was diagnose with lung cancer I think I am in shock,negative,0
I never think I would be post on a bereavement site but I am have such a hard time with the loss of several people over the last few week my dad die 39 year ago my mom remarry almost right away my mom die on nov 9th 2010 my dad brother die on nov 30th my mother in law on dec 13th and my mom brother on dec 16th the last 5 month before my mom die were very hard she do not feel good but no one really know what was go on I am a nurse and she do not feel particularly happy for I to ask her nurse kind of question she become extremely hostile toward I and angry we live near each other but hardly see each other I do tell she off one day I would never do that before of course I apologize and so do she I just could not figure out why she was so angry at I and so hostile I am the old of 6 in the blended family two brother then two step sister then a half brother who is just old than my own kid unfortunately my mom share her anger and malice with my sibling about I my mom was in and out of the hospital with lung issue from a about with lung cancer 13 year ago the first week of nov she finally got diagnose with widespread lung cancer liver bone another kind of lung cancer than the first several week before her diagnosis her little brother was also diagnose with small cell lung cancer within 5 day she was go I would spend the early morning hour at the hospital with she I like to be there when the doctor come in I was with she for about 5 6 hour on monday tuesday I go to bible study but do not go up to the hospital since my granddaughter was with I she just suddenly die on tuesday I feel so lose I keep want to call she I think what could I have do differently for the last 6 month to make our relationship well how do I deal with having lose both of my parent now my step dad is a good guy but definitely not a support for I I have 4 kid three grandchild but I have lose my job due to a work injury am divorce and so on so I was look at my life like a book I do not have any piece that all fit together my life is a pile of snapshot tear out of the album of my life my step dad also give away all the family picture from my childhood my real parent wedding and so on to my brother who live 5 hour away and who is not talk to I right now boy is this hard when my dad die all the picture got put away when my mom remarry I know nothing about my step dad first wife we do not have a lot of experience share with each other how we feel I can not call my sibling and say I am have a hard day today I can not deal with their hostility even if I understand that this is how they are deal with everything,negative,0
well my fatherinlaw was diagonse in late may of this year with nonsmall cell cancer in his lung and small cell cancer in the liver he was too weak to go thru regular chemo and radiaton they were give he intervenient chemo and by first of aug it have not shrink any cancer but nothing have grow either it was still in the same state they were get he ready to put in a port for radiaton to be set up mid sept and he pass this past week I know this was comme but was kinda shock he pass after it have not spread any far and was in one lung totally part of another but was not in the brain or spine or anything like describe in the post I have been read here but they say he die of congestive heart failure I wonder if the chemo just weaken it to that point he fight as long as he could and I look at it as he is out of his pain now but its still hard even think that way I am just so lost to why he go so quickly but the way I understand he was lucky with non small cell to have make it more than a couple of month I m so new to this he s the first person that is personally know with lung cancer please pray for my hubby he s take it so hard,negative,0
http www allproudamericans com girl with lung cancer get her wish 5 day before die html,neutral,1
I m lose my good friend to this terrible thing call lung cancer and just need support,negative,0
I am new to my disease and to the group can copd emphysema turn into lung cancer,neutral,1
I am 45 never smoke a day in my life on march 24 08 I was amite to the hospital with pnemonia on april 24 08 I find out that I have lung cancer and that my lung will have to be remove I am wait of the doctor to schedule I for surgey it is the hard day of my life sit and wait how can this happen I never smoke everyday I see a person put that trash in there lung and life a long happy life how do this happen,negative,0
hello I am a new member of lung cancer support group,neutral,1
what kind of reason is it that when you get lung cancer,neutral,1
I just get a call from my dad who have been dx with stage 2 pancreatic cancer he have the whipple surgery and was clear for the past 7 month today the scan he have come up positive for lung cancer he have a few nodule in his lung positive for cancer have not he been through enough I am so angry with the world I do not know what to do he is so scared and I just do not know what to tell he I am so angry sad scare he is the only parent I have leave he is such a good man he do not deserve this thank you for listen its good to throw it out there and not have to censor myself bxdreamr,negative,0
on jan 3 2008 I was tell that I have a 99 9 chance of have lung cancer I go on the 15th for a bronchoscopy how do you deal with the uncertainty of not know for sure before you find out whether or not it is cancer and how do you deal with it when you were tell it was definitely cancer I am so full of question but afraid to ask I was tell that if it was cancer that it was find early and would be operable it is in the middle lobe of my right lung my doctor say it would be hard to get to but was doable that have I wonder what if they can not get to it,negative,0
hi everyone my husband was diagnose with stage 2 lung cancer today chemo and radiation are in the near future I am not sure what to expect I,neutral,1
my dad have lung cancer and have such difficulty do anything he have to sit down after any exertion is there anything that can help,negative,0
my dad have stage 4 lung cancer and now his lung keep fill up with fluid he have it drain last wednesday and again have to yesterday tuesday each time they drain almost 2 liter and today it is already show fluid again the drain procedure is very risky but it help he feel a little well anybody else know anything about this do this mean it is almost time for he to go I do not know what to do,negative,0
was haziehobnob that is get to beat this nic addiction I really have to find the strength quit number 2 million start tuesday my dad die of lung cancer on april 12th 2002 my friend beat lung cancer but is suffer 4 monthly scan nerve rack scary this is a dreadful addiction my daughter is 8 year old I have she late in life 39 I need to be around at least another 12 year my own mortality scare I I m so very sorry but I know I m go to be a serial poster I know I m go to really need you all I m scared apprehensive that is never last long than 12 day quit that is read the stat visit whyquit read allen carr book but still smoke I have light cigarette up in tear beat myself up over why I do this why I can not seem to sustain a quit do I not love my daughter enough to live for her am I so selfish,negative,0
I just do not get it why do this always happen every single time I become more stable something come along and destroy I leave less and less piece to put back together I despise this life and everything about live I have many mental illness no friend bad health constant pain physical and emotional I am unattractive and never been on a date I have no job and can not concentrate enough to get an education my grandpa and father die from lung cancer and my stepdad is an ass now now I find out my only friend my cat have lung cancer I can not handle this anymore everything gets take away from I I could move on but I know it would just happen again there is no point someone give I a reason to live do not say for my family or friend I have no friend and my family is burden by I whether they admit it or not if I die there would be no impact I am not write a suicide message I just want someone to find one little reason I should live even if I never kill myself I would just fade away into non existence when I just decide use my motor function is too much anymore,negative,0
hi I need some advice my fiance whom is only 27 go into the er for right sided flank pain he have liver problem already but during the ct scan they find a noncalcifie nodule on his right lung I do not know his family history as far as lung cancer but I do know that he have pancreotic spelling cancer that run in his family my question is do anyone think we should call a pulmonologist to have it study further thank in advance,neutral,1
my mother in law pass away this morning it was for the good as her quality of life have deteriorate terribly she die of lung cancer the sad thing is this may have been avoid she never go for a mammogram in her life and when they initially find the cancer in her breast it was at an advanced stage and it then spread to her lung needless to say the next few day are go to be a bit crazy but I will be back someone goya for I,negative,0
hi guy I am officially off of warfarin today I have genetic testing next month pretty scared find out I have a speculate lesion on my lung I am go for a ct scan next week little scared since any thing I look up say cancer any one have any knowledge of this my dad die from a pe after surgery for lung cancer I love he but do not want to follow in his foot step in that way any knowledge would help thanksl,negative,0
smoke cessation timeline the health benefit over time in 20 minute your blood pressure and pulse rate decrease and the body temperature of your hand and foot increase carbon monoxide in cigarette smoke reduce the blood ability to carry oxygen at 8 hour the carbon monoxide level in your blood decrease to normal with the decrease in carbon monoxide your blood oxygen level increase to normal at 24 hour your risk of have a heart attack decrease at 48 hour nerve ending start to regrow and the ability to smell and taste is enhance between 2 week and 3 month your circulation improve walking become easy and you do not cough or wheeze as often phlegm production decrease within several month you have significant improvement in lung function in 1 to 9 month cough sinus congestion fatigue and shortness of breath decrease as you continue to see significant improvement in lung function cilia tiny hair like structure that move mucus out of the lung regain normal function in 1 year risk of coronary heart disease and heart attack is reduce to half that of a smoker between 5 and 15 year after quit your risk of have a stroke return to that of a non smoker in 10 year your risk of lung cancer drop additionally your risk of cancer of the mouth throat esophagus bladder kidney and pancrea decrease even after a decade of not smoke however your risk of lung cancer remain high than in people who have never smoke your risk of ulcer also decrease in 15 year your risk of coronary heart disease and heart attack in similar to that of people who have never smoke the risk of death return to nearly the level of a non smoker,neutral,1
in 2011 my beloved husband steve pass a kidney stone I take he to the emergency room and they do a scan they detect the kidney stone but at the same time they also detect two lung nodule on his right lung the emergency room doctor was extremely extremely clear that these nodule could possibly be precancerous or even early cancer and that he need to follow up on they if that was not clear enough he was also give write instruction to follow up on the lung nodule do he follow up on the lung nodule no he do not for a year I beg he to follow up and he would not eventually he become angry at I for nag he finally I give up and tell he I was go to take care of my health and suggest he do the same but acknowledge that he was just too big for I to pick up and put he in the car and take he to the doctor four year later he was diagnose with stage 4 terminal lung cancer which originate in the right lung um yeah pretty sure those lung nodule were precancerous yeah I am angry he suffer horribly and I was leave a widow in my early 50 our son lose their dad while they were only in their 30 and our precious 20 month old granddaughter who was the light of his life during his final day will never even remember her grandfather who adore she our grandson will only have a few memory of he and our yet to be bear grandchild will never even see he lung cancer is so deadly because it have few if any early symptom find those lung nodule when they were not really look for they was sheer luck and it was probably the one and only opportunity we would have have to save his life now I am leave to live the rest of my life without he because he was a stubborn ass I am so angry at he and I miss he so very very much sylvia,negative,0
have someone else have this really freak it start to think I have lung cancer have a pain in my back when I cough,negative,0
http www dailystrength org health_blogs dr orrange article can I be screen for lung cancer utm_source facebook utm_medium facebook utm_campaign facebook,neutral,1
she is not a member of the bipolar community but she is one kick ass lady she have lung cancer and is go in to have one of her lung remove tommorow I do not like to ask this but can you guy send she some hug please she is really scared,negative,0
I am new to this my mom who is 63 30 year smoker was tell she have lung cancer in middle of left lung they were go to remove it but decide that they would do a biopsy of nearby lymph node becaseu chest area light up a little during pet scan doc say the tumor was quarter size is that consider big we go to the oncologist tomorrow why would they hold off on remove half lung until biospy come back this is all so scary it was find acidentally I have call ambulance because her sugar was high and I could tell so I send they to her house and they bring she to hospital and do chest xray and ct scan whic I wonder what prompt they to do that anyway maybe something in the blood they also give her mri of brain can someone tell I what is goign on I have been cry since she was admit last week she was release friday after biopsy what can I expect another thing six year ago she have a pancreatitis and this hospital stay they say she have it again but mild last time she was on a respirator but I know when she have pancrea prob last time she was throw up but she is throw up adn nausea forgettte everything and so on really worried everything I read show a bleak outlook for lung cancer someone help I here,negative,0
for those of we suffer with emphysema and who are suffer just like those who have contract lung cancer from cigarette smoking just wonder jim evridge,neutral,1
my mother in law just find out she have 3 to 6 mo due to lung cancer I was wonder if anyone have any advice to help use with what s to come in those monthe thank,negative,0
I will be participate in a relay for life event this summer and was ask to share howie s story english is a second language for I so I could use your input before I email it meet howie howie die of terminal cancer on january 23rd of 2013 at the age of 52 year old the shocking aspect of this is that we were tell that he have terminal cancer on january 15th of 2013 he never even have a chance to fight because of not being diagnose early on the final verdict was a guess that this was lung cancer that have spread in may 2009 he suddenly have kidney failure after 11 day in the hospital and dialysis treatment his kidney start function again and since the kidney biopsy have not been successful and other test misplace it was deame that the kidney failure was probably the result of a virus howie bounce back was follow and deam to be recover kidney failure is one of the sign or sypmtom of lung cancer then in october 2012 howie suddenly go into heart failure another sign or symptom of possible lung cancer I am not a dr I can only explain it the way I understand it after 9 day in the hospital and bloody fluid remove from around the heart howie was once again send home with the verdict being that this was probably a virus back and forth apointment to doctor begin as this time he do not bounce back my gut feeling was that something was wrong in december we start do some test and go to see someone after masse were see on a ct scan I remember the medical student do a pre consultation at st joseph say we think that it s lymphoma which is the good kind to have as it can be treat if it was any other kind we would send you home and make you comfortable that stay with I and as I keep see my husband feel more and more poorly I get more worried in mid december more fluid was remove this time from his lung on december 25th 2012 howie go into distress and I have to call 911 it was the last time he would be home once again fluid was remove from his lung on the 26th he was finally transfer to st joseph on january 7th 2013 not having have a diagnosis of cancer not fully understand what was go on my child and I do not spend as much time as we could have with he on january 12th we hear the news that it was not lymphoma and that more test need to be do an mri show that it have spread to the brain and by the 15th we were finally tell that he have terminal cancer and only quality of life could be offer he never have a chance to fight this battle howie have fight and win a battle with non hodgkin lymphoma when he was 22 because of early detection and quick treatment because of that victory we were bless to meet fall in love marry and have children because of lose this battle our child and I have to say goodbye way too early so that is howie s story,neutral,1
god do do miracle everyday for we we just don t always acknowledge they now we can share what miracle s god have do in your own life mine 1 I m still alive not lock away somewhere for something stupid 2 the birth of my child 3 the major car accident I and I mom survive last year 4 the growth in both my lung clear completely up last year that all medical test and indication show lung cancer no cancer 5 everyday is a miracle from god thank you god you rock,positive,2
lung cancer month for november I wonder if hepatitis have a month or not do anyone know,neutral,1
my wife have chemo for lung cancer and have since lose a tooth is this common with chemo jp,neutral,1
my fiance is go for surgery tomorrow morning for his lung cancer we have to be there between 8 30 and 9,neutral,1
my husband have lung cancer and it is bad stage 3b possibly stage 4 not in his bone or brain and it is contain in just one lung but surgery is too risky not an option as the cancer is too close to the wind pipe and the main artery to the heart what he do have go for he is his age 54 and his health is good other than the cancer if we do not do any treatment now they give he 6 month to live radiation and chemo might buy he a year or two and the long he live the well his odd get for live long of course we have to cling to hope and prayer but you guy we were marry when he was 20 I was 16 it will be 35 year this september I know life is not fair how can I stay strong for he when my heart is break this week we meet with radialogist oncologist to devise the plan any advice would be appreciate,negative,0
still not sure why they keep call it lung disease mention copd and 80 of the general population have no clue unless you mention emphesema all the awareness is focus on lung cancer anyway this hit the news last nite so pass it on for what it is worth a new australian trial could offer sufferer of lung disease what the simple pin prick test have do for diabetic daily home monitoring of their life threaten condition like 1 5 million australian terry quinlan live with it each day he get it from smoke just walk up the street he get breathless it is the extra exertion of walk up an incline terrys wife annette say you can see I am a little breathless while walk and to recover my breath I stop a couple of times terry say he have good day and bad day then he have his bad day finally get so bad that the family call an ambulance and I got cart off to hospital terry say avoid emergency at home mean regular monitoring at a clinic but it could soon be a thing of the past thank to a new home monitoring trial patient breathe into a small spirometer each morning with their datum electronically send to the clinic each day it mean we could potentially pick up a flare up and thereby make a significant impact because you can start treatment early dr sabine zimmerman say my mother tell I when I was young that every cigarette was a nail in your coffin and I refuse to believe that and she was right terry say the woolcock institute of medical research is look for volunteer age between 40 and 85 live in the great sydney area to test a new way of monitor lung function at home if you are interested in this study please call 1300 303 185 or send an email to sabine zimmermann sydney edu au https au news yahoo com nsw a 27990764 home monitoring offer new hope for lung cancer sufferer,neutral,1
my 21 year old nephew take his own life with a rifle he graduate collage with a 4 0 average just get a great job and thing seem to be gong well he call I and stop over to say hi he seem so happy like his job and was make new friend he say two hour later he shoot himself I help raise he he spend almost every weekend in the school year and also every weekend in the summer and as many day as he could stay in the week his father and my sister were mean drunk my sister was always say how much she hate he thank god she wasn t his real mother she pass from cancer when my nephew was very young he always miss she that was july 5 2004 two week later my mother find she have lung cancer and begin treatment the first of august my father find out he was in stage four lung cancer he ask I to move in and care for they so I do and it was an honor it was very difficult though dad pass on december 16 2004 my mom pass five day after her birthday on january 26 2005 my aunt joan die in feb 2005 from a burst ear drum from the flight to my mother funneral then on april 2005 my uncle pass away from lung cancer I was also there for my great aunt death and hold her hand I care for my grandmother in the nursing home she didn t last long I have lose so many love one and I still can t cry for any of they it is as if I have erase it all from my mind I don t think of my parent being go it s like they will walk in my door anytime soon they were my good friend fishing buddy always go for the christmas light drive thanksgive night I am so scared of what will happen if I let go I don t think I can take the pain all the funeral were a blurr to I neither mom or dad look like themselves they put make up on my mother and she never wear make up all she want was a to wear a t shirt that say no I am not sleep I m dead she have a dry sense of humor I don t know how to grieve I am afraid of it,negative,0
skin cancer is definitely not something I ever want to deal with I know nothing about skin cancer but I have have relative die from lukemia lung cancer however I do want to enjoy the sunny and peaceful sky this year because it is been year since I bother get out sun screen lotion or block well be on your list please get out take a swim have a picnic go for a walk make sure you enjoy sunny and peaceful sky the group and reality,neutral,1
I do not know where else to say this because I feel I have no one to talk to I have been struggle emotionally lately and it is take its toll my only live grandmother the only one I have ever know just have surgery remove her kidney due to a cancerous tumor on it while in the surgery they see that her ovary look suspicious so they take it it turn out it was cancerous as well and now they are suspicious of more she is sooooo strong and fight and win the battle with lung cancer ten year ago she have decide if it is in her lymphnode she will not do chemo and that is a very couragous choice and I will support whatever decision she decide on I am just really sad her late husband the only grandpa I have know pass away 5 year ago to cancer as well it is so much to deal with and I always feel I have to be the strong one for everyone so I hold it all in I can not do this this time I am not ready to lose she I do not get enough time with she how can one family be rittle with so much pain before a break come after my grandfather death my uncle have a cancerous brain tumor remove and recover from lung cancer my cousin both have malignant melanoma and one who have congenital heart defect from birth almost die have her one and only son we are very strong but it is too much in a short period of time sorry have to get this out and want to vent hope you all do not mind which I know you would not thank you all and sorry I have not been around it have been crazy,negative,0
I post this on the alcoholism board but he was a member of your board and eventually the lung cancer board his family have ask that I share the news with his friend I am cry very hard as I try to type this rene reneglenn renegs just pass away a few minute ago I have been prime minister back and forth with his wife daughter sister brother and brother in law rene fall unconcious and though an ambulence was call he could not be revive his brother in law say he have been sicker lung cancer than he tell I because rene know I have have a difficult life and do not want I to worry we get sober about a year ago around the same time and then we relapse about the same time and eventually get sober again about the same time though he was dutch and live in holland and I am a texan we become the good of friend we laugh a lot cry a lot but we mostly celebrate the gift of sobriety we share we know we were miracle and were quite simply astonish by it my friend rene was a very nice man an excellent drummer and a great friend he was just 49 year old rene I will miss you always,negative,0
my husband pass away july 27 2013 after diagnosis in january that he have lung cancer my doctor suggest a x ray on monday call and say he want to see I and say I should have a ct scan right away I check the symptom and I have been experience these and have express to my previous doctor who pooh pooh it I leave he and the hospital and am with a different one what are the odd of I get lung cancer I have never smoke my husband smoke 1 1 2 pack a day the amount of alcohol I consume during my 74 year would amount to 1 4 of a bottle my husband was an alcoholic and quit in 1988 same for the cigarette whatever the result I ask for your prayer not for die but for my child grandchild and great grandchild how can I tell they especially my daughter who have been so protective of I since their dad leave my son live on opposite end of the country so it have been my daughter and I they call I at least 3 time a day take I to church and so many other thing please agree with I in prayer,negative,0
my brother die on aug 15 3 1 2 month after his diagnosis of lung cancer which have metasticize to his brain and abdomen radiation shrink the tumor in his brain but chemo do not address the tumor in his abdomen and that grow very fast he was not ready to go he have 5 child range in age from 3 to 12 he was a physician his symptom were a cough and being tired and a slight loss of weight anyone of we can get this disease why do non smoker get lung cancer why do god take the good people why do not my evil uncle in nj get this disease I can not pray I keep ask why I only have one brother my parent are devastate I am only a year and a half old than he his birthday is in september I am still in disbelief that he is go how do you go on I am so angry that our prayer were not answer I have so much faith that nothing was impossible for god I guess I was wrong,negative,0
everyone in this group was so helpful and supportive to I I think I would update you mike have lung cancer and it is bad not in his bone or brain and it is contain in just one lung but surgery is too risky not an option as the cancer is too close to the wind pipe and the main artery to the heart what he do have go for he is his age 54 and his health is good other than the cancer if we do not do any treatment now they give he 6 month to live radiation and chemo might buy he a year or two and the long he live the well his odd get for live long of course we have to cling to hope and prayer but you guy we were marry when he was 20 I was 16 it will be 35 year this september I know life is not fair how can I stay strong for he when my heart is break,negative,0
I post on here several week ago about my mom having been diagnose with stage iv non small cell lung cancer the chemo and radiation have been effective in manage her symptom but I was recently inform that there really is no hope for her short of a miracle she is in palliative care and even through all of this have remain as positive as she can I am worried about she I live in st louis mo and she live in lexington ky I just recently go to visit she for mother day and was shocked to see how sick she look I am remain somewhat hopeful though even though I am try to prepare myself for the bad lung cancer is a terrible disease I am learn that more and more I just hope I can stay strong as I suffer from depression and after having quit smoking for 8 week after her diagnosis I start smoke again due to the stress please keep I in your thought and prayer I need all the support I can get in order to quit again,negative,0
I m new do not have the strength to tell my story tonight just want to introduce myself I lose my dad to lung cancer we were very very close,negative,0
hi I am 13 year old and I have lung cancer I have not start treatment yet and I am just ask for some support and for your kind people prayer thank have and awesome day,neutral,1
my wife was on one of the more aggressive chemo drug to cure her lung cancer my quest is have any of you have problem with your tooth after chemo jp,negative,0
in the last 4 month my mother father and brother have all been diagnose with cancer my brother was the first to be diagnose with testicular cancer then my mother was diagnose with lung cancer and we just find out yesterday that my dad have prostate cancer I feel like I am at my wit end,negative,0
my mom was just diagnose with lung cancer this have come totally out of the blue she have never been sick with anything other than a sinus infection I take she to the er 2 week ago and they say she have pnemonia and they scan show spot in her other lung today they tell we there are 3 spot on her left lung and on one of her lymph node apparently is is a slow grow cancer accord to her oncologist and have not spread anywhere else he say if her other lung can take it they can remove the bad lung and problem solve if not chemo and radiation which I do not think her body could hold up to nor is it something that she want to go through I am so upset I am sick to my stomach I find this site online and need to vent I was diagnose with cervical cancer 4 year ago and find a site call hystersister which help I get through my ordeal immensely can a person who is otherwise healthy as can be at age 67 live with just one lung will she be able to breathe ok any reply are welcome and appreciate head to bed as I have no more strength or energy leave lindsey,negative,0
I have lung cancer just go through surgery to get most of the cell out I am recover from my surgery at the time the doctor remove two loob of my right lung and leave the upper loob in tack that way the upper loob on the right side of my body would fill into the empty area and the other organ will no shift and cause more troublem I am just look of someone to help I work through my feel and emotion but you have no topic for cancer hope to have a friend soon,positive,2
my husband go for his 3 month checkup yesterday a chest and abdominal ct scan were do he have pneumonia again but even more worrisome is the fact that they find a second nodule on his adrenal gland and he need to have further testing they find a nodule before he go in for his lung surgery in june but after test via pet scan it was determined that it was not malignant my understanding is that it is rare for these tumor to be malignant however they are know to be a secondary cancer from lung cancer have anyone have any experience with adrenal gland problem any info would be greatly appreciate,neutral,1
some info and a link at the bottom if link do not work just copy and paste in browser windowwithin 12 hour after you have your last cigarette your body will begin to heal itself the level of carbon monoxide and nicotine in your system will decline rapidly and your heart and lung will begin to repair the damage cause by cigarette smoke as your body begin to repair itself instead of feel well right away you may feel bad for a while it is important to understand that healing is a processp it begin immediately but it continue over time these withdrawal pang are really symptom of the recovery process immediately after quit many ex smoker experience symptom of recovery such as temporary weight gain cause by fluid retention irregularity and dry sore gum or tongue you may feel edgy hungry more tired and more short temper than usual and have trouble sleep and notice that you are cough a lot these symptom are the result of your body clear itself of nicotine a powerful addictive chemical most nicotine is go from the body in 2 3 day ever wonder what happen to yourbody the moment you stop smoke within 20 minute of smoking that last cigarette the body begin a series of change that continue for year 20 minute blood pressure drop to normal pulse rate drop to normal body temperature of hand and foot increase to normal 8 hour carbon monoxide level in blood drop to normal oxygen level in blood increase to normal 24 hour chance of heart attack decrease 48 hour nerve ending start regrow ability to smell and taste is enhance 2 week to 3 month circulation improve walking become easy lung function increase up to 30 1 to 9 month cough sinus congestion fatigue and shortness of breath decrease cilia regrow in lung increase ability to handle mucus clean the lung and reduce infection bodys overall energy increase 1 year excess risk of coronary heart disease is half that of a smoker 5 year lung cancer death rate for average smoker one pack a day decrease by almost half stroke risk is reduce to that of a nonsmoker 5 15 year after quit risk of cancer of the mouth throat and esophagus is half that of a smoker 10 year lung cancer death rate similar to that of nonsmoker precancerous cell are replace risk of cancer of the mouth throat esophagus bladder kidney and pancreas decrease 15 year risk of coronary heart disease is that of a nonsmoker http whyquit com,neutral,1
as some of you already know during my lvrs they find cancer they take the entire raisin size tumor out during the surgery I find out today it was stage one lung cancer I never would have know it was there I am thankful and feel quite lucky,positive,2
do anyone battle with thought when a friend get sick I have a friend who have a very aggressive cancer the minute I hear cancer I get anxious and start wonder if any ache or pain is it I have a cough and worry that it is lung cancer do you feel the same sometimes wish I ould just stop that thought process any advice,negative,0
I am a chinese I have some story to share with people here who suffer cancer pain hopefully this info could help you all and give hope my aunt was diagnose blood cancer 10 year ago as many cancer patient she begin to have chemotherapy to prolong her life but her health was get bad and bad 3 year ago in the cold winter when we visit she in the hospital she was weak and could not get of bed doctor tell we she have 3 moth life in that winter another patient introduce she some natural stuff which help control cancer cell and protect normal cell 3 moth after my aunt got dramatically improve she could get out of bed and feel more energy now she is do good feeling good my friend uncle was diagnose lung cancer then transfer to bone cancer in 2009 chemotherapy bring he pain at the back so he have trouble in walk down the stair during that time her family buy he some antioxidant that make of herb chinese medicine and so on then 1 month after pain in his back was go his cea reduce from 2800 in aug 09 to 156 in june 2010 now both of they stop chemotherapy and back to normal life so actually besides chemotherapy radiation we still have some option unfortunately 1 month ago my husband brother get lung cancer then transfer to brain we are look for this safe and no side effect option,positive,2
my wife was diagnose and treat one year ago on the 23rd for lung cancer type 2a she have the upper left lobe of her lung remove and was hit the the big hammer as chemo go she is do great and her last pet scan come out clean she is due to have her port remove soon one pleasant side effect of the chemo was that when her hair come back it was curly instead of straight jp,positive,2
I have lung cancer in remission at this time but I do cemo and radation to get here the radation burn my lung up and make brreathing horriable and very hard to do I have to be on oxygen 24 7 and take tank every where I go do anyone else have this problem and how long di d it take to get well if you do sheron,neutral,1
just have to share this from yesterday and get your perspective there was a post on facebook yesterday april fools day from a gentleman whom I know he post just leave hospital the news is not good I express concern and ask if he could share more information he write it is my lung but this time there is nothing they can do I launch into a long heartfelt message about hope help sorrow and offer to help in any way end with a heartfelt prayer for he long story short this was an april fools joke but he let I believe it for over an hour it was painful for I because my joe die of lung cancer the post he make bring back painful memory of our first knowledge of the lung cancer all the fear uncertaintie pain surgery and finally death the man eventually say it was april fool he say sorry his wife also say sorry do not feel very sorry to I today after think more about it I wonder how a grown man could not know the hurt he would bring about by play this joke on people who might be hurt about lung disease and I am angry I do not know if it would help if I confront he with how this impact I or should I just remain silent,negative,0
my mom is a lung cancer survivor but every cough every pain send I right back to that place of fear how do I manage this,negative,0
please join my group I need support in it as my hubby is go through lung cancer but the group is for other topic to its call topic and discussion,neutral,1
my child just have surgery ben have his left before midday removedbelow the elbow and mary her right leg remove below the knee they are 6yrs oldmy husband dan die of lung cancer last christmas,negative,0
I just find out that my ex mother in law have lung cancer they are go to start she on chemo and I want to put together a care package for she what do you guy recommend,neutral,1
my wife have lung cancer one year ago on then 23rd and is do fine she have x ray and c scan and will get her pet scan in a few day pray for her jp,positive,2
I meet my husband in august of 2003 and we were marry in may of 2004 he was a wonderful man that love I more than anyone before and I he I lose my husband on 3 25 19 after a year battle with lung cancer small cell I always know that the end of the battle would be death but he say he do not want to die so he fight for a year I am still heartbroken this time of the year is the bad of course I am have a hard time forgive myself for he die I know it was not my fault but I do not know how to move past this in my own head we go through my battle together breast cancer and a rare bone cancer call chondrosarcoma skull base I am still battle this one may be the chondrosarcoma mess my brain up so that I can not get past it or it may be that I am have a hard time because I have survive 2 different type of cancer and he do not survive one the one he have no one survive all I know is that I do not want to feel like this anymore I am not suicidal can I just make up my mind to get past it have anyone just make up their mind and move past the pain it is 12 1 2021 and I am still in pain not all the time but like I say this time of year is difficult my dad past away in 2007 and I do not think that hurt this bad dad death was sudden maybe that is why his death was not as painful maybe I take care of my husband for the year before he die is why I feel so bad I will never know that if he die suddenly without know that he have sc lung cancer if it would be easy on I now all I know is that I need to get out of my own head,negative,0
hi everyone my dad doctor call and say he have some haziness in his lung on the ct scan and is refer he finally to a respirologist have anyone have this appearance of haziness and any chance it could be something other than lung cancer just look for hope he do have emphysema which continually go untreated thank,neutral,1
my husband pulmonary dr call he the other day to tell he that the recent ct scan he take show scare of the lung dh have dvt pe 2 year ago and also was diagnose early stage of copd is there reason to worry of course our mind wander to the dreaded lung cancer he was advise to get a biopsy and is see the thorax surgeon today many thank marianne,neutral,1
my mom pass away on dec 14 09 at age 45 she was diagnoise with 4th stage lung cancer she never explain how she feel or anything that was go on with she we only have 2 month after she was diagnoise till she pass if anyone have lung caner please fill I in thank you so much,neutral,1
hi all think this was interesting if you have not already see it feel a little sick take my champix but go strong hope this feeling pass I am tired after you smoke your last cigarette 20 minute your blood pressure and pulse drop to normal 8 hour the carbon monoxide and oxygen level revert to normal 24 hour the chance of a heart attack decrease 48 hour your ability to smell and taste begin to return 2 to 12 week your lung function increase up to 30 percent 3 to 9 month cough congestion fatigue decrease as cilia regrow in your lung 1 year the excess risk of coronary heart disease is half that of a smoker 5 year lung mouth throat and esophagus cancer rate reduce by half 10 year lung cancer death rate is similar to that of non smoker the pre cancerous cell are replace 15 year the risk of coronary heart disease is that of a non smoker,neutral,1
hi my name is paula I am a college student I am write a paper for a health class about cancer I choose to write about cancer because I have lose many family member to the disease my grandmother die with breast cancer when she was 39 I never know she my father die with melanoma and my brother die with lung cancer for my paper I am require to interview cancer survivor or patient would any of you be willing to talk about live with cancer I would not use any of your name in my paper,neutral,1
my teenager have bp1 2 1 2 year ago his grandmother my former mother in law die follow a 3 year battle with cancer that spread to her lung his grandfather was admit to the hospital this morning they discover a very aggressive small cell lung cancer that have already metastasize to his pancreas and liver without chemo he have day with chemo he will get 4 month if he is lucky my son been very mature and strong but in 2 hour I will be home and I will have to explain what have happen and that there is a very good chance his grandfather will never leave the hospital I hate that I have to go home this evening and break my son heart,negative,0
strange that I come to this board because I have thyroid cancer but know a friend young late 40 is face a much more troblesome cancer she go to the doctor complain of backache and come out with a dianose of lung cancer that have spread to her lymph node how can I learn enough about this to have encouraging word and good advise beyond the advise of doctor she is so small and thin by nature I do not think she could go through the chemo please advise,negative,0
smoking also call cigar smoking cigarette smoking pipe smoking tobacco smokingthere is no way around it smoking is bad for your health smoking harm nearly every organ of the body cigarette smoking cause 87 percent of lung cancer death it is also responsible for many other cancer and health problem these include lung disease heart and blood vessel disease stroke and cataract woman who smoke have a great chance of certain pregnancy problem or have a baby die from sudden infant death syndrome sid your smoke is also bad for other people they breathe in your smoke secondhand and can get many of the same problem as smoker do quit smoking can reduce your risk of these problem the early you quit the great the health benefit national cancer institute,neutral,1
I am 25 and find out 2 week ago my dad have cancer begin raditation tuesday for the cancer in the brain and a consult today to get a port put in for chemo to help treat the lung cancer and today we find out the cancer is all over in bone liver and so on he is give 1 to 2 year expect to live with chemo treatment even though god only know it can be short or long its just hard cause all this happen all of a sudden its so many worry go through everyone head,negative,0
last week I have a mole remove yesterday I get a call from my doctor cancer cell find start to look information about it today get so scared mayby I worry to much I do not know my father die of cancer ok a different kind of cancer lung cancer but was with he when he died automatically start to think about that please get I on my foot again,negative,0
my daugter was murder on aug 18 this year I think of she every day I cry I want she back I scream I love on animal but I just can not get my life together I have lung cancer and I take cemo and radation the cancer is I remission but the inside of my lung is burn up from radation I can not breathe without oxyzen 24 7 and I can not walk from one room to another I ask god why she and not I I do not have a life leave she have lot of year and thing to do I do not want to go on I need help but nothing work I am in s deep depression sheron,negative,0
my mom who is 90 have surgery to remove lung cancer about 15 year ago and now the cancer have spread and have go from 7 centimeter to 10 centimeter in 3 month in her right lung the pulmonary doctor have say that there is no radical treatment that can be do except to make she comfortable with med he tell my brother in private that she probably would not make it today I learn the end of the year and we should make she as comfortable as possible anybody have go through this similar with there love one thank bg,negative,0
I recently have confirm via x ray and ct scan that I do not have a malignant lung cancer mesothelioma despite convince myself that everything happen with I was cause by this I even have breathing problem though now I am think were more anxiety relate give my period of no problem when genuinely distract or during eat so anyway that should be a good thing right that my previous concern was clear up but unfortunately my hypochondirac brain have already decide that I now have something completely different go on al motor neurone disease I have been test for this too about 12 year ago and my neurologist say I have benign fasciculation syndrome and even go so far as to actually state that he do not think I would ever develop al that put my concern to bed about that issue for all that time but just in the last few day I have notice my right thumb have become less coordinated and the fasciculation in my right before midday and shoulder have increase now I have convince myself that I have al start to develop and I am freak out all over again I know that the only real symptom of al is profound weakness not a perceive lack of coordination but I can not get the thought out of my head completely I am hope the lack of coordination is just a result of too much smart phone game playing of late with pointer finger with rest of hand in cramp up position also do some forearm weight which may not have help thing or my fasciculation which are usually trigger by exercise and stress which mean I am hit it with both I also was attribute throat tightness to al but have since realise that by drink more water or slow down my breathing help to stop that sensation need someone to help I think about this from a calm point of view I have plan to see a psychologist or a hypnotherapist but somehow that all get waylaid during my paranoia about lung cancer after realise that I have been test for lung cancer once every 3 year for the last 9 year I am begin to think I am like the boy who cry wolf I am get so down on myself that I think if I ever do have symptom of something real I would suppress they just out of not want to embarrass myself by go to the dr again,negative,0
hi you guysalimta was just approve as first line treatment of non squamous cell lung cancer and look like its well tolerate than gemzar cisplatin here are the detail 1 on sept 29 2008 the us food and drug administration fda approve the chemotherapeutic agent alimta pemetrexed in combination with cisplatin for first line treatment of locally advanced and metastatic nonsmall cell lung cancer nsclc in patient without squamous cell histology so this is usually adenocarcinoma of the lung 2 alimta have been previously approve for use as second line therapy for locally advanced or metastatic nsclc3 the approval of alimta as first line therapy for advanced nsclc of nonsquamous cell histology was grant on the basis of result from a phase 3 study of 1725 patient that evaluate treatment with alimta plus cisplatin ac before midday versus gemzar gemcitabine plus cisplatin gc before midday 4 here are the result the median survival of patient in both arm of the study was 10 3 month the median progression free survival was 4 8 and 5 1 month for the ac and gc arm respectively 5 important patient treat with alimta demonstrate less hematologic toxicity undergo few blood transfusion and have decrease use of growth factor compare with patient treat with the gemzar regimen 6 the most common adverse reaction for alimta in combination with cisplatin include vomit neutropenia leukopenia anemia thrombocytopenia constipation and stomatitis pharyngitis have any of you or your family member been treat with alimta dr o,neutral,1
some of you may remeber that my mom find out she have lung cancer the week I have surgery she is 83 and do good with chemo but she shave her head and buy a wig today wow that is real happen to be the day I go to the mtns w my son to close our cabin and put christmas flower on my dad grave he die of stomach and brain cancer in 96,neutral,1
the fact that smoking is bad for you is no secret well all see the picture of charcoal black lung display in school and in hospital and doctor wait room despite these scare tactic people continue to smoke and new smoker adopt the habit every single day amazingly smoking can still be view as an adult thing to do and child continue to be influence by this their parent or guardian smoke therefore they should smoke too if they want to be really grow up or at least that is their perception all smoker wish they have never smoke that first lousy cigarette and shake their head in disbelief when they see their own kid or teenager start to smoke tobacco can be ingest in more than one way some people chew it other inhale it as snuff but the majority smoke it in the form of cigar and cigarette which is the habit we ve all come to know and hate as smoker regardless of how you take tobacco it is dangerous smoking is the most popular method for people to use tobacco and as such have receive massive coverage in both the medium and from the medical profession why smoking make you happywhen a smoker inhale a single shot of nicotine from a cigarette the lung allow the nicotine to pass into the blood stream almost instantly the smoker then feel the hit from the nicotine in their bloodstream and this is the sensation that they crave later on do not just assume that you re inhale pure tobacco smoke either that cigarette you re smoke contain up to 4 000 separate chemical many of which are extremely toxic that smoke you inhale from a cigarette contain 43 carcinogenic substance these are substance which have been clinically prove to cause various type of cancer cigarette smoke also contain 400 other toxin that can be find in rat poison nail polish remover and various type of wood varnish would you willingly eat any of these product of course not because you know that they are incredibly bad for you as these carcinogen and toxin gather in the body they begin to cause serious problem for the heart and lung of all the disease associate with smoking cancer is the most common cancer is a relatively new disease that have really only become prevalent since the beginning of the industrial revolution in effect cancer is a manmade disease for which there is as of yet no cure some fact 90 of lung cancer case are cause by smoke 30 of all cancer fatality are cause by smoke lung cancer is the most common cancer associate with cigarette smoking but you can also get cancer of the mouth bladder kidney stomach esophagus larynx and pancrea some of these cancer can be treat and other are 100 fatal cancer is not the only disease that smoking cause either directly or indirectly 75 of all fatal case of emphysema and bronchitis are link to smoke both of these disease cause extreme breathing difficulty and emphysema in particular is an extremely nasty disease as your ability to breathe on your own slowly vanishe smoker have dramatically short life than non smoker on average a smoker will die 15 20 year before a non smoker this is truly shocking when you think about it that is 7 300 day deduct from your lifespan look at what you can achieve in a single day and then imagine what you might be able to achieve in over 7 000 day this is proof that continue exposure to the toxic substance find in cigarette and cigar simply is not good for you no matter what tobacco company might say smoking will kill you young,neutral,1
I have have depression for as long as I can remember I have been on med psychiatry councele when I was young I was place in a different group home every year but nothing seem to have get well thing are actually much much bad then ever I am 27 and am currently on ssi for my depression and anxiety I am close to being a shut in I can not even make it to my appointment for councele or support group anymore because I can not take the bus I can barely leave my house by myself my family have cut be out of their life basically and so I am on my own to find ride but I have no one the only person in my life is my mother who was recently diagnose with lung cancer she have a pnumonectomy of her right lung and just start chemo 3 day ago so I help she as much as I can which now seem to be my life but with her illness she can not help I so I have no one how do I try to get well or have hope if I can not even make it to mymeeting ever year more horrible thing happen how can I not feel hopeless when nothing ever get well but only bad and I mean that realisticly my anxiety is so bad I can barely get out my grandmother pass away in feb my mother was diagnose with lung cancer the rest of my family belittle I and make awful remark about my depression if it were not for my mother I am not sure aia would be here today I can not ever see do that to her hopeful there is not a day when that change,negative,0
american lung association call on senate to reject appropriation bill the american lung association is call on the us senate to reject h r 1the 2011 fiscal year appropriation bill recently pass by the us house of representative accord to a statement by charles d connor president and ceo of the association the bill ignore public health and will have dire consequence for all americans especially people with lung disease include lung cancer asthma and emphysema the american lung association is call on the senate to recognize that as pass by the house h r 1 is dangerous to public health and the senate should start from scratch accord to the association h r 1 will hurt the environmental protection agency epa ability to protect public health from life threaten air pollution through appropriation rider and by slash the agencys budget by approximately one third in addition by reduce the center for disease control and prevention cdc budget by 25 the bill will limit the cdcs ability to protect child from tobacco and severely hamper its ability to address disease like asthma the bill will also cut 1 billion from the national institutes of health nih the cut will have an negative impact on nihs work to find cure and treatment for disease such as lung cancer emphysema and asthma accord to connor statement the house also adopt several amendment that would block implementation of the clean air act these amendment would prevent the epa from update and enforce standard for the cleanup of toxic mercury carbon dioxide and other air pollutant accord to the association these provision and other adopt by the house in h r 1 would result in million of americansinclude child senior and people with chronic disease such as asthmabeing force to breathe unhealthy air the american lung association point out that h r 1 is not consistent with the public view cite a recently release bipartisan poll that find 69 of likely voter think the epa should update clean air act standard with strict limit on air pollution 68 feel that congress should not stop the epa from update the clean air act standard and 69 believe that epa scientist rather than congress should set pollution standard the association also note that h r 1 block implementation of the affordable care act possibly eliminate help to pregnant woman enrol in medicaid who are try to quit smoking limit senior access to prescription drug under the medicare program and deny child with asthma coverage because of their pre exist condition source american lung association,neutral,1
my relative was diagnose of lung cancer early this year do operation to cut part of lung lobedid chemotherapy now is do radiation not sure about the stage though I can do nothing but help search for the medicine he need which is gefitinib tabletiressazd1839 because he live outside of usa so his family have no access of this medicine thank a million,neutral,1
hi all this time is not for I I need prayer for someone I love like a brother who was diagnose with lung cancer he is as young as I and have two kid who need he please help I with this request thank you very much karen,negative,0
I am a survivor of non hodgkin lymphoma lung cancer go on 15 year need to be positive and tell yourself you can beat this and fight it have a strong will and desire to live for not only yourself but the one who mean the most to you,positive,2
I have been read up on cesium therapy and dmso there are a lot more theory out there too do any one have any experience with any of this my dad have stage iv lung cancer they are say he will pass real quick so I am look for other option too,neutral,1
have any of you experiance a constricted throat I have read that it could be a bodily result of stress I am under alot of stress becasue of college finance unemployed bf deploy overseas and my dad jut got diagnose wit lung cancer my throat soesnt hurt but it is discomforte,negative,0
hello my name is lynne I am 41 year old my husband pass away april 29 2011 from lung cancer he was 49 year old although this was not a sudden event it have not been very easy I just want to gave my intro,neutral,1
my husband have both brain and lung cancer and the dr give he 12 month too live 3 month ago he weigh only 84lbs i m his sole care giver as I have no one else to help I care for he I could really use some support,negative,0
I lose my dad on march 16th to stage 4 lung cancer he die at home my parent have been marry for 55 year forgive I this is so hard to talk about I am numb empty and so on lose,negative,0
he was my answer in the new old name game start by mayberry ozzie send I a message say that he make a commercial about not smoke before he die of lung cancer very short and straight to the point http www youtube com watch v jnjunlwujji,neutral,1
I have the most amazing day yesterday I go to a fund raiser yesterday for lucy lovebus child with or who lose the fight with cancer meet the most amazing people young and old listen to great music and hear heartbreaking story see hundred of butterfly release simply amazing yes I cry the well part of the day and it feel great one of the thing I have do sence ws death was get involve with a fund call sys fund start by a very close friend of mine who lose her son age 28 to lung cancer I must say no matter how bad of a day I am have it feel great to volunteer my time to a worthy cause somehow when I am do this work it ease my own pain now some people have say to I why cancer wendall have heart and lung issue well why not cancer do it realy matter I look at it as in some small way I am try to help someone in need or bring a smile to there face make there life a little easy I mite as well throw the plug in here sys fund we fund thing like laotop camera art supply whatever make life easy while undergo treatment or medical care for cancer patient age 18 through 39 sorry have to put that in,positive,2
hello everyone my aunt was just diagnose with small cell lung cancer which I know is the bad kind do anyone have any success story they could share about small cell,neutral,1
I was just diagnose with stage 3b lung cancer a month ago I am have a hard time deal with this and I was wonder if there is anyone out there with my similiar stage and age that can offer support thank you,negative,0
do anyone else have trouble with symbicort try it for two day was have so much trouble breathe I was willing to sign up for clinical trial for lung cancer patient,negative,0
complete 23 chemo and 37 radiation treatment for lung cancer but now find in my pet scan that they find liver and spleen metastasis what do I do now sherry44,neutral,1
I find an interesting article on the use of laser light beam that are use in cancer treatment I notice from a news story that here in houston a robot with laser light is use to go into hospital room to zap out virus apparently the robot laser is say to be effective in destroy the ebola virus in hospital room on surface I begin to look into light treatment for direct message skin issue there are some article where photodynamic therapy pdt have been try on gottron papule with some success I notice a different exciting article about a man who receive the photodynamic therapy on his lung cancer with success in the uk below is the article and you can pull it up on google if it do not come up I and my operation the beam of light that can kill lung www dailymail co uk me operation the beam light kill lung this photodynamic therapy is where a dye is inject into the lung then a special beam of light is place down the throat and turn on the dye light up and cook the cancer this treatment do not look expensive I would like to see direct message prime minister researcher look into this pdt this treatment is use in uk and also here in the usa,neutral,1
get med today in mail peg rib incivek and I feel sick look at they this is my third time plus 12 week of cemo for lung cancer waaaaaaaaaaaa,neutral,1
she have terminal lung cancer and only have a few day leave please give she your prayer so she can have a peaceful passing,negative,0
someone I know have stage 2 small cell lung cancer he is really struggle what is the good thing I can be do for he are there any tip or advice that you can give I,negative,0
do any if you ever cough up blood in your mucus my dad do a little a pet scan rule out lung cancer sputum test result not in yet what do you think,negative,0
do anyone know that oxi can cause severe and irreversible hearing loss I read that today while do some research on med that might be use for a friend just dxd with lung cancer no one tell I,neutral,1
I want to let everyone know my mother pass away from complication due to lung cancer early this evening I can say it was a peaceful passing for her thankyou to all who support I,neutral,1
we all know the direct correlation between smoking and lung cancer but there are many more type of cancer that can be directly link to smoking this article appear in this morning msn health page and is well worth take the time to read http health msn com health topic quit smoking articlepage aspx cp documentid 100269246 gt1 31020,neutral,1
I am new to this group been a memeber of ds for a long time my grandfather just pass away on wednesday of brain and lung cancer he was just diagnose with cancer 6 week ago it is just amazing how fast it all happen I am have an awfully hard time cope with this right now he is the first person that I have ever lose,negative,0
sorry richard some people can be so mean back in the day of the sun worship we do not know it could cause skin cancer just like way back when nobody know smoking would cause emphezema lung cancer amoung other thing now there r thousand of people who r try to quit or die from smoke whatelse do we not know will kill we off in the future,neutral,1
hi all I am glad I find this site my mom was diagnose with stage 4 kidney cancer on wednesday april 1 the cancer have spread from the kidney to the bone she is have her biopsy tomorrow but the doctor seem certain that it is stage 4 a little background I lose my sister to lung cancer on april 3 2007 she was only 38 this may seem cruel but is there somewhere I can go to see stat on the life expectancy of someone with stage 4 kidney cancer that have spread to the bone thank you,negative,0
also what is the life expectancy with only one lung all cancer is clear let say but only have one lung,negative,0
hello my 88 year old mother have stage 4 esophageal cancer rather than lung cancer she have been get chemo for the last 2 year but the last three chemo cause heart problem and a colon infection base on my mother age she is 88 year old and the problem she have lately experience with chemo her oncologist say he no long want to give she any chemo without chemo the oncologist say she only have about 6 month leave so he want to call hospice out of desperation I ask if she could try tarceva which is a drug that is read about on the internet the oncologist say that tarceva is usually use for lung cancer but that there is some datum that it work for less than 10 percent of patient who have esophageal cancer so he agree to prescribe tarceva to see if it might work for my mother have anyone try tarceva I would greatly appreciate any information you could provide in particular a do you take tarceva by itself or in conjunction with chemo since my mother can not have chemo the oncologist tell she to take tarceva alone b what dosage have you take do you take it every day the oncologist tell my mother to take 150 mg each day and every day c what side effect do tarceva cause were the side effect less terrible than the side effect of chemo d have tarceva work for you do it stop the spread of cancer or do it actually help shrink the cancer cell I would deeply appreciate any help you can provide thank you tom,negative,0
I am 19 year old at present and my father die of lung cancer due to smoking when I was 16 almost 17 the manner in which he die was unspeakable it was far more terrible than the peaceful cancer death portray on tv a few month ago my cat cough and vomiting become bad and she was take to the vet without my knowledge my parent hide it from I for several week but then tell I recently she have lung cancer the possibility of it being due to anything other than second hand smoking is very small my cat have been show sign of sickness for year back when my dad was still alive even upon the discovery that my cat have cancer I begin to think of how I have been have problem with vomiting and my chest pain have increase I have fibromyalgia so I assume the pain were due to that illness however I begin to realize I may have cancer as well I have no fear of death that is not my worry once I get insurance I will get test to see if I have or have not cancer my question to you all is how many of you acquire it from second hand smoking take my cat as evidence it is possible,neutral,1
I have a good friend in a pd support group eric who have quite a few question about emphysema mine in particular it is an entirely new perspective on I and how I am try to fight two incurable illness at the same time each illness feed off of the other fair warning it is kinda long towards the end you will realize a pattern emerge this is a true story of I and six of my sibling and our parent jimif anyone have any question about how lung cancer emphysema or other serious lung deformity occur pull up a chair and get comfortable you will see a pattern that become quite obvious towards the end below is my message to eric if you have a love one a good friend and they smoke print this out for they maybe just maybe it will be enough to help they quit smoking though not directly relate to my pd this other illness I have have raise a lot of question about it the stress alone is affect my pd so much that I fall at least three time a day what s a real kicker is when my wife have to untangle my leg and the walker leg when I fall and it fold up on my leg boy if that am not a kettle of pickle to be in anyway eric damdifino send I several prime minister nothing but question after question below is my message to eric that he is still probably read it touch I so much I just have to share it with you all hi again eric s far as my emphysema is concern I and one of my sister have a mutate gene that predispose we to get the big e since I am the old of six my e is a lot bad than hers and she was not what you would call a big smoker a few year and she quit after I was dxd four year ago it come up in a conversation we were have how do we end up with emphysema by then I already have my dna check thank to 23 and I and the report come back tell I that genetically emphysema have I in its sight so I tell my sister that she probably have the same defective gene that I do in other word live in an industrialized world is part of the cause the other at least for she was the cigarette smoking in my case the long term smoking addiction plus my choice of trade my entire working career 40 year was spend as a welder in various chemical plant here on the east coast there was another issue that all of my pulmonologist have agree on namely both parent smoke so in all actuality all seven child were expose to the many danger of cigarette while still in the womb I say seven child because I was a twin and my twin was still bear in any event because of the second hand smoke we were all breathe in all of the time turn we all into smoker I will close with this eric two of we survive kid have emphysema with mine being severe end stage my sister remain at stage 1 my next old brother have one of his lung remove 6 month ago due to cancer my third old brother live in melbourne fla disable by smoke agent orange from the vietnam war plus he was a welder in chemical plant just like his big brother I our young brother die 11 year ago from a lung illness not cancerous our mother at 82 yrs old pass away due to lung cancer 10 year ago two of her aunt also pass due to lung cancer my father who quit smoke nearly 50 year ago just celebrate his 92nd birthday this past memorial day that leave our young sister she is alive and well having move to puerto rico over 45 year ago she never smoke and live in clean south atlantic ocean air eric I want to thank you for bring this topic up it have prove to be cathartic for I as well as reveal do you recognize the same pattern in what I have just write thank again my dear friend jimby the way I have have numerous confirmation 2nd 3rd and 4th opinion of my lung condition as a matter of fact I have a ct scan of a rather large node in my one function lung then back to the or afterwards to have it remove the node not my lung it is the only lung I have remain that work well enough to keep I alive,neutral,1
have any of you have a pet scan since your diagnosis to check and see if you have cancer which could have cause the clot one of my good friend doctor insist that she have a pet after her clot were find and sure enough she have lung cancer as well as pe they think the cancer cause the clot my doctor is in the process of get insurance approval for a pet for I I feel pretty calm about it I really do not think I have cancer but I do not have any of the classic risk for pe pretty puzzle happy thanksgiving to everyone,positive,2
I have before christ and I am pretty young I think to have it I am 22 I was wonder if that fact that I smoke would increase my risk I know its bad for lung cancer throat mouth and so on but would it affect my skin,negative,0
ok so I m new to the group and I was wonder if anyone have get really bad chest pain when you forget to breathe I think I might have a tumor in my heart or heart disease or lung cancer do anyone know what I m talk about,neutral,1
I start smoke again after a two day quit I am afaid that I will get lung cancer if I do not quit or copd I am try again today after many try so today is day one for I at 600 prime minister,negative,0
my father in law call last night to tell we he have stage 3 lung cancer have a full body scan monday to find out if it have spread please keep he in your prayer,negative,0
I get an email my 51 yr old brother is in the hospital with heart problem vs lung cancer I just can not take another death in my family his grandson just die before thanksgive god help I and give I strength mary,negative,0
I just find this recent article on another scary downside of mtx I think stuff like this should be consider like the effect of any drug but realize that the result here are statistic from a relatively small population when you consider that mtx is the most widely prescribe dmard out there having say that I fall into a very small statistical group with mtx 5 of people use mtx develop a rare lung disorder call boop which damn near kill I I come off a respirator in the icu a year ago today I am a lucky boy so do not be scared be inform publish 06 20 08 friday june 20 healthday news rheumatoid arthritis ra patient treat with methotrexate have an increase incidence of melanoma and other cancer an australian study say methotrexate mtx is a disease modify anti rheumatic drug dmard commonly prescribe to ra patient a link between the drug and cancer have been suggest and there are even concern that the drug itself may be carcinogenic but research examine this concern have prove inconclusive this new study include 459 ra patient 309 woman 150 man who start treatment with mtx prior to june 1986 during a total of 4 273 person year of follow up an average of 9 3 year per patient 87 cancer were identify the researcher find that the ra patient who receive mtx were 50 percent more likely than people in the general population to develop cancer of any kind in term of specific cancer the ra patient have more than a fivefold increase risk of non hodgkin lymphoma a threefold increase risk of melanoma and almost a threefold increase risk of lung cancer the increase risk level for non hodgkin lymphoma and lung cancer were similar to the finding of study in europe and in the united states however the increase risk for melanoma identify in this study was new this study is to our knowledge the first to report an increase risk of melanoma in patient with ra treat with mtx compare with the general population lead author dr rachelle buchbinder say in a prepared statement futher investigation is need to determine whether this risk is unique to australia and what role mtx immunosuppression per se and or environmental factor such as exposure to uv radiation play in its development she say our finding take together with other study investigate the risk of skin cancer in patient with ra may support a role for regular skin cancer screen for all patient with ra particularly those receive immunosuppressive therapy the study was publish in the june issue of the journal arthritis care research,neutral,1
how do you if you do rid your mind of the nagging thought that a pain is cancer not just a pain I learn catastrophic thinking well from a hypochondriacal mother I have have breast cancer stage 1 8 yr survivor I just have a negative ultrasound not too long ago I am not diabetic but my sugar is high than it should be and so I think this pain can be frozen shoulder from diabetes or lung cancer or I need neck surgery as I have c6 stenosis I hate live in my head feel this anxiety unable to believe that it is ok or that it will be s o s,negative,0
do anyone know if lung nodule are always cancer or can the be cause by ild thought and some prayer appreciate tracy,neutral,1
dad get the vat surgery and that is a very good thing his golf game is spare this is what he was most worried about at least that is what he admit to however he do have lung cancer but it is not really bad here the detail we were very fortunate firstly with the operation itself the vat procedure sometimes have to be abort and switch to open thoracic surgery which for those lucky enough not to know anything about this involve a cut halfway around your upper body from wing bone to around the rib cage with major body trauma and is one of the most painful surgery out there anyway in that bad procedure that he do not have to get recovery would have been brutal 14 day in hospital and 4 month down time and no guarantee of being pain free ever some folk do get through it ok but I am glad dad do not have to deal with that my sister is a critical care nurse and say we have no idea how great this is that dad only have the vat she was worry sick because she have see many case of the other surgery and she actually shake for day at the idea of that other surgery I would not go into any more detail and thank god I do not have to think about that anymore today next the drs do a wedge resection and not have to do a removal of the lobe which I keep want to call a lobotomy but that is not the word it is actually lobectomy laugh out loud he do not need either a lobectomy or a lobotomy so other than the cancer no part of his lung were take out this remind I of the twisted joke so other than that mrs lincoln how was the play sorry I get inappropriate with the humor when I am nervous it is hereditary my mother who is jewish was apparently tell dirty joke to a baptist family in the catholic hospital today while dad was in surgery of course she was that is mom so he have lung cancer adenocarcinoma and the good news here it is stage 1a which mean early detection and cure as well as cancer is cure I guess drs tell my family that he have garden variety lung cancer and they believe they get it all no chemo no radiation yes no chemo and no radiation I was shocked and happy and worried and do not know what to think now I have decide I am go to go with happy ish I stay home from work only 3 hrs sleep last night and when I get the call from my family with the news I was relieve sort of and literally pass out asleep I mean hang up the phone and fall asleep like I have just have anesthesia that fast as a recover alcoholic I think my body have learn to get drunk all by itself without alcohol whenever I feel the need to escape I just fall out like I am in a coma anyway I was out cold for about 6 hour dad is in icu now and other than some pain is do ok I think if you have to get lung cancer this is the way to go stage 1a non small cell which in cancer world is a blessing so prayer answer the lord have bless we today I thank our love god for keep dad safe from what could have been a lot bad with all my heart I want to thank each and every one of you in my ds family for help I through a very difficult month of emotional pain now I can breathe again after hold my breath for week and I do not smoke big grin hallelujah for that too,positive,2
I am deal with so much right now that it is not even funny I know that I am not alone but I am surprised that I am still alive and breathe at the moment I have fall for someone who only view I as a good friend but nothing more she have feeling for someone else and assure I that thing will be okay in the future but that I have to keep focus on myself and become emotionally stable first before I continue to improve my life she have make it crystal fucking clear that she do not share the same feeling for I as I do for she nor will she ever she do not apologize for the way that she feel either it break my heart little by little to talk to she everyday or see her online and know that I will never be able to touch she ever again in other fun and exciting news my grandfather my dad father was recently diagnose with lung cancer that is in its 4th stage if he go for 6 round of chemo he may live a year or two since it will slow the cancer growth down if he refuse chemotherapy then he have approximately 3 to 6 month leave on top of all this we lose our pet to cancer on the same day that the result come in to confirm the condition of my grandfather health we take she in at the age of 3 month and she live to be 13 1 2 year old that is nearly half my life last august my mother father die of lung cancer that spread to other part of his body include his brain this have been a tragic 6 month for I I have even become suicidal at time recently I have think about it consider it and even attempt it I would not lie I am now go to a new therapist first appointment was yesterday and will continue to go once a week thank you for reading please offer any kind word of encouragement and or advice that you possibly can it is much need at the moment post on 02 17 11 07 17 am,negative,0
please pray for I and my family as our father have recently paste away we are try to be strong and get through his loss but the grief can be hard to bare at time he was a great person and is miss greatly he have cancer and many stroke the cancer was find in his lung he use to be a smoker but the dr say he do not think this is where the cancer originate please pray for my sister and brother to quick smoking I really do not want they to get lung cancer like my father my brother have have a heart attack about a year ago and he is only in his 40 he have other health issue too and I really pray he will stop smoke and try to take well care of himself after my father pass away I really get concerned with my family and their health they do not seem to try to take care of they self I have my health issue but I try my good to take care of myself and pray for healing I appreciate all your prayer,negative,0
my mother die 11 9 07 from lung cancer as do both of her parent I have non biological aunt die this past 2 9 I am still grieve there loss but I live in constant fear that cancer is go to get I too I do not smoke as they do but I do work in a chemical plant how do I shake this fear,negative,0
my mom pass away in 12 02 and I still miss she as much today as I do 5 yr ago she suffer from colon cancer have surgery lung cancer have surgery when all was do she have develop alzheimer that was a very hard year 2001 2002 it is very hard to watch a love one not remember you or try to talk to they about memory when they have no idea what you are talk about,negative,0
I just do not know what to expect with my father he have small celle lung cancer that have spread to the brain I do not understand how they pass is it a slow death I would imagine he was diagnose with cancer in october 2011 have radiation brain surgery and two round of chemo so far he is been very sick throw up tired head ache and so on even after treatment I just do not know what I am to expect to come in the future,negative,0
this is from worldnetdaily com matter of life and death a 2008 worldnetdaily state official have offer a lung cancer patient the option of have the oregon health plan set up in 1994 to ration health care pay for an assisted suicide but not for the chemotherapy prescribe by her physician the story appear to be a happy ending for barbara wagner who have been notify by a drug manufacturer that it will provide the expensive medication estimate to cost 4 000 a month for the first year and then allow she to apply for further treatment accord to a report in the eugene register guard but the word from the state was coverage for palliative care which would include the state assist suicide program would be allow but not coverage for the cancer treatment drug to say to someone well pay for you to die but not pay for you to live it is cruel wagner tell the newspaper I get angry who do they think they are she say she was devastate when the state health program refuse coverage for tarceva the drug her doctor order for treatment of her lung cancer the refusal come in an unsigned letter from lipa the company that run the state program in that part of oregon we have no intent to upset she but we do need to point out the option available to she under the oregon health plan dr john sattenspiel senior medical director for lipa tell the newspaper I understand the way it was interpret I am not sure how we can lift that the reality is at some level doctor assist suicide could be consider as a palliative or comfort care measure the 64 year old wagner live in a low income apartment in springfield with her dog the newspaper say state official say the oregon health plan prioritize treatment with diagnosis and ailment deem the most important such as pregnancy childbirth and preventive care for child at the top of the list other treatment rank below official say we can not cover everything for everyone dr walter shaffer a spokesman for the state division of medical assistance program tell the paper taxpayer dollar are limit for publicly fund program we try to come up with policy that provide the most good for the most people he say many cancer treatment are a high priority but other reflect the desire on the part of the framer of this list to not cover treatment that are futile wagner however is end up with the treatment need when her lung cancer in remission for two year return she report a representative for the pharmaceutical company call and notify she the drug would be provide for at least the first year we have been warn for year that this was a possibility in oregon say the bioethic pundit on the bioethics blog medicaid is ration mean that some treatment are not cover but assist suicide is always cover this is not the first time this have happen either the blogger write a few year ago a patient who need a double organ transplant was deny the treatment but would have been eligible for state finance assisted suicide but not to worry just keep repeat the mantra there are no abuse with oregon assist suicide law there are no abuse there are no abuse,neutral,1
have somebody have experience this I have this pain in my upper back that do not go away the problem is that my panic attack usually make I think that I have a bad illness and this kind of thought are very powerful they do not allow I to get over please I help with this the only think that is in my mind is that I have lung cancer which I know that it is not possible I have been check by many doctor that have hear my lung,negative,0
after 2 chest x ray I have to have a ct scan 10 30am I am terrify to hear the result radiologist have confirm a definite mass on my right lung I lose my mom to lung cancer on 2 1 08 they my 47 yr old brother on 1 29 09,negative,0
could use some advice story on people who quit smoking but still get lung cancer I was a smoker for 15 year but now 1 year completely quit but I still get cough fit every week are my lung still heal or is this reason to get check if so what and how should I start,neutral,1
and was tell you only have one year to live how would you live that last year of you life drunk sober or would you be willing to go to any length for victor over the cancer beast just a bit more to my story recently been release from intensive care full blow lung cancer develop in 20 day it have already mutate up my spine to my brain I have emergency heart surgery early this week to remove a quart of fluid from my heart the build up was do to a physiological response to the cancer the water have protect my heart the next vital organ will be to save the brain 13 radiation treatment over a two week period after that more radiation to treat the body and finally chemo globally may seem rather shocking to some and I m not look for any sympathy at all actually was hope for some comment from my conundrum friend alcohol once was a solve all my problem that one year sobriety prepare my for what was to push I into the deep depth of despair I have ever encounter the four horseman anger bewilderment frustration and despair in sobriety I have the what the fuck syndrome the first week and have thought of just get drunk come on really strong the insidious insanity of that first drink do in fact return it is so true what the big book declare that the mental defense come for I in the form of a power great than myself it feel great to be back home and here on ds on the board hope to share my esh I am sober thank god g,positive,2
and a partially collapse lung but on the plus side I get a dilludid shot and was send home with pain med I could not take the pain any more and walk the 3 block to the er the intern on duty was pretty good his mil have fibro so the pain med were give without question have cat scan and while they could not make out a definite spot he want I to get 2nd opinion since lung issue run in my family the emphazima is a definite as is the partially collapse lung gee could life get any well it can only go up from here,negative,0
mom is a fighter have recover from three chemo radiation treatment over the past seven year I was tell today that she might be able to care for herself for a few more week then hospice would have to be there to help care for she I want to take care of her am willing to quit my job move back home to do it I do not want mom to be with stranger she tell I today that she is ready to go she is so tired of fight the pain she is down to 94 pound have no appetite anymore I feel powerless although I am not ready to let mom go I think it is time to allow she to die w dignity she is my good friend have always been there for I through everything I just want to give something back,negative,0
my 58 year old father was diagnose last week with stage iv lung cancer were in shock he was not have any symptom of a problem and rather find it through a annual physical what is the long you know someone have live with this have specific treatment help that we should ask for or look into we want to be as proactive as possible thank you for any support positive story or treatment suggestion currently he is go to start with brain radiation gamma knife I think and will follow it with chemotherapy thank kellee,neutral,1
my husband nephew die this week he was 42 just got marry last october about 6 week ago they find he have lung cancer go to his spine and the lining around his heart so fast and so young,neutral,1
my husband of 61 year die last month after a short battle with lung cancer I am try to keep busy and my kid have been helpful but some morning I get up just feel like crying and not being motivate to do anything anyone have suggestion,negative,0
it do not seem possible that it will be 6 month since richard my ex fiance we remain very close friend pass from lung cancer I miss he so much I need to cry but the tear refuse to fall just yet,negative,0
I have stage iii lung cancer take chemo last winter the tumor shrunk and now it have grow a little I start another round of chemo with avastin in january I am afraid can anyone put my mind at ease,negative,0
hello I am not sure if this is being do right so here I go was look for some support I am lose my dad to lung cancer and want to find a way to talk with other thank so much and god bless,negative,0
my dementia mother inllaw just die of lung cancer I appreciate all the comment and post and reply to other people topic good luck in all your trouble with dementia my heart go out to you all that is deal with a love one that have it hug,positive,2
hi I have not been around in awhile my dad have been do well another lung cancer scare that turn out ok thank god good news for I I am pregnant baby girl arrive in october,positive,2
I just have to post that it have been 3 year since my wife was diagnose with 3b lung cancer after surgery and a horrible about with chemo she is do well today she have copd but seem to be take it in stride,positive,2
my wife was diagnose with breast cancer sept 07 she have the lump remove and 6 week later was diagnose with stage 4 lung cancer she pass away august 09 the cancer have go through her body we were together for over 38 year and do everything together how do I carry on when everything I think of are thing that we use to do together I miss her companionship and feel so lost and lonely will I ever be happy again I have family and friend for support but its not enough,negative,0
my mom was diagnose with stage 4 non small cell lung cancer now the dr say that it go into her rib and it is also squamous cell cancer it even go to her skin in her ear which she have previous skin cancer she have been go through chemo and they say if she stop she will die in 3 month she is very upset that she will have chemo for the remainder of her life I am confuse over the squamous thing do anyone have any info on this this is the bad thing I have ever go through as my mom is everything to I thank,negative,0
my grandmother was just diagnose with lung cancer the cancer is less than 2 5 cm or mm I am not sure which she is 76 and weigh 80lbs she have already have breast cancer twice but that was over 15 year ago she is set to start chemo and radiation I am not sure which first next week I just want to know is she too old frail to be undergo these treatment is this just go to make she bad off I can not find any information online and I was hope someone here might be able to give I some answer,negative,0
quick history diagnose with seronegative ra 09 2013 rheumy at the time was aggressive we start with methotrexate no help go quickly to enbrel stop due to no help and rage respiratory infection and then humira same issue as enbrel at that time I stop all medication about two month ago I return to a rheumy and start plaquenil along with meloxicam I am have some relief I do not have a family history of breast cancer to my knowledge my mother die from small cell lung cancer one of the most aggressive form of cancer there is a history of melanoma and pancreatic cancer as well I am very aware of my body and have have swell or infected lymph node in the past but not in the last like 8 or 10 year I am currently 36 year old this morning I find a lump in my armpit it is not warm the area is not red it is not painful at all it was not there sunday or if it was it was significantly small I shave my armpit on sunday and would have notice this morning I was just wash in the shower and my finger feel something in my armpit it is about as big as the tip of my thumb hard and fix I call my doctor of course my pcp of 15 year is on vacation for two week and was see this morning the doctor I see remain very calm examine my armpit perform a breast exam which appear normal and refer I to a surgeon she say the surgeon would decide what to do next I was able to get into a surgeon tonight after work he say it do not seem to be part of the breast tissue but could be he affirm that it was hard and fix and definitely a real thing reassure that I was not overreact he have order a mammogram and a sonogram of the area surround the lump I am terrified and angry and unsure what to do my mother die from small cell lung cancer 13 day after her diagnosis the only symptom she have was loss of vision which occur after the cancer spread to her brain and cause 4 cm lesion one of which affect the part of her brain that control vision so yeah I am terrified and unsure of what to expect anyone in my family who have cancer die within 6 month of find it two of my high school classmate have breast cancer and one die at age 35 I do not really have a question just need to tell people who understand,negative,0
hi everyone my mother was diagnose with primary lung cancer which fortunately for she was in the really early stage and was able to be operate on she have a third of her lung remove two week ago is home now but is in absolutely terrible pain from the operation do anyone know of any way for she to relieve this pain I would be so grateful of any help with this its awful see she suffer so badly she is really been through it over the last 5 year because in 03 she was diagnose with primary pancreatic bile duct cancer and have the whipples procedure to remove it I can not tell you all how sad and terrible it is for she to be diagnose with two primary cancer just over 4 year apart thank you tina uk,negative,0
I get this off the american cancer society web site when smoker quit what are the benefit over time 20 minute after quit your heart rate and blood pressure drop 12 hour after quit the carbon monoxide level in your blood drop to normal 2 week to 3 month after quit your circulation improve and your lung function increase 1 to 9 month after quit cough and shortness of breath decrease cilia tiny hair like structure that move mucus out of the lung regain normal function in the lung increase the ability to handle mucus clean the lung and reduce the risk of infection 1 year after quit the excess risk of coronary heart disease is half that of a smoker 5 year after quit your stroke risk is reduce to that of a non smoker 5 to 15 year after quit 10 year after quit the lung cancer death rate is about half that of a continue smoker the risk of cancer of the mouth throat esophagus bladder cervix and pancrea decrease too 15 year after quit the risk of coronary heart disease is the same as a non smoker,neutral,1
I have use the wood stove and fire place all my life in the winter month here although I no long use mine except for special occasion like christmas and during great snow storm the air in the winter month here is always fill with the smell of wood burning and it always effect my breathe the study below is no suprise but I think I would pass it along breath easy everyone always hug hollyhttp scienceblog com 36495 wood smoke exposure multiplie damage from smoking increase risk of copd wood smoke exposure multiplie damage from smoking smoker who are expose to wood smoke either through home heating and cooking or through ambient neighborhood pollution are not only at increase risk of copd but are also more likely to have epigenetic change in the dna that far increase their risk of copd and relate pulmonary problem together smoke wood smoke exposure and these epigenetic change can increase an individual risk of copd fourfold when cigarette smoker are expose to wood smoke their risk of have reduce lung function increase explain lead author yohanne tesfaigzi ph d senior scientist and director of copd program at the lovelace respiratory research institute where the research was complete cigarette smoker who have both change in sputum dna and are expose to wood smoke have a synergistically increase risk of have reduce lung function and other indicator of copd such as chronic mucous hypersecretion the research was publish online ahead of the print edition of the american thoracic societys american journal of respiratory and critical care medicine dr tesfaigzi and colleague administer questionnaire to more than 1800 current and former smoker between 40 and 75 year old and obtain demographic and smoke exposure information as well as sputum sample which were analyze for epigenetic change to eight gene know to be associate with lung cancer they find that wood smoke exposure was significantly and independently associate with an increase risk of respiratory disease especially among current smoker non hispanic white and man furthermore wood smoke exposure was associate with specific copd outcome in people who have aberrantly methylate p16 or gata4 gene and both factor together increase the risk more than the additive of the two risk factor together they also find that people with more than two of the eight gene analyze show methylation were also significantly more likely to have a low than predict fev1 than those with few than two methylated gene because exposure to wood smoke appear to increase the risk of reduce lung function cigarette smoker should try to avoid heat their home or cook with wood stove and try to avoid environment where wood smoke is likely for example neighborhood where wood smoke is common say dr tesfaigzi because the same gene change were associate with increase risk for lung cancer one would assume that wood smoke exposure also increase the risk of develop lung cancer future study may show that it would be appropriate to screen patient for lung cancer if these exposure were present for prolong period base on these finding dr tesfaigzi and colleague establish an animal model that will be able to far test whether both wood and tobacco smoke exposure cause more damage to the lung than either one of the exposure alone we observe increase inflammatory response in mouse that were expose to both cigarette smoke and low concentration of wood smoke compare to those expose to cigarette smoke only we would like to use this animal model to determine the mechanism underlie this exacerbation say dr tesfaigzi because wood smoke exposure was document by self report and was not quantify in this study in the future dr tesfaigzi also intend to characterize the type and amount of wood smoke the participant were expose to such study will help to far refine the analysis and provide intervention strategy,neutral,1
as most of you know my dad is die he have emphezema on oxygen 24 7 in out of hosp w phemonea sp lung infection possible lung cancer last night I call mom dad she say she take he to dr appt they scan his adomial sp tummy he have an anurism sp that have increase from a 2 to a 5 cm they say it should be operate on but they can not not w all the other prob he have plzzzz keep pray keep he in your thought thank you hug cathy postscript sorry about all the misspell word,negative,0
papaya a miracle fruit more and more research suggest your lung may benefit from papaya thank to a key carotenoid call beta cryptoxanthin behind the beta benefit in a recent large study researcher find that people whose diet contain high amount of beta cryptoxanthin were less likely to develop lung cancer even if they smoke lot of similar study regard the lung benefit of carotenoid have show mixed result but this is one of the first large study to examine beta cryptoxanthin specifically and papaya is a top source along with orange tangerine and mango time for a fruit salad fruit is top of the list for copd healthy diet as well dale tinster,neutral,1
I have been dream of mum again only she is mess up my house laugh out loud I dream that she was at our house only it was really run down not true and her good china was sit on the side of the kitchen sink dirty everyone have eat and I have not she was lay on the couch smoking she die from lung cancer I just have my last smoke monday night this will make the 4th time I am try to quit I have 3 strike against I for cancer risk dad with esophogeal mum with lung and grandmother with breast so I figure I would well quit for good this time I dream about mum a lot lately must be she is tell I something but not sure what she know I was angry at my sister last night so she was there to tell I it was ok to be mad,negative,0
since last thursday three of my co worker have lose love one to cancer one friend co worker lose her 61 year old husband to liposarcoma on thursday another co worker lose her mother to breast cancer on friday and yet another co worker lose her father to lung cancer on saturday it is just unbelievable how much cancer is out there a while back I do briefly mention this site to my now widow friend and when she is ready she may join the group none of we want to be in it was five month for I last friday since my husband of 42 year pass I do not post often but do check the site several time a day after this past weekend I just need to say what many of you have say cancer suck thank all of you for listen haggiec,negative,0
I get a call today from my liver dr she sound very grim she say she have bad news that I would have to go to another dr I was think the bad like they find something and then she tell I that she have lung cancer never smoke never was around any smoker and the only reason she go to a dr is because her heart rate was too fast I feel bad for she she sound scared to death she have a biopsie and will have surgery next week I have ask she if she was ok at our last appt because her sparkle was go she go to the dr the next day she ask I if I see something in she or notice something I tell she normally she is happy and upbeat but that day seem tired and empty she tell I that she would be back in a month please pray for she her name is kathleen she is awesome thank cynthia,negative,0
on 09 21 12 I have my upper right lobe remove due to cancer doctor tell I I am fine now three month later my right side still hurt shortage of breath lot of mucus in throat under right breast it become very hard and inflammed at time the mucus build up to a choacking sensation which lead to vomiting is this a normal part of healing after lung surgery what can I do to help myself have a smooth recovery,neutral,1
well my dad was have problem for month the end of last year he keep have pain in his back that were really bad his doctor keep think it was his medication they put he on so they keep change that do blood test and see his white blood count was high so he think just an infection after about 5 month he finally send my dad in for an mri or cat scan sorry I m in michigan they are in texas so I can not remember all the detail that is when they see a mass that was about the size of my fist they do a biopsy and it come back as lung cancer it is not inside his lung it is outside his lung it is wrap around one of the heart artery push up against the trachea and even wrap up a little in his t2 in april he start radiation and chemo there was 6 week of radiation and one week of chemo and a monday then 4 week later same deal he come up here to visit I and my kid end of june beg of july and was here 3 week he was feel great just a little tired he start to hurt really bad towards the end and suspect the tumor have grow back when he get back to texas he tell his oncologist who do not have a special field that he think its back and that its large again they redo some scan and say that it was about 5 mm small than it was when they first start and that the pain my dad was feel was from bone degeneration the oncologist do not want to continue treatment he say he want to wait 6 week and redo the ct scan a couple week later my dad go to the hospital because he could not really stop cough they do a bronchoscope and see that he have a hole in his esophagus they redo a ct scan and it look like within a couple week the tumor have double the doctor at the hospital say the tumor have grow then my dad oncologist say it do not that it look that way from the infection he also have double pneumonia so again the doctor say let wait 4 6 week and redo the scan my dad have to get a feeding tube into his small intestine because they could not repair the hole this was almost the end of july like the 20th my husband myself and our two toddler fly down there the week of the 19th of august to visit with he despite being tired he was in good hope and seem to be do good I do go to one of his oncology appointment so I could meet this doctor who I do not like since he was dismiss the ct scan say he know its not the tumor I ask he all my question and he seem confident well he have a ct scan 2 week ago and then they go over the result two friday ago the area of the infection tumor was noticeably large his oncologist say to he these scan look great because again he was so confident it was not the tumor just the infection yet this infection keep get bad and they are not even aggressively go after it he and the infectious disease doctor were suppose to schedule an appointment and give my parent a call this was the friday before labor day and no one call they all day tuesday my mom try to get ahold of both doctor and no one call then wednesday they both were play the he say she say game finally someone set up an appointment for my dad for the follow monday yesterday thursday night my dad go to the er because he is having labor breathing and his oxygen level are really low this is the 2nd or 3rd time in the last 30 day they do ct scan of his chest and then say to he we need to do more of your neck we think it have spread to your neck they have to wait 24 hour and when they do the scan friday they see that the tumor have make its way up to my dad c7 my dad is now on an oxygen tank and his fucking oncologist have the nerve to not show up he was page all day long on friday by my mom the hospital call his office a couple time on friday and he never show up yesterday my dad was suppose to get a bronchoscope and a drain tube put in but the pulminary and infectious disease doctor say that they do not think they can do it that if they do the bronchoscope that they think my dad will end up on a breathing machine then they tell we we should start think about hospice care we call all day yesterday and his office finally call my sister back say he will stop by to see my dad tomorrow today as a nice thing to do because he do not know my dad in the hospital so pretty much he s stop by even though he will not be pay he finally show up this afternoon and he have the nerve to tell my mom no one try to get in touch with he anyway he say they are go to try and do a biopsy tomorrow I am so angry my dad oncologist play a game of chance with my dad tumor and he was wrong because he insist that it was not the cancer grow and it was an infection there were 2 month that he could have been being treat also because of both he and the infectious disease doctor his infection was never treat properly they know that the antibiotic were not work and they do nothing they are in waco texas and it is ridiculous I am try to get they to move up here and go to you of m and see if there s anything they can do my dad is tell I or tell my mom that he do not want to move he is not talk on the phone right now because it is hurt he to speak I feel like my dad is at the point where he do not want to fight it anymore and I understand but I am just a total wreck I can not believe my dad is die I am 26 year old I have a 3 and a 1 year old his only grandkid and he s die,negative,0
10 22am october 28 2008 this is the time and date that I find out that my mom was diagnose with stage 4 lung cancer that have spread to her liver and bone my mom is not a smoker show no sign of have anything wrong with she my mom have been complain of chest pain and being sore around her rib or as she say right below my bra my mom go to the doctor on october 22 2008 the day after her 57th birthday to find out what was wrong with she at that time she have have a series of cat scan bone density test and a mammogram which all prove that she have cancer and it have spread she start iv chemo around the first of december and right around christmas time she have lose all of her hair she do about 6 treatment of chemo and they do a ct scan and her result come back that her tumor in her lung have decrease by 20 since this was good news the doctor want she to take tarceva and as long as she do not get any bad she could continue take pill form chemo since the iv form was make she very tired and ill august 9 2009 my mom call I cry because she was in a lot of pain and could barely move we take she to the emergency room and she was give pain medication and they decide to admit her august 10th they do a bone scan that determine that there was not a single bone in her body that the cancer have not spread to which would explain her pain they decide to do a couple of radiation treatment and tell she that they would do 10 treatment and then she could decide if she want to go back on iv chemo again she was against that she was in the hospital from august 9 21 she agree to 7 out of 10 radiation treatment and some palliative care before she decide she have enough and want to go home the doctor release she under 24 7 care and hospice care at the home I was tell by the oncologist nurse that she could possibly have 3 month to live mom is do ok at home she is still in a lot of pain and her doctor hospice have not 100 find out what will make she well and she can not get comfortable anymore she go around the house in circle try to find the good good chair couch that she can sit in,negative,0
how sad I just read about paul newman die he was a famous actor not just an actor a philanthropist and activist for worthy cause he was married to joanne woodward for over 50years unheard of in hollywood I am sadden by the loss of this talented actor paul newman live a life of integrity lung cancer list as the cause of death backin those day everyone smoke all the actor in movie and on tv that was my parent generation hope we have learn from they,negative,0
I finally have my appointment with my lung specialist but he do not have the disk of the ct scan so could not get exactly all of the result when I first get there I see the specialist nurse who give I book on emphysema copd also a book on quit smoking which I do but still struggle at time but get there then see a student doctor who take all of my history since when I was 14 the age I start asthma finally see the specialist he tell I I have emphysema and copd that is about all he could tell I at this time since the hospital where I have the ct do not send it to he he give I 2 different medication at that time advair inhaler and cingular pill then 10 day ago I go to see my pcp and get the requisition to pick up the disk of my ct which I have in hand right now and will bring it to my next appointment my pcp tell I that the capacity of my lung in february was 60 all of the parameter are low I do not quite understand these figure but he circle the fev1 l should be at 3 00 mine is 1 96 the other figure are all under the normal range ct scan result no sign at this time of bronchiectasie also miss infiltrat active or nodularity suspect moderate emphysema of the superior lobe particularly at right apex distinct trainees lineaire dallure cicatricielle scar chronic in the middle and lingula lobe small nodule approximately 4 mm in the low pleurale region of segment supero dorsal of the inferior right lobe this nodule is non calcified it might probablybe granulome non calcify never the less without the document anterieur this nodule have to be follow for the next 2 year schedual another ct scan in 6 month conclusion no bronchiectasie moderate emphesema of the superior lobes small nodule probably benign at the right inferior lobe to be follow for the next 2 year hopefully someone here will understand this not soo good translation from french to english and explain all of this to I should I be worried note my specialist with get the disk of the ct scan on my next appointment and will determine if in fact it is benign thank you very very much mckenzie one day at the time,negative,0
hi my grandma was diagnose with stage 3 lung cancer and just finish a round of chemo therapy and radiation it will be a few month until the oncologist can see if it was effective in the mean time I know it is extremely important that we boost her immune system to help combat the cancer I am familiar with the gerson therapy the macrobiotic diet and also the raw food method for cancer treatment diet do anyone have any experience with diet as treatment that can share some advice do anyone have any experience with any other alternative treatment,negative,0
I was feeling compel to bring up this topic early this morning I have an old co worker who most tragically find out she was stage 4 cancer after experience sprain like pain one weekend she fly to texas for experimental treatment and vigilantly participate in her find her cure at the end she was release from the hospital to exit her life at home the day she was discharge the minute she walk out of the hospital door she light up a cigarette autopsy disclose she have actually end up die of lung cancer there was a lot of talk and most of it can be sum up in this manner she have lung cancer and she light up a cigarette the addiction is not deter by a diagnosis as we all know who share her vice why do not these people see she have a right to a last joy as her life was already over I know of similar case as I am sure you do also what about patrick swayzee sp being chastise for light up after get off a airplane because he have find out he have pancreatic cancer his pancrea have a deadly disease but so do his mind the part of his mind that suffer with the addiction of cigarette smoking there is no right or wrong answer here obviously but I just feel a need to bring to light to this nicotine demon we have have a lifetime of struggle with,negative,0
I am deal with so much right now that it is not even funny I know that I am not alone but I am surprised that I am still alive and breathe at the moment I have fall for someone who only view I as a good friend but nothing more she have feeling for someone else and assure I that thing will be okay in the future but that I have to keep focus on myself and become emotionally stable first before I continue to improve my life she have make it crystal fucking clear that she do not share the same feeling for I as I do for she nor will she ever she do not apologize for the way that she feel either it break my heart little by little to talk to she everyday or see her online and know that I will never be able to touch she ever again in other fun and exciting news my grandfather my dad father was recently diagnose with lung cancer that is in its 4th stage if he go for 6 round of chemo he may live a year or two since it will slow the cancer growth down if he refuse chemotherapy then he have approximately 3 to 6 month leave on top of all this we lose our pet to cancer on the same day that the result come in to confirm the condition of my grandfather health we take she in at the age of 3 month and she live to be 13 1 2 year old that is nearly half my life last august my mother father die of lung cancer that spread to other part of his body include his brain this have been a tragic 6 month for I I have even become suicidal at time recently I have think about it consider it and even attempt it I would not lie I am now go to a new therapist first appointment was yesterday and will continue to go once a week thank you for reading please offer any kind word of encouragement and or advice that you possibly can it is much need at the moment,negative,0
I am not smoke but its still a daily battle I been sick and it settle in my chest and so they send I for an emergancy chest x ray and all I could think was oh my god its cancer lung cancer you know what that in itself do not even kill the craving I still crave they I am not smoke but I am crave they,negative,0
a man in louisiana spend 30 year in prison for a crime he do not commit he have been on death row for 30 year now he have terminal cancer stage 4 lung cancer to be exact he spend more than half his life in prison on a false conviction guess what he have been deny any compensation for the year he wrongly spend in prison in louisiana sound familiar this is like watch a horror movie with no end http tinyurl com og8rmmv rewdiazepam,neutral,1
anyone know of how he is do last time I check he have stage four lung cancer prayer to you gnon and your family this cancer stuff is horrible but really bring people together in love sometimes no two way about it though it is rough stuff love and peace to you perhaps add your own good vibe prayer in this thread,positive,2
my fiance go for his test tomorrow to tell we if he have lung cancer or not I am very scared and feel like I am deal with this on my own I am have so much anxiety and I am cry I can not handle this my fiance have a lot of medical issue what if they tell we he have cancer I do not know what to do anymore,negative,0
my sister just die of lung cancer she was stage 4 before she even know she have it she smoke but they say it was not from that I quit the day she find out which was only 24 day before she die she was only 43 I am scared of I get cancer now how can we ease our mind when insurance co would not let you get certain test,negative,0
ugh my chest feel funny and have for the past few day it almost feel sore like the muscle in my chest I can stop think that it is my lung hurt and I have lung cancer or it is something to do w a heart attack keep in mind I m 23 and that is been to heart doctor about 6 month ago and wear a heart monitor and have a ultra sound on my heart and he say everything was fine what should I do should I just stop worry about it and see if it go away,negative,0
just watch the national news that have a segment on the hazard of smoking include a list from liver cancer to lung cancer never metione copd or emphesyema mention how teenager are grow in number for smoker never mention how addictive cigerett are I am mostly angry because purchase a pack of cigerett is still legal thought anyone thank for let I vent,negative,0
mom is under hospice care everyday she get bad they give she more and more med to ease the pain and relieve her anxious tendancy I do not want to see she suffer so much why do it take so much time for the end to come mom is 87 and have have colon cancer and also inoperable lung cancer she have been through so much it hurt to see she so confused,negative,0
sorry I have not been around in a while my young son fly in twice over easter mother day they have been run test on I he want o be here when I get the result thank god well I have lung cancer I have 2 more test to take before a decision will be make do not know if anyone else on here have cancer too but would love to know will write more about this later,neutral,1
my sister in law was recently diagnose with lung cancer she never was sick only have a symptom of cough she do however have a growth on her back that start as a pimple and grow to the size of 2 half dollar they have do a biopsy on that and are await the result they are plan on put she on the drug call erlotinib do anyone have any thought on both the growth on her back and the drug itself any information would be greatly appreciate I have been through cancer treatment with my mom for mantle cell lymphoma and realize how much more you learn from the people deal with the disease than just talk to the doctor thank so much,negative,0
I recently lose my wife on september 10 2015 she was diagnose on june 10th 2015 with thyroid cancer after numerous test they determine that it have start in her lung and was now stage4 lung cancer and with in month she was go at 51 we were marry 14 year I am in therapy I go twice a week and my therapist is suggest a grief group I do not see the point I feel like my life is over I do not want to get up in the morning I can not function at work and when I am at work all I do is cry I cry every night and every morning and several time through out the day I feel hopeless I am not suicidal but do not want to go on if that make any sense she was my soul mate the love of my life and I feel so lose with out her,negative,0
my husband was diagnose with lung cancer may5 and pass away july 5 this is the bad thing to ever happen to I even bad that lose my right leg I wonder if anyone have go through this and can just talk about what you go through I am on my own here,negative,0
and 5009 cigarette not smoke it is hard to believe I smoke for over 30 year no not every day is easy but die of lung cancer is not either I am proud of I I am just say nope every day,positive,2
prayer need 911 yesterday all day at the hospital with my husband more health issue was suppose to go visit my uncle who is die from lung cancer can not go feel overwhelmed right now god give I strength I really need it,negative,0
I just find out that paul newman pass away yday from complication of lung cancer I cry when I read it a great actor a race car driver owner cook love ya allcathy,negative,0
hello my name is rebeca and my father in law was diagnose with lung cancer we are await which type as we speak my husband is go crazy so emotional and sad I just do not know what to expect and how this work,negative,0
my brother just call I about 20 minute ago my mother have just pass away she have stage 4 lung cancer my last conversation with she was a pleasant one so I am grateful to have that memory of her,positive,2
just for fun please entertain I here I am try to find a name for my 5k run group for charity it is a lung cancer run and I have 6 people on my team I now need a group name any suggestion,neutral,1
just find out yesterday my wonderful mother in law have incurable lung cancer we are wait on the biopsy to come back to determine stage and treatment option I am so sad for her my husband and whole family she is is the rock for a lot of people out there and we need she here why,negative,0
I suffer from anxiety and depression as I have talk about before on here I go for my counseling today and was talk with she and tell she I have have some anxiety this past week one of the symptom is short of breath and feel like there is a lump in my throat I have tell she I have this a long time ago when I first start with anxiety and panic attack she suggest I go see my family doctor to make sure there is nothing else go on I am scared to death now I am think the bad I am think I have lung cancer or lung disease of some type needless to say my anxiety is hit an all time high right now I have have this feeling for the last week it come and go can anyone offer any advice or support,negative,0
my dad was diagnose about 3 week ago with lung cancer he have not have an offical biopsy yet but the doctor pretty much say it was stage 4 he have cancer in the lung which have spread to his liver pancrea kidney and there might be a spot in his brain in november of 2011 he was diagnose with pvc with his heart on february 29th of this year he was tell he have cancer after have a chest xray my mother have to ask for from the doctor which the doctor was not even go to do have a misdiagnosis do not help anything he is only 51 year old still so young I am so sad and confused as to what to do I try to stay positive and take it one day at a time but it is so hard to do see he upset and suffer everyone say have faith and stay hopeful but it is easy say then do I am 21 year old and can not bear the thought of my dad not being here any advice would be very helpful,negative,0
warn smoking is injurious to healththere is a dictum that everything have its harm and benefit but do smoking have any beneficial effect yes it have those are too insignificant in comparison to the injury it cause to our body its easy to enumerate they there are so few of they they are 1 smoke decrease appetite but no evidence of benefit to overweight one 2 risk of ulcerative colitis is reduce in smoker 3 it interfere with the development of kaposis sarcoma the skin cancer know to be associate with aids 4 some study conclude that smoking play a certain protective role in the occurrence of sarcoidosis a disease due to inflammation that can affect any organ but is commonly know to be associate with granulamatous lesion in lung although smoking have no effect on the extent course and outcome of the disease now take a look at the harmful effect 1 it is the major cause of emphysema chronic bronchitis and lung cancer in fact the good management for mild to moderate chronic bronchitis is to stop smoke 2 it is also link to atherosclerosis and its major complication myocardial infarction 3 numerous other disease like oral cancer cancer of larynx oesophagial cancer peptic ulcer pancreatic cancer bladder cancer what s next the next step is to do some research and find out how to quit smoking,neutral,1
there are time I feel so isolated my guy is a lung cancer survivor who live with constant pain he have advanced emphysema prostrate cancer and onset of dementia the last 5 yrs have been a struggle and the last 2 yrs even more so as his memory is fade he is a dear and I am here for the long haul much like nancy regan but without all the s but that is ok it is just that I feel so isolated alone at time I am look forward to being a part of this group thank you emmacin,negative,0
http www dailymail co uk health article 2464471 what s smoke do your body alarm graphic show effect htmlwe all know that smoking can cause lung cancer but do you know it can also trigger woman to go grey grow facial hair and man to have sluggish sperm in an attempt to move on from the grisly anti smoking picture find on cigarette packet finnish doctor have develop an interactive website to highlight the danger tobacco body have been create in conjunction with the cancer society of finland to show the damage smoking cause to see the danger for yourself select the male or female body and then browse different part of the body,neutral,1
tomorrow is my mom birthday I miss she so very much she pass away in 2002 after have lung cancer surgery and then a month later colon cancer surgery then she develop alzheimer disease and that was the hard thing I have ever been through at that time I lose my 27 yr old son in 2007 I really could have use my mom these past few year I think about ask my dad if he want to have lunch tomorrow I wonder what he will say,negative,0
I am sorry I have not been online for so long much happen and is happen in my life right now my dear friend is die of lung cancer I meet he on ds year ago he is a medical doctor and a wonderful friend to I and my family I am have a horrible time deal with my friend cancer yesterday I quit smoking so much more to say and I will in time this is a wonderful group I am so glad to be a part of it god bless you all melinda,negative,0
worried about cancer prevention some simple lifestyle change such as eat a healthy diet and get regular screening can make a big difference consider these 10 way to reduce or prevent your cancer risk 1 eat right choose nutritious food include a variety of fruit vegetable and whole grain to reduce your cancer risk limit or avoid red meat 2 maintain a healthy weight excess weight and obesity are associate with a high risk for many disease these include cancer of the breast uterus colon and rectum balance caloric intake with physical activity help in maintain a healthy weight 3 stop smoke tobacco use account for most lung cancer and play a role in the development of other cancer include those of the cervix and bladder 4 avoid secondhand smoke breathe secondhand smoke can cause lung cancer and other disease include heart disease in nonsmoker 5 drink only in moderation alcohol consumption is link to many cancer include those of the breast mouth throat esophagus and liver people who drink alcohol should have no more than one drink a day to reduce their cancer risk 6 physically active regular physical activity can improve your overall health and may reduce your risk for cancer of the breast colon and other organ get at least 30 minute 45 60 minute is preferable of moderate to vigorous physical activity on five or more day a week 7 stay sun safe use a sunscreen with an spf of at least 30 year round wear uv sunglass wide brim hat and long sleeve clothe avoid the sun from 10 before midday to 4 after midday 8 have screening as recommend health screening and test can be lifesaver a clean bill of health will give you great peace of mind if something need medical attention or emergency care the soon its detect the well important screening include blood pressure read bone density test cholesterol check colorectal screening diabetes screen eye exam hearing test and routine physical 9 take care with x ray and hazardous material when have x ray ask for shield to protect other part of your body follow proper direction when deal with chemical metal dust and loose fiber 10 decide carefully before start or continue hrt hormone replacement therapy hrt increase the risk of breast cancer and other health problem discuss all cancer risk issue with your doctor http aokemergencyroom com,neutral,1
my grandfather was recently tell that there were abnormal spot that show up in his lung and on his sternum that were not present a couple of month ago he is go today for a biopsy and I am so nervous I do not know what I feel he was a smoker for many year and it look apparent that it will come back as lung cancer it feel so surreal and I do not even know that I am sad yet I just do not realize what s go on I want to help and be supportive but I know if the biopsy come back positive he is just go to will himself to die because he do not know what to do,negative,0
I am new here just join today my fiance recently have a cat scan and was tell they find some spot on his lung that could be lung cancer he have to go on friday to get a test do to see if he have it or not we are both very scared he have other medical issue plus mental I also have mental issue I am try to be strong for he but it is hardplease keep we in your thought and prayer that would mean so much to we thank you,negative,0
struggle to breathe a nurse tip for manage dyspneadyspnea is the technical word for difficulty breathe it is a common symptom in people who have emphysema lung cancer or have cancer that have spread to the lung people who experience dyspnea describe it as difficulty in breathing or shortness of breath they often compare it to feel like they are suffocate or being smother in many case patient may develop anxiety or panic if they feel they can not breathe often their anxiety and fear can make the dyspnea bad by panic patient can become more breathless and begin a cycle that is hard to stop dyspnea occur when patient have trouble move air in and out of their lung patient can also experience dyspnea if their lung are not get enough oxygen here some advice from teresa knoop rn msn aocn cancer information nurse specialist vanderbilt ingram cancer center about how patient can work with their healthcare team to treat their dyspnea and control the anxiety it can cause who get dyspnea patient with primary lung cancer commonly complain of dyspnea so do patient who have another type of cancer such as breast cancer that have spread to the lung say knoop but she explain people can also have dyspnea if they have any of these health issue emphysema heart diseasesome cancer treatment such as lung surgery radiation to the lung and certain chemotherapy may damage the lung and cause dyspnea other treatment such as drain the lung or place a catheter into the vein of the chest can also cause patient to experience dyspnea how is dyspnea evaluate dyspnea is subjective explain knoop as nurse we are dependent on the patient to describe and rate the sensation generally we ask patient to explain their breathlessness in term of mild moderate or severe dyspnea may prevent people from do something they normally do with ease say knoop that is why we often ask patient to describe how their dyspnea affect their daily life and their quality of life to help you talk with your doctor or nurse about dyspnea it may help to keep track of how it affect you keep a journal of when you have it what make it well and what make it bad how can dyspnea be treat treatment of dyspnea is usually direct toward the treatment of the underlying disease for example if fluid is collect in the lung the fluid may need to be drain to lessen the dyspnea chemotherapy or radiation therapy may shrink a tumor to lessen the dyspnea if dyspnea is being cause by an infection antibiotic may be require say knoop your doctor may treat dyspnea with medication here are some option for that bronchodilator open a patient airway and decrease their dyspnea steroid help reduce any swelling in the lung that may be cause the shortness of breath anti anxiety drug can help the cycle of panic lead to more breathing difficulty pain medication can make breathing easy your doctor might also prescribe oxygen ask your healthcare team about breathing and relaxation technique you can try on your own what can a patient do to manage dyspnea relaxation exercise meditation breathing technique conservation of energy and limitation of activity may be helpful in deal with dyspnea says knoop these technique may also control your anxiety level an important part of treat dyspnea it might also be helpful to change the way you sit or sleep patient with dyspnea may find it helpful to try sit upright in a chair lean forward slightly and rest their forearm on the arm of the chair or their knee to help their lung to expand sleep with several pillow or in a recliner can also help here are two type of breathe technique to manage dyspnea always talk with your doctor or nurse before try these technique it can also be helpful to talk to a respiratory or physical therapist for hint on how to manage dyspnea purse lip breathe to do this type of breathing keep the lip press together tightly except for the very center take normal breath breathe in through the nose then take twice as long to breathe through the center of your mouth in summary plb is find to be effective to improvegas exchange and reduce dyspnea those patient with loss of elastic recoil pressure that is more emphysematous lung defect seem to benefit more from practice this technique however its application during exercise do not improve blood gas its effectiveness during exertion need further research body positionrelief of dyspnea is often experience by patient in the forward lean position a body position commonly adopt by patient with lung disease the benefit of this position seem unrelated to the severity of airway obstruction change in minute ventilation or improved oxygenation however the presence of hyperinflation and paradoxical abdominal movement were indeed relate to relief of dyspnea in the forward lean position forward lean is associate with a significant reduction in emg activity of the scalene and sternomastoid muscle an increase in transdiaphragmaticpressure and a significant improvement in thoracoabdominal movement from these open study it was conclude that the subjective improvement of dyspnea in patient with emphysema was the result of the more favorable position of the diaphragm on its length tension curve in addition forward lean with before midday support allow accessory muscle pectorali minor and major to significantly contribute to rib cage elevation in summary the forward lean position have been show to improve diaphragmatic function and hence improve chest wall movement and decrease accessory muscle recruitment and dyspnea in addition accessory muscle contribute to inspiration by allow before midday or head support in this position,neutral,1
so I have been wait to post on my rheumys visit until I have every last test result get the last one late yesterday so I need a follow up ct to see if the 2 small masse in my left lung have grow orencia cause lung cancer and we ve been watch they for 18 month and as of yesterday they are still the same size so no lung cancer yay hand were inject hate those palm shot and are now move and less swollen need to shovel snow later today so that is good we talk long and hard about relapse polychondritis and he want I to call as soon as my nose or ear turn red so he can see it say the staff will find a way to get I in except he is on vacation the week of st patrick day I see a problem come up but I was frank with he and he with I he is worried but if that is what it is well deal with it as there is no real treatment just steroid to reduce pain and no test to figure out if I have it but he now know that I have do my research have he check out the pain in the back of my left calf and he say it is from my back those muscle are innervate by s1 nerve and that is one of the area where the bone is collapse his response have you call boston answer no I do not want to he you know you have to I yeah I know but not until after winter not drive up the hill to the hospital in the snow rheumy chuckle he do his med school and residency in boston and he remember that hill back to neurosurgeon soon so I am now in wait mode wait for redness and heat and pain to return to my ear and face pain have already return and to see neuro about more surgery on spine and to see if I need even more shot in my hand they just keep curl up and would not open it just keep go on and on and on gentle hug to all jen,neutral,1
hi all quick background high grade bladder cancer i2 year ago treat with surgery and chemo appear to be in remission but leave I with chronic low abdominal pain and chronic fatigue significant family history of cancer 3 grandparent several aunt and uncle mother several different type of cancer but primarily lung cancer I was a smoker for 3 4 year at 2 time in my life quit the last time when diagnose with the bladder cancer male early 50sct scan and ultrasound over the last two year have pick up several small pulmonary nodule in my right lung a small solitary thyroid nodule several small renal cyst in both kidney pet scan in january of 2011 do not show any malignancy and ct scan in november of 2011 indicate that the various nodule are not show significant growth try to decide if I should be nervous or not at this point all the doc say just hang out and we will do surveillance ultrasound and or ct scan every 6 month to monitor the nodule have anyone here experience multiple organ nodule and have they progress to malignancy thank,neutral,1
I post on tarceva resistance because I believe this is one area where research and knowledge can improve the outcome 1 initial response egfr positive patient have an impressive initial response rate of about 60 to tarceva egfr positive patient are primarily non smoker with adenocarcinoma or subtype like before christ testing make sense since some non smoker are negative while former smoker particularly light one can be egfr positive while tarceva is frequently very effective with this egfr positive group resistance can later develop cancer can be as creative in circumvent treatment as scientist are in create they 2 source of resistance with the target egfr know scientist have identify one source for resistance t790 m google provide over 40 000 response to a query for the term t790 m technically it is a substitution in a long line of dna of threonine 790 with methionine t790 m that seem to be sufficient to frustrate tarceva and restore the abnormal and repetitive cell signal that characterize cancer 3 comprehensive cancer center 25 year ago one could argue the choice of hospital do not matter since the same chemotherapy drug would probably be give at a local hospital or major research facility today sophisticated testing and access to clinical trial and research development may make a difference in provide testing and determine treatment while a local oncologist may deal with over 100 different type and subtype of cancer a doctor at sloan kettering can specialize in lung cancer and have an easy time address development in his specialty or sub specialty comprehensive cancer center is a designation give to major hospital which meet certain standard of research and specialization you can select a doctor by select one who is conduct important research as indicate by medical journal 4 erbitux and new approach to egfr tarceva is a tyrosine kinase inhibitor it attempt to stop the phosphylation at the kinase that facilitate abnormal signal in contrast erbitux another anti egfr fda approve drug work at the external domain level the two drug are arguably complimentary with different mechanism of action erbitux is fda approve for another type of cancer but is show promise in prevent t790 m resistance in combination with new drug call pan inhibitor 5 pan inhibitor there is a group of drug call permanent pan inhibitor and a number are being test to address t790 m resistance include hki 272 pf00299804 some similar drug have been fda approve such as lapatanib tykerb a dual inhibitor fda approve for another type of cancer egfr or erb 1 is a part of the erb family of tyrosine kinase involve with cell signal with the other erb2 4 one theory for resistance is that these other tyrosine kinase such as erb 2 help restore abnormal signaling and provide signal among the erb family call cross talk erb 2 is a target of other cancer and the well know drug herceptin target erb 2 new study indicate a combination of erbitux and a pan inhibitor can frustrate t790 m 1 2 these promising cell study need to be replicate in human clinical trial 6 cell study cell study are important and a drug which show promise should be consider first look to the scope of the study a study deal with many form of cancer make not apply to your own t790 m study are impressive because they provide result relate to the specific type of tumor cell study do not automatically convert to an effective drug in human and a cell study can not evaluate potential side effect delivery is a problem the cell study allow the new drug to directly interact with cell while in the complex of the human body that interaction can be more difficult the converse is easy to say if the drug is not effective in cell study how can it do well in human where a patient have tarceva resistance and a treatment is propose the obvious question is whether at least cell study have show the new drug can overcome that resistance at least in cell study in determine what to do the question is not whether the dual inhibitor combination have been prove but what provide the good promise for the egfr positive patient with resistance 7 testing testing to determine the cause of resistance make the most sense to I another mutation call meet may be responsible for tarceva resistance and there are other possibility some t790 m testing is advertise and it should be available at a sophisticated research facility but probably not at most local hospital 8 other approach to resistance hsp90 just this month a study carry the ambitious title target heat shock protein 90 with cudc 305 overcome erlotinib resistance in non small cell lung cancer mol cancer ther december 1 2009 8 12 3296 3306 chemotherapy can carry significant side effect because it impact a number of cell drug like tarceva carry comparatively less side effect because they more narrowly target a particular cell such as egfr thus the possibility exist to combine various type of drug 9 group role in the ideal situation patient and family member could spend 2 3 hour or more to really discuss and understand treatment with their doctor that generally can not be do and the patient have to prepare for a meeting and limit area of inquiry for consultation that will typically be less than an hour and as little as 10 15 minute the idea is not to replace the doctor but prepare so your question are target and the doctor can spend more time on the specific of treatment and less on general explanation the discussion do need to be diplomatic if not deferential 10 approach while it is tempting to suggest various combination and use of drug off label many physician will be conservative first do no harm is part of the physicianss creed and one may worry about legal liability use a new and untested combination many physician will usually want to see some recognize literature recommend a particular combination or enter the patient in a recognize clinical trial which disclosure of potential risk is part of the entrance 11 conclusion science hold out the possibility of address tarceva resistance I am not a doctor and have not review any individual record in the preparation of this and the foregoing represent my personal opinion reference 1 regale dual targeting of egfr can overcome a major drug resistance mutation in mouse model of egfr mutant lung cancer j clin invest 2009 october 1 119 10 30003010 2 tang dual metegfr combinatorial inhibition against t790 m egfr mediate erlotinib resistant lung cancer br j cancer 2008 september 16 99 6 3 bao target heat shock protein 90 with cudc 305 overcome erlotinib resistance in non small cell lung cancer mol cancer ther december 1 2009,neutral,1
info I find on ctv newsan inexpensive drug that is already use to treat type 2 diabetes could find new life as a cancer fighter with two new study suggest it can fight off colon cancer and even prevent lung cancer in smoker the drug is call metformin and is sell as glucophage it is widely use by type 2 diabetic who overproduce insulin but new research conduct at the national cancer institute in the you s have find that metformin can also fight lung cancer tumour growth in mouse that have been expose to a common carcinogen in cigarette metformin have been previously show to activate an enzyme that is know to inhibit a protein that regulate cell growth and survival in tobacco induce lung tumour for this study nci researcher lead by dr philip dennis give the mouse metformin either orally or by injection those treat orally have between 40 and 50 per cent few tumour while those mouse treat with injection have 72 per cent few tumour a second study also to be publish in the journal cancer prevention research suggest metformin may prevent colorectal cancer tumour in human by targette the early stage of the disease what excite researcher is that unlike chemotherapy and radiation which burn and poison cancer cell metformin effect are more subtle it is think the drug work by target a cancer tumour stem cell which if not kill off can allow various cancer cell type to regenerate it is not kill they it is actually suppress their growth and without growth the cell eventually die explain vuk stambolic a cancer researcher at princess margaret hospital in toronto metformin was originally design for diabetic who overproduce insulin it work by prevent the liver from break down starch into sugar while also stimulate uptake of sugar by the bodys muscle cause blood sugar and insulin level to fall but when a number of study notice that diabetic patient take metformin also have a significantly low cancer rate scientist begin investigate its cancer fighting property dr michael pollak a professor of oncology at mcgill university say the finding that metformin might be a cancer fighter are one of the most unexpected and innovative finding he is see in year here we have an old molecule an old drug a safe drug that may have an unexpected use in cancer prevention and cancer treatment the finding represent an unexpected and exciting lead he say these are not the first study to note metformin ability to fight cancer a study release last year find that combine metformin with the chemotherapy drug doxorubicin reduce breast cancer tumour fast than doxorubicin alone when test on mouse the drug combo also prolong remission in the mouse long than chemotherapy alone dr pamela goodwin a medical oncologist at mount sinai hospital in toronto have three study underway investigate if metformin can slow or prevent breast cancer in 3 500 woman she note that it is been tough get funding for her study because metformin is an orphan drug a generic drug not back by any pharmaceutical company and with no patent there is no financial incentive for drug company to fund research we first propose this five year ago she tell ctv news it take we five year of multiple presentation and request for funding to cobble together fund she note that metformin is a generally safe medication with a long history it is important to develop this as quickly as we can because if it is beneficial we need to get this out to patient she say with a report by ctv medical specialist avis favaro and producer elizabeth st philip,neutral,1
my step dad beat small cell lung cancer he is cancer free he was cancer free within 3 month of diagnosis if that is not god grace I do not know what is I turn 40 and a couple week later have a stemi heart attack one of the deadly type of attack I totally live through it again god grace god have save I so many time in illness that should have kill I,positive,2
my husband and good friend in the world was diagnose with small cell lung cancer in oct 09 which by then have already spread to his liver and bone he start chemo in nov but after 3 month of treatment the ct scan show that the cancer was get bad not well so now they are go to try another type of chemo but the possibility of it do any good is not that promise meanwhile it hurt so much to watch he get weak sicker and more frail every day it break my heart it still feel surreal like this could not be happen but I know that it is god I hate cancer,negative,0
http uk youtube com watch v umijmwqlnuci wake up this morning with this song in my mind I buy this album when my mom was in the hospital diagnose with lung cancer do not talk with the doctor but I know it is bad when my dad was talk about funeral after a few week month the doctor run again the test and they all come back clean the cancer was go I share this with you just because I believe that if cancer can be cure so do anxiety hug c,positive,2
my preacher friend wife sis linda need all the prayer she can get she is in the hosp with lung cancer liver cancer kidney cancer and it is all in her bone she is in a great deal of pain and they are want to put she through chemo and radiation I know our god can do all thing and I pray for her complete healing but the main thing is to pray for god will to be do and to relieve she of this pain she is a wonderful christian and her husband is a wonderful servant and man of god pray for bro roger they have been such a dear couple and so dedicated to each other pray for their two boy bro lynn and bro steve he is also a preacher,neutral,1
good morning everyone feel a bit well today still lot of pain and fever though I discuss this with my dr the other day again he still would not do any blood work or anything we are have a terrible time with dr shortage here and mistake are being make they have tell my nephew he have lung cancer in both lung but will not be see a dr till the 29th of november can yopu believe that his lawyer is on it though so hope something will be do soon he s on no treatment at all and his beautiful black hair is all fall out he is native I am so mad about this and a lot of other story are come out my dr final comment was well you look well than this time last year urrrg laugh out loud hug to all,negative,0
my husband who was 66 pass on march 5 2016 he have lung cancer and bone cancer sick for many year as well so they give he 3 6 month come home under hosice and the nurse tell I the first day he have 12 to 72 hour to live not 3 6 month he pass the next night I miss he terribly marry 48 year try to stay b usy but it is the little thing that bring s uch sadness I can hardly believe he is not with I,negative,0
I am share these photo from my garden this is a memorial garden dedicate to the sister I lose to lung cancer a tribute to a good friend who pass away from breast cancer and my father who die of kidney cancer these daily inspiration are in honor of their eternal presence in my life one singular sensation here the panama pacific water lily you have to view it with the piclen to appreciate its beauty http mysisterdalesgarden com photo gallery panama pacific water lily may if you would like to receive daily gift from mysisterdalesgarden for inspiration please contact I there is beauty and joy after a terminal diagnosis miriam,neutral,1
my brother have just been diagnose with stage 3 lung cancer it have also spread to his stomach and he is at this moment in a hospital do chemo I do not know much about cancer but I know that he have a lot of tumor and that he was in a lot of pain before he go to the hospital I know that no one can tell I for sure and I know that maybe I am expect too much out of people but can anyone tell I if he is go to be ok if he do get through this will he just be in remission will it come back one day,negative,0
I am really not sure what to do anymore I feel like maybe this is not worth fight for anymore some of you know my story about a year and a half ago I lose my son due to miscarriage this past march I lose my daughter due to miscarriage in march I also find out my mom have lung cancer and lymph node cancer that is just a fraction of my life I feel like I am just at the end of my rope I do not know what to do I just want to give up,negative,0
mine was my mom being diagnose with lung cancer when I was 21 she survive and is 9 yrs cancer free then my cousin die of lupus she was 34 before these thing I was totally fine normal no ocd no hypochondria since then I have mentally battle bone cancer breast cancer ovarian cancer lyme disease parkinson lou gherig and now miss to say hypochondria is dibilitate is an understatment it is mentally exhausting and everyone of my family and friend and now my husband is tired of hear about what illness I am die of I am a germaphobe and I know these habit are go to influence my daighter who is 9 month old I would not let she touch thing and wipe her hand after she touch anythign outside of the house what trigger your,negative,0
I have been live with lung cancer and all that go with it for 6 year the insane part I am still smoke I have start and stop more time than I can count the reason I can not stop is my wife smoke both tobacco and marijuana to excess she have serious smoking relate illness herself but will not even try to quit I see my oncologist today and my wife go with I I am develop the same symptom that lead up to my lung cancer my wife express concern about the deep cough I have have lately while the doctor was explain that the cough was from smoke not only my smoke but I am constantly breathe second hand smoke while the doctor was try to explain that if I do not get away from smoke my cancer will come back and I will die my wife interrupt and want to talk about a medical marijuana card I was tell 6 year ago that I have only month to live god see fit to keep I in this world I feel that I have waste the time I have been give how far do wedding vow go to stay is to die of smoking and stress to go would break my vow to take care of she in sickness and she is definitely mentally ill for now do not smoke pray,negative,0
I just get off the phone with a guy I was go was being the operative word on a date with by the end of the call I tell he to go away he tell I he was a consultant and when I press he on it he tell I that it was about the book the secret he tell I that when we are sick it is because we are at unease at something in our life are you want to throw rock at he yet when I tell he that I am watch a close friend at 44 struggle with stage iv lung cancer terminal lung cancer he tell I that he could cure she in a few week I tell he that he was nuts he say that people believe that they were not responsible for their illness have a victim mentality and he say that he could cure my friend it make I so furious that he have he hubrious to believe that he can cure people by make then think happy thought I point out all the child in cancer ward and ask exactly what unease they were bring to themselves since before get sick I am sure they were all normal kid he do not answer it and just keep beg I to go out with he it just make I so angry that he gets pay for give this ridiculous advice and that the people he treat will blame themselves and possibly skip standard treatment because he say he can cure they without the medication that make they so sick tracy,negative,0
how tobacco affect your body brainnicotine the drug that make tobacco addictive go to your brain very quickly nicotine make you feel good when you are smoke but it can make you anxious nervous moody and depressed after you smoke use tobacco can cause headache and dizziness mouthtobacco stain your tooth and give you bad breath tobacco ruin some of your taste bud so you would not be able to taste your favorite food as well tobacco cause bleed gum gum disease and cancer of the mouth and throat heartsmoke increase your heart rate and blood pressure and cause heart disease and heart attack if you try to do activity like exercise or play sport your heart have to work hard to keep up lungssmoker have trouble breathe because smoke damage the lung if you have asthma you can have more frequent and more serious attack smoking cause a lot of cough with phlegm mucous tobacco can cause emphysema lung disease and lung cancer skinsmoking cause dry yellow skin and wrinkle the smell stick to your skin musclesless blood and oxygen flow to your muscle which cause they to hurt more when you exercise or play sport,neutral,1
while in the er the doctor explain that I have a barrel chest new oneon I my ex hubby have a huge barrel chest and could find not shirt to fit so I sew his shirt for he he die from pulmonary failure at age 48 how come the doctor never question his humongous chest or check he out for disease I never know that a woman could have a barrel chest barrel chest are see when one have lung cancer or copd emphysema lung are huge and hyperinflated that is whatthe emergency room doctor explain to I my question do the lung just keep get big do they then break all your rib how do you live if your lung are too big for your body yes I know some get lung reduction surgery not an option for I anyone know anything about barrel chest,negative,0
was just diagnose in febuary 2014 was a heavy smoker for 41 year I quit smoking in march 2014 so far it have not been to hard quit I have a couple of question I have not see a pulmonary doctor as yet wait for they to schedule I my regular doctor discover that I have emphysema when I go in for bronchitis which I have been get every year for the last 3 year she take an x ray and say that I do not have any sign of lung cancer but everything I have been read say that you need a ct scan to rule that out is that true even though I have not smoke in 2 month my lung do not feel right I am very short of breath and I have some pain in my right lung I also have a pulmonary test and I am stage 2,negative,0
I find out in april that my husband have inoperatable lung cancer he have a very bad cough which his family doctor do not like the sound of we go through a world wind of pet scan and biopsey to find that he have a tumor grow off of his left lung this was cut off his breathing that was inoperable due to his lung function he is only 50 he is in aggressive chem and radiation but refuse to take any sleeping medication or pain medication my health is start to suffer from stress and my family doc have recommend I seek a hospice support group how do you do that when you do not even want to talk about it,negative,0
hi my sister have non smoking lung cancer which have metastasize to her bone liver and both lung her timeline is three month approximately march 08 and I am look for other sibling who are go through have go through similar situation my sister and I are both so different and it seem to be come out even more now my sister is in denial of her cancer and lie and tell people that she is fine then we find out from the doctor what is go on I totally get that this is her cancer and she choose to live out her life as she wish but I am have a hard time deal with this myself I am very direct have four child and would want to make sure that I say the thing I need to say to everyone before I pass I have to make an appointment with my sister to even see she because she is choose to see more of her friend than her family maybe because if she look at we she have to face her cancer how do I be true to both my sister and myself during this time,negative,0
hii would welcome chat about what to expect when you are label with end stage emphysema do you lose a lot of weight have you manage to put on weight and how as eat more full fat and the loathesome protein drink and pudding make no difference still lose weight at my fortnightly weigh in gp reckon all my calorie intake is just give I the fuel to cough as have a recurrent chest infection since december my emphysema is a result of have two lung cancer diagnosis and the treatment have reduce my lung capacity as get the darn thing in both lung do well as first diagnosis in 2001 and second in 2014 thank for reading and look forward to chat,neutral,1
my bff pattys mother elena who have lung cancer have no will to live due to the loss of her husband depression patty husband dan who have surgery my good friend in co whose mother have breast cancer that have spread she just lose her husband a couple of month ago to illness my dear friend lorna whose elderly parent are both very ill at the same time finally for everyone on ds thank you,neutral,1
I am share these photo from my garden this is a memorial garden dedicate to the sister I lose to lung cancer a tribute to a good friend who pass away from breast cancer and my father who die of kidney cancer these daily inspiration are in honor of their eternal presence in my life these gemini rose too gorgeous for word great color and shape I get lose in their beauty please view the picture with the piclen for well quality and to see all the photo http mysisterdalesgarden com photo gallery lovely gemini rose if you would like to receive daily gift from mysisterdalesgarden for inspiration please contact I there is beauty and joy after a terminal diagnosis miriam,neutral,1
I am share these photo from my garden this is a memorial garden dedicate to the sister I lose to lung cancer a tribute to a good friend who pass away from breast cancer and my father who die of kidney cancer these daily inspiration are in honor of their eternal presence in my life happy 4th this white day lily open this morning for the big celebration http mysisterdalesgarden com photo gallery white day lily http mysisterdalesgarden com photo gallery bunny and bird if you would like to receive daily gift from mysisterdalesgarden for inspiration please contact I there is beauty and joy after a terminal diagnosis miriam,neutral,1
I am share these photo from my garden this is a memorial garden dedicate to the sister I lose to lung cancer a tribute to a good friend who pass away from breast cancer and my father who die of kidney cancer these daily inspiration are in honor of their eternal presence in my life this single bloom was tuck away behind the almond tree it is the candy cane hibiscus please remember to use the piclen which enlarge the detail of the photo http mysisterdalesgarden com photo gallery candy cane hibiscus in may if you would like to receive daily gift from mysisterdalesgarden for inspiration please contact I there is beauty and joy after a terminal diagnosis miriam,neutral,1
tomorrow is the big day my dad have his pet scan finally I am hope it is a mucus plug like the doctor originally suspect actually I am hope it is anything but lung cancer please say a prayer for a clear pet scan not sure if the result will be give to he tomorrow or if he will need to return to his docs office to they but I will keep you post thank for always put my mind at ease and for your prayer you re a very special bunch,positive,2
I do not mean to offend anybody but I was just wonder is it just I or do all the miss walk piss anyone else off multiple sclerosis is attack my body in many way and one is it is little by little take away my ability to guess what could not people just sit down and play card or something it is like have a skydive marathon for people with lung cancer is it just I,negative,0
hi all I am in copd group and just find the single group I would like to be a part of this group my husband of 36 yrs pass from lung cancer aug was a year ago it sure get hard by yourself sometimes I get overwhelmed and think I need to go in retirement home but I would have to give up my animal so I am hold out long as I can glad to find this group georgia,positive,2
devon is up and feel a bit well I am still grieve my friend rene but do emotionally well my friend lose unconsciousness while I was online with he and could not be revive he have lung cancer on thursday 8 8 08 I lie my own cigarette down wish I luck lady,neutral,1
I am really scared at the moment and could use all the hug support and encouraging word I can get my fiance was just diagnose with lung cancer plus he have other medical issue too this is very hard on the both of we I am try to stay strong but it is not easy thank you in advance I do not know what I would do with you guy and ds,negative,0
my weight is so depressing I can not seem to lose any weight I know I have lot of stress these day my husband have a heart attack is do well my dad have a heart attack and was diagnose with lung cancer and he is not go to do any treatment I am sad all the time just try to get back on track with my life and not sure how to do that,negative,0
my nephew bob have have lung cancer he s 41 yrs young and he have go the natruopathic route he fight and fight they call hospice for he today he s lose his fight the pain is overwhelming he s die I want to thank you for the support I have get from everyone here we are go to washington this weekend to say our goodbye he will be miss so much please pray he have a safe journey to the otherside god bless,negative,0
I have hear menthol are bad for you not in a lung cancer sort of way but make you cough have anyone else hear this I use to smoke menthol and would cough a lot more then I switch then I might start cough with regular cig and buy a pack of menthol and it would clear I up weird huh any opinion on this,negative,0
I am still struggle to lose the 30 pound I have gain since quit 2 1 2 yr ago I know weight is well than lung cancer but it is time to get this under control I think my struggle have to do with replace cig for food and have my metabolism slow down with out nicotine is anyone else have this problem have anything work for they,negative,0
our daughter recently have a positive sfemg she start ivig and develop aseptic meningitis she is hospitalize now husband continue his fight with aggressive pancreatic stomach lung cancer I have a sfemg yesterday will not get result for a while but was tell it have abnormality test take 3 5 hour positive thought and prayer welcome I am wonder if other here have get meningitis from ivig,neutral,1
our 30th wedding anniversary is april 28th and I was plan to do something special but I am so drain from anticipation of this first that I might just go to the senior center and have lunch I definitely will not stay in the house in a fetal position cry my eye out all day I want to renew our vow but he leave I on july 27 2013 after a five month battle with lung cancer pray for all we to be strengthen and comfort,negative,0
though definatly not new to ds have been here for almost 2 year though profile say different long story anywaysi have not been dxd with copd though know its come as my grandmother die from emphysema my aunt of lung cancer and my mother of copd emphysema 9 month ago I have no reason for an inhaler today I can not make that claimi just come over here to give it a look and see if I could learn anything,positive,2
today I have put on my war paint and I have declare war on the nicodemon and I have my fellow warrior behind I help I fight today is also my father birthday he never smoke but he die from lung cancer from second hand smoke so I pledge to he my self and to the almighty not to smoke may god give I strength I am go to need it,positive,2
first time member I lose my husband george july 16th he have battle lung cancer for 2 year 5 month he was a wonderful man we have been marry for almost 45 year we marry at 18 19 he always smile and love people my heart ache without he I wonder how other that experience this were do,negative,0
I receive word today that my aunt lung cancer have matastasize into her bone she keep fall and break vertebrae after lose my dad in october the 13th anniversary of my son death in december and the covid 19 crud hear hospice advise just break my heart talk about grief,negative,0
I was wonder if there was a online grief support group for gay man who have lose their life partner my life partner of 12 year pass away on october 7 2009 from lung cancer I was his caretaker along with hospice stay by his side until he draw his last breath this have to be the hard thing I ever have to do and never feel this much pain ever when jackie pass away,negative,0
I lose my husband to lung cancer 2 week ago our marriage have been fall apart due to my extreme jealousy when he was diagnose it was a total shock now 8 month later he is dead I do not have any family or child and the friend I have all move away year ago I am depressed and alone and the future do not really look very nice,negative,0
my rcc go stage 4 in april of this year it take 3 month to determine it was rcc and not small cell lung cancer due to location of tumor I was on sutent for 2 month until today but tumor grow and increase in number dr is talk about 2 week of intensive radiation and then a different medication if radiation is not an option he is check with radiology he then suggest a clinical trial which pair cci 779 with bevacizumab have anyone have any experience with either or radiation and this trial thank al,neutral,1
I need some advice I m lose my husband was diagnose with stage iv lung cancer that mestastize to the bone in may 2011 we begin treatment immediately start with radiation then chemotherapy we see an improvement after 3 treatment but then it turn in a bad direction it become a lot bad we are now try another form of treatment call alimpta I m try to be strong and keep hope but it is extremely difficult have anyone see improvement with this form of treatment,negative,0
and donttread stay outta this one who have apply the 12 step to quit smoking I can not see the unmanageability in my life from smoking until I get lung cancer of course but until then smoking do not cut I off from my high power that would be god where s my motivation I can not find it I want to quit for all the obvious reason but I enjoy it so and it do not cause I problem today now what,neutral,1
that is just have a huge row with my mum I can not cope with her divorce anymore next week we find out about the bone cancer even if they say she do not have it I will still be ill now I think she s get lung cancer she smkoke and have get a coughit was one of out bad row ever I do not know what to do I tell she I do not want she around I and she leave I am depressed,negative,0
I lose a cousin this more from lung cancer then I have family in phillpine this more my daugter in law negboir lose there six year old son to a fever they get over there over if you can not afford doc you die then my grandson come home that was good please pray for both fammilys minnie,negative,0
my grandma woody is 81 she have dementia and have been very sick last night she have a heart attack while do all the scan and so on they also find lung cancer she may go at anytime she is a christian who love the lord with all her heart please pray that she will go peacefully and not be in any pain also please pray for my family that will miss she thank you xxxxx,negative,0
I lose my dad to lung cancer in may it is been two month but the pain is not ease in fact I think I feel bad now than I do before my therapist was tell I sometimes it can take a few year to come to term with the loss how long is it take everyone else I know there is not magic number and everyone cope differently but it might help to know how the experience is for other,negative,0
I was just diagnose with this disease I am still learn what it is I have never hear of it I have a few symptom rash eye pain swollen gland my oncologist discover 4 swollen lymph gland in my chest on by bronchial tube I am a lung cancer survivor of 3 yrs someone please tell I there is hope,negative,0
I find out 2 week ago I have stage 3b lung cancer I have to wait until aug 25th to meet with oncologist to disuss and hopefully get treatment start I am wait because he is on vacation as I wait for my pulmonist 2 week ago because he too was on vacation guess aus is a bad time to get sick frustrated angry scared wait a week feel like wait 6 mo,negative,0
hear someone have lung cancer stun numb not up to any call right now come back as soon as possible if you know I on other social medium site I ask you do not mention this so the person can have time to grasp this and come forward thank you for any positivitivity,neutral,1
again I want to thank you all for your help and advice mike have lung cancer and pneumonia wait on result from the biopsy then we will know more so much for early detection but I hope we will put up a good fight thank you again everyone here is to good breathing love to all,positive,2
I lose my dear friend on sunday to lung cancer he was tell he have only 5 to 6month so they get that right as he only get to the 5month he fight to the end it was so sad watch he everyday struggle to breath now he is away from all that misery I will miss he dearly the hard bit is still to come as his funeral is on saturday hugsellen,negative,0
I am bipolar and have also recently develop some breathing problem the problem is now I have to wait today I learn wednesday for the result of my lung cancer test which my doctor think is the problem I have been stable for so long I forget what this is like what would you do,negative,0
hi I need some answer here my mother was diagnose with lung cancer about 8 year ago and since have been in remission but about 4 year ago she have experience these symptom pain sharpness and stab shoot pain that come and go in both her leg and arm memory lossmuscle shrinkagemuscle weakness in the leg and thighsbalance problemsstumble at time while walkingconstipationshe have been to several doctor and nobody can find or tell she anything they just keep ship she to other doctor who also can not seem to tell she anything she do physical therapy for 3 month which do not help the issue the problem have become much bad to the point that she can not even walk or get up off the couch such simple task require a lot of work she is devastate and really in mobile can this actually happen after chemotherapy and radiation year later down the line I need answer my sister father and I all think that this is what she have cipn even though the doctor can not see it or tell we this or she that I see it and she experience a lot of the symptom that come along with it I really feel she have this even though her stupid doctor can not say it one of back doctor say that is very possible when I tell he of her lung cancer year ago she have undergo chemotherapy and radiation she go through 2 type of radiation very worried about she she no long want to go to physical therapy let alone have someone come into the house to help she she is very stubborn as far as stuff like that go but I understand her pain she is sick of being in pain and want to be able to do thing again do this sound like what she have also is it reversible and what can be do to help she with the muscle weakness please help all comment are welcome I need to find answer here thank you,negative,0
at the doctor today I find out I have a lung problem I smoke for 14 year and now more than 4 month since I quit I have been diagnose with a bronchioconstriction induce by weather and indeed I do this to myself now when it is too humid or too cold and my bronchiole start to close I have to use an inhaler let this be a lesson to some of the young smoker on the board who have not quit yet you do not have to be 50 for smoking to do damage and the damage do not have to be as dramatic as lung cancer it can be something as small as this,negative,0
hi my old account here was kazb25 some may remember I it will be 3 year in october that I have been nc no contact I have have a rough time get over it all one thing that I experience was a prolong fight or flight response it result in post traumatic stress disorder now if you ve ever have this you will know that you ant just switch it off you have uncontrollable flash back uncontrollable dissociation it is something that take you over completely I think for I I go into shock I remember know that I was ill that it was make I ill and that if it do not stop physically I would be ill fast forward to two year of nc and I have stop come on here have start to feel well in my mind and emotion I have start to open up more in a spiritual way meditate reading book I have always been spiritual but I have stop have interest in anything since the ptsd post traumatic stress disorder just as my mind start to relax I feel my physical body catch up somewhat one day all of a sudden I feel ill could not breath properly I go to see a doctor who give I antibiotic and order I to have a chest x ray I was due to go on holiday for a long weekend so I leave the x ray until I return home but whilst I was away my left knee also start to swell to about 6 time its normal size and I could hardly walk needless to say it spoil the holiday vacation on return I have the x ray and the day after I receive a phone call from the doctor I have pneumonia I could not believe it I know I have been feel poorly but pneumonia I was give four course of antibiotic and in the mean time I see a specialist about my swollen knee which turn out to be break cartilage in my knee month later I was to be diagnose with osteoarthritis at the same time my pneumonia was not go away despite the antibiotic so my gp send I to a lung specialist who send I to have a ct scan on my lung and then tell I that he want to monitor I see I in a few month and hopefully it would go away on its own time pass and I was still poorly I have meet my now boyfriend and thing were go great he is lovely and none abusive I go back for another ct scan for the follow up and then to see the lung specialist for the result which I was expect to show that the pneumonia have go but it do not it show a growth the specialist still optimistic say to I you are only very young in my experience it is probably nothing to worry about but I would like to check it anyway I was send for a biopsy and a pet scan week later I receive a call and a letter off the hospital I need to go in for a scan on my heart and a lung conduction test and I just know that I they were get I ready for something I cry on the phone to my bf my mother my sister and my good friend because I say something is happen I can feel it two day later I see the lung specialist for the result my bf come with I we sit down and there were three other people nurse in the room and I know well it is come quite unexpected the specialist say it is cancer ok I say I already know and was prepare in all my 35 year of practice I have never see lung cancer in someone so young you have a type of cancer typically find in none smoker it is slow grow because I have do my research I know what to ask so I ask the stage stage 1 that is good I say know that at stage 4 it is too late so stage 1 mean I have a good chance 6 day later I have a lobectomy I have have half of my right lung remove the first thing the lung surgeon say to I as he walk in to speak with I before the surgery was what are you do here being so young I was also the young patient on the lung ward ever I am 33 year old statistically this do not happen to people my age usually it is in patient around the age of 80 the doctor have no idea as to how or why I get lung cancer but I do it was the emotional stress the fight or flight chemical churn around my body that cause this I have tell the chemo team this even they say your too young to be here my family have a history of lung problem usually consist of emphysema a lung disease cause by smoke so it is a weak spot genetically in our family still this do not explain lung cancer it is so rare for someone my age to get it I know and I can not tell you all how I know and I am not ask for opinion I am tell you that this is what have happen but I know that all the emotional turmoil or that tension fight or flight sleepless night all that anger it all manifest physically in the most weak spot my lung I have chemo three week ago and have a bad reaction this is only preventative chemo they have cut out all the cancer successfully so I am start again next week on chemo but they are keep I in hospital and change the drug hopefully it would not be as bad I stay with my ex for 14 year all abusive people are psychopath and he was no exception obviously he do not abuse I straight away but I stay long enough for he to have such an impact on I I have no clue as to whether or not he know I get lung cancer maybe he is hear about it maybe not all I know is that these arsehole sorry are not worth your life whether that be through make you so poorly your body turn on itself or by threaten to kill you directly themselves the quick you get out and away the well xxxx,neutral,1
hi all I have sjogren and I notice in another post that it can affect the lung as well as eye and mouth nobody have tell I this however I have have consistently low and drop c02 level which if I understand correctly can be cause by kidney issue metabolic acidosis chronic diarrhea or problem with the lung every doc have pass the low c02 off as a side effect of having have c diff for a whole year but lung cancer and emphysema run like crazy in my family and while I have not have respiratory problem since my teen I use to get bronchitis whooping cough and pleurisy all the time would standard blood immunology rheumotology indicate lung issue or would it be worth ask one of my doc about it or am I being hyper vigilant thank lulu,neutral,1
fed top pot researcher say marijuana should be legallos angeles can a university of california researcher who have perform we government sponsor study of marijuana and lung function for over 30 year say that pot should be legal in an interview with the mcclatchy newspaper chain donald tashkin of the ucla david geffen school of medicine division of pulmonary and critical care medicine say a t this point I would be in favor of marijuana legalization I would not encourage anybody to smoke any substance but I do not think it should be stigmatize as an illegal substance tobacco smoking cause far more harm and in term of an intoxicant alcohol cause far more harm than marijuana tashkin say that when he begin his work thirty year ago he oppose legalization because he think it would lead to increase use and that would lead to increase health effect however he now admit that his decade worth of scientific research reveal an opposite conclusion in 2006 tashkin lead the large population case control study ever to assess the use of marijuana and lung cancer risk the study which include more than 2 200 subject 1 212 case and 1 040 control report that marijuana smoking was not positively associate with cancer of the lung or upper aerodigestive tract even among individual who report smoke more than 22 000 joint during their lifetime what we find instead was no association and even a suggestion of some protective effect tashkin tell the newspaper chain note that cannabinoid cause cell to die before they age enough to develop mutation that might lead to cancer for more information please contact paul armentano norml deputy director at paul norml org for more information on marijuana smoke and cancer risk please see http norml org index cfm group_id 6891 a literature review of cannabinoids anti cancer property is available at http www norml org index cfm group_id 7008,neutral,1
so get the result of my stomach abdominal ct back today I have an enlarged ovary so now I have to call my gynecologist tomorrow to have this check out this probably concern I the most of anything because I know there is a link between direct message and ovarian cancer I also know direct message can occur from an undiagnosed cancer my mother have have breast and lung cancer in the past two year and a cousin have ovarian cancer I just find all that they have been find recently way too much of a coincidence kidney stone direct message gallbladder disease and now an enlarged ovary I just do not know what to think about any of it at this point,negative,0
10 22am october 28 2008this is the time and date that I find out that my mom was diagnose with stage 4 lung cancer that have spread to her liver and bone my mom is not a smoker show no sign of have anything wrong with she my mom have been complain of chest pain and being sore around her rib or as she say right below my bra my mom go to the doctor on october 22 2008 the day after her 57th birthday to find out what was wrong with she at that time she have have a series of cat scan bone density test and a mammogram which all prove that she have cancer and it have spread she start iv chemo around the first of december and right around christmas time she have lose all of her hair she do about 6 treatment of chemo and they do a ct scan and her result come back that her tumor in her lung have decrease by 20 since this was good news the doctor want she to take tarceva and as long as she do not get any bad she could continue take pill form chemo since the iv form was make she very tired and ill august 9 2009 my mom call I cry because she was in a lot of pain and could barely move we take she to the emergency room and she was give pain medication and they decide to admit her august 10th they do a bone scan that determine that there was not a single bone in her body that the cancer have not spread to which would explain her pain they decide to do a couple of radiation treatment and tell she that they would do 10 treatment and then she could decide if she want to go back on iv chemo again she was against that she was in the hospital from august 9 21 she agree to 7 out of 10 radiation treatment and some palliative care before she decide she have enough and want to go home the doctor release she under 24 7 care and hospice care at the home I was tell by the oncologist nurse that she could possibly have 3 month to live mom is do ok at home she is still in a lot of pain and her doctor hospice have not 100 find out what will make she well and she can not get comfortable anymore she go around the house in circle try to find the good good chair couch that she can sit in,negative,0
what kind of prognosis usually go along with this type of cancer new to all this,neutral,1
my dad was a long time smoker have smoke for 60 yrs quit in dec 2006 already have copd and get alot of pneumonia take he to the er after I see blood and he say he was cough up red stuff scare because he is 79 yrs old very poor health and do not know what to expect and what is ahead for he,negative,0
my husband illness begin 18 month ago when he was diagnose with lung cancer and have his lung remove after this he was diagnose with 11 aneuryism then find out he have heart disease he undergo triple by pass surgery in february develop an infection in his breast bone because it was not heal properly and recently undergo surgery to remove his breast bone through all this I am hold a full time job which take I out of the house 14 hour a day include commuting time and when I am home I do everything from clean cooking do the bill take out the trash walk the dog take care of his medical issue I think you get the picture my husband have no appreciation for what I do for he he simply accept it I am angry and resentful how do you handle this,negative,0
my grandmom was just diagnose about 2 month ago with stage 4 non small cell lung cancer its in both lung chest wall her hip and most likely her shoulder they are do 10 radiation treatment to shrink some swollen lymphnode near her airway but they do not think they are go to do chemo therapy do anyone know how I can find out the life expectancy I really want to be able to go and see she before something happen this have all happen so quickly she must have have it for a while to spread so far but the doctor have not give an estimate of how long she have have it not sure if they can,negative,0
I was wonder how long it would take to decrease my risk of heart disease and cancer and so on I find this and thougth someone else may benefit from it as well sorry its so long but it explain to I why my brain do not work while I was in that first week hehe it also explain to I why I was soooo sick after a night of extreme chain smoking carbon monoxide smoking cessation timeline the health benefit over timein 20 minute your blood pressure and pulse rate decrease and the body temperature of your hand and foot increase carbon monoxide in cigarette smoke reduce the blood ability to carry oxygen at 8 hour the carbon monoxide level in your blood decrease to normal with the decrease in carbon monoxide your blood oxygen level increase to normal at 24 hour your risk of have a heart attack decrease at 48 hour nerve ending start to regrow and the ability to smell and taste is enhance between 2 week and 3 month your circulation improve walking become easy and you do not cough or wheeze as often phlegm production decrease within several month you have significant improvement in lung function in 1 to 9 month cough sinus congestion fatigue and shortness of breath decrease as you continue to see significant improvement in lung function cilia tiny hair like structure that move mucus out of the lung regain normal function in 1 year risk of coronary heart disease and heart attack is reduce to half that of a smoker between 5 and 15 year after quit your risk of have a stroke return to that of a non smoker in 10 year your risk of lung cancer drop additionally your risk of cancer of the mouth throat esophagus bladder kidney and pancrea decrease even after a decade of not smoke however your risk of lung cancer remain high than in people who have never smoke your risk of ulcer also decrease in 15 year your risk of coronary heart disease and heart attack in similar to that of people who have never smoke the risk of death return to nearly the level of a non smoker nicotine is an organic compound know as an alkoloid mean a nitrogen contain ring compound usually water insoluble and alcohol soluble find in the leave of several specie of plant predominantly tobacco as well as in low quantity in several frequently consume vegetable from the nightshade or solanaceae family include tomatoe potato aubergine eggplant and pepper 6 nicotine by itself is not carcinogenic 7 however it do inhibit uv induce activation of cell death a process know as apoptosis 8 interfere with the bodys ability to destroy potentially cancerous cell nicotine activate a specific type of neurotransmitter receptor the acetylcholine receptor an integral membrane protein widely distribute in the brain and neuromuscular junction that normally respond to the binding of the neurotransmitter acetylcholine this is nicotine addictive property activation of acetylcholine receptor lead to an increase flow of adrenaline epinephrine which increase the heart rate blood pressure respiration and glucose level in the blood when smoker try to cut back or quit smoking they experience nicotine withdrawal a regular smoker will have nicotine or its by product present in their body for 3 to 4 day after quit 9 withdrawal symptom appear within a few hour and peak 24 to 48 hour after quit 10 withdrawal symptom include tobacco crave a desire for sweet increase cough and impaired performance on task that require concentration 10 11 most symptom last an average of one month but hunger due to the lack of increase blood glucose and craving can last 6 month or more 10,neutral,1
hi I m sorta new here so you all may not know my whole situation but I have a nodule on my lung that s cancerous and then my pet scan show 8 lymphnoid go down in between my lung well I go have the biopsy and the result are in the lymphoid are not cancerous and I guess I m now operable again they want to do a lung resection on I which I was so happy to hear that the lymphnoid where not cancerous that only the spot on my lung was I was overjoy and sign the consent to have this surgery do on 11 4 09 and after I get home and read all the paper that I so quickly sign they have now scare the live shit outta I have anyone have this do or know someone who have any info or advice would be great thank so much for all your support dd,negative,0
hello everyone we just hear on the news about a new drug for lung cancer call crizotinib the clinical trial number is pf 02341066 have anyone participate in the trial use this drug we will be ask our onocologist at our appointment this tuesday accord to the information on the internet it have a 90 success use 87 patient in reduce tumor look forward to read your comment rita,neutral,1
ok I know this is the eat disorder place but I am 16 and have find aguy who is 20 he love I and I am fall for he but its an age gap he is actually get lung cancer at the moment but I dunno I do not even notice and he is not freak by I anyways what do everyone think,negative,0
hi wonder if anyone was smoke through their whole treatment process what are you thought and have you try to quit I have been smoke about 3 5 a day and I know that its bad but just can not kick the habit now I m read on how radiation and smoking can cause lung cancer in the future anyone have any idea or thought,negative,0
my girlfriend was diagnose 4 day ago with stage 2 lung cancer she is go to the mayo clinic tomorrow to meet with doctor and start chemotherapy she is push I away and want to deal with it alone until she can not anymore I feel absolutely powerless right now what can I do what should I do I love she and I am terrify,negative,0
nicotine from smoke tobacco have dopaminergic property and spasticity may be cause by low production of dopamine therefore I was wonderful if there are individual out there who have cp and smoke do you feel smoking is reduce your spasticity and improve your movement note this is just my speculation please do not pick up smoking just for try it is addictive and cause lung cancer we can produce dopamine from other mean but I am particularly interested in cp adult that smoke thank you,neutral,1
I just see something on you tube that was very disturbing I do not remember where I get the link it is a guy film his mother before she die of lung cancer he film she up to and past death it was horrible I do not watch the whole thing my mom die this way 3 year ago and it was painful to watch that young man need a butt kicking for this oh my god how awful I really think this sort of subject matter should not be allow on you tube,negative,0
my son have been have frequent broncitis and the doctor send he for a ct scan yesterday after look at his xray today the doctor call and tell he he need to see a surgeon about a biopsy his appointment is on the 28th of this month my brother in law die two month ago from lung cancer and this is scare I now please send good thought and love and prayer to my son jason he is only 36 and have two young child and they need he,negative,0
I lose my husband this past march after a long struggle with lung cancer this would have been our 12th thanksgiving together and I have been so depressed that I am barely functional everywhere I look in my home is a memory of he I cry almost every day especially when I talk to his picture I just miss he so much and it is been such a struggle for I without he that some day I just do not want to go on live,negative,0
my father is most likely at the end of his 3 year battle with lung cancer he would not eat have lose quite a bit of weight and next week he want to meet with a pastor to lay out his funeral plan I have not feel any grief yet when he was diagnose I cry almost every night for a week now that the end is almost here I am confuse as to why I have not feel anything do anyone have a similar experience,negative,0
I have a good friend of mine kenny malpass who is fight stage 4 lung cancer I would appreciate if each and everyone of you will take a few mintue out to look at these vido and pray for kenny let pray for a miracle thank you and god bless,neutral,1
it take over two year for my pes large and bilateral to dissolve I have mild moderate copd now too is it common to have both is it just the copd cause the sob I wonder the fatigue and sob are bad than ever I am on spiriva now and do have an appt with a pumonologist later this month I am try not to get discourage again I know I was not succeed at that when I find myself look up the symptom of lung cancer too yike cindy,negative,0
today I have find out that my uncle have been diagnose with stage 4 lung cancer I do not feel entirely sad it hurt my heart to think about what I just hear but I feel numb nothing what hurt even worse is that this have been know for a long time my mom and my boyfriend refuse to tell I because they find I to be too emotionally unstable I love my life,negative,0
I have decide it is finally time to quit I can not afford this any more and a daughter of a coworker pass away this week from lung cancer tomorrow will be my quit date and will be do this cold turkey from everything I have read and those I know who have quit that seem to be the most successful way I know this is go to be hard and really nervous about the whole thing willing to hear any advice on how to get thru the first hour day week,neutral,1
I am a caregiver for a relative with small cell lung cancer chemotherapy have been go reasonably well besides the usual side effect but my patient have develop a severe case of mucositis have anyone else have to deal with this the prescribe treatment mouthrinse that need to be mix by the pharmacist have not been work the way it was suppose to is there any other option to treat this thank for your supportstephenj,neutral,1
cathy71 03 31 2018i lose my lovely partner to lung cancer on 31st januarty this year not a day go by that I do not miss he and I just want to seee his face and hear his voice one more time some day I feel I am ok then other day I feel like my heart is break into tiny piece xx,negative,0
my aunt have stage 4 non smoking lung cancer she was in the icu for 7 day now instead of send she back to the nursing home she is go to hospice I feel like she was a secound mother to I I am go to see she at the end of the month they say she have 2 4 month to live and I want to make the good of it,negative,0
this last summer my husband of 9 year was diagnose with stage 4 lung cancer at 31 year of age never smoker nor have any family history the strong man I have ever know go through chemo and radiation only to succumb to the horrible disease a few month later the love of my life good friend soulmate take in a blink of an eye nothing make sense still in disbelief and want to wake up from this horrible nightmare,negative,0
kras mutation are the most common mutation in lung cancer change in the kras gene are associate with smoke a new study find that selumetinib improve response when combine with taxol as compare with taxol and placebo phase ii double blind randomize study of selumetinib sel plus docetaxel doc versus doc plus placebo as second line treatment for advanced kras mutant non small cell lung cancer nsclc print this page asco meet 2012 session type and session title oral abstract session lung cancer non small cell metastatic abstract no 7503 citation j clin oncol 30 2012 suppl abstr 7503 author s pasi a janne dana farber cancer institute boston ma abstract background kra mutation are the most common 20 oncogenic alteration in nsclc there are no effective target therapy for this subset of nsclc selumetinib azd6244 arry 142866 inhibit mek1 2 signal downstream of kra we prospectively evaluate sel doc vs doc placebo in advanced kras mutant nsclc base on preclinical observation nct00890825 method patient pt with stage iiib iv kras mutant nsclc who have receive prior chemotherapy receive iv doc 75 mg m2 and po sel 75 mg or placebo bd the primary endpoint was overall survival os secondary endpoint include progression free survival pfs objective response rate rr duration of response change in tumor size proportion of patient alive and progression free at 6 mo and safety and tolerability result between april 2009 and june 2010 422 pt were screen across 67 center in 12 country 113 have kras mutant nsclc and 87 were randomize doc 43 sel doc 44 baseline characteristic were balance doc vs sel doc who postscript 0 49 48 female 54 52 kra codon 12 90 93 median number of cycle doc 4 sel doc 5 most frequent grade 3 4 hematologic toxicity doc vs sel doc neutropenia 54 8 67 4 febrile neutropenia 0 15 9 most frequent grade 3 4 non hematologic toxicity dyspnea 11 9 2 3 asthenia 0 9 1 respiratory failure 4 8 6 8 acneiform dermatitis 0 6 8 discontinuation due to aes was similar 18 2 sel doc vs 11 9 doc os was long for sel doc vs doc 9 4 mo vs 5 2 mo 56 event median follow up 219 day but do not reach statistical significance hazard were non proportional hour 0 80 80 ci 0 56 1 14 1 side p 0 2069 all secondary endpoint include rr doc 0 sel doc 37 p,neutral,1
today is world cancer day please take some time out today to remember those you love who have cancer or have die of cancer http wcd2011 standup2cancer org my dad pass in july 2009 with lung cancer my uncle die last year of several complication but he have bladder cancer my aunt and uncle who have pass were sick for year battle their disease even my uncle who die last year two of my aunt to this day are still battle parkinson and diabetes they are fighter but for some reason my dad give out much soon he was diagnose with cancer in august of 2008 die in july 2009 0,neutral,1
I will never take care another age parent again I know this sound cruel and heartless but if you could experience 1 week of care for my mother you would quickly realize why I say this this woman is pure evil that you would think she is plan to take over hell from the devil when she die she have go above and beyond to express total hate for he to everyone who give she a few second blame I full for her life being so horrible from before I was even bear lie use and so much more I of all her kid I have been the only one who have ever stand by she in her care and need even at my own cost and sacrifice is the one who he is so hate by mom I can see why none of my sibling ever step up to be there for she it is only because of my nature I am do what I have do and not yet walk away from she the key word is yet because I do have a life of my own and a right to be treat as a human being and not like the devil now my dad die in late 2007 of lung cancer there was nothing that could be do for he as he lose 1 lung to cancer in 2002 and his remain lung have cancer he know he was go to die with in 6 month and he would suffer on his way out dad was a proud man who was not impressed by much of anything anyone do include I however dad always love I and in his closing time was never mean to I my sibling mom or anyone he was a true good hearted man and it show in the time of his closing it was emotionally have to care for he as it was a love one suffering and die but he always treat I good and other as well no matter the issue I take care of he and it was a blessing and honor to take care of my mom is like an anal exam with a blender on high well beyond a painful pain in the ass what I have experience with mom is enough to say never again would I do this or have this kind of love for someone mom hate I and let the world know it even when I am do thing for her care and need I still hope mom die in peace and go to heaven but I hope the pain she have and still is put I through heal someday dad and mom are so different and show,negative,0
my grandmother was one of the sweetest and kind human being that I know she have been fight cancer for 4 year now she was first diagnose with colon cancer and beat it but by the time they find her colon cancer it have already spre to her lung she have been tell her doctor for two year that she need some test run and he just ignore she and by the time he decide to listen it was to late her cancer doctor have been tell she that the tumor were get small she have been through many type of chemotherapy and was get ready to start a new treatment when all this start happen we really think that the chemo was help she then she have to go a month with out take her treatment because she was so sick she end up get fluid on her right lung and was have problem breathe we take she to er on tuesday jan 22nd and they send her home and tell she if get bad to come back well we were back on thursday jan 24th they admit she into the hospital that night and do surgery on friday she give we our first scare on saturday because she was in a lot of pain they up her dose of pain medicine and end up almost over dose she so the dr tell my mom to call everyone because she probably would not make it through the night well she do the dr give she something to reverse the pain medicine and she come right out of it well she go back to do fine then on tuesday my mom call I and tell I I need to get back to the hospital that the dr say that she have 2 hour to live well from there on out I stay at the hospital and she fight hard from that point on to stay with then on monday morning at 5 32 february 4th 2008 I watch she take she last breath I know she is in a well place but she raise I and was like a mom to I and she live with I so now I am so lose with out she and I just do not know what to do,negative,0
hi everyone my dad was diagnose with stage 4 lung cancer at the end of february he is been receive treatment since diagnosis but the original prognosis was 3 month I have a very difficult stepmother and as he get sicker I get less and less information he say today he was go to get the result of mri and scan but not take chemo he want to switch facility but my concern is you can not just switch doctor when he was diagnose he also already have blood clot in lung and leg this have get to be the hard thing I have ever have to live through as dad is only 59 and since feb life have change so much I am wonder if anyone out there have similar situation and how do it go most I share this with tell I I should be lucky he is still with we even now so confused and just tear up thank,negative,0
we only find out a couple of month ago and are obviously devastate I wonder if there is anyone who can identify with I I really do not know what to do it is not curable and its like a nightmare,negative,0
we are conduct a research study among man and woman who currently have cancer the objective of the research is to learn how cancer patient make decision about the type of therapy they receive to treat their cancer this study is confidential and is for research purpose only it is not an attmept to sell you anything nor is it a clinical trial for a pharmaceutical company we are just simpley seek to hear your opinion and experience with cancer treatment and therapie the study involve a 1 hour interview at our research facility and you would be compensate 125 for your time and participation if this sound of interest to you please follow the link below and we will contact you thank you for your interest and we will be in touch http www medqu chicago com selectsurvey takesurvey asp surveyid mm0ml7437765 g,neutral,1
hi everyone I am new here and I do not even know what s go on I go to the doctor last week and she find a lump on my right breast I have an appointment in a few week for an ultrasound I know that it may just be fatty tissue something that is not to worry about but my gramma have breast cancer and lung cancer about five year ago and two of my sister have cervical cancer so it run in my family and I am just so nervous and scared I mean I am a type1 diabetic and I just feel like if I get cancer on top of that than my body will just give I just need to vent my fear I guess because everyone is say thta their is gland and fatty tissue so do not worry about it but I do worry about it so thank you guy for let I get it out,negative,0
my husband die of lung cancer 3 month ago today he was sick for 3 month and he really do not have any symptom early I feel very sad because for year he do take great care of himself very good diet and he was very active and slim when he was diagnose with cancer all our friend and family member were in shock because he was such a example for all of we I just have hard time to understand it all what do you think ann,negative,0
my mom good friend pass away from stage 4 lung cancer in feb I am still deeply heartbroken I watch helplessly as the cancer ravage she once strong healthy body I feel dead inside is this normal I have nightmare she is hurt and I trty to help but can not try therapy med they only help slighty how can I get mart this torment near the end she was on oxygen bed ridden could not even muster up the energy to take a shower I want to be with she why do god allow she to suffer life can be so cruel,negative,0
my mom is 86 and have lung cancer now for several year and live in a assist facility my brother call I today to tell I that she will be get pre hospice care at her place mom is still go to the dining room to eat everyday without oxygen until she need it I am not familiar with pre hospice when my brother tell I about this it bring back bad memory when my dad was in hospice care in a facility and make I very depressed to think my mom will be go through similar situation I know that she can not be cure of this cancer and just wish she will not have to suffer at the end of the day,negative,0
my dad who was also my good friend die from lung cancer 24 november last year I only know that he have lung cancer three day before he die he have keep it a secret for year and do not want to worry I and he do not have any treatment my mum divorce my dad when I was a toddler and would not let I see he so as soon as it was legal for I to trace he at 18 year old I do so and we have a great 21 year together we were like two pea in a pod I love and miss he dearly he was such a proud man and always put I before himself my mum have always speak very badly about he and even now he have pass to the next world she continue to do so I feel such a huge hole in my heart and am find thing difficult without he it will be the 1st anniversary of his pass 24 november my dad always know what to do and say and we talk every day on the phone and see eachother very often when I need help I still go to reach for the phone as my dad would always know what to do but now I can not I am just so very sad any advise would be appreciate thank you helen,negative,0
it was two week ago today that the most wonderful woman I have every know pass away my mother she was only 46 year old and she die from lung cancer in the past 5 year I have lose my nana my uncle and now my mom all to lung cancer I just do not know how to deal I try to be strong like my mom teach I to do but every day just get hard hard to get up hard to go about the day hard to breathe if any one else have been through this and have any helpful idea I would really like to hear they I just miss she so much and I keep think of all of the thing I will never be able to do with she again I keep think of all of the thing she would not be there for my son start school next year and I am go to cry like a baby and she would not be there to console I I would not be able to give she the over the hill birthday party I know she would have hate I will never hear she laugh again never see her face in front of I it is just so hard to think she is not go to be there anymore how do I go on with normal life when I feel like everything is fall apart,negative,0
hello sorry long time no post been super busy and my father just got diagnose with lung cancer have surgery and so on so I am sure you all can imagine want to ask if anyone have try or use asmanex I just see the commercial I wonder if that is a well controller safe than advair I take advair right now I try look online just find clinical stuff jmf2002,neutral,1
I do good for month then something trigger off a bit os athma and I think lung cancer I get am xray show bronchitus but of course I also think congestive heart failure look that up like crazy scare myself and still have this left side pain that come and go that the doc can not explain hate this,negative,0
I was widow 2 week ago after my husband nine month battle with lung cancer I have a 13 year old son who miss his dad and I miss he too I was so busy and stress as a care giver I feel kind of relieved it is over just look for support and help from other who have go through the same journey,positive,2
I lose my lovely partner to lung cancer on 31st januarty this year not a day go by that I do not miss he and I just want to seee his face and hear his voice one more time some day I feel I am ok then other day I feel like my heart is break into tiny piece xx,negative,0
my friend with stage 4 lung cancer have been do okay with treatment but over the last 2 month have been have some complication I talk no she today and she tell I that she have a persistant cough I remember my other friend who is a nurse say that once she develop a cough like the one she have that it is the beginning of the end and I m scared for her ughh anyone else have something like this happen give I hopeee,negative,0
I have my child by my side and I go back to school to start my career in a little over a week should not I be celebrate tonight instead of feel like give up and cry my former mother in law was recently diagnose with stage 3 lung cancer I am still single 3 year after my divorce and I still have no good job but I have the love of my family is anyone else feel like this tonight,negative,0
with this quit is I also have a session of hypnotherapy sometimes one never know if something work until it fail well hypnotism is one of those thing however I will not discard it as this is my long and hopefully last quit it is quite pricey but hey so is lung cancer emphysema heart disease and so on if everything else have have less than satisfactory result for you then maybe you should consider it,neutral,1
I receive the phone call last night that I have non small cell lung cancer at this point I can hardly think so I guess I just need word of wisdom from those who have been there I will have a pet scan next tue and will know after that what stage however I may not be a surgery candidate any thought would be comfort,neutral,1
I just find out that my dad have lung cancer and he have smoke for 30 year I am only 26 and have smoke for 8 year I really want to quit because 1 it is disgusting and 2 I want to be healthy I am think of chantix only if I can not do it on my own but have anxiety disorder I have not have anxiety issue in probably about a year but have hear that the chantix can make that bad have anyone have that problem thank melissa,negative,0
I smoke last night for the first time in 7 1 2 year my husband know immediately and he is furious with I we were out with friend and I disappear for about 3 minute and apparently come back reek I have an uncle with stage 4 lung cancer right now and I absolutely know well I want another one so bad I can still taste it in my mouth please talk I out of this stupidity but be nice,positive,2
my mom was diagnose with stage iv lung cancer on june 10 she undergo two week of radiation to her brain lose all her hair and is experience terrible fatigue she begin the daily chemo three week ago and is take tarceva I am interested in know if anyone have anything to say about tarceva and or have experience with this drug she will be take this forever thank to everyone in advance for your experience thnkngoutloud,negative,0
my husband of 25 year lose his battle to lung cancer on 2 02 08 he was diagnose on 1 20 08 when he was admit to the hospital with phenomena he spend 12 day in the hospital then but never really come back he keep lose weight and develop septis which go to his heart,negative,0
my mom have parkinson and I have been on that sight for a while now yesterday we find out she most likely have lung cancer please please please offer up your deep prayer for margie my sweet sweet mom we find out tomorrow the test result I would sincerely appreciate any and all you can offer up for her thank you guy thank so much melody,positive,2
just as I am pare down my supplement intake I get this email from alchemist lab where I get my oxymatrine and hep c powder to add to hot tea a good but expensive source of sup info anybody know about this meriva sr is a very exciting breakthrough its virtue are suchthat many people with hepatitis feel well quickly on thisproduct it is also inexpensive and it is without any sideeffect what make meriva different than other curcumin product is that itis a phytosome phytosome are a patented process that bind anherbal extract to phosphatidyl choline which is a majorconstituent of cell membrane this allow the product to be muchmore permeable in cross the gut barrier which result in muchhigh blood level of curcumin one small study show that 450 mg of meriva was as efficiently absorb as 4 gram 4000 mg of a95 standardized dose of curcumin curcumin have so many different benefit for the body its usesinclude for cardiovascular condition with reduction of c reactiveprotein as well as cholesterol it is use for many type ofcancer include liver cancer it is a powerful anti inflammatoryinhibite nfkb which is a protein molecule which switch on thegene that produce the bodys inflammatory response thisinflammatory process also accelerate as we age have a safe andpowerful anti inflammatory have many use from slow alzheimer totreate arthritis to reverse hepatic fibrosis the specific action which are important for people with hepatitisc increase bile flow which help digestion and aid ineliminate toxicity maintain healthy platelet function and prevent they fromsticke to each other which can lead to stroke and heart attack in tcm traditional chinese medicine this compound treatsstagnant blood by keep blood flow smoothly through the body normally the liver is extremely well vascularize as it getsdamage blood do not flow as easily through the liver and thebody will create varix to supply enough blood to the liver curcumin reverse this process is a powerful anti oxidant and hepatitis c is a disease ofoxidation whereby reactive oxygen specie damage hepatocyte orliver cellsis a strong anti inflammatory which inhibit fibrotic damage tothe liver from many cause include viral infection curcumin can chelate iron which inhibit the inflammatoryresponse help protect glutathione and the methylation pathway in thepresence of chemical toxin it is extremely useful in prevent cancer cause by chemicalexposure include liver as well as breast cancer initiate byxeno estrogen dosage is 2 or 3 cap twice daily before or with meal,neutral,1
I am new to this like a lot of people on here and I am not sure how one write an anonymous post about their feeling on a support group site I guess I will just jump right in in 2014 my mom pass away from liver cancer but was diagnose with hep c 8 year before my family and I try many treatment but nothing cure the hepatitis c and the inevitability of death become very real when she was diagnose with cancer and her liver begin to fail during this time my husband leave I and the rest of my family was in the dark about what to do my mom was our backbone and my person before I know it two year have pass and I still have not talk to anyone about it this was not an issue until recently when my boyfriend begin to point out these extremely bizarre and random mood swing where I would be severely sad or angry for day and I could not figure out why I know I am not alone in this but I feel so alone and unaware of what to do sometimes it feel cruel for life to go on without she and I feel like talk to anyone in person would be too difficult I have been through a lot of difficult time in my life and I have persevere but I am not sure how to deal with this,negative,0
four year yesterday since I receive my gift of life free I of the liver cancer thank to a generous donor who sign that donor card before lose his or her life my life was spare know that we can be use to save life of other when we leave these earthly body is nothing short of awesome but we have to sign the card sign the back of the driver license is not enough anymore,positive,2
for those of you live with cirrhosis there is always the fearful c word that we just do not want to think about I see this story on the news last week and think I would post it they do mention on tv that it could possibly be use for liver cancer as well down the road http www ctv can servlet articlenew story ctvnew 20100309 reovirus_100309 20100309 hub health this of course is yet a study but hey it bring hope for million,positive,2
I am not a teen anymore but I can still remember the day that I find out that my 19 year old cousin die of liver cancer I was in a phone booth in italy and suddenly the world go silent everything slow down and my brain cease to comprehend the world I was 20 at the time and I simply could not understand what death is I am still not sure I understand these moment stay with you,negative,0
my primary liver cancer move into my adrenal gland which can not be remove so I have been on nexavar my scan come back this week and tumer in the gland are grow so it look like the treatment is not work so at this point there is not other option other than the herbal detox treatment look like I might be hurt the stat for the drug,negative,0
after 2 year and 3 month after diagnosis of liver cancer cause from hep c and cirrhosis my husband lose his battle january 14th I am heartbroken we will not be enjoy the golden year together he will not be here to walk his daughter down the isle in august he will not be here in april to celebrate our 40th anniversary or ever meet his grandchild how to get past this is beyond I,negative,0
river and joel get the news from the biopsy today the mass is liver cancer we do not know if it is malignant or benign he is go to have surgery and we will hopefully be hear jubilant cry from the marchesoni family soon please keep they in your thought and if you are the spiritual kind please pray as well mom is keep it together but she really need to hear some good news from these doc soon thank everyone,negative,0
is not it true that you have to have 2 mutate gene to have hh I think you have to have 1 from each parent otherwise if you only have 1 you are just a carrier but do not actually have the disease my daughter dr say he treat a lot of hh pts but have only have 1 die from it and she was 45 when she come to his office and already have liver cancer but she only have 1 so which is it,neutral,1
I go to my appointment last week so excited because of how well I am do as you know top notch bigwig liver specialist that I was burst with excitement to see and ask my 30 question about thing I have study and read about in book on internet and experience throughout these past few year with cirrhosis I am disappointed to say that thing do not go well first of all he have no interest in what I have do personally to repair my liver he even say I am not interested in that I tell he that the liver specialist who diagnose I year ago say nothing to give I hope he say that is too bad doctor should not do that then he go and do the same thing to I so anyway I go in hopeful and just want to ask question I leave with he set up various testing he want a procedure do for check on esophagul varix he want a re check for hepatitis because cirrhosis make I more susceptible to it he want mri ultrasound and he want to put I on the transplant list for when I get liver cancer whoa I just come in with some question I ask he if I can live a long life he say there are just too many thing that can go wrong what that do not sound optimistic to I then I say I come in with question that is why I am here and I open my notebook he say he have other patient wait and can not answer any of my question this doctor is just not the one for I he poopood my milk thistle look like a deer in headlight about my acupuncture which save my life I am sure and would not hear I he look at my 8 month old baby and say that yours yes she is mine cirrhosis patient should not be able to get pregnant he say duh my point exactly I am do great can not he see he is so busy give I negative statistic he look I in the eye and scare I one in 100 cirrhosis patient get liver cancer we need to keep up with your screening one in only a hundred that is high risk he say I cringe and my shoulder droop I was sit and he was stand above I spew negative stat it was only after I leave the office and take a breath that I do the math if what he say is correct then out of a thousand 990 people do not develop cancer hmm why can not he put it like that I love those odd because he is not the one for I he is look for trouble that is not there I have make an appointment with another liver doctor for next week and I have my notebook of question when I find the right one I plan to get ultrasound yearly to check on my progress to check for good not for bad thank you all infinite love,positive,2
my dad recently die from liver cancer and we have an open bottle of 200 mg nexavar tablet approximately 50 pill leave I am give they away I live in canada and would be more than happy to ship they anywhere no cost I ask my dad doctor if they want it back but because it is open then would dispose of they and I find this a huge waste please email I nkarlovich roger com thank you,neutral,1
my mum have final stage cirrhosis and liver cancer and have now start bleed through her nose while she is a sleep and also when she is awake she is dizzy all the time and never want to eat anything I am go a little insane with advice from drs as they do not seem to want to tell I anything do anyone know how long I might have leave with my mum is this week or month or year hope you can help thank,negative,0
dear heavenly father our brother fred freddb cousin michael jones have liver cancer the doctor say he would not make it but with prayer he move from icu to a regular room but he still have many other issue the doctor are prepare he for hospice please be with he and his wife nedra as they prepare for this part of their journey let he be keep as comfortable as posible in jesus name I pray amen,positive,2
hi I was recently diag with stage 4 liver cancer and have no clue as to what have work for other and support from anyone that can understand how I feel I have a wonderful husband and 27 year old son who live in fl we are just follow dr order a this time but I would appreciate anyone who like to talk,neutral,1
I was wonder if you fine people could post a few word of encouragement for my brother he is suffer from liver cancer and I think a few word from my friend here would cheer he up somewhat I am go to the hospital tomorrow and would love to print your reply and take to he his name is tim and I would appreciate you all help love you all bruce,positive,2
my mom have recently been diagnose of liver cancer and give three month to live she is still in relatively good condition and is mobile and active the doctor have recommend we to inform she of her condition however my sibling are concerned that in do so she might just give up and lose her desire to live can I ask give this situation should we tell or not tell she of the diagnosis,negative,0
hello I have go through the triple with incivek and riba and the shot but the hep c come back now I am sooo scared just give blood to check for liver cancer and I keep read how you can not take harvoni if you already have a treatment been through so much already plus I do not tell anyone it come back I am keep so much inside I hope no one have to go through this hell thank,negative,0
green tea is antitumor liver ditoxifier antioxidant immune system enhancer liver protector enhance killer t cell activity it prevent or slow liver cancer protect the liver from toxin damage enhance gap junction in cholestasis which is where bile is not flow is antioxidant and act as a pick I up for combat fatigue green tea is 4 time strong than black tea black tea should be avoid green tea lower cholesterol level and blood pressure is antibacterial and antiviral it lower the ldl cholesterol and raise the hdl or good cholesterol it is helpful against the flu virus by block its adhesion to healthy normal cell caffiene although frown upon by diet purist and the lds church mormon is a natural substance produce by plant that have actually been find to be a potent antitumor agent and enhance the killer cell activity of chemotherapy drug a minimum of 4 cup a day is recommend to help prevent cancer do not add milk it bind to the constituent in green tea and render they inactive for medicinal purpose if you do not like caffiene do not buy a decaf tea processing may add harmful constituent instead just let the tea steep long than 2 minute more tannin come out the long it steep they bind with the caffiene make it unusable by your body I let my green tea steep for 15 minute I drink 4 cup almost every day sometimes I skip a day or two this tea information is from herb for hep c and the liver by stephen buhner pages 87 88 oh and there are no contraindication or side effect I always avoid tea because of the caffiene when I was lds now I realize its benefit and appreciate that god make this available to mankind,neutral,1
http www mmail com my content 25460 scientist close hepatitis c vaccinescientist close in on hepatitis c vaccinesubmitte by pekwan on thursday january 21st 2010 hepatitis c virus worldafpthursday january 21st 2010 13 22 00washington we scientist have discover a way to block replication of the hepatitis c virus potentially lead to well treatment for the top cause of liver cancer in the united states a study say yesterday in vitro experiment identify a protein that is essential to the reproductive cycle of the hepatitis c virus hcv the researcher say an altered synthetic version of the protein was find to destroy the virus ability to replicate they add the altered protein lead to compound that prevent the aggregation or replication of hcv virus say studylead author jeffrey glenn a professor of gastroenterology and hepatology and director of stanford universityscentre for hepatitis and liver tissue engineering because the compound operate by disrupt a mechanism that is only need by the virus the researchershope any new drug develop from their research will be less toxic for human glenn foresee a year to 18 month of preclinical and animal testing before the food and drug administration fda can approve the class of compound for clinical trial in human the study was publish yesterday in the online edition of science translational medicine if the new compound prove effective in hcv patient they could boost effort to fight the virus tendency torapidly acquire resistance to current drug treatment while avoid the bad side effect common to thesetreatment glenn say at present the only hepatitis treatment approve by the us food and drug administration is a cocktail ofinterferon and ribavirin which is toxic must be administer in a 48 week course and is effective in less than half of patient hepatitis c virus is a huge problem say glenn it infect over 150 million people worldwide many of whom do not even know they have it accord to the world health organisation who 170 million people worldwide are infect with hepatitis c which is transmit via blood and can progress over year into cirrhosis and liver cancer there are an estimate four million carrier of the virus in europe and between three and four million people in the united states are chronically infect accord to the who,neutral,1
my grandpa have recently been diagnose with liver cancer my mom say it is advanced she say he might have a year to live I am so scared I do not want he to die great start to the summer right I hate cancer first my three year old cousin get it thankfully she survive but she do not deserve that struggle then one of my mom good friend die last month because of cancer and now my grandpa is very sick I wish someone would find the damn cure already I am sooo sad for my grandpa I love he and I do not want he to be in pain,negative,0
my son recently lose his 59 year old wife to liver cancer I have try to put a hand out ask he if I could visit and so on he do not act like he want my help so I just see he at family function I guess the only thing I can do is play it by ear he was with I for a few day when I lose my husband so he learn a great deal through I however woman appear to be tough during these situation do you have any suggestion for I many thank kk,negative,0
I recently lose my adult daughter to alcoholism she have no more work organ to keep she alive the alcohol destroy everything she was my good friend I never have a sister to make thing bad two week before she die my daughter in law die of liver cancer all that inside of two week I am wonder if there are more of you out there who have lose love one to alcoholism it is so difficult for those of we leave behind I am a widow have been for 7 year kk,negative,0
for 3 year my grandpa have fight with liver cancer and it was a hell of a fight he put up he last 3 year long than doctor give he but now after a 13 hour of fly I am force to watch he wither away in a bed he is very close to a comotose state so I he can not even listen to his voice one more time just stare into his eye and witness a the pain of a man with nothing but death to look forward to I just do not know how to watch one of the strong man I have ever know die any suggestion or advice is deeply appriciate,negative,0
rep honda introduce bi partisan bill to end hepatitis epidemic in americawashington dc today congressman michael honda d can chairman of the congressional asian pacific american caucus introduce the bi partisan viral hepatitis and liver cancer prevention and control act of 2009 to address a national hepatitis b and hepatitis c epidemic impacting america the bill incorporate the monitoring testing and research and education provision contain in the hepatitis b and hepatitis c bill from the 110th congress rep hondas bi partisan legislation was draft in strong partnership with congressman charles dent r pa edolphus town d ny william cassidy r la david wu d or and anh joseph cao r la they are join as original co sponsor by congressman todd platts d pa delegate donna m christiansen d vi congresswoman barbara lee d can congressman bobby rush d il congresswoman judy chu d can and congressman g k butterfield d nc rep honda chairman of the congressional asian pacific american caucus say chronic hepatitis b and c are silent killer poise to strike million of americans and it is time for congress to act in a concerted effort to educate particularly vulnerable community as well as the general public for example due to a number of factor asian american pacific islander have a much high prevalence rate of hepatitis b and develop liver cancer at a much high rate than other ethnic group however few in the aapi community are aware of their risk factor or about how to manage or treat the disease this bipartisan bill judiciously invest federal money in a balanced comprehensive approach to viral hepatitis education prevention treatment and management and I look forward to work to pass this legislation the viral hepatitis and liver cancer control act of 2009 bring together the common concern of the diverse viral hepatitis community to create a surveillance system to track chronic hepatitis b and c infection support activity to promote early detection and education particularly in vulnerable population and incorporate they into exist clinical program at the state federal and tribal level and conduct research on improve treatment and vaccine and meet other need of the hepatitis community as identify by advocacy group rep dent hepatitis b and c are treatable disease when detect early and properly manage without detection and intervention this silent disease develop into chronic viral hepatitis which is costly at good and deadly at bad this bill make a wise investment by focus federal effort to heighten awareness promote prevention enhance coordination and increase research I am proud to join this effort which demonstrate congresss commitment to the elimination of chronic viral hepatitis rep town viral hepatitis is a critical health issue that need the nation attention I am deeply committed to raise awareness about viral hepatitis which disproportionately infect underserved and underrepresented minority and often goes undetected therefore I am proud to support this legislation that will be helpful in the ongoing effort to treat and prevent this condition rep wu this bill establish a comprehensive coordinate strategy for hepatitis prevention education research and medical management program by federal agency in order to bring the full horse power of the government to bear on this important public health issue hepatitis infection disproportionately affect asians and pacific islander african americans and hispanic population in the united states for example although they represent only four percent of the you s population asian and pacific islander account for over half of the 1 4 million chronic hepatitis b case it is vital that minority population receive the care they need in an appropriate and effective manner and this legislation will help make sure that happen rep cao unfortunately chronic viral hepatitis disproportionately affect certain population such as low income asian pacific and african american population as a vietnamese american and the representative of orleans and jefferson parishe I have see the face and know the name behind these statistic of high incidence and mortality rate in the demographic I represent especially give limit access to and availability of resource fortunately chronic viral hepatitis is treatable when detect early and properly manage and I am glad this bill is comprehensive in its approach to educate about detect and treat chronic viral hepatitis rep cassidy the lack of awareness for hepatitis b and c lead to under diagnosis those infect risk liver failure which lead to liver transplant or death as a hepatologist I have witness firsthand the consequence hepatitis can inflict on a patient health their family and the nation health care budget we have a wave of chronic liver disease that will crash like a tsunami on the united states healthcare system if we do not address this problem now say lorren sandt chair of nvhr this simple legislation will help identify the people who are chronically infected and get they into treatment which can save million in future healthcare cost about chronic viral hepatitishepatitis b and hepatitis c are highly contagious blood borne virus that cause liver disease liver cancer and premature death chronic hepatitis b is treatable when detect early and properly manage in about 50 of the case chronic hepatitis c can be cure it is estimate that 2 000 000 000 people worldwide have been infect with the hepatitis b virus 400 million chronically approximately 170 million people worldwide are chronically infect with the hepatitis c virus an estimate 5 3 million people live in the united states are infect with either hepatitis b or hepatitis c tragically more than half are unaware of their status about the billthe viral hepatitis and liver cancer control act would amend the public health service act to establish promote and support a comprehensive prevention research and medical management referral program for chronic hepatitis b and chronic hepatitis c virus infection the bill with a price tag of 90 million in 2011 will increase the ability of the center for disease control and prevention cdc to support state health department in their prevention immunization and surveillance effort the cdcs division of viral hepatitis have been underfunde in comparison with other cdc program within the national center for hiv aids viral hepatitis std and tb prevention the follow number show the dramatic difference in funding level hiv 297 million to state and local health department for prevention program 55 6 million to state and local health department for surveillance 692 million total fy09 std 115 million to state and local health department for comprehensive std prevention system 152 3 million total fy09 tb 85 million to state and local health department for prevention and control 7 6 million to state and local health department for laboratory 143 8 million total fy09 hepatitis 5 million to state and local health department 18 3 million total fy 09,neutral,1
I can not cope with the anxiety I am feel from my fiance critical illness he have advanced liver cancer that come on suddenly I do not know what I will do without he I cry a dozen time a day and my stomach is always in knot and nauseate being a pessimist I really struggle with keep my chin up he beat cancer over 10 year ago and say he will do it again but he is so sick we would not know the exact prognosis until monday but I fear the bad he will start chemo but I am not hopeful I am the glass half empty type this on top of lose my sister to covid complication one month ago today it is all too much my spark is go,negative,0
just need to talk we go to the doctor today and get some bad newe my h have lukimea cancer in the bone I was shock when the doctor tell we that it have been just one thing after a nother with my h for the last 6 year first he was so sick with dibeatie they woundere why he was still stand he have lose all his mussel mass befor they digonose he at emerge than he get a supper bug at the hospital and they dident know if he would make it than he have stage 4 liver cancer he beat that was on cancer med that beat he up to time to get his strength back he can not do what he use to do now this on good thing the doctor say he doesent need to be treat right now they just have to keep an eye on it so he is send he to a blood speculist for regular check up and he is now go for regular checkup on his liver to make sure it doesent turn to cancer the two are not relate my h know three friend that have this and one of they have have it for 20 year with out treatment the other one take some kind of pill the other one was tell to take treatment but wouldent that was 15 year ago he is still kick so I am just go to be hop for the good and ask for prayer and he have heart problem angina may need a pase maker later on enough is enough I can not louse he if I do I do not want to be here I would not do any thing stupid but I will never get over such a loss it is my bad night mare thankyou for read my post and thankyou for the prayer take care god bless,negative,0
my husband was diagnose in 2006 with cirrhosis he would have die if they would not have do the tip procedure he have many complication for a year afterwards with bleed in his stomach ascitie infection encephalopathy diabete and so on the last couple year he have been pretty healthy he have been sober for the last 5 year until mid last year when he decide he could drink again I and my kid have been through so much with his sickness and before he become sick I surely was not go to do it again we move out 7 month ago and he have been drink beer very heavily 18 24 pack a day he is in the hospital again with encephalopathy high blood sugar and a 2nd degree burn that he get when he was drunk the dr say if he do not stop drink this time he will develop liver cancer liver failure or kidney failure my question is how long can he live this way it scare I because I need to make arrangement and prepare my kid for what is come do anyone have any advise anything will help thank you,negative,0
my husband recently pass away this month of liver cancer and I would like to talk with other people that have lose their spouse recently I am have such a hard time night are the bad and the pain just hurt I make sure he have all his wish he request before he die like die at home and I by his side but some how I feel I let he down we have so much time leave to be together he was only 59 I am a new member so thank for let I put this into word,negative,0
I lose my dad due to liver cancer he was only 51 yrs old I miss he so much I would love to see he one more time to hug he to hear his voice to hear he laugh but I know that is not possible I start a group yesterday call daddys girl hope to find other daughter who have lose their father I would love for you to join it is nice have people to talk to who have go through the same experience and know how we feel,positive,2
I live with my mom dad and old sister in peru ny I first helped care for my grandpa my parent sister and I move in with he and my grandma when I was 5 he was diagose in oct 1999 with multiple myeloma he pass away feb 14th 2006 5 day after my 18th birthday I love and miss he everyday then in march 06 my mom was diagose with stage 4 breast cancer it have spread to the bone cancer cell in low spine pelvis and skull and the lymph node before it was find she have chemo surgery breast and all lymph node on left side were remove and more chemo in oct 06 she was in remission I have been her caregiver from day one june 08 we find out there was a new spot on her left hip radiation was do doctor say everything is clear july 08 liver now have cancer she have been fight the liver cancer since back in july of this year the doctor find a new spot on her low spine on aug 22nd she fall down stair and break her neck c1 the neorosurgeon say it will heal wear a neck brace for about 10 week the doctor also find cancer cell in the part of the bone that break so radiation was do on that part new tumor are now show up around the scar that was leave when her breast was remove,negative,0
hi we talk to the doctor on thursday about my husband bill scan result not good news his oncologist was very upset none of his chemo treatment have work he have a few option first he have to quit his job which I am all for I think work so hard and not eat enough fight against your body second be place on xeloda pill form of chemo for 21 day and have cisplatin epirubicin chemo treatment through his port every 3 week for 4 treatment then get rescanne he is already have cisplatin do not work thirdly there are clinical trial our doctor is look into have anyone hear of the therasphere its a form of radiation for liver tumor either from liver cancer or metastasize to the liver they place radiation bead up through your leg into the artery that supply blood to the liver it is outpatient surgery this is a clinical trial I have read about and finally go to a academic hospital or a cancer center have anyone go to the cancer treatment center of america I think we will try anything if he do nothing his life expectancy is 6 month he would at least like to see our old daughter graduate from high school my heart just sink when he say thing like this yesterday was a terrible terrible day,negative,0
publish on may 22 2014 deal with it exposes the state of canadas hepatitis c epidemic one of the most pressing but least discuss health concern face the country today currently 300 000 to 500 000 canadian are estimate to have hepatitis c a deadly virus that attack the liver and is associate with significant morbidity that can lead to liver cancer transplantation or death and yet a majority of canadian infect with hepatitis c remain undiagnosed misunderstood by the general public and government agency hepatitis c have never garner the appropriate attention or resource that a serious public health threat demand through grip interview with patient and healthcare provider deal with it document the despair and the hope of everyday canadian struggle to navigate their way through systemic and societal hurdle to deal with a chronic viral disease for which there is not only an effective treatment there is also a cure see trailer https www youtube com watch v dvbpqkf964k,neutral,1
have anyone out there have their colon cancer meet into their liver and have the liver surgery to remove it I have already have a resection on my colon but I am scared to death with my liver how do the cancer survive the 6 month of chemo I have been tell that if I do not have the surgery my life will be over in 2 year one more question how can I help my family not to suffer with my news I hate see they hurt sue suenami,negative,0
hello all I do not know if anyone remember I but I was on here a last year around april dec I also think a little bit after that anyway I am back because I relapse and I am scared about the future on the other hand I am excited about the opportunity to get my health back again some of you may have remember I have symptom of night sweat nightmare and severe itching well I am still have those problem have they when I was sober and still have they I know this post is scrammbled but the reason I am here is because I am work in the healthcare field and currently have 2 people who are die from liver cancer talk about hit home I was tell I have a fatty liver wth do that mean can I reverse this I have not hear my doctor tell I anything about disease or cancer but it could turn into that right that is what I m scared of I want to catch it before it catch I I am in my early 30 and I do not want to die from this horrible disease thank you for anyone who read this understand in some way or have any suggestion,negative,0
hey every one I hope you can help I with this my grandmother is die of liver cancer may be on her lat few hour my grandmother is very spechil to all of we she is one of my good frinde it is go to hit every one in the family really hear I need some advice on how to help my family get throw it when she go so if you can give I some advice I would really aprishet it thank you,negative,0
it will soon be 1 year since my husband was diagnose with end stage metastasize liver cancer last oct 17 he was admit to the hospital he was diagnose on oct 20 and he die on nov 26 that 5 week of horror is approach the 1st year anniversary and the close it get the more depressed I become the pain is back just as powerful as it was then and I do not know if I am lose it or if other have experience the same thing I keep think it will ease after the 1st anniversary of his death but now I am overwhelmed again this is awful I miss he so much thank for listen d,negative,0
I am deal with the loss 2 week ago of my grandmother she was diagnose in march with liver cancer treatment work well for the first 2 time no sickness or loss of hair but then she fall around a month luckliy break nothing before her death and never fully recover she was never in pain luckily so we never have to watch her suffer we just never imagine she would be go so quickly I have so many crazy emotion about this and am just try to find some comfort,negative,0
my blood test show I am still svr one year post tx yay but the alfa fetoprotein test tumor marker indicator is not good boo normal range is 0 8 3 and mine is now 136 it was 41 3 mo ago and 18 at my 6 mos test I have to go for an mri the cat scan I do in oct do not show a tumor dr say it show a little nothing cyst something like that she say I may have liver cancer I am pray there is some other explanation though the doc could not come up with anything,neutral,1
the benefit of coffee for diabetic stroke cancer parkinson kidney stone colon cancer 9 57 prime minister 0 comment new york never underestimate a cup of coffee accord to a study from american journal of clinical nutrition coffee may reduce risk of type 2 diabete the content of substance in coffee accord to they can help regulate glucose level in blood and therefore diabete was begone a study involve hundred of patient they do whether it have a family history of diabetes or not study participant who drink five cup of coffee a day have few internal inflammation a risk factor for type 2 diabetes than those who do not drink coffee accord to a report in the journal coffee can increase the concentration of adiponectin a protein in the body that help regulate glucose the researcher speculate that drink less than five cup a day may also be useful although more study is need to support these finding at least these are preliminary finding that carry clue about the benefit of coffee for the prevention of diabetes the cover of the report twenty previous study conduct worldwide indicate that coffee reduce the risk of diabetes type 2 by 50 percent the researcher speculate that the cause is klorogenik acid in coffee act to slow the absorption of sugar in digestion chlorogenik acid also stimulate the formation of glp 1 a chemical substance that increase insulin a hormone that regulate the absorption of sugar into the cell other substance in coffee that is trigonelin pro vitamin b3 is also think to help slow the absorption of glucose this is not the first research about the benefit of coffee previous research show coffee was also beneficial for prevent the formation of kidney stone colon cancer parkinson disease liver damage cirrhosis heart disease as well as inhibit the cognitive decline in brain power research consistently show that coffee reduce the risk of liver cancer and breast cancer coffee also protect the liver from cirrhosis particularly cirrhosis due to alcoholism coffee have also been identify to reduce the risk of stoke a study of more than 83 thousand woman over the age of 24 year show those who drink two to three cup of coffee a day have a stroke risk 19 percent low than those who do not drink coffee study on a number of man in finland show the same result a study of 4197 woman and 2820 man in france show that drink at least three cup of coffee a day can prevent cognitive decline in brain function due to age up to 33 percent in woman however the same benefit not find in man this may be because woman are more sensitive to caffeine,neutral,1
my sister have stage 4 ovarian she have finish the 3rd treatment the surgeon want to shrink the cancer before surgery the cancer have spread to the liver do this mean the cancer is in the liver or on the surface do it matter I hope someone here will help I understand this well thank alex,neutral,1
hello everyone I recently find out that my grandma have colon cancer and they believe it is in her liver as well she is go in for a transfussion in the morning because her blood count is really low she is schedule for a p e t scan on monday they for sure want to remove the cancerous mass in her colon base on the result the surgeon will also remove what is cancerous on the liver the doctor classify the colon cancer as a stage 3 or 4 they will not know for sure until after the scan I m just wonder what to expect from here it is really hard everything is happen so fast,negative,0
hi everyone I feel like I am at a meeting where I should stand up and say hi my name is violet and I am a newly diagnose liver cancer person but you all feel like friend to I probably because we are all in the same boat and try to figure it out or comply or deal with the inevitable I was the uncooperative patient who refuse the hep c treatment year ago because it sound awful and I think I stay healthy just by live my life and not drink and try to eat right until well I still feel normal but just tired oh and there is this big belly thing go on but now the doctor have use the c word and that is a whole other can of worm two year ago a specialist tell I that I would not be alive in a year if I do not get a liver transplant because I have cirrhosis from the hep c I decide that just was not for I plus the surgical resident tell I privately that because I have type 0 negative blood that was the rare type to come available I hate wait for the date that never show up ya know what I mean so I do not do anything and more than 2 year have go by and here I am now I am wonder if I really need want to extend my life with all these new treatment option for liver cancer and what kind of quality of life will that be you see I am pretty much the loner artist type and there would not be anyone to hold my hand or cook I dinner or even drive I to doctor appointment when it get to that that is why I really admire all of you who are stand by your love one and envy those of you who have someone stand with you and I know that is not easy but also know that is a great blessing and now now there are a whole new set of choice to make and most people think I should just do whatever it is the doctor tell I to do but I am just the kind of person who like the inside information not the sale pitch so I really want to thank you all for share your story they are so meaningful to I and fulfill my need to talk clearly about all this stuff please keep tell your story because although you would not always get a million response you help I so much and I am probably not the only one thank everyone and hope we all have a special christmas,negative,0
research on this and malaria prevention seem to be progress 2 of the major cause of ill health http www independent co uk life style health and family health news new research find promise treatment for hepatitis c 1876847 htmlnew research find promise treatment for hepatitisus scientist have discover a way to block replication of the hepatitis c virus potentially lead to well treatment for the top cause of liver cancer in the united states a study say wednesday in vitro experiment identify a protein that is essential to the reproductive cycle of the hepatitis c virus hcv the researcher say an altered synthetic version of the protein was find to destroy the virus ability to replicate they add the altered protein lead to compound that prevent the aggregation or replication of hcv virus say study lead author jeffrey glenn a professor of gastroenterology and hepatology and director of stanford universitys center for hepatitis and liver tissue engineering because the compound operate by disrupt a mechanism that is only need by the virus the researcher hope any new drug develop from their research will be less toxic for human glenn foresee a year to 18 month of preclinical and animal testing before the food and drug administration fda can approve the class of compound for clinical trial in human the study was publish wednesday in the online edition of science translational medicine if the new compound prove effective in hcv patient they could boost effort to fight the virus tendency to rapidly acquire resistance to current drug treatment while avoid the bad side effect common to these treatment glenn say at present the only hepatitis treatment approve by the us food and drug administration is a cocktail of interferon and ribavirin which is toxic must be administer in a 48 week course and is effective in less than half of patient hepatitis c virus is a huge problem say glenn it infect over 150 million people worldwide many of whom do not even know they have it accord to the world health organization who 170 million people worldwide are infect with hepatitis c which is transmit via blood and can progress over year into cirrhosis and liver cancer there are an estimate four million carrier of the virus in europe and between three and four million people in the united states are chronically infect accord to the who js fgf sahprivate medical cover from 30 per month with independent compare,neutral,1
I go for my 5 year ct scan since the meet to my liver was discover 1 1 2 year after my initial dx it was clear I really never know my stage because after my initial surgery I was tell that nothing show up in my lymph node and they get everything when the tumor show up in my liver I just want to get it out and go back on chemo I am happy about the result of the scan but also feel guilty about have a clean scan while other do not I can tell you that both of my doctor were aggressive in their surgery I have one colon rectal surgeon from one hospital and the other was a liver surgeon from a different hospital who specialize in liver cancer I do think it is important to be aggressive and if you do not like the direction of one surgeon which happen to I with my first liver surgeon do not be afraid to move on to another bless you all for your support,neutral,1
the essential anti oxidant for detox the liver glutathione supplementation is not the answer it is expensive and do not make it to the liver it gets destroy before it get there what we need to take are food and supplement that increase glutathione level in the body the good news is that your body produce its own glutathione the bad news is that poor diet pollution toxin medication stress trauma age hep c and other viral bacterial and fungal infection and radiation all deplete your glutathione glutathione is a very simple molecule that is produce naturally all the time in your body it is a combination of three simple building block of protein or amino acid cysteine glycine and glutamine glutathione is critical in help your immune system do its job of fight infection and prevent cancer eat food that support glutathione production this would include cruciferous vegetable broccoli cauliflower brussels sprouts cabbage radishe kohlrabi mustard green kale collard green turnip rutabagas watercress and horseradish http www dailystrength org group alternative treatment for hep c news view 1738419 avocado peach and watermelon are also report to raise glutathione level supplement would include nac ala either or both depend on your budget I choose ala I use to take both dr burkson who do the mushroom poisoning testing in new mexico find that when ala was use with milk thistle liver damage from hep c was reverse and liver enzyme level return to normal ala protect the liver regenerate liver tissue reduce risk of liver cancer reduce joint inflammation enhance mental memory and clarity stimulate the immune system and enhance energy level ala have show remarkable effect in help diabetic patient by normalize blood sugar level it increase glucose uptake by muscle cell lead to more energy and stimulate muscle recover and tone it also protect the nerve network of the body ease nerve pain and can restore damage nerve,neutral,1
find good treatment for liver cirrhosis cirrhosis is a result of chronic liver disease distinguish by replacement of liver tissue by fibrosis scar tissue and regenerative nodule lead to loss of liver function it is primarily cause by alcoholism hepatitis b and c and fatty liver disease but many other possible reason it generally result in harden and scar of liver cell in such case liver become unable to work properly due to scarred tissue which prevent the normal passage of blood through the liver the improper functioning of liver affect the organ ability to process nutrient hormone and drug and slow the production of protein and other important substance produce in the liver treatment of liver cirrhosis depend on the cause and clinical appearance accord to some study it have been find that the primary cause of liver cirrhosis is excessive alcohol consumption there are some other issue such as chronic hepatitis c chronic hepatitis b and d autoimmune hepatitis drug toxin and infection are responsible for engraft liver cirrhosis it have also been find that this disease can be cause hereditary due to the liver cirrhosis the other complication like jaundice hepatic encephalopathy liver cancer gallstone bruise and bleeding and splenomegaly liver cirrhosis can be fatal it not take seriously in the initial stage there is a prove treatment of liver cirrhosis in liver cirrhosis consumption of protein is carefully control it is recommend to consume low sodium to help keep from the accumulation of ascetic fluid in the abdomen the good way to prevent liver failure is to reduce the risk of develop cirrhosis or hepatitis try to consume a healthy and nutrient rich diet do not share any personal toiletry item include toothbrush and razor there are various treatment and procedure that are mostly use to treat cirrhosis they include liver transplant low sodium diet iron supplement vitamin k supplement and vitamin b supplement consumption to know more about the treatment of liver cirrhosis visit divine wellness com which is an online health portal aim to provide reliable health solution and aromatherapy remedy visit our website for more information on nadi shodhana ibs herbal remedy and treatment of liver cirrhosis,neutral,1
I just hang up a list of food that are good for the liver at the top of the list is beet before I have my liver biopsy I have read about someone eat fresh beet during treatment and have very little side effect I never like beet can as a child but I go and buy some fresh beet I find that I like they so eat a couple raw I have my liver biopsy and was wait for the result one day when I notice dark urine in the toilet oh no my liver have just start to fail then later I notice blood in my stool oh no it have give I liver cancer that spread to my colon I do not know how long I freak and bawl until I remember the beet I eat I recommend fresh beet to everyone but they can discolor your urine and stool they really discolor mine and it really look like blood after not eat they a couple day it go back to normal just think I would mention that so nobody freak out like I do,neutral,1
since I have been diagnose with t2 about 7 week ago I have have this feeling of doom and gloom it seem as if every little ache or pain now I think is the bad possible thing I find myself diagnose everything on webmd or some other website I guess my question is do you ever feel normal again will I ever wake up and say to myself I feel good today its go to be a great day or are those day go now just wonder because I am tired of live in fear about diabetes and over react to ever problem I have self diagnose liver cancer pancreatic cancer heart attack and brain issue and I know its all in my mind just wonder if the good day will ever come back again,negative,0
my good and only friend is die of liver cancer my parent are old and infirm and require a lot of my attention plus they are 3 hour away my sister is too distant and do not seem to care my son and daughter in law who 1 2 own the house we live in want to sell and move away I can not afford to stay here alone my daughter think I am crazy and not in the fun way I miss have somwone to talk to about stuff and ever since I find out about bob cancer all I do is cry the shrink increase my med dose but still I do not think there are any med in the world that can cure lonliness and a broken heart,negative,0
hi everyone my name is jeanie and my husband is mike mike have been battle primary liver cancer for 4 1 2 yr and we learn in november that the cancer have spread to his spine fracture his neck it is also in his rib chest wall abdomen lymph gland and back in the liver he is recently start take the chemo pill nexavar but have have to decrease the dose because of shortness of breath mike have been so positive throughout this whole ordeal and is still try to but it is get pretty difficult he is always been such a strong man and it is so hard watch he waste away right before my eye sometimes I am actually glad to go to work so I have a break but then I feel guilty I am afraid afraid of what s go to happen next is mike go to die and how will it happen we try to live in the moment but sometimes my mind wander,negative,0
hi to every one first of all I want to apologize for weak writing cause english is not my first language my dad 62yr have hepatitis b that progress into liver cancer that was diagnose about 3 year ago or less so far he have 2 rcv was schedule for a third one but it was cancel for it will do no good the cancer is too spread and he was give nexavar 2 day ago I have read on the web that it is give to the late condition in order to extend the patient time for month we do not know anything about it yet beside the webs info he have not see his doctor yet please if you could tell I what do you know about it and are its side effect so bad thank you very much,neutral,1
I highly recommend read this book I just read the first few page to my hubby and am blow away dr gerson develop a cure for cancer in the 50 present it to congress when they were consider this 100 million dollar grant to find a cure for cancer the news was broadcast on abc the station was flood with call but the big pharma people threaten to drop their advertising of otc drug which would have amount to a loss of big buck to abc so they fire a 30 year employee instead of allow he and his story to be validate gerson therapy leave ny and move out west and finally land in mexico where they have a clinic to help people with many disease besides cancer there is a man in the book who have hepatitis they do not say which one the odd of die of liver cancer are small so are the odd of get cirrhosis small I truly believe if you take care of your body and avoid the 94 thing that can cause disease and cancer you will live a long happy life,positive,2
I apply for social security disability and though people think it is hard to get with liver cancer I apply on line then go to the interview they set up I broght copy of my test resport and treatment an well as surgery and dignosis report I was approve in 5 day the amount is great than I would have get at normal retirment and will stay that way I can get medicare 18 month after I have been on the ssdi age do not matter just think I would pass this along for those that have not think about it,neutral,1
we were willing to have our daughter live with we as long as she want to do so however after a week sleep on a hospital bed in the middle of our living room due to space problem she decide to move temporarily to a hotel near our adult grandson who is also look after her my grandson think that since she have stage iv colon and liver cancer with a spot on her lung she will only live about a year and a half or even one year,neutral,1
2 day ago I was approach by advocate for hep c and liver cancer I do go to once month support group she in this state now I m ask to take part in inssue of health care politic can ya belive this shit how bitchen is this its my calling and I m jumpin hard on this ban wagon oh yes my friend they are aware of my attitude and my way with true word of our disease and health care I m a nobody I m a simple man but know its time to take the glove off and expose the truth the truth is out there and I m just not some some asshole counslor with a master or ba in physcalogy either,negative,0
have anyone ever receive a birthday card for your dead daughter I do and I am not sure how to take it but all I want to do is cry all over again but I try not too am hold it in so no one will see I cry again the card was do nicely say we are think of you on sherris birthday but I am not quite sure how to take it my daughter die of liver cancer on january 2 2007 I just hope they do not send one to her daughter of 11 year if they do what should I tell she,negative,0
my husband have cirrhosis liver cancer and since oct of 08 have renal failure and is on dialysis he also have chronic hepatic encephalopathy he have been hospitalize about 7 time this year for it it hit he sometimes without warn I wake up in the morning and he is totally out of it he remember nothing or how he get to the hospital he come around a day or two later in the hospital he claim now that nothing is work and he is just about ready to stop everything and let nature take its course do anyone else out there go through this hepatic encephalopathy with a love one it is so hard to deal with,negative,0
here is the story my mom have liver cancer and she have a tumor that is block her bladder and her skin is yellow cause of it my grandma is over here take care of she why must my grandma always make thing bad for I I have not been eat much and my nerve are act up really bad and I just want to be alone in my room I have not do much for example clean my room or go outside if anybody can help I please I need help really bad and I can not take it anymore,negative,0
I have a good friend who do soc back in 05 and have to kick it due to the severity of the side he develop liver cancer and doc were work to shrink the tumor so he could have a transplant he know he would have to do tx again after the transplant but he was ready and willing he pass last night he was a humble man and help many an addict out of the darkness and into the light of life I wish all of you the good in your journey to slay the dragon keep swinge and never give up,positive,2
hello everyone I have a 16 month old daughter who have trisomy 18 she is do relatively well consider her diagnosis there are a few of we out there who are lucky enough to have our t18 child survive past 1 year old I keep search for answer to good help my daughter stay alive I question thing I need to look out for and I would advise the other to do the same one question I have not find an answer to is whether central apnea is still a risk factor for t18 child that are over a yea old if you have hear anything about this please let I know I would advise other parent to screen their t18 child for wilm tumor and hepatoblastoma my daughter was getting screen for wilm every 6 month but a recent conversation with an oncologist on the national committee for wilm tumor say that that is not enough get your kid screen every3 4 month hepatoblastoma is a liver cancer that is rare but there are a relatively large number of t18 that get this cancer which suggest that t18 make child susceptible to this cancer so please screen for hepatoblastoma as well my daughter was diagnose with hepatoblastoma just before her first birthday and partly because I was an insistent pain in the doctor neck to scan her abdomin to investigate a small lump there which turn out to be one of 3 cancerous tumor in her liver she have do chemo and surgery and she is do very well there is not much research out there for long term survivor of t18 but if we know what to look out for we well the chance for our child and we can change the t18 statistic good luck you all,neutral,1
my primary care doctor is the one treat I and most often I see the nurse practitioner they feel that they are able to handle the primary hh as well as a hemotologist or a gastroenterologist could in fact they diagnose it my liver enzyme were normal so there was never a consideration of a liver ultrasound today I was at work work with one of my favorite doctor a gastroenterologist whom I have a very good relationship with I mention my hemochromatosis number and that my primary care was manage it he was very surprised that I was not go to a specialist I ask what he would do differently from the phleb and lab schedule and he say he would consider a liver we even in spite of normal enzyme he also say he would check an alpha fetoprotein level to rule out liver cancer he whisper this last part now I am wonder if this is standard treatment or if he is demonstrate his knowledge of the condition I do not see he as a doctor because of our close friendship and very close work environment just wonder what other here have experience thank tricia,neutral,1
hi everyone my sister was diagnose with carcinoid liver cancer about two week ago they could not find any other origin in the body and it all seem localize in the liver she was experience flush sweat constant diarrhea and the abdominal pain become bad this is what bring she to the emergency room and prompt the ct scan they decide to begin chemo this week by try the chemo bead which go directly into the right lobe to the liver from the aorta her doctor say it could be rough but we do not expect such a hard time she is three day post chemo and run fever tired have severe abdominal pain and is so weak that it is hard to talk she is not eat and feel very weak her blood count indicate an infection so she is receive med to treat that I have been search the net to find out what to expect from this treatment she live in tulsa an I live in dallas so my info come from her family wonder if anyone else have experience this treatment and could guide I and other family member of what could be expect she have been very healthy until diarrhea severe sweat and flush begin this spring she start experience severe abdominal pain and this is what bring she to the emergency room thank so much for any feedback I will be so happy to pass along hug and any information that I can give back were still stun that she have cancer of the liver thank for any support xoxo annl,negative,0
thursday november 15 2012 from the hcvadvocat interferon free hepatitis c treatment safe prove effective in up to 63 of patient with cirrhosis the first major datum on interferon free hepatitis c treatment in people with cirrhosis show that treatment can be safe and prove effective in up to 63 of patient accord to result from the sound c2 study present this week at the 63rd meeting of the american association for the study of liver disease aasld in boston despite their high risk of progression to decompensate cirrhosis and liver cancer most early stage research study of new hepatitis c drug exclude people with more severe liver damage on the ground of safety and the unpredictable processing of drug by a more damaged liver moreover because response rate tend to be poor in this population which would make the drug appear to perform poorly in comparison with competitor product company are unlikely to risk harm early perception of product by recruit cirrhotic patient into general phase ii trial,neutral,1
research offer hope for liver treatmentimmune cell cause damage other repairfrom university of edinburghupdated january 06 2005about com health disease and condition content is review by the ireview boardmillion of patient suffer from liver damage cirrhosis and failure may benefit from research by the university of edinburgh and southampton which may lead to new life save treatment there is currently no cure for liver cirrhosis and a patient only hope of survival is to receive a liver transplant the edinburgh scientist from the universitys centre for inflammation research in collaboration with colleague from the university of southampton and cincinnati usa have for the first time identify two separate population of immune cell macrophage in the liver one group of macrophage cause scar to the liver but the next wave of immune cell produce only a few day later change function to break down and reabsorb the scar these finding publish in the january 2005 edition of journal of clinical investigation will help doctor to understand the mechanism by which the liver is damage and repaired and may lead to future treatment researcher dr jeremy duffield explain the link between the immune system inflammation and scar in the liver have not been well understand and this have hinder progress in find way to prevent and repair liver damage now that we have show how the macrophage work we before midday to find out how to create activate and de activate these cell to make they repair rather than damage liver tissue he add cirrhosis commonly but not always cause by alcohol consumption can lead to liver failure at a time when outcome for other disease such as cancer and heart trouble have make dramatic gain liver damage describe as the new plague of the 21st century have yet to be understand and in turn to become treatable more woman in the uk now die of liver failure than do of cancer of the cervix there have been a fourfold increase in the number of man age 45 54 dying of cirrhosis since 1970 and a threefold increase in woman of the same age group liver failure is also rapidly increase in young people with the death in the uk of 500 man and 300 woman age 25 44 in 2003 huge increase in liver patientsprofessor john iredale of the university of southampton say we are face a huge increase in the number of patient with advanced liver fibrosis scarring and cirrhosis end stage scar of the liver currently we have no effective treatment for liver cirrhosis which is associate with internal bleeding liver failure and the development of primary liver cancer there is a huge imperative to develop new approach to the treatment of liver scar exciting insight such as these will inform the design of future therapy further research into macrophage is set to follow and scientist will explore the role of these immune system cell in damage and repair to other organ include the kidney,neutral,1
I hope I do not upset anyone by post here since I do not have a cancer diagnosis but I realy need some help I was wonder if anyone else have have the same experience as I and get a dx of cancer I am 38 year old female I have have acute recur hereditary pancreatitis since 1989 2 year ago my pancreatitis get a lot bad so I start go to different doctor to find out why in june of this year they decide that my gall bladder need to come out so I have it remove on 6 18 2008 and ever since my amalayse and lipase have been fine but my alt ast and alk phos have been elevate anywhere from 100 to 800 I have have every blood test there is for liver disorder over 3000 worth of lab and nothing come back except the alt ast and alk phos my sympton are so much bad since gall bladder removal I have nausea vomiting and severe pain just under my rib on the right side thru the back I have a ct about a month ago in the er but no one have tell I what it show my pcp and gi are out of idea so I am go to have a liver biopsy but I do not know what it could show since the lab have show nothing the only thing I can think of is cancer I have alot of cancer in my family my 34 year old cousin die 2 year agon from panc cancer my mom have acute promylogenis leukemia my maternal grandma die from liver cancer and my paternal grandmother die from ovarian cancer so to say the least I am terrify I am happily marry with 3 beatiful child old is 18 then 14 and the young is 4 they say I am the spoke to there wheel I hold they all together and can not imagine what they would do without I so if anyone have experience anything similiar please respone thank you jackie,negative,0
hello my 35 yr old son was just diagnose this month and have have two phlybotomie his ferriton raise 50 point after his first draw is this normal his doctor do not seem concerned but I am not sure his doctor is concern about much he also see a gastro per annum who tell he that there are no diet restriction and that either I or his father have the disease even though the way we understand it is that we are both carrier I have many of the symptom but I have not receive the result of my bloodwork his father was diagnose two year ago with a macro pituitary tumor which I assume is unrelated however his hormone are way out of whack I would love to hear any suggestion or direction for further understanding of this I also might add that I have two cousin die of liver cancer and my mother die of liver failure from hepatitis c which I am now wonder if it was not hemochromatosis,negative,0
my husband was diagnose with cancer in his liver about one month ago he have other health problem such as kidney failure that he have been have trouble with for about six month start about in may which is about three month ago he have feel nauseate and have been eat less he have diabete and as his wife I follow a meal plan where I count the portion of different thing he eat he start cut his serving of meat or fish in half and eat less of other thing in the last week a couple of doctor have consider the loss of appetite to be relate to the cancer he have lose forty pound in the past few month he was about 205 for year and not weight 165 a month ago he was in the hospital with his kidney problem and they see the liver cancer when they do a cat scan of his kidney they send he home but a few day later I was tell to take he to the emergency room where they diagnose he with pneumonia after a few day of intravenous antibiotic he was send home to finish recover at home and do not eat the first week he was home now he is keep down glucerna drink and jello and milk but get considerably less than what he need of protein calorie and everything else we have have a home nurse come to the house she may have stop come when he start to keep down the glucerna he is weak and unsteady on his foot and his knee have buckle under he a few time and he fall to the floor chemotherapy have not start and was postpone till he get his strength back after the pneumonia but I think with out eat much he is get progressively weak,neutral,1
I am new here I have been read through some of your post my husband have cirrhosis from hep c he is in the process of being evaluate for a liver transplant he have recently been diagnose with liver cancer as well my dad die in the early 1980 from liver failure due to primary schlerosing cholongitis sp I was 22 when my dad pass away we were very close and his illness death of course was devastating to I now I am 48 and my husband of 20 yrs is go through a similar thing someday it just get the good of I I feel like I am re live the bad part of my life I have 5 child and it break my heart to think that they may go through what I do I try to be positive and usually I can be at least on the outside,negative,0
hi I have hemochromatosis and have been stable with low ferritin for many year now I have hypothyroidism severe arthritis with 5 joint replacement hyperpigmentation fortunately no diabetes or heart issue when diagnose I have serious liver issue but my liver is heal now I also suffer from crush depression which is now go once the iron was remove I recently read that clinical presentation of hemochromatosis symptom skip generation I am convince my father die at 56 from cardiomyopathy cause by untreated hemochromatosis he also suffer from severe chronic migraine headache and depression his mother die from liver cancer at age 56 so in my case I can trace my disease manifestation quite clearly through my ancestry have anyone hear of this skip generation thing I suspect it is false information and will ask my dr but in the meantime I think I would toss the question out for your review thank for listen I am grateful my genetic condition was catch quite early and my family have all been test,neutral,1
I have a question for you all do any of your feel guilty about survive this cancer I have these feeling I have have two friend that have die in the past year of cancer not thyroid and another that is fight for her life I feel so guiilty for have this cancer that was in the scheme of thing very easy to treat and for survive it I have trouble look they and their family in the eye when my good friend that die that may got his diagnosis for liver cancer it was so far go that there was nothing they could do he keep look to I for answer I do not know what to tell he our cancer and the treatment were so different I know that he want answer from I and I could not give they to he he keep say you have your cancer for year before they find it and you re ok I just feel so guilty about it all have anyone else experience this take care,negative,0
hi I really hope you can help I let I start off by say that I know you are not doctor and I would not hold anything against you if you re wrong I have always find that I get the good support advice from people who have experience similiar situation and at this point I am feed up with doctor and am very desperate my dad was diagnose with liver cancer in sept he was diagnose with cirrosis and hep c about 2 1 2 year ago and they also find a small cyst on his liver at that time they have been watch it and he is been get scan every 4 month there was no change until sept when they find 3 masse on his liver the large being 4 they perform 2 biopsy and the second come back cancerous they also say is afp level were extremely high we go to an oncologist who send we to a surgeon who say my dad is not a candidate for surgery before christ of the cirrosis we are go back to the oncologist tomorrow to look into chemoembolization or the chemo pill not sure of the name we are all very frustrated with the doctor they would not give we any sort of time frame with or without treatment I know they can not give we a definite time but I do not understand how were suppose to make any decision without that kid of information I am an internet junkie and have spend many hour read up on this so far everything I have read have been true mostly bad my dad is 70 year old and his health is not good at all he now have abdominal pain all of the time and can not be leave alone the only time we get he out is for doctor visit he is not a fighter at all what I would like to know is what have been your experience with this form of cancer it seem the cirossis really complicate thing if you have make it this far in read this I really appreciate it I tend to go on and on thank you for take the time to read this nanci,negative,0
there are a couple different part to this story in 2007 my mother was diagnose with breast cancer for the second time in her life first in 1989 I was too young to remember she get treatment and was place in remission and we think our fear were over with in reality our fear were only just begin in 2008 mom sister my aunt was diagnose with breast cancer she too receive treatment and was place in remission she is currently still healthy in 2009 my mom brother my uncle was diagnose with kidney cancer he do not survive and pass away 4 month later in 2010 my mother was diagnose with liver cancer it was a hard battle and she pass away 5 month later in july 2010 I have been have a very hard time deal with not only my mom death but the exhaustion of cancer and illness I have spend more time in the hospital the last 4 year than I have on personal day it have take a lot out of I and my family my family after my uncle and mom die have become pretty disconnected and I know it is probably because we are all exhausted and hurt I am try to find escape but with I still being in college what little energy I have have to go to my study,negative,0
can you help point I in the right direction a dear friend 26 yr old husband have colon cancer that have spread to his liver the late scan show cancer all over his liver and is now cause his liver to deteriorate none of the chemo drug are work for he anymore a surgical procedure where they would insert tiny bead fill with the ironetecan chemo drug through the vein connect to his liver to target the lesion on his liver is an option though have this do there is a high risk that this surgery could potentially speed up the process of his liver fail I believe this may be call sirt I am try to help she with advice in any way I can and would appreciate anything you could offer that I could pass on many thank in advance,negative,0
I join this group in 2010 after my husband pass in 2009 this group help I get through the darkest time until I was able to move forward and leave the group in 2014 I think in 2016 I decide I want to be in love again and join some date site I was about to give up and quit the website but I give it one more try and I meet the love of my life in 2017 he is also widow we got engage in 2018 but we are not married yet due to a family situation on his side now it look like he have liver cancer he is a cancer survivor clear for 10 year my marriage was volatile and often unhappy for 36 year and still it was tragic to lose my husband now that I am happy than I have ever been lose my fiance will be so much bad we have only have 4 5 year together not nearly enough time my heart is already break from the idea of lose he to damned cancer I am also frightened of the future alone again he is my great love and my last relationship,negative,0
I do not have have liver cancer or am sure if what my girlfriend have is liver cancer just try to understand what she is go through from what I know she go in for a a colonoscopy a year ago and have an adverse reaction to propofol after the procedure she come down with a fever of 106 and was send back to the hospital where she slip into a coma she was in complete kidney and liver failure after 5 day she come out the coma but the damage to her liver was do she was place on a liver transplant list but recover and lead a relatively normal and healthy life a month ago she wake up from a nap with jaundice and was tell by her doctor to go to the er to get some test do she was admit and spend 3 week of testing poking and prod it was extremely hard for I to watch but I stay by her side and sleep at the hospital while she was there for those three week she was fast track to the top of the list but the particular hospital she was in could not do a transplant in california I am still try to understand the protocol for assign the number give to patient on the list but she was 3 point short of qualify to be place on the list for a transplant in california the social worker explain that she qualify in alabama and in florida once we sign off on it we would place once the call come we would both be fly via charter to either alabama or florida she recover turn out that she have a e coli infection her transplant list assignment number come down and she was eventually release during this ordeal our relationship was test after she was settle back in to her regular life she become depressed and angry whether it the was drug depression or a combination of those two she become mean and distant towards I a simple disagreement lead to we decide it was good for I to leave she on her own mean thing were say towards I and my reason for stay with she it become too much feeling were hurt and I leave it is been two week without a word not want to give up she I reach out and find that she have sell her house all of her belonging give up custody of her 2 kid to her ex husband her jaundice have come back and her bili count is back up she stand 59 and weigh 125 pound but her stomach is distend and look like she is 5 month pregnant from the picture she send I do not know what if anything I can do I want to support she but she see the toll it was take on I and my own personal health and relation with my family and work she admit that she is scared and love I too much to see I hurt also so lost and confuse,negative,0
my husband of 27 year age 51 have a protrusion about 4 year ago under his right rib cage above his belly button he is extremely physically fit have a physically demanding job and is a body builder he is an alternative health care provider doctor he have previously have 2 hernia with mesh put in so he assume that the protrusion was another hernia protrude over the mesh after 2 year of the protrusion get big he finally go to see a hernia specialist he hate allopathic medicine the md tell he that it was not a hernia and that he want he to do a ct with contrast my husband refuse decide that he have a strain sprain and would no long discuss the issue in addition I start to notice during that time 2 year ago that this 35 year alcohol beer drinker was start to show sign of being inebriate three beer would cause he to slur his word six and he would be stumble around and drop thing he was highly functional during the day and never drink except in the evening when he come home he have always drink 3 6 beer per night when he was young he drink much more obviously with the symptom he was exhibit I feel that there was something more go on 10 month ago after several flare up severe pain and increase swell my husband was force to stay in bed for three week due to the pain he would tell I that the flare up would occur from various reason work out too hard do too much yard work and so on he cut his work load down at the office and was not work out at the gym as hard but on dec 21 2011 I come home and find the rug miss in the bathroom he have pretty much been sleep sit up for several night complain about the pain in his side strain sprain and really was not function very well he look in pain but he would not really talk about it I do not understand where the rug where and what he would have do with they seriously it is not like he ever have wash they before and why now I do find they in the dryer and he tell I he throw up on they he decide on that dec 21 day to quit drinking I was quite surprised as this have been a problem in our relationship especially over the previous year as he seem to be inebriate every night I was attend ala non meeting and just let he be by april he have lose a substantial amount of weight my greek god bodybuilder now look like a frail 90 year old man he was still go to the gym and he say he was back up to the weight he was do before decs strain sprain that the reason he have lose weight was because he have cut out all the alcohol and those calorie were substantial he also change his diet dramatically he mainly eat a salad for lunch a protein shake and green shake for breakfast and a bowl very small of steamed broccoli with 3 or 4 tortillini cheese on it for dinner sometimes he will add crush almond or a small 1 ounce of turkey to the bowl he tell I that it is healthy for he to eat this way and that he feel well do it in april I question he again about his health previously he have tell I it was none of my business and that he do not want to discuss his health his drinking or anything I was reluctant to question he again but we have spend a wonderful day together and I feel that I need to let he know my fear during this conversation he say that he believe he have cirrhosis of the liver and that since the liver is able to regenerate that he was change his diet so that it could heal he say that he was the doctor and that I should not be worried about it that I do not have the education or background to make any determination on this I have suggest that he have either liver cancer or cirrhosis since then he have continue to loose weight although he say he is not he even brag that he is gain weight he jump on the scale the other day to show I that he weigh 195 he is lack in energy although he do still work 3 day a week he do go to the gym 3 day a week but what he do I do not know what I do know is that he have severe ascitie it was just a small amount a few month ago but now he look 6 month pregnant or more the ascitie is start to go into his back I can see all the bone the muscle and his skin hang on his body his face is so gaunt and he really look sick because he have the belief system that an allopathic physician will kill he that the hospital will kill he and that there is no way he would undergo chemo radiation or surgery of any kind there seem to be no need to encourage he to go he would not anyway our child have comment on his look although they will not talk to he about it our old son have broach the subject with he but he just tell he the party line I have lose a little weight but I am do fine I am not sure where to turn who to talk to about this I feel like I live in a crazy place with crazy people I am an educate woman I have work in our office for 15 year but I was a pre med student and now am work on a jd tell he to go to an oncologist is not go to work so please do not even bother to suggest that his belief system is that your body believe everything you say so a diagnosis for he is completely out of the question we watch my father die 17 day after being diagnose with cancer in his neck and shoulder he have his first round of chemo and then die my mother who was diagnose the same day as my father with liver cancer die 6 month later after she submit to insertion of bead into her liver her death come 2 week after the procedure his protrusion is in the same spot as my mother liver cancer it is long under the rib it is now with the ascite push the rib out he is in pain but deny that he have pain along his right side from his underarm to his waist just touch the area elicit a flinch reflex in compare his body with fit bicycling racer of comparable height and bone structure it appear that he have go from 62 tall 210 pound of muscle to 155 160lbs with 35 pound of ascitie it seem that he grow more protrusion and loose a little more weight each week I just have no idea how much long he can go on there are so many question I have so many thing to try to figure out have anyone have the chance to watch someone progress through liver cancer without any treatment of any kind I understand the implication of just the ascitie without even worry about the liver issue the amount of fluid retention is totally mess up his renal process there is an increase in the interthecal pressure on all of his organ blood vessel artery and so on I understand that he can bleed internally have renal failure liver failure oh and the bathroom rug incident apparently he have been throw up blood have blood in his stool and urine he though he was go to die that week during his moment in april of communicate with I he tell I that any idea on what to do where to turn I would truly appreciate it,negative,0
hcv clinical trial 2007 update http www clinicaltrial gov ct gui search term hcv 5ball field 5d sugg 2 2 here is one I have pull out of about 150 or so trial take place for geno 2 7 3 this may be of interest low dose peginterferon and ribavirin to treat chronic hepatitis c in patient infect with hcv genotype 2 or 3 this study is currently recruit patient http www clinicaltrial gov ct gui show nct00056 862 order 22 purpose this study will examine the effectiveness of low dose peginterferon and ribavirin therapy for certain patient with chronic hepatitis c a liver disease that in some patient can progress to cirrhosis of the liver liver cancer and liver failure this disease is cause by the hepatitis c virus hcv there are six major strain or genotype of hcv patient infect with genotype 2 and 3 respond well and more quickly to the standard treatment for this disease high dose peginterferon and ribavirin for 24 to 48 week than do patient with other genotype although the side effect of these medication are more severe at high dose patient with all genotype include genotype 2 and 3 currently receive the same standard treatment this study will examine whether patient infect with hcv genotype 2 and 3 will respond equally well and with few side effect to low dose of peginterferon and ribavirin give for a short period of time patient 18 year of age and old with chronic hepatitis c genotype 2 or 3 may be eligible for this study each candidate will be screen with a medical history physical examination blood test and liver ultrasound patient who have not have a chest x ray or electrocardiogram within a year of enter the study will have those test as well additional test such as eye examination hearing test stress test or other will be do if deem necessary because of the individual particular medical condition or risk factor for side effect of therapy,neutral,1
I know that only I can answer that question so I am just unload on my friend again my liver specialist because of my continued anemia that I have have for at least 3 year have refer I to a hematologist if I go there will be more test probably a bone marrow test which is very painful and if they do god forbid find lymphoma or leukemia then what I am almost 70 go through many year of hep c liver cancer transplant after 3 month of chemo then recurrence of hep c again in my new liver now I am hopefully cure of the hep c am feel pretty good and want to go back to work part time and just live till I die I know that since I will always have low immunity I will never be in perfect health again anyway I do not want to go through any kind of treatment like chemo again but maybe I should see the hematologist and hopefully be tell that the anemia is from all that I have been through only thing is my blood level are get bad thank for listen and now I just have to go back to pray for god to lead I through the right door he always have love you guy marilyn,neutral,1
good morning everyone I am just write to update you on my health I go in for stomache pain and they find bilirubin in my urine and I have to go to the er cause my stomache was hurt so bad they send I its still tender to the touch but not as bad when I go in for more test to the er they say my blood work look normal but I have a liver hemangioma and they send I to a specialist I am not sure what s go to happen now I am see a specialist in the liver on tuesday she will be able to order the right test but basically what I have find out is that its possible to be liver cancer its also possible its nothing but I am in pain for some reason the doctor was suprise I was not in the er before I have come to the office I guess he think I should be in more pain then this I have have difuse pain in my abdomen since this start I am just hope that everything will be ok I have a hard time talk to my husband or friend about it cause they are all so damn positive I can not even cry about it to my husband cause he think I am being silly thank everyone prayer are welcome,positive,2
vitamin e improve liver healthjune 21 2010by carey rossi a multi center nih study have link long term vitamin e supplementation to improved liver health this seem to be the case particularly in those suffer from nonalcoholic steatohepatitis nash an obesity associate chronic liver disease that can lead to cirrhosis liver cancer and death nash resemble alcoholic liver disease but occur in people who drink little or no alcohol the major feature in nash is fat in the liver along with inflammation and damage even though it affect 2 5 of americans most people with nash feel well and are not aware that they have a liver problem an additional 10 20 of americans have fat in their liver but no inflammation or liver damage a condition call fatty liver or nonalcoholic fatty liver disease nafld both nash and nafld are become more common possibly because of the great number of americans with obesity which make this recent study focus on vitamin e more intriguing publish in the new england journal of medicine the study find that supplement with 800 iu of vitamin e daily improve the liver of nash patient who currently have no approve treatment for the disease after 96 week of treatment just over two year vitamin e improve all feature of nash with the exception of the amount of scar tissue in the liver specifically 43 of those treat with vitamin e compare with only 19 of those who receive a placebo fatty liver disease is a grow problem in the you s and we currently have no approve medication to offer patient say brent tetri m d a hepatologist at saint louis university liver center and study researcher in a prepared statement with this study were pleased to find that vitamin e should help some of our patient share relate post vitamin e protect lung from pollution 0,neutral,1
river paste the following on facebook tonight thank you for your kind word finn will have to have surgery to remove his cancer but as of now we are not sure when and where hopefully monday will come with some answer he is breathe on his own and quite handsom I also have a chance to chat with she for quite awhile it seem that there may be a chromosomal abnormality cause the liver cancer and the large birthweght this is what they think finn may have as an explaination of why finn have cancer http www ncbi nlm nih gov pubmedhealth pmh0002168 the medical jargon is a bit confusing but he seem to have several of the symptom his surgery will most likely be at the chapel hill hospital and poor river is beside herself with worry and go crazy from the indescision present by the doctor little finn is still breathe on his own and daddy get to change his first diaper which give he no small amount of joy river and joel appreciate the word of love pour out to they keep up the suport lady and much thank to you all I will post more as I find it out,neutral,1
hi all firstly to all who are fight this disease wish you all the good and may everyone live healthily and happily I want to ask about liver hemangioma my aunt pass away from liver cancer last month and that get I and my mom worry about ourselves too because we are both hep b carrier my mom blood test show a positive hep b e antigen and one liver enzyme alt was slighlty raise at 42 we then go for ultrasound which find a 3 cm lesion it was really s acry time for we yesterday we just go for a ct scan and result are the lesion characteristic are compatible with that of a hemangioma which accord to our doc is a benign tumour of blood vessel however I am still worried I mean is the ct scan very accurate in detect such henamgioma or should she go for further test like mri our doc do not really make much diagnosis he depend on the radiology doctor report so I am wonder if I should get a second opinion what s the likelihood that a hemangioma will be wrongly dianose in a ct scan thank,negative,0
my sister and I just come back from see our step dad ray in the hospital his new doc is very kind and compassionate he say ray have very advanced liver cancer the onocologist will be come in to discuss option but for now he have been start on pain management and comfort care he have been start out on morphine in his i v every two hour not a good sign most likely we will go the hospice route again I do not know what I would have do without they when my mil pass last june anyway I just want to update you all it look like I will be away quite often but will continue to be here support all of you as much as I can you guy mean the world to I and are always in my heart huggs rainbow,positive,2
freddy71 mention under one of my post that he is have the tace procedure do tomorrow for his liver cancer I will be pray for he tonight and tomorrow I send he a message that I have 2 tace while wait for my transplant over 2 year ago and they shrink my tumor considerably both time let we remember freddy71 tomorrow my belly tapp go okay today but they only remove one liter this time and say some of the fluid is in tissue like abdominal wall intestinal wall and so on that have to be control by the fluid pill which were lower 2 week ago and by less salt I already consume 2000 mg or less a day no salt is hard to do love you guy marilyn,positive,2
my father was diagnose with liver cancer in april 2011 and from past experience under a different forum my first reaction was to come to daily strength and look here for information this group although I do not participate ease I through some hard time it provide I information hope and I want to take the time to thank all of those that post here share their thought symptom medication and everything else please be aware that though people may not participate we do look read absorb and feel your pain as well as your joy though he pass shortly thereafter in july I thank all for share your story again from a faceless internet person I give you my thank and prayer,positive,2
I am die of liver cancer I am on a transplant list and I find out today that they might take I off the list but anyone I try to talk to about it family or friend I get this look like they just eat something bad or they twist and contort there face as if I was talk out my ass and ii do not know what I am talk about it is not that I need to talk about it I just think people might be concern and that they might feel uncomfortable ask I about it but it look like they just do not give a ship with a t yes I have hear all the reason why people do not talk to I about I die but every time even when they ask I about it at least the people I know who do not give a crap if I live or die poke I with a stick once in awhile love to you all michael,negative,0
I was in a bad spot for a few day so have to take some quiet time out interferon can play some head trip on you it is not easy take this type of treatment and on top of that they were let people go at work lay off but I realize it is all up to my horsepower I have to adjust and do the good I can being bitter and angry just affect yourself if I get lay off I can lose my insurance and I am not do with treatment yet and hep c can turn into cirrhosis or liver cancer so it do have I scared do good today have to get some rest work tomorrow take care and god bless,negative,0
first of all I am not double post I go to the wrong forum before sorry I was recently diagnose with hep c I have been do all the test that they have ask of I I was tell that there is nothing for they to do I am in the 40 that the treatment might work they are do a ct scan to make sure that I do not have liver cancer I do not know who to listen to I feel like the doctor are leave I out to die I do not know who to believe or who to trust I am see that I am not get any help from the doctor with some of the question that I have I do not know what way to go help and lot of prayer plz,negative,0
hi everybody I am down to 621 and I am go weekly now woohoo one yr of twice p week phlebs was make I dread go but I do it anyway well than possible liver cancer or cirrhosis I have been play around on facebook for several week but I miss ya decide to drop in check on everybody I will only miss one phleb while I am in hawaii yep it is finally respite celebration time 10 11 thru 10 26 yes I have beach shoe and I will not be eat seafood def no sushi and no tropical drink welcome to the newbie sorry you are here but you have find a group of people with soooooooo much more info than most american doctor hope everyone is drop and or have make it to maintanence zzzzzzz,positive,2
I was marry for 43 year my husband die aug 2008 from liver cancer I have have period of time that I feel that I am move on but also time when I have this intense grief this week is one of those time this happen when I have problem with my illness it remind I how care my husband was sick himself he take care of I the good he could when thing go bad I remember how strong he was and that nothing ever worry I he have such a strength to he he was my rock always together and now today I am feel so alone I am sure that thing will get well for I again they always do but it do not seem to last very long just wonder if anyone else is have this difficulty have a chronic illness and try so hard to move forward,negative,0
my mother is 99 and in the last few day of her life or at least we think the last few day she have liver cancer and no long eat or drink and have been sleep nearly all the time she is have a long long life but lose she is very hard I am full of extreme anxiety over her possibly pass on feb 17 that is the same day my sister and also a brotherinlaw pass how can this be if she pass on the 17th what do all this mean mom is not suffer in pain of which I am extremely thankful for it seem as though the grieving have already start my nerve are a mess with worry for she and feb 17 to come,negative,0
august 09 2010an experimental antiviral agent call boceprevir double the cure rate for hepatitis c in a small phase 2 clinical trial design to show efficacy researcher report sunday the drug will now be submit to the large phase 3 trial require for approval of the drug by the food and drug administration hepatitis c is a chronic viral infection that affect an estimate 170 million people worldwide lead eventually to cirrhosis and liver cancer if not control the standard treatment now is a 48 week regiman of pegylate interferon which boost the immune system and the antiviral agent ribavirin which is a general purpose antiviral agent but the combination cure less than half of those who receive it and for reason that are not clear is even less effective in african americans the most difficult strain to treat is the so call genotype 1 which is the strain infect about 70 of americans,neutral,1
my sister bestfriend die 7 month ago from liver cancer leave behind 3 kid which I provide for two I miss she so much that I feel I want to go with she wherever she is I do not know if I should be think this way but my heart is hurt I need support because I am deal with this on my own I want to be ok but it feel impossible I cry so much like it happen yesterday I do not want to rush the healing process but will it get well so I figure I would try online support since I have no one to help I through all support is welcome I never realize how bad this would hurt,negative,0
my step dad is in the hospital on the edge of death from liver cancer see my late journal entry year ago he have a fall out with his eld daughter for fraud and theft and both daughter disown he he never hear from they or ever see his grandchild unless he run into they out shop when the two daughter find out he was die the crawl out of the wood work and right up his ass along with his ex wife father day is come they finally want to reconsile and here he is unresponsive and die by inch it is sad for year he was deeply hurt that they disown he I pray often that they would get back together now that they have come back it is too damn late rainbow,negative,0
hi all I achieve svr last april I am one year clear having take sovaldi olysio before harvoni see my doc today everything is good I was just surprised that he want follow up ultrasound and office visit every six month for the rest of my life seem overly cautious he say it is because of liver cancer after cure os 7 as compare to 15 before cure I think he just want the for the visit really seem like over kill to I I think once a year is sufficient and see no reason to see he at all if the test result reveal no change what are other doc do for after care,neutral,1
I am cry right now which I have been do for about two hour now I just join this group because my cat chloe is die of liver cancer the vet only give she a few more week she is 19 year old I am 18 so I have have she my whole life I don t know what I will do when she is go I don t think I will be able to handle it very well we are probably go to put she to sleep so she doesn t have any pain it is just that I can honestly say that she was one of my good friend whenever I was sad I always use to hold she and hug she and it would make I feel well I can t even imagine she not being there anymore,negative,0
our ds member sticksrrll aka jim bo pass away last evening in tampa hospice due to liver cancer he come to several ds lunch meet in the tampa bay area and sit bedside of jj shredd meow marcuso also ds hcv member as they draw their last breath the 3 all love music and were only in their 50 you may see their pic in my photo I want to let you all know that jim pass away this evening around 6 30 prime minister at the melech hospice house lifepath he have been there for about a month he fight his battle hard to the end now he is at peace free from pain and suffering thank you all for your thought prayer and concern throughout jims illness sincerely xxxx bowen jim sister,neutral,1
the last week or two have been interesting my grandfather is on his deathbed with liver cancer I have to spend a week at an independent living camp without my music because no electronic there and so obviously no mp3 my music is my cope skill it keep I sane it is how I shut out the world and it is bullshit tonight I get depress out of nowhere and was danger close to break a pencil or something like that just so I could cut and I am just slowly lose it I have been an emotional wreck lately I keep listen to my cut music playlist because when I feel depressed it may be weird but it is how I keep myself alive,negative,0
sorry to be so morbid I have struggle with this for so long one day I am able to be positive and say to myself I will get well but then the next day I feel like I am just fool myself I am in pain all the time and am not able to work anymore I know that people die all the time from hep c relate stuff but just what is my life expectancy other than liver cancer what can cause we to die from this I recall several member here who have pass away and I use to have many friend here three year ago and now they are all inactive I hope they are ok so please be honest with I how long do we get once we are suffer from all these symptom and have fail tx,negative,0
as many of you know my 19 year old daughter is in late stage of cirrhosis her new hepatologist at the liver cancer institute is consider put she on the new tx however her platelet count are low they seem to fluctuate between 40 000 recently she was up to 90 000 the doctor have tell we that because of her low platelet count it make do tx very risky it could even send she into immediate liver failure however he feel it is worth the risk about her only option right now he is talk about start she on a drug call eltrombopag to raise her platlet count however the drug itself have bad side effect is risky he say he have never administer the drug before do not know of it being use in conjuction w cirrhosis before so use it on her sound kind of experimental to I I have read up on low platelet tx there seem to be a variety of tx from steroid to platelet transfusion to spleen removal anyway I was just wonder if any of you have deal with this what tx you have to correct it or if any of you could impart some knowledge on this subject,negative,0
thank to all of you for encourage I to continue to volunteer I have a friend diagnose wuth liver cancer this week he can have my liver was my first thought really I have no one around I that need I I get out of bed just to feed and give my dog some attention then I m go right back what is my dr go to do I just have to ride this out anf hope it end soon than layer I have receive some bad medical news myself this week seem all my test show I have miss I have not speak to any of my child in a week I m not tell they about the miss I do not want their love because I m sick they didn not want to understand the pain of the depression as most people do not unnderstand it I m just deal with a lot of crap and right now bed seem the safe place,negative,0
hcv under document on death certificate mahajan r clin infect this 2014 february 21 2014 only 19 of people die with hepatitis c virus have the disease list on their death certificate accord to cdc researcher this indicate a significant underestimation of the number of death among people with hcv and the true medical and public health impact of hcv the researcher write in clinical infectious disease for purpose of public health policy planning disease modeling and medical care this is a huge burden that should be report and hopefully spur public health action as curative all oral therapy are become available to treat hcv in this analysis we have try to be clear about the difference die with hcv and die from hcv but both represent a substantial public health burden the researcher write http www healio com infectious disease hepatitis resource center 2013 hcv under document on death certificate make sense one have to wonder how many death are report as liver failure or liver cancer but do not define hcv as a cause,neutral,1
hey guy for any of you who are christian or listen to christian music or have any idea who susie luchsinger is um if you could viv I know you will but like please pray for she her husband is come down with really bad liver cancer and the doctor say he do not have much time to live maybe 4 1 2 month if that so yeah if you could please just pray for her family they are go through a hard time right now I know I do not know she personally but I do care about people no matter famous or not so please just help they out thank megamountain17 0,negative,0
it have been 3 year since my husband die and now I m go thru it again his main cna he have was diagnosie with stage four brain lung and liver cancer 2 month ago she now have less than 2 week to live I spend 3 week with she get home a month ago she is lose her memory and mind now I want to be there but I can not menatlly do it and I feel so bad I am call she later today and she may not know who I am anymore she is like a mom to I know her 4 year and get really close I can not do this again I just can not,negative,0
I need your help input advice and comment on what tx direction I should take I am genotype 1 non responder boy do I hate that term after first round with interferon riba I do have a sustained decrease of viral load but just not the require amount my choice are no treatment wait for new drug to be approve hope my side effect symptom diminish keep eat healthy and keep a positive attitude maintenance dose of current tx med this tx option may offer decrease side effect viral load can rise and the chance of progression to liver cancer is the same as no treatment daily injection of consensus interferon for 12 month with weight base riba I have hear this tx can be live hell not so much physically but mentally and have about a 25 clearance rate for type 1 non responder help,negative,0
a friend of mine have recently been diagnose with both liver cancer and hepc she was tell she have 3 to 6 month without a transplant she run from one appointment to the next while I race thru attempt to learn everything I can that might help a stressful learning curve you are all familiar with we get some information today that I would have think could not happen social security tell we that they would do nothing until they get a letter from the doctor with the prognosis when we try to get one the hospital inform we that they never do that get your prognosis in writing seem to I to be a reasonable request this situation seem insane have anyone else run into such a situation jay,negative,0
this is something that was last do by missingmyhero in 2013 I think it might be time to do it again to see who is new here and how many of the oldtimer are still here I am george aka brokengeo I am from ontario canada I am 73 and lose my wife of 50 year to liver cancer on june 7th 2013 no child retire but still live on our farm where with all the wildlife around here it sometimes seem like a zoo join ww in august 2013 and have find a lot of help helpful people here we all need each other when time get tough and need help at almost 2 year a lot of thing have change for I but not all good regard george,neutral,1
bee gee robin gibb succumb to a longtime struggle with liver cancer sunday a spokesperson confirm the rock roll hall of famer was 62 one month ago http www youtube com watch v nwmyzfhjhcwhttp music yahoo com blog stop the press robin gibb start joke leave we tear 232110535 htmli start a jokehttp www youtube com watch v e0dmx2pabo0do not cry alonehttp www youtube com watch v 0hf2efjil8like a foolhttp www youtube com watch v hok3u ylrpq feature relatedrobin gibb dead at 62http www youtube com watch v v1yy7ipenm8another great one pass another sad music day ndy,neutral,1
I do not know why but whenever my life is go well I become extremely anxious that it will all be wipe away because I am too happy it is like I feel I do not deserve to have thing go well I believe it stem from lose my dad at age 17 back in the 70 he was well one day or so I think diagnose with liver cancer and die eight day after that diagnosis we were very close and I think this have affect I in become too close to other include my immediate family that sense of loss seem to always be with I have any of you ever feel like this afraid to be happy or content always wait for the other shoe to drop,negative,0
should I take antiviral therapy for hepatitis c please see this website http www webmd com hepatitis hepc guide should I take antiviral therapy forintroductionthis information will help you understand your choice whether you share in the decision make process or rely on your doctor recommendation key point in make your decisionyour decision about take antiviral medication for hepatitis c depend on your current health and your chance of develop cirrhosis or liver cancer in the future consider the following when make your decision you may not need to take antiviral medication if you have normal or only slightly elevate liver enzyme level and your liver biopsy result indicate little or no liver damage doctor recommend treat long term chronic hepatitis c if you are at risk of develop serious liver damage such as cirrhosis or liver cancer the risk of serious liver damage increase if you have high level of liver enzyme in your blood for at least 6 month and a liver biopsy show that you have significant liver damage treatment usually is not recommend if you have major depression low blood count heart disease a risk of stroke hyperthyroidism kidney disease or transplant an autoimmune disease or active substance abuse include alcoholism or are pregnant treatment is more likely to stop the virus if you have the genotype 2 or 3 strain of hepatitis c than if you have genotype 1 most people with hepatitis c have genotype 1 significant side effect of medication include flu like symptom such as sore muscle and fever irritability and depression about 10 to 25 of people stop their treatment because they feel too sick to finish they 1 antiviral treatment for hepatitis c is expensive sometimes your insurance company will help pay for the cost of the medicine if you do not have insurance you may be able to get help in pay for treatment from the drug company that make peginterferon medical informationarrowwhat is hepatitis c hepatitis c is a liver disease cause by infection with the hepatitis c virus most infection begin with a short term acute illness that often is so mild that most people who have it do not know anything is wrong however up to 85 of people who are infect with the virus will go on to develop long term chronic hepatitis c 2 over time hepatitis c can lead to serious liver problem such as cirrhosis liver cancer or liver failure what is the treatment for hepatitis c treatment involve take a combination of antiviral medication peginterferon and ribavirin peginterferon is give as a shot once a week ribavirin is a pill take 2 time a day acute hepatitis c is rarely treat because most people do not have symptom and therefore are not diagnose at this stage however doctor may recommend treat acute hepatitis c when it is diagnose doctor recommend treatment for chronic hepatitis c when you have a risk of further liver damage such as from the development of cirrhosis or liver cancer how effective is treatment with antiviral medication how well treatment work is measure by whether you still have the virus in your blood 6 month after treatment in general treatment work anywhere from 40 to 80 of the time depend on different factor include your viral genotype 3your informationarrowyour choice are to try antiviral therapy monitor your liver with regular blood test and possibly a biopsy to make sure that your liver is not being severely damage you also will need these blood test if you try antiviral therapy the decision about whether to take antiviral medication for hepatitis c take into account your personal feeling and the medical fact decide about antiviral medication reason to take antiviral medication reason not to take antiviral medication antiviral medication is the only treatment at this time for chronic hepatitis c infection you are at increase risk of develop cirrhosis over time because you have a chronic hepatitis c infection elevate enzyme level for more than 6 month a high level of virus in your blood indicate an active infection and a liver biopsy that show significant liver damage you are more likely than not to have a good response to treatment because you are infect with genotype 2 or 3 you have no other serious medical condition such as heart disease poorly control diabetes depression or active substance abuse the new peginterferon medication combine with oral ribavirin only need to be inject once a week rather than 3 time a week as is need for standard interferon treatment your health insurance plan will pay for most of the treatment or you have other resource to pay for your treatment are there other reason that you might want to take antiviral medication for hepatitis c about half of people who take these medication develop significant side effect include flu like symptom such as fever and muscle ache as well as anemia and mood change such as depression you are not likely to develop cirrhosis because you have normal or only slightly elevate liver enzyme level and a liver biopsy show little or no significant liver damage you have another serious medical condition such as diabete an autoimmune disease depression heart disease or active substance abuse study on the effectiveness of antiviral treatment have not been do on people who have other serious condition you have no health insurance or you have insurance but can not afford to pay for cost not cover by your plan sometimes however medicine for hepatitis c are available free of charge through the company that make they you will not be able to perform your job or take time off if you have significant side effect from the medicine are there other reason that you might not want to take antiviral medication for hepatitis c these personal story may be helpful in make your decision wise health decisionarrowuse this worksheet to help you make your decision after complete it you should have a well idea of how you feel about antiviral treatment discuss the worksheet with your doctor circle the answer that good apply to you my liver enzyme level have been elevate for more than 6 month yes no unsurethe genetic material rna of the hepatitis c virus have been find in my blood which mean that I have an active infection yes no unsurea liver biopsy show that I do not have any liver damage yes no unsurei have genotype 1 which is hard to treat yes no unsurei have genotype 2 or 3 which is easy to treat yes no unsurei have another serious condition such as diabetes heart disease depression or substance abuse yes no unsurei am worried about side effect such as flu like symptom depression and anemia yes no unsurei do not mind have a shot once a week peginterferon yes no unsureuse the follow space to list any other important concern you have about this decision what is your overall impression your answer in the above worksheet are mean to give you a general idea of where you stand on this decision you may have one override reason to take or not take antiviral medication for hepatitis c check the box below that represent your overall impression about your decision lean toward take antiviral medicationleane toward not take antiviral medicationreferencesarrowcitations1 group health cooperative 2003 hepatitis c guideline page 127 seattle group health cooperative 2 dienstag jl 2005 chronic viral hepatitis in good luck mandell et al eds mandell douglas and bennetts principle and practice of infectious disease 6th ed vol 1 page 14411464 philadelphia elsevi churchill livingstone 3 lindsay kl hoofnagle jh 2004 chronic hepatitis c in l goldman jc bennett ed cecil textbook of medicine 22nd ed vol 1 page 917924 philadelphia saunder creditsarrowauthor colleen cronineditor rene spengler rn bsnassociate editor lisa shawassociate editor terrina vailprimary medical reviewer martin gabica md family medicinespecialist medical reviewer steven l flamm md gastroenterologynext article we want to hear from you please send we your feedback webmd medical reference from healthwiselast update september 28 2005this information is not intend to replace the advice of a doctor 1995 2006 healthwise incorporate p o box 1989 boise i d 83701 all right reserve hepatitis c treat it now hepatitis c treat it now hepatitis c treat it now treatment quiz option decision question to ask your doctor consider the most prescribed medication of its kindplease contact I for more information or report hepper hug sallythe only disability in life is a bad attitude scott hamilton and the beat go on sonny bonohttp 360 yahoo com luvvalivvasallyhttp 360 yahoo com my_profile fnnxfai_dq9endt6yuwvkg cq 1 _ login 1http health group yahoo com group luvvalivva,neutral,1
hello my step dad dad was dx with primary liver cancer this past march he have one tumor about 5 cm one around 2 cm and another 1 cm as well as a cluster close to the hepatic artery he take nexavar for 10 day and have a horrible reaction to it in june he have his first chemoemboliztion tace procedure it have been so difficult watch he lose weight have no energy and constantly say he is die we do not really have a time frame and origionally he was go to try for a transplant we now realize that would not be possibly so hopefully the chemo ball keep some tumor from grow even more my husband is a kidney cancer survivor and he was able to have a surgery to remove the cancer but this is much different there is not a cure at all even the one thing that could possibly extend his life a little long make he feel like he is die I appreciate you read and pray for all the family that have to battle this ugly road,negative,0
my mum have have cancer now for 15 year since I was 9 and because she have always been quite well with the cancer have never been a big deal to I she have live with bone and liver cancer and have have daily treatment to minimise the growthr for the last five year but over new year she tell we that it have spread to her brain and she have now decide to give up treatment they have tell she she have about 3 6months leave I am try to get my head around the fact that this thing that have always been there in the background is now a big deal but I am really struggle my 5 year old daughter is very close to she and of course lack in tact I am leave feel very scared I am only 23 and still need someone to be there no matter what 2 year ago my father commit suicide and though I have a wonderful boyfriend there is no one now that have to be there I am lose completely lose,negative,0
http hepatitiscnewdrugs blogspot com 2011 03 government of canada invest in well html mar 25 2011 12 50 et government of canada invest in well treatment for hepatitis c mississauga ontario marketwire march 25 2011 patient with hepatitis c or liver cancer may soon benefit from a novel drug delivery system lead to a safe and more effective treatment thank to an investment from the government of canada in therapure biopharma inc the government of canada is invest in science and technology to create job strengthen the economy and improve the quality of life of canadians say the honourable gary goodyear minister of state science and technology this new drug delivery system will give patient with liver disease a well chance for treatment through the national research council of canada industrial research assistance program nrc irap therapure biopharma inc have receive a financial contribution of 350 000 to complete a range of key study for the pre clinical development of its new product the company is currently develop hemoglobin a natural blood protein to serve as a drug carrier to improve the delivery of medication for hepatitis c and liver cancer this approach is expect to increase the supply of medication to the liver and reduce the drug side effect thirteen member of therapure scientific development team are currently involve in this project we sincerely thank nrc irap for its great support in the testing of this novel drug delivery system say thomas wellner president and chief executive officer of therapure biopharma inc this make in canada program have been an influential solution to therapure research and development need by supply invaluable resource headquarter in mississauga ontario therapure biopharma inc is a biopharmaceutical company that develop manufacture purifie and package therapeutic protein the company apply scientific manufacturing and purification expertise to develop innovative solution that advance product from discovery to market for its client in canada and around the world launch in 2008 therapure now employ close to 100 people about national research council of canada and its industrial research assistance program the industrial research assistance program provide a range of both technical and business orient advisory service along with necessary financial support to qualified innovative small and medium sized enterprise in canada the program is deliver by a field staff of 240 professional in more than 100 community across canada the national research council of canada is commit to work with small and medium sized enterprise while they realize their full potential turn knowledge and innovation into strategic opportunity job and prosperity for all canadians canadas economic action plan provide new resource of 200 million to the national research council of canada industrial research assistance program over two year to support innovative firm in canada learn more at canadas economic action plan website www actionplan gc ca for more information medium only please visit the nrc industrial research assistance program website www nrc cnrc gc ca eng ibp irap html,neutral,1
my mum was diagnose with breast and liver cancer in december 2011 she have tumour cover 50 of her liver and the doctor have say they can control it but not cure it she is 52 they have say she should live at least 3 year as she is young and otherwise healthy in january she start her chemotherapy which is unfortunately make she very ill she just spend two night in hospital as she was dehydrate and get a urine infection her mouth is dry and it is almost impossible for she to eat as she can not swallow and it hurt she also have very bad nausea and can not keep much down when she do manage to eat something my mum live in america and I am in spain but this friday I am fly over to stay with she for 3 month but now I am scared I want to be strong for my mum and help out as much as I can I think I was ready for this but how can anyone prepare themselves to see a love one hurting can anyone give I any advice on how to stay strong and how to support my mum the good I can also if anyone have any food suggestion that I could make for she that are easy to eat that would be great thank you,negative,0
right now I take azathioprine for about 3 mounth now for chron and I can not stop worre about the side affet damage to liver and cancer are the two that get I there long term side affect but still it can not be good for ya I would rather be flare up with chron then have cacer or liver damage anyway have any one go or have any luck go all natural herb,negative,0
I write a poem when my grandad was steal away from liver cancer and I want to share it share my anger and pain share with you my piece of grief so that you all may know you re not alone never alone cancer death evil thief steal away our love one sneaky little thief you hurt so many you do not care you love the kill but for those of we who do you kill we a little too do not you see you do not just get they you take a piece of we too a piece of our heart you evil dirty rotten foulest of thief bring they back let they live give I back that piece you take you sneaky rotten thief death you heartless wretch you re nothing but a thief eh so not very good but I was heartbroken not at my good,neutral,1
one year since I hear you have cancer in your liver then the testing start and I have breast cancer in my lymph node leave breast liver and right lung one rib and two vetebraes I have been on chemo for 10 month and will probably be on it for the rest of my life I thank the lord it is been a year and I am still here the way I see this whole thing is I will either be give a day to rejoice and be glad in or I will be in the present of my god and lord jesus christ sound like a win win situtation to I,positive,2
great article I find the hidden truth of hepatitis as we approach national hepatitis awareness month this may the american liver foundation is on a mission to open people eye and mind the general public often stigmatize hepatitis infection as result from a person life choice this stigma and fear of discrimination it produce prevent people from take action stigma alone can silence people from discuss their concern with their doctor and love one dissuade people from getting test and impose a barrier to medical treatment option in reality the hepatitis virus strike without regard to race gender age education level or socio economic status and impact a wide range of the population than is commonly know consider a nurse who is accidentally stick by a needle the teenager who require an emergency blood transfusion after a near fatal car accident and the mother who unknowingly pass hepatitis b to her unborn child they are all live in a world where programming support and educational effort are need to affect the quality of their life the american liver foundation can help all people struggle and live with hepatitis each day the american liver foundations youth education program target child and teenager teach they the importance of liver wellness and make they aware of the way in which they can prevent hepatitis infection wash their hand before eat handle food and after use the restroom not share toothbrush or razor and make certain that all pierce or tattooing meet the strict sterilization requirement the liver wellness program of the american liver foundation offer literature for adult highlight the importance of hepatitis test for at risk individual because an infected person can be asymptomatic for an extended period of time many people may transmit the hepatitis b and hepatitis c virus unknowingly similarly a lack of knowledge of their status mean that many people do not seek treatment in a timely fashion and do not manage their life in a way that minimize the effect of the disease our treatment choice initiative program educate participant about the liver liver disease specifically hepatitis c treatment option and other disease management strategy the program also invite dialogue around hepatitis c and provide information on local resource an estimate 5 4 million americans have chronic hepatitis c hcv and hepatitis b hbv infection chronic viral hepatitis is the lead cause of liver cancer which now rank as one of the top ten killer of americans over the age of 25 each year 19 000 people die of hcv related liver disease and 4 000 die from hbv relate liver disease without increase awareness of the need for test counseling and prevention initiative hcv related death and long term complication are project to increase dramatically by 2020 liver failure by 106 percent liver cancer by 81 percent and over all death relate to liver disease by 180 percent the american liver foundation have grant more than 21 million to more than 650 researcher conduct priority liver disease research in 2008 alf grant 13 award total over 1 million in research priority fund our commitment to advance treatment and eventually find a cure for liver disease and hepatitis will continue with this year 2009 award that will be announce this spring across the country 16 division of the american liver foundation will be conduct mass market event to raise fund and awareness and share vital disease relate information please visit our website hyperlink http www liverfoundation org www liverfoundation org to find out more about schedule alf event take place in your city and how you can become involved I would like to thank donor and stakeholder that continue to support our organization your support allow we to continue to allocate the resource necessary to fund priority research program educate the general public provide resource to individual with liver disease and advocate on behalf of the 30 million people in the united states who have liver disease,neutral,1
I am new here I have been suffer from nash he and cirrhosis for a long time I was diagnose with cirrhosis when a surgeon take out my gall bladder and see that my liver was trash I have a lot of issue relate to an injury I receive in an airplane crash in 1995 I hurt my back badly and have an instant sleep disorder that take two year to diagnose the pain was bad and I eventually was prescribe narcotic pain killer I get off of they about 10 year ago man were those thing diabolical I have never been an alcoholic but I have the liver of one I get off the pain killer but my brain fog continue until my gall bladder attack my liver number were as they were all my life in the high normal range I was soon diagnose with he and put on lactolous and eventually xyfaxan this help my brain a great deal and I have been able to work well as a professional inventor robotic designer chemist and so on in 2014 I have a liver resection to successfully remove a primary liver cancer on my left lobe since then I have been pretty good the disease progress to the point that I have lose so much muscle mass that I have to give up my 57 year passion of ski weak guy who ski too fast are prone to really nasty injury my condition have been pretty stable twice a year I get an mri and I meet my specialist who is a leader of the liver transplant team here at the you of a hospital in edmonton bloodwork every 3 month current meld score is 9 so short of another about of cancer I will not likely get a transplant as a result of my age lately however I have start suffer from headache I have never have headache as a feature in my life before I am find it difficult to deal with they and a tad paranoid that they are indicate a brain tumour two friend have die of brain cancer in the past few month and I think that is play a role in my thinking of it I am a bit like arnie in kindergarten cop tell the kid that it is not a tumour have anyone else experience these sort of symptom,negative,0
hi everyone I am not sure if I am allow to post here because my mom die in 1997 I have never really deal with the pain everytime I think of she I cry so I try not to think of she she was diagnose with liver cancer on july 1st 1996 and die july 23 1997 I can not bear live without she I am so upset just write this post I have a really hard time on my birthday her birthday mother day christmas any holiday really because she make they all so special anyway I am just ramble on here I guess I just want to let the world know that I miss you mom and will always love you,negative,0
hi everyone I just join the group I have been read the post for a while and am convince this is a good group I lose my wife to liver cancer on september 11 2011 she was diagnose in february 2011 and do pretty good until the beginning of september I was her caregiver she was in hospice but the hospice nurse just have to come once a week she die at home I miss she so much we were marry for 48 year she was 18 and I was 21 when we marry but we go together for a couple of year before that she was my life anyway I want to say hi and hope to talk to you all in the future bill,negative,0
I have been think a lot lately about happiness for the future I was so blesssed to be able and have heart to heart talk with my husband before he leave this world he was the strong person I have ever know and have even more love and admiration for he for what he do for I in those 5 month since he was diagnose with liver cancer I just wonder do anyone ever really go on to be happy in life again after such a huge loss how do anyone regain their security I know it take time and all that but is there really true happiness like we once have or is it a fake happiness just go through today I learn the end of our time brenda,negative,0
this have not been bring up in a while but I want to invite anyone to vent who is grieve someone they are not suppose to care about that much I think a lot of we get blindside by reaction to loss we do not expect to affect we so much like when I lose a co worker I do not really know that well to liver cancer or loss we do not have social permission to grieve like the member here who is secretly in agony because the married man she was have a secret affair with die or loss that are big but not typical like when the goldfish you ve have for 22 year give up the ghost sometimes you simply have no one to talk to about something like this is anyone but I go through this,negative,0
my grandfather pass away 2 month ago from stomach cancer and liver cancer I have hear from my grandmother that he always complain of indigestion and heart burn now lately everything I eat some how repeat on I some day are good I can eat regular food and nothing happen and other day I drink water and the burn come back up it is to the point where I feel chest pain and have been to the er for it in which they perscribe famotidine so I am 27 year old and I do not know what I should do I know obviously I should see a gastro doc but that little camera hose they have to stick down your throat is freak I out is it really that bad what can I expect how long do the heart burn take to destroy your inside I have never have heart burn now it is been 3 month with it on go,negative,0
hi my name is lisa I have been in an abussive relationship for the last year he have been physically and verbally abusse I I have leave many time and he have make many promise but he do not keep they he have been very sick with colon cancer and then liver cancer for most of our relationship last night he hit I for the last time with the help of a friend here on d s I get the strength to go and file a police report on he thank you dear friend I am very glad I do it it is help I to put closure to this terrible situation the problem I am face is that I need to put out an arrest warrant and a restraining order on he I am feel tremendous guilt over do so with he being so sick the doctor have only give he a 20 30 chance to be alive in 5 year I know I am not go back for anymore abuse but I feel like I have abandon he when he is so sick eventhough I feel this way I am not go back ever again do anyone have any advise your friend lisa abusehurt,negative,0
to day I run into a friend at costco who tell I about another friend of our who I have lose touch with over the year my old friend and I have our frist child together 23 year ago both have boy turn out her boy have been diagnose at 21 with liver cancer in the summer of 06 shortly after she soon was diagnose she too was diagnose with breast cancer as you can imagine her first priority was her son and seek a medical miracle for he then sometime during the next few month she undergo a double mastecotomy lose all her hair but continue to help her son fight this terrible desease as it turn out the boy is now in palliative care near the end of his struggle and she just cancel her hesterectomy she was just do to have as they have find it on her ovary now to be at her son bedside so to all my fellow dvter just when we think our life stink there s always something to be thankful for,positive,2
this article is from the university of oxford of the uk an interesting q a that is definitely worth read a podcast accompanie this article also combat hepatitis c dr ellie barne aim to develop a prophylactic and a therapeutic hepatitis c virus vaccine to combat a global epidemic currently infect 170 million people worldwide many chronically infected patient silently develop complication of liver disease that can include hepatocellular cancer liver cirrhosis and liver failure here the rest of the article http www ndm ox ac uk ellie barne hepatitis c vaccine respectfully henry,neutral,1
I am 45 year old now I was molest as a young child by different people and I have been in therapy I am not see this therapist now as she die of liver cancer last year the thing is I think I have deal with it and was do ok but the thing is I do not think about it for a long time and all of a sudden it all come back and it is all I think about this seem to happen a lot is this normal or am I just crazy because sometimes I feel like I am crazy I can not sleep because I have nightmare I pray about it all the time but do not know what else to do the thing is I can not afford therapy now as I am too strapped financially this just suck because I just want to move past this already I also suffer from depression and this is the main reason why,negative,0
my son is diagnose with autism spectrum disorder a k a asperger syndrome he just get of two year of residential treatment he learn to follow a schedule do chore how to communicate more effectively and how to initiate friend with people around his age group he just turn 17 in february we as a family just find out my husband jonathans father have stage 3c liver cancer were all fall apart but jon is take it hard he would make all these plan to have a more involved relationship with his dad but doug my husband is always tired angry or in immense pain I hope there are active member of this group please do respond even to tell I that you exist so we do not feel so alone thank you,negative,0
I just get a phone call that my father just die nobody tell I he was sick he have been sick for 3 year but nobody tell I because we were estranged my last word to he were I hate you you fucking bastard alcoholic nobody tell I nobody tell I nobody tell I I do not know he was sick or paralyzed or have liver cancer his 3rd wife never think to tell I until today rocky relationship I do love he though need help please help I can not stop cry please help I process if possible I have nobody to talk to,negative,0
my old son who is 66 year old lose his wife to liver cancer several year ago he own a home on 5 wooded acre so he was busy for awhile he finally sell his rv and go on a cruise and meet someone she live in a different state but travel for her job so they meet in different place wherever her job take she they are have fun she is quite a bit young 50 year old to his 66 but this seem to work for they I want to share this with you people here sometimes there is a light at the end of a tunnel we have snow here washington state and it is 35 degree so anything might happen in the next few day sigh,positive,2
hi all my dad is being treat for his liver cancer he have hep c in a few day by tace from what I have read on this group so far it look like a few of you have experience with the treatment so I was wonder what that was like how do you feel during and after the procedure is there anything I can do to help he and his wife deal is he go to be tired and wear down like with other chemo treatment I do not live near my dad but I am go up to visit he this weekend and his procedure is schedule for early next week anything I can do while I am there ahead of time thank for share your wisdom megan,negative,0
I feel guilty today because I am so depressed cbt is not anywhere in my head my friednd have liver cancer now that is really sick people are flock to her house like the funeral already happen if your depress no one get it they do the bad thing and just leave you alone if only I have a real illness then people would care now I know it is a real illness yet the way people treat I I feel like I have the plague I hurt I m sad just like my friend I do not do anything to myself to cause this disease oh well just ramble I m still here friday I do not think I would see another day today I wish I would not damn this suck,negative,0
hello I just join this site today so glad to have find it because I am feel quite overwhelmed my 74 year old dad have just been diagnose with liver cancer his tumor is 8 cm and doctor are say that it is inoperable primarily because of the location he have a biopsy schedule for next thursday my 3year old daughter and I are fly down next wednesday to be with my folk my parent have express to I that they do not want to pursue surgery or chemotherapy they want to pursue alternative treatment method would anyone like to share their experience or advice on other treatment plan should my parent really be rule out chemotherapy thank you for reading and god bless you all sofia,negative,0
my husband and I are go thru a very tough time in our marriage right now he is out of town for medical reason as some of you may know my husband was diagnose with ocular melanoma in 2006 he have his treatment that same year and everything was go smoothly until february in february his oncologist find another tumor in the same eye so they schedule a ct scan and another checkup on april 11th there they find a spot on his liver so yesterday he have his mri and he is wait for the result on monday if the spot is not cancerous then they will remove his eye and if it is cancerous then he get to keep his eye but will have to deal with liver cancer for year his big fear with the melanoma would metastisize to another organ for the past two month he have not been sleep well since his appointment yesterday he have do nothing but have an occasional meal out by himself then go back to the hotel and sleep he have barely talk to I do not talk to anyone about what he is go thru with the cancer and he is sleep all the time is this normal should I be worried or is this just a process he is go thru I hope that all this sleep is just a good opportunity for he because he have no interruption no job responsibility down there and so on so he can finally get the rest he need any input on this type of behavior thank,negative,0
my gi doctor have start use this test last month it detect abnormal liver protein which could mean cancer anybody here have this test or any information about it have always get the standard afp test the same one give to woman during an amniocentesis it apparently detect excess protein that could mean problem this one is new and apparently more accurate although my doctor explain it like win the lottery the old test may have been one out of a million this one is one out of 500 000 so not something to be alarm about simply a prediction of cancer of the liver and another way to watch for complication,neutral,1
I am in shock I feel numb feel helpless do not know what to do want to share but also do not want to bother anyone the real world suck sometimes what life deal suck sometimes too oh well here go have a dear friend of 3 yrs who is a full blow alcholic with hard liquor a 2 5th a day and bp and have been in rehab 6 time in 2 yrs and still keep on kickin it then have another dear friend of 15 yrs who was a casual beer drinker and just last week was tell he have liver cancer and 4 6 month to live tumor is inoperable the size of a baseball attach to liver and lung I just do not get it first friend go out of her way to abuse and second friend never have it is just blow my mind you d think first friend 56 yrs old would ve kill herself by now with all she is do her liver and pancrea are shoot but noooooooo not that I wish she bad that is not it at all I am glad she is do the right thing and listen to I to get back into rehab again it is a matter of life or death for she but for second friend who have always been healthy and only 50 yrs old get tell he have 4 6 month to live and the cancer is just eat he up alive I just do not get it,negative,0
I have it on my appendix and a mass in my colon that is cancerous it was all remove there but still have cancer in the liver want to know if this type of cancer is fast move also what stage it might be I have to get another liver bioposy have not start chemo yet please reply if anyone know about this cancer thank you beverly,negative,0
I am new to this site look for information and encouragement my mother is 56 year old have been a drinker most of her life until 9 20 07 when she was tell if she keep drink she would die I have try to get my mother to quit drink all my life to no avail the problem start when I notice she have edema in her leg and foot I insist she go to the doctor she have been tell today by a specialist that her liver is in bad condition since she have quit drink 9 20 07 her edema have improve greatly she is schedule to have a scope test this friday to go down her throat to check for bleeding and now they are check her blood for liver cancer and other thing I do not want to lose my mother and I am so scared I want to be supportive to she and stay strong but I am afraid it might be too late any input from other would be a great help,negative,0
thing I experience while have cirrhosis pain in liver arealow plateletshigh inrdiabetesportal pressurehemorrhoidsvarice in esophagusfluid in lungsfluid in belly and body ascite hepatic encephalopathyloss of appetitesevere anemiasevere fatiguesleep reversallow immunityedlack of concentrationloss of drive privilegesforgetfulnessdepressiontooth and gum decaylow hemoglobinmood changespain killer limit to 4 tylenol per daymuscle lossliver cancerswollen spleensplenic artery aneurysmany temp over 100 5 require visit to er medicine that cause 24 7 diarrheashortness of breathbreast enlargementvery easy bruisingtwo water pill per day you know what that produce there are probably more thing I forget if anyone ask you how are you do remember this list 11 month post transplant 90 item on this list go,neutral,1
food and supplement to avoid for those with hepatitis liver diseaseraw shellfish oyster and clam have been the source of many outbreak of hepatitis a people with chronic liver disease are at increase risk of complication and poor outcome if they become infected with hepatitis a therefore all people with chronic liver disease who intend to eat shellfish should get the hepatitis a vaccination see chapter 24 for more information on vaccination there have been some report of people with hemochromatosis die from eat raw shellfish that was contaminate with the bacteria vibrio vulnificus high iron level have been link to fatal infection with this bacteria therefore it is probably wise for people with hemochromatosis other liver disease with high iron level such as hepatitis c and cirrhosis due to any liver disease to avoid raw or poorly cook shellfish well cook shellfish on the other hand is not dangerous many wild mushroom find in north america and europe contain deadly toxin know as phallotoxin phalloidin and alpha amanitin these mushroom are renowned for cause liver failure or even death when consume as a precaution all patient with liver disease are advise to avoid eat wild mushroom especially if self pick see chapter 21 for more information concern these mushroom shark cartilage is a nutritional supplement that have been purport to be of benefit to some people with cancer there is a possible although unproven association be tween shark cartilage and drug induce hepatitis people with chronic liver disease are well advise to avoid this supplement until it have been evaluate far aflatoxin a hepatotoxin common in asia and southern africa but uncommon in the united states is produce by a fungus aspergillus this fungus is a potential contaminant of food that have been store for prolong period of time in damp warm condition the most commonly infect food are peanut and corn in some country aflatoxin have been link to hepatitis cirrhosis and liver cancer this is discuss in more detail inmy book saccharin a sweetener have been associate with acute hepatitis even though this association have not been conclusively prove people with liver disease are well advise to avoid saccharin all content of this article are copyright melissa palmer mdmelissa palmer md is the author of dr melissa palmer guide of hepatitis and liver disease publish 2004 penguin putnam,neutral,1
hi everyone I am mckenzie use to be the community leader of the main board of hepatitis c due to illness and a tragedy in my life I have take a few year off being a leader never do return to the ds hep c forum but am very active in many page on facebook I do treatment many moo ago over a dozen of year do clear the virus but have been leave with long last side effect and many new illness that I have try and try to cope with one day at the time having been diagnose with diabetes 2 in 2008 but I am sure I must have contract it post treatment anyways last year have 2 ultrasound and 1 ct scan do on I only to reveal that I have the non alcoholic fatty liver disease this would explain the weight gain since do 48 week of the old combo pegetron ribavirin 1200mgs a day I was so sick feel like everyday I was die but manage to finish with fly color but gain lot of health issue along the way which bring I to this forum I have know kathy for many year and always appreciate her work with the alternative way of heal our liver problem so post being diagnose with fatty liver which could lead to heart attack cirrhosis of the liver even liver cancer already over 12 year as past so I need to do something about this scary diagnose and who well to help I then our darling kathy I am start to juice my food as much as possible and should clear my liver by 6 month from now if not soon so if you should have any recipe re diabetes or fatty liver problem feel free to let I know please thank you mckenzie one day at the time 3,neutral,1
she look so fine we were make plan to walk in the breast cancer 3 day this year as we do last year then out of the blue she tell I that they were go to put she on this medicine that was basically go to put she to sleep for a whole year so I tell she to pack all her stuff up put it in storage she was come to live with I well she do and was go back and forth to the drs to go through all kind of test I do not understand why they do not put she on the medicine when they say they were which was suppose to be aug 20th so on aug 24th she have to go see her dr I go with she that s when they tell she the hep c cause liver cancer and sirose however you spell it and that there was nothing more they could do for she and they think it would be good if we get hospice involve she die a weak and a half later,negative,0
hello not sure where to go or how to ask I have liver cancer and tumor have hep c 111 and docter give I year maby two on the liver but tumor grow fast at this point stop go docter and recieving treatment have alot small problem to go along with it I am just give it to god do not think surery would help think it would be a knock out punch for I I want to have the good peice of mind can tell end my big problem is few year after married find out have been about 3 year going throw this and not able to work apply for help but do not know what to do and it expire for appeal have reapply but by this point I and wife have struggle with bill because she only one work and work very hard cleaning at school I am 55 and she is 56 not good health ether I fall so bad watch she so sore when come home and she play the paino at church which help she I have nothin to leave she when go and can not help while iam here please if can give I any advice it would help god bless and thank you,negative,0
http www aidsmap com new drug will bring revolution in hepatitis c treatment page 2781657 many next generation hcv drug now in the pipeline are well tolerate more convenient and raise cure rate even far often into the 90 to 100 range for people with favourable response predictor as add on they improve the efficacy of interferon base therapy but the real revolution will be all oral interferon free regimen not only will new treatment be more effective wedemeyer explain but all oral regimen will dramatically increase the number of treatable patient many of whom can not tolerate interferon ultimately we should be able to treat almost all patient and hopefully if this become widely know general practitioner will be more likely to screen for hcv and offer treatment he say more effective therapy will not only raise the likelihood of sustained virological response but study have show that svr is associate with reduce risk of progression to advanced liver disease liver cancer and mortality new therapy will not only cure hcv but will save life wedemeyer emphasise,neutral,1
milk thistle herb protect cancer patient from chemotherapy associate liver toxicity sciencedaily dec 27 2009 a new study find that the herb milk thistle may help treat liver inflammation in cancer patient who receive chemotherapy publish early online in cancer a peer review journal of the american cancer society the study indicate that the herb could allow patient to take potent dose of chemotherapy without damage their liver chemotherapy drug frequently cause inflammation in the liver and when they do doctor must often lower patient dose or stop administer the therapy altogether clinical study have investigate use milk thistle to treat liver damage from cirrhosis from alcohol or toxin such as mushroom poisoning despite limited study datum the herb is often use for the treatment of chemotherapy associate liver problem to test whether milk thistle could help treat chemotherapy associate liver problem kara kelly md of the new york presbyterian hospital columbia university medical center herbert irving comprehensive cancer center in new york city and colleague conduct a randomize control double blind study in child with acute lymphoblastic leukemia all who commonly experience this side effect fifty child with all were enrol in the study and were randomize to receive milk thistle or placebo for 28 day at the start of the study all of the child have evidence of liver inflammation as measure by elevation in blood level of the liver enzyme aspartate amino transferase ast and amino alanine transferase alt when the investigator perform liver function test on the child at day 56 28 day after receive the herb or placebo child receive milk thistle have improvement in their liver enzyme compare with child receive a placebo specifically the group that take milk thistle have significantly low level of ast and a trend towards significantly low level of alt take milk thistle also seem to help keep few patient from have to lower the dose of their medication chemotherapy dose were reduce in 61 percent of the group receive milk thistle compare with 72 percent of the placebo group in addition milk thistle appear to be safe for consumption the researcher also study the effect of combine milk thistle with chemotherapy on leukemia cell grow in the laboratory they find that milk thistle do not interfere with the cancer fighting property of chemotherapy milk thistle need to be study far to see how effective it is for a long course of treatment and whether it work well in reduce liver inflammation in other type of cancer and with other type of chemotherapy say dr kelly however our result are promise as there are no substitute medication for treat liver toxicity,neutral,1
if they can come up with thing like artificial heart and other organ why can not they do one for the liver and save more life and in 2010 why can not they cure cancer yet I think these thing because I know so many who have spouse die of liver disease and cancer I know they make big stride into certain cancer but I feel resentful and other that are hurt may feel the same way,neutral,1
my dad have hepatocellular carcinoma he was diagnose in march they find the cancer during routine blood work because of a medication he was on as far as I know he is still show no symptom of the disease but I do not know if he would tell we if he was he have a mass on his lung as well a biopsy was perform and come back as a benign tumor accord to the thoracic surgeon my dad hematologist and surgical oncologist are say that just because the test come back negative do not mean it is benign they also inform we that the tumor in his liver is inoperable they want to start he on nexavar but we are not get any real answer to our question I have read about the side effect and I wonder if the treatment is worth it do not get I wrong I want my dad around as long as possible if he is not suffer he is 71 year old and if he is go to spend the next possibly last 6 month of his life vomit exhaust unable to walk and do the thing he enjoy is it really worth it I know nobody can say how much time the treatment will give he but they would not tell we what could happen if he choose not to take the medication I want to know what can happen if he do not get treatment and what can happen if he do this way I can give he an idea of what can happen with each option so he can make his decision I guess what I do not want to see happen is for he to start the medication have it make he sick and then a few month later the effect of the cancer take over and he is sick again that would just make no sense to I anyway if anybody out there have any advice or insight as far as the effect of nexavar and or liver cancer I would appreciate the information good luck to anyone out there struggle with health issue or any other issue,negative,0
government of canada fund peer support network for people live with hepatitis c virus where is usa apr 09 2008 10 28 et fort mcmurray alberta marketwir e april 9 2008 brian jean member of parliament for fort mcmurray athabasca and parliamentary secretary to the minister of transport infrastructure and community today announce on behalf of minister of health tony clement 13 500 for the wood buffalo hiv aids society to fund a project address the hepatitis c virus hcv epidemic include hcv hiv co infection with this funding the society will develop a peer support network to provide a supportive environment for those infect with or affect by hcv in the region hcv is a devastating but preventable disease say minister of health tony clement by reach out to at risk community and provide they with this kind of support we will be able to well address risk factor and help to promote behaviour that can reduce the risk of transmission the wood buffalo hiv aids society will build on the principle of peer base support and health promotion to increase healthy behaviour and reduce the rate of hcv transmission in fort mcmurray project activity will include the development of a formalize community network of project partner promotion of hcv prevention to increase knowledge and awareness within the community and among at risk population and the development of peer support group for those live with or affect by hcv the project will also address issue of co infection include co infection with hiv the government of canada is dedicate to build strong and healthy community say member of parliament brian jean by address hcv at the community level our government is make a difference for people here in fort mcmurray hcv is spread through contact with infected blood and cause an inflammation of the liver that can lead to cirrhosis and liver cancer approximately 250 000 people in canada are live with hcv and approximately 3 200 newly acquire infection are diagnose each year condition cause by hcv e g cirrhosis or liver cancer progress slowly and symptom may not show for year therefore approximately an estimate 35 per cent of those person live with the virus are unaware that they are infect some common risk factor for hcv infection include share needle or other drug relate equipment get a tattoo body pierce or acupuncture from an operator who do not use sterilize equipment or technique being bear to a mother with hcv being expose to infected blood in the workplace such as needle stick injury or any other incident where inflect blood come in contact with broken skin and being expose to contaminate medical equipment in part of the world where hcv is endemic share personal item like a razor or toothbrush with an infected person person who were expose to contaminated blood blood product or organ transplantation prior to 1992 may also be at risk,neutral,1
http www lungcanceralliance org newmanpressrelease9_27_08 html a statement from lung cancer alliance on the death of paul newmanlung cancer alliance president and ceo laurie fenton ambrose issue the follow statement all of we at lung cancer alliance our board our advocate and the patient family and caregiver we represent extend our deep sympathy to the wife and family of paul newman mister newman was an icon of the american stage and film love by audience around the world he and his devoted and equally talented wife joanne woodward also change the life of people in the united states and around the world through their many philanthropic project two month ago report begin to appear in the press that mister newman was undergo treatment for lung cancer many of those report refer to he a former chain smoker with all the insinuation inherent in that label mister newman was first and foremost a great man and we mourn his pass over 215 000 people will be diagnose with lung cancer this year and the majority will die within 12 month more people die from lung cancer than breast prostate colon kidney melanoma and liver cancer combine over half of they are former smoker many of whom quit decade ago and do not even realize that they will always be at high risk another 15 have never smoke at all yet the stigma and the blame associate with lung cancer and the small number of people who survive to fight this have make lung cancer the least fund of the major cancer in federal research dollar per death our commitment to all who have die and to all those family that have been hurt by this deadly disease is we will change this lung cancer alliance www lungcanceralliance org is the only national non profit organization dedicate exclusively to patient support and advocacy for those live with or at risk for lung cancer lung cancer alliance is commit to lead the movement to reverse decade of stigma and neglect by empower those with or at risk for the disease elevate awareness and change health policy,neutral,1
have other people hear of the connection between hcv and non hodgkin lymphoma its kind of scary but extremly interesting too anyone on here been diagnose with both here an article I find hepatitis c may boost non hodgkin riskfinding may support screen patient for non hodgkin lymphoma webmd hepatitis c may make non hodgkin lymphoma more likely researcher report in the journal of the american medical association that may mean that people with hepatitis c should be screen for non hodgkin lymphoma note the researcher who include eric engels md mile per hour of the national cancer institute lymphomas are cancer of the lymph system hepatitis c is cause by the hepatitis c virus hcv hepatitis c infection can cause liver damage include cirrhosis and lead to liver cancer however most people with hepatitis c infection have no symptom and many have little liver damage although the risk of develop lymphomas is small our research suggest that screening of hcv infected individual could identify condition which may lead to cancer it might then be possible to prevent progression to lymphoma say engel in a national cancer institute news release engel colleague include thomas giordano m d mile per hour who work in houston at the baylor college of medicine and the houston center for quality of care and utilization study at the michael e debakey veterans affairs medical center they study the 1997 2004 medical record of more than 718 000 you s military veteran include more than 146 000 hepatitis c patient the veteran most of whom were white man were 52 year old on average the study show that veteran with hepatitis c were 20 percent to 30 percent more likely to be diagnose with non hodgkin lymphoma than those without hepatitis c hepatitis c infection was also link to a nearly threefold increase in a related cancer of white blood cell call waldenstrom macroglobulinemia the researcher are not sure how hepatitis c make non hodgkin lymphoma more likely or if the finding apply to other group of people hepatitis c infection is more common among military veteran than among the general public about 5 percent of veteran have hepatitis c compare with less than 2 percent of you s civilian accord to background information cite in the study the researcher call for further study to probe the possible link between hepatitis c infection and non hodgkin lymphoma,neutral,1
god bless the queen or long live the queen whatever it is that our friend across the water say I initially think that chinese were the one who are presently lead the way when it come to research for either find e cure or well treatment for liver disease however while this may still be true I now believe that britain have been lead the way in liver disease research for quite some time my assumption however are base on what information is being make available on the internet it is possible that other great progress is being make in liver disease research in other country yet it is not available on the internet when I say information I am mostly refer to publish scientific study base on information that is being make available on the internet I believe the follow country are lead the way in liver disease research united kingdom united states china and japan this is not to say that scientist from other country have not make significant contribution as well what is truly exciting is that the scientific knowledge in the area of liver disease research is grow at a rate never before see we are presently see scientific breakthrough in liver disease research that will undoubtedly lead to more effective treatment and even a cure because of the overwhelming scientific evidence we now know that reverse liver fibrosis in patient is not only possible but a reality just as wontquit recently say its no long a question of if in the scientific community its now just a matter of figure out exactly how and when the when I believe is much soon than people realize the how is already being figure out right before eye rest assure scientist are presently study what is in coffee melatonin milk thistle some blood pressure medication and some arthritis medication that are show the ability to prevent cirrhosis prevent liver cancer improve liver function halt fibrosis and even reverse fibrosis the reason I am confident we will continue to see more major scientific breakthrough over the come month is because the age of science have now meet the information age just think of it if the average person can now search the internet and read about what scientist from china or other country are learn in liver disease research consider how much more scientist are also able to utilize these scientific finding in their own research,positive,2
first off you need to understand the 2 stage of hep c understand the stage in hep c might help with the discission you make on weather to try the chemo treatment or go with the alternative medacine way let I try and help you understand the difference here it go there is an initial acute stage of hepatitis c and there is chronic hepatitis c acute hepatitis c may last approximately six month while many patient may have no symptom some patient may experience fatigue loss of appetite jaundice yellow of the skin and abdominal pain the abdominal pain may indicate that the liver have become swollen or tender as most patient are unable to fight off the hcv virus without intervention the disease then move on to the chronic stage chronic hepatitis c is of extremely long duration usually progress over a period of 10 to 30 year approximately 80 of the infected population will enter this stage where the disease may lead to cirrhosis liver cancer and liver failure in some case the disease is fatal to sum this all up a person who have have hep c for more than 6 month move into the cronic stage where the virus no long have a chance to clear on its own thus the only prove way to eradicate the virus is to do treatment once a person have moove from the acute stage to the cronic stage there are no herbal method that are prove to do what treatment can do which is help you reach an undetectable viral load so if anybody is in the acute stage I would suggest try alternative way before treatment but once you become cronic your only hope to clear the virus is the chemo treatment hope htis help some to understand take care allxoxoxbrave rabbit,neutral,1
just get the mri report it is probably not cancer the doctor who run the test and who is suppose to be an expert in liver imaging say it is a probable perfusion lesion something to do with wacky circulation inside the liver due to cirrhosis and not cancer I shall undergo an additional liver mri in 6 month just to make sure but I talk to the doctor and he say to relax,positive,2
hi I am new to this support group I and my huby and our 3 year old and my newborn live with my husband parent we get along really good all of we he go for a biopsy on thursday and get the result back today turn out he have secondary liver cancer the dr tell my brother in low that he do not have to long thy can not find from wear the cancer is come from he have the nest appointment on tuesday I am break by the news and can not even imagine how my husband and his mom and brother is feel I can not help but to feel as the outsider I have to bee the one to not brake down and to be there for all of they to lean on I I am so worried on how to handle everyone when thy get home from the dr and how to handle my huby when he get home from work what do I do or say to he he seem to have become very distant over the phone when I speak to he I could really use some advise from people that have been down this rode I am so scared of what the future hold,negative,0
a little background on I I am bipolar type 1without psychosis I am an alcoholic with 6 1 2 year sobriety and I have asperger syndrome I am not currently experience an episode but I am under a great deal of strain and do not have anyone who can really take it off my wife is bipolar 2 and she have been have a really bad time recently have hardly been able to leave the house my mom have intractable chronic pain my aunt who have always been good to I was just diagnose with breast and lung cancer and have no one other than myself my wife and my mother to help she because her son refuse to even visit she and today my grandfather who raise I as a son and is probably my good friend turn yellow and was diagnose with liver cancer I am about ready to explode have anyone out there ever deal with anything like this I feel like run away or disappear I should also point out that I am brand new to this so sorry for the wordiness,negative,0
I have fibromyalgia and I take care of my son who have paranoid schizophrenia that is just barely under control no problem jan 6th one of my three friend spend the night with we they have tell she she have liver cancer but she was fine she die seven week later I was handle that pretty well now one of my other friend the one who live with I just friend have been in pain since right before christmas and we ve been run back and forth to the er it is cancer and I am think it must be bad too late before christ of the pain the doctor have she go for mris every day this week to locate it I pray and I am good until she lose it then I lose it and my body lose it I am fix to read through the stuff on the right of the page to see what else help but I need to talk about it to someone and you all are it,negative,0
I know I do not fully make the description of this group but I am lose my mother to cancer she is my good friend and my hero she was diagnose with terminal liver cancer 5 month ago at the time she was give 2 week to 2 month the road have been hard and have been make more try with the fact that I am pregnant currently 8 month I keep grasp to the hope that my mother will be able to hold my son but at this point it is say that it would be a miracle I could use any help that anyone could give I do not know where to turn I am at a loss and I do not know what to do anymore I am try so hard to stay strong for my unborn son but it is so hard I find myself lose control when I go to visit because I have to face the harsh reality but I do not want to face it it is not fair and I am angry and I do not know what to do anymore,negative,0
hi guy sorry again I have not been on to update I can not seem to keep thing straight last week was crazy long story short we have a meeting with all hubby drs we finally have some good news accord to the pet scan the cancer is contain to one 4x6 cm tumor in the liver they see no evidence anywhere else not even the lymph node miraculously they feel that the lymph node that were malignant were remove with his last surgery his cea test which is a blood test that measure tumor activity like a tumor marker come back at 0 6 normal is 0 5 so he is on the low end of normal which is wonderful news we have hear of people with metastatic colon cancer with level in the thousand the liver surgeon who is a specialist at liver transplant feel this tumor is 100 operable they say to look at this as stage 3 because there is only one other malignant operable tumor have it not been operable they would stage he at stage 4 well take any victory we can get so friday he have a liver biopsy just to confirm that this is metastasize colon cancer and not a secondary liver cancer which they doubt that was a hard procedure for he we were at the hospital for 6 long hrs they plan now is we are wait for one more test on the primary tumor to come back to see what the good protocol would be for he depend on this test they may be able to just treat he with an oral chemo protocol he is so hope for that so that he would not need a port and he would not need to go to the hospital twice a week they do say it is a slight chance so we hope to know by friday which is the day he is schedule for the port then they will give he chemo until july they will re stage he then and let his body recover so that the surgery to remove the liver tumor will be in august then more chemo to be safe this will be about 9 month of treatment total he is go to try to work but if it is do more harm than good I will make he stop we are both worried about how we will manage financially but god will provide the drs all feel strongly that he can be cure we refuse to believe anything elsei have some injection in my back last week and am suppose to go again next week but that will depend on hubbys apt my back is a mess of coursetoday we are take his dad for a procedure ugh this have been non stop maddie have a dance competition on saturday that was exhausting but she love it as always I can not help but think that use to be one of my big worry amazing how your life can changethank you again for all the prayer and support I try to get on here as much as possible we will get into a routine eventually I am sure for now we are thank god that this have not spread any far and take it one step at a time xoxoautumn,positive,2
I am update you all and let you know I am feel a whole lot well the last year 2009 take a huge toll on I as some of you may know my grandpa die in oct 2009 I lose my aunt in in aug 2008 my grandma survive breast cancer my step dad have primary progressive aphasia and it is progressively get bad but we spend a lot of time together he and my mom and I next my uncle was diagnose at the end of 2009 with terminal liver cancer so I never really have time to process all the pain I just stuff somewhere and go into a survival mode I am amazed at how my mom have come through all of this in one piece she to have have depression with all that have happen but I think finally she is on the mendbut I am do much well I am on medicine and have lose up to now 30 pound it do not help that in the middle of all of this I was also have clinical depression at least that is under control and in check how do I keep from go through this clinical depression and and food addiction all over again if something stressful or horrible happen anyone,negative,0
I am freak out inside cause I to be near full blow panic attack and full blow migraine just hit I was with my husband hold he as he die we are in the car on the way to say final goodbye to a family friend who go to the er11 day ago got admit they find liver cancer so bad and fast grow its take over her body pastor and wife have lunch with my parent and I on thursday and my mom say were go to see alice tomorrow or saturday we do not know the cancer was so bad he say even tomorrow may be too late if your go go today and she is ask for you guy I just take a klonopin its the dissolvable kind pray it help I how do I deal wi t h death again it keep happen I hate adulte I am so scared,negative,0
poison I take a friggin boatload of this over the year and it is no wonder my health is not get well and only bad with the exception of my liver ironically now this news come out and all I want to do is explode in vengeance not that I am go to it is just that I feel like say fu k it wednesday january 30 2013 chronic hepatitis c interferon may be harmful in re treatment people with hepatitis c and chronic liver disease who relapse or fail to respond to initial treatment are unlikely to improve on interferon retreatment in fact they may face an increase risk of die soon and are likely to experience a variety of adverse effect accord to an update systematic review publish in the cochrane library hepatitis c affect around 170 million people worldwide in some case infection lead to chronic liver disease liver failure or liver cancer eventually result in death treatment is base on antiviral drug interferon monotherapy mean use interferon alone is not the first choice of therapy for most clinician but it is use in some patient when other drug can not be use despite cost thousand of dollar to treat one patient for a year there is currently little evidence that it work treatment is consider to have been successful if the virus can not be detect in a patient blood six month after treatment this outcome is know as sustained viral response svr however it have never been confirm that svr lead to an improvement in the patient disease state or their chance of survival read more at http medicalxpress com news 2013 01 chronic hepatitis interferon re treatment html jcp this really fu king suck succatash time to sue schering plough the article can be find here http hcvadvocate blogspot ca 2013 01 chronic hepatitis c interferon may be html,negative,0
combat the silent epidemic of viral hepatitis action plan for the prevention care and treatment of viral hepatitis hepatitis is a hidden epidemic with significant public health consequence an estimate 3 5 5 3 million person are live with viral hepatitis in the united states and million more are at risk for infection because viral hepatitis can persist for decade without symptom 65 75 of infect americans remain unaware of their infection status and are not receive care and treatment hepatitis which is largely preventable is the lead cause of liver cancer without timely care 1 in 4 person with chronic hepatitis will develop liver cirrhosis or liver cancer action plan for the prevention care and treatment of viral hepatitis the department of health and human service is commit to ensure that new case of viral hepatitis are prevent and that person who are already infect are test inform about their infection and provide with counseling care and treatment this increase commitment is evidence in the new healthy people 2020 horsepower 2020 report the first healthy people publication to document increase viral hepatitis awareness among infected person as a formal hhs objective in addition to move the nation towards reach horsepower 2020 objective by 2020 full implementation of the viral hepatitis action plan could result in an increase in the proportion of person who are aware of their hepatitis b virus infection from 33 to 66 an increase in the proportion of person who are aware of their hepatitis c virus infection from 45 to 66 a 25 reduction in the number of new case of hcv infection and elimination of mother to child transmission of hbv on may 12 2011 hhs issue combat the silent epidemic of viral hepatitis action plan for the prevention care and treatment of viral hepatitis pdf 672 kb which outline action base on scientific evidence and extensive real world experience that will serve as a roadmap for reach the healthy people objective the viral hepatitis action plan present robust and dynamic step for improve the prevention of viral hepatitis and the care and treatment provide to infected person and for move the nation towards achieve healthy people 2020 goal some of these life save action already are well underway other action represent innovation in practice technology and therapy will require new strategic direction and commitment the success of these action is contingent on departmental and interagency collaboration stakeholder support and engagement of the diverse community being serve also critical to the success of the plan are policy relate support and system change which likely will be bring about by the affordable care act in this unique era of unprecedented opportunity viral hepatitis activity can be well coordinate and align with the nation reform infrastructure for health this viral hepatitis action plan will serve as the guide for hhs agency work to combat the silent epidemic of viral hepatitis datum source the racial and ethnic approach to community health reach risk factor survey www cdc gov reach data source national health and nutrition examination survey nhane www cdc gov nchs nhane htm,neutral,1
I guess I have do a lot of anticipatory grieve before my husband die when he was diagnose with liver cancer in august of 2010 I try to stay positive but I know what an agressive disease this was even after successful surgery the pathology report was ominous brad was lucky to have 7 month cancer free afterward in the meantime I develop frozen shoulder I am a nurse and could not work for 6 month time give to I from god to spend with my husband the cancer return in may I return to work in june and work around my husband cancer treatment the 5 month prior to his death were very stressful watch he bravely endure all the testing for a liver transplant and undergo invasive procedure to treat the cancer was difficult for I since I am surgical icu nurse I know of all the complication and thing that can go wrong and every time he have a procedure was a time of extreme anxiety for I when he was hospitalize for the 2nd time near the end of august I take a personal leave of absence from work to care for he when he come home he tell I over and over he never want to go back in the hospital where he get c diff to complicate matter no fmla no paycheck and so on if they would have fire I I do not care I need to take care of my husband so I return to work yesterday he have been dead 4 week today I have very little to give my patient or their family I am selfishly wallow in my own grief I can not care about theirs this feel terrible and foreign to I that is not the type of nurse I normally am after deal with illness and sadness and medical procedure endure by the love of my life I just can not care about other people right now I do not even know if I can fake it it take too much energy anyone else have to deal with this I can not take any more time off I need an income,negative,0
health care provider lack knowledge of hepatitis study saystuesday january 12 2010by rong gong lin iinorthjersey comlos angeles timeslos angeles hepatitis b and c remain serious threat to public health but many health care provider fail to screen at risk patient and do not know how to treat those infect with the viral disease that can cause liver failure and cancer accord to a report release monday by the national academy of sciences the long await assessment call for a campaign to educate the public doctor and lawmaker about the disease an approach similar to hiv aids outreach that have make that issue prominent in people mind researcher find even though chronic viral hepatitis infection are three to five time more frequent than hiv in the united states many doctor and nurse do not understand the extent and seriousness of the problem most of the estimate 3 million to 5 million people with chronic hepatitis b and c do not know they have the disease infect people can show no sign of illness for year and by the time they start to show symptom they may have already develop scarring of the liver or liver cancer and can be close to death the challenge we have with hepatitis b and c is similar to our hiv story we really do not know they are infect until they end up sick and in the hospital say dr gail bolan chief of the sexually transmit disease control branch of the california department of public health it is been a silent epidemic the 176 page report request by federal health official was release by the institute of medicine the health before midday of the national academy of sciences although an estimate 1 to 2 percent of the you s population have chronic hepatitis b and c researcher find that awareness of the disease remain low each year lack of awareness contribute to about 1 000 infant contract hepatitis b from their mother during childbirth although preventative step can significantly reduce the likelihood of chronic infection in baby the number of new infection have not decline in a decade although hepatitis b and c are preventable the rate of infection have not decline over the past several year r palmer beasley an epidemiologist at the university of texas school of public health in houston say in a statement we have allow gap in screen prevention and treatment to go unchecked find this article at http www northjersey com news 011210_health_care_providers_lacking_knowledge_of_hepatitis_study_say html,neutral,1
the w post have an article about evel knievel death and they do not mention he have hep c or a liver transplant kinda get I go so I send this letter to they it is truly a sad stake of affair when a large publication fail to mention the fact the evel knievel also suffer from hepatitis c which result in liver disease and the liver transplant he have in 1999 in case you brilliant people over at the post do not know hepatitis c is an epidemic 1 in 50 americans have hep c 2 out of 3 are unaware they have it and all the while it is wreak havoc on their body and threaten their life this disease is also know as the silent killer 70 of vietnam veteran have hep c 1 in 3 medical personnel have or will contract hep c it was just report out of chicago that 4 people contract hep c by receive an organ from an infected donor just this year so much for screen the press the medical community and our government is not do what need to be do to eradicate this disease let alone find a tolerable treatment or vaccine four time more people are infect with hep c than hiv yet as a perfect example in your article about mister knievels death you do not bother to mention he suffer greatly from hepc unlike hiv hep c is not sexually transmit many people simply do not know how they get this killer disease hep c is the lead indication for liver transplant in the world it also cause cirrhosis and liver cancer hep c kill 10 000 to 12 000 people every year it kill more people every year than many other disease that receive a lot more attention funding and research get with it people report all the news accurately or shut your door hcv and unashamed,neutral,1
I have just find out my doctor will not perform a liver biopsy because it may be life threate to I with the small sample they would get they say the symptom are enough to make this call due to the symptom I have have that is enough for they to be concern about put I on treatment it may cause the symptom to progress to fast and my life span could be as little as 3 month on tx so until I can afford some kind of insurance to pay for a liver transplant I do not have the choice of tx the plan is to just not drink and eat healthy keep do follow up upperscope as gi say keep apply for medicaid which is hard to get on I do find insurance info that would take new client with prexiting condition but I can not afford around 200 300 per month depend on the deductable choose which would be 10 000 to keep the payment low that is nothing consider a transplant could be 250 000 350 000 it puzzle I because I know other on ds that have stage 4 liver and still have treatment and get the liver biopsy sometimes more than one oh yea no cat scan to test for liver cancer either this all seem so crazy because I feel so healthy after get over the anemia I do retain some fluid in my stomach from the acite but nothing cause pain just a bit of a bulge when I wear my tight jean any advice on anything extra I can do besides not drink eat balanced meal exercise and I take livaplex instead of milkthistle shoot the university doctor is not and option ok bad joke but at least I can laugh about it instead of just stress the hell out of myself,neutral,1
when an investigational drug prove it can eradicate a virus we call it a breakthrough the near to approval of the expect breakthrough is vertexs vrtx drug telaprevir a specific hepatitis c virus protease inhibitor the drug was a blessing for the infect victim who have it in clinical trial it bring a miracle happy ending to what seem to be an endless nightmare of acute liver inflammation chronic liver inflammation liver cirrhosis liver transplant and possible liver cancer we expect telaprevir to be greet positively by the government and insurance company which spend ton of money on the hcv liver problem where treatment that do not work are nevertheless pay for more than anybody else we expect they would cheer the news about the successful outcome of telaprevir in clear the virus in large clinical trial we were confident that they will not overlook vertexs drug importance its huge market and the fact that it is expect to be the first approve protease inhibitor that is the first approve drug to that deal with the virus itself not only its symptom we think they would rush to buy vrtx as undervalue as it is and as it have constantly been for the past three year surprisingly enough investor seem uninterested in the 10 b market and instead of buy the stock they keep trade up and down but to the negative side the reason as we see it is that investor believe that the real influence on stock pricing come not from the firm good news or expect huge revenue and sale growth but from emperor who dictate the price of the publicly trade firm to investor we say few firm have very effective weapon against hcv only two of they will get their drug on the market in 2011 vertexs hcv drug telaprevir will be the first hcv specific protease inhibitor to offer a real hop for a hepatitis c cure the virus have infect roughly four million americans most of they baby boomer in addition to 170 million people worldwide you can imagine how large the market is about 12 000 americans infect with hcv develop cirrhosis every year a number that will continue to rise in the come decade some negative trader perpetrate the fact that the number of newly diagnose case is drop this reality though would not affect the new drug sale as hundred of thousand of people who were infect decade ago are expect to begin experience disagreeable complication and liver damage and are anxious to get the drug that would protect they from a miserable future with liver cirrhosis possible liver failure liver transplant and possible liver cancer clinical trial result demonstrate that telaprevir have indeed clear the virus from the bloodstream of infected patient and achieve a sustained viral response svr datum from a late stage clinical trial demonstrate that a combination telaprevir alpha interferon ribavirin was capable of effectively cure 75 percent of patient compare with 44 percent of those treat with the same drug but without telaprevir accord to an article write in the new york times a doctor who work as a consultant to some pharmaceutical company say that one fifth of his patient were being warehouse meaning they were forgo treatment now to wait for the new drug the number of infected patient as mention above might be misleading as it seem that 75 of the infected patient have no clue that they are infect as they have never been test for hcv now drug company and the government are do a great job raise awareness about hcv infection recently the fda approve a rapid blood test develop by orasure technology that can provide result in minute the current treatment for hepatitis c consist of weekly injection of alpha interferon and ribavirin while nobody know how these drug work telaprevir is know to inhibit the protease enzyme require by hcv virus similar to the hiv new drug follow the approval of telaprevir which is expect in early 2011 merck mrk drug boceprevir would probably be available a few month later the market is huge and more drug in this category are require to satisfy its need around half a million people feel lucky as the drug will save they after other drug stop help they people who have to take drug derive from human plasma year ago are now face the complication of hcv they are in bad need for drug combination which include protease inhibitor vertex say it remain on track to complete the new drug application submission process for telaprevir later this year and to complete the build out of its commercial function in advance of the potential launch of telaprevir a rolling application allow the company to submit piece of datum as they become available vertex say the application will be complete this year datum from two more phase 3 trial are expect in the next couple of month common sense dictate that these datum must boost the stock but reality on wall street tell we that people have eye but do not see and ear that do not hear that s why we have a plan b which is to consider any selling of vrtx a unique opportunity to buy the stock at a bargain price are you listen other small biotech develop hcv drug idenix idix anadys and intermune itmn and dynavax dvax disclosure long vertex company prohost biotech,neutral,1
hi I am scared I will die a young age I can not sleep at night I wish I do not have this cancer at all I am 31 with rare cancer in my liver call paraganglioma it apparently metastasize from a benign tumor have you ever hear of this before how can a benign tumor meet into cancer the benign tumor was remove almost 8 year ago so far I am on sutent and the cancer have been respond I am lucky enough to have the cancer restrict to my liver and wait for a transplant I am worried that I would not receive a transplant before it spread elsewhere thus cut my life way to short it keep I up at night and I can not sleep it is constantly on my mind and rob I of my once great life,negative,0
there are large amount of hep b patient perhaps over the worldall the doctor may only suggest people who suffer hep b without symptom go to hospital and and check liver condition regularly no one know when they relapse or how bad they will get they have to bear much pressure from this disease as many medicine are still under practice not release to public yet there are almost 300 million person infect with hepatitis b only in china the amount reach up 10 of the total population and 110 thousand person would die because of liver cancer every year many people may suffer from feel like vomit fatigue disgusting oil abdominal bloat hepatalgia dark circle and so on some patient would unwittingly get nose bleeding when they sleep walk and live normally whether it is in summer or in winter also they may be accompie with abnormal liver function like high ast alt ggt the current medical technology can eliminate all the mention symptom above but this disease can not be root out from patient body after the symptom disappear doctor would suggest the infected person go to formal hospital and have physical examination on a regular basis among these person quite a few of they can pay the high expense to buy daily medicine for long term use here it come plenty of research and clinical practice approve that epigallocatechin gallate effect on treat hepatitis b and positive hbv dna the recommend dosage for adult is 1 1 5 g egcg assay 80 90 per day it will take about 2 week to stop nose bleed completely and high alt ast ggt would drop obviously this result could maintain same level after stop medicine 4 week later continuously dose finally make you more healthy and get negative hbv dna epigallocatechin gallate egcg is the most effective ingredient in tea polyphenol catechin extract from chinese green tea it have been approve that egcg have antibacterial antiviral anti oxidation resist arteriosclerosis thrombosis vascular proliferation resistance anti inflammatory and anti tumor effect moreover egcg can be use to detoxify the liver and promote alcohol liver recovery and inhibit postive focus of infection of gst p which is a damage before cancer editte from xian chinwon biotech inc www chinwon netthis is real natural you can send I email via wensdaughter hotmail com or check the medical document for this hope all people live well life include you I,neutral,1
I am scared to death of my liver get cancer with hepc I smoke ciggarette and want to quit do anyone quit and how do you do it I have so much free time that I have fill with smoking I think like it will calm I down but have learn it is actually a stimulant,negative,0
I am a care giver for a person who have a colostomy he have have a colostomy for 8 year he have have 17 surgery in the 8 year so he have been through a lot his colon cancer spread to liver cancer he have 40 of his liver remove aswell two and a half month ago he have surgery to give he a permanent colostomy which was change from an illostomy for those who do not know what an illiostomy is it is ostomy high up in the colon I am write this because I am very frustrated to say the least I have try to be very supportive to he through out this entire ordeal I can only imagine how hard it is have to go through this so I am not being insensitive to this at all my problem is this many time in the middle of the night I am awaken by smell that would make your hair stand up on end when I wake he to tell he that he need to empty his bag or tell he I think he have a possible leak he get furious with I I try to be as delicate about it as I possibly can but it do not make any difference he is an extremely angry person another issue he have very little sence of smell so it do not bother he I was hope someone would have some idea on how to help I deal with this unfortunately sleep in another room or leaving is not an option at this time,negative,0
hi all my mother in law have just been diagnose with liver cancer she have several tumor all over her liver the big being 8 cm and the next 4 5 she is refuse treatment as she want quality rather than quantity of life which we are all supportive of as she is almost 80 however she is also refuse to have a biopsy she is concerned that the cance may spread which is crazy since her cancer will most likely do that anyway and I feel her doctor should have explain this to she well rather than just nod his head and say it is totally your choice she also want minimum checkup which obviously do not help with estimate how long she will be able to look after herself and so on I was wonder if some of you would be able to tell I how long we could expect she to have and what is the progression of the illness my husband and I live in another state about 10hrs away and we want to try and be there for she as much as possible particularly toward the end the problem is that we need to take time off work which is limit to annual leave and so on which will mean try to come and be with she at interval so we do not use everything up straight away and then have nothing leave when she really need we we do not want to put any more pressure on my mother in law but it is really frustrating to have absolutely no clue whether we have week month or long and try to come up with a plan to be there for her thank everyone,negative,0
some research on transplant recipient being more likely to die from cancer is applicable to we as the thinking is that the immune suppression need to prevent organ rejection allow cancer to grow the message in this for mg folk is we need to know the sign and to be regularly check for cancer sign more than for normal folk as some of the med we take are the same as organ transplant folk take http health usnews com health news article 2016 01 07 organ recipient at raise risk of cancer death study findsfrom the study expert believe the immune suppress drug that transplant patient need to prevent rejection of new organ may work against they when it come to cancer allow cancer to grow baxter say our immune system help we fight cancer it help fight off some malignancy baxter say if you have that dampen down it may have an impact immune system suppress drug also might hamper the bodys ability to target and kill off virus that cause cancer baxter add for example human papillomavirus hpv can cause cervical cancer epstein barr virus is link to lymphoma and hepatitis b and c virus can lead to liver cancer the researcher say in this study people were 6 5 time more likely to die from a cancer cause by an infectious disease but only twice as likely to die from a cancer not cause by an infection transplant patient also might die because they are not hardy enough to handle the cancer treatment that a healthy person can take baxter suggest,neutral,1
murphy hepatitis and the pharmacology of greed post february 25 2013 10 35pm update february 26 2013 12 06am by mark e murphy I was eight year old making round at the hospital with my father when I first meet the yellow man his eye were an astonishing saffron color his skin was also strike an iridescent bilious hue my father sit pore over the yellow man voluminous chart in the nurse station read glass perch on the end of his nose while I try my good to stay quiet ultimately I could not why is he that color I ask my dad in a whisper he have hepatitis my father say matter of factly never look up I nod I was fascinated I even talk to my third grade class about the yellow man later that week in show and tell but I have no clue what my father was talk about when he tell I that the yellow man have hepatitis today I do you see I am a gastroenterologist in my medical specialty we deal with yellow man and yellow woman just about every day and many of they have various form of hepatitis or inflammation of the liver some get it from alcohol some from medication but an emerge variable in the grow liver disease population is hepatitis c a viral illness that is now the lead cause for liver transplant in this country over 170 million people worldwide have hepatitis c more than 4 million of those people are in the united states a lot of those folk acquire hepatitis c through blood transfusion there was no blood test for the virus before 1989 some get it through iv drug use or through tattoo and body piercing a shocking 30 percent have no risk factor for it and have no idea how they become infect so why is hepatitis c a problem because it is a stealth epidemic you see most people with this disease are not yellow in fact most of they have no symptom at all none that is until they develop cirrhosis and liver failure or bad still liver cancer hepatitis c is now the lead cause of liver cancer in the united states and is the most rapidly increase cause of cancer death in this country hepatitis c kill more people every year than aid let that sink in for a moment traditionally hepatitis c have been treat with a combination of an injectable drug call interferon and another orally administer medicine call ribavirin its a gruele regiman result in nausea malaise weight loss skin and hair change anemia thyroid problem and depression in many patient moreover the cure rate technically call sustained virologic response or svr for this regimen is less than 40 percent after 48 week of treatment many people can not complete the full course of therapy because of the horrendous side effect now to the punchline at a recent national medical meeting of liver specialist dr mark sulkowski of johns hopkins university medical center describe a phase ii research protocol use a combination of two new oral medication daclatasvir and sofosbuvir this medication combination have almost no side effect the gist of dr sulkowskis presentation is this after a mere 12 week of treatment with this new regimen the cure svr rate for hepatitis c was an astonishing 93 percent when I read this I literally stand up and whoop hepatitis c patient have been wait for a treatment regiman like daclatasvir and sofosbuvir for decade its a true rarity in medicine an honest to goodness game changer a phenomenally effective regiman for a serious life threaten disease that is also safe and well tolerate the only problem the two drug are own by different company daclatasvir is a bristol myers squibb drug while sofosbuvir is make by gilead science for reason that are almost certainly financial in nature gilead have refuse to do further work on this drug combination with bristol myers squibb so there will be no further study of the regimen with no phase iii trial that mean that the daclatasvir sofosbuvir combination regiman will likely not be approve for use by the fda gilead have issue no formal commentary about why it do not wish to pursue further development of the new regimen although there is speculation that it is alter its focus to produce single tablet combination regimen a product line that have been highly successful for the company in the treatment of hiv in fact gilead is do quite well financially it is a company with over 4 billion in annual revenue and over 4 000 employee its average margin of profitability over the last five year have been a whopping 34 percent moreover the total return to its shareholder on gilead stock have been nearly 95 percent over the past year still the salient question is this should gilead sciences profitability trump do what is right since dr sulkowskis data presentation at the aasld meeting in boston this past november over 200 000 hepatitis c patient worldwide have die of complication of their disease meanwhile gilead a tremendously profitable corporation refuse to consider the development of a drug regimen that could have cure most of those individual in the pursuit of even great profit I find that unconscionable in fact I find it patently offensive in short its just plain wrong mark murphy m d is a savannah physician and writer heeldawg aol com http savannahnow com column 2013 02 25 murphy hepatitis and pharmacology greed uszldtcioso,neutral,1
my husband pass away on october 19th he just turn 61 I am 48 we have no child we would have been marry 14 year on nov 1 but live together for 8 year prior to marriage and date since 1987 he was diagnose with liver cancer in august 2010 I am an rn so I know the likely prognosis and so do he the worry and constant state of fear of the past year have been so stressful I can not imagine deal with that for year and year he have surgery to remove the tumor in sept 2010 and remain cancer free until last may in june he undergo a special radiation treatment in the hope of shrink enough of the tumor to qualify for a transplant we were tell the treatment of his liver was successful but unfortunately the cancer have spread to other organ he was only really sick for the last 8 10 week of his life and for that I am grateful he use to brag to people that he was the healthy look sick guy you d ever see he was hospitalize twice in august discharge labor day weekend and end up with c diff which make he very ill he refuse any further hospitalization although we go in every 2 week to have fluid drain from his abdomen I know he was die he know he was die but no dr ever come out and tell we he was die I have to call hospice myself 2 day before his death I feel abandon by the medical team leave to deal with this on my own hospice come on monday he die on wednesday morning it was probably the most difficult thing I have ever do in my life to be a nurse to my die husband he never want to go back in the hospital again and I have to honor that the day before he die was terrible he was restless and confused and I was so exhausted with no sleep I was not prepare for the way he die are we ever how do you repond when people ask how r you do I hate to be rude but how do they think I am do I am do crappy this loss is deep and profound and awful I do not want to answer the phone,negative,0
hi all I was refer over to this group from healthy relationship my mom was diagnose almost three year ago with stage 4 ovarian cancer she is go back and forth between taxol and avastin and it look like they will need to switch her chemo again as her ca125 number just go up again during her treatment her quality of life have diminish significantly to the point where she rarely leave the house or even go downstairs due to dizziness and other ailment my dad have been her caretaker this whole time drive she to every dr appointment run errand household chore everything he also still work full time which is the source of their fortunately great health insurance my brother and sister live in the vicinity but both are quite busy with their life I unfortunately live halfway across the country I have already go to see they 3 time this summer but I still feel guilty that I am not there help out more then come the shocking news a couple week ago that dad also have cancer he would been struggle for a few month with some really strange symptom and testing show some abnormality in his liver when I go up to visit they recently I was shock by how much weight he is lose and how ill he look further testing show it is liver cancer a rare variety cause by the genetic condition hemochromatosis which should have been catch during a physical examination year ago basically he have too much iron in his blood and this damage his liver and cause the cancer they are unable to do a phlebotomy because his hemoglobin is too low and chemo is also not an option with this kind of cancer it look like a transplant is his only option in the meantime he continue to deteriorate at an alarming rate my brother was out there to help with yardwork this weekend and say dad keep lose his balance and could barely hold a conversation he is lose even more weight they can not get he in to the university health center until the 19th so I am start to panic if he do not even get on the donor list today I learn then who know how long he will wait he is die and he need to be treat now one idea was to get he into the mayo clinic as my uncle is a doctor and have connection there but my parent seem resign now to wait to get into the you hospital I do not know how hard to push on this I am try to get ahold of my uncle but he is travel in europe how do you all handle this feeling of panic and helplessness I feel like I can not talk to any of my friend about this have one friend completely drop I during this in an extremely hurtful way so I have kind of stop try but it is overwhelm my world I am distract at work can not sleep can not think about anything else I may need to take family medical leave at some point but I do not know when would be the right time to do it I am single with no kid but I do have pet work and all that to sort out this is such a nightmare thank for listen,negative,0
vitamin e may be of help in common liver disease over the year the medicinal quality of vitamin e have been both praise and criticize for decade there have been a debate whether this vitamin could prevent cancer or heart disease large study have pretty much determine that cancer and heart disease do not respond to vitamin e supplementation for that reason many physician incorrectly believe that vitamin e treatment is worthless for any purpose for example a recent study in the new england of medicine have show vitamin e to be of great use in the treatment of a common liver disease result from fat accumulation in the liver steatosis the liver normally store some fat but in excess it can lead to inflammation of the liver a condition call steatohepatitis in up to 15 of those with steatohepatitis cirrhosis and liver failure can result steatohepatitis itself is relatively common in my endocrinology practice several patient per day show evidence of this liver disease manifest as abnormality on routine liver blood test patient most likely to show characteristic abnormality on liver blood test are those with high cholesterol particularly if take the cholesterol lower medication know as statin diabetes and obesity if the blood test are particularly abnormal an ultrasound of the liver is usually obtain to be sure nothing else is occur such as liver cancer or cirrhosis simple steatosis itself is generally easy to diagnose on the ultrasound a recent study in the new england journal of medicine volume 362 no 18 demonstrate that vitamin e is beneficial for treat steatohepatitis 247 subject with evidence of steatohepatitis not due to alcohol use or diabetes were give various treatment the group get 800 iu vitamin e per day show a 43 improvement in measure of steatohepatitis also examine as a possible treatment for steatohepatitis was actos pioglitazone a popular diabetes drug although the result with actos were promise they were not as good as the result with vitamin e as always the researcher conclude that further study will be need to confirm this benefit before use vitamin e in your own program be sure to check with your physician first vitamin e can act like a blood thin so its use in people who have bleed abnormality or on drug that influence blood clotting is of particular concern this article is for educational purpose only and is not intend as medical advice the disclaimer for metabolism com apply to this and all my post gary pepper m d editor in chief metabolism com one response to common liver disease respond to vitamin e 1 clinical nutritionist on may 18th 2010 at 9 20 prime minister hi i d like to add a few more important point about vitamin e vitamin e in its natural state is actually 8 different compound tocopherol and tocotrienol many of the medical clinical study only use alpha tocopherol and often they use the inferior synthetic version dl alpha tocopherol so realistically vitamin have not been study adequately or appropriately the word tocopherol in greek translate into to bring forth offspring and we know vitamin e is important in fertility it is also of primary importance in prevent oxidation of cholesterol and also the fatty acid in cell membrane vitamin e also regenerate vitamin c and therefore is crucial to our antioxidant status so there is a little tidbit about vitamin e more to come later beth ellen diluglio miss rd cnsd ccn ld and,neutral,1
fda approve rapid test for antibody to hepatitis c virus 06 28 2010 the food and drug administration fda today announce approval of the first rapid blood test for antibody to the hepatitis c virus hcv for individual 15 year and old the oraquick hcv rapid antibody test is use to test individual who are at risk for infection with hcv and people with sign or symptom of hepatitis hcv is transmit through exposure to infected blood which for example can occur during intravenous drug use the virus can also be transfer from an infected mother to her child hepatitis c can lead to liver inflammation and dysfunction and over time to liver disease and liver cancer oraquick is a test strip and do not require an instrument for diagnosis it take about 20 minute to obtain result from the test approval of oraquick mean that more patient can be notify of their hcv infection fast so that they can consult with their physician for appropriate health measure say jeffrey shuren md jd director of the fdas center for device and radiological health get fast treatment is an important public health step to control this dangerous disease oraquick is not approve for hcv screening of the general population accord to the center for disease control and prevention cdc there are approximately 3 2 million people in the united states chronically infect with hcv and each year about 17 000 people are newly infect chronic hcv infection is a lead reason for a liver transplant in the united states and hcv is associate with an estimate 12 000 death annually approximately 75 to 85 percent of people who become infected with the hepatitis c virus develop chronic infection oraquick is manufacture by bethlehem penn base orasure technologies inc,neutral,1
I have two basal cell skin cancer remove about 8 year ago but I have have health anxiety since I was about 12 any disease I hear about I was go to get it my late fear are breast cancer skin cancer and liver cancer since I use to drink to take away the stress which lead to more anxiety vicious cycle I have make the decision to stop drink but I have worry about mouth cancer now too any strange mark or feel in my body is meet with day of google search and anxiety I have even start use online doctor spend about 100 so far but that do not help because I either do not get a diagnosis or the picture I send are not clear and so on I just want to feel normal again I know I should take anxiety medication but I have try to deal with this on my own for too long it is affect my marriage and my relationship with my kid I am so preoccupied with disease and death that I am not live and the bad part is I use to be a therapist so I know when I am being irrational but can not stop myself I use to do yoga but I just do not have the time I know I should make time but I work two job and have two school aged child my husband is get so annoyed with I because I ask he to check and check and check the same spot or symptom he say he can not take it anymore any advice,negative,0
hi so I come here were I need help to try and deal with this so sorry in advane this will be a bit long and sorry for my spelling so a few week ago I find out my father have cancer and it is to big to be remove he need a tranceplant other wise he would not make it cemo is not an option because he have hepatitis c or how ever its spell and it have mess his liver up now beond help the thing is I m in norway and here the standart is pretty high on get an organ and because my father is over wight and get easily sick we hae a big chance on get no on the new liver we were lucky it was find before it spre but now thing are look dark and I do not know how I am supose to deal with this I am afraid 24 7 I do not want to lose my father at all and thing get dark each time we talk to the doctor and he seem fine with it which I doubt he is and I m try my good to be happy around he and keep the positive wibe on but each time I try I fail and he is the one comfort I it is supose to be the other way around now and I do not know how I can support he show support and you know help he I can not clear the thought away that in a year or 2 he might not be here so I am ask you guy how can I deal with this news in the good way and how can I suport and keep my dad positive he have plan it out if he dose die that everything is take care of and each time this is broght up I can see that he talk mroe and more about how thing will be if he dose not make it I need to keep he positive the whole family dose and we are try but he seem get more and more into it that he will not make it I need your help my family need it,negative,0
anyone here of it it start in the appendix and go into my colon dr take it all out with a right colectomy procedure but I still have cancer of the liver want to know if this is a fast move cancer do not start chemo yet I m alittle scare any advice on that thank,negative,0
mouse with human liver new model for treatment of liver diseasesciencedaily feb 23 2010 how do you study and try to cure in the laboratory an infection that only human can get a team lead by salk institute researcher do it by generate a mouse with an almost completely human liver this humanize mouse is susceptible to human liver infection and respond to human drug treatment provide a new way to test novel therapy for debilitate human liver disease and other disease with liver involvement such as malaria we find that not only can we infect our humanize mouse with hepatitis b and hepatitis c but we can then successfully treat this infection use typical drug the salk researcher finding will be publish in the feb 22 2010 online edition of the journal of clinical investigation host pathogen specificity is both a blessing and a curse prevent widespread infection but make successful treatment hard to find for example hepatitis b and hepatitis c can only infect human and chimpanzee and although this species barrier prevent we from being susceptible to every infection out there the flipside is that find treatment for human infection can be extremely difficult this is particularly true when it come to liver infection the usual approach is to grow human cell in a dish to infect and try to treat they there but this is not possible with liver cell or hepatocyte human hepatocyte are almost impossible to work with as they do not grow and are hard to maintain in culture this robust model system open the door to utilize human hepatocyte for purpose that were previously impossible this chimeric mouse can be use for drug testing and gene therapy purpose and in the future may also be use to study liver cancer the team perfect this system so that nearly 95 of the liver cell are of human origin but the important question was whether they would behave like a human liver use pegylate interferon alpha 2a the standard treatment for hepatitis c the researcher show that the humanize liver inside the mouse respond just like a normal human liver the team also test additional experimental drug and find that they too behave as they do in human this is great news as it provide we with a tool with which we can examine many human hepatotropic pathogen include malaria in the future it also have potential application for regenerative medicine allow confirmation of the true hepatocyte nature of cell prior to human transplantation,neutral,1
my friend male 53 have been diagnose with pancreatic cancer and it unfortunately have spread even though he have surgery to remove the spleen and part of the pancrea the cancer have spread to his liver he is start to yellow itch and so on I have read where that is the liver have problem what shall we do now the cancer dr say he have 2 month he have another appointment for second opinion next wednesday 7 29 but should he see another type dr for his liver now we just do not know what to expect or what to do thank for your help,negative,0
my dad have liver cancer and have have a resection do and two ablation all within a 3 year period each year for the past 3 year we have been in the hospital right after christmas for a week get one of these procedure do now we are at the 4th year last year the drs say they do not want to do any more surgery although my dad is now 82 excellent health but for the cancer he walk on an average 6 8 mile a day he have hep b when he was young but also have cirrhosis and his liver is pretty disease each year they travel to montana and live there from mid march mid november then they come to norhern ca for the remainder of the year I mention this because when they are in mt he have an oncologist that just monitor his situation his surgeon and primary oncologist are at ucsf mt zion so now we are back to the same situation we have been in the last three year there is a spot just like the last three year afp is read high the drs tell we about nexavar but really do not recommend it to my dad because of the potential awful side effect they basically tell he to enjoy the rest of his life and send we on our way last year well he want to do that enjoy his life but now there is that spot again and of course it is scary to he have you or any or your love one take nexavar and if so would you be so kind to tell I if the side effect were problematic for you of course there is the cost to consider I call today to make an appointment my great fear is they would not want to see he because last year they say they would not see we again next year thank you kindly for take the time to read this long topic but I want to explain the fact I think could be pertinent,negative,0
I have been out of the hospital for a while now I have been keep a low profile because I have some very serious decision to make and quickly while I was in surgery they note a malignant tumor on my liver this cancer is aggressive I would like to ask for your prayer for the good lord to guide I through all these decision I have to make thank you in advance for your support,negative,0
word make it to my grandma that I have health issue a simple happy birthday phone call to her lead to the liver discussion I really should have lie about 12 year ago my grandma young daughter die of the family secret I remember see the corpse at the wake and was almost convinced it was not she she was bloated and yellow and the funeral parlor cake she up with make up something she never wear but no one would say it was liver failure and I figure I should not ask whatever it was was sudden I do not see what the big secret was about we all would have love she just the same she was one of the most fantastic people I have ever meet last year my uncle die of liver cancer again it was very sudden he try all the right thing he even sign up for those experimental treatment do you know they charge up the ying yang for those eventually he do and realize he just want to be comfortable the last few day my grandma is the good person in the whole wide world I feel awful for say anything about liver since all the woe they seem to cause this particular side of the family I feel guilty I do try to stress that all in all I am ok and thing will be fine as long as I go to my appt and do what I am tell I have half a mind to call back and say I am cure or I lie,negative,0
hello my mother was diagnose with an advanced stage of liver cancer this past week I feel absolutely helpless and can not stop cry she is also across the country and I have not been able to see she I do not know what to do how to comfort she how to make she feel well she is my everything she would do anything for I and now I need to do the same for she she is so young 59 and I have not even start my life yet for she to see what an amazing person she help I become I regret not provide her grandchild yet everything I touch or look at remind I of she and I start cry again I am become physically sick I am so upset I plan to go home as soon as possible but have a full time job and mortgage to pay for none of these thing mean anything to I now that my mom is sick I need strength and prayer and ton of hope even if no one read this it have help I to put my thought in write good thing happen to good people pray for all go through this right now my heart go out to you,negative,0
cnn bee gees star robin gibb is in a coma and have pneumonia the late turn in health issue that include a recent battle with colon and liver cancer his representative confirm saturday doctor believe that gibb 62 have a secondary tumor representative doug wright say confirm a news account in the sun in the united kingdom gibb have emergency surgery in 2010 for a block bowel and then have more surgery for a twisted bowel wright confirm his brother maurice die in 2003 of a twisted bowel brother andy die at age 30 from a heart infection the brother gibb call themselves the bee gee soar to renown as one of the most successful british group after the 1977 film saturday night fever star john travolta was build around the group disco song induct into the rock and roll hall of fame in 1997 the bee gee have sell more than 200 million album and their soundtrack album to saturday night fever was the top selling album until michael jacksons thriller claim that distinction in the 1980s,neutral,1
I lose my husband neil in august of 2011 to a rare type of liver cancer first I was stun then in deep denial and now I am feel so angry all the time that I can not stand my own company I am just completely lose as to how to cope with the emotional rollercoaster on top of all of this my daughter is in deep clinical depression and I am try to be strong for she I keep forget that she lose her step father and my ten year old grandson lose his grandfather I have been so wrap up in my own grief the other day my grandson tell I to listen to the song season in the sun and he say that he hear it and cry his eye out because it make he miss his grandpa I tell he that he was the well little boy in the whole world and hug he hard I know that my husband would want I to be strong but I feel like I am get weak every day I want to hear his voice and see his smile,negative,0
I just come from read our sister kphelp last journal entry deny pain medication so I am post this website for all of you to go to if you need to and or to pass it along to anyone you think may need help this is disgusting that my dear sister who is in end stage liver cancer is suffer and have no pain medication even hospice have a no narcotic note on her chart wt hell this is barbaric and will not be tolerate because you have a history of addiction and or abuse is no reason why you can not be monitor on pain med so please let help she anyway we can if she will allow we anyone with info please let she know I am suggest she get in touch with the american pain foundation www painfoundation org they have advocate and know the law something must be do and for nothing else it teach we that if we do play with drug in the past in any way shape or form do not be honest it will bite you in the ass when you least expect it to I never put anything that will incriminate I down I do not trust it and here you go to prove it do not tell anyone on any medical form that you ever have a drug history or problem ok peace and love to you all serenity55,negative,0
the mini series of no tear is over it was soo very sad I cry all thru the fourth episode even my husband who hate watch medical show in this case a true story on hep c watch it and say to I are you cry hunni and feel sad himself in the end of this very informative true story about these woman who have form a group for awareness call positive action one of the lady die of cirrohsis liver cancer god it was sad to hear hep c interferon pcr viral load all word we read about here without think twice but to actually see a tv show with real people with the disease wow it was too much if only there would be more when it finish they write which make I cry even more to all those with hepatitis c and their family if you ever find a way to get it please let I know I would buy the dvd in a second in the meantime if I find it I will let you guy know postscript regennisis is a new show well for about a year now have an episode on hep c also the previous week hopefully this will continue on television what good way to get everyone attention on hep c awareness thank mckenzie one day at the time,neutral,1
my grandma was diagnose with liver cancer almost 2 year ago and was expect to live 6 9 month without treatment and 12 18 with treatment either way it was terminal she choose not to get treatment just pain management she pass all the expect life time with little to no change in her quality of life obviously she have to slow down and take help from other which she do not want she is always been the helper not the helpee so to speak I think in the last 2 or 3 month we ve begin to enter the final stage of her life and it have quickly go down hill her stay in hospital get long and time at home less now she is in till the end because she is too weak to be care for at home and need needle to control the pain as pill no long do enough if anyone been through or is go through this stage with the person they love how do you comfort they and handle being helpless to do anything significant for they this is not the way she want to go she want to go with dignity and her body do not allow for much of that,negative,0
greeting you all I am a new member here from another group but I do not know what all is wrong with I yet wait wait and will be wait for another month I was diagnose with an m spike of 1 0 in january and ast alt both 43 the next week test againa dn ast alt were both 23 all other lab normal except a 11 0 hcv I am now await genotype for hcv and a viral laod and also have to see an oncologist in april I am really deeply worried and the m spike scare I the most so many thing have been mention mgus mm liver cancer and it all seem so much I have no symptom and all my previous lab which I have do yearly are normal I have do a lot of research but the m spike thing seem a sad thing I am hope to meet more of you good epople who have more experience with all of this I am new to all this just since january and I am feel sort of lose good ehalth to you all and many blessing thought advice are deeply appreciate,negative,0
hi all my dad have have hep c for many year and is finally it seem symptomatic I am worried as I recently watch an old friend go from have hep c and live a normal healthy life to it seem being diagnose overnight with liver cancer soon after the diagnosis my friend pass away it happen so quickly the symptom my dad have distend belly achy or sharp pain on right side of abdomen fatigue no appetite diarrhea and so on his doc know he have hep c and my dad have an appt to see he re these new symptom but the appt is not until next week I am freak can anyone tell I their experience with these early symptom and what they might mean lead to I can handle being tell straight I just hate wait I realize that no one can tell I for sure what is go on but I was hope to get some idea thank you so much,negative,0
hi everyone I am new to this group and not sure yet how well it will fit for my situation I provide some care for my boyfriend and when he is not well many of our share responsibility fall to I but I do not really think of myself as his caregiver or of that as being the primary source of my stress right now I am 25 and he is 24 so were young his parent still act like parent they live on the other side of the country but have been come out here to help he through all his medical stuff since he was diagnose with liver cancer 2 and a half month ago the cancer was surgically remove in march and we were just begin to regain a tiny shred of normalcy when we receive the news last week that the cancer have come back quite aggressively he is undergo chemo in the hope that he might become eligible for a liver transplant and while we have not give up hope we are keenly aware that we are face the possibility that he could be dead in under a year I am here because this is incredibly hard on I and I am have trouble find support group for the partner of cancer patient there are lot of support group for patient and lot of grief group for after someone have pass away but I do not know where to turn right now I have a couple of close friend live in other state but much less of a community in san francisco where I have live for the last two year my boyfriend have been my primary support system for awhile now I am face the possibility of lose the person I love and share my life with while feel like I have already partially lose he as my beacon of support because he is go through so much himself right now it is hard to be surround by people who want to support he while feel like I have almost no one myself I hate sound like I envy he or like make sure he have the support he need is not my priority because it is but I feel like something terrible is happen to I to too even if it is 100 time bad for he and I am afraid I will fall apart completely without more help than I am get right now,negative,0
my dad was diagnose on july 3 2012 with pc it is at the head of the pancreas and he is not eligible for the whipple procedure he have been do chemo almost every week since aug of 2012 as long as his white count stay where they need to be he have a stent put in in november 12 and have to have another place in last week this seem to come out of nowhere dad retire in dec 11 and was so healthly and active until march of 12 he begin loose weight at a fast pace and start see his family doctor he go from 220 to 145 in the matter of 2 month sure not the daddy that I know the same time my dad was have the new stent put in my mom have to have an mri on a few suspicious look spot that was find on her liver during an ultrasound the liver disease team call she on friday and they feel certain that she have liver cancer the team is take the image and result to the liver surgeon team to discuss the next course of action my life have been turn upside down I have handle this the good I can but its really hard I have one brother which live 3 hour away he can not possibly come home for every appointment thankfully I am not work right now because I need to be go with they to appointment and hear the phone call I am go tonight to the purple light in harrisburg pa excited to hear the positive story from the survivor that are able to attend unfortunately it is too cold to take my dad as he is freeze all the time,negative,0
hi folk a few day ago I get the news follow a routine physical that you test positive to hepatitis b my doctor have refer I to a liver specialist for follow up I have been hear about hep b and it was a spur of moment thing that make I ask for the test for the first time ever I am stunned to say the least I am in my late 30 and marry with kid I am guess I might have contract it at birth because my father die from liver cancer when I was 6 year old and it may or may not have been cause by hepatitis I also have unprotected sex a few time in college so I am not really sure how I get it anyway I am confused and fearful for the future prior to send I to the specialist my doctor order another blood test to confirm and below are the result hbv real time pcr hbv 560 iu ml log 10 hbv 2 748 log10 iu ml I do not know how to interprete these result and would like some help understand the datum my first appointment with the liver specialist is in a week and I am not sure what question to even ask I do some search on the disease and find this support group I still feel like I am have a bad dream because the implication of this news is more than I can process,neutral,1
my daughter have fight her entire life she was bear 2 month early weigh 2lbs 4 oz and spend two month in nicu she have continue to fight as she need to have heart surgery once she reach 22 pound and she also have a spinal dimple but most recently we just find out she have liver cancer and have to have surgery and treatment the surgery is go to happen next week I do not know how were go to afford to run back and forth to winnipeg or to stay in hotel we are two hour away I want to hear is the size of an orange and the other is half of it we are pray they can take it all it is all so overwhelming I am try to be strong for she but it is get hard I have a go fund I site I am not sure if this is allow to be post here but we could use all the prayer and help we can get https www gofundme com 28sxjkc,negative,0
praise be to god friend some of you may know my husband john have been wait almost 6 week now to get approval for his radioembolization treatment for the secondary liver cancer he as been battle so bravely for the last year today he receive a call say it was a go hand up in the air and a big amen I have been read and have speak to a few people that have have some success in shrink the tumor with this procedure we are both so excited to get this approval he will be have the mapping procedure do on monday and then within two week have the radiation bead inject we hold faith in the doctor that is perform this procedure on john he is the lead most in his field and is very confident in the result I have spend all my day pray not just for a miracle but for a break really for something to work and make a difference after the chemo do not and I have a great feeling about this I do appreciate hug and positive thought so many of you send again if anyone have have this procedure or know anyone that have any info is welcome hug tracey,positive,2
my father was diagnose almost a year ago with liver cancer he have go through chemoembolization and see no improvment my father also suffer from cherosis and hep c we have always have a very good relationship and recently I find myself wonder if he is try to push I away I am just wonder if anyone can help I to understand what may be go through his head the last hospitalization in early december was a scary one and when dad come out of his coma he express his wish not to be resuscitate it was the first and only time I have ever see he cry and I can not imagine what he is go through and just want to be there for and with he through these time its also hard for he to be around my 18 month old son and I am at a point that I do not know what to do and am hope someone may help to shine some light on my dark situation thank you,negative,0
it is very interesting for folk that have not do the treatment also interesting for I as well after do treatment this medicine need to be understand as a nuclear medicine I have been pay really close attention to daddys doctor and what they order for he to do and I am learn a great deal more than I already know it pay to pay attention and really get your hand dirty dig right on in and ask the question it is your body it is your decision no one can make it for you when daddys doctor suggest chemo for daddy I blurt out no then realize that that is daddys decision so after scarin the hell out of daddy and his doctor daddy say well momma say no then I explain to the doctor that I have hepc and I would do the peg intron and I do not see where it would cure daddy but it would affect his quality of life doctor agree good thing find out that he really do not have liver cancer in the first place just cyst and they would have start he on the peg that day would not that been a bitch there would have been one piss off tasmanian tasmoe in central texas if that would have happen I am tellin ya anyways that article is good read very informative http www chemocare com bio interferon_alfab asp,neutral,1
hello to everyone here I lose my mum a week ago she have liver cancer she die six month after diagnosis I do not know how to cope with this and I am feel very afraid all the time I guess it is normal but I have no way of know as I have not lose anyone close to I before I guess that make I lucky but I was so close to my mum and I just do not know what to do I have some mild tranquilizer which I think I may take but only if I really have to I just do not know what to expect or how bad this is go to get I am afraid of the unknown I hope that I can be of some use at some point to other on here too as I would like to offer help to other people too anyway it is nice to be a part of this site and I am glad to be here cathy jane,negative,0
I have been crave asparagus lately so I look it up it is one of the good food to fight liver cancer I think they list as the top nutriutous veggie the perfect veggie I love it I even eat it raw but I find it taste well in a little italian dressing grill on the grill some of you may notice an odor in your urine after eat it and that is normal as well here are the that fact asparagus is low in calorie only 20 per 5 3 oz serve less than 4 calorie per spear contain no fat or cholesterol very low in sodium a good source of potassium 1 a source of fiber 3 gram per 5 3 oz serve 2 an excellent source of folacin 3 a significant source of thiamin 4 a significant source of vitamin b6 4 one of the rich source of rutin a compound which strengthen capillary wall contain glutathione gsh 5 all that in 5 little stalk pretty amazing,neutral,1
is there a pain med we can take for that pain that double you in half the pain right at the base of the stomach esophagus in the middle of your body I see the doctor today and agree to try take the carafate and protonix for one month but I forget to ask he about pain he actually tell I not to take any otc remedy or probiotic for this time frame want to see what the outcome will be with these two basic med so I reluctantly agree accord to my ph test I have minimal reflux and my les is work although not great it do not require surgery this doctor is a gastric surgeon and also specialize in liver cancer he is really very good and I do trust he he order an ultrasound for a month from now with all this in mind I would like to stay with the group I have have a lot of experience with doctor and the medical system and I know there is nothing like talk with real people with the same problem,neutral,1
liver cancer long story short my husband sibling say they know this for month but for some reason my husband either do not or do not care as much he is now act all concerned he never have too much concern about thing before ever I even remember the time I tell he about my uncle he cry or cry for a couple minute then stop and go back to sleep it was really weird no comforting for I or anything but his mother I know he is concerned but I do not get why this is all of a sudden news to he were do when the time is right because now more than ever it is not I am go I do not trust he and can not believe in he I am scared beyond shitless to divorce because of the kid but it is been on my mind for over 2 year now so there you go my poor mother in law she is always been such a good good woman her husband treat she like shit most of the time and now she have to go thru this 0,negative,0
my husband die suddendly aug 2008 he do have liver cancer but die from a bladder infection go septic he go so fast I never have a chance to say goodbye at the time of his death I was very sick myself after he pass my daughter who is an rn and have go to all his medical appt tell I that all dad want was to be able to take care of I he know that I would have no one after he pass he was right I have very little support one friend one very busy daughter so I try to do it alone one afternoon I was have a nap I wake up face to face with my husband I could see the outlike of his body from the waist up I could feel it was he he put out his arm to embrace I I feel love peace and he was send I a feeling that all was well with he I must say I have never feel such love in my life he look to be back in his 30 at the prime of his life he come to let I know he was ok I have to hold on to that moment I have to pray that we will be together again,positive,2
my sister take I to see joel osteen the preacher motivational speaker at one of the large arena friday night he talk a lot about the evil force bring you down and that you could pray your way out of any situation he also claim his mother pray her way out of terminal liver cancer some 20 year ago I cry almost the whole time I guess I was feel sorry for myself and feel like a failure as I was not able to pray myself out of bp and the evil force find great status in make I feel that way all of these people were whoopin and hollerin and I was leave numb my sister hold I a few time and pat I on the leg but never say a word I also do not tell she I was have a series of ect this week cause she would freak out she kind of think I bring a lot of this stuff on myself and tell I when she hear my voice and know I am down to pull up my big girl pantie why do people feel this way,neutral,1
hi it is goldy I happen to hit a highlight link on here that was the liver cancer support group area I can tell you it was the most humbling and intense experience one could experience we here are so lucky to even be eligible for the tx to rid the virus from bring we to our knee at the desperate point they are in at that discussion group read after read of how hep c was diagnose and were too scarred or just simply put off treatment and now that the big c is the result they are desperate for answer and precious time treatment appear to be no long an option for they and some of the post are so sad it is incredible o why do I listen to that doctor or why do I wait when I was treatable not exact quote but you get the jist of it it is a small amount of topic and post on their board but I have a feeling that there are sooo many more coulda woulda shoulda story out there and there just too sick scared or depressed to share I for one am sooo glad I take the bull by the horn against this dragon a serious eye opener goldy,neutral,1
today I go to a doctor and when I tell he I want to try a new medication he listen to I we discuss the pro and con I have do the research on the side effect I bring in my list of question and he give I his opinion and we decide what is good together also if I am sick I call and get in to he and I can ask for a chest x ray if I am worried that it might be bronchitis or pneumonia even if he do not hear anything but I am have difficulty breathe or if I have a deep cough that is productive I may ask for one just to be sure I have say no to medication and I have decide to change my medication and he have let I only for I to find out that the certain medication do not work for I and we go back to the one that do work now why do I have to mess with something that is work maybe I do not like the side effect I am see but when I try a new one maybe the side effect of the other one are worth the stability of the old one now I am sit here totally unstable with very few people to talk to because of the secrecy of my family and I have a family member who have a very large mass on her lung that have protrude through her lung wall and it is almost certain that it is cancerous why have it get this far because my family refuse to go to the doctor until it is too late I can not handle this on my own my family is not a family I can discuss this stuff with and I have almost no one to talk to about it who is not busy with other thing I have no money to pay for therapy and I have only a few outlet to deal with this l I can not do death again right now that is why I am go to change my med back to what I was on before so I can get stable my doctor feel he can help I get situate with an lcsw through a grant program but he is not sure I am go to go crazy right now I am about to lose it I have lose almost all my support and I do not know where to turn next one day at a time one moment at a time I will make it I just hope god send someone my way to stand beside I through this it claim so many life cancer come in so many form and it seem that my family is so oblivious to the fact that it run through our vein and blood line so thickly that they just ignore the fact that they need to stay on top of their health who know what would have happen if my grandma have been go to a doctor that was not such a pill pusher and who actually care about his patient and if she only would have been more in charge of her health care maybe she would have been diagnose with liver cancer many year ago and been able to get a liver transplant in time for she to still be alive today but no no one in my family take care of themselves or take charge of their own health care and make the doctor listen to they nobody in my family other than I and my cousin amy have been to a 4 year university and I doubt that even she know that she is in charge of what the doctor do say prescribe and so on when I take my first health class in college it was women health I was teach that I was the one hold all the card it was up to I to tell the doctor what was wrong with I what my symptom were what I want do what test I feel I need or do not need and whether or not I want to fill the prescription I hate cancer it take too many life it have try to take too many friend from I and luckily some have make it out alive I am grateful for those who have make it through it and I miss those who do not make it I just want to make it through this one I do not know how my family will handle this right around the anniversary of the loss of my grandmother which is in 3 day april 8 2006 was when we lose she to liver cancer and it still hurt so much god please protect we hold we close and help we stay together through this,negative,0
ill introduce myself here as I have in the liver cancer group its been over a year now since I was tell of my cirrhosis I was not tell at what stage the cirrhosis have become other than serious fluid build up in my torso region along with many test and blood work I have master my fluid level with the diaretic prescribe as I begin my second year a sonagram was order it must have show something because a ct scan and then a mri was order the end result was the finding of a 4 cm mass on the right lobe of my liver now I m have to go to new orleans to discuss a therapy to keep the mass under 5 cm and contain to my liver the dr there have suggest chemo therapy but will make his final decision once he review the mri that was take here in baton rouge I m sure other factor are involve other than this one mass but only time will tell I feel like I m preach to the choir because you all are very aware of my situation as each of you have travel the same road that is read just about all I can digest and now am ready for your hand on experience to help I put all the info together my visit here will increase as my therapy become more involved ill be need the knowledge and support of my new friend here to help guide I thru the hard spot and share with I any positive reaction to any therapy I too will share in your happy and hard time hopefully we can build a strong compassionate relationship as we travel down this path together I m a man of 60 year and I live alone and will be tackle this on my own so I hope that you will recognize the dilema I m in thank to all here that have support each other and share many experience that we all can learn from again I m thankful for being here with you sincerely bruce,positive,2
I am 23 year old and my daddy who just turn 50 is battle end stage liver cancer we find out in april and he immediately begin chemotherapy in hope that it would shrink the tumor and prepare he for a liver transplant as that is what he will need to survive the cancer in the last month or so my dad have progressively go down hill he was in the hospital 3 week ago due to a ruptured vein which lead to his diagnosis of esophageal varix he come home for 2 week and he is now in the hospital again his liver is not produce the enzyme it need to counteract with toxin and his body was poison they catch it in time and were able to reverse it however his oncologist tell we on monday that with he being in this condition progressive liver failure he is not go to be able to receive a new organ I am absolutely devestated I do not know how to cope other than know he would not be in pain anymore it is so hard to see he this way I wish I could do something to make he feel well while I am grow with my own child I still feel like his little girl I do not would not to lose my daddy he is go to miss see I get married see abigail grow old and so on I just can not even see my life in front of I right now I never imagine it without he I know other have have to face what I am face and it just seem so far from fair dad was suppose to grow old be able to retire and enjoy his life play with his grandchild I am a christian but right now I am struggle to understand god plan I pray daily mostly for the comfort of my daddy and our family but also for some type of answer I really am struggle if any of you out there have any advice as to how you get through please reply to I I could use some word from other who feel have feel what I am face,negative,0
I write this on another topic here I want to add some more information first off I do not believe I should go before anyone else and in most case give the option would pass if I know organ would go to young person or young parent I am very upset with my transplant center oregon health sciences university I do not believe they have been completely honest with I or at least have mislead I since come on here it seem I am discover that thing in the transplant system are not quite what I have been lead to believe I have been wait for a liver for 10 5 year spend over 250 000 00 in require test while wait I was actually put on the list prior to the change enact by the feds since then I have been lead to believe that there basicaly is only one list and the practice of sign up in different place would do no good I have learn on here that people are still sign up at several center and receive transplant rather quickly about 5 year ago the head of the liver transplant program accuse an associate of do less than acceptable work and have too high of a failure rate the head who I like eventually was drive out and the center would not answer any question about the episode I have only meet with the new director once for about 10 minute yet I am suppose to trust my life to he or the other surgeon the question were raise about my center have always tell I that if I get liver cancer then I become ineligible for transplant yet the mayo clinic site seem to indicate that is not true my meld score never change because my disease do not affect it the way other liver disease and the meld system seem to be set up to favor those with hepatitis yet my symptom continue to get bad I have beat the statistic by 15 year on recieve a transplant or die I have beat the statistic on get cancer by at least 5 year up until now I have been lock into one of two transplant center ohsu or university of washington due to my insurance I become eligible for medicare on 4 01 08 should I check elsewhere I write uno and they send I a very politically correct answer that avoid everyone of my question I am go to see they in a month and I want to be ready with the right question again I want to say I have been extremely fortunate in many way and am lucky to be alive but I am just wonder what the truth is,negative,0
I am new to this site look for support my family do not understand what I am go through have tt 12 17 08 and been on synthroid since then I have have two rai 131 treatment last body scan show area of concern on my liver I am have ct scan of abdomen thorax and pelvis and some blood work to check my liver my endo already look at this scan and say it was fine but oncologhist call back and want the further testing anyone have experience with their thyroid cancer spread to their liver thank chelsie,neutral,1
my husband is in the hospital he is hep c positive go through the full round of treatment for that a couple of year ago and was a non responder he have varix band about every 2 month this past week he have his second round of chemo therapy for liver cancer it wipe he out quickly this time his blood work show high bilirubin and high potassium he become more jaundice he barely eat for 2 day he have abdominal pain and diarrhea they immediately put he on iv fluid as they say the high bilirubin could dehydrate he this seem to perk he up some and improve his appetite they are schedule many test for monday to see why the bilirubin is elevate in the mean time we have to gown up when we enter his room until they know the cause of the diarrhea why do they make these gown yellow he was just officially place on the transplant list day early with a meld score of 22 after 30 year on the same job he decide to take early retirement today should have been his first day as a retiree,neutral,1
where I see what can happen with this hep c thing it is not good people are get cirrhosis and or liver cancer I take care of the sober part and love being sober now I have to take care of my emotional well being and my physical well being I lift alot at work so hopefully soon my muscle will start to cooperate with I one day at a time if you think you can not stay sober I am tell you that you can cause I am do it under some really bad circumstance at this moment and still find something to laugh about that is my experience strength and hope I was a dead down drunk for many year I live for alcohol and alcohol live in I but because of the 12 step I do not have to go there if I do not want too that is a great gift I hope you all find your path to freedom from bondage goodnight keep laugh,positive,2
my daughter have fight her entire life she was bear 2 month early and spend two month in nicu she have continue to fight as she need to have heart surgery once she reach 22 pound and she also have a spinal dimple but most recently we just find out she have liver cancer and have to have surgery and treatment the surgery is go to happen next week I do not know how were go to afford to run back and forth to winnipeg or to stay in hotel we are two hour away I want to hear is the size of an orange and the other is half of it we are pray they can take it all it is all so overwhelming I am try to be strong for she but it is get hard I have a go fund I site I am not sure if this is allow to be post here but we could use all the prayer and help we can get https www gofundme com 28sxjkc,negative,0
hello everyone my name is svetlana 39 year and I lose my partner for 18 year my first school love and the only love I have have for my life on the 6 of december 2008 for liver cancer just two day after our beautiful daughter turn 10 I am simply heart break and never manage to put my life together again all I am do is struggle for my daughter but I feel I might not be so strong to carry on for a long time this grief and the world without my precious is so overwhelming that I often find myself think about how much I want to join he wherever he is today is father day in your country and read post on facebook look at other people happy picture have been so hard for I that I actually decide to find a support group and talk to people otherwise I would simply go crazy I do not know what else I could write it is just I think I have come to a point where it would be impossible for I to continue on my own I desperately need someone to talk to,negative,0
in the course of two year I lose my granddaughter mother sister partner and daughter jasmyne die of a brain disease she was 14 day old mom was the glue in my dysfunctional family and we kind of split up when she pass she let go because of depression and wither away from starvation my sister make the decision not to force feed she my sister never leave the house again until she die of liver cancer my partner kill herself because of the pain of an amputation and fall off a 4 story building she was my soul mate my daughter take medication and it kill she no long term study this was the end of the family I will spare you the detail about why we could not heal ourselves as a family what was leave of we I have faith in god and I believe in heaven so I carry on but sometimes I really miss my daughter because we have unfinished business she have not quite forgive I for my parentlng or lack of it do you have idea about how to finish what was leave unfinished to someone in heaven letter prayer patience therapy loss is a part of life but it is hard but if you do not suffer you never love susan 2013 happy holiday,negative,0
both of my grandfather pass away when I was 5 and my memory of they are a bit frightening my mother father play with I and was active but he was paralyze from the shoulder down in an accident he have a velcro strap that help he hold a spoon but his before midday shake he live about a year after that my other grandfather die that same year 84 my dad tell I he was diagnose schizophrenic and have his first episode after he catch his first wife with another man he do not live with my grandmother but send money from chicago we visit he in his apartment everything reek of mothball he put they everywhere because he believe mothball would keep the freemason away from he he also put they in his food and his breath smell strongly of mothball he have develop liver cancer and I believe eat mothball have something to do with that I know my father feel deeply ashamed of this but his story lead I to become very afraid of have a break down and I actually do have a breakdown I want to talk to my aunt about it but how do I bring it up,negative,0
I was diagnose with trich 14 yr ago at age 11 and have have my up and down I have stop for many year at a time and when a stressful life change event come up I can not help but to pull and the whole process start over I tell myself when I get pregnant that since trich can be hereditary that I was not go to do it anymore and I have not pull for 2 yr but when my father was diagnose with liver cancer and give a 6 12 month window I could not help myself I try my good not to pull in front of my son but at time the urge is too strong and I can not help myself I have recently notice that he play with his hair a lot and have start pull at it I know I may very well be over react but I can not imagine my child go through what I go through grow up I am not sure what I should do do I talk to his dr although at this point there is nothing they can do thank for reading and your opinion are greatly appreciate kayla,negative,0
my vision have been blury for a couple month and my eye were tired and red at the later part of each day I finally go to an optomotrist to get they test and I was tell the difference in now and my last eye glass prescription just over a year ago was pretty pronounce I have to get new glass and was tell to wear they all the time whera before I primarily use they for night drive and read I ask my hep doctor about vision problem cause by the tx and she look it up and say it was common more common were floater in one vision that dissipate after tx was over but this vision decline is permanent she say bummer but as a friend remind I it is far well to have lousy eye that glass can correct than to continue have hep c or liver cancer I guess I can accept that though the loss of my vision is still significant I am getting test for glacoma next week and I wonder if that is possibly another side,positive,2
she is 64 and I am 28 I am currently lik find new friend to take I in that could lik replace that same feeling but it is not really work I am super spook I really do not wanna lose she but ok I just lose my brother to liver cancer and I myself too am stage 2 it is just I still figure I do not have the conscience for it I guess so anyways what do I do do I just wait for she to rush to emergency cause my dad have lik hernia too and all this covid stuff I just dunno I just really dunno I think I would be more prepared I think I was lik the neat one or most thoughtful if this happen but it all just seem so perfect storm you kno lik happen so fast she is get bald when do I start lik freak out that she is start to lik fit the profile or whatever and then cause ugh I am not ready for more lost relative so lik advice please,negative,0
I am write to encourage everyone with ra to get test for hepatitis c hcv it is a simple but specific blood test and you could ask your doc to do it while he is take blood for other test it have been estimate that there are about 40 000 rheumatoid arthritis patient with chronic hepatitis c infection see more at http www healthcentral com rheumatoid arthritis c 53 55491 double sthash hjtomoao dpufhcv is a virus that continually multiplie cause the immune system to constantly have to fight and it is believe that this is what trigger ra for some with hcv hcv is call a silent killer because chronic hcv is asymptomatic but it cause liver fibrosis and if untreated cirrhosis and liver cancer it is estimate that 170 million people are infect with hepatitis c in the united states the number is about 3 million see more at http www healthcentral com rheumatoid arthritis c 53 55491 double sthash hjtomoao dpufthe cdc recommend all baby boomer get test but anyone of any age could have it even if you fall into no risk group because you can get it from doctor hospital or dentist treat ra is complicate by hcv and vice versa until recently hcv was treat with interferon but there are new hcv treatment that offer hope for cure for many with the disease so please ask your doc to test you it is a simple but specific test and anyone can have it and not know it I find out I have hcv from my rheumatologist as a result of some high liver enzyme test have ra for 35 year and likely have have hcv for 45 year,positive,2
this article need to be look at by everybody this is awesome news grapefruit compound may help fight hepatitis c infection by david liu ph d feb 6 2008 3 23 35 prime ministerwednesday feb 6 2008 foodconsumer org a compound naturally occur in grapefruit and other citrus fruit may help get rid of hepatitis c virus accord to a study publish in an upcoming issue of the journal hematology the study lead by researcher at the massachusetts general hospital center for engineering in medicine show naringerin a flavonoid find in grapefruit block the secretion of hepatitis c virus from infected cell hepatitis c virus need to latch onto a very low density lipoprotein vldl a so call bad cholesterol to pass on the infection to other cell in the liver the effect was observe in cultured cell line these result suggest that lipid lower drug as well as supplement such as naringenin may be combine with traditional antiviral therapy to reduce or even eliminate hcv from infected patient say yaakov nahmias phd of the mgh cem the paper lead author early study show hepatitis c virus need vldl to maintain its infection and naringenin can reduce secretion of vldl from liver cell the current study was mean to examine whether the compound might also lower hcv secretion from infected cell the current antiviral medication can treat 50 percent of case but 70 percent are expect to develop chronic infection lead to cirrhosis or liver cancer in the end the researcher say naringerin or other lipid lower drug could be use with other antiviral medication to treat hepatitis c infection if the effect is confirm in human trial,positive,2
natalie cole receive new kidney los angeles reuters rhythm and blue singer natalie cole who have been battle hepatitis c receive a new kidney in los angeles and is rest comfortably her spokeswoman say on wednesday cole the 59 year old daughter of r b legend nat king cole undergo surgery at cedars sinai medical center in los angeles on tuesday the kidney come from a decease organ donor the spokeswoman say in a statement she have been receive kidney dialysis three time a week since september even as she tour the world to promote her new album still unforgettable cole will recuperate for the next three to four month force she to postpone a summer tour the statement say the singer reveal her hepatitis c diagnosis last july say she probably contract the liver disease from drug use more than 30 year ago hepatitis c is a blood bear infectious disease that can cause inflammation of the liver and in extreme case liver cancer it is usually contract through transfusion of unscreened blood or by inject or inhale drug cole have win nine grammy in a 30 year career that have include album such as everlasting and unforgettable with love which feature her singe a duet with her late father via electronic technology report by dean goodman edit by paul simao http www reuter com article entertainmentnews idustre54j70j20090520 non text portion of this message have been remove,neutral,1
list of condition 1 acute leukemia 2 adrenal cancer with distant metastasis or inoperable unresectable or recurrent 3 alexander disease alx neonatal and infantile 4 amyotrophic lateral sclerosis al 5 anaplastic adrenal cancer with distant metastasis or inoperable unresectable or recurrent 6 astrocytoma grade iii and iv 7 bladder cancer with distant metastasis or inoperable or unresectable 8 bone cancer with distant metastasis or inoperable or unresectable 9 breast cancer with distant metastasis or inoperable or unresectable 10 canavan disease cd 11 cerebro oculo facio skeletal cof syndrome 12 chronic myelogenous leukemia cml blast phase 13 creutzfeldt jakob disease cjd adult 14 ependymoblastoma child brain tumor 15 esophageal cancer 16 farber disease fd infantile 17 friedreichs ataxia frda 18 frontotemporal dementia foot pick disease type a adult 19 gallbladder cancer 20 gaucher disease gd type 2 21 glioblastoma multiforme brain tumor 22 head and neck cancer with distant metastasis or inoperable or uresectable 23 infantile neuroaxonal dystrophy inad 24 inflammatory breast cancer ibc 25 kidney cancer inoperable or unresectable 26 krabbe disease kd infantile 27 large intestine cancer with distant metastasis or inoperable unresectable or recurrent 28 lesch nyhan syndrome lns 29 liver cancer 30 mantle cell lymphoma mcl 31 metachromatic leukodystrophy mld late infantile 32 niemann pick disease npd type a 33 non small cell lung cancer with metastasis to or beyond the hilar node or inoperable unresectable or recurrent 34 ornithine transcarbamylase otc deficiency 35 osteogenesis imperfecta oi type ii 36 ovarian cancer with distant metastasis or inoperable or unresectable 37 pancreatic cancer 38 peritoneal mesothelioma 39 pleural mesothelioma 40 pompe disease infantile 41 rett rtt syndrome 42 salivary tumor 43 sandhoff disease 44 small cell cancer of the large intestine ovary prostate or uterus 45 small cell lung cancer 46 small intestine cancer with distant metastasis or inoperable unresectable or recurrent 47 spinal muscular atrophy sma type 0 and 1 48 stomach cancer with distant metastasis or inoperable unresectable or recurrent 49 thyroid cancer 50 ureter cancer with distant metastasis or inoperable unresectable or recurrent,neutral,1
my mother have stage 4 liver and colon cancer she is want to look into alternative or holistic treatment along with chemo I was wonder if this work and if there is any treatment center in the south dakota minnesota or north dakota area,negative,0
this is something that was start by missingmyhero in 2013 and she rerun it in 2014 I start it again mid 2015 and let it run for about a month I post the result which show a distinct trend but I say I would rerun it at the end of 2015 to pick up all that have join since then I will let it run for a couple of week and then post the result please post your reply with your name age location date you join ww and a short description of your personal situation history if you think you have already reply to the mid 2015 roll call then you need not reply now if you re not sure then reply and I can filter out the duplicate for those that do not know I ill start I am george aka brokengeo I am from ontario canada I am 74 and lose my wife of 50 year to liver cancer on june 7th 2013 no child retire 2001 but still live on our farm join ww in august 2013 and have find a lot of help helpful people here we all need each other when time get tough and need help at come up on 3 year a lot of thing have change for I but not all thank and good regard george,neutral,1
hi it is been a couple of week since I have been on here I have finish my 4th plebotomy and I have 2 week off 1 to get a ferritin test and then a dr appt I will be interested in see what my level are now my daughter age 20 was test and have a level of 617 she have her appt with a specialist today and have genetic testing he was tell she that he have a lot of patient with hemochromatosis and he have only have 1 die she come to he at age 45 with level of 4500 and liver cancer but could not be bleed because her hemoglobin was on 6 he say she only have 1 chromosome that was mutate though I think you have to have 1 from each parent well anyway my son who is 25 have a level of 1239 my other son is getting test tomorrow I have 3 brother so far 1 have been test and he is fine now my ex husband and all his sibling are go to get test what a mess it is bad enough to worry about take care of your self but now I have to make sure my kid take care of this too,negative,0
I am not go to say much right so tired of course I am a wreck I think I was strong I will get in more delay maybe tomorrow march 17 2007 I lose my dad heart disease he was not in my life much but always there I try to help july 29 2008 on vacation I watch my brother drown 38 yrs old I try to save he he almost drown I my husband try to save he bad vision of my life and I have to come home and tell my mom at this time my mom was sick and no freaking doctor could tell we what was wrong she was just pass out fall no warning jan 9 they finally say her breast cancer spread to her brain she have breast cancer the first time in 1999 and a million test there after they give she 3 to 6 month my 2 daughter 12 and 3 right there with take care of she go so fast she passsd feb 8 my mom was my life at this time is still have not deal with my brother drowning and all my momwould worry about was I the day my mom pass my brother in law he is old than I he was my uncle since I was one find out he have liver cancer he pass 16 day later I try not to be sad and try be strong my sadness ruin my family my husband do not know how to deal with my sadness and depression I think too much have happen I so can not do this and all I can think about is my kid very confused michelle,negative,0
I am new to this and try to get some information for my father that was recently diagnose with primary liver cancer he have a history of hep c as well as cirrhosis he go through inerferon treatment for the hep c about 4 year ago he do not do well with the inerferon and it is side effect with his cancer surgery is not an option at this point due to the fact that he have one larg tumor in the left lobe 13 cm and two or three small one in the right lobe the large tumor possibly have grow around the protal vein the treatment that the drs have suggest is the chemoembolization we are still try to get some information about how sucessfull this can be with his give medical history what my real question is is have anyone on here have both inerferon treatment and chemoembolization if you have or know someone that have could you please compare they for we and any additional medical history that they may have have bypass surgery breathing circulation problem renal problem or additional cancer the reason I ask about that is because I beleive that other medical condition can effect how someone deal with treatment my father also have some circulatory problem and have bypass surgery about 5 year ago thank you for any information that you may have have,negative,0
harvoni will be here on monday nov 16th kinda nervous been on the triple the incivek riba and interferon it do not work so now I am get harvoni and I hope it work from what I have read on here everything will be good supposedly it work good on geno 1 that is I I remember after give blood to the red cross they send I a letter inform I of my hep c infection I was so scared thought that was it but if you stay healthy and do not drink or drug you ll be alright you really have to find a place where you can exist with it till you can beat it but it do take over your life everyday you think about it think everything is attach to it you know if I get sick from the flu or something will I get sicker when the doctor come in the room and say well you do not have liver cancer yet I was like okay thank all the blood work the day of being tired no beer no pot hide it from all your love one from where you work but hopefully I beat the dragon because we go to war on monday thank for read,positive,2
this is important I have a favor to ask of all of you there is a bill in congress call h r 3974 viral hepatitis and liver cancer control and prevention act of 2009 introduce in house it expire at the end of 2010 we need everyone to write their representative and ask they to co sponsor this bill 100 signature are need to keep this alive this would be the first piece of legislation concern viral hepatitis here is how you can help go to http debbullan org lead htm there are simple instruction on how to contact your representative ask for their support there is also a form letter you can use if you go to the web site it will lead you through the process this can be one of the most important thing you could do to raise awareness and help advocate for viral hepatitis have all of your friend and relative do the same thing if the bill die at the end of the year then we may not get another chance for actual legislation that will help every one of us http debbullan org lead htm thank,neutral,1
I have been date this guy for the last year and half and we are start to have feeling for each other about a week ago he share with I a relative of his have lung and liver cancer and could go any moment in death and this finally have happen we arrange for I to come see he and spend the weekend with he but he cancel and was cry about have to cancel and I am feel his loss and give he the space he need now to deal with this issue it is hurt both of we the feeling we are have and we both know we are not to have these feeling it just hurt both of we so much last month we arrange this to happen and he cancel tell I I was attach to he so I go to he tell he my feeling and then a week later he admit he was feel something and was scared to show his feeling am I wrong in have feeling for my fwb and he have they with I he send I the cancellation and tell I he was cry as he write it out and this make no sense to I when he want I for one purpose and I was willing to give that purpose to he I feel very lost please advise,negative,0
I am new to this site but my doctor recommend it and I truly hope to get something out of it my dad was diagnose with colon and liver cancer a month after I leave for my first year of college within five month he pass away this all come after a year of lose four relative and a friend who kill himself now I find myself home for the summer and life is just fall apart everyone I know is die friend do not understand my entire family is grieve and still a mess and I feel like I am slowly lose my mind I am ancy all the time yet I have no energy or desire to do anything with my day if my mom do not make I get out of bed I would stay in bed all day I am nervous that my medication and therapy just would not be enough if anyone have any suggestion please let I know I am look for any form of support,negative,0
hi everyone my mum die nearly 18 year ago 4 4 94 the last 18 year have see I miss she so much and my heart I believe was break when she die I have just turn 20 and she was 39 and die from breast bone and liver cancer I keep dream about she at the moment and it is always the same thing she is die again I feel sad and I know that she is go to die and I keep say oh you do not die before like there is some relief and feel that she do not go nearly 18 year ago I know this is confuse so I am sorry if it is all muddle I am at work at the moment but will be check in daily this group is something I have need for the past 18 year I do read hope edleman book many many year ago and cry nearly the whole time a little about I nearly 38 blissfully married for 11 year 1 nearly 8 year old daughter bless xoxo,negative,0
dear all first let I say I have very little aml fight creditability as my path to restore health after my dx over three year ago have been a cake walk compare to most of your however today I was remind that there are bad diagnosis in fact that is one thing that keep I question my dx know that other have such a hard journey today I close friend of mine learn her precious sister have untreatable liver cancer she is in her 30 and is the mother of three child include an infant under the age of five I am heart break and pray for a miracle accord to multiple drs there is absolutely nothing to be do except await her inevitable death in 1 to 3 month she have consult with several expert I am so grateful to almighty god the great physician that there are option and the hope of eventual cure for aml there are bad diagnosis than aml please do not take my word as caviler or condescend I just know that there is hope and that for those of you in the fight lea tony tammy everett andy john karen the dave juan dad and any whose name I have forget god have not forsake you and there is hope you are and my daily prayer blessing julie,negative,0
think I would introduce myself really my uncle die a year and a half ago from kidney liver cancer he was in hospital for 7 month and it make I feel angry because they do not find it until they do a biopsy when he have die I know they do their good but as soon as he got admit into hospital one of the old doctor say to a young doctor something about it possibly being cancer and the young doctor just say to he no the symptom are not correct we will not even do a test to see if its that I was there and I think fair enough if there s no point but I m really angry they do not do it now also my stepmum have breast cancer when I was about 11 12 it was awful and we nearly lose she to it she is like my mum because I grow up with she I still call her mum and go to see she even though she and my dad divorce last year anyway she s been fine for a while but the cancer have recently come back and she have have to have more radiotherapy more laser treatment and a nuclear injection its make she quite ill again so she can not work and because she s in the house on her own now and my dad leave she with masse of debt she have have to sell the house because she can not afford it she s also have to sell 2 of her 4 horse because she can not look after they anymore the other two are look after by I and a family friend because its something for she to look forward to when she s well I just do not really know how to cope with this she s been so low because of the divorce and now she s really ill again I m really scared I m go to lose she to it because we nearly lose she last time and its come back again,negative,0
I am on other group here in ds and was glad to see this one I am plan to have a hyst sometime in the summer I am just so anxious about the whole thing I have a weird situation the reason I am do it is because there is a very strong gene defect in my family where every female on my mother side include my mother at 42 y o have get ovarian cancer and die I have try other prevention the pill for many year but now that I am 42 and my 1st cousin have show up with ovarian cancer and liver cancer I am very worried and feel I have no choice but to have the hyst I am not exaggerate when I say every female on that side of the family only 2 of my female cousin have escape this fate and they both have a hyst so are urge I to do so as well my docotr say he will do whatever I want and agree that I am at extremely high risk so it is not a bad idea to have it do generally my doctor say he can do it laproscopically so curious if anyonoe have it do that way and how it work out for you preparation for it and so on I want to leave my cervix as I hear it help with sex arousal but not sure also worry big time about the side effect after like sex hormone just feel like crap I feel good now and am have much anxiety about throw a wrench in that but I do not want to get cancer either,negative,0
hi recently my aunt pass away from liver cancer and that get I all quite worried because my mom and I and hep b carrier since more than 20 year ago without regular monitoring anyway I go for my blood test and result are all normal so far accord to gp doc say my hep b e antigen is negative and all other marker like alt ast are within normal level she do not suggest any folloow up with liver specialist for treatment of any sort but I will have to go for screen regularly but for my mom her hep b e antigen is positive which doc say is not so good as it mean her virus is active and I forget either her alt or ast is high than normal range which she mention it is not so high that I warrant immediate attention so we just need to monitor anyway my mom is go for an ultrasound soon before we sit down with the doc to analyse next course of action I do not have her detailed blood test yet so I can not share the figure for now I am so worried sick now know that something might be seriously wrong but yet not sure anyone have some advice on what I should look out for to decide whether my mom need to start on some treatment we do not do the viral load test if her ultrasound is clear but her hep b e antigen is positive should she still consult liver specialist for treatment I have read this forum and is confuse on whether we should be start on treatment as that may make the hbv resistant to drug many thank for any advice in advance,negative,0
they do not know what to do with he so I ask they to put he here I have an extra room all is go to be ok I think it will be a learning experience for I to think about someone else other then myself it feel good,positive,2
high fructose corn syrup link to liver scarringmarch 18 2010 physorg com high fructose corn syrup which is link to obesity may also be harmful to the liver accord to duke university medical center research we find that increase consumption of high fructose corn syrup was associate with scar in the liver or fibrosis among patient with non alcoholic fatty liver disease nafld say manal abdelmalek md mile per hour associate professor of medicine in the division of gastroenterology hepatology at duke university medical center her team of researcher at duke one of eight clinical center in the nonalcoholic steatohepatitis clinical research network look at 427 adult enrol in the network they analyze dietary questionnaire collect within three month of the adult liver biopsy to determine their high fructose corn syrup intake and its association with liver scar the researcher find only 19 percent of adult with nafld report no intake of fructose contain beverage while 52 percent consume between one and six serving a week and 29 percent consume fructose contain beverage on a daily basis an increase in consumption of fructose appear to be correlate to increase liver fibrosis in patient with nafld we have identify an environmental risk factor that may contribute to the metabolic syndrome of insulin resistance and the complication of the metabolic syndrome include liver injury abdelmalek say research abdelmalek publish in the journal of hepatology in 2008 show that within a small subset of patient high fructose corn syrup was associate with nafld her late research publish online in hepatology go one step far and link high fructose corn syrup to the progression of liver injury non alcoholic fatty liver disease is present in 30 percent of adult in the united states abdelmalek say although only a minority of patient progress to cirrhosis such patient are at increase risk for liver failure liver cancer and the need for liver transplant she explain unfortunately there is no therapy for non alcoholic fatty liver disease she say my hope is to see if we can find a factor such as increase consumption of high fructose corn syrup which if modify can decrease the risk of liver disease the idea is similar to what cardiologist have do for heart patient abdelmalek explain they discover that high fat diet are bad for your heart so they have promote low fat diet to decrease the risk of heart disease she say we have not make it that far with liver disease yet abdelmalek say we know that alcohol is not good for your liver and therefore encourage patient to limit alcohol consumption but what do you do when people have non alcoholic liver disease our finding suggest that we may need to go back to healthy diet that are more holistic abdelmalek say high fructose corn syrup which is predominately in soft drink and process food may not be as benign as we previously think the consumption of fructose have increase exponentially since the early 1970 and with this rise an increase in obesity and complication of obesity have been observe abdelmalek say there is an increase amount of datum that suggest high fructose corn syrup is fuel the fire of the obesity epidemic but until now no one have ever suggest that it contribute to liver disease and or liver injury abdelmalek say the next step is more study look at the mechanism of liver injury we need to do formal study that evaluate the influence of limit or completely discontinue high fructose corn syrup from one diet and see if there are health benefit from do so she say,neutral,1
http www boston com businessupdate 2012 12 19 vertex update label hepatitis drug after report small number fatal skin reaction qvjvibvtvchvw7meuskuaj story htmllife sciencesvertex update label of hepatitis c drug after report of a small number of fatal skin reactionse mail print comment 0 12 19 2012 9 41 am0 0106e mailby chris reidy globe staffvertex pharmaceuticals inc say wednesday that it will more prominently display warning of possible side effect on the us label of its blockbuster hepatitis c drug incivek follow report of a small number of fatality a know side effect of incivek is skin rash and that was note on the drug original label follow its us approval in mid 2011 cambridge base vertex say wednesday that the updating of the us label follow report of a small number of fatal skin reaction in patient who continue to receive incivek combination therapy after a serious skin reaction was identify a vertex spokesman decline to be specific when ask to quantify the number of fatality the spokesman add that the company have been work with the food and drug administration on the label update rash and serious skin reaction were part of the incivek label since approval and a boxed warning relate to serious skin reaction have now been add to the label give more prominence to the importance of stop incivek if a serious skin reaction occur he write in an e mail in a statement vertex senior vice president and chief medical officer robert kauffman md say the safety of people take our medicine is our first priority and we are committed to ensure that patient and physician are aware of the label update to help they use incivek properly we will continue to educate physician to follow the rash management plan develop while incivek was in clinical trial and the information contain in the update label in its most recent quarter vertex say that incivek account for 254 million of total company revenue of 336 million incivek have been prescribe to more than 50 000 patient in the united states since it go on the market the company say hepatitis c is a serious liver disease cause by the hepatitis c virus which is spread through direct contact with the blood of infected people and ultimately affect the liver chronic hepatitis c can lead to serious and life threaten liver problem include liver damage cirrhosis liver failure or liver cancer,neutral,1
I have my second resection surgery in jan I am now on 6mp I am concern with some of the possible side effect hair loss cancer liver problem what have your experience with the drug been I have been very tired and nausiate,neutral,1
I am a member of colon cancer group and go to work today on the 5 year all clear anniversary of my stage iii colon cancer I was immediately greet with the news that a 34 year old coworker who have been cough think it was asthma and an increasingly painful back learn that she have cancer in her lung bone and liver presumably from breast cancer I go to visit herein the hospital and they have she on morphine and oxygen state her pulse ox have go to 86 I realize this is bad news but was try to brace for just how bad it may be can anyone provide any information about her prognosis she seriously think she will be back to work in a couple of day,negative,0
I just get the result yesterday dr say I have 2 spot in the liver I am stage 4 cancer and have surgery last oct they remove half of my liver and colon now they find another 2 spot in liver anyone have the same my problem please share I am cry too much and no tear to cry please share for if any chance to get cancer free thank all,negative,0
sciencedaily aug 10 2009 a chemical find in blueberry leave have show a strong effect in block the replication of the hepatitis c virus open up a new avenue for treat chronic hcv infection which affect 200 million people worldwide and can eventually lead to cirrhosis and liver cancer among the area of especially high hepatitis c incidence is the miyazaki prefecture of southern japan a trend that lead hiroaki kataoka and colleague at the university of miyazaki and elsewhere in japan on a search for well treatment option currently there is no vaccine for hcv and though a combination drug regiman can clear hcv infection this treatment is only about 60 effective on average and pose risk of severe side effect kataoka and colleague believe that since hcv is localize in the liver and can take 20 year or more to develop into disease a dietary supplement might help slow or stop disease progression so they screen nearly 300 different agricultural product for potential compound that suppress hcv replication and uncover a strong candidate in the leave of rabbit eye blueberry native to the southeastern we they purify the compound and identify it as proanthocyandin a polyphenol similar to the beneficial chemical find in grape and wine while proanthocyandin can be harmful kataoka and colleague note its effective concentration against hcv was 100 time less than the toxic threshold and similar chemical are find in many edible plant suggest it should be safe as a dietary supplement in the meantime the researcher now hope to explore the detailed mechanism of how this chemical stop hcv replication,neutral,1
hello all I am happy to have find this group I have just been tell I will need a liver biopsy the specialist office call as my number are not good I do not know what the number are but they have not come down in 15 month I am not happy with myself that I have develop this disease who would have think that all those glass of wine I love would lead to this my girlfriend and I love fine wine and while I admit to having have more than 375 ml most night I never feel that I was a problem drinker or an alcoholic when the doctor tell I that my enzyme were 4x what they should be I immediately stop drink that was aug 2010 and still the number have not come down so other than eat healthy which I always have and exercise I have a road bike and cycle 130 km a week I am not overweight when I stop drink I lose 15 pound which was a good thing I have gain that weight over a 2yr period of time once I turn 50 so how freak out should I be my son is 15 and I am a single parent should I start think about a shortened life span and begin to prepare for that look for some guidance and how you have all manage with this my maternal grandmother die of liver cancer although I do not believe she drink so of course I worry about that too thank for listen,neutral,1
I try to copy just the website but it would not take you to there so here you go alot to read but good to read action alert post january 17 2009 action alert sign on letter viral hepatitis in senate economic stimulus billthe hepatitis community have draft the attach letter to key senate member request inclusion of funding for the center for disease control and prevention cdc division of viral hepatitis in the senate version of the economic stimulus bill we would like to send the letter next week and are seek organizational sign on if you are interested in sign on your organization please let martha saly mbsaly nvhr org know by close of business wednesday january 21 a final copy of the letter with all signatory will be send to all organization that have sign on in addition individual organization are encourage to send separate letter to key senator particularly if you are from their state senator the letter will be send to harry reid nv richard durbin il daniel inouye hi thad cochran miss tom harkin ia arlen specter pa mitch mcconnell ky please feel free to share this with other in your network who may be interested thank you for your continued dedication to address the viral hepatitis epidemic in the united states please let we know if you have any question chris taylor senior program manager viral hepatitis national alliance of state and territorial aid directors444 north capitol street nw suite 339 washington dc 20001 phone 202 434 8041 fax 202 434 8092ctaylor nastad org www nastad org sample letter january 16 2008 the honorable harry reidthe honorable richard durbinthe honorable daniel inouyethe honorable thad cochranthe honorable tom harkinthe honorable arlen specter the honorable mitch mcconnellunite state senatewashington dc 20510 dear senator on behalf of the undersigned organization we request your support for increase funding for the center for disease control and prevention cdc division of viral hepatitis dvh in the senate stimulus package increase funding for dvh will make a significant impact in reduce the morbidity and mortality from chronic viral hepatitis an investment that would not only prevent viral hepatitis infection but stimulate the economy by create much need job we also want to thank you for your longstanding commitment to maintain the health of our nation by vigorously support federal funding of our nation public health and research agency through your leadership cdc is poise to turn the tide against chronic viral hepatitis in the united states but can not respond effectively without additional funding specifically we are seek the following hepatitis specific funding 53 million to improve the detection of viral hepatitis by create a complete and consistent national surveillance system 113 million to reduce illness and death from chronic viral hepatitis by build the capacity of state and local health department to provide counseling test education case management public awareness and professional education 66 6 million to eliminate hepatitis b transmission among adult in the you s by provide vaccine to high risk adult and the infrastructure necessary for vaccine delivery and 26 4 million to prevent hepatitis b transmission and disease among infected pregnant woman and their infant by create a comprehensive case management program to vaccinate and monitor expose infant refer infect mother for appropriate care and screening and vaccinate family member up to 5 6 million americans are infect with chronic hepatitis b virus hbv or hepatitis c virus hcv which are the lead cause of primary liver cancer the fast grow cancer in incidence in the you s each year 10 000 americans die prematurely from end stage liver disease or liver cancer due to chronic viral hepatitis infection without an increase in funding to support prevention and surveillance capacity chronic viral hepatitis will exact an unacceptably high burden of disease death and associate cost on the american public immediate action will avert this result we strongly support the need to invest in cdc capacity to win the battle against chronic viral hepatitis which will ultimately lower health care cost and most important improve the health and longevity of our citizen should you have question please contact joan block at 215 489 4900 or joan hepb org list in formation about hepatitis news update community support resource library about hcsp contact us site map recursos en espaol home c 2009 hepatitis c support project,neutral,1
my mother and father have been diagnose with cancer my father have liver cancer in final stage and have been give 6 month to live my mother have lung cancer and with surgery and chemo she have a good chance of survival my mother was diagnose in april after she have surgery for a clot in her brain my father was diagnose august 11 my father is now home and is need of 24 hour care I live 1 1 2 hour away from they and I am married with child and grandchild my family at home are supportive and have make adjustment so that I may be with my father and mother to care for they a few day a week my father have just sign up for hospice care but still need his family to care for all his need I have 2 sister and 1 brother there are other grandchild that live close by my parent when we were ask if we want my father to come home or stay in the convelescent home we vote to bring he home and we would take turn care for he however so far it have been a real problem my brother live in arizona which is 8 hour away the old sister have disappear completely without contact any of our family member she refuse to help out as do her child the one sister who do live close by have help a bit but I can see problem come up I love my parent so much and want to help they in anyway I can but sometimes I feel so alone and tired I have some health issue of my own I do not know what to do I would hate to see my dad go back to the convelescent hospital,negative,0
sciencedaily dec 27 2009 a new study find that the herb milk thistle may help treat liver inflammation in cancer patient who receive chemotherapy publish early online in cancer a peer review journal of the american cancer society the study indicate that the herb could allow patient to take potent dose of chemotherapy without damage their liver chemotherapy drug frequently cause inflammation in the liver and when they do doctor must often lower patient dose or stop administer the therapy altogether clinical study have investigate use milk thistle to treat liver damage from cirrhosis from alcohol or toxin such as mushroom poisoning despite limited study datum the herb is often use for the treatment of chemotherapy associate liver problem to test whether milk thistle could help treat chemotherapy associate liver problem kara kelly md of the new york presbyterian hospital columbia university medical center herbert irving comprehensive cancer center in new york city and colleague conduct a randomize control double blind study in child with acute lymphoblastic leukemia all who commonly experience this side effect fifty child with all were enrol in the study and were randomize to receive milk thistle or placebo for 28 day at the start of the study all of the child have evidence of liver inflammation as measure by elevation in blood level of the liver enzyme aspartate amino transferase ast and amino alanine transferase alt when the investigator perform liver function test on the child at day 56 28 day after receive the herb or placebo child receive milk thistle have improvement in their liver enzyme compare with child receive a placebo specifically the group that take milk thistle have significantly low level of ast and a trend towards significantly low level of alt take milk thistle also seem to help keep few patient from have to lower the dose of their medication chemotherapy dose were reduce in 61 percent of the group receive milk thistle compare with 72 percent of the placebo group in addition milk thistle appear to be safe for consumption the researcher also study the effect of combine milk thistle with chemotherapy on leukemia cell grow in the laboratory they find that milk thistle do not interfere with the cancer fighting property of chemotherapy milk thistle need to be study far to see how effective it is for a long course of treatment and whether it work well in reduce liver inflammation in other type of cancer and with other type of chemotherapy say dr kelly however our result are promise as there are no substitute medication for treat liver toxicity http www sciencedaily com release 2009 12 091215172325 htm story source adapt from material provide by wiley blackwell via alphagalileo journal reference 1 lada et al a randomize control double blind pilot study of milk thistle for the treatment of hepatotoxicity in childhood acute lymphoblastic leukemia all cancer 2009 doi 10 1002 cncr 24723,neutral,1
I lose my husband on august 3rd he was diagnose with primary liver cancer on may 2nd only three month despite being tell he have upwards of a year without treatment he have hepatocellular carcinoma result of 20 year of hep c I turn 50 in may he was 59 5 and one day when he pass away he sign his retirement paperwork five day before he die I have so much to say do not know what to say and wow I am struggle I do what I have to do what I need to and sometimes do what I should not I know this is new and fresh I find a voicemail on his phone that was from january that indicate he receive a voice mail from his gi doctor that say that he think the lesion are now cancer I am begin to realize that my husband was being tell that he have cancer and he do not address it or he really was beautifully ignorant it do not matter in the end obviously I struggle with the sadness the resignation and all the emotion in between and then I hear something like that and I am really really mad I am glad I have find an online group because I spend alot of time online and I need something to turn to where people understand I will write more later I am in a training today and the topic I am listen to right now is boring as all get out and I am try to stay awake so here I am and glad to have find this group,negative,0
the influence of the thief that s what smke is and while we quit it will tauntband nag and try to bring you back to he do not go there he is a liar and a thief have you ever look back and think about why you begin smoke in the first place do you think it would become an addiction I smoke to fit into the crowd I was not popuar but I was ok I think there was something more smoking will not change who you are look for its been there all along you are special the influence of a thief those cigarette they look so cool as someone puff out back they blow the smoke ring one two three and then they cough and hack they were cool kid in the class the athelete the star and popular one and somewhere along the line that s who I want to become I do not inhale that thick black smoke so that make smoking alright I do not have to worry none cause I could quit whenever I like it was great to feel that I belong and I would not smoke for long cause smoking was just a temporary thing that I could easily get a handle on but as the year went drift by year after year and more the thief decieve it rob it lie I would try to quit but cry I try to stop not once but twice why do it have such a hold in the beginning it was just for fun the rest was not fortold the doctor call I in today write by missionkd let not smoke today there is no value in smoking it is not worth it but I can tell you what is worth it quit is worth it big time my mother pancreatic and liver cancer my uncle tongue cancer my grandmother and my sister breast cancer my aunt leukemia my father heart disease 3 pkg day smoker my friend brain tumor 2 pkg day smoker let knock today out of the ballpark with a no smoking day for all of we shall we we can do it the thief have no influence over we he lie to steal what is rightfully ours peace and joy and freedom from smoke missionkd,positive,2
hello all I do not want to offend anyone with my question but am have trouble get any help with the issue please do not read this post if it will upset you though I feel if other man know this could happen perhaps they would think twice about drink and get this horrible condition I am new to this group and my man have hepatis c cirrhosis and possibly liver cancer he have incredible ascite and swollen scrotum and pit edema in leg have paracentisis do every 3 week cause they will not do it any close due to all his other issue right now the main concern is the swelling of his scrotum this is a huge issue for he I have ask all his doctor and they insist this is just a part of the end stage liver failure I have look online and there is not much information about it no one seem to talk about it and I wonder if other have the problem and what they do about it I hope I will be able to come up with something that will give he some relief he even have trouble sit without spread his leg and have a rash on both inner thigh from the constant contact urinating is also an issue as his penis is cover by the massive swelling and his before midday is no where close to where it need to be I am ask for any assistance in this matter and thank all in advance I have learn more than I ever want to about this horrible disease and am glad I find this area to discuss such private matter I do find a scrotal support online that help a little and allow he to go in public without look so bad,negative,0
my wife get stage 4 colorectal cancer with liver met that do not respond to folfox do anyone have any insight opinion on gemzar xeloda votrient,negative,0
my grandmother just find out that her breast cancer may be in her lung bone and liver she have imflammatory breast cancer her mass is the size of a large grapefruit because of her health and her age they do not feel like she can have kemo but they are go to do a double removal of her breast what are her chance please be honest is she termanil,negative,0
hey guy I type this generic letter for you to personalize and email or hand write to your congress we all need to do it please be a part of this great effort thank the honorable full name room name senate representative office buildingunited states senate house of representativeswashington dc 20510 date your name your mail address dear mister senator representative I want to begin this letter by first thank you for your time and consideration and take time out of your busy day what I am write you about today is hepatitis c hcv hcv kill even more people every year than aids in fact 3 4 of americans have hepatitis c whether they have been diagnose yet or not that is 4 out of every hundred voter hcv affect everyone differently some people start have symptom immediately while other may not have symptom until they already have cirrhosis the main symptom are vomit muscle pain fatigue diarrhea memory loss appetite loss fatigue jaundice yellow of the white of the eye and the skin and abdominal swelling since hepatitis c weaken the immune system the disease bring on other chronic condition such as fibromyalgia arthritis and many other condition hcv is a blood bear viral disease that cause liver inflammation fibrosis cirrhosis liver cancer and eventually liver failure there are many different way one can contract hcv even though it can only be contract through blood a few way are blood transfusion tattoo and share needle toothbrush or razor with an infected person hcv affect an estimate 150 200 million people globally 3 2 million of those people live in the united states to learn more about hepatitis c please visit emedicinehealth com hepatitis central com or just google hepatitis c senator representative I urge you to please stand up for the 3 4 of americans affect by this terrible disease I thank you so much for your time and the action you will take on this issue please feel free to contact I for further information at your email address or by mail sincerely your your name,neutral,1
hello everyone and thank for have this forum I was recently diagnose with hh with ferratin level of 350 iron capacity of 75 and alt and ast of 100 iron is 260 my hematologist who I really like recently take a position at another hospital and now I have been assign to a very young hematologist oncologist she tell I that phlebotomy is not call for until my ferratin exceed 1 000 despite suffer from fatigue and having compromise liver level when I ask she what the downside was to bring my level down through phlebotomy and she say she was not sure my insurance would cover it I am well insured and even if I was not the financial consideration should not affect her guidance then she say I would have to be stick big deal right and that I might feel tired afterwards she then suggest I go to a blood bank and donate and that I do not need to disclose I have hh because all blood bank accept hh blood which I know is untrue besides do I really want to go to a city blood bank rather than to the hospital who is tend to my care and not have my blood draw and subsequently the record complete also is not there a once every 56 day rule to donation I understand that once ferratin reach 1000 the chance for liver cancer are increase do anyone have any insight or guidance on when treatment is appropriate thank you so much,negative,0
good morning lady I am look for some advice and resource about how to combat the side effect of perimenopause menopause after many high strung emotional year deal with my sa my life have reach a comfortable and content place except for hot flash short attention span and decrease libido my period was pretty regular then suddenly cease about 4 month ago and about 6 week ago I start to with some frustrating side effect I have read about treatment but damn if they are not confusing and contradictory my doctor offer to put I on hrt my gyno offer low dose bc pill for a year I have read that oral dose of estrogen at this juncture can be unhealthy I am positive I do not want to do anythng that can a wreak havoc with my liver liver pancrea cancer is a family thing I have read about progesterone cream being low dose and transdermal skip the liver I am very physically active yoga eat a healthy diet and do not have any issue except elevated cholesterol to add to my confusion I have read hormone can affect cholesterol too any advice or resource thank you,neutral,1
I am new to this site and the whole online support group thing in general I am pretty sure I have struggle with anxiety my whole life I remember as a kid I would get intense phobia about choke to death my parent literally could not get I to eat anything but water and a few bite of mashed potato for like 2 week so anxiety is definitely not something new to I I know I have it and was put on zoloft but do not last long on that because it make everything 100x bad was tell that it take a few week to kick in but I think I probably would have have a heart attack or jump off a bridge if I have to deal with the anxiety I was deal with while on zoloft for almost a year after that thing were good I only have a couple day a month where I was truly anxious my anxiety seem to come and go I will be fine for week or month and then have a bad about that seem to really get to I for about a week and then back to feel okay during my bad time I think every twinge ache pain itch and so on is cancer or something serious I have 2 amazing kid a very supportive husband other than the anxiety my life is almost picture perfect I guess what s bring I here now is that I have have wierd stomach pain that seem to come and go I have this problem awhile back and see my doctor who put I on a prescription for acid reflux and also order an abdominal ultrasound because he want to check for gallstone all come back negative for anything serious it seem like after I find out all was okay the symptom go away I honestly do not know if it was because of the med for acid reflux or the relief that there was not a tumor in there this was close to a year ago and the pain is back once again I am worry about liver cancer or pancreatic cancer or something really serious I keep tell myself that dwell on it and worry about it make it 10 x bad do anyone else think that because I am worry so much about it that I am create the pain myself it is so frustrating to think that my mind is create all of this,negative,0
it was 5 year on july 21 since my liver transplant for live cancer cause by hep c and early cirrhosis I will be have my 5 year annual exam tomorrow and thursday to make sure I am still free of the cancer after my transplant the hep c move into my new liver but the hep c treatment over a year ago clear I of the hep c I receive a beautiful 5 year recepient pin in the mail last week from the transplant center do great and forever thankful to god and to the unselfish generous donor who sign that card give I the gift of life,positive,2
I find this article online after research for research being conduct to prevent fibrosis http ucsdnews ucsd edu pressrelease scarring_cells_revert_to_inactive_state_as_liver_heal research with mouse reveal possible strategy to reverse fibrosis in liver and other organ a photomicrograph of cirrhotic liver tissue with extensive fibrotic scar stain blue a photomicrograph of cirrhotic liver tissue with extensive fibrotic scar stain blue an international team of scientist lead by researcher at the university of california san diego school of medicine report that significant number of myofibroblast cell that produce the fibrous scarring in chronic liver injury revert to an inactive phenotype as the liver heal the discovery in mouse model could ultimately help lead to new human therapy for reverse fibrosis in the liver and in other organ like the lung and kidney the work is publish in the may 7 2012 online early edition of the proceeding of the national academy of sciences the take away message is two fold say david a brenn md vice chancellor for health sciences dean of the uc san diego school of medicine and senior author of the paper first we ve show that liver fibrosis is markedly reversible and we now well understand how it happen second we can start look for way to direct active myofibroblast to stop produce scar and become inactive we can focus on develop drug that promote cell change and regression it raise the bar for prospective treatment tremendously liver fibrosis is the 12th lead cause of death in the united states it is the result of chronic liver injury cause by such agent as the hepatitis b and c virus alcoholic liver disease and non alcoholic steatohepatitis the condition is manifest by extensive scarring of liver tissue and the organ progressive inability to filter body toxin liver fibrosis precede the development of liver cancer often the only treatment for end stage liver fibrosis is an organ transplant fibrosis begin when infectious agent or excessive alcohol consumption trigger activation of hepatic stellate cell hsc which normally act as quiescent storage unit for nutrient like vitamin a in the liver once activate these hsc acquire characteristic of another cell type call myofibroblast which are characterize by their abundant production of extracellular matrix protein such as collagen these protein accumulate as scar tissue render the organ progressively dysfunctional however if the source of the liver injury is successfully treat or eliminate the liver can repair itself in part this is due to the activate hscs undergo apoptosis program cell death and being remove by other cell but uc san diego scientist say that in test use a mouse model as many as half of all activate hscs persist they do not die but rather revert to an inactive phenotype during fibrotic regression after one month of regression these cell have stop produce collagen they ve upregulate some of the gene associate with quiescence and return to their normal location in the liver say tatiana kisseleva md phd an assistant research scientist and first author of the study its not clear why these myofibroblast survive also scientist note the revert myofibroblast do not completely return to their original quiescent state they re still more susceptible to repetitive injury than original quiescent hsc say kisseleva who note future test will investigate whether additional reversion occur with more time kisseleva suggest the finding present another avenue for treat liver fibrosis especially in possibly revert fibrosis and cirrhosis which account for roughly 27 000 death in the united states annually fibrosis occur in other organ as well such as the kidney and lung with comparable deadly effect recent study indicate fibrotic reversibility in these organ as well our finding are applicable to other fibrose organ say kisseleva instead of kill damage cell we might be able to de activate they and revert they to healthy original,neutral,1
I am so glad to have find this site I am newly diagnose after 10 year of complain to my doc about how I feel and point out my constantly high ferritin level I start research my high ferritin as far back as 1998 and no one ever take I serious I was tell that hemochromatosis was extremely rare and brush off even after tell they that my grandfather have die of an extremely rare form of hepatocellular carcinoma the doctor that finally take heed and actually do something about it was of all thing a dermatologist about I I have 2 copy of the same mutation c282y my ferritin level is 892 tran iron sit is 93 00 I have have 4 phlebotomy lab test and a liver ultrasound so far my worry are my alt level at 56 lab state 0 35 iu l as normal and my ultrasound impression 1 diffuse increase echogenicity of the liver consistent with the patient history hemochromatosis no hepatic mass see no biliary ductal dilatation identify the liver is normal in size measure 15 cm longitudinally but I do not see my doctor a hemotologist oncologist for another month question have anyone here have similiar finding is that consistant with this disorder will my liver echogenicity heal and my alt return to normal I also have a long history of terrible arrythmia mainly pvcs which calm down last year after endure 13 month with over 10 000 a day I have 3 stress echos and a thallium stress test over the course of 4 year in which everything come back ok just last week I have a normal ekg and chest x ray to rule out congestive heart failure due to the swelling I have have in low leg and foot off and on question do anyone else have pvcs or swell with this I was tell last year that I have arthritis start and I do have some bronze on my shin do that go away with continue phlebotomy with my grandfather die of liver cancer I am far from being calm I appreciate your knowledge and help and any input would be greatly welcome it mean a great deal to I,positive,2
hopefully the title do not sound cold or callous I reach out to this group about 1 month ago while my wife was still alive and find it to be very helpful then she start a rapid descent from her cancer and she succumb to it on october 25th she fight hard for 1 1 2 year but it was after all stage iv liver cancer and she even surprise her oncologist for fight as long as she do we were able to do some local traveling and i d like to think that her last day were comfortable that was really my only hope have 1 5 year to prepare do not make it any easy in fact its like lower your shoulder to fend off the tidal wave that s head right for you right now I m awash in the tsunami that is leave behind but ill keep my head above the water I m a survivor but please someone let I know that it will get easy lot of people do tell I this and I know deep down that it will but it seem like a long hard fight fortunately I have do some reading and take other advice that seem to validate the feeling I have its amazing the range of emotion as well as the little reminder that linger all over the house so many question and feeling to comprehend so I do not even try still kind of numb like I want to sleep all the time but too much to do need to cancel account get thing change over blahblahblah thank goodness the funeral is over and I can feel a sense of being able to move on now I just hope the wave wash I up and onto a friendly shore,positive,2
hello I am new to this group I need advice we just lose my father to liver cancer september 20 2009 it was very sudden however my mother have lung cancer and is in need of treatment but because of her age and breathing capacity she can not have surgery they wil try chemo or radiation my parent were marry for 64 year my mother have never been alone she have have several surgery in the past two year brain surgery in march she can not be leave alone none of my other family who live close by have volunteer to stay with she so my daughter and I trade off every week to stay with she it was like this with my dad too when he was on hospice my husband is very supportive but I do not get to spend the that much time with he we have a chance this past sunday my sister pick up my mom take she to the cemetery and was go to spend time with she so that my husband and I can spend time together after and hour and a half she call to pick my mom up she sound like drop everything come now I feel bad for my mom I love she so much and I promise my dad I would look after she but there are time when I feel like scream at they someone have to be here at night because my mom have problem breathe so I guess this is why no one want to volunteer what to do,negative,0
hi all I am a 28 year old female I go to the doctor back in mid january after not having go for several year they go ahead and do bloodworm that morning because I have not yet have any breakfast although my grandma do pass away about 12 20 that morning and I do drink some sprite and take some tylenol ibprophen the test result come back as elevated liver enzyme and low good cholesterol at the time my alt was 72 and my ast was 62 my weight then was 271 the doctor tell I that she do not know why my enzyme were elevate and think that I might have a fatty liver but she do not seem to worried about it just tell I to do cardio exercise and give I some information on a healthy diet she tell I to return mid late february for more blood work I didd so I have a follow up appointment with my doctor a few day later to go over result blood work come back and my enzyme have come down alt was 60 and ast was 38 she say that although they have come down it was still elevate and any elevation is bad she schedule I for an ultrasound on my abdoman for the follow week to make sure my liver is ok this confuse I because she do not seem to concerned and I think that the drop was good still not in normal range but good progress after that appointment I stop drink diet soda which I was drink 2 3 16 oz bottle a day and stop drink coffee with creamer and sugar I only have about 1 coffee a day and I have not take any otc pain medication I have drink nothing but water since the day I see the doctor and she recommend I go get an ultrasound I go and have the ultrasound do and the result come back as fatty infiltrate liver and was tell to follow a low fat diet a diet they recommend was nash diet they give I a list of thing that I can not have which include bagel bread pasta potato rice no fatty meat like lamb ham pork product sausage no milk butter that is cream cheese and egg they do say that fatty free dairy product were allow like 0 skim milk soy low fat milk egg beater veggie slice tofu cheese sorbet and light dressing since stop drink diet soda and try my good to eat more fruit and veggie I have fall off the horse several time and have eat pizza and fry chicken and some other thing and start drink smoothie in the morning with almond milk spinach a banana and some frozen unsweetened fruit I have drop about 10 pound I have a follow up appointment with my doctor next week to discuss this diagnosis I just need some help understand all this and what I need to do I am totally new at this and have do some research and find that if I do not get this under control it will possibly lead to liver cancer liver chirrio and ever liver failure I am 28 and have a lot of life ahead of I and this scare I to death someone please help and give some advice,negative,0
http www aidsmed com article hepandhiv_4899 shtml hepatitis hiv there is little doubt the tremendous impact hiv drug therapy have have on the life and future of hiv positive people rate of opportunistic infection are still low in the united states and it is abundantly clear that people are live long with hiv infectionthank to the availability and widespread use of these treatment unfortunately the life extend benefit of hiv drug treatment have open up a new set of problem for many hiv positive people thousand of hiv positive people in the you s are also infectedor at risk of being infectedwith one of several hepatitis virus some of the hepatitis virus can cause chronic infection mean that they remain active for many year and can lead to serious liver damage over time and because many hiv positive people are now at a much low risk of die from an aid relate opportunistic infection they must now face the challenge of have to manage these other viral disease that pose a threat to their health and live viral hepatitis which can cause long term liver problem liver failure and liver cancer is consider to be a lead cause of death among hiv positive people in turn numerous hiv positive people must fight two infection at once aidsmed com have prepare some lesson to help its reader well understand three hepatitis virus that are a potential threat to their health hepatitis a virus hav hepatitis b virus hbv and hepatitis c virus hcv each of the follow lesson discuss the way these hepatitis virus are transmit cause disease and are treat particularly in people live with hiv lesson hepatitis a hepatitis b hepatitis c back next last revise april 01 2009 this content is write by the editorial team at aidsmed com please find profile of this team on our about we page quick link aidsmed en espaol about hiv and aid lab test my cool tool hiv med start treatment switch treatment drug resistance side effect disclosure lipodystrophy hepatitis hiv woman child fact sheet treatment news community forum blog conference coverage aso directory poz magazine lesson index collapse all hiv start here introduction you your doctor what is aids hiv the blood test you ll need thing you should know before start treatment the big treatment question side effect other health problem change to your body lipodystrophy waste change to your face facial lipoatrophy risk to your heart feel tired fatigue anemia peripheral neuropathy hepatitis hiv hepatitis a hepatitis b hepatitis c human papilloma virus hpv genital wart anal cervical dysplasia cancer sick to your stomach nausea diarrhea risk to your liver hepatotoxicity risk to your kidney a complete guide to renal health risk to your bone osteopenia osteoporosis breathe easy tip for healthy lung tip trick on take sustiva opportunistic infection oi hepatitis hiv special issue for woman child live with hiv conclusion,neutral,1
again treatment that is find this site and just want to join to establish some support if it is determined I will be undergo this new interferon treatment w incivek have read up on all the infamous and notorious side effect that could occur I do the first interferon treatment 3 shot a week back in 2001 for 51 week and pegintron in 2003 until they abort after 36 week due to severe allergic reaction neck swollen and injection site look like flesh eat bacteria have to counter with prednisone almost lose my immunity system now since then my liver have advance to stage 3 fibrosis and my genotype 1a have skyrocket to 18 million initially 387 000 in 1997 good guess initial infection around 1979 so final stage 4 I am guess just a few year up the road doctor is send I to another specialist for second opinion to see how risky another treatment may be for I consider what occur last time have to send they record and am wait to be schedule if I do initiate this treatment I would like to return to this forum at such a time to interact with other who have been undergo the same to compare note with and offer encouragement in return thank and my good to all concerned deal with this my big salvation I think is the fact I have been abstinent from alcohol for 24 year now otherwise I doubt I would be here to tell the tale already lose one of my good friend last year to liver cancer due to hep c he just could not bring himself to do the treatment nor stop drink and I agree with what I hear professional say you have hep c and you drink alcohol you are commit suicide so I do not let anyone plead ignorance in the matter when I meet other at other live meeting I attend hope to chat with some here down the road,positive,2
a dear friend have cancer of the liver please pray for they it is grow fast,negative,0
I have been take pegalate interferon ribaviron for 15 week and was just inform that my viral load have not change and therefore have been terminate from the program to have endure this suffering for no benefit is really depressing I have lose a lot of hair close my business all for naught I was tell that I could see my doctor in 2 to 3 month I guess it is just an impersonal number game from my doctor perspective it is like get a death sentence through a messenger with a polite we are so sorry I guess the good news is that this torturous program is do I was on the 48 week program before this was to treat hep c genotype 1 stage 2 I have a reasonable low virile load of 465 000 my liver enzyme were actually normalize so it blow my mind to be tell that this do not work I use to drink prodigious amount of alcohol and now am not drink at all while no one can definitively say how long it will take to go from stage two to cirrhosis or liver cancer I wonder realistically how much time I have leave I have probably have this for 30 year I go from stage 0 in 1990 to stage 2 in 2005 my doctor say that go from stage 2 to stage 4 is much more rapid any analytical people out there willing to float an educate guess I have not experience any symptom that I know of from the disease that is why is was a tough decision to commence this program in the first place I am just ramble I guess I am have trouble deal with the unknown,negative,0
hi my buddy I still live and breathe to bad for you huh hahaha man I have miss you guy yea surgery go okay until about 2 day after and I get double pnemonia and gas in my lung but do well and have been think about all of you and hope you are do great I do not not realize how much I miss you all until I get on here and then I was like man am not nothin like the ds gang can you say no liver cancer while they were all up in my kool aid they go ahead and do 4 biopsys from all over liver so how great is that only one thing bother I okay a couple thing I fall in love with my surgeon oh my god yea he can park his little green bootie at my bedside anyday hahahaha the bitch of it is when I am high I will say what I feel and so now he know I love he and his bootie haahaha no shit my hubby just shake his head and tell the dr she was easy to pick up in the bar too hahahah asshole hahahawell all is go good and I want to say hi I hope to get to all of you sometime this week to check on ya and see how everyone is until then I send my love and prayer to all you guy and I will have to share some very very funny story of my hospital experience definitely think about a book go to call it how to get to there from here miss ya all luv ya bunche angie,positive,2
liver biopsy indicate persistent inflammation and fibrosis in hcv antibody positive people with undetectable hcv rna december 2008people who carry antibody indicate exposure to hepatitis c virus hcv but who have undetectable plasma hcv viral load are generally consider to have inactive disease likewise continue undetectable plasma hcv rna 24 month after completion of interferon basedtherapy is usually regard as a cure but hide hcv in the liver even in the absence of detectable virus in the blood may still lead to liver disease progression accord to a study publish in the december 2008 issue of hepatology it is unclear whether hcv have been eradicate or persist at a low level in hcv antibody positive hcv rna negative individual the study author note as background and the natural history of the disease and liver histology in such individual are not well characterize matthew hoare and colleague from the you k study 172 hcv antibody positive but plasma hcv rna negative individual who undergo diagnostic liver biopsy between 1992 and 2000 a total of 102 patient who have any possible cause of liver injury other than hcv were exclude the remain 70 participant were analyze after a median 7 range 5 12 year of follow up a single pathologist score biopsy sample accord to the ishak scoring criterion characterization ofinflammatory infiltrate in select patient was do use a novel semi quantitative technique and result were compare with those of patient with detectable hcv rna and hcv antibody negative healthy control subject results4 of the 70 patient 5 7 become hcv rna positive during follow up 66 patient 94 3 remain hcv rna negative 5 patient 7 5 have normal liver biopsy 54 of the patient with abnormal biopsy 82 have liver fibrosis include 16 24 with moderate to advanced stage 2 or 3 fibrosis biopsy from patient with undetectable plasma hcv rna reveal expand portal tract with few cd4 cell and more cd8 cell than healthy hcv negative control subject but indistinguishable from patient with detectable plasma hcv rna lobular cd4 staining was absent in control subject but present in patient with both undetectable and detectable plasma hcv rna more mark in the latter non viremic hcv antibody positive patientshave a liver biopsy that is usually abnormal the study author conclude fibrosis was present in most with similar inflammatory infiltrate to viremic case the add that the presence of a cd8 rich inflammatory infiltrate suggest an ongoing immune response in the liver support the view that hcv may persist in the liver in the majority of hcv rna negative case department of medicine school of clinical medicine university of cambridge cambridge uk department of pathology university of cambridge cambridge uk clinical microbiology and public health laboratory health protection agency addenbrooke hospital cambridge uk medical research council mrc cancer cell unit hutchison mrc research centre cambridge uk m hoare wt gelson sm rushbrook and other histological change in hcv antibody positive hcv rna negative subject suggest persistent virus infection hepatology 48 6 1737 1745 december 2008 abstract although hepatitis c treatmentreduce the virus liver damage continues10 dec 2008treate patient who have chronic hepatitis c and advanced liver disease with long term pegylate interferon significantly decrease their liver enzyme viral level and liver inflammation but the treatment do not slow or prevent the progression of serious liver disease a study find these finding come from the clinical trial hepatitis c antiviral long term treatment against cirrhosis halt c and are report in the dec 4 issue of the new england journal of medicine halt c was fund by the national institutes of health nih with additional support from hoffmann la roche inc the result from halt c show without question that maintenance therapy with peginterferon do not prevent progression of liver disease among patient who have fail prior treatment say james everhart m d project scientist for halt c in the division of digestive disease and nutrition national institute of diabetes and digestive andkidney disease niddk the principal sponsor of halt c at nih these finding heighten the incentive to develop more effective drug for patient with severe liver disease due to hepatitis c peginterferon therapy for up to 48 week is standard for chronic hepatitis c but patient who do not have a sustain response to initial therapy have been give the drug over a long time base on study show that this approach suppress viral and enzyme level even if the virus is not completely eliminate however it was not know if long term therapy would improve important clinical outcome such as liver damage and death halt c a randomized multicenter trial of 1 050 patient with chronic hepatitis c who have fail prior treatment to eradicate the infection test whether long term treatment with peginterferon alfa 2a would reduce the development of cirrhosis liver cancer or liver failure the 517 patient randomize to the treatment before midday receive 90 microgram ofpeginterferon in weekly injection for 3 5 year the 533 patient in the control before midday undergo the same follow up and care as the treat patient include liver biopsy quarterly clinic visit and blood test all patient have advanced liver fibrosis a gradual scarring of the liver that put patient at risk for progressive liver disease and liver failure the outcome study in halt c were death liver cancer or liver failure and for those who do not have cirrhosis initially the development of cirrhosis at the end of the study 34 1 percent of the treat group and 33 8 percent of the control group have experience at least one outcome patient in the treat group have significantly low blood level of the hepatitis c virus and improvement in liver inflammation however there was no major difference in rate of any of the primary outcome between the group among treat patient 17 percent stop peginterferon after 18 month and 30 percent stop the drugafter two year infection musculoskeletal or digestive problem were the most common reason for stop the drug accord to halt c study chair and principal investigator adrian m di bisceglie m d professor of internal medicine at saint louis university school of medicine in missouri look into how maintenance therapy work in non responder is an important step patient should not receive interferon as maintenance therapy for chronic hepatitis c however we can build on what was learn in halt c to identify well treatment that may delay or prevent liver damage in patient with advanced disease he say article adapt by medical news today from original press release the hepatitis c virus infect more than 100 million person worldwide and as many as 4 million in the united states hepatitis c rank with alcohol abuse as the most common cause of chronic liver disease and lead to about 1 000 livertransplant in the united states each year the good current antiviral therapy of pegylate interferon give by injection in combination with oral ribavirin for about 6 month to a year eliminate the virus in about 50 percent of infect patient the follow researcher and clinical center conduct the halt c study dr jules l dienstag massachusetts general hospital and harvard medical school boston mass dr adrian m di bisceglie study chair saint louis university school of medicine saint louis mo dr anna s lok university of michigan medical center ann arbordr gyongyi szabo university of massachusetts worcesterdr timothy r morgan university of california irvine and va long beach healthcare system long beach calif gregory t everson university of colorado health sciences center denverdr herbert l bonkovsky university of connecticut health center farmington dr karen l lindsay keck school of medicine university of southern california losangelesdr william m lee university of texas southwestern medical center dallasdr mitchell l shiffman virginia commonwealth university medical center richmonddr chihiro morishima and dr david gretch university of washington seattledr kristin k snow new england research institutes watertown mass _ _ to control the email you receive from careplace go to http www fireflyhealth org account notification,neutral,1
hi my name is lori and my husband bill is struggle with his second round of cancer he was diagnose in 07 with esophageal cancer he was stage one have major surgery and recover they also take out 28 lymph node at that time in jan of 11 his cancer metastasize to his lung 4 lymph node and a spot on his liver this cancer have really been an battle I am reach out for support with two teenage daughter and all my husband family who need I I am spend sure I have get family and great girlfriend for support but sometime you just need to talk to other people who know what you re go though they understand it is scan week he will have his 2nd ct scan to stage his cancer after 4 round of chemo and 12 day of radiation his scan is tuesday prior to this he have 4 round of chemo when he have a scan they cancer appear more aggressive in his lung remain the same in his liver and encompass two more lymph node he is been in alot a pain from the lymph node cause pressure on a nerve he have the radiation to shrink the lymph node which do work however he still is on morphine to fight the pain do I mention he still go to work everyday and he do not have an office job he is a union pipe fitter any word of encouragement are need thank you,negative,0
my wife was diagnose with colorectal cancer with liver met 20 spot some quite big round 1 of chemo fail avastin folfox and she is kras mutant next up this week is irinotecan plus a clinical trial drug from astra zeneca it is all so scary do anyone on here have any experience comparable or that can shed any light or do anyone have thought on non chemotherapy to fight this in the liver many thank,neutral,1
I know it is not ra related but this morning my good friend that I have know since the 4th grade pass away from liver cancer that was bring on by cervical cancer she was 37 and have a 10 year old daughter she was an amazing woman and honestly it take face death in the face for she to realize how love she was and how much of an impact she make in all of our life every time I would call she she would ask I how I was feel she was worried about I she want to know how my treatment were go what the dr have say and if I was in pain when she would break down and get piss she would feel bad for yell at someone or get pissy with someone when I would try to assure she that everyone understand and do not hold it against she she would say that no she do not want to burdon anyone she take the card that she was delt and with her head hold high face her fate and never lose hope she was not so much worried for herself but for her grandmother her daughter her family and her friend she know that no one was ever garenteed anything and make the time she have leave was full of love hope courage and laughter in memory of my friend who I know is dance with the angel I face the ra troll with my head hold high courage and love in my heart and the knowledge that there is nothing that I can not handle never take anyone or anything for grant make each painfree moment joyfull and live what life we are give to the full take care and thank for listen stephanie,positive,2
it is with great sadness that I learn my next door neighbor joe a very good and kind guy have colon liver and lung cancer it start in the colon with no symptom if you are 40 do not make the mistake he do and avoid the exam responsible in all other way he make a fatal mistake he will soon leave behind a wife two daughter and numerous grandchild at just 61 year old I have been negligent myself and will do the test this week,negative,0
I post this on the md site too but think I would share here as well for those that want to know but if you want happy news stop read here I think the universe is try to kill I but I just will not go first the bloodwork from hell 20 year ago then whatever autoimmune disease I have drs do not agree then chronic kidney stone that are weaken my kidney then congestive heart failure then diabete then copd then afib then ild interstitial lung disease just to name a few off my seriously long list right now I feel like the universe do not think I am die fast enough so it is go to keep throw crap at I until I give in not go to happen but I know I am head for a melt down well I have the follow up for the mri on my back today good lord have mercy what is next so both bulge disc are come through and hit on nerve one on the left and one on the right but the so call cyst in the center of my spinal cord that even the neurologist at swedish hosp who use to be head over all spinal stuff at harboview say a few year ago that he would not touch it too risky anyways this cyst is grow it is now push on nerve and they now think it might be cancer and need to come out not so bad if it was just on my spinal cord but it is in my spinal cord then I was talk to her my primary care dr about the result of the liver biopsy and the colonoscopy endoscopy she seem alot more knowledgable than the gi that do it he was confuse when I ask he what class the cirrhosis was in he say stage 4 I say no that is what stage liver disease I know I am past stage 4 because it is into cirrhosis what is the child classification it is either a b or c he have no idea what I was talk about just say again stage 4 anyways from what he have tell I I think I was in good shape especially with low meld score which he do not give I I look at my lab and figure it out in speak with dr today it is not good was a horrible visit she say I have multiple cyst in my liver which could be begin stage of cancer I ask she about what class the cirrhosis is in I state I know that class a is beginning and class c is that I need a liver now and that I think I was in class a she take a deep breath and say shelley no you are in class b and move quickly to c I am like what the heck I say why do dr touhy make it sound like I have a very long time that I was no where near bad problem she say that she have go over my chart all of my mris and ct and lab for the past couple of year and it is progress quickly especially within the last couple of month so I say ok I have a question why is this information not effect I at all she ask I how I was feel about it I say I feel nothing like just one more thing add to the list and she say that was good because there s really nothing that can be do other than treat symptom but that she want I to understand really understand that the prognosis do not look good for I she repeat this about 4 time during the appointment maybe that is what dr touhy was try to tell I and I just do not hear it I tell she that I would like to be refer to a hepatologist at the you w she say she would but first we have to take care of this cyst in my spinal cord I then ask she if she think I would be a candidate for a liver transplant and she just repeat again the prognosis is not look good for you ahhhhhhhhhhhhhhh can I get a yes or no answer or is that my no answer I know I have 2 different heart thing go on and 2 different lung thing go on as well as a host of other thing I then talk to she about my sleep issue and how often can I take the ambien per week she say to take they every night I say is it addictive she just smile so I say are you say that at this point it do not really matter she smile again and leave the room I have also tell she that dr touhy say I was very very high risk for colon cancer and high risk for liver cancer she was not in the littlest bit surprised I ask she if I could please take a break before go and see this neurosurgeon because I am just so exhausted and so tired of drs and procedure she say an emphatic no I have to call and make an appointment tomorrow she also tell I that yes I need to start on the lactulose today this day really really suck bad thank you for let I vent I really need to I am not tell my family and friend because I do not know what to tell they,negative,0
again with those pesky grapefruit only this time there really good news naringenin inhibit the assembly and long term production of infectious hepatitis c virus particle through a ppar mediate mechanism this study for I is very interesting and yet bittersweet because I am prohibit to have any type of grapefruit because it affect my immune response from my anti rejection drug prograf however it is some very exciting news for those folk who want to try natural approach to manage their hcv infection until the natural substance can no long by themselves control and more importantly help in eradicate the virus also here the link to the complete article http www ncbi nlm nih gov pmc articles pmc3197749 our group have previously suggest that the grapefruit flavonoid naringenin could be effective in inhibit hcv production although its mechanism of action was unclear at the time naringenin was consider an mtp inhibitor thus likely to cause lipid accumulation and liver toxicity 12 interestingly the compound demonstrate anti inflammatory and normolipidemic effect in vitro and in vivo 19 the ability of naringenin to significantly reduce plasma cholesterol level have been demonstrate in a recent clinical trial in hypercholesterolemic patient in which the compound lower ldl level by 17 20 similar cholesterol lower effect were demonstrate in rabbit 21 22 and rat 23 another appealing aspect of use naringenin is that the compound have demonstrate anti cancer property block in vivo replication of hepg2 hep3b and huh7 cell 38 as hcv dramatically increase the risk of liver cancer inhibit tumor formation is especially important in this study we first show that naringenin induce a dose dependent inhibition of hcv rna and core protein secretion down to 28 of untreated control figure 1 the reduction in viral rna and protein production correlate with inhibition of hcv infectivity on the other hand intracellular hcv rna and protein level show no change in response to naringenin treatment suggest naringenin was inhibit a step downstream of viral replication nonetheless give the reduction in viral secretion the lack of intracellular viral rna and protein accumulation may suggest a concurrent inhibition of viral replication or enhance viral degradation assembly of infectious hcv particle have been previously demonstrate to be dependent on mtp activity an enzyme critical to vldl assembly the accumulation of infectious viral particle in cell treat with bfa a toxin that disrupt golgi mediate transport is consistent with the observation of chisari and coworker 12 13 here we show that naringenin like mtp inhibitor bms 200150 block the accumulation of infectious particle in bfa treat cell up to 55 p respectfully hank a k a henry,neutral,1
good morning I am new to this board although not to ds my husband was diagnose with hepc in 1998 and battle it without success throughout the follow 10 year in 2008 he was diagnose with terminal liver cancer once again we put on our battle gear and in 2010 he was deem cancer free in april the doctor decide to try again against the hepc and he is do the 48 week 3x with victreli because of his medical history his doctor do not give he the full dose of interferon and ribavirin but rather gradually increase the dosage accord to what my husband blood work was show and what he think my husband could tolerate in the third week he add nupogen once a week at 4 week test show his vl go from 3 m to 1900 and in the fifth week victreli was add after two week on victreli his test show he was undetectable news we were thrilled to receive I have been read the hepc board for quite some time and think I would join you all have help I tremendously during the last nine week and I appreciate your being here although I check in often I do not post much but I do have a question do most people do the lead in with interferon and ribavirin and then add the victreli or incivik like my husband do or do they start all of the medicine at once when people say they were undectable at 4 week do they mean the 4 week of the lead in with interferon and ribavirin or 4 week of the victreli or incivik I am confuse by that and would just like clarification for my own understanding because of my husband history he is being watch very carefully and I am glad we have the care that we do but it is nice to be able to come to the one on the battlefield with he for support,positive,2
so my mom and my wife have an intervention for I this past weekend they take away my car key so I could not leave and what they want I to do is stop go to the internet everytime I have a pain or find a blimish on my skin yadda yadda yadda my mom is like I know how you feel you do not drink you do not smoke you do not do drug and you have been healthy all your life and you are wonder why I why do I get diabete well hell yeah she is right every since I was diagnose 2 month ago I am constantly think about it I self diagnose with the help of the internet everything from skin cancer to liver cancer I have turn from a healthy person to a person that just want to turn every little ache and pain into a major illness of some sort is anyone else go thru this or have go thru this is this a natural response to diabetes or am I just lose my mind my wife say she can hardly take my negative attitude about die young anymore I do not want to lose my family over this but I guess I am just scared I am just wonder is this natural to be so scared about this I am purposely not say anything around my family about this anymore but I still think about it most of the day I am scared confused and angry about it all just wonder if anyone else is go down this path,negative,0
I message once before about my dad being ill doctor are look for it but they believe it is a cancer but don t know where it is yet but they don t confirm it 100 percent yet but I feel that is what the end result is only because of what they have see so far and what the test and symptom are so far and how ill my dad seem to be already I feel still lose and I have a hard time deal with this and go to work everyone at work is ask I question about my dad and its nice that they ask but I feel like I may lose it at work I have always been the strong one and I am try to be strong for my mom too my relationship with my dad is well now than it have ever been and his relationship with my kid is well than I think I ever have I feel already like I am lose he or will be lose the doctor really believe this is liver cancer which have sread to the bile duct and I don t know how to help myself and don t know how to help my mom who is very private with her emotion too and is act like everything is ok and he will be ok and come home I m lose and I have no friend that I feel I can impose my burden of this all on I already lean on my husband a lot and cry on his shoulder but my friend do not understand and its not something I feel they even want to listen to anymore advice I am long wind but just need to get all of this out instead of hold this all in thank sandra,negative,0
so far I find the follow remedy maybe we can compile one list for everyone to use 1 virgin coconut oil for virus is really great against the hep c virus virgin coconut oil is the most abundant natural source of lauric acid available this is really good against the virus link http coconutoil com coconut oil offer hope for antibiotic resistant germ 2 sunflower seed for virus they contain omega fatty 3 acid which is good in reduce long term complication of liver injury due to fibrosis and cirrhosis other thing that include fatty 3 acid are fish and shellfish flaxseed linseed hemp oil soya oil canola rapeseed oil pumpkin seed sunflower seed leafy vegetable and walnuts link http www healthyhepper com omega htm 3 milk thistle for virus good against the virus it interrupt the hepatitis c virus reproduction link http www hepatitis central com mt archive 2010 08 milk_thistle_in html 4 dandelion root leaf for liver again help in stabilize the liver the extract reduce inflammatory response and oxidative stress dandelion root tea have been use over the century as a diuretic as well link http www livestrong com article 475147 use of dandelion leaf tea for cure hepatitis 5 nutriferon for virus patent immune system boost supplement which suppose to boost your interferon use natural herb link http www shaklee com my eng prodview_body asp prodcode 10250 6 turmeric for virus apparently curcumin suppresse hcv replication curcumin inhibit hcv replication http www spandido publication com ijmm 30 5 1021 7 butylate hydroxytoluene for virus people seem to have reduce viral load after take this this is the same medication give to people with herpe link http www earthclinic com cures hep_c2 html link http www livestrong com article 462510 turmeric hepatitis c 8 licorice root aka glycyrrhiza glabra for liver may help prevent the development of liver cancer in patient with chronic hepatitis c it have anti inflammatory and an antiviral component study show that it help in diminish the effect of ongoing liver disease but also appear to improve damage tissue link http www fountia com ginseng licorice root and hepatitis c 9 ginsing for liver study have show that it can help improve liver function and diminish tissue damage to the liver link http www fountia com ginseng licorice root and hepatitis c 10 ginger aids hep c therapy tx ginger prevent food from accumulate in the stomach help in digestion ginger have the potential to help people tolerate pegylate interferon and ribavirin link http www hepatitis central com mt archive 2010 01 hepatitis_c_the html 11 castor oil pack for liver apply castor oil pack to the liver to improve liver function link http www hepatitis central com mt archive 2009 12 castor_oil_pack html 12 bitter melon for virus it is use in brazilian herb for tumor wound rheumatism malaria vaginal discharge inflammation menstrual problem diabete colic fever worm it is also use to induce abortion and as an aphrodisiac link http www squidoo com good bitter melon,neutral,1
I will most likely be start imuran in the near future I am really scared everything I have read make it sound awful I have read that it can cause cancer liver damage and birth defect will weaken the immune system and can take three month or more to start actually help please tell I it is not so bad as it sound,negative,0
it is an anticancer medication usually give to those with liver or kidney cancer however it do slow down the mutate gene reproduction in the type of aml I have give I more time to get thing in place for the bmt the website http www nexavar us com script page en patient about nexavar how nexavar work I was wonder if anyone have take it before I know the side effect but how bad were they,neutral,1
I am happy relieved and excited to announce that her test come back not metastatic the spot on her lung and liver are not cancerous nova well love you when your bald and flat and be jealous when you get your perfect new set now let we beat this thing girlfriend the world need woman like you in it,positive,2
so my wife and I have been separate since march and we are in the last month of a divorce we have one child and live apart when we separate she tell I that she have cervical cancer with a 30 chance of recover a few day later it change to stage 1 and 70 80 percent survival and she have been receive treatment for it and then a month later she tell I that it have metastasize to her brain and she was tell 6 12 month to live a couple day later she say that she look it up herself and find out pituitary tumor are like 90 benign and she would be okay once they take it out then just yesterday she say she get another call say she have stage iv liver cancer and will be enter hospice start tomorrow this have not been the first time she have concoct elaborate lie in order to get a response or sympathy from everyone it come down to whether I not I actually believe she this time despite cry wolf for so many year and she have make it very clear that everything in this relationship is my fault and she have demonize I in the eye of her family friend and coworker not to mention everyone on social medium I have do my good to take the high road and continue to be there for she as a friend but she continue to push I away and then hate I for listen to she she do not want my help want I by her side at least as a friend at her funeral and have even threaten to have her family take my son away from I amongst many other thing I do not know what to do anymore I am try to be strong and fair but there is so much hate in she how do I deal with this and if this end up being true how do I even begin to deal with her family and friend who absolutely hate I I am tired of being blame for everything,negative,0
hi my name is kelly I am 47yr old and am fight breast and liver cancer right now in fact I have just been allow home from the hospital today my sister shelly michelle is now in hospital with ovarian cancer and we have just find out she have lupu she is my kid sister she have been through so much she have lose two baby and her husband is in the armed service she have a daughter and was hope to have another child buy obviously she can t now can you help I please I don t know anything about lupus she is only 29yr and I want to help she but I haven t get a clue how I would be grateful if you could maybe point I in the right direction I do know from what we ve been tell it is a auto immune disease we think it is also a form of arthritis apart from that I haven t a clue our mother have a disease call polymysisitosis I think that s how they spell it and will never recover from it she see s a consultant all we know is it is a rare form of arthritis and basically the muscle surround her skeleton get inflamme and she can t move she before midday s or leg and so on she is manage by a rhemetologist she s also on alot of medication for it please I would be so very grateful if you could give I some advice on this lupus kelly xxx,negative,0
this tuesday will be 8 week since the death of my true soul mate my team mate in life call he just my boyfriend do not seem to do he justice I say we were together 18yr but we were actually together about 25 there was an age diff a divorce in there none of which really matter at this point it was long ago he was diagonose with liver cancer oct 31 2012 and pass march 26 2013 he pass at home we have an awful expierence with hospice I was not mentally prepared to go thru it I suppose no one ever is I have been read other post I understand that grieve is a process one that most do not understand until you have to go thru it yourself sunday evening are the hard day of the week for I I think when the weather get nice I would keep busy enough to get thru it but today prove I wrong I work in the yard most of the day yet once I decide I was do I spend the rest of the evening feel weepy and sob everyday is a task to get thru but sunday are the bad even when he was ill I would often find myself sob on sunday because I could not make he well we have been thru a lot he have back surgery was on disability then he have hep c we get thru all that but damn cancer take he from I I feel so defeat some day I feel like I am get well but then I see the way people look at I and I know I am still in the fog of grief I do not know if I am get well or bad at this point,negative,0
hi I am new here my husband was dx with stage 4 colon cancer in feb 10 he have met to his lymph node liver and peritoneum he was only 49 year old at the time his cancer was inoperable he begin folfox with avastin a pet scan after 6 treatment show ne his doctor were amazed he continue with the folfox and avstin treatment until the neuropathy become too bad he have a total of 10 treatment he was put on maintence avastin we go to a large research hospital in september for a surgical consult since they could now operate scan at that hospital show a recurrance of the cancer the liver tumor were few and small but the cancer was now in his chest lymph node he was quickly start on fulfuri with avastin after 4 treatment they rescanne mid nov and find no metabolic activity praise the lord he is schedule to complete all 12 fulfuri treatment and have 5 more to go over the last week he have begin have some mild pain peridically in his liver area the doctor do not seem concerned I am terrify his cancer is very aggressive I am much young than he and we have an 8yr old this is all so overwhelming and nobody really understand what it is like anyone else ever have liver pain and it really be nothing to worry about,negative,0
hi I am a 46 year old female and due to genetic I am very afraid of develop cancer here a quick overview of my worry 1 my grandparent on my mother side both die of cancer my grandfather have cirrhosis of the liver but I think his cancer have more to do with chronic alcohol consumption 2 my grandma on my mom side develop stomach cancer which I have attribute to a fatty unhealthy lifestyle3 my dad is a survivor of prostate cancer 4 my mom is a survivor of colon cancer 5 my old sister is a survivor of breast cancer I was just wonder what my chance are that I might develop some sort of cancer also what are typical sign that I should be look for any information would be greatly appreciate,negative,0
hepatitis hiv there is little doubt the tremendous impact hiv drug therapy have have on the life and future of hiv positive people rate of opportunistic infection are still low in the united states and it is abundantly clear that people are live long with hiv infectionthank to the availability and widespread use of these treatment unfortunately the life extend benefit of hiv drug treatment have open up a new set of problem for many hiv positive people thousand of hiv positive people in the you s are also infectedor at risk of being infectedwith one of several hepatitis virus some of the hepatitis virus can cause chronic infection mean that they remain active for many year and can lead to serious liver damage over time and because many hiv positive people are now at a much low risk of die from an aid relate opportunistic infection they must now face the challenge of have to manage these other viral disease that pose a threat to their health and live viral hepatitis which can cause long term liver problem liver failure and liver cancer is consider to be a lead cause of death among hiv positive people in turn numerous hiv positive people must fight two infection at once aidsmed com have prepare some lesson to help its reader well understand three hepatitis virus that are a potential threat to their health hepatitis a virus hav hepatitis b virus hbv and hepatitis c virus hcv each of the follow lesson discuss the way these hepatitis virus are transmit cause disease and are treat particularly in people live with hiv lesson hepatitis a hepatitis b hepatitis c back next last revise april 01 2009 this content is write by the editorial team at aidsmed com please find profile of this team on our about we page quick link aidsmed en espaol about hiv and aid lab test my cool tool hiv med start treatment switch treatment drug resistance side effect disclosure lipodystrophy hepatitis hiv woman child fact sheet treatment news community forum blog conference coverage aso directory poz magazine lesson index collapse all hiv start here introduction you your doctor what is aids hiv the blood test you ll need thing you should know before start treatment the big treatment question side effect other health problem change to your body lipodystrophy waste change to your face facial lipoatrophy risk to your heart feel tired fatigue anemia peripheral neuropathy hepatitis hiv hepatitis a hepatitis b hepatitis c human papilloma virus hpv genital wart anal cervical dysplasia cancer sick to your stomach nausea diarrhea risk to your liver hepatotoxicity risk to your kidney a complete guide to renal health risk to your bone osteopenia osteoporosis breathe easy tip for healthy lung tip trick on take sustiva opportunistic infection oi hepatitis hiv special issue for woman child live with hiv conclusion http www aidsmed com article hepandhiv_4899 shtml,neutral,1
green tea flavonoid may prevent reinfection with hepatitis c virus follow liver transplantation german researcher have determine that epigallocatechin 3 gallate egcg a flavonoid find in green tea inhibit the hepatitis c virus hcv from enter liver cell study finding available in the december issue of hepatology a journal publish by wiley blackwell on behalf of the american association for the study of liver disease suggest that egcg may offer an antiviral strategy to prevent hcv reinfection follow liver transplantation hcv infection can lead to chronic hepatitis cirrhosis and hepatocellular carcinoma hcc or primary liver cancer hcv is one of the most common cause of chronic liver disease and a primary indication for liver transplantation affect up to 170 million individual worldwide accord to estimate from the world health organization who prior study report that nearly 2 of the world population is infect with chronic hcv and up to 20 of the population in some country while standard treatment with interferon with ribavirin and new protease inhibitor may clear infection in some individual a substantial number of patient still may not respond to these therapy for individual receive liver transplant due to complication from hcv reinfection of the healthy donor liver remain a significant concern antiviral strategy that target hcv in its early stage are urgently need to prevent graft reinfection and improve long term outcome for patient to address this critical issue dr sandra ciesek and dr eike steinmann from the hannover medical school in mosrite just post this on the main good info about green tea germany investigate the effect of the egcg molecule which is a major component of green tea in prevent hcv from attach to liver cell green tea catechin such as egcg and its derivative epigallocatechin egc epicatechingallate ecg and epicatechin ec have been show to exhibit antiviral and anti oncogenic property explain dr ciesek our study far explore the potential effect these flavonoid have in prevent hcv reinfection follow liver transplantation result show that unlike its derivative egcg inhibit entry of hcv into liver cell the author suggest that egcg may impede hcv cell entry by act on the host cell as the green tea catechin was not find to alter the density of virus particle pretreatment of cell with egcg before hcv inoculation do not reduce the infection however application during inoculation inhibit the rapid spread of the hcv lastly researcher show that egcg inhibit viral attachment the initial step in the hcv infection process the green tea antioxidant egcg inhibit hcv cell entry by block viral attachment and may offer a new approach to prevent hcv infection particularly reinfection follow liver transplantation conclude dr ciesek,neutral,1
what was the first sign that you notice before you were diagnose with breast cancer my sister have go into remission with her breast cancer my mom have colon cancer and is now in remission my dad have prostate cancer and is now in remission my maternal grandmother die from stomach cancer and my maternal grandfather die from cancer of the liver no one in my family want to talk to I about their cancer ski am ask you guy about it,negative,0
a couple of day ago I post a note title feedback well tonight I around 9 I get a call from my surgeon tell I that my cancer have spread to my liver and lung multie spot I have stage 4 colon cancer and was schedule for bowel resection to remve my tumor that is on hold what possible treatment are leave I have have chemo and radiation,negative,0
this was post in colon cancer for a friend who is such an inspiration to we and I want to share it with you here too my hope and prayer to you all http www youtube com watch v qfckvevod3k,positive,2
I have my 4th treatment monday I have stage 4 colon cancer and my throat and ear have hurt ever since have anyone else experience this type of side effect,negative,0
I have have abdominal pain for the last two year it start with bloat and low leave abdominal pain I see several doctor all say I have ibs I go on a gluten free diet which do help some the pain still remain and while I still have low leave abdominal pain I also have pain under my belly button and at the side of my belly button I have also have bladder pain or what I believe to be the bladder I have have an ultrasound to check pancreas gallbladder liver and also have a vaginal ultrasound those check out fine all bloodwork and urine test have been normal today I feel rectal pain and pain under my belly button I see two gis one do nothing for I except tell I I have ib the other order blood work include a special test with prometheus labs the prometheus blood test come back with marker for ulcerative colitis and ibd I guess I am worried that I have cancer I have live with this pain for two year and it is mostly feel under the navel and in my rectum I have not see blood in my stool but once see some blood on toilet paper the doc who order the test say I need a colonoscopy to confirm the uc diagnosis but could I have colon cancer I always have problem go to the bathroom have thin stool strain constipation and never feel like I go completely I see another gi next week and am just look for advice,negative,0
firstly hello all secondly I do have a doctor appointment for all those just wait to tell I to get an appointment I have lurk these board for a number of year after develop some bowel problem in 2010 I have very inconsistent bowel movement in what they produce but the amount always seem to stay the same between 3 4 to sometimes even 5 or 6 bowel movement every day they are barely ever normal and for the most part float between type 5 and 6 on the bristool get it stool chart now I am a 21 year old male and I am obviously overly health conscious for I to be lurk health board on the internet my diet grow up was to be honest atrocious a lot off soft fizzy drink or high sugar milk drink a lot of take away and barely any fruit or vegetable now that have slowly get well over the past couple of year although what have always been my one vice which I have not recently stop after read it was a huge concern in colon cancer was pepperoni I eat so much of the stuff it wast funny but I am concerned that with the duration of my symptom and the fact that I have barely produce a single normal bowel movement in the past two year that it was too little to late the stool itself is either very mushy or come out like little torpedo instead of in once nice motion sometimes I have a little pain while go which is instantly relieve once I have finish go but the most annoying thing is the urgency in which I have to go someday I will wake up and have to go three or four time in the morning before feel as if the movement is complete and also oddly enough I will have to go at inconvenient time before a job interview before I m do something important basically whenever I tell myself I can not go I end up have to go it is especially annoying when I notice it the other week drive to a job interview that I was run late for but ofcourse I need to go and then have to hold in the urge for a good half an hour good news is I have a fobt run in april which come back negative I have never notice any red blood or black like stool and trust I I have check exstensively before tmi a ct scan of my upper abdoman and chest obviously not of the colon for an accident I have and there was nothing abnormal on any of those scan I have this do in april and I also have a head ct for a concussion I have which reveal no tumor or anythign like that do in july so basically base on other experience or research or the experience of friend and family would people say this sound like colon cancer ib a food intolerence or all three roll into one I know the symptom for all three are almost identical and obviously I want some piece of mind but I would love some honest opinion from fellow bowel problem warrior such as myself,negative,0
hello everyone last two month about once a week usually last all day I get many strong very unpleasant gas and have a stool 2 3 time that day stool is hard in the beginning but later soften also I have a stool that appear as if it blow up at the start and then it is normal do not have any blood in stool so far that I could notice until this summer I have been for the past year and a half a vegan but I was force by circumstance to begin eat meat cheese and so on is it possible that this is the cause for my stomach reaction yesterday I have gas all day and stool in the morning 2 time I feel I could still go the toilet but refrain because I was so exhausted from first two I was very fatigued all day spend in bed this is the first time I was very fatigued from this have another symptom go to urinate 1 to 2 time per hour all day and have not much fluid to drink night before I have 4 whiskey some salami cheese red pepper could it be that I am sensitive to some sort of food for the past few year I have have an chronic infection inflammation of the prostate which is hard to cure and it usually occur in the winter the symptom that I have now are similar to that pressure low abdoman pee more often but not gas today I feel well go to bathroom this morning and that seam fine I feel less fatigued but pressure and sometimes small cramp on the right side of low abdoman remain there are 2 week before my first marathon after 25 year and this would be a real bummer currently I am reside in bosnia and do not have health insurance here I will have to pay for all the exam which do not make I happy all that after I find a proper specialist any cause for concern,negative,0
hi all I have my first colonoscopy 8 yrs ago and was fine have another five year after that and have three polyp include at least one sessile flat polyp I am suppose to have one at the three year mark which would be this come year recently though I have start to have the follow symptom persistent nausea loss of appetite frequent bms that range from large and relatively soft to very thin and long blood on toilet tissue have a bm without any warning feeling like I need to have a bm and nothing happen mild cramp weight loss should I be contact the doc about move up my colonoscopy I am on the three year plan now because of the polyp and family history I am a 46 y o female with a history of ibs and diverticulitis any reply would be very appreciated thank,neutral,1
about a month ago I start with pain in my low abdoman I do the normal doctor visit then gyn then urology all with scan sonagram and so on they find nothing I also have crohns disease so I have a gastro guy already the pain was not the same as crohns normal is though so last friday we do a colonoscopy not my first as you can imagine what with crohns and my mom having have colon canser surgery and so on during the procedure he find a mass not a polyp in my distal descend colon he do biopsys which I get the result yesterday he send they were for all intent and purpose benign I ask what that mean he say since he do not biopsy the core he could not say 100 for sure he is suggest that I let he go back in and scrape out the tumor but everything I have read talk about rsection when there is a tumor so I need soem advice as to which way I should go and what questiosn I should ask I go tommorrow for a consultation with he should I also get a surgeon opinion or is jsut go to say resection becasue that is what he do confuse and nervous about not totally remove it what if it come back,negative,0
head up I go into graphic detail about what I am go through I have always been anxious over thing that most people do not worry about but for the past two month I have been very constipate I have probably use the bathroom naturally less than 10 time in 2 month and even then it is never a solid big stool like I usually have it is always loose watery and pile on top of each other kind of like pudde gross I know the reason I do not immediately go to a doctor is because ever since I was 4 or 5 year old I have have constipation problem and even when I am not constipate I tend to only have a bowel movement every few day which for most people is constipation but when I was young the doctor say that there was nothing to worry about and I was fine he give I reason why I only use the bathroom every few day but I can not remember they this was like 10 year ago anyways to get back on track at first I think it was just an extra long about of constipation but about a month and a half ago there was an instance where I have a bowel movement and then when I wipe there was a lot of bright red blood on the toilet paper but none in the toilet and from what I could tell none in my stool I worry and tell my dad right away and he say not to worry as it was most likely hemorrhoid he have they because the blood was fresh so anyways I have not have blood after a bowel movement since then but now just this last week I start have slight sharp pain in the left side of my stomach and occasionally in my pelvic area I look on and it say that pelvic pain is a symptom of colon cancer in the later stage which worry I to the point that now all I think about is what if I have cancer I am only 18 I do not wanna die and so on I use a laxative early and when I go to the bathroom my bowel movement was really long and as thin as a pencil which also say is a sign of colon cancer I have a doctor appointment set up for tomorrow and it is for a check up and I am go to ask he to refer I to a specialist I know I probably seem insane and I have always been very anxious about thing but there is obviously something wrong with I I just do not know what also I find a small white clearish lump right outside the entrance of my anus today that was not there a couple of day ago it is pretty much painless it is more of an itchy annoyance than anything this terrify I because now I am wonder why I why do this have to be happen to I I literally have so many scary symptom of a colon or anal cancer and I am very scared no one on my mother or father side have ever die of colon cancer so that kind of make I feel well but I have most of the symptom for colon cancer that I see when I check online have anyone ever have a similar experience and find out what wrong with they,negative,0
this is my first time to write on here I was diagnose with colon cancer feb 2010 with a 6 month lifetime got admit to md anderson in houston and here I am over 2 year later I start on oxaliplatin 5fu and avastin the past several month was on ironitican after a chemo break I go back to the original cocktail that I start on I was so ill in the beginning it is hard to remember the side effect altho I know it was mostly nausea do other take this combination and have good result thank I guess I am just get nervous since I have been off chemo for 5 month now and really dread go back to it the only time I have ever feel ill with the cancer is when I am on the chemo,neutral,1
my partner have just have an ileostomy reversal and was in hospital for 10 day after three day we were tell the bowel was start to work so he was put onto a fluid diet for a day unfortunately he begin vomit and we were advise the bowel was paralyze so back onto sip that is for three day the bowel then appear to start work so he go onto clear fluid for two day the evening before he leave the hospital he was give solid food turkey then again toast and cornflake in the morning and he was then discharge we were advise he could eat the food he use to before the ileostomy he have cracker biscuit and cold meat for lunch and all seem ok however that evening within an hour after eat a small meal of mashed potato to help thicken his output fish carrot pea for the very first time since his first op and a small piece of broccoli he was in intense pain after a couple of hour we have to rush to the emergency dept his pain rate 10 10 at this point the pain was manage by morphine which reduce it to 5 10 and eventually myalanta which seem to be the reason it go away have anyone else have a similar experience and any suggestion for what food to avoid would be appreciate he is due home today and I have to cook light food for he,neutral,1
I am 51 yrs old have scopy 2 yr ago everything is fine dr say no need scopy in 10 yr but since last week I have diarrhea on and off today I see blood tissue in toilet no blood on wipe I just wonder the blood is something to do with steak I eat yestoday or it is possible I have cc in 2 yrs very worry,negative,0
hello all just say hello to everyone so I can start the communication I was diagnosis with colon cancer a month a ago second week recover from my surgery and just find out that I am in stage 31a in the process of look for an oncologist with a second opinion plan how many of you get a second opinion I am kinda lucky I guess because md anderson is 3 hour a way so I am think I will get my second opinion there I was look at some of the post to decide if whether I should go thru chemo or not I would like to go thru the whole food eat to prevent the cancer from come back do anyone go this route instead of chemo or think about it I will be 45 in september so I have a long way to go so I would like to fight this cancer without chemo if I still have some time to make this whole food health work what are your thought I feel like I know you guy so well after read all the thread thank you so much for share it really help I at this stage of the cancer,neutral,1
hi everyone I am a 28 year old female back in december I remember have flat narrow stool for maybe a couple day to a week then go back to normal I think they were weird but forget about they after go back to normal I was just now browse and come across symptom of colon cancer and see this as a symptom and now I am nearly scared to death and have manage to just about worry myself sick I am sit here kick myself for not say something to my doctor I even see my doctor the same week that I notice the stool I see she about a hemorroid I have have since being pregnant with my son and never even think to ask about the stool I am actually go back to see she tomorrow for another look at the hemorroid so I will absolutely say something then but in the mean time I am scared to death and worry that I may have colon cancer and that I ignore a symptom from 8 month ago,negative,0
I just get result from colonoscopy one small polyp remove and one thing that do not look right our dr refer I to surgeon to have it remove he say most likely to expect a resection of the descend colon the area in question is around 2 5 cm x 1 cm he say it is still in the pre cancerous or very early stage of cancer he mention that he put iodine at the location of concern the surgeon I have been recommend to can not get I in for 2 1 2 week I am tempt to just go sit in their office wait for a cancellation but first question nut as it may sound is deal with recovery time we have a trip of a lifetime plan in 6 week first class ticket to italy drive all around northern italy with another couple and so on if I get in and have surgery like yesterday is there even a remote chance of being in any shape to do this trip next question what do I need to ask surgeon other than prior question when I do get in I was so dumbfounded when he give I my result today that I hardly even remember what he tell I I have no symptom this was just a I turn 50 colonoscopy I am healthy and eat sensibly I am so relieved I do it when I do thank for any input b,neutral,1
do the size or visual feature of a colon polyp relate to propensity for cancer development,neutral,1
one yr ago I have a resection do due to colon cancer I was stage at 0 thank god last monday I was scheduale for my followup colonoscopy I take the four laxative and drink one glass of colyte when suddenly I feel sick have heart palp to be on the safe side I go to the er where they give I an ekg say everything was fine the doc say I was a little dehydrate so he rehydrate I and say to home finish drink the colyte I try I honestly try but when I drink some more I throw it all up I can not drink that stuff this yr last year I drink it twice do not like it but I was able to keep it down just fine I am wonder what happen that I can not drink it now I feel so bad like I have let myself my family my doctor down I am wonder what s next what happen when you just can not drink it I am worried because I understand that I need a followup colonoscopy anyone else go through this,negative,0
well at first I notice I was more tired than usual just always feel drowsy and not rest was able to take nap for first time in year insomnia problem then I notice I was have diarrhea alot blackish weird stool color spit look stuff sometimes blood when I wipe and finally my lack of apetite which is most annoying cause I work out with intent for get large I hope I do not have to go for a test today when I was go to washroom diarrhea of course I notice after I was do there was 2 large drip of fresh red blood inside the toilet bowl not near the stool tiny bit of blood when I wipe before I get the feeling like I have to go take a number 2 acid come into my mouth similar to heartburn in night I drink 100 gram of protein or more a day in shake drink coffee daily do not drink as much water as I should about quarter the fiber I need daily and I smoke could the digestive problem be link to that or do I have a great problem please help I am quite worried after read the symptom,neutral,1
4 week ago my mom go on vacation for 2 week so I have to cook and feed myself for 2 week I know very little about cook so I eat like crap a lot of pasta process food and fast food then about 2 week ago I start feel a weird cramp strain in my low left abdomen and it have not go away I figure it was just a strain from squat at the gym or maybe even a hernia it do not hurt persay or prevent I from do anything and I feel it some day more often than other day but there s definitely something wrong sometimes I feel it near my waist sometimes I feel it near my stomach sometimes on my side I have try and try to find a lump to see if its a hernia but I can not find one perhaps I am do it wrong at first I have some trouble with bowel movement so I figure its just constipation cramp from poor diet but now I can pass stool easily and the ache is still there however I feel as if I have to use the bathroom a bit more often and when I do the ache sort of get well but that may just be my imagination that s about it for my symptom though I do not have blood in my stool or urine or trouble pass gas or anything it is just the ache I feel it the most when I am sit I will feel a weird ache near the right side of my waist that worry I it is been 2 week and now I am worried its something more serious than I originally think I have a doctor appointment but I can not help but worry I was hope it was just gas or something because of my bad diet but after 2 week I would think it would have go away already I am so afraid its cancer I try to delete this but could not find how so I am sorry for spamme your forum with this,negative,0
long story short I am have my first colonscopy on we d due to some issue bleese irregularoty and family history so my question is do anyone have any tip for I as far as preps ill take all I cam get thank,neutral,1
ok so the history on I I am 29a year old no immediate family member with colon cancer or polyp I am also almost 30 week pregnant so for the last year and a half or so I have have severe bout of diarrhea maybe once to twice a week I was test for celiac disease and it come back negative that was the end of that so I just resolve to live with it well a week or two ago I go to get out of the car and could not stand up I have pain so bad in my low left pelvic region that my husband take I to the er the doctor say it was just pressure from the baby and that I was fine I get a second and third opinion the second opinion do a rectal exam and say he feel nothing that warrant concern my stool are usually soft and mostly no blood the other day I pass a big round stool than usual still soft but big in diameter and wipe a bit of blood but this have happen before I have have several bms since then with no blood I have been go a little more than usual 3 4 time a day but I just start a new prenatal vitamin too with everyone on this board with experience I was hope you could tell I what you all think with the symptom I have have bout of diarrhea the pain the blood the other day oh and this morning stool was regular diameter until the last bit come out much soft and thin also have been yellowish to greenish lately vitamin if it were cancer would the stool be consistently thin these were marker thin and soft not pencil also would the pain on my left be constant sometimes the pain go away mostly with rest could the pain really just be the baby are these bowel habit concern what are my chance of have a bowel rectal or colon cancer thank in advance,negative,0
hey everyone I am 21 year old male and I have recently encounter some problem as of two week ago I have some slight right flank pain back by my kidney and is kinda tender to the touch the pain discomfort have not really go away I have also have leave side flank pain also most of these pain are constant but are not that bad I also have been have low back pain and a weird sensation around my tailbone which have come and go these past two week but can be very uncomfortable I also have develop a pain when sit down especially my left butt cheek I have have a hemrriod for about 2 or 3 year now and have bleed in the past like a tiny tiny drop but I havnt see that in a long time and it was a bright red and it have never bother I I havnt notice any blood in my stool or anything I even go to the er and they do some basic blood test which were normal and even do a ct scan of my abdomin area but do not see anything I also go to my regular dr who do some more blood test still wait to hear result and also do some xray but do not see anything on those also these flank pain have been go for two week now and the back and butt pain have been go for the past week I also havnt been go poop as much as I use to now its about once a day compare to two or 3 time before I am freak out that it is cc because I read somewhere that if your tailbone is have that sensation it is a good indication of cc can anyone help I out with some answer thank,neutral,1
hi this is about my husband and it have I worried sick he is 32 and for the last couple of day have have some bright red spot of blood on the toilet bowl while pass stool we go to the doc he do an examination and say my husband have internal hemorrhoid give some medication and suppository blood stop appear soon after he start take the medication but after the course was over only 5 day course there was blood once again in the stool he have been have loose stool often even since he have diarrhea as a result of antibiotic for his throat infection about 2 or 3 week back this time the doctor schedule a colonoscopy just to be sure but I am sick worried is not it enough to know that he have hemorrhoid that could be bleed do they get aggravate because he have loose stool and have to go to the loo 2 3 time a day I know it is well to rule off cancer do a colonoscopy but I am so so worried in the meantime have anyone have hemorrhoid and cancer at the same time would really really appreciate anyone share their experience thank p s he have no history of colon cancer in his family,negative,0
my name is lisa and I have been rectal bleed on and off for about a mth the er doctor say its a anl fissure I see she on the 8th of this mth I stop bleed for 16 day straight then my bowel get hard and I start bleed again not alot maybe a drop or to but my doctor want I to have this test do say I might have colon cancer he have I really freak out please someone help I what do I do do it sound like cancer,negative,0
I have 3 polyp remove during a colonoscopy 9 month ago lately for about the last 2 week my bms have change and I am curious as to why they have been very productive with normal stool and now I have become constipate and have a lot of gas and the stool have narrow do anyone have any comment,neutral,1
I m a 45 year old non smoker in england for about 5 week I have have an upset stomach the discomfort I feel move around mostly being a dull discomfort in my low abdomen although sometimes in the middle of my stomach between breast bone and navel in late may early june I have a about of diarreah that last a couple of day it come on in conjunction with the beginning of the stomach discomfort I was worried as after a particularly large attack of diarreah I find a small very small amout of cherry red blood on my toilet tissue since then I have have gas both end and a range of day run from constipate to normal to diarreah but with the stomach discomfort remain constant throughout I visit the family doctor who was quite dismissive and say that I have a stomach bug that could last up to ten day I agree and say yes that could be the case but I point out my family history my dad was a heavvy smoker up to 60 80 a day and drank regularly beer in 1991 he have a heart attack age 58 and thereafter complain of stomach pain and gas in the same way I have now he pass away in july 93 after being misdiagnose no less than 7 time by three doctor having have pacreatic cancer several of his brother all die between 60 and 65 with stomach lung or other cancer all bar one was a smoker I understand that there are many cause for the symptom but I am very concerned at the moment I have the follow a dull discomfort in my stomach my anus sphincter is sometimes painful my coccyx ache somewhat regularly twice a week or more for several hour at a time a constant gurgling in my stomach gas acid reflux about 6 time in the last year all at night that wake I as if I were choke I do not have nausea food do not affect I either way it do not get bad or well no diziness over the counter medicine and mint tea have no affect my doctor agree to send I for a colonoscopy at the local hospital on july 12 but I have receive a letter to say that the appointment have been cancel by the hospital and that I will have a verbal consultation instead I am unhappy anout this as again this is what happene to my dad in 93 and in fact my mom in 2005 who was tell she have acid reflux but it was in fact lymphoma and she pass away from it as she become to weak for treatment before they listen to she or I at the hospital and doctor back to I I can not concentrate and work and marriage is suffer I m grumpy and short temper and all I can think about is the constant discomfort and what it might or might not be and reme bere my folk make it bad as they both run out of time before treatment begin do anyone else have these symptom am I worry unduly,negative,0
hello I have post before about my problem but it seem to flare up more often now I just turn 20 year old and for over a year now every now and then when I use the restroom I have a small amount of pink or bright red blood on the toilet paper after a bowel movement sometimes when it happen it burn for a couple hour afterwards and at other time it do not its an occasional thing it happen this morning I drink last night and experience a painful stomch ache that have last into today as well even though I only have 2 drink but it was a very faint amount I do not know what cause my flare up of symptom but here they are nausea stomach pain occasional blood when I wipe but never in the toilet or on stool cramp in the low left and right side and middle back pain I can not afford to go to a doctor because I currently have no job and no health insurance could someone tell I what the possible cause could be or what I could do to help I am so scared this is colon cancer at age 20 worry myself sick,negative,0
c olor blue color that is spot some blood in my stool not often but today quite alotin toilet my mom have part her colon cut out round 2 yr ago I m very scared do not have insurance but also know this isa serious thing someone please help I tell I what I need to do as soon as possible pleaze thank you,negative,0
if only one out of the 19 remove during removal of a benign colon polyp was positive is it possible that there would be no cancer anywhere else in the body,neutral,1
hi this is my 1st post here I am so scared and do not know where else to turn I have get myself all work up read the possibility of colon cancer that my symptom and histroy put I in and bad is that I have been in denile of my symptom for 3 to 6 month here a list I write to give to my doctor as there is too many point for I to remember it is really personal but I feel I can post it here could you please give I some feedback on whether I am right to worry or if I should really calm down and so on thankyou doctor visit for 16 4 12 history of symptom that might be relevant 1 black blood in stool for 3 to 6 month 2 constipate usually 3 change to lose stool 3 to 6 month ago urgent most morning 4 diagnose type 2 diabetic 6 month ago 5 unexpected weight loss 3 to 6 month especially last 10 week unlikely relate to diabetic diet change and so on 6 deplete iron store note in last blood test and low one 3 month before not sure about the one before 7 over the past two week nausia have been a notable issue with urge many morning other health issue lichen planus currently active orally and mildy around other usual part never have genital before this possibility oral specialist say lichen planus breakout are often note when iron store are low as it is an autoimmune condition I also have a skin rash across my back no idea what this is chronic neuralgia no change kidney pain start two week ago it feel like I have a constant dull ache in my left kidney give sample await result never have kidney stone family history of cancer grandfather on dad side bowel cancer at age of about 70 non smoker gandfather on mother side lung cancer at age of about 80 non smoker mother breast cancer at age of 60 ex heavy smoker stop age 40 no brak mother twin sister breast cancer at age of about 62 heavy smoker no brak,neutral,1
hello I have a relative that have colon cancer he s been have problem with non stop diarrhea they give he fluid and it do not stay in the body what do he need to take or do to stop the diarrhea,neutral,1
hello I am an international student who is currently study in the state I am a 20 year old male about 61 tall and kinda skinny I will first start with my symptom I have been have really bad case of loose stool and gas but no blood I do see very tiny spot of bright red blood but I think it was from excessive wiping and I have never see blood again since also for past couple of day I wake up early due to bad stomach ache the thing is though after I finish the bowel movement the pain disappear stool color is normal I go to see the doctor and he say that my symptom sound like classic ibs symptom and he do not recommend colonoscopy kinda convincing because I have been having ib since day 1 though I was never officially diagnose meaning I never have a colonoscopy my mom tell I that I was constipate very badly when I was a baby when I enter my teenage year however constipation slowly go away but this time I start to develop frequent diarrhea and gas pain whenever I drink milk coffee or spicy food I get really bad stomach ache symptom also get bad after long hour of travel I think it is call traveler diarrhea but I never pay too much attention to my disorder cause I am stupid and recently during my freshman college year I drink lot of alcohol smoke cigarette about once a week and eat college food which is pretty bad also I was under lot of pressure regard my career path my doctor and parent think that my ibs symptom get bad because of all the excessive drinking I have have recently but strange thing is that I quit drink in april I stop because I realize that I was go to the toilet more often sometime in april there was a week that I was go to toilet after every meal now it is june I do not go to bathroom as not as often but I am still have loose stool I am worried because of all the ad and newspaper report that nowadays more young adult get colon cancer and that it is slow grow should I insist on get a colonoscopy or am I just paranoid,negative,0
I am a 37 yo male my diet is high on starch and though I try fruit and veggie are not as high as I think is normal anyway lately my stomach have been distend for a while and I have low back pain when I need to poo also lately I have need to poo very quickly after I eat which is not normal my stomach have been upset more than usual lately I am go to get check out just in case but good ol web md always seem to point to cc for those of you who have it do you experience similar symptom,neutral,1
for the past two year I have been have very mild rectal bleeding it usually occur once every 4 5 month and last maybe 1 4 day max I have go to the doctor multiple time and he find an irritation bump near the exterior canal of my anus and dismiss any suspicion of internal bleeding what I see in the toilet was a little bit of blood cover a small and hard look marble stool the toilet paper have a small smear of bright red blood too thing is I always think hemroid fissure should hurt a lot but I am have mild itching and pain only I do not know if I should ask for a colonoscopy by the way if this help I am 21 year old with no family history of any cancer,neutral,1
I am a 50 year old female without knowledge of family history since I was adopt as a baby I been have issue for the past 6 month pain and pressure in my low abdomin especially at night which wake I up a month ago I start have severe right flank pain and under rib into groin fever blood work and ct scan was do high white count with bowel wall thickening of ascend colon and mesenteric fat inflammation slightly low rbc I was admit and give iv antibotic it is been about 10 day and still have some pain on the right side and the usual nightly low pain and pressure is still there I have a hysterectomy 10 year ago and removal of my appendix at that time I have have ib on and off most of my life however the past 6 month have been either day on end of the run or on the other end day were I can not go and have to drink prune juice this is much bad than I have ever been I have a colonoscopy 8 year ago and it was normal my concern is I have 4 surgeon in the group I am see two are state there is a good chance this is cc and the other is state they think it is diverticulitie I was tell a few senerio one if it is diverticulitie they may wait until I have another attack and do a resection the pain on the right is get bad again today if it is a cancer or a polyp and they can not remove via colonoscopy I would also need surgery I have do some research and right sided diverticulitie is rare in the ascend colon it is usually on the left and only 1 5 on right these case are usual of ascian decent possible have something to do with the type of food eat which I am not ascian also you can usually see the diverticula on the ct scan they could not the ct scan was not complete it was miss the posterior area and low pelvic region the surgeon attempt a colonoscopy a few day ago and could not get past the first few inch state I was to awake and he was concern since I was in pain after go through all the prep I was send home to reschedule use mac for sedation now I have to wait two week I am also worried that I will have another attack of pain in the interim and will again postpone the colonoscopy I am so scared and the anxiety is kill I can anyone give I any word of wisdom please your help and comment are appreciate,negative,0
my friend have just been diagnose with advanced bowel cancer with met to lung liver stomach and gland she have just have the tumour remove and have a colostomy bag do anyone have any idea if there are new advance or breakthrough in this area she need to fight this any advise would be very much appreciate she is young and fit and willing to fight it,positive,2
I would like to know if this is normal last month I have a colonoscopy in which they find and remove 2 polyp one was tubulovillous and 1 cm after pathology report they want to go in again and look to make sure they have it all apparently there was low grade dysplasia all the way to the base of the polyp no clear margin on their second visit to my colon the doc could not find the spot where the polyp have been so now they are talk about do a resection since there might be precancerous cell on the colon itself so here is my issue a should not the doctor have record the site on visit 1 or tattooed it or something so they could find the area again I really feel violate that they do the second procedure and then say they could not find the right place and b is not it premature to talk resection for low grade dysplasia the doctor is go to send the pathology report for a peer review so obviously she have some concern oh yeah and she do not want to give I a copy of the pathology report until after the peer review which strike I as strange so do anyone have any word of wisdom would really appreciate it,negative,0
I have have abdominal pelvic pain on the low left side and a backache the doctor order a pelvic ultrasound to check for ovarian cancer but I am wonder if colon cancer ever present this way I have a colonoscopy 2 or 3 year ago,neutral,1
so today I notice this lump exactly near my anus it do not hurt while sit or move when I examine it it itch when I touch it it feel like it was below the skin very soft and have whitish color about 90 certain it is white in color I am not freak out or something but I have never have anything like this before the summer is very hot I am sweat and sit half of the time but this is normal for this time of the year and my work any advise would be appreciate just a few thing I am not gay I take a picture of it with my phone if someone want to see it in personal message thank,negative,0
aug 2011 I have surgery to remove 2 large tumor one on each ovary doc find a 3rd tumor in my colon and I was diagnose with stage 4 colon cancer I have have my uterus and both ovary remove also have my gallbladder remove this past april and a large abdominal hernia repair been thru 12 session of intense chemotherapy and am now on perventative maintenance chemo three week ago I have a pet scan and it reveal some fluid build up in my pelvic area leave side doc do not want to do a biopsy before christ he say it was very deep I ask what should I look for he say pain well today for the first time I am feel some pain what is it is there more cancer I am scared,negative,0
my father have stage 4 colon cancer and a colostomy on the right side of his belly he have a large blockage tumor remove in january he have not really recover he is very weak unable to eat and now seem to be pass large amount of blood everyday there is blood in the bag some day it completely fill and drench his clothe his oncologist is aware but say his hemoglobin is ok this have been happen for 2 week have anyone ever experience this I am afraid something is very wrong and I am not sure what to do or where to take he for help,negative,0
I have just find out via a phone call from my mum that she have bowel cancer she do a poo test abot a month ago and it come back with blood in it they ask she to repeat it again it come back with blood she have now have a colonoscopy on monday and she phone I yesterday to let I know she have bowel cancer my mum will be 73 this christmas they say she will need to wait until next wednesday to get the result of the biopsy and then need to wait a further week to have a cat scan is this normal it sound so slow I am just so scared and this have hit I so hard how long after the cat scan is do will she know the result what will the biopsy result tell she the thought of lose my mother is petrify I I have read that the survival rate are far high in the usa than in europe and that is also worry I a great deal I too have have cancer previously but mine was a chondrosarcoma for which I have have a total shoulder replacement would this make I more prone to get colon cancer as well I am 36 year old should I get check what are the next step for my mum I will post again as soon as I know any more information about her stage of cancer any answer will be so appreciated I feel so lose right now and everyone around I is try to play it down but I know it is serious and I just want someone to talk to I seriously thank you,negative,0
hi I have my first colonoscopy today as I have been have rectal bleeding I am a 44 year old female the doctor say he remove a small polyp and I have some internal hemorrhoid he say he think would be ok with diet change the nurse say I will probably have to go back in 3 5 year for another colonoscopy should I be concerned about any of this is this normal procedure when polyp are find I feel concerned if I have not have it do and wait today I learn I was 50 as to what size and so on it would have been by then,negative,0
hello I am new to this site so bear with I you all my name is ashley and I am 19 year old I have been worry alot lately and I feel as though I can not really talk about this with anyone close to I so I figure i d give this a shot here go nothing for the past I think year I have been have blood on the toilet paper when I wipe it is not in the toilet bowl or on the stool itself just the toilet paper it do not happen all the time its just occasional and it is a verry minimal amount when it do happen it is mostly tiny spec of bright red blood and I mean tiny spec one time there was a pink smudge whenever it do happen I do notice that there is a burn sensation after the bowel movement t for a few hour and then it go away I was stupid and look up my symptom in google and bam now I am convinced I have colon cancer and am die I guess I have health anxiety issue I do not have health insurance and can not afford test I do get worry one time and visit the urgent care where they do a finger rectal exam and say they feel nothing and the x ray show a moderate amount of stool in my colon so they tell I I need more fiber and to change my diet I have also notice over the past week and a half or so that whenever I pass a stool it come out in ball or pellet and I have to strain so I go out and get some dulcolax stool softener and ever since I take some of those yesterday my stool have been thin and soft I am worried and need advice on this please,negative,0
what are the cause of colon cancer,neutral,1
for about the past year I have been have all kind of issue with number 2 I use to be pretty regular but now I only go once evry 3 day when I do go it normally come out as one big one then I struggle for the next few minute and thye are mostly real thin small one that come out next sorry for being so graphic all the time it feel like I still have to go and when I stand up it seem like something go back inside I I have not notice a ny blood and have a colonoscpoy about 7 year ago which find nothing not even a single polyp do this sound like colon cancer to anybody or something else if these were colon cancer symptom would I be experience anything else yet since its been a year thank,neutral,1
please put my mind at rest notice a small per annum sized lump just inside my bum at the top its been nag at I that it could be cancer its been there for about 2 month I am 24 year old its not painful at all but very firm I squeeze it as hard as I could to see if it could burst no chance at all no blood either at all and no pain when I am at the bathroom or otherwise could this be cancer really not up for get someone to inspect this for obvious reason,neutral,1
I have the colonoscopy today this morning early over twelve hour ago they take some tissue sample I am have sharp pain new pain that I have not before experience feel like a pinching or sharp poking at good stabbing at bad it hurt I am scared I am call the doctor tomorrow morning and pray it just go away but I am scared have this happen to any of you try internet search on this help,negative,0
hi all I have never post to any message board so this will be my first post I was recently diagnose with rectal cancer it is a 3 cm mass about 10 cm into the rectum the initial mri and ct scan that I have do stage it at t2n0 or t2n1 however I go for a second opinion and they redo the scan before christ they say first scan was poor quality they say it is late t2 just begin t3 and several suspicious node n2 I am so scared my liver so far is clear I have an almost 2 year old son both my surgeon and oncologist are very optimistic about disease free survival however everyone have tell I it is a rough road ahead therefore I welcome any advice you have to offer I especially if you have been through this while care for a young child and I have a full time job my mother is go to come and help I and my husband is very supportive but I do not think he know how difficult this is go to be so far our plan is to pursue egg retrieval follow by chemoradiation recovery surgery recovery and more chemotherapy I would like advice about what to eat how to handle the radiation good skin cream and so on what to expect from the chemotherapy and so on I understand that everyone respond differently so if you ve have a good experience that is nice to hear too I have read a few thread entry so I have pick up some good idea already for surgery I plan to have a total mesorectal excision the doctor say he will try to form a little pouch for stool to collect I will have an illeostomy sp for the four month of chemo after surgery the first chemo portion will be pill form right now I am have a hard time eat I know I need to eat but due to the stress of this situation I do not feel hungry furthermore I would not eat meat anymore but I have been eat salmon sushi fresh fruit and a lot of vegetable whenever I go to a restaurant and they offer their fried meat appetizer all I can hear is would you like cancer with that I wish I could just pretend this was not happen but that is not an option I will survive this please help I,negative,0
one year out of chemo now my cea are start to raise not by much but have go from 3 4 to a 6 7 and 2 month ago it is go to a 9 I have go thru all the colonoscopys and ct have a pet scan due in 10 day the ct scan show 2 tiny nodule in my right lung one dr my old one say they were nothing my new dr seem very concerned right now I am just wonder with the raise cea do anyone have expierence with this I am just wonder if I am up for chemo again my cea were only 6 7 to start off with now high then before the chemo it is a strange cancer it even get into my ovary it is call mucinous adenocarcinoma just freak out about it at the moment any advice or word would be much appreciated,negative,0
I have surgery to remove a cancerous tumor and my large colon and rectum were remove at the time of the surgery a internal pouch was insert for future surgery it is been nearly 3 month since my surgery and I have have a number of problem and have been back in the hospital twice I develop a clot in my lung and am on med for that I have been have a lot of leak from my ileostomy bag have spend many a day and night cry the first few week I have no problem but now it is been a mess every day I have severe skin irritation and am use the powder the spray and I use the paste instead of the ring barrier thingy it seem everything I have read have been extremely negative regard reversal surgery they plan to do that to I but I am terrified about not have control over my bowel how could I even leave my house is there anyone out there that have a successful reversal of this kind I have chemo and radiation prior to my surgery and they at first do not think they could do a reversal they say I have a history of ulcerative colitis but I never hear that before I remember 5 year prior being tell I have mild colitis then the drs feel there may be too much damage from the radiation but during surgery they feel it would be ok to try to set I up for future reversal surgery the pouch was put in place during initial surgery anyone have success or failure story,neutral,1
I was diagnose with colon cancer this past week I am a 40 year old male I am meet with the surgeon this week and hope to have it do laparascopically would love any help or feedback on what to expect in he come week,neutral,1
hi I have been have symptom that I think were hemorrhoid for the past month or so itchy irritable anus blood when wipe a bump near the opening of my anus eat more fiber and was gentle think it would go away and so on it have not so I make an appointment with a doctor today for a physical to check it out he inform I it was not a hemorrhoid at all but was in fact a wart with other lesion around the anus hpv I m assume this scare I since the symptom I was feel early the hpv may be anal cancer can anyone here shed any light on this I plan on call the doctor office first thing tomorrow to schedule a follow up appointment but this really have I in shamble at the moment thank,negative,0
I remember drive back from a movie with my grandmother I have a sudden urge for a bm we pull over at a convenience store normal bm but when I wipe it look like dilute pink water on the toilet paper a very very small amount not red light fade pink stool color was normal I have been a stress and anxiety mess ever since 6 month later I have develop little bright red spec on the outside on my stool almost blind to the eye unless you re really look the small bright red dot do not appear everytime I may add that if I eat 10 or so oreos my stool turn black if I eat red flamin hot cheeto it turn red green bean turn green been tell by er my stomach process and digest extremely fast toilet paper always come back normal toilet water is normal color for a bm I know what you re think classic symptom of hemmroid here the kicker I then develop extreme gas pass it like 10 20 time a day with sudden feeling of relief in stomach also my stomach make louds gurgling slosh noise about 10 time a day no abdominal pain whatsoever just worried sick it is cancer my uncle is an er doctor and he know how paranoid I am so he order I a abdominal ct with and without iv oral contrast just to call I result were unremarkable with the exception on a slightly enlarge spleen which he brush it off as due to my throat infection at the time extensive blood work do include heli bactor bact infection come back negative so I am convinced I would not be happy until I set up a colonoscopy do this next week are these classic symptom of colon cancer or are they more than likely that cause by something less serious,negative,0
I just have a bowel movement and the stool look normal light brownish but when I was wipe two of the time I see red orange flake on the toilet paper it was not much but was really small and look dry and solid I have a lot of tomato and red pepper last night could those be the cause cause I am doubt it since I am terrify by the way I am a 20 year old male with no family history of cancer thank,negative,0
I am a 30 yr old male about six month ago I come down with a horrible intestinal virus what the doc think although test my stool do not find c diff as they suppose it to be I have horrible stomach cramp and diarrhea for three week I have no blood in my stool but there was mucus they put I on several antibiotic and the diarrhea finally go away although my stool have not been the same since since it have always been much soft and sometimes light in color also at the time I was diagnose with high bp and have since been on lisinopril anyway about four day ago I start have some really soft stool that develop into bad diarrhea and cramp then two night ago I vomitte and also some red blood almost like a clot that I poope out so I go to the er they tell I it was a bug that was go around that is nasty I have not have blood since but still have cramp and diarrhea anyway I was wonder what the chance are that this could be relate to colorectal cancer I have no family history of it,neutral,1
hey about a month ago I find blood in my stool on 3 separate occasion about 2 day apart from eachother I also have abdominal pain and feeling of always need to make a bowel movement the symptom only last about 2 week and the doctor tell I it is probably only hemorrhoid my symptom have settle down now but I am still have anxiety could I possibly have colon cancer and is anything I should be worried about I am a 22 year old male thank for your time,negative,0
my 88 year old mother was tell by her gastro dr that he would recommend a colonoscopy she have some bleeding over the last year and was give a blood transfusion about a year ago since then they have been monitor her blood level and notice they have go down again and we have notice some red blood when go to the restroom we can not tell if it is actually come form her rectum or her vaginal area our concern is that she have mild to moderate dimentia and also 80 heart block have anyone experience this or new someone with a similar situation are there other test they could do to rule out cancer that are not so envasive any answer would be a godsend thank,negative,0
about two year go my 27 year old husband 25then start to pass blood in nis stoolwe have see several doc since then and no one can give we a diagnosis I am so sick of this up and down worry rollercoaster we are on my have now lose almost 30 pound in the past two month he have every symptom of colon cancer as far as being nauseous bloated heartburn now weight loss fatigue but no diagnosis we are actually go to head to the hospital in a hour or so if someone could point we in what we should ask for would be great my husband have have a coloscopy and endoscopy the camera pill and a mri without contrast dye and they do not see anything we can not do this to ourselfs anymore we need to know what is wrong with hm for the sake of our mental health its sad that our daily talk is about life insurance and how he want to be bury and cry at the get of 27 we just need to know what is in so we can get on with our life weather it be cancer or not all is blood work come back fine besides the last one and it show is wbc to be a little high it was a 9 he also have been scan of all parasite someone please help,negative,0
I am a 45 year old female who have no history of cancer personally or on either side of my family tree I have have ongoing anemia without an exact reason why so was give an endoscopy and a colonoscopy first time for both the endoscopy come back fine the colonoscopy find one 5 mm tubular adenoma negative for high grade dysplasia or malignancy I would not be able to see the doctor for a month though I do talk to the nurse who say that he is go to put I on a 5 year interval for a second colonoscopy I have try to research and understand what I am deal with I get that the adenoma is consider pre cancerous and that once it is out that it can not turn into cancer what I am concern about is wait five year to re check I know polyp are suppose to be slow grow but is five year too long what if I am prone to develop polyp and I am one that develop they quickly should I insist on being see early and if so how much early also should I be worried or relieve base on what I have just describe with my pathology report thank for any word of wisdom,neutral,1
can anyone tell I what to expect with chemotherapy treatment folfox 6 the person is in good health no cancer after it was remove however dr say it is preventive treatment in case any little cell may show up in a few year and this is to avoid recurrence pet ct scan is clear of cancer I post a few day ago could someone please respond as to what to expect I understand everyone is different but head up would be nice thank,negative,0
my husband is 33 year old and have been bleed bright red blood with every bm for over a month the dr is lean more towards hemrroid but I am concern its cancer,negative,0
hi all hope to get some feedback info advice or just hear other similar story as I am pretty worried right now last night I wake up with a stabbing pain in my abdomen sort of the left side of the tummy it feel like a really sharp gas pain you know that bloaty farty feel you get when you need to fart well it was like that but really painful and sharp I have the sensation I need to do a huge fart but nothing come out I go to the bathroom and sit there for a while wait for the gas to move through or pass or come out but nothing I pass a bowel movement normal not diarrhoea but not constipate hard to get out either eventually and when I wipe there was bright red blood on the paper I feel like I was about to pass out I get so scared I go back to bed and the stabby gas pain eventually pass and today I have been pretty ok apart from worried sick I do a bm after get home today and it was normal come out normal and no blood that I could see and no blood on the paper either I have have this gut stab pain once before I wake up in the night and it was more painful the first time but there was no blood that time I literally sit on the bowl that first time for age and feel really feverish hot but in a cold sweat and feel faint about to pass out this second time I wake up really sweaty like I do not usually sweat that much at all and last night I wake up cover in sweat these stab tummy attack seem to happen in the night when I am asleep so far when it happen the first time I assume it was a bad reaction to something I would eaten but last night for dinner I have really generic plain food like nothing that you d think would cause an upset tummy I have been google and look up website on symptom all day but just not sure what it could be it sound like it could be inflammatory bowel syndrome or crohns disease or ulcerative colitis but again I am not sure I know I should go talk to my gp but just terrify he will make I have a colonoscopy and then find a tumour or something have anyone have these symptom before any advice as to what it could be I am 31 by the way thank,negative,0
so let I give you a little info first age 28 no family history of cancer of the colon I just move to a new city with my wife to finish my master degree I was under a lot of stress when these symptom start it was also ironically a day after I eat a really rare steak at a golden coral laugh out loud my stomach start to feel empty at first and then I get very bloaty and gassy from both end stomach pain then follow for week on end nothing excruciating or unbearable just annoy it was burn and sting with occasional low back pain with it and the occasional rectal pain bm change in occurance not so much in appearance constipate on and off and mucus on some piece of stool I should also mention that like three week before this I have start drink again not heavily after not drink for 3 year and I was have a red bull every morning I quit drink the red bull since this start I go to my gp and get full blood test everything look good and normal liver kidney wbc rbc and so on do stool test for bacterial and parasitic infection and they come up clean he diagnose I with ibs and prescribe I a slow release antacid and 25 mg a day of nortriptyln for stomach pain and say that if I have ib it should help well that is been on the stuff for 3 day and the pain is definitely less though it still show up a few time a day for a short period but far less than it do before still get a tad constipate every few day and still have mucu in some of my bms sometimes a lot sometimes less to none there have never been any blood in my stool do this sound like ibs or could it be something more serious I would just go to a gi and request a colonoscopy but alas I am a poor college student and have no insurance at the moment or money laugh out loud should I get more debt and go in to see a gi anyway to be safe thank,neutral,1
hi there I am not sure where to start just look for some advice from people who will know more about this than I but tonight I have been need to go to the toilet all the time most of the stuff come out of my anus is red water like blood and the odd tiny watery poo now everytime I go it is just blood that come out and I do not even poo I am a person that often only need to do a poo every 2 3 day but tonight I have been on the toilet at least once an hour I have do some research and I have not recently and certainly am not today suffer constipation or big poo that could of rip my anus or tissue inside just a bit worried as most thing that cause it are from thing being tear due to constipation or large poo but I am in no pain or anything the only option I am think of at the moment is internal hemorrhoid or colon cancer I have ask people and they have tell I to go to the doctor as soon as possible gareth,negative,0
ok I just have a bm and for some reason I decide to check my wipe and notice on the tp that their was some black fleck with small but big black bit the big black part were hard and crusty and remind of the burn chicken wing I eat last night so I am think that maybe it is just some undigested burn chicken wing skin for your information they where burn on both end of the wing and I eat about a half dozen or more after inspect the rest of my stool their appear to be nothing abnormal about it just at the end of the wipe I have notice the black fleck and black pebble sized part which I grab one of the big black bit and break it up with a pencil on my bathroom counter and it break apart similar to a charred piece of food is this how blood would show up in your stool or do it usually have a far more likely characteristic go to the doctor on monday for sure but some insight would be appreciate,neutral,1
hi please read the entire thread I am an 18 year old male I have been have low abdominal discomfort for nearly 2 month now I am now start to get worried that a tumor might be grow in my intestinal area because this discomfort have been present for 2 month I have never have a problem that long before the discomfort is not painful or stab it is just a dull consistent pain that is very discomforting in my low abdominal region it seem to be more prominent in the morning just as I wake up it is as if I can feel the stool pass through my colon and thus it cause discomfort after I do my normal daily morning bowel movement the discomfort usually subside back to it is original less state but the discomfort is still very much there it never go away as for my stool I start notice some bright reddish piece on some part of my stool this occur 3 time so far the first time it occur the morning after I eat red pepper the day before so I attribute it to that the second time it occur the morning after I eat kimchi the day before so I attribute it to that now today I just have these bright reddish piece show up again and I do not recall eat anything red yesterday although I do eat some little orange herb my stool are floaty loose and it usually consist of a mix between half diarrhea and the normal sausage like type apart from the discomfort itself I do not have many other symptom no weight loss or loss of appetite no blood in stool no urine problem no constipation no back ache I have been to the doctor twice as well as a naturopathic doctor they suspect it may be ibs but I am so worried it is colon or bowel cancer,negative,0
this may seem like a long story I will try to make it short and of course ask for advice my dad was diagnose with colon cancer when he was 35 doctor then tell my mom he would not survive he beat all odd and survive and have recently been have symptom of colon cancer his doctor say he have hnpcc I make that as short as possible I am 22 I know that I have to have a colonoscopy no later than the age of 25 I also have a 50 chance of have hnpcc which I know for I as a girl can cause ovarian cancer and so on to find out if I do have hnpcc I would have to do genetic testing so there is some background my main question is I am go into my primary care physician this week to sort of discuss these type of thing and I have been read up for the past year on a lot of this because I do not want to go through what my dad have to go through I want to just live a healthy normal life I have read in the past about colectomy surgery my doctor inform I that it can be do as a preventative method and that I would probably qualify give my dad situation have anyone have this surgery any information on it advice it is not something I plan to do right away it have been something in the back of my mind though any help advice thought anything would be appreciate,negative,0
here my story I am 17 and a half year old right now and have some pretty scary symptom when I was 14 I get pretty constipate and have to go to the hospital to get an enema pretty scary time it was because I get too scared to go to the bathroom when one day I have blood on the toilet paper anyways when they got do with the enema I have a ct scan mri barium enema and a colonoscopy and of course they do a fecal occult blood test too none of the test show anything wrong but for the past year or so I have have bright red blood on the toilet paper when I go to the bathroom it is only for a few wipe but it still scare I and lately I have been really stress out about it and think the bad like colon cancer and basically been freak out beyond belief a couple week ago I start have this bloaty feeling on the far left side above my hip where the love handle are when I feel my lovehandle it feel sort of tender the past couple week I have have sorta thin stool too I will wake up and go to the bathroom and it will be long and thin and then a couple hour later I will have another bm and it will be normal I have a doctor appointment in exactly two week from today but I am freak out over this should I be worried at my age,negative,0
I have a flat polyp which at present is not malignant in the cecum close to the ileocecal valve I am being tell that the only thing that can save I is major surgery remove the end of the intestine and the ascend colon and join the 2 together there is a 10 chance that the new junction will leak in this case other surgery make an opening a whole in the abdomen and carry a bag for the fece have anybody ever go through this nightmare 1joseph31,negative,0
I am 18 year old male and have recently been experience abdominal pain gassy pressure bloat thin stool shortness in breath occasional sharp pain in what seem would be colon both side and upper and low ab sometimes I feel like I need to have a bowel movement even if I just go sometimes the pain feel like hunger even if I just eat sometimes my stomach make growling noise even if I just eat as well the pain occasionally move to my low back it start one day when I use the restroom and I finish but I feel like I need to go more so I push a lot hard and recently after my stool look red and when I wipe it was bright red I do not have the pain at the time but after word when I look up red stool I get really worried and then start notice the abdominal pain and other symptom I go to the doctor and was prescribe laxative and later purchase gas x it have been about a week since the bloody stool and I have not experience bloody stool other than the 1 time but my stool is thin and light color the medication have not seem to help I am really worried and constantly look up cause of it I do not have much of an appetite either but that might be because I am stress myself out over it I feel hungry eat a little and then no long want to eat I would appreciate some kind of opinion p s I smoke marijuana heavily start to stop cause of symptom and I consider myself in good shape I play football in high school and work out a lot recently not as much pleaseee help thank you,negative,0
hi everyone well just get back from my first ever colonoscopy I am a healthy 28 year old female and was only refer due to experience blood in my stool what an experience I opt for sedation and was give 1 mg of midazolam and 50mcg of fentanyl with no effect I was in so much pain at one point they have to stop they do give I another dose of the painkiller but do not seem to have a quick enough effect a 12 mm polyp was remove from the distal sigmoid I have been advise to visit my gp in 2 week for the result I assume and to have a repeat colonoscopy in 1 year I am just wonder why they want I to have a repeat in 1 year when they usually repeat in 3 5 year do they suspect something more serious I have no history of bowel cancer or polyp in my family and only 1 polyp was find the report also indicate that the bowel prep was good any advice would be appreciate,neutral,1
I have annual colonoscopy last week and dr find a mass he do biopsy and schedule I to return this week to see result this mass was not find last year my grandfather have colon cancer at age 82 and tell I he was go to live a long time he live to age 99 a cousin refuse to get colonoscopy and die of colon cancer at age 56 since I get a colonoscopy annually should I be worried and what to expect thank for the help,neutral,1
I have a rupture appendix a month ago and have an open appendectomy to have it remove all go well but I was in the hospital for 7 day my bowel shut down for a couple of day after the surgery so I have to have the ng tube in my nose for 2 5 day my bowel finally come back to life on the 4th day they give I some mineral oil and I have bowel movement every 3 hour for the next 4 day or so diarrea I do not have any solid food for a week while I was in the hospital once I get home I start eat normal and get back into the routine of my morning bowel movement but my stool have been flat for the last 3 week I think I may have some internal hemorriod from all the diarrea and sit in the hospital bed for 7 day is all of this normal it just seem a bit ironic that I would have this issue after this surgery and hospital stay I am was a healthy 36yr old before I have my appendectomy now I have flat stool I am hope its just something that come with the territory after what I go through and will correct itself with time my intestine do not have anything in they for 7 day basically and I am hope that is the culprit,negative,0
okay where to start the only family member that have have colon cancer to my knowledge was my great aunt and she die in her late 50 after a 7 year struggle other medical briefing pertain to family history I also have prior knowledge that diabete as well as smoking heavydrinking is link to colon cancer my mother is a type 1 diabetic and my grandmother have hypoglycemia my father side of the family also have a history of gallbladder problem and most of they have have their gallbladder remove in later year this is just to rule out some possibility I also like to think that severe stress and depression may have a hand in this as well my grandfather have recently die of bladder cancer at the age of 63 but he have been a serious smoker since 13 and start drink in his 20 which merely add to the damage over the year I really miss he and he is probably a major reason I suddenly grow concerned with cancer and sickness in general aside from my aunt as for my history I have not have any serious medical problem I am not diabetic I have been expose to a fair amount of second hand smoke when I was young grand father father mother have been smoker I have lead a fairly active life style up until 2 year ago as another detail I am 15 pound overweight and my diet have been rather poor to add to that about two week ago there have been a gradual change in my bowel movement I would like to believe that it is just unbalanced digestive issue however I am a little unsure possible symptom of colon cancer something else I just turn 21 so I would like to doubt colon cancer I have also been think that this may be a potential bacterial infection it start out with thick and pasty stool of a normal color no cramp no gas as well as have the feeling of not completely empty then it begin to drift toward pasty and watery then back to pasty then to light and airy then to healthy movement firm and compact but soft enough to pass without pain I have only have narrow aka pencil thin once and only once and it have not come back it is been various shade of brown with a lot of mucous passage sorry about get too descriptive no fever some chill body feel a little achy at the joint I lack any form of serious abdominal discomfort have only have a little bloating and a little gas sometime I even lack gas possible inflammation also my stomach seem to cause a dull cramping every once in a great while nothing agonize I do not seem to have pass any blood either I do not feel sick I have not have any need to vomit however some of my food turn up undigested mostly vegetable and this odd grease or that is what it look like to I I have pass a strange orange grease like substance that was separate of the stool 2 time so far it seem like something is not break down properly and it is also get I concerned I have also suffer from a frequent hunger and a little fatigue but other than that I feel like myself I recently buy some probiotic and it seem to relieve the constant hunger and is correct some of the issue been use they for 3 day so far which lead I to believe that I am lack good bacteria and or am suffer a bad bacterial infection I have also been belch quite a bit moreso than typical I also know that a bacterial infection cause similar symptom I am uncertain though and this come out jumbled and unorganized sorry I am just under a lot of stress everyone say that I am go to be fine that it is most likely a minor issue and will pass I feel like a hypochondriac but I feel like I should be concern any clue on what this could possibly be would help,negative,0
how long were you symptomatic until cancer was diagnose I ask because I have have bleeding and anemia and bowel trouble for year no doctor can find anything yet I still bleed enough to need iron infusion every few month sometimes I sit on the tolet and bleed so much its like turn on a faucet barley but steady stream always bright red I have to stuff washrag between my leg when s it is bad in the last 5 year I have have monthly or bi weekly hematologist visit for severe anemia from rectal bleeding I have have over 20 blood transfusion 20 or more iron infusion I have been through dozen of test upper and low endoscope and switch 3 time to a new gastroenterologist last iron infusion was in september I drink daily oral iron green drink and take a handful of vitamin and mineral daily try to keep iron up yesterday the do say iron fall again although feritin around 70 up from 4 last infusion I hate iron infusion I get hive fever turn bright red and go to bed for day due to frustration I have not see a gastrologist for about a year I figure I wait until I pass out or have a huge tumor no one could ignore and they can find the trouble then but my hematologist convince I to try a new doctor again appt in two week any help or advice appreciate robin,negative,0
my husband just have a colon resection do laproscopically he have an excellent surgeon the dr need to remove a precancerous polph do anyone know what side effect of the dr remove 5 of his colon will have how long before he can eat or drink surgery was yesterday and we are still on that is and water we should hear about the polph a whether it is cancer or not tomorrow thank for any help advise and just general information,neutral,1
hi I am new here I am a 48 year old female in good health about 4 month ago I notice that I was have some blood in my stool very little but I could see it I tell my doctor and she say to eat more fiber but I tell she I want a fecal occult blood test so she get I one and I do the test it come back positive so they send I for a colonoscopy well I just have that this week and the doctor say he find a 4 cm mass in my sigmoid colon and he say he is pretty sure it is cancerous so he setup an appointment with a surgeon next week and by then he should have the pathology report on it I am so scared and have been research frantically about this my big fear is I keep read that it is important for early detection well they do not start screen people with colonoscopy until 50 I would have have to wait 2 more year if my doctor do not grudgingly give I a fecal blood test do anyone out there have any experience with a polyp this big I have read so much about symptom of it spread but I am at a loss as to what to do the wait for the report is kill I any insight would be appreciate,negative,0
is colon cancer common in your early 30 I have read the stat and hear it is rare but how rare is rare it obviously happen what is the info base off of,negative,0
over the past few week I have been get worried about change in my bowel movement basically I have always been regular once a day with the exception of when I eat too much and sometimes need to go twice recently I start notice that my stool seem to have a flat edge curve and having read other forum I have convince myself it is colon cancer although in truth I never really check my movement before however most site say that an indication of a blockage would make the stool pencil thin and I would say they are still at least 1 2 cm by say 2 3 cm I have also been get slight discomfort in my stomach around the belly button and feel a need to go even when I have been already and now I seem to need to go twice a day regardless of what I eat I have lose weight over the last 6 month 1 1 2 stone but because I have been try to eat less I also am get some back pain but not all the time and I have also been suffer from gastritis although no symptom for a couple of year I also seem to have more wind and gurgle in my stomach after eat or drinking am I simply make myself ill with worry as I think about it every day or could there be something wrong advice would be great,neutral,1
my step father early this year was diagnose with colon cancer just not the way most people would have have it do evidently he have been urinate fece for aprox 5 week then have his roomate call an ambulance for he so this is what I know he is end stage k he have a tumor in his colon which protrude his bladder so they remove the tumor and portion of colon and upon examination of bladder also find malignant stone they repair the bladder its sorta small he have a colostomy by time I was notify it was aprox a month after surgery he have already choose not to do chemo after a few month of chase a dr i finaly was able to have a small discussion at the time my step father was have a lot of pain at the surgery site radiate all the way to his back so try to gat information from the dr do not happen only thing that happen was how he nicely state to I that die from colon cancer is not fun and I need to speak to he about chemo so I do this week begin his last round they tell he that it would onlt prolong his life by 4 so I guess what I am ask is what are the doctor not tell I I do not want he to know any bad news but I surely do not want to be blind side either thank you to any who will just give I brass tack,negative,0
I am 33 male no family history of cancer of anykind 4 kid in good health although over weight and I could probably eat healthy my family tend to be prone to diabetes but we are all on the heavy side 3 month ago I have a bit of blood on the toilet paper after a bm doc say no biggie just a hemmorhoid your young and in good health what are you worried about but he do not actually check 2 week ago I have a bit more blood on the toilet paper not in the bowl not on the stool just on the tp now I panic I am a worrier and a clinical depressive so I could just be over react I see a another doc and she do the finger test and the stool card no blood in stool and she do not feel anything on the finger test no anemia she do not feel anything is what worry I she say your young and healthy colon cancer rarely happen to people like you plus there would be other symtom I have a consult with a gi doc schedule and am deathly worried even think it is probably nothing am I over react I have no other symptom at all and feel good other than the massive deppresive episode this have send I in while colon cancer rarely happen to people like I the truth is it do my question is if it was something serious like colon cancer would there be other symptom am make a big issue out of nothing and should I see the gi doc any advice would help,negative,0
when I go to have a poo I wipe and ther tiny bit of blood on my tissue is this a cause for concern,neutral,1
do anybody have 2 colostomy bag my sister have stage 4 colon cancer that have spread to the liver she have emergency surgery and have end up with 2 permanent colostomy bag I have never know of this before and am rather confused,neutral,1
I am 43 y o male and I was diagnosis with cancer at stage 4 colon in july after my wife die in june and last year I have stage 3 and now stage 4 they do surgery on 8 22 and find out they could not get it all and my abdomen is cover with cancer and I ask the dr what my life span is with chemotherapy and he say little less then 2 year what the dr go to do is put I in the hospital for 3 day every 2 wks for chemo and that way with all my medical problem and something happen the nurse are thereand I start monday my treatment what I hate the most is not have the caner and it is I can not work anymore and I use to work for a county ems service and the sheriff department and volunteer for the fire department and the rescue squad I do not mind meet my maker at lest I will be abile to see my wife but I have not get up the nerve to ask the dr what my life span is without the chemotherapy,negative,0
well I am here thankfully because I find you all on google I have have slight nausea for a couple of month but because I take nsaid for rheumatoid arthritis 15 year now I have have it in the past along with gerd and so when the reflux pain kick in we begin to deal with that more dilliegently by increase medication prevacid and promethazine for the nausea it is much well but the nausea is still there off and on as is the gerd discomfort about two week ago I begin to have soft pencil thin stool no pain no bleed normal color stool sample was completely normal now I have a colonoscopy and endoscopy schedule for october 25th I could not get in any soon as we are go on a wonderful trip of a lifetime to brazil for two week and they could not fit I in any soon soooo I am a wreck take xanax have help some at least I am sleep although upright thank to the gerd I am convinced that I have colon cancer and I just want to hear from someone anyone that pencil thin stool is not a certain sigh of colon cancer and that even if it is what are the possible outcome is it always deadly part of my problem is that I was misdiagnose with a deadly breast cancer last year on christmas eve my entire family and I were devastate only to find out it was in error that was wonderful news but I was truly traumatize by it and so that have certainly contribute to this fear I just want to relax and have a good time but I do not know how to put this aside help desperate in vermont nan,negative,0
hi I am in doubt as to what to do at the moment and think those out there who have been through this may help my mom is just finish her second course of chemo and radiation and will be go in two week to plan for her operation to remove the now small tumor from her colon I live in australia and she live in canada and was think of come to stay with my mother and bring my husband and two toddler with I we d stay for 3 month her house is big enough in that we could stay downstairs so she would still have some privacy upstairs and I would be close enough so that I could help she with recovery and look after thing within the house my husband would be on hand to help with the child my concern is would the child being in the same house effect her health like spread germ or effect the children health I know see the boy would certainly cheer she up but I do not want to harm her recovery in any way is there question I should pose to the dr any help or suggestion would be appreciate I also plan on talk with my mom as well,neutral,1
I am a 23 yr old female no kid I just have a colonoscopy and an egd to find the cause of blood and mucus in my stool for a yr now 30 cm in my colon the dr find and remove a 3 cm polyp I am worried becuase I wait so long to go to the drs is this size alarm my dr make I concerned by say it was the large she have see in a long time any input would be appreciate thnx,negative,0
I get a prostate exam each year but this year a new doctor was quick and rough he pronounce my prostate fine but a couple of time a week I see bright red blood when I wipe other factor radio catheter ablation a year ago with pain in the groin area that get bad enough to require the use of tramadol to be able to sit and work after deny complication from the catheter ablation from my heart doctor it was for atrial fibrillation I go to see the urologist who say I might have epidydimis because of where I think the pain was radiate from my right testicle my colonoscopy at 54 was completely clear after two round of anti biotic the pain was well so I am assume it was scar tissue or coincidental to the rough prostate exam it first show up when I start use sienna a laxative my pcp recommend after a few day is when it actually start I now eat shred wheat for regularity I am think it is hemorroidial bleeding since it sting usually when I first start to push the fece out since I am on coumadin I guess I am more prone to bleed with this which doctor should I see and am I think along the right line,neutral,1
anyone know what this might be all blood test come back normal but I get some constipation hard to go toilet but I do not really strain I just let it come out naturaly take a while though its painless can not feel it only noticeable on inspection I do have acid reflux stomach peptc ulcer some month ago could it be relate I get gas air burp some vertigo but it subside go for blood test all come back normal what could this be I m 25,neutral,1
ok so mid way through may of this year I have a bm which I notice a pop which hurt but do not alarm I at the time then I notice blood I suffer from severe anxiety so once I notice this I go into complete panic mode I do the bad thing I could do which was search the internet for answer and of course the bad show up I go to the doctor and explain what happen and it was the only time it happen and say it was hemorrhoid because I only bleed once though before go in I notice bump anyways which were inflammed and itchy so I know I have they also my parent both suffer from hemorrhoid as well and my dad tell I what happen to he which is exactly what happen to I so then I was not so worried for quite some time 3 month I was so stressed and worry constantly which make I lose weight to this day I still worry which is now cause I body pain I have put my weight back on too anyways my question I have notice after a bm that the last little bit I squeeze out usually have flatten side almost like a triangle shape but the bottom is round my initial stool is normal looking though I notice before I actually calm down a bit and start eat regularly again my stool have look normal except for the last little bit that come out I have never notice before but up until I bleed I never look at my stool to notice anything the way I get the last bit of stool out is usually I guess the good way to describe it is clench my anus upwards to push the last bit out which is the little bit that always looks flat like a triangle could that be why just the pressure as well have hemorrhoid I do not notice they too much anymore which is good I know I have internal hemorrhoid because I feel they inflamme at work since I lift and pull very heavy skid with lousy equipment I am 24 no rectal colon cancer in family feel perfectly fine minus my body ache my my stress anxiety when I am at work,negative,0
so before I go into detail on my situation let I first say that I am a hypochondirac have been for about 6 year I always assume the bad and always worry about cancer when I get ill some detail about I before I give you my symptom 1 no family history of colon cancer 2 28 year old 3 in good shape 4 I have a somewhat poor diet I eat a lot of sushi and rare red meat and salty process meat I eat fast food way too much and am try to stop I also was drink a red bull almost every day in the morning which I think may have start to cause problem I have not have one in a week now about two and a half week ago my stomach start to feel kind of empty so I start to think I have parasite of some kind over the next few day though it change and have start to feel full and bloated a lot of gas cramp and pain all over my abdomen somtime even make my back hurt though other time there is no pain at all logic point to ibs because of my age and family history but I am terrify I have cc I have schedule an apt with my school dr I am a fulltime college student so its cover there but if I have to go to a specialist I have no insurance I wish I could just go get a colonoscopy to put my mind to rest but I can not afford it what should I do what do you think,negative,0
hello I have often refer to these health board for various ache and pain and appreciate all the helpful advice I am in need of some advice and insight I am not sure where to exactly post this but this is what I am worried about thank you in advance for your insight I have have pain in my low left abdoman and occasional stabbing pain in my stomach and what seem like right under my left rib area the low pain tend to be mostly in the low leave above waistline and low left side near hip bone area I first notice that low pain a couple month ago but chalk it up to my usual bowel issue and it seem to pass for awhile for the last month or so it have return the last couple of night I have not been able to lay on my left side from the discomfort I have have what seem like a roller coaster lifetime of bowel issue with mostly soft stool diarrhea with occasional exciting normal movement my regular blood work and blood pressure and health have otherwise always been good but recently last couple month mostly diarrhea no noticeable blood though in stool though a little on tissue towards the end of wipe there seem to be gas and gurgle from both stomach and intestine blood test and stool test have come back good no hpylori gluten test negative and three different stool test the generic cancer one parasite one and one other that have slip my mind negative regular blood panel all normal a ct scan show only nonspecific lymph node in intestine reference as most likely non cyst by radiologist I have not been in to review finding but am really worried about these lymph node I just want to be educate on all possibility to discuss with doctor if these are sign of colon cancer then it seem that when lymph node are involve in colon cancer it signify having already move to a much high stage are these non specific lymph node usually note in ct scan or do that probably mean that they are of note in size for some reason my wife think that I have a stomach ulcer but I do not think that would correlate to my low left side pain could diverticulitis or something else cause stomach pain and lymph node to be note in ct have anyone run into this or have any insight by the way 40 year old male thank you,negative,0
yes my 10 yr old son have have many stomuch prob all summer long been in and out of children hospital and the specialist doctor they finally end up do a colonscopy mispelle and the one down the troat they find many black spot on his colon do anyone now what that mean,neutral,1
I have been have some symptom that have begin to concern I and I am not entirely sure what I should do I have have occasional rectal pain for about a year now but it is dull and last no long than a couple of second it occur maybe once every other month usually either when I am ovulate or menstruate I very rarely have a small amount of blood on the toilet paper after pass a rather hard stool I can almost feel the stool tear my skin slightly it is very infrequent maybe once a year if that so that is not too much of a concern for I 6 month or so ago I begin have thin than normal stool it do not come all of a sudden but I remember notice it around that time currently it is not uncommon for I to have thin or unformed stool not runny just not solid however I do have normal bowel movement also I would say about 2 3 of the time it is thin unformed and 1 3 normal I eat more fiber than most people and I drink a ton of water probably average about 2 liter per day I have also been under an incredible amount of stress recently so I have just attribute these symptom to those thing but then I recently read something about colorectal cancer and begin to freak out this is rather embarrassing but I feel up into my rectum with my finger and notice a small elevation near my internal anal sphincter it was not hard and it do not hurt however it was only on one side so I am pretty sure that it was not normal it was maybe a centimeter in diameter but I am really bad at guess length I think that it might be hemorrhoid but everything that I have read on those say that it was in the low portion of the rectum and generally hurt I am really scared that I have rectal cancer and I want to get it check out by my doctor however I have been away university for a couple of week now and it is a 12 hour drive home where my doctor is I am not sure if I will be able to make it there until christmas do you think I should just wait it out until then or go to an urgent care office here do you know of anything else that it could be some other information I am 23 year old and I have no parent or aunt uncle with colorectal cancer possibly a grandparent but I am not sure what age he have it if he even have it I am really really worried and I do not know what to do I know that it is rare for someone my age to have rectal cancer but not impossible any help would be very much appreciated,negative,0
I am await pathology result from yesterdays colonoscopy they completely remove a large 3 centimeter polyp and a few less than 03 centimeter have anyone else have similar experience without it being diagnose as cancer,neutral,1
I have a few question wonder if anyone have go through the same thing sorry if this may be kinda long I go to the doctor a month or so ago my initial symptom were horrible diarrhea at least 10 to 15 time a day cramp a pain in the mid section of my back on the right side nausea vomiting chill and various other thing I can not think of over the month it have get bad recently my stool have been bright yellow initially they were think crohns disease either that or a small chance of colon cancer I have my colonoscopy today and they find nothing however the dr still take some biopsy my question is why would they take biopsy if they find nothing I should have ask but was too out of it when I leave and do not think about it anyone have any of these symptom with a negative colonoscopy I am very confused as to what s go on now I forget to add that my test come back as have white blood cell in my stool and I am anemic,neutral,1
hi I am new to the forum I am have some gi problem for about four year constipation alot of gas narrow stool color change in stool I have been tell that I have ib as many people were tell my gi doctor tell I have colon cancer at my age is unlikely I was 34 at the time now I am 38 during last four year I only have blood work whole abdomen ultrasonografi pelvic mri but no colonoscopy 2 week ago I was check my self so I feel a solid mass under my right rib cage it is quite large one it was mobile sometimes I feel that near my stomach sometimes near my belly button that is why I think it is something in the colon I rush to my doctor and make he feel the mass so he order a ct scan for all abdoman I am go to have the result tomorrow he will order a colonoscopy depend on ct scan result do you think could a tumor in a colon be feel easly by hand have you hear experience something like that,neutral,1
in may I have a colonoscopy that show two polyp both benign one remove then and there the other was surgically remove in july with a sigmoid resection the surgeon tell I that I was very lucky since the polyp tubular villous usually turn cancerous after grow to 2 5 cms mine at removal was 4 5cms the surgeon tell I stage 1 total cure I have to be open up since he also find a tumor on one ovary and a cyst on the other along with endometriosis bms have been normal since day one after surgery however my incision split open about 10 day afterwards it is heal nicely at 5 1 2 week here is my question how long do it take for the bloat pregnant look to pass I also feel some pressure on some day but not always in the past few day my appetite seem to have get really out of control as well is this normal prior to surgery any and all food make I really bloated and uncomfortable I realize this board is under cancer but I do not see a general colon board sorry for any newbie mistake,neutral,1
I post before about how scared I was that something was wrong because I was have some change in bowel habit and some bleeding due to a large hemmroid I was tell I just have my colonoscopy on thursday where the doctor remove 4 polyp now I can say I am terrify from the reading I have do have polyp at the age of 38 is not common or not common because most people do not get test until the age of 50 I do not know my family history because I am adopt how long do it take to get result back if the polyp come back cancerous what do pre cancerous mean can the doctor tell by look at the polyp if they are cancerous would they tell you if they think they were questionable my husband try to put I at ease by tell I everything will be fine but that is not help much I know there is not anything I can do about thing now but now I am kick myself for not do anything soon and not listen to the doctor about just leave the he because it was not bother I I should have my hubby take away my computer but know someone else might have go through the samething is helpful thank for read,negative,0
hi I just have a question what do black tarry stool look like will it be some part of your stool are black or your whole stool are color black will it be brown with a little black,neutral,1
hi I am a british woman and I am live in japan with my japanese husband who is 57 year of age he was diagnose with stage 2 colon cancer 6 month ago and the surgeon tell we that the operation was a success his place of work offer yearly medical checkup for the staff and he have a checkup a week ago to our dismay the doctor find blood in his stool we go back to the surgeon who perform the operation and ake if this was normal 6 month after surgery his reply that it was not and now my husband have to have another colonoscopy I am afraid it may have return and the language barrier lack of knowledge in japanese is not help my fear I have look online for the type of treatment he is receive and the name of the medication the translation for the medication is not anywhere to be find so I can not relate what it is here is it normal to have blood in the stool so soon after surgery,negative,0
hi I am new to the board I am currently wait to see a gi doctor and I am drive myself crazy by look at my symptom on the internet 4 month ago I decide it was time to take care of myself so I start work out with a trainer and eat properly lot of fruit veg and lean meat and so on a month after start this my stool become loose and do not correct itself I go to my gp and he say wait a month nothing get well and I notice when the stool was not loose it was get narrow back to the gp run parasite and blood stool test both negative now I am wait till aug to see the specialist I do not have any blood until 2 day ago when I wipe and now there is blood I do have a large hemorrhoid that would not go away I am wonder if maybe I have more internal hemorrhoid that may be cause this all my symptom point to some kind of colon rectal or anal cancer and I am sooo scared I have 3 1 2 year old twin and I am beside myself with worry which is not make thing well,negative,0
hi there I ve been experience chronic pain in my low abdoman for almost a little over a year now at first I do not think anything about it figure it would go away on it is own until it keep persist and far woresene I go and see my doctor and he was positive that it was ibs take my young age I m only 18 into consideration send my to a gastroenterologist and he say the same but my symptom have sky rocket and the pain is almost unbearable I have have almost about every blood test possible also do fecal sample urine test low and upper abdominal ultrasound and a barium enima next test I get is the good ol scope colonoscopy I am very frustrated because all of my symptom feel too severe to be ib but my dr do not take I very seriously and this have affect every aspect of my life anyway figure I would give the board a shot and see if anyone else was have the same problem have been diagnose just so I could ask my specialist some question the next time I go in my symptom are chronic pain in low left side of abdomen ache stab back pain weight loss go from 115lbs 80lbs loss of appetite painful when eat frequent urination spot between period irreagular menstral cycle frequent need to crap never feel completely empty thin pencil like stool mucus and look like onion skin orangy reddish haze around stool fatigue anal pain feel like a twisting screwdriver nausea vomit constipation diarrhea abdominal swelling in pelvic region and tenderness after injestion feel full without eat palpitation anxiety dizzyness fever chill and I do not know if this have any relativity but I find a what the doctor tell I was a cyst on my rib and over the year since I have it look at it have grow and it swell and also become very tender and sore have the doctor look at it last week and he do not really express any interest say cyst grow and can do this too I am not too too worried about it just might be the key to unlock the answer I need I feel as though I am wilt away and I look the part as well and I just want to figure this out so I can deal with it thank,negative,0
back in december of 2008 my husband was diagnose with colon cancer it was a fairly early stage but do have lymphovascular invasion tumor was remove completely and he have surgery to remove that part of his colon just to be sure they get it all I think this was do due to the lvi he have his 1year followup in january 2010 and then was tell to come back in 2 year which would make he due for colonoscopy in janurary of 2012 for the last 3 week he have been have pain on the low left side of his abdoman and back foul smelling bad than normal gas and stool and then last night he have stomach cramp constipation and bright red blood in his stool of course we know the blood could be due to the extreme constipation anyway he is go to call the doctor today but should he push for an early colonoscopy or wait until january I know that I hope it is unlikely his cancer would have come back so quickly and the doctor who do the colonoscopy say they do not believe it would ever come back but the repeat colonoscopy were just routine I am scared a bit he is only 47 I guess what I am ask is do these symptom sound like he may have a recurrence or are we just paranoid due to the word cancer having already been part of our life last time he have a little blood in his stool but they say that it probably was not even from the cancer but more likely from hemorrhoid,negative,0
hello all for the last few month I have notice some pressure pain in my rectum area and lately it have wake I up a few night it is not continuos and sometimes I might go a month withut this sensation but when it come sit is very painful I have also notice a lump that come out when I go 2 thta go back in when I am do I know gross I have not notice nay blood with any bowel movement do this sound like cancer,negative,0
okay here my scenario I am 29 year old no history of colorectal cancer on either side of my family that I am aware of since late 2008 early 2009 I have have difficulty pass stool oftentime but not always flat narrow stool and sporadic rectal bleed bright red and on top of around the stool and on paper when I wipe though not dark red black or in the stool that I can see have not have the rectal bleeding in some month but past occurence still obviously worry I sometimes my bowel movement are normally form sometimes watery sometimes clumpy the form pretty much run the gamut the only constant is difficulty pass they and a feeling of incomplete evacuation I have been the the er twice over the past 3 year for this the first visit over a year ago was a finger test for hemorrhoid which were not detect the second was last week with another finger test for hemorrhoid which were again not detect but this time the doctor take my symptom a little more seriously and order a ct scan with contrast which detect no blockage nothing out of the norm so I guess I have a few question 1 how accurate are ct scan in detect diagnose colorectal cancer without a colonoscopy 2 after 3 year exhibit these symptom with pretty much no treatment would not cancer either have kill I or mess I up pretty bad by now and 3 if it is not cancer or hemorrhoid what the heck else account for all my symptom I am hope I can get some sound answer from some people with a lot of experience with the disorder and bowel disorder in general thank in advance for any reply,neutral,1
hey everybody how are you my name is george and I am a 22 year old man that is very worried about colorectal cancer last saturday I have diarrhea randomly follow by constipation that is still bother I today I can go but it take a while and very little come out and it is usually soft small and sometimes flat my doctor give I 3 hemmocult pad in order to take a stool sample that she could test for blood today she inform I that one of the three contain blood and to see a gastroenterologist I have not actually see blood in my stool previously during the testing or after I have make a appointment for august 3rd with the gastroenterologist I am here because everything I have read on the internet is scare I the symptom I have discomfort in abdominal area even after bowel movement blood in stool constipation all point to colon cancer I am honestly cry and I have not see a doctor yet should I be this concerned I will add a few tidbit I do not have a family history of colon cancer but my father do have a very weak stomach which I have inherit I have have an endoscopy before when I was 18 for abdominal pain but no other symptom and nothing come about the pain go away a month or so later on its own I have have random bout of diarrhea follow by day of constipation before and it occur 3 4 month at a time but that is not a consistent time frame I then go back to a normal schedule my doctor take a stool test herself it was awkward but need to be do when I go in last tuesday she give I a rectal exam and take a piece of poop out and test it on the hemmocult sensa test it was negative that is when she give I three separate test for three different day the one that come back positive was from tuesday night the subsequent day were not she originally do all of this when I tell she my stool was black I have take some pepto to relieve the diarrhea and was concern my stool have not been black since my fiber intake is not much I only increase it when I get constipate it is the wrong thing to do the only fiber intake I consistently have is a kelloggs nutrition bar I do eat vegetable with my dinner mean seafood almost every night and I eat fruit almost every night I also eat carrot and oatmeal cookie periodically as you can see I am a stressed person a bit consider I am freak out before I have even go to my first visit but there have been no stress at all to contribute to this condition I usually am a worrier so the stress I have is when something actually happen to I not before I always think of the bad for some reason I am not obese or a smoker I am a 511 150 pound 22 year old male that is hope I do not have the bad,positive,2
how do I reconnect with my 40 year old son who have been give 2 to 8 month to live with stage 4 colon cancer and have aleady under go a colostomy we have not see each other since 12 5 2006 for my 25 year old who die,negative,0
hello everyone my husband was diagnose with colon cancer in 2007 he was 35 at the time cancer is not hereditary in his family he have the surgery and was cancer free for a year he is now stage 4 and the cancer have move to his liver surgery is not and option just chemo and radiation therapy I hear of hepatic artery infusion I want to know have any ever receive this treatment and how were the result of it I am 35 year of age and never think so early in age I would have to think about the big c we have a 15 year old daughter together and at some point I think we would have another child also I want to be as supportive as possible like other thread I read I been depressed anger upset and so on it hurt so bad to see the person you love to suffer and be in pain and you feel so helpless the doctor never want to give a life expectancy but one doctor say 2 year top do that sound about right my prayer go out to everyone on these thread and thank each and every one you for take time out to post your experience,negative,0
hello I have my first colonoscopy about 3 week ago 50 year old male they find one polyp that was remove and determine to be benign after removal they also discover a fairly large fatty tumor in my rectum that they say is usually unusual doctor take a biopsy but it come back as normal tissue so he suggest scheduling for a endoscopic ultrasound with a needle biopsy of the lesion I have a flex sig do and they biopsie the mass and was tell it was non cancerous from the sample anyway their advice was to schedule my next colonoscopy in 3 year and let they know if I experience any problem before then I have have no issue regard constipation or bowel movement prior or since the procedure I ask if they could just remove it and was tell they would have to remove part of my colon so I am hold off of course hey say they would measure it to see if it have grow next time but probably would not need to biopsy it have anyone else experience a similar situation and do 3 year sound sufficient for another colonoscopy I do not know how concerned I should be thank everybody,negative,0
I am usually hang out on the back board but I am currently with my 89 year old aunt who is await colon surgery she have a colonoscopy last tuesday and a cancerous mass was discover it is in the right ascend part of the colon which we ve been tell is the good place to have a tumor if you re go to get one they are hope to do the surgery robotically if they can and I gather it will be a minimally invasive surgery she is in otherwise good health can anyone give I an idea of how long she will be lay up until she will feel like go about her daily routine get her own meal and so on I am use to advise patient who are await spinal fusion but have been lead to believe that this recovery would not be as long or as disable assume thing go accord to plan would I want to plan to be with she for two week or a month or,negative,0
I am schedule to have a colonoscopy the instruction my doctor have give I is to drink half of the trilyte colyte preparation at 6 pm the night before the exam and to take the other half at 7 am on the day of the exam the exam is schedule for 11 am my understanding is I will have diarrhea for three and one half hour after I take the preparation I have to be at the facility at least half an hour before the exam is schedule to start it will take I an hour to travel to the facility hence I will be crap in the car while travel to the facility is my time schedule correct anyone who have drink a gallon of trilyte colyte want to comment on the effect and their duration thank leslietoo I think there might be a dirty pant problem it is rather annoy my gastroenterologist never mention this problem I tell he where I live instead of follow the preparation instruction of a gastroenterologist I will follow the instruction of an anonymous stranger on the internet and take the preparation an hour and one half early I have also tentatively decide to stay in a hotel near the facility to minimize the length of time I will be away from a toilet yes this is my first time,neutral,1
I am a very healthy 42 year old have never smoke never drink and no drug I was diagnose with colon cancer about 4 week ago that is a hard thing to take in I want the surgery as soon as possible so april 5 2011 was my surgery date I have never have any surgery so was pretty nervous but was very relaxed the day of the surgery my tumor was in the low section of my colon only 23 cm from the bottom so the surgeon dr blankenship in mobile al tell I that is was go to be a tough area to get to but should be able to be do lycroscopic the surgery end up being about 4 hour the surgeon tell my wife that the tumor end up being large than expect about the size of a base ball I have 4 total incision one about 3 inch below the navel and 2 small on the right side of my abdomin and one on the left upon wake up from surgery I was in extreme pain from pressure on my testical this was the only pain I have and it was strong the nurse say she could not give I any pain medication because my blood pressure was still low from the anestitia once I have the medication the pain was pretty much low I do have a catheter that was remove the second day after surgery right after this I get up on my own and go to the rest room I have a hard time release to urinate I have to let it out in spurt for about the 1st two day after that no problem in that department second day I start build alot of gas move around but none was get to the right exit point until the 2nd day once I do release it was one of the good feeling in the world on saturday I was release and go to the bass pro shop on sunday and buy I a new bass boat I hope this help anyone that is go through this and sorry for the spelling I try to get this post pretty fast thank and do not give up,positive,2
hi I am a 20 year old that is worried of have colon cancer I first notice change in my stool a few month ago I have have health problem off and on 7 surgery kidney stone and so on nothing like this though like I say a few month ago I notice change in my stool they include diarrhea being very thin and last night I see bright red blood I also have been have stomach cramp and nausea for a while now I usually suck thing like this up but I am start to get worry I also notice the symptom are kind of the same for being lactose intolerant I do have a history of colon cancer in my family but it was not immediate family not sure what to think just need some advice oh and I do plan on see a doctor just want to get some other opinion,negative,0
hi I m new to the forum I have a colonoscopy yesterday because of blood and mucous in my stool change in my bm habit and some pain the doc say that he find nothing sinister but he take 4 biopsy of different part of the bowel I m confused do they take biopsy anyway just to find a cause or do they take they because they see something wrong I have to wait until july for follow up so its too long to wait for some reassurance thank you for any reply,neutral,1
I am just at loss my mother die 4 23 11 she go into the er with massive abdominal fluid and pain they drain the fluid the next day and make plan to move she to hospice within 24 hour of her er admittance they say she was in stage 4 colon cancer that have spread certainly to her liver and she was also renal failure my mom specifically do not seek medical treatment she would been lose weight over the past 2 year but nothing drastic today I learn the past few month she was walk around in the grocery store the 3 day before she go to the hospital she do not treatment not even knowledge she tell her pcp to not test she or tell she she need to be test for anything she want nature to take its course my grandmother have colon cancer in her 80 and take chemo and survive it is obviously a strong fam history she go to the er wed night she was unresponsive by 3 am saturday morning and have pass at 230pm saturday she have time to sign her advanced directive and she was very very much lucid and awake until very early friday have anyone ever see anything like this do anyone know the relation if any between colon liver cancer and renal failure and I am 29 how early can I have my first colonoscopy,negative,0
my dad was diagnoise with stage 3 non small cell lung cancer in october he go through chemo radiation and have his lung remove in october the doctor tell he his colon light up but it was only inflame and do not thing about it now 9 month later they have tell my dad that he have something that is very uncommon his lung cancer have wrap around the outside of his colon which is now stage 4 and have affect his lyphnode in his abdomin I have been research online and it is say he have a 3 survival rate we are meet with colon surgeone this week can anyone please give I advice as we have no faith in these doctor anymore because they miss this nine month ago,neutral,1
I have have some bleeding after loose bowel movement it is only about a tablespoon size amount and will stop in a short time but it is after every bowel movement any idea about what might be go on this is the only thing go on no pain or anything just bright red blood,neutral,1
what are the chance I will get cancer if my mom dad and brother die from it,neutral,1
we do not have insurance and my husband is 31 his mother was diagnose with colon cancer and now he is show several symptom black stool with large amount of visible blood constipation then severe diarreah he have lose a lot of weight have stomach and abdomen pain is exhaust all the time constantly nauseaus and so on the dr say that he do not need a colonoscopy and when I contact the hospital they say he was too young it was not colon cancer help what should I do,positive,2
I am 76 year old and have be diagnose with stage iiic colon cancer I have a tumor remove in jan 2011 I have 8 12 lymph node engage I start chemo and have one complete round of oxyplatin and xeloda then during the second treatment the iv infiltrate and chemo have to be postpone until the before midday was well I have been 8 week without any chemo the tumor was mod diff I was wonder how fast something like this spread I am have my first pet scan and was wonder what I might expect at this age is chemo really worth it thank,positive,2
hi I live in france and information is not readily available on this propose treatment for tumour in the liver follow colon cancer liver re section have anyone out there have this treatment and if so what is it like please and do you think it was beneficial thank,neutral,1
hi I am an 18 year old girl and I just got diagnose of polyp on my colon I think I have actually notice that something was not normal with my abdomen since about 2 or 3 year ago cause I notice that bright red blood occur several time when I go to the toilet but I think it was okay so I do not tell my parent yet and then about 9 month ago I tell my parent about it and we instantly assume that it was hemorrhoid since my father and his sibling have have take hemorrohoid surgery but then later on this week I go to the gynecologist because my period circulation is very rapid and when the doctor check my rectum with his finger he tell I to go to the surgeon because he is suspicious of the hemorrhoid so right after that I go to my uncle who is a surgeon he haven t know about my hemorrhoid yet and then he slip in a tube like sort of thing into my rectum and I don t know what happen back there but I hear my uncle tell my mom and the nurse beside he to look at those little grape like thing then my uncle say that it wasn t hemorrhoid but it was polyp so I have to take surgery and then after the polyp have lift it will be send into the lab for a test but my uncle tell I that he want I to go to another surgeon digestive surgeon to be specific before operation and he say that how can you haven t notice anything about it until today you should ve notice it since the polyp are not small he didn t say that they were big though and I tell he that I notice the fresh blood and the mucus but I think that it was hemorrhoid I know that I will get the diagnosis from these doctor but since I m just curious and I haven t make any appointment with another surgeon yet can you help I with these question please 1 is it possible that my uncle is mistaken I mean that it really was a hemorrhoid 2 if it is polyp can you give a quick diagnose if this polyp are harmless polyp or not cancer and so on 3 is it possible to have a colon cancer at the age of 18,neutral,1
hello friend I think I would put my simple story on the forum if anyone have question about long term recovery or post surgical issue I would be more than happy to share my experience I was fit 39 routine colonoscopy adenocarcinoma find in the low colon I have an anterior resection and a r side ileiostomy bag for about 4 month the bag was then remove and the bowel was reconnecte regard and please post if can offer any suggestion experience or help I would be more than happy to jw,neutral,1
I have c section 5 month ago I arrange for colonoscopy as I see blood after bowel movement when I wipe no hemorrhoid is it safe to have colonoscopy 5 month after c section anyone have the same experience I am go to do it in a clinic next week but I am afraid I have hear that it will be difficult for those who have abdominal surgery please help,negative,0
I just have my first colonoscopy last week I am only 30 with a family history of colon cancer I end up in awful pain right in the middle of the procedure and by awful I mean cry out in pain and send I into body shake I do not remember the rest of the procedure however the next day I have severe low back pain that do not go away with tylenol there was blood in my stool which I have expect was from the removal of a large benign polyp then I end up with a fever of 99 3 I go back to the doctor and he give I some antibotic for a bladder infection although I have have several bladder infection I was not pee frequently nor do I have a burn sensation I am more worried that maybe my colon have been puncture in the procedure almost a week later I still have low back pain and have been on a liquid only diet as per my doctor is this normal help I do not want to be a hypochondriac,negative,0
hi I am certain I have cancer as yet which type but through my own research on internet I believe I have a cancer which is now spread to lung numerous fumble doctor have give I the run around for 3 year I am not fearful but prepare for unfortunate news I have make peace with god and thank myself for lead a very active life in my 50 year here list of symptom 3 year ago spasm in right bowel have continue off and on but not severe constant soft stool for the last 10 month sigmoidoscopy reveal nothing no occult bleed on fob test 4 month ago right side sciatica pain have go but muscle weaken and atrophy never he same again still await mri of sacral 2 month after test erectile dysfunction increase urgency in urinate 3 month ago brachial plexus pain in left before midday and shoulder now before midday have become weak 3 month ago start cough up clear mucus 1 month ago still cough up lot of clear white sticky stinky chemical smell mucus have notice a streak of blood very occasionally breathe more difficult like when I lie flat sometimes I think I am not get breath and feel unsteady on foot forgive I for this one I stink of cancer this horrible musty peppery smell come from everywhere on I include breath not that I have notice this smell on any other cancer patient occasional sweating at night but not profusely appetite not brilliant my weight have fall a few pound in the last month the tragedy here is that my mum was diagnose with non hodgkin lymphoma two year ago aged 85 she is a survivor and in remission I know I will break her heart I feel that I need to write my diagnosis in a brown letter and hand it to a doctor before they diagnose I or before I drop dead before they find out the truth my own diagnosis stage 4 colon cancer with met to lung and spine what do you think of my somewhat crude approach good wish in your own situ tony,positive,2
hi since I get my diagnostic of a colon cancer I have been look closely into what type of food I should eat to increase my chance quality of life there are lot of book out there but some are contradict each other is red wine good or not how muc red meat per week and so on one thing I am curious to hear healthboard member about is green tea I know it is suppose to help fight cancer but what good do it do to our bowel sometimes I read it can create constipation some other it is responsible for diahrrea as far as I go I am try to drink 3 cup per day and so far so good,positive,2
hello all need some info from anyone who have have a colon resection due to a polyp or similar in the ascend colon with ileocecal valve also remove the polyp could not be remove during colonoscopy since it is flat against the colon wall doc do a biopsy and no malignancy was find it was recommend that I have the surgery which can be do via laperoscopy the plan call for reattachment of the colon to the small intestine not worried about the appendix but concern the ileocecal valve may be important to future bowel function also wonder if anyone who have have this surgery could tell I about your recovery time and just what I could expect after the surgery regard bathroom matter and were you tired or have any other bad symptom what are you allow to do and not do I will be very grateful for info on this specific surgery thank you janatee,neutral,1
I am post this in hope to help other that may need the same or simular procedure to begin I am 49 and in good health my dad have colon cancer so I have been have colonoscopy since I was 45 each time I have have polyp find in my ascend colon that have been dificult to remove my most recent colonoscopy have a polyp grow in the scar tissue leave from a previous colonoscopy my doctor refer I to a surgeon and on april 1st have my ascend colon remove the operation go smoothly when I wake in the recovery I was in a lot of pain but they give I some pain medicine and the pain quickly become bareable I was move to my room all I was able to have was that is chip and the iv with my pain medicine under my control by press a button well as long as I do not over press the button I personally do not have to press it too much about once every 15 minute that first day my activite they want I to do was to turn flex my ankle cough and my breathing tool april 2d I was still only able to have that is chip they get I up and have I sit in a chair in my room about a hour later they have I walk around the ward it was difficult to stand as straight as they want I to but I do the good as I could as I walk my belly loosne up some and I was able to stand straighter later that afternoon I walk around the ward again thursday night I have broth and juice and italion that is they take I off the pain pump during thursday night friday morning I have some coffee they give I grit but I am not a grit eater and some pudding I could do not keep the pudding down I was pass gas and have bowl movement lunch was some creamy soup that is cream and jello dinner was more soup popsicle and juice I walk around the ward multiple time on my own about midnight I get sick again saturday morning I have the same breakfast as friday morning I was able to keep it all down I was release saturday afternoon when release I was on a soft diet for the rest of saturday when I get home I would nap ever couple of hour begin sunday I was on a low residue low fiber diet sunday I feel much well than I do saturday and monday much well than sunday my daughter would take I to the mall daily so I could get my walking in doctor say no driving for a week today I am back to eating normally still being cautious and stay away from peanut for the time being my experience was a very good experience I want to post it so other see that it can go smoothly,positive,2
ok this have probably been post a million time but do these symptom sound like what some of you have experience if the symptom continue to get bad I will for sure go to a doctor the reason I do not now is that I have terrible insurance and of course can not afford do procedure just to put my mind at ease so here are my symptom stool are become thin not pencil thin but noticeably thin than normal stool come out in piece sometimes they are flat and very small other time they are normal size but with a long indent make they more flat red blood speck on the stool and on the toilet paper this usually get bad after the 2nd bowel movement of the day make I think the problem is just a hemorrhoid in the anus but this have been go on for about 2 month no itching or burn I have also have a long red strip very mucoussy stool I have bad acid reflux so this may be the reason for that incomplete stool I can tell there is still some stuff leave in there but can not get at it pretty gross stool always have speck of food in it I figure this is from the high fiber diet or the acid reflux medicine could it be from my colon not process the food because of an ailment nausea feel every now and then terrible gas I have always have bad gas but it seem to be get bad could be all the veggie though stomach gurgle really loudly for about 10 minute after eat about myself I am pretty healthy I eat a ton of fiber lot of fruit and vegetable I walk or run everyday I do have really bad acid reflux which run in my family I have been take priolsec the off brand anyway every day for the last few month I am under a fair amount of stress and use to suffer from panic attack but have have that under control for awhile I am only 25 so I can not believe it would be colon cancer but you never know not sure about family history of colon cancer I guess I am just try to get reassurance that I would not be waste money do the combination of these symptom justify go to the doctor should I go straight to a gi or do I have to get a referral from a gp first thank,neutral,1
my wife was diagnose with stage 3c colon cancer after a colonoscopy reveal a tumor three week ago what s unusual is that she have a colonoscopy from the same doctor in 2007 four year ago and her result were clear of any polyp or tumor the tumor she have now was remove and was 3 5 cm with 4 lymph node affect is it possible for a tumor to develop to stage 3c inside of four year from nothing or was the original tumor miss in 2007 jt,neutral,1
I am a 30 yo male and I have have this ache in the low left side of my abdoman for about a week now actually it start a few week back while take an antibiotic then it go away once I stop but out of no where a week ago it come back and bad than last time no other symptom beside just an ache I have have no nausea no bleeding no fever and no vomiting I go to my doctor and he say I have no blockage and I am currently wait for my cat scan result while I am wait I was wonder if any one have have similar symptom as in just the ache but nothing else thank,neutral,1
hi I am ask this question for my neighbor I do not know the answer and do not want to guess she have a colonoscopy schedule for may 11 it was schedule yesterday base on her symptom it was the soon she could get with the doctor she want if she go elsewhere she can get soon she is debate her primary care schedule this and was sketchy on answer to question tell she to relax and just get an answer from the test of course she would like to know if anyone have an idea from their experience her stat 51 year old occasionally constipate not often and when she is it is very medication relate she take about 8 to 12 percocet a week due to a foot injury I am tell you this for grin and giggle her husband run over her foot with their sleep 8 pop up camper last summer yep no one in her immediate family have have colon cancer parent sibling aunt uncle cousin her question about 1 5 month ago she have a week where she frequently feel like she still have to have a bowel movement after have one pretty much daily about 3 4 of the time she actually have to go more and would in about 20 minute in other word most of the time when she have the feeling of need to go more she actually need to go more then it stop for several week and start again last week so with that she go to her doctor and got schedule her main question is if this is a symptom of a problem would it come and go and when they say that feeling like you have to have a bowel movement is a symptom of problem do they mean it is a symptom if you then can not go or when then try to go there are other issue like bleed pain constipation secondly with this being the only issue she is have would you recommend she go to another doctor to get a soon test thank for any thought understand you are not a group of doctor but think you might have have this experience,neutral,1
I will give you some history here three year ago my bowel stop work regulary and only move once a week then it move to twice a week I go to the er and the doc say I just have lazy bowel now here three year later I finally get a family doc and he is send I to specialist since now the bowel only move if I am lucky 2 time a month he give I colyte to take 2 day before the colonoscopy I do that dang thing yesterday and it nearly kill I after the 4lt of drinking crap it take another 2hrs for it to work I nearly have to go to the er the pain was so bad after about 6hrs in the bathroom I was run clear then about 10 last night I was all brown again like I have an additional storage compartment up there and today I was to do it all over again but I could not to the colyate again so the doc say use pico salax after nearly two day and only drink water one bowel of veggie broth and one bowel of chicken broth I am still run dark brown I can not seem to run apple juice color by the way doc suggest 2 day instead of the one because of the bowel being so back up I can not do another day of not eat I have lose so much weight in two day now that I am cold all the time and all I want to do is sleep for lack of energy have anyone else have this issue I can not seem to run clean for the life of I,negative,0
okay so I am try not to freak out but cancer include colon cancer and lot of other cancer run in my family I am 25 and have been have blood bright red in my stool at least once daily for six week now I have have abdominal pain daily nausea fatigue and all that lovely stuff also I go to a doctor after two week of this go on and he think it was ulcerative colitis prescribe prednisone for 12 day which do nothing to stop the original symptom an in fact only add severe incompacitate pain nausea weakness confusion rapid heart beat hyperventilation and so on bad bad thing off it now new symptom slowly disappear old one get bad tomorrow wednesday I work a half day and start the cleanse bright and early thursday morning I get the colonoscopy I am scared it is not colitis or hemerroid or something like that I am get bad and get more afraid I do very physical labor who s move up rapidly in the company I am young I am scared I do not know why I am even post in this forum I do not know what I have but I am pretty scared try not to be but I am a lot I do not know I guess I will know thursday what the deal is but that is over 36 hour away I dunno I am probably stupid for even start here in this place cause it is probably nothing but I do not know scared,negative,0
hello I have convince myself with the help ofthe internet that I have colon cancer spread to the lung in october last year or early I expereince change in bowel habit not diareah but loose stool once a day I usually have constiaption all my life with gastritis for many year there s no blood a little mucous some stool on some day appear lumpy and break as oppose to the mush stool I have now fibergel do help to solidify the stool I have now develop the need to cough up mucous and pain in my left before midday and shoulder go back to the spine in neck I have not lose weight eat okay but thing are not right and I have convince myself that the cancer have spread to the lung at xmas I suffer leave leg sciatica await result of mri the pain have get well since then my doctor have book an appointment to see gastroenrologist within two week which is rapid speed is it rare for someone to have lung symptom even before the colon cancer have been diagnose I have link all the symptom and have come to this coclusion or could it not be the colon at all I am male 50 year old any comment please apreaciate mant thank tony,neutral,1
I think I would start my own thread instead of jump in on someone else thread I have my first surveillance colonoscopy 2 1 2 year ago there were 5 polyp all under 1 cm four were hyperplastic and one was a precancerous tubular adenoma the doctor at the time tell I to wait 5 year for a follow up colonoscopy I recently have a parathyroidectomy there is literature that link previous parathyroid disease with the increase in risk for certain cancer colon cancer being one of they so I switch doctor and just have a follow up colonoscopy I am not suppose to hear from the office about the biopsy until next week there were 3 polyp find one in transverse colon one in sigmoid and one in rectum they were all about 5 mm I speak with my gp and she say she already have the result one hyperplastic and one tubular adenoma I wonder about the third when the doctor who do the colonoscopy or his nurse call in a couple day I will ask about the one not mention in the report what timeframe should I be look at for a next check I believe this doctor say if everything is ok I should wait 3 year thank for your help hoppy,neutral,1
if anyone can give I a measure of hope believe I it is welcome I have a colonscopy 2 1 2 year ago doctor find precancerous polyp tell I to get check in 2 year well I am at 2 1 2 year now worried it may have get bad and have schedule anothe colonscopy for this monday morning how often do a precancerous polyp turn to cancer he tell I he remove it but I am very worried now that I recently learn they can come back as cancer,negative,0
today 2 18 2011 is my last day to take xeloda I recently have surgery for colon cancer and am on an ileostomy bag I will be have my reversal in april 2011 do anyone suggest what vitamin to take now that I am do with my preventative chemo,neutral,1
I am 16 male with really no family history with cancer I recently notice thee small bump below anal opening they do not bleed or itch I was really scared that it might be cancer my mom get desitin and it seem like one is go down I have also have lump under my arm I have been to the doctor at least three time in the past six month the last time the doctor seem annoyed and get a blood test do and she say it come back clear I tell she that I was afraid I have cancer but she insist otherwise so now like two week ago I notice these three lump maybe the size of a per annum they do not hurt last week I notice a small streak of blood on the stool and today there was a small streak but the stool look fine but when I notice the blood the first time it was a hard stool and today again it was a hard stool I am so scared I might have colon cancer or anything and I really do not want to have cancer please I am desperate for help I do not really want to see my doctor again because I am afraid she might not take I seriously but then again I am a big hypochondriac and I do not want any surgery do,negative,0
I would like to know also why some people automatically thing that bowel problem are relate to constipation loose stool but could actually be link to the stomach I have have gastritis and stomach problem for some year some people can experience gas bloat constipation diareah because the stomach is fail to digest food liver and pancrease dysfunction can add to problem,neutral,1
two year ago I was diagnose with rectal cancer have a colostomy put in go through chemo radiation have my rectum remove ileostomy put in have a reversal a year ago about six month ago have more intestine remove because of radiation damage and keep have blockage since then I have been try to find a way of eat so I could lessen my bowel issue accident and pain I have try low residue high fiber vegetarian so on and so on all work for a short time but then my bowel would rebel so today I am start an elimination and reintroduce diet to truely find what I can safely eat I am eat only white rice which I know is safe for a couple day till everything clear I then want to reintroduce food one by one I have research ibs and allergy reintroduce diet but since they are for a totally different issue do not find they helpful so here is my question have anyone else need to do this and if so how do you reintroduce food in what order how long between add more food and so on I would love some input even if is to direct I to another site with the right info thank,neutral,1
I have a colonoscopy and they find a small polyp they do not seem concerned with this they remove it during the procedure and they send it to be test do anyone have any info for I on this I was so scared when she tell I thank,negative,0
I am try to solve a leakage issue with my ileostomy the coloplast with the rigid flange or wafer product is not work the hospital use an old less expensive coloplast flange use a 3 m no sting barrier film it is a one square inch sponge and you rub the skin around the stoma with this be careful not to touch the stoma it will burn it create a thin barrier and it allow the flange to stick for 3 day the new coloplast flange because they are design with different chemical do not work with this skin barrier I try it and the adhesive on the flange do not work at all 2 hour later I was back at the beginning the coloplast product remind I of microsoft software version 1 0 have these feaure version 2 0 now require different upgrade and the exist application no long work do anyone have any experience with 3 m no sting barrier film or hollister equivalent product call all kare these are design toprovide a barrier film layer on skin under tape skin barrier adhesive and hydrocolloid dressing to help protect against irritation excoriation and adhesive build up thank,neutral,1
there is a long history to this maybe unrelated but I will throw it in anyway around 03 I have abdominal pain that start in the low left abdomen in the area of the colon and it spread over a few week to the low right side steady painful burning and cramp the cramping and pain also happen occasionally in the upper left and right side of the abdoman pretty much where the colon make bend and randomly anywhere else along it is path as it see fit so this go on for week with a half dozen dr visit and even a ct scan during this time my bms go from normal to hard pellet or even combination of pellet lump and light and dark stool they say ibs so for year I have deal with constipation and off and on pain which mostly just settle in the low right side with occasional crampiness elsewhere I was finally diagnose with a small hernia in the low right inguinal area and have it repair which was a large relief the hernia have been press on inguinal canal nerve and cause pain up and down the right leg abdoman and groin that was really freak I out the good news was that due to the operation relieve pain the hernia was likely cause by strain thank to constipation and the associated stress contribute to ibs more careful diet planning cause the constipation to virtually vanish life was good for 6 month or so now my colon have head the other way I have to go to the bathroom 3 4 time a morning and produce somewhat loose oval pale stool no visible blood the last one is usually no more than 3 8 diameter big pencil I have constant crampiness some gas and a general not so good feeling during the day ibs sufferer are more likely to get cc than normal folk and I know a colonoscopy is the good thing to get but what I want to know is if anyone experience similar I would hate to go in for yet more test I feel like a hypochondriac already anyone think it could be a liver gallbladder or other issue just interested in other experience and what the result were thank,negative,0
I was wonder the approximate length and width of stool from someone with colon cancer or severe polyp also do it alternate between thin and normal or was it always thin,neutral,1
ok I know nobody on here can diagnose but I need some advice since the new year I have have weird bms never a full thick candy bar like I use to have the thick one I have have is a snake like stool about a nickel in diameter alot of my stool is flattish and taper for a month I have have acid reflux type symptom when work out then about three week ago I develop a persistant base nausea it do not stop I from eat but I have it nonetheless this was accompany by gas bloating and stomach cramp these symptom go away completely and were then replace by a loss of appetite that last for two week follow by a 10 pound weight loss I still eat during this time although very little during these two week I see 10 doc and have a cbc white blood cell count pancreatic test liver function test amilayse enzyme test inflammation blood test muscle waste enzyme test fecal occult stool test urinalysis thyroid diabete test and a chest x ray during the two week with the 10 pound weight loss I develop very mild night sweat as well a week later my appetite have return and I have gain 6 pound back all of my test come back negative and none of the doc 9 were er doc one was my pcp think cancer is even a concern at this point the muscle in my body seem to be small and I feel weak and just unwell in general my doc is say it is anxiety I have a history of health anxiety and I do not know how to get he to take I seriously I feel like something is not right in my body and I am so afraid that I have cancer he will not give I any invasive test because with my age 24 but I hear that do not really matter not have a family history and a history of hypochondria and he do not feel it is cancer and instead keep talk to I about depression I am so scared someone help I figure this out give I some advice,neutral,1
hi can anyone explain the mechanic of why someone with a bowel problem such as colon cancer cause constipation or diraeah is it this cycle that cause alarm constipation diareah constipation from my own reasoning I am think that if the bowel is block you would not rtn to normal bowel movement unless consition was treat though my symptom seem to be constant could bowel cancer cause the constipation diareah constipation cycle without a blockage of the bowel in any part for example I have read that right side tumor do not cause change in bowel habit my story as long as I can recall I have never have consistant bowel movement possibly go back 20 year or so in recent year I have experience an occasional stabbing pian in appendice area just for a few second sometimes it clear up for a few month if I press on the area sometimes I feel tenderness but it is not always there 6 month I develop soft stool for about 4 month only one bowel movement each day but the stool is unformed but not as loose as diareah oaccasional urgency I have have blood test and to check for blood and also an ultrasound scan but nothing see the stool in recent week have return to their normal abnormal way that is sometimes very normal some float some like pellet some very soft and some that float and stink like egg I was wander if this is anything to do with lack of water absorption I have a slip disc l5 in recent year and that is being invesigate ref to sciatica otherwise generally fit eat well and so on weight good age 50 male any idea my doctor have simply label it as gripe pain any thought many thank,neutral,1
hi just have my colonoscopy test yesterday have to prep with movi prep you have to drink one liter four eight ounce glass at 5 prime minister then another liter at 9 prime minister was very nervous before take this read review on other board that this stuff was awful well if I can drink this anybody can it taste like you are drink salty lemon I take I about five to ten minute to drink each glass during the first liter I also take fifteen minute break between each glass which you are suppose to do then at 9 prime minister start the second liter half way through the third glass I get sick stop drink it since it look like I was all clean out just want to give my opinion that this stuff is not as bad as people say it is not pleasant but it is not so bad that you can t drink it the test is not bad at all you are sedate and kind of out of it hope this help people have to take movi prep,neutral,1
thank for read my post I have a colonoscopy schedule on monday and I am freak myself out about my doctor choice of sedation propofol what I have read on the internet about propofol is that it is a very powerful anesthetic that will put you into a coma like state by supresse your entire nervous system it is so powerful infact that you need an anesthesiologist to watch and monitor you during the entire procedure my doctor obviously want I to use it because it will knock I out completely so he can work well it seem that my option are limit they also offer verse and demerol which are 2 drug that I have not read anything good about either I have speak to some people that do not use any drug and the experience was not good either I am at the point of want to cancel the whole procedure,negative,0
hi hope someone out there can help I we find out this month the my husband brother was diagnose with colon cancer it come as a shock as he is only 36 year old and very healthy and athletic upon this news I urge my 39 year old husband to get a colonoscopy the doctor detect and remove a polyp after the biopsy it turn out to be adenocarcinoma cancerous their mother die of uterine cancer when she was in her forty the doctor say that they are a hnpcc family heriditary non polyposus colon cancer or lynch syndrome which make they more genetically more prone to cancer of the uterine and colon although the gi doctor who perform the colonscopy believe that he have completely remove the cancer from my husband he is send we to a surgeon for possible segmental or maybe even total resection of the colon as a prophylactic measure as there is a high chance of the cancer recur what is the quality of life after either segmental or total colon removal should we opt to monitor go for partial reseection of the colon or have the entire colon remove I was wonder if anyone have been through a similar situation and can share some of your experience with we thank,negative,0
for about a week now on and off I have notice red spot on my stool I do not think much of it until I have corn for diner and the corn come out reddish yellow after that I start to really watch my stool I been very regual as 1 3 time a day stool have been small then normal and a bit dark and this morning it was pencil thin with a flat side colour was light brown with a few red spot sometimes it look as if there is a reddish brown mucus on the stool but if I dab it with tp it look brown I do not have any stomach pain but I am stress right out about this I am 28 and I am a hypercondract I do not drink but I do smoke any help would be great,negative,0
hi I know the answer I will get here will probably not be one I like I know you guy are not doctor but I need some advice I post my story elsewhere but I will reiterate I go to a christmas party and have too much fun I eat a plate of ham after being a veggie for a year I get sick and constipate since then I have been have thin than normal stool sometimes it is a snake bit big than a hot dog and sometimes rarely it is ribbon pencil thin two week ago I develop persistent nausea after do an ab workout I have been work out intensly for awhile but have recently stop I go to the walk in doc who give I an xray tell I I was constipate with a large mass of stool in my colon give I miralax and send I on my way the nausea subside and I after read about colon cancer lose my appetite I go to the doc agai last night as I have lose 8 pound in two week and he assure I nothing was wrong and send I home with a clean bill of health he say the weight loss was due to not eat much and still walk 2 mile a day and muscle replace fat which metabolze calorie fast due to my workout anyways I was satisfied somewhat he tell I my lack of appetite was psychosomatic yes i d say 70 percent is not totally though and tp d I to go eat and do not draw blood or anything also check to see if I was anemic negative and lymph node no swelling now start yesterday I have these white particle in my urine and bubble thing is the bubble seem to be when I stand and pee and disappate after awhile the clear particle last though so I google it and it seem mostly benign no cause or uti infection and so on one chick say she have bladder cancer though so now well now I am terrfie this have been go on for a week and I feel like because I am 24 and a hypo the doc I have see are sort of dismissive it may all be in my head and I am sure I am imagine scenario that will hopefully never play out if they do I will be charge 50 dollar a psychic reading haha but I mean my brain is think colon cancer bladder cancer oh yeh plus I have chill but I dunno if that s the cold winter here in mass or not I need some advice thank adam,neutral,1
I realize that post on here is probably a big no no and I should turn around and just walk out the internet door haha the thing is I have drive my girlfriend my mother my brother my friend hell even my cat all mad because I can not stop ask my hypochondriacal question I laugh but I trully am go crazy and I do not know what anyone here will really be able to tell I anyways the symptom of colon cancer are vague am I right ok so I was a vegeatarian for 2 year and I go to this christmas party a couple of month ago and I get really drunk and stupid and go to town on this plate of ham needless to say I start experience bowel trouble after constipation mainly that is also been a shy pooper so bad that I have always make my family go to town so I could use the bathroom ridiculous I know so around this time I start a new job and the bathroom at my new job suck and is very public so I pretty much only have a two hour window to use the bathroom in the morning after my gf leave for work because of the poop pressure I start drink coffee heavily to help get this stuff out because I was obsess with have an empty bowel before go to work anyways I eventually get somewhat regular and life was good a week ago I develop nausea the nausea have been mild bad when move from a sitting to stand position and vice versa it is been bad enough that I keep complain about it but that is still been hungry and everything anyways couple of day ago I lose my appetite I mean do not get my wrong alot of it is due to the fact that I feel more nauseaus when I eat but also a part of it is due to really high level of anxiety I take some pepto two night ago eat anyways and freak out the next day when I have black stool I check online and black stool mean colon cancer so that was in my head I rush to the walk in clinic they tell I pepto can also cause black stool but now the colon cancer idea is there and like any anxious person know it would not leave so at the doctor I am experience all the symptom choke fatigue and so on he do an x ray and find I have a large amount of fece back up in my colon he prescribe miralax and give I the name of a gi if it do not clear up he say this might explain the occassional pencil stool the nausea gas bloating and so on when I ask he about colon cancer he say he would not jump the gun but he also would not discount it seem like a reasonable man I poope this morning and it was black again I am hungry but I feel like I can not eat I am very anxious about all of this I do not want to have to have a colonoscopy because it sound so painful will someone give I some comforting word thank oh by the way 24 yr old no family history of cancer if that help also my lack of appetite come and go last night I eat today it is hard,negative,0
could anyone help I my husband is 42 year old he already got treat year ago for genital wart around the anus the doctor burn the wart to remove they he tell I that it is a couple of year he feel a lump in his rectum and when he go to the bathroom there is sometimes blood on the toilet paper once in a while he feel a burn sensation in his back and twice in the last month he tell I is throat feel weird on the right side I try to get he to go see the doctor but he think he is fine do anyone else have these synptome thank you,neutral,1
my friend was diagnosis last spring with stage iv colon cancer which have metatastatic to the liver she have been on chemo now since june she handle the the treatment and never slow down she have take a month off and back to treatment 2 week ago she have suddenly start have severe dizzy spell weakness swell pain in the liver unable to walk alone and ravonouse hunger yet she is still loose weight I would love a little input either to put my mind at ease or to help I to know what to expect if this is a sign of get bad thank,negative,0
hi I just have a colonosopy on thursday morning the doctor remove one colon polyp and it have been send in for test the 1st day I feel fine however yesterday and today I am feel extremely tired and weak I have a bit of adominal pain but nothing to bad mostly soreness I want to see if anyone else have experience this type of fatigue and weakness after a colonoscopy this is my 1st one do I have it do because I have some rectal bleeding for the last few month thank,negative,0
hello all my ct scan find a lesion see directly on a loop of the sigmoid colon that appear to be solid it say that it is posterolaterally on the right and is presumabley the retweet ovary with two cyst and free standing fluid my dr order the scan due to weight loss diarrhea and anal pain but I do have severe endo so I always have pain my primary dr still have not call I with the result I just go to the hosiptal and pick they up myself since I was there anyway for something else when I call my dr office I am tell they will call I once my dr have read the result the only thing the result read are what the film show no diagnosis or recommendation it do say an ultrasound will help clarify diagnosis I can not find anything on here about lesion on the sigmoid colon have anyone have lesion on the posterolaterally and what was it or what do you do thank for any help,neutral,1
I was wonder is sudden weight loss 3 4 pound a week indicative of stage 4 colon cancer is it possible to have sudden weight loss in the early stage,neutral,1
after many year of incontinence and recurrent diarrhea for year and after several sphinteroplasty repair that have fail my doctor have discuss with I option include a permanent colostomy I was wonder if there are people who have have a permanent or even temporary colostomy and continue to remain employ if so what type of job my profession require I to be able to lift fifty pound and I wonder if lifting will interfere with the colostomy bag as in the abdominal pressure cause it to pop off,neutral,1
I am a 57 year old male in over all good health I discover a round dime sized lump in my low rectum several day ago I have have a history of hemeroid in the past but have not have any problem in the past couple of year this lump seem different it is large almost round in shape and seem to have a soft texture not a hard lump and seem to be under the skin right at inside the entry of the rectum it is somewhat uncomfortable when I deficate but there do not seem to be bleed associate with it like hemeroid in the past I use preparation h initially think it was a large hemeroid after several day the lump have not change in size and the preparation h seem to do nothing other than make it less painful to deficate no reduction in size or pain level again the hemeroid I have have in the past were much small and more painful with blede associate and that is why I am concerned that this might be something to be more concerned about wonder if I should see a doctor right away or should I wait a few more day to see if the lump decrease in size or seem to be go away,negative,0
hello I am sorry to write such a long wind question but I am quite worried because I think I have lose all faith in doctor amidst all the medical and health advice we have read and been tell over the year and and I am concerned about the mixed diagnosiss which I am receive about three month ago I suddenly begin suffer severe low back pain this pain was situate right at the base of my spine in the pelvic area and would radiate across my hip for a period of about four day I could hardly walk at all and in one instance I actually collapse onto my kitchen floor my leg literally give way as I am only 39 and quite fit being a keen hill walker and previously until recently attend martial art class this actually seem quite serious and I call out the doctor for the first time in my adult life I am use to suffer ache and pain back and neck ache bout of mild siatica and so on due to bad posture and joint pain due to being double jointed hypermobility syndrome I am tell and I usually just get on with it not even take over the counter med so when the doctor come in and diagnose typical back ache without even physically touch I I was pretty shocked when I get to see a g p at my surgery I was tell it was siatica I make another appointment and was then tell it was mechanical wear and tear somewhere in my low back but not identifiable as to whether it was is cartilage bone or disc I was not refer for a definite answer but thankfully the pain have slowly go and my back is get back to normal the treatment involve codeine phosphate 15 mg 8 per day naproxen anti inflamortory 250 mg 3 per day and lansoprazole gastro resistant 15 mg one per day the strange thing is that I am convinced that the lansoprazole have an effect on the haemeroid spelling problem I have have four about 8 year I have not have solid stool for nearly 8 year almost upon immedietely begin this medication my stool go back to normal and my half a decade daily bleeding stop then suddenly shortly after this medication stop I find a lump to the rear of and above my anus this small lump was clearly internal and not skin relate despite the literature and advice on what to do when find lump I still feel bad for some reason about go to the doctor I always feel like I am waste their time or being hyperbolic the doctor examine the lump and say it was an absess probably cause by an infected hair folicle spelling that was about two week ago I was give anti biotic a rare treat for I but the lump have now grow and today I return to see a doctor a different doctor who tell I that it is likely to be a thrombosed pile well a thrombose pile is certainly different from an absess but although I understand that doctor are human and it is not always possible to accurately identify anything in any line of work involve examination investigation from personal experience I am very worried for a year the same surgery tell my uncle he was suffer from chronic indigestion then he die of liver cancer now I have read up about thrombosed perianal haematoma on the internet this afternoon and it do seem to fall in line with the lump I have apart from one thing I have no pain with it I would like to know whether internal thrombose pile can be painless or whether this may be lead down a path of discovery which I do not want to go down after many year I finally have a referral to a specialist about my haemorroid but not until late march is it safe for I to wait that long,negative,0
my open right hemicolectomy in jan 2010 necessitate by goblet cell appendix 8 cm and full leak into the bowel cancer reveal 3 of 10 lymph node involve pathologically in the biopsy margin were clean stage 3b was diagnose the colon was divide at the distal ileum just before the ileceol valve and an ileceol anastomosis was need a followup colonoscopy in jan 2011 reveal and remove a 3 mm ileo anastomosis benign tubular adenoma is this a common occurence and would it have anything to do with the contaminated lymph node which were remove just wonder if I am generally look forward to more of this kind of action as I never have a previous polyp age 59 just gcc the surgeon have recommend another colonoscopy 1 year hence but I have no local gastroenterologist to consult with I am anxious but no carcinoid was biopsie currently,negative,0
hi all I have been read these board for about a month and finally decide to introduce myself I am 28 diagnose with colon can just one month ago when they find a 12 mm flat polyp during a early colonoscopy screening colon can run very heavily on one of my parent side so I got screen just 10 yrs before my parent was diagnose 28 is too young for cancer but there it is everything after that was a whirlwind I was test for lynch syndrome which was positive I meet with my gi dr and surgeon and we schedule a pretty aggressive surgery to lower the risk of colon cancer come back we decide to remove the ascending transverse and descend colon I would only have my sigmoid leave about 1 feetbefore I have agree and accept this I was in total shock I was too young this was not happen why I I have no symptom but I quickly come to put a positive spin on all of it we have catch it early and that was very good my first surgery was laparoscopic I heal pretty quickly but I hate those awful gas bubble that rise to your shoulder from all the gas they pump into your body to do the laparscopic I heal unsteadily but was discharge in about a week I spend 1 day at home before I feel like something was wrong and go back to the dr where he take a blood test and find out my white blood cell count was through the roof I was re admit do a ct scan and find out there was a leak sepsis oh no back in to emergency surgery I go that night and they do a traditional surgery extend my incision from 2 in to 5 in which is a lot for I I am tiny I awake in the icu that night in total pain and stay there for 2 day before move up to the regular surg med floor because I was at high risk for infection from the sepsis they put I on a bunch of antibiotic as well I actually want to stay in the icu because they take such good care of you and it is one nurse to one patient I do not want my nurse to leave at the end of her shift recovery for the 2nd surgery was 10 day and it go a lot slow but I feel it was more thorough of course they could have been handle I with kiddie glove since the first surg go wrong but whatever have both type of surgery I actually prefer the traditional one I feel the recovery although long was well for some reason my dr say my diagnosis was between stage maybe someone could help clarify I have some cancerous cell on the polyp itself and after the surgery they test my colon and find only a few cancerous cell on the layer below but that is it and it have not penetrate the wall and there was nothing find in the lymph node is this a stage 1 or 2 I am now recover at home but it is a slow mess and I feel so down in the dump some day my dr recently take I off a monster dose of ibuprofen because it was give I unwanted side effect and prescribe I tylenol yes regular ol tylenol to go along with my percocet yes the tylenol do nothing and the percocet is the only thing that take the edge off he say to stay on the perc until I see he again next week it is been one week since I was discharge and am wonder how long it will be until the pain subside I am tiny and I am not put the weight back that I lose I am under 100lbs now I feel weak and boy when that percocet wear off it is not a pretty picture I feel like someone use my gut as a punch bag I just want to know if anyone out there can tell I when it is go to get well am I just impatient what work for you I use a hotpad on my belly sometimes and that help what can I take with my percocet so I do not have to rely on it all the time I am sorry for the vent but maybe it is good therapy because I feel a little well anyone and everyone please feel free to respond and even if you just take the time to read my long post thank,neutral,1
my father was diagnose with colon cancer stage iv back in march 2010 he have 4 major surgery to remove huge tumor almost all of his intestine was remove and now he have a ileostomy sp he do not have chemo and the doctor tell we there is nothing to do and he is die since his diagnosis my father lose a lot of weight I have never see anything like that before not even on tv or wwii movie he is very weak and need help to walk just a few step when he have to go out he is in a weelchair he have trouble to eat feel nauseous all the time but his big problem is sleep he just can not sleep at night that mean my mom do not sleep too and she is go crazy like literally crazy and I am worried she will die before he she is very stress last night he was awake the whole time call she and ask to change his diaper they were clean and so on she is a wreck and my father is even weak than before so my question is can he get strong sleeping pill to help he at night his doctor give he rohypnol but it is not work at all what should I ask the doctor any other suggestion for he to sleep at night he do sleep during the day but very little so I do not think this is cause his lack of sleep at night thank postscript sorry for any spelling error english is not my 1st language,neutral,1
hi all I have my 2nd colonoscopy in 2 5 year 2 week ago and all result come back normal colon look normal biopsy come back normal test for microscopic colitis no hemmhorid no polyp no chron my previous colonoscopy was normal except for small internal hemmhorid the doctor find and he shrug my symptom off as ibs for almost 3 year I have been experience intermittant diarrhea dark stool bright red blood in my stool orange stool skinny stool you name it I sometimes cramp in my low abdoman but it is not persistant I have always have incredibly intense menstrual cramp but they are control with oral contraceptive and these cramp are different my most recent episode that cause I to seek another colonoscopy was passage of a lot of bright red blood lot of green diarrhea noticable weightloss some loss of appetite and fatigue my urge to go to the bathroom are very sudden and I will go to the bathroom 3 4 time a day my pcp do bloodwork testing for lupu who nother thing and all that come back normal when I go to the gi for my consultation I have a fever of 101 1 and my pulse rate was through the roof 104 I was nervous after I tell the doc my symptom he order an immediate colonoscopy for the next day oh and just to lay it out there this is not the first time I have see blood in the toilet it is not a fluke it is not hemhorroid I have experience sudden and severe pain in my low right abdoman at time but I have never been diagnose with appendicitis and doctor seem to shrug it off once it wake I from my sleep and I almost go to the er but it subside and I was able to go back to sleep otherwise I am generally healthy young and active 25 year old female 55 110 unintentionally lose 5 7 pound recently no child fairly good diet and fairly regular exercise routine I work a 9 5 job live with my boyfriend and try to keep my stress level down although I do suffer from anxiety sometimes I do drink more than I should sometimes 2 glass of wine a night and sometimes binge on the weekend during football game party and so on but I do not smoke cigarette marijuana only my father have chron disease that is easily manageable for he and my paternal grandfather have diverticuliti neither of these disease have been find in I I have have problem with anemia in the past and last year my b12 was so low the doctor say they would never see anything like it recent test have not show that these problem still exist though 2 different doctor after 2 different colonoscopy and several test have find nothing wrong with my colon why in the world do I continue to have these symptom blood diarrhea mucous and so on and how should I approach this with my doctor after two normal colonoscopy it scare I and I am afraid maybe the doctor are miss something what other disease or abnormality besides hemrrhoid could cause this of course I am afraid of cancer but as of yet no cancer have been find should I be worry about my small intestine instead of my colon help,negative,0
hi everyone just wonder about a few thing my husband have a colonoscopy do last fri the information that he was tell by the nurse was that the dr find 2 or 3 polyp and they would be biopsie she also hand he a paper that have drug and diet restrition on it it also say for he to call for an appointment in 4 to 6 week could someone tell we how long it take for the biopsy result to come back if he do not see the dr for that long do it mean the dr is not worried about the biopsy result he try phone the dr office this morning and all he get was the answer machine many thank nancy,neutral,1
my father age 62 recently find t3n1mx colon carcinoma what is his survival rate in year I m scared,negative,0
hello everyone my sister was diagnose with colon cancer about 3 month ago my mom pass away from colon cancer 15 year ago now the doctor want I to go for a colonoscopy I am terrify but my sister tell I there is nothing to it the bad part is the night before which is go to start tomorrow thank you mena,negative,0
I think I might have colon cancer before go to a doctor I want to have a well idea of how likely it is that I do so it do not come as a shock when I get there I am fifteen year old I do not have my period yet when I go to the bathroom no blood come out into the toilet but when I wipe there is some bright red blood and there are patch of dry blood over my underwear it start a couple month ago then go away now it is back and I am really scared what are the chance that I have colon cancer or some other disease,negative,0
for the past week or so I have notice my bowl have been a bit small than usual once or twice I have feel like I do not completely empty myself I read the symptom on google they sound kinda similar but then kinda not I do not have any stomach pain or bloat and I have never see any blood my bowel seem kinda dark but then not really I guess I should mention I do not have the good eating habit I stay up really late at night and sleep really late the next day I only eat 2 meal a day I also eat alot of spicy food like hot sauce that I know cause pain and stomach acid because I usually feel it the next day maybe I am just being paranoid thank for any thought though I m 26 year old by the way,neutral,1
hi all my mom who is 64 was diagnose on the 14th with stage iv colon cancer with liver and adrenal gland met her doctor feel we she should try chemo she was release from the hospital the next day last week she have the chest cath insert for chemo since her release from the hospital she have get weak by the day she can not get up on ger own and is so tired and weak I do not see how she can get through chemotherapy she see her oncologist on friday and although he see how weak she is and label her frail he still schedule she to begin chemo this week will the doctor tell you if chemo should not be give due to how weak you are I do not see how they think she should do this and I am afraid it will kill she please give I your thought,negative,0
I just have a colonoscopy do on friday he tell I without even biopsy result I have colon cancer of the rectum the tumor size was 13 cm he could not pass all away through with the scope and tell I to see a oncologist and a surgeon he send my biopsy to a lab which I will have monday I ask he how long do I have 2 3 year why I ask that I have no idea yes 2 3 year he scare the hell out of I I have been bleed for week now little bowel movement some burn sensation in my low abdomen pain in rectum was bad for week but now have subside almost completely I am scared if I have stage 4 because of the size of tumor I am go to sloan kettering tomorrow without any health insurance hope they will not turn I away do tumor size dictate the stage of the cancer I still have alot of bleeding and tyelonal is not work like it use to also can this pain in the low ab be gas also pain in the low back thank you,negative,0
hi and thank for read I am a male 30 year old and my mother have cancer somewhere around the bowel she also have ib and have some of her bowel remove I have have a flair up after I eat a lot of peanut popcorn and seed pain and not able to have bowel movement year ago since then I have not have any problem other than heart burn pretty often recently I eat some nut and popcorn and a few day later was not able to have bowel movement and start have major pain in my middle stomach it was when I move cough or press on my upper stomach I also have a temp of 100 7 and chill I go to the er and they do a cat scan the result were colitis and see a 2 5 cm lesion on my colon they give I medicine and in a few day now my stomach is a bit well with little to no pain yet I do have pain in my back I assume this is bowel try to get out my concern is the lesion of course I guess this will not heal on it is own and I need surgery to take it away I am nervous it is cancer and do not have insurance to get a colonospy sp I am overweight not active and smoke all the bad sign I have look online and I have all of the symptom of colon cancer include weight loss I notice today that I have lose 13 pound in nearly 3 week I doubt this is normal or is it if I have an infection I have not really cut down that much on my food intake do do anyone have colon cancer that is read this if so please accept my sympathy what were your symptom and what are your thought it is my first time here so I will bookmark this and check back for reply can not get sleep too worried,neutral,1
hi all my mom have colon cancer that spread to her ovary and liver they remove the colon and ovary cancer but they say now that chemo will have no effect as it have spread to far now what can we as a family expect she is only 52 year old I am the eld child so everything fall on I I am so scared,negative,0
hi all just get out of hospital after have a combo colonoscopy endoscopy because of long term health issue I have stage 3 colon ca into 6 node in jan 1998 and my doc now believe I am suffer lomg term effect of chemo they put I into hospital for the prep yuk seven litre of the lavarge prep they make I drink it was all worth it I was clear top and bottom so I am 13 yrs can free with good odd to 16 yr my good wish to all those undergo treatment ron,positive,2
have a followup scope both scope before were clean I have ulcerative procticis so they want to keep an eye on I plus when I was 25 I have a precancerous polyp so the prefer to do regular scope on I was just curious as to how quickly or slowly cancer can form,neutral,1
just wonder how long do it take to get the test result after have colonoscopy and endoscopy I know that they take biopsy from stomach and remove two polyp on the 23rd and still have not hear from they I even call and leave a message for the doctor too here is my experience in preppe for the test I use the moviprep solution iif I can do it then anyone can trust I I wake up early on prep morning and eat 1 scrambled egg keep in mind that I have eat lite two day prior to the prep day no meat basically I make sure that I have plenty to drink coke water tea gatorade ect about 11 am I fix I a cup of broth make with a large chicken boullion cube oh my god it was yummy then around 3 have another cup I swear it taste well that time laugh out loud I add a lot of seasoned pepper to it for flavor so around 5 30 I start drink the moviprep solution that I have make up the day prior and put in fridge to chill trust I do this it make it not so bad I drink the yucky stuff with a straw really fast while hold my nose after I down it I chase it with a sip of gatorade and a cig I know not good but I was just try to kill the taste so after the 3rd glass I have to go potty again it was not that bad and you will do just fine you will have 15 minute to drink each 8 ounce glass within the span of one hour then you rest for an hour an a half and repeat the only thing that really bug I was when I lay down to go to sleep my stomach was rumble so loud and so bad oh and this is not a good time to trust a fart so I get up a few time to go to the bathroom to be sure it was not something more I sleep about 5 hour before the test by the time I get in there I was just ready for a nice nap test was great do not feel or remember a thing,positive,2
hi any information will be welcome I have colon resection for stage ii cancer tumor two year ago the first year after surgery my cea level were about 3 0 over the past 4 month they have go up to 4 and my late result were 4 3 while this is in the normal range I am a moderate smoker I am concern that they are go up I am schedule for a cat scan will cea level go up and down in the normal range by this much I do not seem to have any inflamation or other reason that would normally cause an increase I just do not know how stable cea level are in the normal range if there is no recurrence of the original cancer thank for any information you can share,neutral,1
my husband was diagnose with rectal cancer jan 2009 and have a colostomy bag and have been cancer free since last may 2010 his cea blood test was 3 5 now in july it is 10 5 and yesterday it is at 10 7 tomorrow he is get a pet scan and we will get the result this come monday the doctor inform we they are look for cancer he is not do well with any of this information my question is is something seriously wrong,negative,0
hi all I am a 44 year old female and I just get my result back from a recent colonoscopy 2 polyp the result are as follow a polyp leave transverse 0 3 cm early hyperplastic polyp b polyp mid transverse consist of 4 piece of tissue 0 3 0 3 0 4 0 6 cm sessile serrate adenoma the surgeon do not really say much other than one of the polyp suggest pre cancer and that I need to get another colonoscopy do in 3 year anyone out there familiar with the terminology that can help decipher what my result mean many thank,neutral,1
my mom was have problem and go for a colonoscopy they find a large tumor and immediately admit she she have surgery call an extended right colectomy or hemicolectomy they remove 2 3 of her colon and the tumor within we do not have the pathology report back yet but the surgeon suspect it is a stage iiic he say the recommend treatment chemo would depend on the lymph node outcome if 3 or less are bad versus 4 or more I am really just look for information from someone that have go through this with themselves or a love one anyone have any insight as to what we are look at I have read way too much information on the internet and would like some real experience she have been a breast cancer survivior a little over 5 year but we only deal with radiation at that time thank,neutral,1
for the past month I have notice a lot of black speck in my stool the speck are there every day otherwise everything look normal and I have no pain and so on do anyone know if it is dry blood,neutral,1
hi everyone just wonder if anyone else can relate to what s go on with I I am 23 and 2 month ago start have some bowl issue it start in july with bleed I am not talk about a little blood either I just got marry a few week before so decide to wait thing out I start have stool that were different size and shape and then once in august the blood come back it was alot of blood here it is september and although I have not have blood in the last few week my stool are the size of my baby figure and in lot of peice I have a regular one once in a while but mostly skinny as of late yesterday I go to my doctor and tell she everything that pan out she is schedule for I to have a colonoscopy in the next few week although she say it probably is not cancer because of my age she do not indicate what she think it is I may add that I have grandparent on both side who have have colon cancer and also my dad battle it 6 year ago do this sound like similar experience please write back I am a little nervous about everything princess belle,negative,0
I just have a colonoscopy this morning and my doctor say he remove two small benign polyp but that everything else look fine how do he know by look at they that they are benign he do not mention anything about a biopsy on my discharge paper it say I need another colonoscopy in 2 year should I be worried please help thank,neutral,1
I have fobt test do last week it is all positive is that mean I have cancer I have colonscopy two year ago it come out all clear doc say I do not need scopy in 7 year I am very confused,neutral,1
I h avenuecolon cancer iii my occologist want to do folfox regiement is there another way,neutral,1
hi I am go with my sister to her next appt and need to know if my question are valid question or not she is a 28 year old who always work out take care of herself then over the course of 3 day have such bad stomach pain and vomit that when she go to the er they hospitalize she for four day before the gastro doc schedule an appt to have a colonoscopy they never do find a cause to what initially bring she into the hospital no chron or celiac those test were negative but when they do the colonoscopy he tell she that by the look and size golf ball size it was most likely cancer then send she on her way he was right the biopsy show cancer but the area surround the polyp were benign she go to see he we d and I have so many question such as how do he know it have not spread how can he tell she over the phone that it was cancer yet wait over two week before he see she for a follow up she still is not herself she go to work out finally and throw up after we have a history of cancer in the family mainly lung and ovarian am I wrong in have these type of thought if he do not seem so worried why am I a mess,negative,0
hey guy I just take a crap and stand up to notice that there was quite a bit of bright red blood enough for it to drip down my leg and onto the floor as well afterward I take a ball of toilet paper and place it between my cheek to see if there was still blood come out and most of it was soak in blood I then try with another ball of toilet paper there was a small amount but not a lot it was rather dark though but it may have just been the blood being absorb in the toilet paper I am scared should I wait to see if this happen again the next time I crap or just go to my gp tomorrow,neutral,1
hello guy my name is archie age 32 and we do not have history of cancer on my family I have have this chronic or constant dull pain on my low left rib area for awhile now 6 8 mo I have been to many doctor diagnose I from ulcer muscle pain and the last one costochondritis I have have red maroon color on my stool for long time but when I do an fobt it turn out negative 5 6 time already in two different hospital I wonder how accurate fobt is cause I think I can see mucus and maroon on my stool that is why I take the test 5 6 time do not get I wrong I was relieve every time I have a negative result I just do not have any explanation for the color of my stool my cbc also show up slightly high hemoglobin I am not lose weight do not have thin stool and I m not constipate I have have 1 chest x ray and it was clear 2 ultrasound that show up I have a 4 cm aggregate of gallstone but I am not as worried as what I am feel on my left abdominal area I know I should have a colonoscopy to ease my worry but I just want to know is there is some other way,negative,0
I am a 36 yrs old housewife I have been witness a constant degeneration in my health for past year or so no matter whatever nutritious diet I have been intake all along after undergo prolong medical test problem was detect in my colon through colonoscopy some dark brown circular patch in around 40 50 in number are observable in the inner wall of the colon with some white ring it render the diet intake futile and bowel have also been irregular and unsound my doctor say it have been there by birth and there is nothing to worry please advice,neutral,1
I have have bad stomach problem for awhile and want to have a colonoscopy do to make sure everything is fine just wonder what else I can tell the doctor to have he run this test,neutral,1
hi all I am a 25 year old male I recently find a hard lump right next to my hip when I push down hard I can only feel it when I am lie down I am very skinny so its quite easy to feel everything is it possible to feel you intestine anyway the lump is below my belly button just a bit below my left hip my left when I am look at it I google some symptom for colon cancer but I am not experience any of they no pencil like stool no weight loss no bleeding it is a hard lump any idea what this might be it is only small and not noticeable unless I press down and feel it there is not one on my right side I have scoliosis mild and when I m at the computer I do sit hunch over so there s a fold in my stomach,neutral,1
a young man I know is under a lot of stress with financial problem he have been bleed per rectum and have have pain abdominally for six month the bleeding is not necessarily accompany by stool he have have several test include a colonoscopy and blood test nothing could be find but he do present with a high count of white blood cell he have been tell that his symptom are down to stress but he can not accept this this problem along with his financial one are cause a lot of anxiety and upset between himself and his partner your take on the situation please,negative,0
hi all I am a soon to be 45 year old male seem like my life is go to be make a detour over the past several month maybe even long I notice my stool were not like they use to be at time I notice flatter look stool other time I notice thin stool circular but thin not pencil thin though then other time there were break cluster anyway see one doctor she give I a blood test which I am still await the result for I will do the test for blood in the stool after I get off antibiotic for a urinary infection she also say I should have a colonoscopy do I see a second doctor the follow day and he will be schedule I for a barium test this morning I find some blood in my stool to make this bad I have lose about about 3 4 pound over the last 4 or 5 day I sure hope most of this can be attribute to the anxiety I am experience and the fact I have not eat or drank very much with all the symptom I am definatenly expect the bad I read somewhere in this forum that someone have a slightly less than baseball size polyp remove and it was stage 2 I guess what I am try to ask in a round about way is when symptom of colon cancer are notice is it always in stage 4 I buy some fiber powder and after the first use my stool bulk up a little but I use to go 2x a day but now I have only go once in each of the last 2 day and there was not much this morning should I try a laxative I actually do not feel like I have anything in I sorry for the long post thank,negative,0
I have been to emergency a few time the doctor many time I have have severe double over abdominal pain which blind I vomitte nausea and now coffee ground like stool this have been on and off for a couple of year and they keep tell I I am fine must be female thing oh my god I am 24 and we are at the end with these doctor I am fit and am a coach active and train as a rower I eat healthy and do not smoke or drink I am at my wit end,positive,2
hello a month ago I was a newbie to this board but today I feel like a veteran three week ago today I was being operate on for a tumor in my colon today I am at home recover and feel well everyday I start my day this morning with a mile and a half walk I want to share my experience with those of you that may be face this type of surgery a little background initially it was think that I have diverticulitis and I was treat for that with antibiotic when I do not feel any relief I demand a ct scan that show intussusception of my colon which then prompt a full colonoscopy that reveal my tumor my advice here trust your body and your instinct my doctor was not listen and I make he listen the tumor was about 3 cm in size and my surgeon advise I that I would have to have a resection I have never have major surgery before and I was very scared I spend the week lead up to surgery do guide imagery and affirmation which really help my stress level I remember very little after being wheel in the operating room literally it seem as if I go to sleep as soon as I was in my surgery take a little over an hour and I was in my hospital room recover by noon the tumor and about a foot of my colon was remove the first day was a bit of a blur as I have a per annum morphine pump for the pain I sleep and try to get comfortable on my back since I am not use to sleep in that position I have a catheter for the first couple of day but I hardly notice it since I try to sleep as much as possible my pain was very manageable with the per annum pump the day after surgery I was sit up and talk email and try to get use to the incision in my belly I was able to have the surgery do laparoscopically one incision about 2 inch long above my waist and two other small incision below within the next couple day I try to walk as much as possible and the nurse aide will try to make you walk this was the good thing for I even though I do not feel like it it feel strange to walk with the incision and drag an iv I feel like I was stoop over and it was hard to stand straight I was weak but I make myself do it it is important to your recovery to walk I was tell the soon I walk the fast the plumbing would start to work and the soon I could go home I receive all my fluid and nutrient via iv until the last day I was in the hospital when I have a little broth and jello I do not miss food in the least maybe it was the morphine but being hungry was certainly not an issue what was an issue the last few day was that I have to get up and go to the bathroom about every hour since the fluid seem be go right through I and I no long have the catheter in hindsight this might have been good since it make I walk even more my big complaint in the hospital was interruption of sleep my hospital do not have private room so I have a parade of roommate four total and their visitor over the course of five day my advice get earplug or headphone I have one roommate that watch tv all night and refuse to turn the volume down or off thank goodness I have headphone and she was move the next morning if I hear one more episode of judge judy I think I would have go crazy the nurse will also come in and check your vital every few hour so that also alter your sleep soon enough though you ll get into the routine I soon discover my favorite nurse and aide and they were wonderful answer my question help I walk and ease any discomfort I might have god bless all the nurse and aid out there I was discharge on a friday afternoon but have the option to stay another day or two if I want I choose to go home because I feel that I have good care there my husband and I really want to sleep I was send home with pain pill that I take every four hour that really manage the pain too I sleep hard for the first few day and was uncomfortable but glad to be home I stay mostly in the bedroom but walk around the house for exercise the first week home was the hard learn to get in and out of bed wake up to take pain med and learn to eat again I really restrict my activity and stay mostly in bed or in a chair I have no diet restriction but find out quickly that I could only eat very low residual food and only small amount I feel very bloated and sore I eat mostly broth jello and bland food mini meal every few hour seem to work well it was only the beginning of week 3 that I start introduce more food and fiber and I am do it very slowly I am also drink lot of water the plumbing is work just fine and the bloating have decrease alot my incision is heal well and although I was afraid to look at it at first I am amazed at how my body is come back together sometimes I feel a twinge of discomfort in my side but there is no pain I remember think when I was in the hospital that I just wish it was 3 week in the future well here it is 3 week later and I want everyone to know there is a light at the end of this tunnel you will feel well and you will heal there will be day that it do not feel that way but it take time just be good to yourself do not push it my story continue my tumor was malignant and a very very rare cancer and I will have a point scan this week to see if there are any other tumor I have not give up hope yet and continue to pray meditate and use my guide imagery at the moment pende the point scan I do not need chemo or radiation I am try to build my strength back up and enjoy the blessing of each day more than anything I want to write this to let other know what to expect when they are face colon resection please know that you are not alone in this type of surgery follow the doctor order and as soon as you can get up and walk you would not feel like it but everyday you will feel well and well each week you will get strong and strong try some guide imagery and affirmation they truly help my stress level and bring I much comfort I wish you all well on your heal journey good christi,positive,2
I am now 28 year old and I have been have a lot of health issue since december of 2009 actually even before that I have my gallbladder remove in september of 2009 and after my body heal and my liver function go to normal I feel good I was eat what I want again and overall do great then the problem start my mom have bladder cancer my uncle have pelvic cancer and die my other uncle die of lung cancer but as far as I know colon cancer is not common in my family hemorrhoid on my mom side are in december of 2009 I go to the bathroom and the toilet was fill with blood I was freak out I remember back in february of 2007 when I have a colonoscopy and the dr say he have find a very small polyp in the distal sigmoid colon the tissue was test and it come back benign I go on with life now here I am in 2010 have problem with blood in my stool so in december I make an appt with the dr who test I out with a sigmoidscope he tell I I have hemorrhoid I have have multiple appointment where the same dr keep tell I it is hemorrhoid I have begin banding session for the hemorrhoid and I have not have blood since june 19th I was bleed monthly since december of 2009 until june 19th in june I have major bleeding I feel the area by my bum puff up and it was terrify I have to dig out the stool I was bleed profusely and almost go to the er but once I get it all out it stop now I just have my late banding session 1 more to go and have a little bit of blood this weekend this time it seem to be inside the stool and was black I try to make sure I check every movement for sign of blood the more I think back to the colonscopy in feb 2007 the more I think that this is cancer I am not talk about a little bit of blood but a lot it make the toilet red I can not eat anything food go right through my body I get cramp and the next thing I know I am in the bathroom I fluctuate between constipation and loose stool it do not seem to be improve and I feel tired the reason I am here is because I am 28 year old and I do not want this to be a dr who s being lazy and tell I it is just hemorrhoid when I have the bleeding back in 2007 the dr do not even hesitate to give I a colonoscopy this dr do not even want to give I a flexo sigmoidscope I have to make he do it I am scared should I get a second opinion what were your experience like with colon cancer,negative,0
okay so I have health insurance but they would not cover my colonoscopy because I have one in 2007 when I have insurance through my old job my new insurance is an individual policy and have exclusion namely colon cancer diagnosis and test and treatment anyway so I am look to get this do in the dallas texas area and not go to the poor house I call the dr in denton who say it would be at least 1500 and that I would have to pay it up front that s just for the hospital and doctor is there anything I can do to get this do at an affordable rate I do not have money at all like I am scrimp by this month as it is because I just get a new use car that is also a money pit so can anyone here help I out to find a place to get this do that will be a bit more reasonable,neutral,1
hi I am care for my father in law age 68 in aug 2008 diagnose with colon cancer stage 3c surgery chemo all clear after that except for prostate cancer which was dealth with dec 2009 all clear then receive word that there was cancer cell find in the margin in march 2010 start radiation in pelvic area middle of april 2010 stop radiation after pet scan show cancer spread to pelvic abdominal both lung wait on biopsy to show if it is the origional colon cancer that have metastesize but all doctor believe it is anyone else out there with similar case lung doctor say inoperable but still wait on the biopsy thank,negative,0
I am usually a once a day goer for the last couple of month I have been go very very loose not every day often enough to ask someone about it sometime I go up to four time a day,neutral,1
do a 3 cm polyp in my colon mean I have cancer,neutral,1
hello I am a 48 yr old female have my 1st colonoscopy today after deal with some gastro issue and bleed gastroenterologist find a growth he biopsie say it could be pre cancerous or possible early colon cancer not sure but say it have to be surgically remove and was probably grow for the last 5 year he do say that my blood test include liver function were all good I have a surgical consult for monday but am pretty nervous any thought,negative,0
it is been 6 month since I have my reversal I still have frequent bms and soreness I am able to control this by take lomotil I have radiation and chemo have anyone go back to the way they were before their reversal how do you manage work with these issue,neutral,1
how to give yourself enema with a stoma,neutral,1
hey everyone I am a 25 year old male I work out eat pretty healthy for the most part and am over pretty active about 2 3 year ago I would notice a light pink streak on my tp after have a bowel movement it was very little and very rare so I never think much of it about 6 month ago I get extremely constipate for the first time in my life I think it was due to a dietary supplement I was take so I discontinue use I was pretty good for about 5 month then I would say 1 2 month ago I try another diet supplement and get the same result I discuss this with the manufacture of the supplement as well as other guy that have take it and they say there is nothing in the product that should make I back up I completely stop with all the supplement but now I am notice that I am completely irregular with my bowel movement I will go a few day where my stomach is irritated and my stool is soft then all of a sudden it will be so hard that it hurt on the way out and I will have bright red blood on the tissue and even sometimes in the water my stool have not been dark or tarry but I have see streak of red on the surface I think 1 time now I am so damn nervous paranoid I am question everything that my body is do I have some anxiety and really bad health anxiety I hop online and read all the symptom to stuff in this case colon cancer and all of a sudden I swear I have they all again I am 25 year old so this seem pretty young not really feel tired or noxious in fact goto the gym 4x a week and have plenty of energy I do start take some metamucil the other day not sure if this is what could be make I have loo diarrea stool at this give time I have an appointment for thursday but my brain is just rack also great grandfather die of colon cancer and great aunt have have multiple polyp remove base on my symptom and so on what do you guy think would symptom be more pronounced give I am only 25 do you think it could be colon cancer thank for anyone input,negative,0
have surgery for stage 1 colon cancer 1 year ago my cea level was 0 75 it keep rise after surgery 3 4 5 7and now 24 evry time scan pet and colonoscopie clear help please very frustrated,negative,0
the doctor advise we he could not remove the abnormal polyp before christ of it is size and that laparoscopic surgery is necessary they have to make an incision in his belly open he up do a colon resection and stitch everything my father recently have a colonoscopy do there were 6 small polyp that were easily remove during the colonoscopy but one was abnormal in size and close to the anus the doctor take a sample of the lesion which will be test for cancer g back up not only do I pray that the lesion is benign but was hope that laparoscopic surgery could some how be avoid and be do via a colonoscopy I read on the internet rarely a polyp will be too large to remove during colonoscopy which mean that a surgical procedure will be need at a later time I guess my question is what size is consider too large I am hope this doctor is not just eager to use his knife is all and do not want my 64 year old father with diabete to have to go through the recovery stage thank in advance,neutral,1
my 66 year old father have been through so much in this past year and I really need to try to find he some relief he was dx with stage 3 rectal cancer in march 09 he undergo radiation and chemo until the middle of may when my brother was kill in a motorcycle accident he have been do very well but the stress of his son in the hospital for 9 day and the grief when he die really do a number on his body he end up in icu due to chemo complication was on a ventilator dialysis total life support he was in the hospital for 30 day and then spend another month in an inpatient rehab center where he learn how to walk again he was strong enough to have his rectal tumor removal surgery in november 09 he was do pretty well with the bag before he have the ileostomy reversal surgery in march 10 it is now difficult for he to leave the house due to the number of bms per day and the pain he is have before during bms I realize he is not alone with the problem he is have now as many of you are go through the same issue I think he wish he do not have the reversal surgery but hopefully that will change as his body adjust his surgeon say everything is fine but he is not the one run to the bathroom 20x a day and deal with the pain I take my dad to a gi specialist who prescribe hydrocortisone ac suppositorie to help reduce the internal inflammation and reduce pain my dad surgical nurse say not to use hydrocortisone but I am wonder why not on other board I have read about use calmoseptine cocoa butter johnson johnson soft lotion and radiacreme to help with rectal pain can any of you offer advice as to how these have work for you so I can pass it along to my dad my dad is currently take lomotil and immodium as well as metamucil but can not seem to figure out the right balance any advice will be appreciate thank you very much sorry this is so long,neutral,1
I have bein have a bloody stool since last year it start around june it last about 2 week then it go away till the end of march of this year it come back I start bleed again I go to the doctor and he give I a diet so my stool could get a bit soft to see if thing will get well my stool get thin and soft with the diet he give I and I do stop bleed but the bleeding come back about a week ago when I do a really big and thick stool and I think that damage something on my rectal rectum area I was think it damage the wound that were heal my stool is ussually mark by a line of blood accompany by a couple of drop of blood nothing hurt though but I am start to get scared and its starting to get I very depressed because I do not have medical insurance but anyways this happen to I about 3 year ago but it go away in about 2 day I am 23 year old I eat really healthy I run about 12 to 15 mile every week I do not know why I have this I go to my local clinic a month ago and the doctor take a look at the opening of my rectal opening and he say I have anal fissure he tell he see a bunch of little cut and I am guess all of that damage was cause by my thick big hard stool but I am still very worried what is the good thing to do should I go back to the clinic the doctor say to go back if the bleeding continue,negative,0