diff --git "a/storage/itpc_guidance_summary/docstore.json" "b/storage/itpc_guidance_summary/docstore.json"
new file mode 100644--- /dev/null
+++ "b/storage/itpc_guidance_summary/docstore.json"
@@ -0,0 +1 @@
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"hash": "80fcc5e25c3cef1c43b831e98b14c718452b8b94a7c59d271e54dabd3ec0ef89", "class_name": "RelatedNodeInfo"}}, "hash": "52dc2bdf2e15bd3439987bfb660416589dce8a67ccc2ad2560c4ee6e4dfc4f7a", "text": "HOW TO \nIMPLEMENT \nCOMMUNITY-LED \nMONITORING \nA Community Toolkit\n\nTABLE OF CONTENTS\nPurpose of the toolkit  4 \nDefinition of CLM  7 \nPrinciples of CLM  8\nCLM model explained and implemented \nby quadrant  10\nEducation 11\nEvidence 12\nEngagement 15\nAdvocacy 15  \nCategories and scale of CLM  18\nStructure and roles of the CLM model  19\nTechnology integration 22\nGuiding principles of data management 27\nResourcing and financing of CLM  38\nAnnexes 40\nA UNAIDS, Global Fund and PEPFAR definitions of CLM  41\nB Menu of quantitative and qualitative indicators for  \n   HIV-focused CLM and related advocacy 44\nC Community treatment observatory case studies 48\n1 ) RCTO-WA case study  48\n2 ) CTO COVID-19 adaptation  54 \n3 ) CLM approaches in Namibia 67\nD CLM and community and institutional systems  \n   strengthening 59 \nE Accreditation process 61\nF Resource list 64 \n\nABBREVIATIONS\nAIDS   Acquired immune deficiency syndrome\nART  Antiretroviral therapy\nARV   Antiretroviral \nCBM   Community-based monitoring\nCCG  Community consultative group \nCCM   Country Coordinating Mechanism \nCDC  Centers for Disease Control and Prevention\nCLM  Community-led monitoring\nCSO  Civil society organization\nCBO  Community-based organization \nCOVID-19   Coronavirus disease 2019\nCTO  Community treatment observatory \nDSD   Differentiated service delivery\nFive As   Availability, accessibility, acceptability,", "start_char_idx": 0, "end_char_idx": 1386, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "2e0e503e-6c1e-4d7f-98f8-a01b6b75d9b8": {"__data__": {"id_": "2e0e503e-6c1e-4d7f-98f8-a01b6b75d9b8", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "6c3378d6-a7ea-47f9-8301-ee4eeb663977", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "52dc2bdf2e15bd3439987bfb660416589dce8a67ccc2ad2560c4ee6e4dfc4f7a", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "57f60e4d-4399-47ea-a9be-66be4a54491c", "node_type": "1", "metadata": {}, "hash": "5cb35796d4b2cbf5555cc02144fc4306c4f9bdd8fdc5a876ac8b09a8d8341447", "class_name": "RelatedNodeInfo"}}, "hash": "80fcc5e25c3cef1c43b831e98b14c718452b8b94a7c59d271e54dabd3ec0ef89", "text": "accessibility, acceptability, affordability  \n  and appropriateness\nHIV   Human immunodeficiency virus \nHTS   HIV testing services \nIRB   Institutional Review Board\nITPC    International Treatment Preparedness Coalition\nM&E    Monitoring and evaluation\nMoH    Ministry of health\nMoU    Memorandum of understanding \nNACP   National AIDS Control Programme\nNETHIPS   Network of HIV Positives in Sierra Leone \nPEPFAR   US President\u2019s Emergency Plan for AIDS Relief\nPEP  Post-exposure prophylaxis \nPPE  Personal protective equipment\nPrEP   Pre-exposure prophylaxis\nRCTO   Regional Community Treatment Observatory\nRCTO-WA    Regional Community Treatment Observatory in West Africa \nTB   Tuberculosis\nU=U   Undetectable equals Untransmittable\nUNAIDS    Joint United Nations Programme on HIV/AIDS\nWAHO    West African Health Organization\nWHO    World Health Organization\n\n4   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nThis is a how-to guide developed for community organizations that are planning to \nimplement community-led monitoring (CLM). It provides an overview of CLM and \nsteps for designing, implementing, running and resourcing it.\nCLM is an integral part of the Global AIDS Strategy Framework 2021-2026,1 which \nputs people at the centre of the HIV response and unites countries, communities \nand partners to: PURPOSE OF THE \nTOOLKIT COMMUNITY-LED MONITORING (CLM)  uses the power of people living with HIV \nand key populations to transform information on health systems into life-saving \nadvocacy campaigns. It rapidly generates data on HIV prevention and treatment \nservices and empowers communities to use their findings to identify and advocate \nfor solutions that break down barriers to human rights, better health and higher \nquality of life.\n( 1 )  reliefweb.int/sites/reliefweb.int/files/resources/global-AIDS-strategy-2021-2026_en.pdfMaximize equitable and equal access to comprehensive people-centred  \nHIV services\nBreak down legal and societal barriers to achieving HIV outcomes\nFully resource and sustain HIV responses and integrate them into \nsystems for health, social protection and humanitarian settings1\n2\n3\n\n  5   \nCLM may be used to track a range of issues.", "start_char_idx": 1357, "end_char_idx": 3557, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "57f60e4d-4399-47ea-a9be-66be4a54491c": {"__data__": {"id_": "57f60e4d-4399-47ea-a9be-66be4a54491c", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "2e0e503e-6c1e-4d7f-98f8-a01b6b75d9b8", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "80fcc5e25c3cef1c43b831e98b14c718452b8b94a7c59d271e54dabd3ec0ef89", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "ef84916d-1be0-486b-bba6-24a2a30a831d", "node_type": "1", "metadata": {}, "hash": "c2fb4d149868a8dda627a71bdb54ac7d4fdbc362de07654beba8d343f52b730e", "class_name": "RelatedNodeInfo"}}, "hash": "5cb35796d4b2cbf5555cc02144fc4306c4f9bdd8fdc5a876ac8b09a8d8341447", "text": "Examples \nare whether and to what extent stigma has made \nit difficult for people to access HIV services, the \nproportion of people who have been denied access to \nHIV prevention and testing, and the number of people \nwho have discontinued antiretroviral therapy (ART) \u2013 \nand the reasons for this. This evidence is fed back to \nprogramme managers and policy makers, which enables \nthem to increase the \u201cfive As\u201d (availability, accessibility, \nacceptability, affordability and appropriateness) and the \nefficiency and effectiveness of HIV services. \nThe community-led monitoring and advocacy \napproaches of the International Treatment \nPreparedness Coalition (ITPC) are designed to put \npeople living with HIV, their communities, networks  \nand/or organizations at the centre of decision making. Since 2015, ITPC has monitored supply chain \nmanagement issues and medicine stock-outs, initially \nin South Asia, eastern Europe and central Asia. This \ninitiative was expanded from alert systems and \nstock-out monitoring to fully-fledged community-led \nmonitoring programmes. Under ITPC\u2019s strategic pillar, \nWatch What Matters, CLM approaches (previously \nknown as community treatment observatories, or \nCTOs) were implemented in West Africa (Benin, C\u00f4te \nd\u2019Ivoire, The Gambia, Guinea, Guinea Bissau, Liberia, \nMali, Senegal, Sierra Leone and Togo), Democratic \nRepublic of Congo, southern Africa (Malawi, Zambia and \nZimbabwe), Asia (India, Indonesia and Nepal) and Latin \nAmerica (Guatemala). \nITPC has recently extended its CLM technical assistance \nprogramme to civil society organizations in West and SOURCE : End Inequalities. End AIDS. Global AIDS Strategy 2021- 2026. UNAIDS 2021.", "start_char_idx": 3558, "end_char_idx": 5242, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "ef84916d-1be0-486b-bba6-24a2a30a831d": {"__data__": {"id_": "ef84916d-1be0-486b-bba6-24a2a30a831d", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "57f60e4d-4399-47ea-a9be-66be4a54491c", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "5cb35796d4b2cbf5555cc02144fc4306c4f9bdd8fdc5a876ac8b09a8d8341447", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "dbc88557-6ee2-4e15-b409-e12f1148b5a4", "node_type": "1", "metadata": {}, "hash": "3bd05276e80756c949566da215c02deb169d05c8ae77376a70ab5118827e7e8f", "class_name": "RelatedNodeInfo"}}, "hash": "c2fb4d149868a8dda627a71bdb54ac7d4fdbc362de07654beba8d343f52b730e", "text": "End AIDS. Global AIDS Strategy 2021- 2026. UNAIDS 2021.\nAvailable at www.unaids.org/sites/default/files/media_asset/global-AIDS-strategy-2021-2026_en.pdf2025 HIV TARGETS\nREDUCING\nINEQUALITIES95% 10% > >\nLESS THAN 10%\nof people living with HIV and key \npopulations experience stigma and \ndiscrimination95%  of people at risk of HIV  \nuse combination prevention\n95-95-95%  HIV testing, treatment,  \n& viral suppression among adults  \nand children\n95% of women access sexual  \nand reproductive health services\n95% coverage of services for  \neliminating vertical transmission\n90% of people living with HIV receive  \npreventive treatment for TB\n90%  of people living with HIV and people at risk  \nare linked to other integrated health servicesLESS THAN 10%\nof people living with HIV, women and girls \nand key populations experience gender-based \ninequalities and gender-based violence\nLESS THAN 10%\nof countries have punitive laws and policiesPeople living \nwith HIV and \ncommunities at risk \nat the centreAMBITIOUS TARGETS AND COMMITMENTS FOR 2025\nPURPOSE OF THE TOOLKIT\n\n6   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nCentral Africa, East Africa and the Caribbean, with the \nsupport of the Joint United Nations Programme on \nHIV/AIDS (UNAIDS). It has also extended other CLM \ntechnical assistance, with support from the Global \nFund to Fight AIDS, Tuberculosis and Malaria in the \nCaribbean, Eastern Europe and Central Asia (2021-\n2023). In 2020-2021, with funding from UNAIDS, ITPC \nrapidly implemented short-term CLM and advocacy \nduring the COVID-19 pandemic in five countries. ITPC \nhas applied the CLM model across several disease \nareas, collecting data on human rights violations and \ntreatment access gaps in HIV, tuberculosis (TB), human \nrights, hepatitis C and COVID-19.  \n CLM covers four key areas: education , evidence , \nengagement  and advocacy .", "start_char_idx": 5187, "end_char_idx": 7066, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "dbc88557-6ee2-4e15-b409-e12f1148b5a4": {"__data__": {"id_": "dbc88557-6ee2-4e15-b409-e12f1148b5a4", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "ef84916d-1be0-486b-bba6-24a2a30a831d", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "c2fb4d149868a8dda627a71bdb54ac7d4fdbc362de07654beba8d343f52b730e", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "d6a49626-d66d-4a2e-892e-995a6deab2a2", "node_type": "1", "metadata": {}, "hash": "8933022674046039b6fa582fc6df6a161073365e7ca0cead15c022ea29b3dd0c", "class_name": "RelatedNodeInfo"}}, "hash": "3bd05276e80756c949566da215c02deb169d05c8ae77376a70ab5118827e7e8f", "text": "CLM covers four key areas: education , evidence , \nengagement  and advocacy . It is grounded in education \nand based on human rights, including the right to \nhealth, to ensure that all people are aware of the \nstandard of care they are entitled to receive, as per \ncurrent World Health Organization (WHO) guidelines \nfor prevention, testing, care and treatment for HIV, TB, \nCOVID-19, viral hepatitis and other relevant conditions. \nCLM is community-led and community-driven. It \nincreases accountability for, and improves outcomes of, \nnational and local HIV programmes \u2014 and the health of \ncommunity members. KEY AREAS OF CLM\nCLM is community-led and \ncommunity-driven.\nEDUCATION\nENGAGEMENTEVIDENCE ADVOCACYCLM\n\n  7   \n DEFINITION OF CLMDEFINITION OF CLM \n( 2 )  Key populations are groups of people who are more vulnerable to acquiring HIV and/or have high HIV rates (gay and bisexual men and other men who have sex with \nmen, sex workers, people who use drugs and transgender people) and face high levels of stigma, discrimination and legal, socioeconomic, cultural and structural barriers to \naccessing health services.In the context of CLM, \u201ccommunity\u201d \nrefers to people living with and \naffected by HIV, including people who \nare members of key populations2 and \nother marginalized groups, as well as \ncivil society entities promoting human \nrights and access to care for people \nliving with and affected by HIV. \nCommunities play an essential role in CLM: they have \naccess to \u201cinsider\u201d knowledge and unique experience \nand perspectives that are not available to external \nactors. Communities have a central role in ensuring \naccess to health services, improving their quality and \nholding decision makers accountable. This role is gaining visibility and is increasingly promoted as an \nimportant part of the HIV response. (See Annex A for a \nsummary table of CLM approaches, as defined by key \ndonors and for various examples of community data.)  \nThe CLM landscape has continued to evolve, as have \nneeds for clearer definitions and guiding principles to \nensure that this work is community-led and advocacy-\nbased.", "start_char_idx": 6989, "end_char_idx": 9114, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "d6a49626-d66d-4a2e-892e-995a6deab2a2": {"__data__": {"id_": "d6a49626-d66d-4a2e-892e-995a6deab2a2", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "dbc88557-6ee2-4e15-b409-e12f1148b5a4", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "3bd05276e80756c949566da215c02deb169d05c8ae77376a70ab5118827e7e8f", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "bd4a86b8-a394-4d67-9c49-ab13834df398", "node_type": "1", "metadata": {}, "hash": "70bea63b0d0029bce01bfc65fa755e8e1c070db0aa215a5dd7945f9fd7a5a8ef", "class_name": "RelatedNodeInfo"}}, "hash": "8933022674046039b6fa582fc6df6a161073365e7ca0cead15c022ea29b3dd0c", "text": "The CLM landscape has continued to evolve, as have \nneeds for clearer definitions and guiding principles to \nensure that this work is community-led and advocacy-\nbased. As the notion of CLM becomes more widespread, \nany feedback mechanism from recipients of care could \nbe misidentified as CLM, instead of the model described \nin this toolkit.CLM is a process in which communities, particularly people who use \nhealth services, take the lead in identifying and routinely monitoring the \nissues that matter to them. They create indicators to track prioritized issues, undergo \ntraining to collect data and analyse results, and engage with a larger group of stakeholders to share \ninsights from the data and co-create solutions. When problems uncovered through CLM cannot be \nresolved, communities conduct evidence-based advocacy and campaigns until corrective actions are \nimplemented by those responsible. CLM also documents positive innovations and effective practices \nthat can be implemented with greater consistency and scale (for additional information about and \ndefinitions of CLM, see Annex A, UNAIDS, Global Fund and PEPFAR definitions of CLM).\n\n8   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nPRINCIPLES OF CLM \nCommunities are leaders of, and equal \npartners in, CLM. It is responsive to \ntheir needs and inclusive of their \nperspectives and preferences. Action \nand accountability are essential to  \nCLM and related advocacy. \nCLM interventions are independent of, and not \ndirected by, governments or donors. They are \nspecifically informed and implemented by \u2014 and for \n\u2014 communities and their organizations, groups and \nnetworks. They are also collaborative and intended \nto engage multiple stakeholders in co-creating and \nimplementing solutions, instead of assigning blame. \nCLM interventions show measurable results: an increase \nin the number of people on continuous ART; higher rates of viral suppression; and a decrease in stock-outs \nof drugs and testing supplies. The ultimate goal is \nimproving the health, quality and length of life of people \nliving with and affected by HIV.", "start_char_idx": 8946, "end_char_idx": 11066, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "bd4a86b8-a394-4d67-9c49-ab13834df398": {"__data__": {"id_": "bd4a86b8-a394-4d67-9c49-ab13834df398", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "d6a49626-d66d-4a2e-892e-995a6deab2a2", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "8933022674046039b6fa582fc6df6a161073365e7ca0cead15c022ea29b3dd0c", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "dd7afb3c-f261-4a21-b441-be20225764e6", "node_type": "1", "metadata": {}, "hash": "59e06aa1c8ad9ea57c95e585126fa7e7077bcb3461aac1905bf33fb221d0519b", "class_name": "RelatedNodeInfo"}}, "hash": "70bea63b0d0029bce01bfc65fa755e8e1c070db0aa215a5dd7945f9fd7a5a8ef", "text": "The ultimate goal is \nimproving the health, quality and length of life of people \nliving with and affected by HIV.\nCLM interventions are also sustained \nover time:\n\u2022 a) To provide up-to-date evidence for health \nfacility managers, government health officials and \nother decision makers\n\u2022 b) To foster change through cycles of successive \nachievements or setbacks and through processes of \ngaining audiences, allies and constituents, if needed, \nfor credibility and influenceThe increased demand for and interest in implementation of CLM calls \nfor consistent, clear principles. CLM and related advocacy is: \n > Community-led and community-owned  \n > Focused on action and accountability\n > Independent\n > Routine and systematic\n > Focused on results                 \n\n  9   \n PRINCIPLES OF CLMFunding of and investment in CLM. There is a need to ensure adequate availability of \nfunds to implement CLM and related advocacy interventions. The scale of the CLM approach \nshould match the available budget (the number of sites and indicators selected has an impact on \nthe budget). \nIntegration of the CLM approach into national strategic plans or other national \npolicy frameworks or country investment plans.  There is a need for CLM to be adopted \nas a key community intervention that contributes to the national response. \nCapacity building and accreditation of CLM implementing partners.  Investment in \ntraining and institutional systems strengthening of civil society organizations (CSOs) is critical to \nensure the capacity to implement CLM. \nOwnership of CLM by communities and CSOs.  It is essential to ensure that CLM is truly \ncommunity-led and supported by national structures. \nCommunity consultative groups (CCGs) and/or district or national structures.  \nIt is necessary to create mechanisms for feedback and dissemination of data to realize advocacy \noutcomes. It is critical to have national or district platforms where solutions can be co-created to \nalleviate treatment and service gaps and improve quality. \nEthical clearance and/or authorization for data collection. CLM implementers need \nready access to data at health facilities and should be able to conduct focus group discussions. \nData quality assurance.  The CLM approach will be compromised if the wrong data are used. \nMechanisms must be put in place to ensure data accuracy and integrity.", "start_char_idx": 10952, "end_char_idx": 13320, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "dd7afb3c-f261-4a21-b441-be20225764e6": {"__data__": {"id_": "dd7afb3c-f261-4a21-b441-be20225764e6", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "bd4a86b8-a394-4d67-9c49-ab13834df398", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "70bea63b0d0029bce01bfc65fa755e8e1c070db0aa215a5dd7945f9fd7a5a8ef", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "99fc246d-f877-40dc-986c-03ba9bdbfa8c", "node_type": "1", "metadata": {}, "hash": "a05c2e17d2608f296b0d980e2fef92e86df22348f60b6080a87954cc8ce78bf8", "class_name": "RelatedNodeInfo"}}, "hash": "59e06aa1c8ad9ea57c95e585126fa7e7077bcb3461aac1905bf33fb221d0519b", "text": "Data quality assurance.  The CLM approach will be compromised if the wrong data are used. \nMechanisms must be put in place to ensure data accuracy and integrity. 1\n3\n52\n4\n6\n7KEY CONSIDERATIONS TO SUSTAIN THE CLM APPROACH\n\n10   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nCLM MODEL \nEXPLAINED AND \nIMPLEMENTED BY \nQUADRANT \nCommunity-led organizations perform CLM. These host organizations/CLM \nimplementers oversee and fulfil work within the four key quadrants of CLM: \neducation, evidence, engagement, and advocacy. Each quadrant has specific \nobjectives and corresponding interventions which build upon each other. All four \nquadrants must be fully implemented for successful CLM.\nPeople involved with CLM will gain an understanding of how to collect and secure \ndata and what they are monitoring: what to collect, why it matters, and how it will \nbe used. \nFIGURE 1 ENGAGEMENT and ADVOCACY are mutually reinforcing and cyclical\nEDUCATION\nENGAGEMENTEVIDENCE ADVOCACYTAKE TARGETED ACTION to \nwork with policy makers to fix \nor improve the services, systems, laws or practices that underlie problems\nCLM\nDISCUSS THESE FINDINGS with a \nwider group of stakeholders, such as a Community Consultative Group (CCG) or other existing group, to co-create solutionsLEARN ABOUT THE SCIENCE \nBEHIND THE DISEASE(S) and \nnormative standards for optimal \nprevention, treatment, care and support interventions, including on COVID-19\nDOCUMENT COMMUNITY \nEXPERIENCES accessing \nhealth services, compile that \ninformation, and identify trends and problems\n\n  11   \nEducation  builds a strong, sustainable foundation \nfor organizations that host CLM and related \nadvocacy and benefits the people who provide it. \nITPC\u2019s trainings support community and institutional \nsystems strengthening by covering focus areas, such \nas monitoring and evaluation (M&E) methodologies, \ngovernance, finance and grant management. Since \nthe implementing organization\u2019s capacity and health \nare critical to the success of CLM, host organizations \nundergo accreditation processes and capacity \nassessments to inform training needs.", "start_char_idx": 13159, "end_char_idx": 15271, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "99fc246d-f877-40dc-986c-03ba9bdbfa8c": {"__data__": {"id_": "99fc246d-f877-40dc-986c-03ba9bdbfa8c", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "dd7afb3c-f261-4a21-b441-be20225764e6", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "59e06aa1c8ad9ea57c95e585126fa7e7077bcb3461aac1905bf33fb221d0519b", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "05b4dc8a-6f71-4b46-8773-0ae35d366f36", "node_type": "1", "metadata": {}, "hash": "3d97dc4532dce8761d9567aa3e38fbd3ee1411c9ed1a557ecc8bf3710dcbea51", "class_name": "RelatedNodeInfo"}}, "hash": "a05c2e17d2608f296b0d980e2fef92e86df22348f60b6080a87954cc8ce78bf8", "text": "Since \nthe implementing organization\u2019s capacity and health \nare critical to the success of CLM, host organizations \nundergo accreditation processes and capacity \nassessments to inform training needs. Data collectors \nand supervisors learn standardized procedures \nfor collecting, storing and securing data to assure \nconsistency across sites; they are also trained on \nqualitative and quantitative methods for carrying out \ntheir work and understanding why the data they are \ncollecting matters.\nAdvocacy-focused CLM staff and stakeholder trainings \nare developed based on community priorities and a capacity assessment. These trainings are grounded in \nhuman rights, highly interactive and directly linked to \nindicators selected by communities. As an example, a \nCLM approach focused on HIV would include: education \naround HIV transmission; the cascade of prevention, \ntesting, care and treatment, including optimized ART; \nservice delivery; viral load monitoring; and human \nrights issues. These trainings ensure that community \nmembers understand the services and treatment they are \nentitled to and are familiar with their national treatment \nguidelines. They also build knowledge of standards for \ncompetency and quality for routine health screenings \nand testing services, medical care and treatment, and \nprevention and support services in the context of current \ntargets, declarations and internationally recognized \nstandards for HIV treatment and services (notably, \nFast-Track, UNAIDS 95-95-95 targets, Sustainable \nDevelopment Goals and WHO guidelines). This provides \nthe foundation for effective advocacy. Education\nTABLE 1  Elements of CLM: HIV education and their purpose\nTRAINING  \nAREACONTENT  PURPOSE  \nHIV  \ntransmissionExplanation of how HIV is \ntransmitted Underscore the importance of access to HIV prevention and treatment. \nHIV \npreventionOverview of WHO-\nrecommended combination \nHIV prevention Document gaps in access to WHO-recommended combination HIV \nprevention, including male and female condoms, pre- and post-exposure \nprophylaxis (PrEP and PEP), the dapivirine vaginal ring, needles, syringes \nand other equipment for using drugs, and opioid substitution therapy.\nHIV testingDescribe process and  \nWHO-recommended HIV \ntesting optionsDocument gaps in access to WHO-recommended testing methods, \nincluding self-testing, and whether services are adapted to the needs of key \npopulations.", "start_char_idx": 15072, "end_char_idx": 17493, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "05b4dc8a-6f71-4b46-8773-0ae35d366f36": {"__data__": {"id_": "05b4dc8a-6f71-4b46-8773-0ae35d366f36", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "99fc246d-f877-40dc-986c-03ba9bdbfa8c", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "a05c2e17d2608f296b0d980e2fef92e86df22348f60b6080a87954cc8ce78bf8", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "d33293e6-33c2-4e12-9251-cde25e258f52", "node_type": "1", "metadata": {}, "hash": "3b4cd89e5f86f0a0632546c658585a9c2ddd68581d30f19f49efaed94a867509", "class_name": "RelatedNodeInfo"}}, "hash": "3d97dc4532dce8761d9567aa3e38fbd3ee1411c9ed1a557ecc8bf3710dcbea51", "text": "HIV testingDescribe process and  \nWHO-recommended HIV \ntesting optionsDocument gaps in access to WHO-recommended testing methods, \nincluding self-testing, and whether services are adapted to the needs of key \npopulations.\nHIV natural \nhistory Outcome of untreated HIV \n\u2013 progression from acute \ninfection to advanced HIV \ndisease, illness and death and \ncontinuing transmissionGain an understanding of the importance of access to HIV testing, care and \ntreatment. \nCLM MODEL EXPLAINED AND IMPLEMENTED BY QUADRANT\n\n12   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nTRAINING  \nAREACONTENT  PURPOSE  \nHIV \ntreatmentOverview of the goal of \nHIV treatment and WHO-\nrecommended ARVs for \nfirst-, second- and third-line \ntreatment: how they work and \nwhat they do (including side-\neffects and adverse events) Gain understanding of why access to HIV treatment is essential for survival, \nhealth and quality of life among people living with HIV (and its prevention \nbenefit), as well as which ARVs should be available.\nTreatment \nadherence/ \ndrug \nresistanceImportance of adherence; \nconsequences of poor \nadherenceGain an understanding of the importance of access to HIV testing, care and \ntreatment. \nMonitoring \nHIV \ntreatment \noutcomesWhat is viral load monitoring? \nWHO recommendations for \nmonitoring HIV treatment \noutcomes. What results mean \n(U=U, treatment failure, \nadherence support, switching \nARV regimen)Document understanding of, access to and frequency of viral load testing \n(including timely results) and actions triggered by viral load test results.\nCommon  \nco-infectionsTransmission and outcomes \nof TB and viral hepatitis; \nWHO-recommended testing, \nprevention, care and \ntreatment  Document access to, quality of and user fees for prevention, testing, care \nand treatment for TB and viral hepatitis. \nHuman \nrights/right \nto healthStigma and discrimination \nand their impact on health \ncare uptake and health \noutcomes Document and address stigma and discrimination competency in health care \nsettings.\nCommunity data is the evidence  that informs \nadvocacy. Gathering this evidence is often the most \nvisible component of CLM.", "start_char_idx": 17272, "end_char_idx": 19432, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "d33293e6-33c2-4e12-9251-cde25e258f52": {"__data__": {"id_": "d33293e6-33c2-4e12-9251-cde25e258f52", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "05b4dc8a-6f71-4b46-8773-0ae35d366f36", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "3d97dc4532dce8761d9567aa3e38fbd3ee1411c9ed1a557ecc8bf3710dcbea51", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "4c9157e1-5c0f-4678-b596-4d156f4dc0c6", "node_type": "1", "metadata": {}, "hash": "7153b39efc5352265cdea17058cb5ccb3db8bc6323d1bda4ef8817fb9106267b", "class_name": "RelatedNodeInfo"}}, "hash": "3b4cd89e5f86f0a0632546c658585a9c2ddd68581d30f19f49efaed94a867509", "text": "Community data is the evidence  that informs \nadvocacy. Gathering this evidence is often the most \nvisible component of CLM. It involves situational \nanalysis and mapping processes, securing and collecting \ndata, verifying, entering and cleaning it, data analysis \n(including monitoring for trends), and data quality audits. \nEach of these steps is explained in more detail here:\n\u2022 Conduct baseline assessment. The CLM staff \nshould conduct a baseline assessment of all \nquantitative and qualitative indicators. Over time, the data they collect can be compared with \nbaseline assessments to monitor trends and track \nimprovements (or declines) in treatment access and \nservice quality. \n\u2022 Data collection.  Data collectors use data collection \ntools at each site as often as specified in the \nfinal operational plan (for example, monthly or \nquarterly).\n\u2022 Data verification . The data supervisor(s) review \nsubmitted data, verify information sources and Evidence\n\n  13   \nvalidate the data at monthly or quarterly intervals, \nas specified in the final operational plan. \n\u2022 Data entry. Once the data have been verified, \ndata supervisors deliver it to the focal point lead \nor another designated team member, who enters it \ninto the database. During this time, the focal point \nlead consults regularly with the CCG and academic \ninstitution to highlight any good practices  \nand/or challenges in the data collection processes \u2014 \nin parallel, they look at systems that can be used to \nproblem-solve and provide follow-up on advocacy.\n\u2022 Data management and storage.  If data are being \ncollected with a standard paper-based form and/or \nquestionnaire, the operational plan should outline \nstandard procedures for safeguarding, storing  \nand/or discarding them after they have been \nentered into the computer\u2019s database. The \nprocedure for storing or discarding paper forms \nshould comply with Institutional Review Board \n(IRB) protocols to ensure safeguarding of sensitive \nand/or identifying information. Physical forms, \nquestionnaires, notes from meetings and any other reports from interviews and focus group \ndiscussions should be stored in locked cabinets. \nDocuments may also be scanned and uploaded \nto a central database as backup to minimize data \nloss and enhance data security.", "start_char_idx": 19308, "end_char_idx": 21594, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "4c9157e1-5c0f-4678-b596-4d156f4dc0c6": {"__data__": {"id_": "4c9157e1-5c0f-4678-b596-4d156f4dc0c6", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "d33293e6-33c2-4e12-9251-cde25e258f52", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "3b4cd89e5f86f0a0632546c658585a9c2ddd68581d30f19f49efaed94a867509", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "929d2de3-b4bc-4b65-9020-7fe385e6080e", "node_type": "1", "metadata": {}, "hash": "6442c927afdb25330792746c1289756b3466d03c5a4bc16d65297f8bc6291558", "class_name": "RelatedNodeInfo"}}, "hash": "7153b39efc5352265cdea17058cb5ccb3db8bc6323d1bda4ef8817fb9106267b", "text": "Documents may also be scanned and uploaded \nto a central database as backup to minimize data \nloss and enhance data security. If data are being \ncollected electronically, management procedures \nshould ensure that they are recorded and stored in \nstandardized formats to ensure consistency for ease \nof access, reviewing, analysis and reporting. \n\u2022 Data review and analysis.  After data are entered \ninto the database, the CLM focal point lead \nperforms a first-level analysis to verify its timeliness, \ncompletion, clarity and coherence. If there are no \nissues that require additional review, the focal \npoint lead (and/or monitoring and evaluation \nspecialist, if part of the implementing team) can \nbegin conducting a more in-depth analysis. Key \nconsiderations for analysis include: Are the data \ndemonstrating progress towards targets? Is it \npossible to link data to any outcomes? Which \ndata are most useful for advocacy? Are there any \nindicators for which data have not been available? \nCLM MODEL EXPLAINED AND IMPLEMENTED BY QUADRANT\n\n14   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nIf so, why? Is the indicator still relevant? Are there \nany data or trends in the data that raise questions? \nIf so, what are the next steps for addressing these? \nDepending on the capacity of the CLM implementer, \nan academic or research institution or other experts \ncan provide assistance with data analysis  \nand/or performing data quality audits to ensure \ntheir validity. Universities and research institutions \nhave often supported CLM implementers to develop \nthe data analysis frameworks, train and perform \ndata analysis and/or conduct data quality audits to \nrefine the indicators and/or data collection methods.\u2022 Data quality audit.  In addition to the routine data \nquality review and analysis conducted by the data \nsupervisor(s) and focal point lead, it is critical \nto conduct formal data supervision and quality \nassessments. This process involves field visits, \nwhere the implementing team can troubleshoot any \nissues that would lead to inaccurate, incomplete \nand/or unreliable data.", "start_char_idx": 21469, "end_char_idx": 23585, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "929d2de3-b4bc-4b65-9020-7fe385e6080e": {"__data__": {"id_": "929d2de3-b4bc-4b65-9020-7fe385e6080e", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "4c9157e1-5c0f-4678-b596-4d156f4dc0c6", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "7153b39efc5352265cdea17058cb5ccb3db8bc6323d1bda4ef8817fb9106267b", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "86caabda-b266-4fdd-a78c-35e69b6a305d", "node_type": "1", "metadata": {}, "hash": "759cf784184421d29288528981d0e501544c1fc096798489e35cea1fa6eee4ac", "class_name": "RelatedNodeInfo"}}, "hash": "6442c927afdb25330792746c1289756b3466d03c5a4bc16d65297f8bc6291558", "text": "This process involves field visits, \nwhere the implementing team can troubleshoot any \nissues that would lead to inaccurate, incomplete \nand/or unreliable data.\nBy 2020, 90% of people living with HIV will know their status\nBy 2020, 90% of people living with HIV will know their status and will be receiving sustained ART\nBy 2020, 90% of all people receiving antiretroviral therapy will have viral suppressionSnapshot of regional advoacy priorities\nAdvocacy priorities for the RCTO-WA, set by the Regional Advisory Board in October 2018\n >Expand the availability of non-facility-based HIV testing options , including community-led and \ncommunity-based HIV testing services (HTS)\n >Intensify HIV communication and awareness campaigns to increase demand for HTS\n >Include objectives to  promote and protect human rights  of people living with HIV and key populations \nin costed HIV strategic plans\n >Improve communication along the supply chain to prevent stock-outs  of antiretrovirals\n >Enhance  linkage to \u2014 and retention in \u2014 care and treatment, especially for key and vulnerable \npopulations\n >Strengthen community systems and responses to support the roll out of differentiated service delivery\n >Increase funding to ensure the availability of adequate viral load testing machines  and laboratory \nsupplies\n >Enhance knowledge among people living with HIV and healthcare workers to  increase demand for  \nhigh-quality viral load testing services\n >Ensure effective treatment monitoring through acceptable turnaround times for viral load test results\n\n  15   \nEngagement  develops from partnerships between \na variety of stakeholders; it increases the visibility and \nimpact of advocacy. Engagement provides communities \nand health care providers with a platform for convening \nand sharing data to facilitate improved health outcomes \nfor recipients of care. \nEngagement facilitates collaboration in identifying, \nimplementing and sustaining solutions, and furthers \ngovernment investment in, and accountability for, \nimproving the reach and quality of HIV services and \ntheir delivery. For example, CLM implementers can \norganise meetings with health facilities and/or district \nand national decision makers, where data are reviewed \nand solutions are co-created to mitigate identified gaps \nin treatment and service delivery. \nCLM and related advocacy engagement is facilitated \nthrough a community consultative group (CCG), which is a multistakeholder technical advisory board \nthat provides essential support.", "start_char_idx": 23425, "end_char_idx": 25940, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "86caabda-b266-4fdd-a78c-35e69b6a305d": {"__data__": {"id_": "86caabda-b266-4fdd-a78c-35e69b6a305d", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "929d2de3-b4bc-4b65-9020-7fe385e6080e", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "6442c927afdb25330792746c1289756b3466d03c5a4bc16d65297f8bc6291558", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "2c24a0d1-5e43-4a4b-9f32-441f0de211c2", "node_type": "1", "metadata": {}, "hash": "1cd2865bc80f583ef54e3ccc9004f709fcb133d2c3a073e01e70c08d653ce36e", "class_name": "RelatedNodeInfo"}}, "hash": "759cf784184421d29288528981d0e501544c1fc096798489e35cea1fa6eee4ac", "text": "CLM and related advocacy engagement is facilitated \nthrough a community consultative group (CCG), which is a multistakeholder technical advisory board \nthat provides essential support. The CCG is made up \nof representatives from national networks of people \nliving with HIV, key populations, and recipients of care. \nThe CCG contributes data collection tools, supports \nimplementation of CLM, helps with data analysis, and \ngives direction on organizational decisions. The CCG \nalso creates an evidence-based advocacy agenda. It \nmeets on a monthly or quarterly basis to review data \nthat have been cleaned, validated and analysed and \nto prioritize advocacy issues. During CCG meetings, \ncommunities and decision makers strategize on ways to \naddress issues and solve problems. This process is the \nframework for collaboration since relationship-building \nenhances effectiveness of work between stakeholders \nwho are mutually invested in positive health outcomes \nfor their communities and their programmes.Engagement\nWhy engagement matters  \nCLM stakeholders are representatives from networks of people living with HIV, including key \npopulations, officials from health care facilities and ministries of health, policy makers and academic \npartners; all are invested in achieving the best possible outcomes from national AIDS programmes. \nThus, CLM is an effective way to solve problems collaboratively. \nThe purpose of HIV CLM is to improve access to \nand quality of HIV treatment and services through \nevidence-based advocacy  and to identify innovations \nand good practices that can be sustained, replicated \nand brought to scale.\nWhen data collection reveals gaps in access to and \nquality of services, stock-outs of medicines, laboratory \nsupplies and other essential commodities and other \nproblems (the evidence), community members advocate \nfor solutions to these issues. Evidence-based advocacy uses targeted actions to \nchange norms, guidelines, standards and policies that \ndirectly affect the health of people living with and \nat risk for HIV. This advocacy is aimed at improving \nindividual and community health outcomes at local, \nsubnational, national, regional and global levels. Table 2 \nprovides examples of successful CLM.", "start_char_idx": 25756, "end_char_idx": 27999, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "2c24a0d1-5e43-4a4b-9f32-441f0de211c2": {"__data__": {"id_": "2c24a0d1-5e43-4a4b-9f32-441f0de211c2", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "86caabda-b266-4fdd-a78c-35e69b6a305d", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "759cf784184421d29288528981d0e501544c1fc096798489e35cea1fa6eee4ac", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "87cd4a76-b840-4d73-b089-e50f8d5ec7c1", "node_type": "1", "metadata": {}, "hash": "3120967567f95035ce084142c362bdc5098ce7a25a673ba94105dcee23e4a7af", "class_name": "RelatedNodeInfo"}}, "hash": "1cd2865bc80f583ef54e3ccc9004f709fcb133d2c3a073e01e70c08d653ce36e", "text": "This advocacy is aimed at improving \nindividual and community health outcomes at local, \nsubnational, national, regional and global levels. Table 2 \nprovides examples of successful CLM.\nWhen it is not possible to co-create solutions, \ncommunities and treatment activists often forge ahead \nto address their needs and hold decision makers Advocacy\nCLM MODEL EXPLAINED AND IMPLEMENTED BY QUADRANT\n\n16   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\naccountable, using watchdogging and/or participatory \nmonitoring and accountability approaches. As an \nexample, the Initiative for Equity uses participatory \ncitizen monitoring and accountability as a method \nfor \u201c\u2026 effective involvement by community members \nin the decisions that affect their lives. Rather than \nsuffering under poor decisions and implementation \nby governments, agencies, and businesses, which can \nbe ineffective, corrupt, or actively harmful, it helps \ncommunity members and civil society groups to gather \ninformation, document problems, and insist that laws \nare followed and promises met. Forming alliances with other communities and organizations which have the \nsame objectives can help to greatly strengthen the \nmonitoring and accountability outcomes. Participatory \nmonitoring is a well-organized and ongoing activity \nin which community members and civil society \norganizations gather information on their analysis \nand priority issues in a way that answers the essential \nquestions: what are people experiencing? how is it \naffecting people? is the policy or program working? \nwhat are the problems? what could be done better? \nwhat are people\u2019s priorities for change? \u201d3 \n( 3 )  https:/ /www.initiativeforequality.org/what-we-do/citizen-monitoring/participatory-citizen-monitoring/TABLE 2  The power of CLM and related advocacy \nINDICATOR ADVOCACY OUTCOMES  \nViral load testing in West AfricaIncrease community treatment literacy, \ncreate demand for, and increase access \nto, viral load testing.From mid-2018 to mid-2019, the number \nof viral load tests increased from 16,532 \nto 33,376.", "start_char_idx": 27814, "end_char_idx": 29898, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "87cd4a76-b840-4d73-b089-e50f8d5ec7c1": {"__data__": {"id_": "87cd4a76-b840-4d73-b089-e50f8d5ec7c1", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "2c24a0d1-5e43-4a4b-9f32-441f0de211c2", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "1cd2865bc80f583ef54e3ccc9004f709fcb133d2c3a073e01e70c08d653ce36e", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "a67d6d45-c2f5-4ece-8920-f5bc902255d8", "node_type": "1", "metadata": {}, "hash": "9deae746fe4982b3cdfe0c4179cedffbabd50326930a5a88376ab0d735c45135", "class_name": "RelatedNodeInfo"}}, "hash": "3120967567f95035ce084142c362bdc5098ce7a25a673ba94105dcee23e4a7af", "text": "Viral load testing in MalawiIncrease frequency of and access to \nviral load testing.CLM data were used to advocate for a \nchange in the national guidelines from \nrecommending viral load testing every \n24 months to recommending it every 12 \nmonths.\nStigma in health care facilities, \nespecially among members of key \npopulations (data collectors who \nwere members of key populations \ninterviewed other key population \nmembers and health care workers \nabout stigma)Address or diminish stigma in health \ncare settings.Health care workers became sensitized \nthanks to training provided; members of \nkey populations were informed of their \nrights during interviews.\nARV stock-outs in ZimbabweDetermine the cause (s) and work to \neliminate stock-outs.Stock-out duration was reduced by 13 \ndays. \nAccess to HIV testing and treatment \nin C\u00f4te d\u2019 IvoireRemove barriers. User fees for HIV testing and treatment \nwere eliminated. \n\n  17   \nCLM and related advocacy go further than research \nand monitoring and evaluation (M&E) initiatives, which \ncollect and analyse data. CLM and related advocacy link \ndata collection and analysis directly with partnerships \nfor rapid problem solving and advocacy to achieve and \nmaintain solutions.The interventions of CLM (education and data collection \nwith secure storage, and validation and analysis in the \ncontext of multistakeholder engagement) are done with \nthe ultimate goal of informing advocacy to improve \nhealth care delivery and health outcomes, which result \nin better health outcomes for communities.\nResults from ITPC Regional Community Treatment Observatory  \n(2017-2019)  \nITPC implemented a CLM and related advocacy model (called the Regional Community Treatment \nObservatory, or RCTO), which united the organizations performing CLM in West and Southern Africa. \nThree years after the RCTO was implemented across West Africa, stock-outs of ART and laboratory \nreagents for viral load testing decreased by 8.4% and 10.7%, respectively. At the same time, 23,618 more \npeople were initiated on ART and 16,844 additional viral load tests were performed. During this period, \nthe average rating for quality of care rose from 3.8 to 4.2 (of 5).", "start_char_idx": 29899, "end_char_idx": 32084, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "a67d6d45-c2f5-4ece-8920-f5bc902255d8": {"__data__": {"id_": "a67d6d45-c2f5-4ece-8920-f5bc902255d8", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "87cd4a76-b840-4d73-b089-e50f8d5ec7c1", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "3120967567f95035ce084142c362bdc5098ce7a25a673ba94105dcee23e4a7af", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "331f8f6a-6a81-47e9-b7a0-bbb9413d5db3", "node_type": "1", "metadata": {}, "hash": "c94f47036f8149a94fa3db8c8192611178b22aff0a25bcff7f87ca34e7b0c3d1", "class_name": "RelatedNodeInfo"}}, "hash": "9deae746fe4982b3cdfe0c4179cedffbabd50326930a5a88376ab0d735c45135", "text": "During this period, \nthe average rating for quality of care rose from 3.8 to 4.2 (of 5). At the national level, rates of HIV testing \nand ART uptake increased among key populations in Sierra Leone: treatment monitoring improved among \npeople on ART in Mali; site-level data tracking mechanisms were revised in the Gambia; and user fees, \nwhich were a major access barrier to HIV services, were eliminated in C\u00f4te d\u2019Ivoire. ITPC developed a time- and scope-limited CLM and related advocacy project to monitor access to care \nand treatment for HIV and TB, as well as health and human rights experiences, among recipients of care \nover three months in five countries. In Sierra Leone, NETHIPS, one of ITPC\u2019s partner organizations, aimed \nto collect data on the number of people who experienced ART failure. Within a month of monitoring, \nNETHIPS discovered that data on HIV treatment failure was not included in current service registers. \nNETHIPS initiated a conversation with the National AIDS Control Programme (NACP), where it learned that \na committee examines treatment failure on an individual basis and records the information on appointment \ncards. In some facilities, these data are stored separately from the facility\u2019s master register. NETHIPS used \nthe conversation to secure a commitment from the NACP to develop new service registers that include \nindicators on HIV treatment failure. CLM IN THE TIME OF COVID-19\n\u201cThat is the beauty of projects like this.  \nThey identify how people fall through the cracks.\u201d \n\u2014 MARTIN ELLIE, NETWORK OF HIV POSITIVES IN SIERRA LEONE (NETHIPS), SIERRA LEONE\nCLM MODEL EXPLAINED AND IMPLEMENTED BY QUADRANT\n\n18   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nCATEGORIES AND \nSCALE OF CLM \nIt is critical to determine the scale and category of CLM based on the budget \nceiling, the host organization\u2019s capacity and the timeline for implementation, \namong other factors. Planners should strive to obtain a representative sample \nsize. This depends on the total population size (or the total number of people \nliving with HIV) using the facility (for pilots), in the district (for subnational-level \nCLM) or in the country (for national-level CLM).", "start_char_idx": 31996, "end_char_idx": 34202, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "331f8f6a-6a81-47e9-b7a0-bbb9413d5db3": {"__data__": {"id_": "331f8f6a-6a81-47e9-b7a0-bbb9413d5db3", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "a67d6d45-c2f5-4ece-8920-f5bc902255d8", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "9deae746fe4982b3cdfe0c4179cedffbabd50326930a5a88376ab0d735c45135", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "ae2d5f3d-7ee8-4df8-999f-296ec5a55574", "node_type": "1", "metadata": {}, "hash": "2eb45bdd92f37c0e41014cc7175143f70ee0b7b8c5e122a7ba36bcd26c1af4d2", "class_name": "RelatedNodeInfo"}}, "hash": "c94f47036f8149a94fa3db8c8192611178b22aff0a25bcff7f87ca34e7b0c3d1", "text": "This depends on the total population size (or the total number of people \nliving with HIV) using the facility (for pilots), in the district (for subnational-level \nCLM) or in the country (for national-level CLM). \nThere are three categories of implementation  that the host organization can \nassess to determine \u201cright fit\u201d. These are:\n\u2022 Pilot/urban-level CLM.  This is small scale and usually implemented in one or two health \nfacilities in an urban area or capital city. For a population of <10,000 people living with HIV, \nsample at least 20-25% of them.  \n \nIn some situations, the small size may give the host organization a chance to pilot CLM and \nbuild capacity for implementing larger-scale work. Once the pilot is completed, CLM can be \nscaled up based on such aspects as skills, budget and timeline. However, this category may be \nthe most appropriate for very local-level advocacy and may not require scale up. \n\u2022 Subnational-level CLM. This level of implementation goes across two or three \nsubnational areas (for example, districts, provinces and regions), collecting data from a \npopulation of 10,000-100,000 people living with HIV and sampling at least 10-15% of them. \nData can be collected from up to 50 health facilities, based on aspects such as skills, budget \nand timeline.\n\u2022 National-level CLM. Data can be collected from 51+ health facilities, based on aspects \nsuch as skills, budget and timeline. A national CLM and related advocacy model works for a \npopulation of >100,000 people living with HIV, sampling at least 3-5% of them.\n\n  19   \n STRUCTURE AND ROLES OF THE CLM MODEL STRUCTURE AND \nROLES OF THE CLM \nMODEL \nThe following structures are required to \nimplement CLM: \nThe host organization or CLM implementer \nor community network. CLM should not be \nbuilt as a standalone project. To create a solid \nand sustainable foundation for CLM, it should be \nembedded in, and owned by, an existing organization. \nThis will ensure that CLM is integrated within the \nlarger system. \nData collection sites.", "start_char_idx": 33990, "end_char_idx": 36019, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "ae2d5f3d-7ee8-4df8-999f-296ec5a55574": {"__data__": {"id_": "ae2d5f3d-7ee8-4df8-999f-296ec5a55574", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "331f8f6a-6a81-47e9-b7a0-bbb9413d5db3", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "c94f47036f8149a94fa3db8c8192611178b22aff0a25bcff7f87ca34e7b0c3d1", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "90c53de1-d757-4217-8236-4d8034016c5e", "node_type": "1", "metadata": {}, "hash": "7da80685806091b4280c99a94b03352b29c6fe9b26550fea6ad3fa358b191ee3", "class_name": "RelatedNodeInfo"}}, "hash": "2eb45bdd92f37c0e41014cc7175143f70ee0b7b8c5e122a7ba36bcd26c1af4d2", "text": "To create a solid \nand sustainable foundation for CLM, it should be \nembedded in, and owned by, an existing organization. \nThis will ensure that CLM is integrated within the \nlarger system. \nData collection sites.  Data can be collected at \npublic and/or private health facilities, community-\nbased service delivery facilities and/or community \nservice points (for example, community groups). Data collection sites are determined by factors such \nas urban versus rural, HIV prevalence, volume of \nrecipients of care, large hospital versus community \ncentres, and willingness to participate. Once sites \nare selected, a formalized partnership should be \nestablished between the host/community organization \nand the site via a memorandum of understanding \n(MoU) or other working agreement. Depending on the \ntype of site (for example, public health facility), it may \nalso be necessary to establish a working agreement \nwith the MoH to ensure that the host organization will \nbe able to access and collect data as needed.Structures \nCommunity-led organizations  \nCommunity-led organizations, groups and networks, whether formally or informally organized, are \nentities:\n\u2022 For which the majority of governance, leadership, staff, spokespeople, membership, and volunteers, \nreflect and represent the experiences, perspectives, and voices of their constituencies\n\u2022 Who have transparent mechanisms of accountability to their constituencies \nCommunity-led organizations, groups and networks are self-determining and autonomous, and not \ninfluenced by government, commerical or donor agendas.\nNot all community-based organizations are community-led.\n\n20   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nCLM requires a team to oversee and \nfacilitate its implementation. At a minimum, \nthe team should include (and provide \nfinancial support for): \nFocal point lead.  This person has oversight of \nCLM implementation. The focal point person will \nalso facilitate community consultative group (CCG) \nmeetings, dialogues with sites, work with health \nofficials to ensure that formal agreements for data \ncollection are in place, ensure project visibility, and \nensure national ownership of the project, and that \ninsights from data are used for targeted advocacy. \nM&E officer. The M&E officer has oversight of \ncommunity data collection, management, analysis and \nverification processes.", "start_char_idx": 35806, "end_char_idx": 38199, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "90c53de1-d757-4217-8236-4d8034016c5e": {"__data__": {"id_": "90c53de1-d757-4217-8236-4d8034016c5e", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "ae2d5f3d-7ee8-4df8-999f-296ec5a55574", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "2eb45bdd92f37c0e41014cc7175143f70ee0b7b8c5e122a7ba36bcd26c1af4d2", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "052e2804-80ae-44e5-bf24-7698b128b5f0", "node_type": "1", "metadata": {}, "hash": "2122da2a62192de506d2aa9d728515c384d98adb94363eacd45131f591fca410", "class_name": "RelatedNodeInfo"}}, "hash": "7da80685806091b4280c99a94b03352b29c6fe9b26550fea6ad3fa358b191ee3", "text": "M&E officer. The M&E officer has oversight of \ncommunity data collection, management, analysis and \nverification processes. The M&E officer is responsible \nfor overseeing capacity-building, providing technical \nsupport on data collection and management processes \nfor data supervisors and data collectors, developing \nand reviewing reports generated from community \ndata before they are disseminated to the CCG and \nexternal stakeholders, distilling data insights from \ncountry-level reports to macrolevel, and general data \nmanagement oversight.Data supervisor. The data supervisor is \nresponsible for collating data across all collection sites, \nconducting data verification and cleaning the data. \nDepending on the number of data collection sites, \nthere may be several data supervisors, each managing \na team of data collectors and data collection from \ncorresponding sites. \nData collectors.  Each data collector is responsible \nfor collecting data from specific sites. Data collectors \ninteract directly with health facilities or service \ndelivery points to collect quantitative data. They also \ncollect qualitative data by conducting key informant \ninterviews and holding focus group discussions with \nrecipients of care, community members and other \nstakeholders. One data collector per site is usually \nsufficient, but this varies, depending on the volume \nand frequency of data collection. For example, in cases \nwhere data collectors need to visit data sites only once \na month for quantitative data, it could be feasible \u2014 \nand more efficient \u2014 to have one data collector cover \nmultiple sites. \nA pair of technical advisory groups support \nthe host organization, CLM implementer and \ncommunity network in implementing CLM:\nAcademic institution. A partnership with an \nacademic institution should be formalized through an \nMoU or contract. Such a partnership is invaluable for \nbuilding capacity among community members who are \nimplementing CLM. Ideally, a local academic partner \nwill provide ongoing technical assistance, including \nhelping to develop the data collection tool, performing \ndata analysis and data quality audits. Academic \ninstitutions can also facilitate ethical processes, \nwork with an IRB and assist with publishing and disseminating data in peer-reviewed journals and at \nconferences. If a formal relationship with an academic \ninstitution is not possible, other external partners \nor individuals (such as graduate students, research \nexperts, consultants and technical agencies) can \nsupport these processes. \nCommunity consultative group.", "start_char_idx": 38076, "end_char_idx": 40652, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "052e2804-80ae-44e5-bf24-7698b128b5f0": {"__data__": {"id_": "052e2804-80ae-44e5-bf24-7698b128b5f0", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "90c53de1-d757-4217-8236-4d8034016c5e", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "7da80685806091b4280c99a94b03352b29c6fe9b26550fea6ad3fa358b191ee3", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "ba6324f3-7fe3-4b15-b33e-c785962700f2", "node_type": "1", "metadata": {}, "hash": "6e5d761067f655047827851f27bb237319b399e204ca0aafaea6b79a081c5ec4", "class_name": "RelatedNodeInfo"}}, "hash": "2122da2a62192de506d2aa9d728515c384d98adb94363eacd45131f591fca410", "text": "If a formal relationship with an academic \ninstitution is not possible, other external partners \nor individuals (such as graduate students, research \nexperts, consultants and technical agencies) can \nsupport these processes. \nCommunity consultative group.  To ensure that \nCLM is responsive to the community and its needs, the \nimplementing network must set up and collaborate \nwith a CCG. The CCG supports CLM implementation, \ncontributes to development of data collection tools, \nhelps with data analysis, and gives direction on \norganizational decisions. The CCG is comprised of key The implementation team\nTechnical advisory groups \n\n  21   \nstakeholders. These include representatives of civil \nsociety organizations, national networks of people \nliving with HIV and key populations, health care \nfacilities, recipients of care, staff from UNAIDS country \noffices and regional support teams, and other funding \npartners, such as the US President\u2019s Emergency Plan \nfor AIDS Relief (PEPFAR) and the Global Fund, as \nwell as high-level decision makers (from the MoH and \nnational AIDS programme, for example). The CCG \nserves three purposes: \n1. Reviewing and analyzing collected data\n2. Developing an advocacy agenda (based on \nvalidated data) and identifying strategic \nopportunities to facilitate advocacy actions\n3. Finding and leveraging opportunities to sustain \nCLM beyond current grant funding\nThe CCG identifies advocacy priorities and develops an \naction plan, which includes monitoring and assessing \nthe impact of trends and changes.", "start_char_idx": 40397, "end_char_idx": 41944, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "ba6324f3-7fe3-4b15-b33e-c785962700f2": {"__data__": {"id_": "ba6324f3-7fe3-4b15-b33e-c785962700f2", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "052e2804-80ae-44e5-bf24-7698b128b5f0", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "2122da2a62192de506d2aa9d728515c384d98adb94363eacd45131f591fca410", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "3450e324-a100-4f65-a818-7d86ef4dd1dc", "node_type": "1", "metadata": {}, "hash": "0888048de739029e9d3d2dbbee884dbdee9575cb958ba547105f5891ec3151a6", "class_name": "RelatedNodeInfo"}}, "hash": "6e5d761067f655047827851f27bb237319b399e204ca0aafaea6b79a081c5ec4", "text": "Finding and leveraging opportunities to sustain \nCLM beyond current grant funding\nThe CCG identifies advocacy priorities and develops an \naction plan, which includes monitoring and assessing \nthe impact of trends and changes. The CCG is \nresponsible for: \n\u2022 Reviewing and endorsing data (using established \ndata verification processes)\n\u2022 Providing technical and strategic guidance to \nimprove the data collection process in partnership \nwith academic partners or independent experts\n\u2022 Identifying advocacy agendas and/or issues and \ndeveloping an evidence-based advocacy plan\n\u2022 Supporting the implementing partner in building \nthe visibility of CLM and related advocacy \n\u2022 Accessing national policy and political forums with \nthe host organization to present and integrate data \ninto health information policies and systems\n\u2022 Supporting the host organization in implementing \nthe advocacy plan and actions\n\u2022 Supporting the implementing partner to mobilize \nresources for sustaining CLM and related advocacy \nbeyond the current grant funding\n Composition of the community consultative \ngroup\nThe CCG has 10-15 members, including a chair, a  \nvice-chair and members from these categories: \n\u2022 Normative agencies. This can include UNAIDS, \nPEPFAR, WHO and the Global Fund. \n\u2022 Government organizations.  This can include \nrepresentatives from the national AIDS and/or TB \nprogrammes and other government counterparts. \n\u2022 Civil society organizations.  This can include \nstrategic partners from civil society organizations.\n\u2022 Partners.  This can include target populations, \nmembers of key populations and national people \nliving with HIV networks.\n\u2022 Research institute or independent expert.   \nPeople with relevant expertise can be invited to join \nthe CCG.\nThe host organization acts as the CCG secretariat. \nConfidentiality:  All data presented in CCG meetings \nor that CCG members have access to is confidential. \nAny external use or discussion of data requires prior \nauthorization from the CCG chair. \nMethodology: The CCG meets monthly after academic \npartners or independent experts have completed data \nquality review and analysis. When possible, meetings \nshould be face to face (due to COVID-19, meetings \ncould be held virtually).\nDepending on the circumstances, external experts \ncan be invited to CCG meetings to provide advice and \nguidance on data interpretation and maximizing the \nimpact of evidence through advocacy.", "start_char_idx": 41719, "end_char_idx": 44148, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "3450e324-a100-4f65-a818-7d86ef4dd1dc": {"__data__": {"id_": "3450e324-a100-4f65-a818-7d86ef4dd1dc", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "ba6324f3-7fe3-4b15-b33e-c785962700f2", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "6e5d761067f655047827851f27bb237319b399e204ca0aafaea6b79a081c5ec4", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "3cbc2cf8-de1c-4327-afa3-103dfe634c67", "node_type": "1", "metadata": {}, "hash": "3eb924cfa261055a6bb2ddad15acb4a1276af65243d716b09fac8ea8d3ce7102", "class_name": "RelatedNodeInfo"}}, "hash": "0888048de739029e9d3d2dbbee884dbdee9575cb958ba547105f5891ec3151a6", "text": "Depending on the circumstances, external experts \ncan be invited to CCG meetings to provide advice and \nguidance on data interpretation and maximizing the \nimpact of evidence through advocacy. \nSTRUCTURE AND ROLES OF THE CLM MODEL \n\n22   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nDefine the main premise.  \nThink of your audience and decide what you want them to know or remember. \nPlan the script and the narrative.  \nFor your audience to know or remember your main premise, what do they need to see \nor hear? Consider the need for a script, text or audio to convey your message.  \nIdentify supporting media.  \nWhat do you want your audience to see, sense or feel? For this, think about the possible \nneed for pictures, videos, graphs, tables, quotes or interactives. 1\n32TECHNOLOGY \nINTEGRATION \nWhen you think of CLM and the data it captures as a story, you will have a better \nidea of how technology can be harnessed to help you tell that story. You might try \nthinking of data as a character in your story, and then think of the best way to take \ncare of your cast (see Figure 3). The role of technology in the data journey\nWhen determining how technology \ncan be integrated into CLM, the first \nstep is to ask yourself, \u201cWhat am I \ntrying to communicate?\u201dACTIVITY:\nTELL ME\nA STORY\n\n  23   \n TECHNOLOGY INTEGRATIONFIGURE 2 Considerations for technology use in CLM: Amplifying your story \n >Who are these data for?\n >Should they be restricted or \navailable for everyone (open \ndata)?\n >Rules on permissions and \naccess?\n >How will we store the data?\n >Where will we store the \ndata?\n >Do we need backups?\n >How long do we keep the \ndata?\n >Who owns the data?\n >Who can access it?\n >When can they access it?\n >What stage will data be \naccessible?\n >Do ownership rights expire? >Who are we surveying?\n >Who are we not surveying?\n >How will we reach them?\n >Are we authorized to survey \nthem?\n >How will we collect the \ndata?\n >How will we organize the \ndata?", "start_char_idx": 43956, "end_char_idx": 45937, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "3cbc2cf8-de1c-4327-afa3-103dfe634c67": {"__data__": {"id_": "3cbc2cf8-de1c-4327-afa3-103dfe634c67", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "3450e324-a100-4f65-a818-7d86ef4dd1dc", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "0888048de739029e9d3d2dbbee884dbdee9575cb958ba547105f5891ec3151a6", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "e00a21d2-14b1-44c8-b74c-050de2c65312", "node_type": "1", "metadata": {}, "hash": "df13eed185e2d4f7cf32a70fb93f56c5ea8262f9a91b89f9d81621babb052fe9", "class_name": "RelatedNodeInfo"}}, "hash": "3eb924cfa261055a6bb2ddad15acb4a1276af65243d716b09fac8ea8d3ce7102", "text": ">Who are we not surveying?\n >How will we reach them?\n >Are we authorized to survey \nthem?\n >How will we collect the \ndata?\n >How will we organize the \ndata?\n >How will we transfer the \ndata?\n >Who will use this data?\n >How will they use it?\n >Who will use what they \nmade with the data?\n >Do we need to track usage? >Why are we gathering data?\n >What is it meant to show us?\n >What will it track?\n >How can we use what we \nfind?\n >What kind of data are we \ngathering?\n >Text, numbers, audio, video, \nlocation, behaviour?\n >Are we interested in what \npeople do (activity) and how \nthey think (motivations)?\n >Can the data put anyone at risk?\n >How do we keep everyone safe?\n >What info do we NEED and what \ndo we NOT need?\n >What info can we anonymize?\n >What protocols are in place in \ncase of a breach?AUDIENCE\nSTORAGE\nOWNERSHIPSUBJECT\nCOLLECTION\nUSAGEPURPOSE\nTYPES\nSECURITY\n\n24   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nNext, follow the \u201cdata journey\u201d in Table 3 to see what kind of technology you need \nat different steps in the process. The data journey spans six main phases:\nConcept and configuration. Plan indicators and questions, expected responses and potential \ninsights and/or trends. This planning exercise will ensure that the team knows what information it \nis collecting and how they will be expected to use it. Technology infrastructure setup and training \nalso occur at this point.\nCapture and collection.  Data collectors embark on their mission, armed with their recording \ntools (paper worksheets for written data and responses, mobile device for photos, and audio \nrecordings.) All assets collected will be appropriately prepared (including scanned, exported, \ntranscribed and summarized) for the next phase.", "start_char_idx": 45781, "end_char_idx": 47534, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "e00a21d2-14b1-44c8-b74c-050de2c65312": {"__data__": {"id_": "e00a21d2-14b1-44c8-b74c-050de2c65312", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "3cbc2cf8-de1c-4327-afa3-103dfe634c67", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "3eb924cfa261055a6bb2ddad15acb4a1276af65243d716b09fac8ea8d3ce7102", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "ad9a59bc-334b-479f-a54b-c1440d7b7bfd", "node_type": "1", "metadata": {}, "hash": "0d202eac4e29c1b9b1408d07d0fd88f482f1bab120e374632bd0daa6b7f0b670", "class_name": "RelatedNodeInfo"}}, "hash": "df13eed185e2d4f7cf32a70fb93f56c5ea8262f9a91b89f9d81621babb052fe9", "text": "All assets collected will be appropriately prepared (including scanned, exported, \ntranscribed and summarized) for the next phase. Mobile phones are preferable to tablets in the \nfield because phones are :\n >Smaller and more discrete, reducing the risks of data collectors becoming targets of security \nenforcers or other bad actors who may want to confiscate their devices\n >Better equipped with noise-cancelling technology for audio recordings of interviews\n >More appropriate for use since data collectors will not be showing the content to interviewees \n(in which case a larger screen would be helpful for shared review) \n >More familiar to data collectors, so they will require less training to use than tablets or other \ndevices\n >Equipped with high-quality cameras for contextual photos (not of individuals) and document \nscanning (as part of the data collection process) \nReview and verification. CLM data supervisors will receive and collate data and verify that \nthe collected data meet quality checks and are labelled properly before final packaging and secure \nsubmission to a secured data portal (via computer). The portal will be the primary datastore/\nsource for all CLM and related advocacy records.\nAnalysis and evaluation. Once available in the portal, the analysis team will be able to access \nand evaluate the data that have been collected. Team members will be allowed to extract a copy \nof the available data and will be expected to submit and link/upload any processed outcomes back \nonto the portal (attributing the relevant source to the derivative product or report).\nReporting and distribution. The analysis team will communicate with the CLM team about \nany adjustments or preliminary findings on an ongoing basis. Additionally, any completed reports \nwill be available on the portal for the CLM team, so that they remain aware of emerging findings. \nAdvocacy and implementation. The outcomes from the analysis and reporting can be \ncrafted into appropriate messages, evidence and visualizations that can be used to support \nadvocacy and implementation efforts from civil society and partners.", "start_char_idx": 47404, "end_char_idx": 49525, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "ad9a59bc-334b-479f-a54b-c1440d7b7bfd": {"__data__": {"id_": "ad9a59bc-334b-479f-a54b-c1440d7b7bfd", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "e00a21d2-14b1-44c8-b74c-050de2c65312", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "df13eed185e2d4f7cf32a70fb93f56c5ea8262f9a91b89f9d81621babb052fe9", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "7fbe8d73-12bb-4056-aa6c-6d00ed9d4838", "node_type": "1", "metadata": {}, "hash": "353281447a6ac22c739848d2f619e4565e5aca2680a8c32a5a34ee2983b2e86b", "class_name": "RelatedNodeInfo"}}, "hash": "0d202eac4e29c1b9b1408d07d0fd88f482f1bab120e374632bd0daa6b7f0b670", "text": "Advocacy and implementation. The outcomes from the analysis and reporting can be \ncrafted into appropriate messages, evidence and visualizations that can be used to support \nadvocacy and implementation efforts from civil society and partners.1\n3\n52\n4\n6MAIN PHASES OF THE DATA JOURNEY\n\n  25   \n TECHNOLOGY INTEGRATIONThe phases of CLM and how different \ntechnologies can be integrated along the way THE  \nDATA\nJOURNEY\n >Design \nindicators for \nobservation \n >Confirm data \nformat for \nanalysis \n >Consider data \nformat for \ncapture \n >Consider data \ntransformations \nneeded \n >Consider data \njourney, transfer \nand storage\n >IRB clearance\n >Team training\n >Configure data \nstorage \n >Configure data \ncapture format\n >Configure data \ncapture tools \n >Configure data \ntransfer tools \n >Configure data \nstorage and \nbackup \n >Configure \ncontent and \ntranslations \n >Test data \ncapture process\n >Database \n >Survey tool >Record \nquantitative \ndata on \nworksheets \n >Record \nqualitative data \n(key insights, \nquotes) on \nworksheets \n >Record \nqualitative \ninterviews on \naudio recordings \n >Capture photos \nof facilities, \ncompleted \nworksheets, \nphysical context \nof location (but \nnot people)\n >Collect \nquantitative \nworksheets \nfrom each data \ncollector\n >Collect \nqualitative \nworksheets \nand associated \naudio recordings \nfrom each data \ncollector \n >Upload digital \nversion of each \nitem collected\n >Paper\n >Tablet\n >Mobile\n >Mobile data >Translate and \ntransfer data \nfrom worksheets \ninto digital tool \n >Complete \nrequired data \nfields on digital \nform\n >Capture \nquestion \nresponses,", "start_char_idx": 49283, "end_char_idx": 50871, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "7fbe8d73-12bb-4056-aa6c-6d00ed9d4838": {"__data__": {"id_": "7fbe8d73-12bb-4056-aa6c-6d00ed9d4838", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "ad9a59bc-334b-479f-a54b-c1440d7b7bfd", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "0d202eac4e29c1b9b1408d07d0fd88f482f1bab120e374632bd0daa6b7f0b670", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "ad3dee88-64c9-4cb7-a286-3b4c7794f4ff", "node_type": "1", "metadata": {}, "hash": "e371a462a6a60a26438792f8ccfaf03c6a01e21fe7f26c3d6793209449cbef7c", "class_name": "RelatedNodeInfo"}}, "hash": "353281447a6ac22c739848d2f619e4565e5aca2680a8c32a5a34ee2983b2e86b", "text": "key insights \nand quotes \non digital tool \n(with timecode \nreferences) \n >Upload/\nupdate audio \ntranscription\n >Supervisor \nverification \nof data entry \naccuracy \n >Collation of \nsubmissions for \nthe reporting \nperiod\n >Update and \nnotification of \nsubmissions\n >Computer\n >Cloud platform\n >Wi-Fi >Data notification \nto analysis team \n >Data clean-\nup and \nstandardization\n >Data review and \nfollow up with \nCLM \n >Analysis \nand insight \ndevelopment \n >Review\n >Key analysis \nand notes \nsubmission \n >Key quotes \nand timecode \nrecording \n >Indexing and \ntagging\n >Cross time \nperiod analysis \n >Projections and \ncomparisons \n >Cross country \nor other \nclassification \nanalysis and \npatterns \n >Key insights \nor hypothesis \nrecording\n >Computer\n >Cloud platform\n >Wi-Fi >Interim feedback \nto CLM \n >Adjustment \ndirections \nto CLM if \nnecessary \n >Creation of \ninterim updates \n >Creation of final \nreport \n >Creation of \nshareable assets\n >Presentation \nto community \nconsultative \ngroup \n >Distribution of \nsharable assets\n >Computer\n >Cloud platform\n >Wi-Fi >Advocacy \nsupported \nby shareable \nassets (tracked \non digital tool \nwhere known)\n >Review of CLM \nfunctionality for \nnext phase of \ndata capture\n >Computer\n >Data \nvisualization \nsoftware \n >Digital design DATA SECURITY\nTECHNOLOGY OPTIONSADVOCACY & \nIMPLEMENTATIONREPORTING & \nDISTRIBUTIONANALYSIS \n& PATTERN \nRECOGNITIONREVIEW & \nVERIFICATIONCAPTURE & \nCOLLECTIONCONCEPT & \nCONFIGURATIONTABLE 3 \n\n26   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nDepending on your data journey, different data collection tools may be preferred. \nThe information in Table 4 can help you choose the right kind of technology \nfor your CLM approach. We recommend weighing the pros and cons of each \ntechnology option according to your context. \nGeneral technical support for CLM implementation \ncan be managed via a WhatsApp group. This group \nmay deal with broad questions and clarifications as \nmembers work through the phases of the data journey.", "start_char_idx": 50873, "end_char_idx": 52882, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "ad3dee88-64c9-4cb7-a286-3b4c7794f4ff": {"__data__": {"id_": "ad3dee88-64c9-4cb7-a286-3b4c7794f4ff", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "7fbe8d73-12bb-4056-aa6c-6d00ed9d4838", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "353281447a6ac22c739848d2f619e4565e5aca2680a8c32a5a34ee2983b2e86b", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "b9496872-1785-4099-9761-b8b87917398f", "node_type": "1", "metadata": {}, "hash": "0aac5b742fd1001b1742b7a0cf522c78a2b64c2126dc265c0733fc1aeb92a5c3", "class_name": "RelatedNodeInfo"}}, "hash": "e371a462a6a60a26438792f8ccfaf03c6a01e21fe7f26c3d6793209449cbef7c", "text": "General technical support for CLM implementation \ncan be managed via a WhatsApp group. This group \nmay deal with broad questions and clarifications as \nmembers work through the phases of the data journey. Other CLM-specific technical support may be facilitated \ndirectly via other communication channels, such as \nvideo conferencing, email and calls. TABLE 4 \nThe right technology tools to support the ideal data journey \n >Best for rapid note \ntaking \n >Not constrained \nby power or data \naccess\n >Familiar interface \n >Low cost\n >Limited to quantity \navailable \n >Needs to be \ndigitized\n >Printed\n >Safekeeping \n >Proper discarding\n >Great in \ncombination \nwith mobile for \nqualitative data\n >Great for \nquantitative data \nif, for example, the \ncontent source \nis in a different \nformat (unknown) \nrequiring \ncalculations >Discrete\n >High-quality photos \nand video recording\n >Content instantly \nshareable \n >Not quantity \nconstrained \n >Familiar interface\n >Difficult typing \n >High cost\n >Mobile data \n >Battery \n >Storage for media \nrecording \n >Safekeeping\n >Great for audio \nrecordings \nduring qualitative \ninterviews \n >Great for photos of \nquantitative data \nin the health care \nfacility register\n >Great for photos of \ncompleted paper \nworksheets as a \nbackup >Good for viewing \n >Good for typing \n >Content instantly \nshareable \n >Not quantity \nconstrained\n >Clumsy for active \nnote taking \n >High cost\n >Mobile data \n >Battery \n >Storage for media \nrecording \n >Safekeeping\n >Can be used \nsimilarly to a mobile \nphone (but not as \noptimal)\n >Great for providing \ncontent for \nfeedback (watch \nthis video/use \nthis app/view this \nlayout, then answer \nthese questions).", "start_char_idx": 52678, "end_char_idx": 54357, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "b9496872-1785-4099-9761-b8b87917398f": {"__data__": {"id_": "b9496872-1785-4099-9761-b8b87917398f", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "ad3dee88-64c9-4cb7-a286-3b4c7794f4ff", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "e371a462a6a60a26438792f8ccfaf03c6a01e21fe7f26c3d6793209449cbef7c", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "d2d4d3e4-c82f-449b-9387-a330a21ac773", "node_type": "1", "metadata": {}, "hash": "92910aa3edc730a2c2ac36ccebed152a9767066748dadd3a7a41f5b5440b7637", "class_name": "RelatedNodeInfo"}}, "hash": "0aac5b742fd1001b1742b7a0cf522c78a2b64c2126dc265c0733fc1aeb92a5c3", "text": ">Best for typing \n >Best for compiling, \nreviewing and \nsubmitting \n >Best for analysis\n >Not very mobile \n >High cost\n >Stable power \n >Wi-Fi\n >Great for planning, \ncollection, transfer \nand analysis \nactivities \n >Acceptable for \nsimple data capturePros\nDependenciesCons\nConsiderationsMOBILE TABLET COMPUTERCHOOSING\nTHE RIGHT\nTECHNOLOGYPAPER\n\n  27   \n GUIDING PRINCIPLES OF DATA MANAGEMENTGUIDING  \nPRINCIPLES OF DATA \nMANAGEMENT \nCLM often involves collecting highly sensitive, \npersonal information about people\u2019s health and their \nexperiences. People\u2019s privacy and their consent are \nextremely important to data collection for CLM. \nExperience with implementing CLM has shown \nthat loss of privacy, confidentiality and security are \ncommon reasons for people to avoid using healthcare \nservices. The public health goal of CLM must be \ncarefully balanced with the individual right to privacy \nand confidentiality.\nThe first step \u2014 before any data are collected \u2014 is to \nensure participants\u2019 informed consent. Ethics, safety and data protection \nFocus group discussions with young \npeople in ITPC\u2019s RCTO in West Africa \nunderscored the importance of \nconfidentiality and privacy, which \nemerged as a top reason for not \naccessing ART. \nTABLE 5   \nTips to ensure informed consent of participants in CLM and related advocacy \nBARRIER TO  \nINFORMED  \nCONSENTHOW CLM AND RELATED ADVOCACY CAN OVERCOME THE BARRIER\nLanguage Use the person\u2019s mother tongue on the consent form and when speaking to them.\nLiteracy Offer written and oral communication options.\nComprehension Use simple words to explain CLM and how participants are being asked to engage in it. Avoid acronyms, \nabbreviations and jargon. Speak slowly and clearly. \nAgeIf a person is under 18 years of age, they cannot consent to participate in CLM without their parents or \ncaregiver (a legal guardian) being present. For this reason, it is generally advisable to sample adults over \nthe age of 18 years. If CLM is specifically aiming to sample adolescents and young people, you must obtain \nconsent from the participant, as well as their parents or caregivers.", "start_char_idx": 54358, "end_char_idx": 56478, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "d2d4d3e4-c82f-449b-9387-a330a21ac773": {"__data__": {"id_": "d2d4d3e4-c82f-449b-9387-a330a21ac773", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "b9496872-1785-4099-9761-b8b87917398f", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "0aac5b742fd1001b1742b7a0cf522c78a2b64c2126dc265c0733fc1aeb92a5c3", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "cbb1190c-ac61-43d7-b888-2c9ef18433f2", "node_type": "1", "metadata": {}, "hash": "128a6928f76e7cadad1e165604909b69f350ee0cc005fa8265b5d4b9e91c0017", "class_name": "RelatedNodeInfo"}}, "hash": "92910aa3edc730a2c2ac36ccebed152a9767066748dadd3a7a41f5b5440b7637", "text": "If CLM is specifically aiming to sample adolescents and young people, you must obtain \nconsent from the participant, as well as their parents or caregivers. \n\n28   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nBARRIER TO  \nINFORMED  \nCONSENTHOW CLM AND RELATED ADVOCACY CAN OVERCOME THE BARRIER\nTiming of the \ndiscussionAsking participants to answer questions before they have accessed health services may lead them to see \nCLM participation as a requirement for access to those services. It is advisable to ask for participants\u2019 \nengagement after they have received the services they came to the facility for. Reinforce that their \nparticipation is voluntary.\nAmount of  \ntime allottedEnsure adequate time for the discussion so the participant (and the data collector) do not feel rushed. \nSocial \ndesirability  \nbiasThis refers to the tendency among research participants to choose responses they believe are more socially \ndesirable or acceptable, rather than choosing responses that are reflective of their true thoughts or feelings. \nThis means that a person may say they agree to participate in CLM when they really do not want to do so. \nMake sure that you clearly offer the acceptable option of not participating in CLM. It might be a good idea to \nrepeat this option several times. \nOnce data is collected,  \nthree interrelated \nconcepts  affect \nprotection of that data: \nPRIVACY  is both a legal and an ethical concept. The legal concept refers to legal \nprotection that an individual has to control access to and use of personal information. \nPrivacy provides the overall framework within which confidentiality and security are \nimplemented. Privacy protections vary between jurisdictions and are defined by law \nand regulations. \nCONFIDENTIALITY  relates to a person\u2019s right to protect their data during \nstorage, transfer and use to prevent unauthorized disclosure of that information. \nConfidentiality policies and procedures should include discussion of appropriate use \nand dissemination of health data, systematically considering the ethical and legal issues \nas defined by privacy laws and regulations. \nSECURITY  is a collection of technical approaches to address issues covering \nphysical, electronic and procedural protection of the information that has been collected. \nSecurity discussions should include identifying potential threats to systems and data. \nThese discussions should address protecting data from inadvertent or malicious and \ninappropriate disclosure system failure and user errors that make data unavailable.", "start_char_idx": 56322, "end_char_idx": 58887, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "cbb1190c-ac61-43d7-b888-2c9ef18433f2": {"__data__": {"id_": "cbb1190c-ac61-43d7-b888-2c9ef18433f2", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "d2d4d3e4-c82f-449b-9387-a330a21ac773", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "92910aa3edc730a2c2ac36ccebed152a9767066748dadd3a7a41f5b5440b7637", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "433072e1-a674-465d-a62b-00fcf13c7d5f", "node_type": "1", "metadata": {}, "hash": "d0631a6e695842eb4575673dcaa7419f4716e0b8ecd1865c0d2a302ad090f7d9", "class_name": "RelatedNodeInfo"}}, "hash": "128a6928f76e7cadad1e165604909b69f350ee0cc005fa8265b5d4b9e91c0017", "text": "Security discussions should include identifying potential threats to systems and data. \nThese discussions should address protecting data from inadvertent or malicious and \ninappropriate disclosure system failure and user errors that make data unavailable.\nSOURCE : UNAIDS (2019) The Privacy, Confidentiality and Security Assessment Tool: User Manual.  \nOnline at https:/ /www.unaids.org/sites/default/files/media_asset/confidentiality_security_tool_user_manual_en.pdf \n\n  29   \n \u2714Ensure that you have participants\u2019 informed consent before asking any \nquestions.\n \u2714Ask questions in a safe and quiet place, where you cannot be seen or heard by \nother people. \n \u2714Never record participants\u2019 names on data collection tools or in electronic \ndatabases. \n \u2714Have a written data security policy that defines how data are collected, stored \nand shared.\n \u2714Limit the number of people who have access to CLM data. \n \u2714CLM should be stored securely (for example, in a password-protected \ncomputer).\n \u2714Ensure secure data transfer through the use of secure internet (for example, \nhttps:/ /).\n \u2714Manage permissions and access privileges to the data portal and transfer \nmechanisms.\n \u2714Put passwords on computers and documents where CLM data are stored \ndigitally. \n \u2714For paper-based CLM, make sure that questionnaires are kept in a locked \ncabinet.\n \u2714Once the data is transferred to the portal, delete raw materials that were used \nto collect it.CHECKLIST FOR PROTECTING THE PRIVACY, CONFIDENTIALITY \nAND SECURITY OF PARTICIPANTS IN CLM \nGUIDING PRINCIPLES OF DATA MANAGEMENT\n\n30   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nFIGURE 2 A sample informed consent form for participants in CLM\nINFORMED CONSENT FORM TO BE SIGNED BY ALL PARTICIPANTS\nHi. My name is [DATA COLLECTOR\u2019S NAME] . I am part of a team that is implementing community-led \nmonitoring interventions in [LOCATION] . I am going to start by explaining this project and making sure \nyou are comfortable participating. Is it all right if I continue?\nDESCRIPTION OF THE PROJECT\n\u2022 You are invited to participate in CLM implementation. \n\u2022 CLM is a mechanism that systematically and routinely collects and analyses information from health facilities and the \npeople who access services there.", "start_char_idx": 58632, "end_char_idx": 60883, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "433072e1-a674-465d-a62b-00fcf13c7d5f": {"__data__": {"id_": "433072e1-a674-465d-a62b-00fcf13c7d5f", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "cbb1190c-ac61-43d7-b888-2c9ef18433f2", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "128a6928f76e7cadad1e165604909b69f350ee0cc005fa8265b5d4b9e91c0017", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "d8e3ccac-e3b3-4aa6-a376-ffbbfb7cd54e", "node_type": "1", "metadata": {}, "hash": "c01b601536cea0589237f7f8668e456134a137e52099f2fdf240bd4bc8e50b53", "class_name": "RelatedNodeInfo"}}, "hash": "d0631a6e695842eb4575673dcaa7419f4716e0b8ecd1865c0d2a302ad090f7d9", "text": "DESCRIPTION OF THE PROJECT\n\u2022 You are invited to participate in CLM implementation. \n\u2022 CLM is a mechanism that systematically and routinely collects and analyses information from health facilities and the \npeople who access services there. \n\u2022 The purpose of the project is to analyse this information to identify gaps in access to and quality of services and care \nand to inform advocacy for improving them.\n\u2022 You have been asked to participate because you have accessed services at [FACILITY NAME] .\n\u2022 This study will include a sample of about [number] participants from [NUMBER]  health facilities.\nWHAT WILL YOUR PARTICIPATION INVOLVE?\n\u2022 If you decide to participate in this project, you will be asked to answer [NUMBER]  questions. This part will take about \n[ESTIMATED LENGTH]  minutes. \n\u2022 You might also be asked to participate in a group discussion, where you will be asked to share more about your \nexperience accessing services at this health facility. This part will take about [estimated length] minutes. \n\u2022 You are free to ask any questions that you have before, during and after the interview.\nARE THERE ANY RISKS TO ME? \n\u2022 This project is anonymous. Neither your name nor any other identifying information will be recorded in the \nquestionnaire or in the final report. \n\u2022 Due to the nature of HIV and sexual and reproductive health, several questions are personal in nature and others \ninclude topics like sex and stigma and discrimination. \n\u2022 If at any time you are uncomfortable with the content of the discussion, you may choose to skip a question or stop \nparticipating completely. Completion of all the questions is voluntary and you may stop or withdraw at any time. \nARE THERE ANY BENEFITS TO ME? \n\u2022 After completion of these questions, you will be given information about HIV and sexual and reproductive health and \nrights. This may benefit your own awareness and access to services. \n\u2022 You will be given a transport allowance of  [AMOUNT]  for your participation in this project. \n\u2022 Your participation will help improve access and quality to HIV prevention, services and treatment in [COUNTRY NAME] .\nPlease feel free to contact the community treatment observatory team leaders.", "start_char_idx": 60645, "end_char_idx": 62845, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "d8e3ccac-e3b3-4aa6-a376-ffbbfb7cd54e": {"__data__": {"id_": "d8e3ccac-e3b3-4aa6-a376-ffbbfb7cd54e", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "433072e1-a674-465d-a62b-00fcf13c7d5f", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "d0631a6e695842eb4575673dcaa7419f4716e0b8ecd1865c0d2a302ad090f7d9", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "dbd0cd2c-87b9-4d7e-a685-7bb9ea4ac016", "node_type": "1", "metadata": {}, "hash": "9b826dbd2311217d548fa83034d44ccc5bc79e7ff37cf20e376b560e4b1e8f20", "class_name": "RelatedNodeInfo"}}, "hash": "c01b601536cea0589237f7f8668e456134a137e52099f2fdf240bd4bc8e50b53", "text": "\u2022 Your participation will help improve access and quality to HIV prevention, services and treatment in [COUNTRY NAME] .\nPlease feel free to contact the community treatment observatory team leaders. If you have any questions about this \nprocess, the contact details of the team leader are:\n\u2022 [NAME] [PHONE NUMBER]\n\u2022 [NAME] [PHONE NUMBER]\nSTATEMENT OF CONSENT:  I have read/heard and understood the above information and I have had all my questions \nanswered by the interviewer. I agree to participate in the process voluntarily.\nNAME OF THE PARTICIPANT     SIGNATURE OF THE PARTICIPANT \nNAME OF THE INTERVIEWER     SIGNATURE OF THE INTERVIEWER\nDATE OF THE INTERVIEW: \n\n  31   \nFor CLM to be effective, data must be analysed and \nused as evidence to influence change. Remember, the \nend goal of CLM is not the data collection; it is using \nthe resulting evidence to improve policy and practice. \nMaking the numbers speak: How to analyse, \nvisualize and operationalize data for a \ndifference \nBefore designing your advocacy plan, it is a good idea \nto analyse and visualize the data for CLM. This will \nhelp you to see gaps, issues and opportunities. The \nway you analyse this data can make a big difference, \nas shown by the following examples. Data use for advocacy:  \nVisualization, advocacy, strategic communications and local feedback\nThe end goal of CLM is not the data \ncollection; it is using the resulting \nevidence to improve policy and \npractice.\nFigure 4 shows hypothetical CLM data on the \nviral suppression rate among people living with \nHIV at St. Mary\u2019s Teaching Hospital from October \nto December 2020. On the face of it, these \nlook like good results. It seems that St. Mary\u2019s \nTeaching Hospital has achieved the 2020 Fast-\nTrack target that \u201c90% of all people adhering to \nantiretroviral therapy will have viral suppression\u201d.FIGURE 4.  CLM data on viral load suppression among \npeople living with HIV at St. Mary\u2019s Teaching Hospital from \nOctober to December 2020\nFIGURE 5.  CLM data on viral load suppression among \npeople living with HIV at St.", "start_char_idx": 62648, "end_char_idx": 64710, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "dbd0cd2c-87b9-4d7e-a685-7bb9ea4ac016": {"__data__": {"id_": "dbd0cd2c-87b9-4d7e-a685-7bb9ea4ac016", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "d8e3ccac-e3b3-4aa6-a376-ffbbfb7cd54e", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "c01b601536cea0589237f7f8668e456134a137e52099f2fdf240bd4bc8e50b53", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "d0eb1163-e592-4e02-b4dd-617b5bf3f5f3", "node_type": "1", "metadata": {}, "hash": "1c96106cb4b27490412e960d0564a38d51755cef676663cd114e003722c5a40d", "class_name": "RelatedNodeInfo"}}, "hash": "9b826dbd2311217d548fa83034d44ccc5bc79e7ff37cf20e376b560e4b1e8f20", "text": "Mary\u2019s Teaching Hospital from \nOctober to December 2020\nFIGURE 5.  CLM data on viral load suppression among \npeople living with HIV at St. Mary\u2019s Teaching Hospital from \nOctober to December 2020However, if the data are disaggregated (meaning \nbroken up by population, such as among women \nand adolescents) over the three-month period, \nCLM data suddenly point to a serious issue with \nviral load suppression at St. Mary\u2019s.  In Figure 5, \nwe can see that the average rate of viral load \nsuppression is falling.  This could be caused by \nproblems with retention in care and/or with the \navailability of WHO-recommended treatment \nregimens. EXAMPLE 1 The importance of trend analysis\nDATA ANALYSIS TIP:  Instead of asking yourself, \u201cAre these results good?\u201d, \nask yourself, \u201cAre these results better than before?\u201d  \nGUIDING PRINCIPLES OF DATA MANAGEMENT90%\n98%\n87%\n84%OCTOBER 2020\nNOVEMBER 2020DECEMBER 2020\n\n32   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nFigure 6 shows hypothetical CLM data on \nthe proportion of people living with HIV who \naccessed sustained antiretroviral therapy at \nSt. Mary\u2019s Teaching Hospital from October to \nDecember 2020. As with Example 1, this CLM \ndata appear to show that the health facility is \nrunning an effective treatment programme. It \nseems that St. Mary\u2019s has achieved the 2020 \nFast-Track target of 90% of people living with HIV \nbeing on ART. FIGURE 6.  CLM data on the proportion of people living \nwith HIV who received ART at St. Mary\u2019s Teaching Hospital \nfrom October to December 2020\nFIGURE 7 .  CLM data on the proportion of people living \nwith HIV who received ART at St. Mary\u2019s Teaching Hospital \nfrom October to December 2020When CLM data in Figure 7 are disaggregated \nby age and sex, it becomes clear that not all \npeople living with HIV in care at St. Mary\u2019s \nTeaching Hospital are accessing ART.", "start_char_idx": 64572, "end_char_idx": 66439, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "d0eb1163-e592-4e02-b4dd-617b5bf3f5f3": {"__data__": {"id_": "d0eb1163-e592-4e02-b4dd-617b5bf3f5f3", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "dbd0cd2c-87b9-4d7e-a685-7bb9ea4ac016", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "9b826dbd2311217d548fa83034d44ccc5bc79e7ff37cf20e376b560e4b1e8f20", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "820481a7-e07f-4279-8f29-49d0a4c881ea", "node_type": "1", "metadata": {}, "hash": "d7fa4d310f15572776b9bd5693668d01b986ec3e8f2d4cfb3f0062a17d89512f", "class_name": "RelatedNodeInfo"}}, "hash": "1c96106cb4b27490412e960d0564a38d51755cef676663cd114e003722c5a40d", "text": "Mary\u2019s \nTeaching Hospital are accessing ART. The figure \nhighlights the CLM data: that young women \naged 15-24 years and older men aged 25 years \nand over are being left behind. EXAMPLE 2 The importance of age and sex disaggregation \nDATA ANALYSIS TIP:  Instead of asking yourself, \u201cAre these results good?\u201d, \nask yourself, \u201cAre these results good for everyone?\u201d Often, data on \nkey populations are not disaggregated, obscuring the effectiveness and \nquality of services for gay men and other men who have sex with men, sex \nworkers, transgender people and people who use drugs. 90%\nMEN\nWOMEN99%\n90%\n78%AGED 0-14 YEARS\nAGED 15-24 YEARSAGED 25+\n99%\n77%\n99%AGED 0-14 YEARSAGED 15-24 YEARSAGED 25+\n\n  33   \nFigure 8 shows hypothetical CLM data on the \nproportion of people living with HIV screened \nfor TB at St. Mary\u2019s from October to December \n2020. As with the previous two examples, the \nlimited analysis makes it difficult to know if these \nresults are good or not. It appears that St. Mary\u2019s \nis on track to achieve the 2020 End TB target of \nensuring that 90% of people who have developed \nTB are notified and treated.FIGURE 8.  CLM data on the % of people living with HIV \nat St. Mary\u2019s Teaching Hospital who received TB screening \nfrom October to December 2020\nFIGURE 9.  National data on the % of people living with \nHIV in the country of St. Maryland who received TB \nscreening from October to December 2020If possible, it is always good to compare CLM \ndata with information from another data \nsource. This might include national-level data \nor data from another nearby health facility. It \nis only by comparing the facility-level data \nin Figure 8 with national-level data in Figure \n9 that it becomes apparent that St.", "start_char_idx": 66395, "end_char_idx": 68124, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "820481a7-e07f-4279-8f29-49d0a4c881ea": {"__data__": {"id_": "820481a7-e07f-4279-8f29-49d0a4c881ea", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "d0eb1163-e592-4e02-b4dd-617b5bf3f5f3", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "1c96106cb4b27490412e960d0564a38d51755cef676663cd114e003722c5a40d", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "cb33807f-923b-4997-9e22-0b9829892ae0", "node_type": "1", "metadata": {}, "hash": "1094e180f61b61dbcc334d9bf1890b67aa201c8bed7643c7a61bb496aff4e70e", "class_name": "RelatedNodeInfo"}}, "hash": "d7fa4d310f15572776b9bd5693668d01b986ec3e8f2d4cfb3f0062a17d89512f", "text": "This might include national-level data \nor data from another nearby health facility. It \nis only by comparing the facility-level data \nin Figure 8 with national-level data in Figure \n9 that it becomes apparent that St. Mary\u2019s is \nperforming poorly.EXAMPLE 3 The importance of benchmarking \nDATA ANALYSIS TIP:  Instead of asking yourself, \u201cAre these results good?\u201d, \nask yourself, \u201cAre these results above or below average?\u201d \nGUIDING PRINCIPLES OF DATA MANAGEMENT90%\n95%\n\n34   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nData-driven advocacy planning for CLM: A 10-step method \nPick your advocacy priorities.  \nLooking at your data, identify the top advocacy priorities you want to push forward. There are two \nangles you can take when picking advocacy priorities, both of which may be useful and strategic \ndepending on your context:\n > OPTION A:  Focus on the biggest gaps.  For this option, you can ask yourself questions like, \n\u201cWhere are the biggest gaps between the way the world is and the way the world should be?\u201d In \nother words, look at your data and identify the areas where things are most severely off track, \nwhere targets are most likely to be missed, or where populations are left furthest behind. These \nissues may be strategically selected as your top advocacy priorities.\n > OPTION B:  Lean against an open door.  Another option is to ask yourself, \u201cWhere am I most \nlikely to be successful and make a significant difference?\u201d This might include looking at your \ndata and picking issues where you can see there is a positive trend and progress is being made. \nBy selecting this issue, your advocacy may be the catalyst to get an issue over the finish line, \nespecially if there is already some forward momentum. This might include a policy issue that \nhas been gaining traction in recent months. It also might include a target that is nearly \u2013 but not \nquite \u2013 achieved.\nEXAMPLE : Advocacy priorities for a CLM approach:\nWe recommend selecting no more than five issues to ensure that your efforts remain focused.", "start_char_idx": 67906, "end_char_idx": 69956, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "cb33807f-923b-4997-9e22-0b9829892ae0": {"__data__": {"id_": "cb33807f-923b-4997-9e22-0b9829892ae0", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "820481a7-e07f-4279-8f29-49d0a4c881ea", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "d7fa4d310f15572776b9bd5693668d01b986ec3e8f2d4cfb3f0062a17d89512f", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "84daa2f1-187b-4070-a334-1afece7989c4", "node_type": "1", "metadata": {}, "hash": "bbaafc94c16437f0aba792d6a5ea8fb274083f9d1b4f1047891f52cdf030cfb0", "class_name": "RelatedNodeInfo"}}, "hash": "1094e180f61b61dbcc334d9bf1890b67aa201c8bed7643c7a61bb496aff4e70e", "text": "It also might include a target that is nearly \u2013 but not \nquite \u2013 achieved.\nEXAMPLE : Advocacy priorities for a CLM approach:\nWe recommend selecting no more than five issues to ensure that your efforts remain focused.  \nThis will help you avoid the \u201cshopping list\u201d critique, where activists are sometimes dismissed for \nhaving too many priorities that do not appear well thought through.1\n\u2022 Expand the availability of non-facility-based \nHIV testing options, including community-\nled and community-based HIV testing \nservices.\n\u2022 Intensify HIV communication and awareness \ncampaigns to increase demand for HIV \ntesting services. \n\u2022 Include objectives that promote and protect \nthe human rights of people living with HIV \nand members of key populations in costed \nHIV strategic plans.\n\u2022 Improve communication along the supply \nchain to prevent ARV and other stock-outs. \n\u2022 Enhance linkage to \u2013 and retention in \u2013 care \nand treatment, especially for members of key \nand vulnerable populations.\u2022 Strengthen community systems and \nresponses to support the roll out of \ndifferentiated service delivery (DSD).\n\u2022 Increase funding to ensure the availability \nof a sufficient number of viral load testing \nmachines and laboratory supplies for them.\n\u2022 Enhance knowledge among people living \nwith HIV and health care workers to increase \ndemand for high-quality viral load testing \nservices.\n\u2022 Ensure effective treatment monitoring \nthrough acceptable turnaround times for \nviral load test results.\n\n  35   \nRank your priorities in order of importance.  \nThis will help you plan your time and resources for your advocacy work. It will also help you be more \ncredible at the negotiating table. To pick the top priorities, you might yourself, \u201cWhich issues should \nbe attended to first?\u201d or \u201cWhich ones are the most urgent?\u201d \nProvide a rationale for your priorities.  \nClearly explain why you have selected the advocacy priority. It is important to use evidence from \nCLM data to defend the advocacy priority.  For example:\nADVOCACY PRIORITY : Ensure that treatment monitoring is effective by providing viral load test \nresults promptly.\nRATIONALE:  Among 10,000 viral load tests performed at facilities undergoing CLM between January \nand June 2018, just 2,500 (25%) were returned to the recipient of care within two weeks.", "start_char_idx": 69740, "end_char_idx": 72049, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "84daa2f1-187b-4070-a334-1afece7989c4": {"__data__": {"id_": "84daa2f1-187b-4070-a334-1afece7989c4", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "cb33807f-923b-4997-9e22-0b9829892ae0", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "1094e180f61b61dbcc334d9bf1890b67aa201c8bed7643c7a61bb496aff4e70e", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "08b5f61e-4e6a-4fd2-a36a-31d52277f386", "node_type": "1", "metadata": {}, "hash": "c2925ff59f1bc72e04a9e131e309ae8a298ae582ff1217ad15250c81703ed884", "class_name": "RelatedNodeInfo"}}, "hash": "bbaafc94c16437f0aba792d6a5ea8fb274083f9d1b4f1047891f52cdf030cfb0", "text": "RATIONALE:  Among 10,000 viral load tests performed at facilities undergoing CLM between January \nand June 2018, just 2,500 (25%) were returned to the recipient of care within two weeks. Our \nCLM data show that there is a connection between faster turnaround times and better treatment \noutcomes: in facilities where a larger proportion of viral load tests are returned within two weeks, \nviral suppression among people living with HIV on ART is higher (p <0.05). \nSet short-, medium- and long-term objectives  \nAdvocacy priorities should be high-level problems that you want to fix. To make them more \nmanageable, it is a good idea to break them down into short-term objectives (something you want to \nachieve in the next few months), medium-term objectives (something you want to achieve within the \nnext year), and long-term objectives (something you want to achieve in the next few years). Try to \nmake your advocacy objectives SMART  (Specific, Measurable, Attainable, Relevant and Time-bound). 2\n3\n4\nEXAMPLE : SMART advocacy objectives for a CLM approach \nTIME-BOUND ATTAINABLE MEASURABLEBy 2025, reduce the average turnaround time for \nviral load test results to reach recipients of care  \nfrom 4 weeks  to within two weeks.\nRELEVANT SPECIFIC\nGUIDING PRINCIPLES OF DATA MANAGEMENT\n\n36   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nEstablish your target audience(s).  \nMap your target audiences for sharing and discussing CLM advocacy data. Your audience should be \nthe people you want to hear your message and act on it. They should be people who are in a position \nof power to enact the change you want to see. We recommend considering a diverse range of \nsectors for your potential target audience, including government, civil society, the media, the private \nsector, donors, technical partners and academia. You can consider identifying a primary target \naudience, as well as a secondary target audience. For example, your primary target audience might \nbe laboratories that you want to have batch and streamline samples so that facilities get their results \nmore quickly. Your secondary target audience might be health care providers who should notify the \nclient of their test result as soon as it is received from the laboratory.", "start_char_idx": 71863, "end_char_idx": 74124, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "08b5f61e-4e6a-4fd2-a36a-31d52277f386": {"__data__": {"id_": "08b5f61e-4e6a-4fd2-a36a-31d52277f386", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "84daa2f1-187b-4070-a334-1afece7989c4", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "bbaafc94c16437f0aba792d6a5ea8fb274083f9d1b4f1047891f52cdf030cfb0", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "66e189be-64b2-45d1-bbf2-e55768a69e5a", "node_type": "1", "metadata": {}, "hash": "c8e99167670953d405c7809f9b3fb83fab72a4a9dfd276a201c9427a404c951e", "class_name": "RelatedNodeInfo"}}, "hash": "c2925ff59f1bc72e04a9e131e309ae8a298ae582ff1217ad15250c81703ed884", "text": "Your secondary target audience might be health care providers who should notify the \nclient of their test result as soon as it is received from the laboratory. \nIdentify friends and foes.  \nFor your message to be heard and acted upon, it is important to know who might be able to help you \nalong the way, as well as who might potentially oppose you. Identifying your allies and your friends \nis very important. Friends can help amplify your voice, might support your advocacy with funding, or \nmight already have the ear of your target audience. It is equally important to identify your foes: the \npeople who might oppose you by standing in your way or discouraging you. Identifying these actors \nwill help you avoid them or develop specific strategies to engage them effectively. \nMap entry points.  \nConsider when and where you will be able to advance your advocacy agenda. Entry points might \ninclude a location, a date or both. For example, there might be a key meeting or conference coming \nup where you can present your data and push your advocacy priority. An upcoming launch of a \nreport, where people will be focused on your issue, could create an opportunity for you to add your \nvoice to the conversation. Entry points may be infrequent events (for example, global conferences) \nor more regular occurrences (for example, national technical working group meetings). \nPlan activities and expected results.  \nThis will include the practical aspects of what you will actually do to push your advocacy agenda. \nIt might include developing advocacy briefs, preparing PowerPoint slides, submitting abstracts to \nconferences, making phone calls, requesting meetings with decision makers, and securing TV or \nradio spots. For each activity, try to consider the intended results. You can ask yourself, \u201cWhat do I \nwant to achieve from this action?\u201d5\n6\n7\n8\n\n  37   \nConsider available resources for implementing your advocacy plan.  \nThis step includes thinking about the human, financial and time-based resources you might tap into \nto implement your advocacy plan. You might think about opportunities for funding from existing \nor potential donors and consider which CLM team members have the skillsets and time available to \nimplement the advocacy activities. \nDetermine measurements of success.  \nHow will you know if your advocacy is successful? Setting measurement criteria for success is critical.", "start_char_idx": 73965, "end_char_idx": 76369, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "66e189be-64b2-45d1-bbf2-e55768a69e5a": {"__data__": {"id_": "66e189be-64b2-45d1-bbf2-e55768a69e5a", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "08b5f61e-4e6a-4fd2-a36a-31d52277f386", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "c2925ff59f1bc72e04a9e131e309ae8a298ae582ff1217ad15250c81703ed884", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "048f0268-8763-43da-9806-1b43cd906470", "node_type": "1", "metadata": {}, "hash": "1d9302d2ca74c7a0d4e0820c288f9245b68796212cb55f65b0152e34577f67ea", "class_name": "RelatedNodeInfo"}}, "hash": "c8e99167670953d405c7809f9b3fb83fab72a4a9dfd276a201c9427a404c951e", "text": "Determine measurements of success.  \nHow will you know if your advocacy is successful? Setting measurement criteria for success is critical. \nYou may be able to assess the effectiveness of your advocacy through ongoing CLM data collection. \nOr you might need to do a separate assessment or evaluation. 9\n10\nGUIDING PRINCIPLES OF DATA MANAGEMENTTIPS FOR EFFECTIVE CLM IMPLEMENTATION:  \n >Always use examples from your data to substantiate your claims. \n >Convince your audience of the rigour with which you collected and \nanalysed your data. This may include underscoring your sample size or \nnoting collaborations with academic institutionsPretend you have just entered an elevator. Inside, you spot a top \ngovernment official who is the target audience for your advocacy priority.  \nYou are both riding up to the 10th floor of the building, a journey that will take you approximately \none minute. In this time, you need to explain your advocacy agenda to this person and convince \nthem to act. Stand next to a colleague or friend and practice your elevator pitch. Set a timer or a \nstopwatch for one minute. See if you can explain things to them in a short space of time and see \nif they are convinced or not by your advocacy. \nGood luck! Practice your \u201celevator pitch\u201d \nto hone your advocacy skills ACTIVITY:\nELEVATOR\nPITCH\n\n38   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nRESOURCING AND \nFINANCING OF CLM \nTABLE 6  Costing categories for CLM \nCLM  \nCOMPONENTDETAILSRECOMMENDED COSTING CATEGORIES  \n(Resource considerations)\nEducationConduct interactive treatment education and \ncapacity building with community members  \nto provide them with relevant knowledge of HIV, \nCOVID-19 and TB, as well as human rights. \nCommunities need to understand what they \nare monitoring:  what to collect, why to collect \nit, and how it will be used.", "start_char_idx": 76229, "end_char_idx": 78085, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "048f0268-8763-43da-9806-1b43cd906470": {"__data__": {"id_": "048f0268-8763-43da-9806-1b43cd906470", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "66e189be-64b2-45d1-bbf2-e55768a69e5a", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "c8e99167670953d405c7809f9b3fb83fab72a4a9dfd276a201c9427a404c951e", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "aec81734-8793-4b67-86ee-0620d2506ceb", "node_type": "1", "metadata": {}, "hash": "068c0da72c609ec414039a61ea19edf4807e2bc5f906977775dbbe76abfe2b2f", "class_name": "RelatedNodeInfo"}}, "hash": "1d9302d2ca74c7a0d4e0820c288f9245b68796212cb55f65b0152e34577f67ea", "text": "Communities need to understand what they \nare monitoring:  what to collect, why to collect \nit, and how it will be used.  > Situational analysis:  Identify any existing CLM \nefforts and/or identify known issues to build upon \nin inception meetings: national level, district level, \ncommunity level (transport, conference package or \nhall hire, facilitation, printed materials, audio-visuals, \nrefreshments) \n > Training curriculum  (write and publish training \ntoolkit, hire meeting facilitator or trainer, provide \ninternet access)\n\u2022 Supplies (stationery and pens, flip charts)\n\u2022 PPE (hand sanitizer, masks)\n > Staffing costs:  Focal point, data supervisors, M&E lead \n > Core support  for lead CLM organization  \n(overheads, administrative fees, part-time finance \nand programmatic support)\nEvidenceDefine scope of CLM implementation: Identify \npriority issues and develop indicators, including \ndisease-specific and COVID-19-sensitive \nindicators. (For example: Will your activities \nfocus on prevention, diagnosis, treatment, care \nor support or community systems? Which of \nthe \u201cfive As\u201d would be your focus? What is the \nproblem you want to address?)\nData collection and management:  Develop \ndata collection tools to capture information and \ndisaggregate this data within the framework of \nyour indicators. Pilot data collection tools and \ngather baseline data. The data management \nprocess should include data verification, quality \nassurance procedures and routine review of data.\nData analysis: Conduct a routine review of data \nto analyse trends, compare pre-COVID data \nwith current monthly trends where available, \nidentify bottlenecks and identify successes from \nthe review of data and analysis. > Staffing costs:  Data collectors (two staff per X site, \ndata collection recurs on a monthly or quarterly \nbasis); data team including data supervisor, M&E \nofficer and focal point lead person\n > Equipment: Paper, tools, tablets for data collectors, \ntransportation for data collectors, internet/data bundle \nfor data collectors, raincoats, laptops, bags, PPE, etc.\n > Data management costs:  Support for organizing \nand systematizing the monthly reporting process. \nSupport for analyzing incoming data, including coding \nqualitative data\n > Data platform:  Hosting, access, maintenance, etc.", "start_char_idx": 77965, "end_char_idx": 80270, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "aec81734-8793-4b67-86ee-0620d2506ceb": {"__data__": {"id_": "aec81734-8793-4b67-86ee-0620d2506ceb", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "048f0268-8763-43da-9806-1b43cd906470", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "1d9302d2ca74c7a0d4e0820c288f9245b68796212cb55f65b0152e34577f67ea", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "2fc349ca-4084-4595-877c-0d3803935881", "node_type": "1", "metadata": {}, "hash": "8e782f40423d59bad7706e4079526159c22372cf7e1243af9d8d4d7a165a48a7", "class_name": "RelatedNodeInfo"}}, "hash": "068c0da72c609ec414039a61ea19edf4807e2bc5f906977775dbbe76abfe2b2f", "text": "> Data management costs:  Support for organizing \nand systematizing the monthly reporting process. \nSupport for analyzing incoming data, including coding \nqualitative data\n > Data platform:  Hosting, access, maintenance, etc.\n > Fees for securing ethical approvals  and implementing \nrecommended privacy and safety protocols\n > Baseline assessment\n > Training:  Data team, data collectors\n > Monthly focus group meetings for qualitative data \ncollection , voice recorders, monthly supervisory visits\n > Core support  for the organization overseeing CLM \n\n  39   \nCLM  \nCOMPONENTDETAILSRECOMMENDED COSTING CATEGORIES  \n(Resource considerations)\nEngagementConvene regular monthly or quarterly meetings \nthrough a CCG or other multistakeholder \nengagement process for co-creating solutions, \nsuch as a Country Coordinating Mechanism \n(CCM) or COVID-19 response task team. Include \nrepresentatives from national networks of \npeople living with HIV, TB survivor groups, \nmalaria initiatives, key population groups, health \ncare facilities, recipients of care, public health \nand HIV experts, programme managers, policy \nmakers and academic partners. > Support for CCG convenings  (transport, meeting \ncosts, facilitation, printed materials, audio-visuals): \nbiannually at national level; quarterly at the district \nlevel\n > Writing and disseminating quarterly reports\n > Core support  for CLM host organization \nAdvocacyWhen data collection reveals gaps in access \nto and quality of services, the CCG meets with \nrelevant decision and/or policy makers to  \nco-create solutions for them (stock-outs, human \nrights issues, and other problems) and to hold \ndecision makers to account, as needed. Push \nfor implementation of co-created solutions as \nneeded if progress is lacking.", "start_char_idx": 80045, "end_char_idx": 81816, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "2fc349ca-4084-4595-877c-0d3803935881": {"__data__": {"id_": "2fc349ca-4084-4595-877c-0d3803935881", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "aec81734-8793-4b67-86ee-0620d2506ceb", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "068c0da72c609ec414039a61ea19edf4807e2bc5f906977775dbbe76abfe2b2f", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "ceb9e620-5cb2-4784-afae-8038a5c642b2", "node_type": "1", "metadata": {}, "hash": "3b41fdbb43c11c8b91a22505a6348c2b213a9d70f77bb616d537c7a7811b2323", "class_name": "RelatedNodeInfo"}}, "hash": "8e782f40423d59bad7706e4079526159c22372cf7e1243af9d8d4d7a165a48a7", "text": "Push \nfor implementation of co-created solutions as \nneeded if progress is lacking.  > Support  for policy analysis and design and \ndevelopment of advocacy campaigns \n > Meet with policy makers about advocacy issues at \nnational, district and community levels (transport, \nmeeting costs, printed materials) at least biannually, \nideally quarterly \nRESOURCING AND FINANCING OF CLM\n\nANNEXES\n\n  41   \nANNEX A\nUNAIDS, Global Fund and  \nPEPFAR definitions of CLM \nORGANIZATION DEFINITIONS\nUNAIDS\nCommunity-led \nmonitoring (CLM)  WHAT:  A accountability mechanism for HIV responses at different levels, led \nand implemented by local community-led organizations of people living with \nHIV, networks of key populations, other affected groups or other community \nentities. CLM uses a structured platform and rigorously trained peer monitors to \nsystematically and routinely collect and analyse qualitative and quantitative data \non HIV service delivery\u2014including data from people in community settings who \nmight not be accessing health care\u2014and to establish rapid feedback loops with \nprogramme managers and health decision makers. CLM data builds evidence \non what works well, what is not working and what needs to be improved, with \nsuggestions for targeted action to improve outcomes.\nWHO:  Local community-led organizations of people living with HIV, key population \ngroups, other affected groups and other community entities.\nWHY:  The CLM model and interventions serve as a watchdog for the national \nHIV response and allow communities, health facilities and governments to rapidly \nidentify and respond to barriers to HIV services.\nThe Global Fund \nto Fight AIDS, \nTuberculosis and \nMalaria\nCommunity-based \nmonitoring (CBM)WHAT:  A mechanism by which service users gather, analyse and use information \non an ongoing basis to assess and improve the effectiveness, quality, accessibility \nand impact of health programmes and services they receive. Communities decide \nwhat to monitor and act upon the data through evidence-based advocacy. CBM \ncan monitor HIV, TB and malaria services, as well as the availability of essential \ndrugs and human rights violations.  \nWHO:  Service users and local communities.", "start_char_idx": 81733, "end_char_idx": 83938, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "ceb9e620-5cb2-4784-afae-8038a5c642b2": {"__data__": {"id_": "ceb9e620-5cb2-4784-afae-8038a5c642b2", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "2fc349ca-4084-4595-877c-0d3803935881", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "8e782f40423d59bad7706e4079526159c22372cf7e1243af9d8d4d7a165a48a7", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "a467986b-04af-4315-8547-fe0bf61d050c", "node_type": "1", "metadata": {}, "hash": "6fa9b1f568ae13c35e63df0e5933bb7b7e64b86b13683829a0a794c87f1dbe3b", "class_name": "RelatedNodeInfo"}}, "hash": "3b41fdbb43c11c8b91a22505a6348c2b213a9d70f77bb616d537c7a7811b2323", "text": "CBM \ncan monitor HIV, TB and malaria services, as well as the availability of essential \ndrugs and human rights violations.  \nWHO:  Service users and local communities.\nWHY:  Improve access to, and quality and impact of, services and hold service \nproviders and decision makers to account.i \nANNEX A( i )  https:/ /www.theglobalfund.org/media/9622/core_css_overview_en.pdf?u=637319006203930000 \n\n42   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nORGANIZATION DEFINITIONS\nUS President\u2019s \nEmergency Plan \nfor AIDS Relief \n(PEPFAR)\nCommunity-led \nmonitoringWHAT:  An approach initiated by communities to routinely and systematically \ncollect quantitative and qualitative data on HIV services from recipients of those \nservices. \nWHO:  Implemented by community-based and civil society groups, networks of \npeople living with HIV and key populations or other affected and/or community \nentities.\nWHY:  Aims to translate the data insights into action and change. It is important \nbecause it places community needs and voices at the heart of the HIV response.ii \nSeveral models of community \nmonitoring have been implemented \nglobally to match differing local \ncontexts, infrastructure and capacities. \nHealth facility committees:  Health care providers \nand community representatives come together in health \nfacility committees, track and review grievances raised \nby health care beneficiaries, and then regularly provide \nfeedback on how these have been addressed.Citizen report cards: These track the quality of \nhealth services according to metrics that communities \nhave identified and prioritized. Progress on these \nmetrics can be measured against a national standard \nor the performance of other local health facilities. To \naddress these issues, assessments are best reviewed \nin meetings between health care providers and \ncommunities.  \n Community data, defined and various examples \n( ii )  US Department of State  https:/ /www.state.gov/community-led-monitoring/#:~:text=Why%20does%20PEPFAR%20support%20Community,the%20community%20and%20\nfacility%20level", "start_char_idx": 83770, "end_char_idx": 85849, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "a467986b-04af-4315-8547-fe0bf61d050c": {"__data__": {"id_": "a467986b-04af-4315-8547-fe0bf61d050c", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "ceb9e620-5cb2-4784-afae-8038a5c642b2", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "3b41fdbb43c11c8b91a22505a6348c2b213a9d70f77bb616d537c7a7811b2323", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "a2645756-b433-4218-a609-5b887b12a7d0", "node_type": "1", "metadata": {}, "hash": "3af8bc6e8de8c2716abd1e4522ba7ceb947f385991dfa815e3849e1fdc232c11", "class_name": "RelatedNodeInfo"}}, "hash": "6fa9b1f568ae13c35e63df0e5933bb7b7e64b86b13683829a0a794c87f1dbe3b", "text": "43   \nCommunity scorecards:  These rely on indicators \nthat have been developed collaboratively by community \nrepresentatives and health care providers. These \nindicators are used to track the performance and quality \nof health systems and translated into an action plan \nthat is jointly assessed by communities and health care \nproviders. \nHealth advocates:  They have been the channel \nfor addressing health care beneficiary grievances in \nsome settings. In addition to educating communities \non local health policy standards and their rights, health \nadvocates also collect grievances and track their \nresolution. Health advocates work with health care \nproviders to craft solutions for the problems they have \nidentified and devise a timeline for action. Community observatories:  Community \nobservatories regularly and systematically collect \nquantitative data (from health facility records) and \nqualitative data (from recipients of care) on the quality \nof services along the HIV prevention, testing, care and \ntreatment cascade. Trained community representatives \ngather data, track trends against a baseline, and \nadvocate for changes as needed. \nCommunity health observatories:  Similarly, \ncommunity health observatories rely on health \nmonitors, community representatives or community \nhealth workers, who report deviations and/or \ndysfunctionality in service delivery at health facilities to \nobservatory facilitators, using phone applications or at \nin-person meetings. \nANNEX A\n\n\n44    HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nANNEX B\nMenu of quantitative and \nqualitative indicators for HIV-\nfocused CLM and related advocacy\nTABLE 8  Examples of quantitative indicators that can be collected through CLM\nAREA INDICATOR  DISAGGREGATION  \nPrevention \nand testingNumber of HIV tests \nperformedAge (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber of positive HIV \ntest resultsAge (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nPositive test results as \na proportion of the total \nnumber of tests performed \n(HIV positivity)Age (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men,", "start_char_idx": 85855, "end_char_idx": 88218, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "a2645756-b433-4218-a609-5b887b12a7d0": {"__data__": {"id_": "a2645756-b433-4218-a609-5b887b12a7d0", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "a467986b-04af-4315-8547-fe0bf61d050c", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "6fa9b1f568ae13c35e63df0e5933bb7b7e64b86b13683829a0a794c87f1dbe3b", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "f5dafec4-2a45-4caa-b68c-173ed1243d03", "node_type": "1", "metadata": {}, "hash": "08839628308afb543a39aaf5f191d4a745e6edbe3d8217e7672edbfbca0e8ea0", "class_name": "RelatedNodeInfo"}}, "hash": "3af8bc6e8de8c2716abd1e4522ba7ceb947f385991dfa815e3849e1fdc232c11", "text": "sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nHas there been a stock-out \nof HIV test kits in the past \nmonth (yes/no) Type of test (rapid, blood, self)\nIf a stock-out of test kits \nhas occurred, how many \ndays did it last before it \nwas resolved?n/a\nNumber of people initiated \nonto PrEP Age (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber or % of people \nretained on PrEP one \nmonth after initiation Age (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber of people initiated \nonto post-exposure \nprophylaxis (PEP) Age (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber or % of people \nwho complete the full 28-\nday course of PEPAge (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\n\n  45   \nAREA INDICATOR  DISAGGREGATION  \nCare and \ntreatmentNumber or % of people \nliving with HIV who received \na baseline CD4 count test \nbefore initiating ARTAge (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber or % of people \nliving with HIV presenting \nwith advanced disease (CD4 \ncount <200 cells/mm3)Age (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber or % of people \nliving with HIV who have \na positive result and are \nnewly initiating ART Age (<25/25+);", "start_char_idx": 88146, "end_char_idx": 90053, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "f5dafec4-2a45-4caa-b68c-173ed1243d03": {"__data__": {"id_": "f5dafec4-2a45-4caa-b68c-173ed1243d03", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "a2645756-b433-4218-a609-5b887b12a7d0", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "3af8bc6e8de8c2716abd1e4522ba7ceb947f385991dfa815e3849e1fdc232c11", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "d95e9fe4-62ae-4c64-b28c-85e656003809", "node_type": "1", "metadata": {}, "hash": "3af25391ed4bbbdbe557df0abb35e40173d1a28fe2c5e1a55e1f2c525f84a87a", "class_name": "RelatedNodeInfo"}}, "hash": "08839628308afb543a39aaf5f191d4a745e6edbe3d8217e7672edbfbca0e8ea0", "text": "sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber or % of people \nliving with HIV who have \na positive result and are \nnewly initiating ART Age (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber of people living \nwith HIV receiving ART Age (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber or % of people \nliving with HIV known to \nbe on ART 12 months after \ninitiating it Age (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nHas there been a stock-out \nof ARVs in the past month \n(yes/no) Type of ARV (name of medicine); regimen (1st line, 2nd line, 3rd line, \npaediatric)\nIf a stock-out of ARVs has \noccurred, how many days \ndid it last before it was \nresolved?n/a\nNumber or % of people \nliving with HIV screened \nfor TBAge (0-14/15+); sex (M/F/T); population (general population, pregnant \nwomen, people who inject drugs, transgender people, mineworkers/ex-\nmineworkers, health care workers, migrant populations, prisoners)\nNumber or % of eligible \npeople living with HIV \ninitiated on TB preventive \ntherapyAge (0-14/15+); Sex (M/F); Population (Gen pop, pregnant women, PWID, \nmineworkers/ex-mineworkers; health care workers; migrant populations; \nprisoners)\nAdherence \nand viral \nsuppressionNumber or % of people \nliving with HIV enrolled in \nDSDType of DSD model (fast-track, community-based ART refill groups, facility-\nbased ART refill groups, multi-month dispensing, teen clubs, family-centred, \netc.)", "start_char_idx": 89872, "end_char_idx": 91636, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "d95e9fe4-62ae-4c64-b28c-85e656003809": {"__data__": {"id_": "d95e9fe4-62ae-4c64-b28c-85e656003809", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "f5dafec4-2a45-4caa-b68c-173ed1243d03", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "08839628308afb543a39aaf5f191d4a745e6edbe3d8217e7672edbfbca0e8ea0", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "304d0a97-2c6c-4cca-bb2c-c059400e38e5", "node_type": "1", "metadata": {}, "hash": "048222dc0b774f411d119d3be687e01f43eabcbe554fe3d96f7983c8bc30d474", "class_name": "RelatedNodeInfo"}}, "hash": "3af25391ed4bbbdbe557df0abb35e40173d1a28fe2c5e1a55e1f2c525f84a87a", "text": "community-based ART refill groups, facility-\nbased ART refill groups, multi-month dispensing, teen clubs, family-centred, \netc.)\nNumber of viral load tests \nperformedAge (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber or % of people \nliving with HIV who have \nreceived a viral load test in \nthe past year Age (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nNumber or % of people \nliving with HIV who \nreceived their viral load \ntest results within two \nweeks of taking the testWithin 2 weeks; within one month; more than one month \nANNEX B\n\n46   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nAREA INDICATOR  DISAGGREGATION  \nAdherence \nand viral \nsuppressionNumber or % of people \nliving with HIV on ART \nwho have achieved viral \nsuppressionAge (<25/25+); sex (M/F/T); population (general population, men who have \nsex with men, sex workers, people who inject drugs, transgender people, \nprisoners)\nHas there been a stock-\nout of viral load testing \nsupplies in the past month \n(yes/no) Type of stock-out (reagents, chemicals, consumables, durables, other)\nIf a stock-out of viral \nload testing supplies has \noccurred, how many days \ndid it last before it was \nresolved?Marker for care retention and quality of care\nTABLE 9  Examples of qualitative  indicators that can be collected through CLM\nTARGET  \nAUDIENCEQUESTION  FURTHER PROMPTS IF NEEDED  \nHealth care \nworkersTell me a bit about \nyourself. What is your role \nat this health care facility? \nHow long have you been \ndoing this work? \nWhat are the reasons for \nstock-outs of HIV testing \nsupplies?Do communication issues along the supply chain play a role?\nDoes incorrect forecasting and quantification play a role?\nDo issues with the central medical stores play a role?\nDoes the non-delivery of orders play a role?\nDoes poor planning play a role?", "start_char_idx": 91508, "end_char_idx": 93549, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "304d0a97-2c6c-4cca-bb2c-c059400e38e5": {"__data__": {"id_": "304d0a97-2c6c-4cca-bb2c-c059400e38e5", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "d95e9fe4-62ae-4c64-b28c-85e656003809", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "3af25391ed4bbbdbe557df0abb35e40173d1a28fe2c5e1a55e1f2c525f84a87a", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "51a476af-5865-4dbb-9f2f-a49de715b4ab", "node_type": "1", "metadata": {}, "hash": "e98f07a66c67fec0ad5abc5bb24b8539eb3da012dd2d9ab77a295a262a2ae124", "class_name": "RelatedNodeInfo"}}, "hash": "048222dc0b774f411d119d3be687e01f43eabcbe554fe3d96f7983c8bc30d474", "text": "Does incorrect forecasting and quantification play a role?\nDo issues with the central medical stores play a role?\nDoes the non-delivery of orders play a role?\nDoes poor planning play a role?\nDoes reliance on donors play a role?\nDoes non-payment play a role?What are the reasons for \nstock-outs of ARVs?\nWhat are the reasons for \nstock-outs of viral load \nlaboratory supplies?\nWhat are the reasons \nfor stock-outs in other \nfacilities that you have \nheard about? (You can \nkeep this anonymous.)\nWhat are some of the \nother challenges you face \nin your health facility in \nterms of HIV prevention, \ntreatment and care?\nWhat would help you do \nyour job better?Would better pay help you provide better care?\nWould better supervision help you provide better care?\nWould better training help you provide better care?\nWould better job aides help you provide better care?\nWould shorter working hours help you provide better care?\nWould better appreciation by your boss help you provide better care?\nWhat are some of the \nsuccesses of your facility \nin terms of HIV prevention, \ntreatment and care?Are there good information-sharing networks?\nAre there convenient treatment refill options (e.g., multi-month dispensing)?\nAre you partnering with recipient of care advocacy groups?\n\n  47   \nTARGET  \nAUDIENCEQUESTION  FURTHER PROMPTS IF NEEDED  \nRecipients  \nof careWhat are the reasons for \npeople not receiving an \nHIV test?Does the distance to the HIV testing centre play a role?\nDo long waiting times at the health facility play a role?\nDo user fees or other out-of-pocket expenditures play a role?\nDoes fear of discovering one\u2019s status play a role?\nDo stigma and discrimination play a role?\nDo health care workers\u2019 attitudes/friendliness play a role?\nDoes lack of privacy and confidentiality play a role?\nWhat are the reasons for \npeople not receiving a CD4 \ntest?Does knowledge of the importance of CD4 testing among people living with \nHIV play a role?\nDo long waiting times at the health facility play a role?\nDo user fees or other out-of-pocket expenditures play a role?\nDoes the availability of working CD4 machines play a role?\nDo delays in returning the results to the recipient of care play a role?\nDo human resource challenges play a role?\nDo stock-outs of cartridges and reagents play a role?", "start_char_idx": 93359, "end_char_idx": 95655, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "51a476af-5865-4dbb-9f2f-a49de715b4ab": {"__data__": {"id_": "51a476af-5865-4dbb-9f2f-a49de715b4ab", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "304d0a97-2c6c-4cca-bb2c-c059400e38e5", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "048222dc0b774f411d119d3be687e01f43eabcbe554fe3d96f7983c8bc30d474", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "f8567f45-a893-4eea-8d9a-b38742d416df", "node_type": "1", "metadata": {}, "hash": "337614011ca3af337a6bc856aa858dad8dfabd909fabda5851130bab6f2e774c", "class_name": "RelatedNodeInfo"}}, "hash": "e98f07a66c67fec0ad5abc5bb24b8539eb3da012dd2d9ab77a295a262a2ae124", "text": "Does the availability of working CD4 machines play a role?\nDo delays in returning the results to the recipient of care play a role?\nDo human resource challenges play a role?\nDo stock-outs of cartridges and reagents play a role?\nWhat are the reasons for \npeople not receiving ART?Does the distance to the ART centre play a role?\nDo long waiting times at the health facility play a role?\nDoes payment or out-of-pocket expenditure play a role?\nDo side-effects play a role?\nDo stigma and discrimination play a role?\nDo ARV stock-outs play a role?\nDo inconvenient or limited refill options play a role?\nDo health care workers\u2019 attitudes/friendliness play a role?\nDoes lack of privacy and confidentiality play a role?\nWhat are the reasons for \npeople not receiving a viral \nload test?Does the knowledge that people living with HIV have of viral load testing \nguidelines play a role?\nDo long waiting times at the health facility play a role?\nDoes the availability of working viral load testing machines play a role?\nDo delays in returning results to recipients of care play a role?\nDo human resource challenges play a role?\nDo stock-outs of lab supplies play a role?\nOn a scale of 1 to 5 (5 being \nthe best), how would you \nrate the overall quality \nof service at your health \nfacility? How would you describe the ideal visit to a health facility?\nWere you treated with \nrespect by your health care \nworker today? \nANNEX B\n\n48   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nIn February 2017, with support from the Global Fund, \nITPC established the Regional Community Treatment \nObservatory in West Africa (RCTO-WA), which united \norganizations that were performing CLM. The RCTO-\nWA\u2019s purpose was to increase accountability for \nachieving the UNAIDS 90-90-90 targets. At the time, \njust 48% of people living with HIV in the region were \naware of their status; 40% of them were accessing \nART; and 29% of this group were virally suppressed. \nProgress towards universal treatment access was \nstymied by a range of diverse challenges, including \ndrug stock-outs, weak health systems, human rights \nbarriers and low quality of care.", "start_char_idx": 95428, "end_char_idx": 97568, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "f8567f45-a893-4eea-8d9a-b38742d416df": {"__data__": {"id_": "f8567f45-a893-4eea-8d9a-b38742d416df", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "51a476af-5865-4dbb-9f2f-a49de715b4ab", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "e98f07a66c67fec0ad5abc5bb24b8539eb3da012dd2d9ab77a295a262a2ae124", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "6cfcd41c-bdf9-4017-8a1c-82c2b69dd31a", "node_type": "1", "metadata": {}, "hash": "d569698c7df2ce3732124955a42f91941d7d2351215cfee9bfaa5793b4cb1312", "class_name": "RelatedNodeInfo"}}, "hash": "337614011ca3af337a6bc856aa858dad8dfabd909fabda5851130bab6f2e774c", "text": "Progress towards universal treatment access was \nstymied by a range of diverse challenges, including \ndrug stock-outs, weak health systems, human rights \nbarriers and low quality of care.\nBuilding on previous work monitoring ARV stock-\nouts in the region, the RCTO-WA aimed to increase \nHIV treatment access in 11 West African countries (Benin, Cote d\u2019Ivoire, The Gambia, Ghana, Guinea, \nGuinea-Bissau, Liberia, Mali, Senegal, Sierra Leone \nand Togo) by:\n1. Formalizing and expanding existing \ncommunity treatment observatories in all \nfocus countries.\n2. Creating a regional treatment observatory\n3. Building capacity among members of the 11 \nnational networks of people living with HIV to \ndo treatment monitoring\nThe project was housed under ITPC\u2019s Watch What \nMatters campaign, and it followed our community \nmonitoring model. \nA series of three technical planning workshops were \nheld between December 2016 and February 2017 to \ntrain implementation teams from each country. These \nworkshops focused specifically on work planning and \ncapacity building for M&E, data collection, database use, \nfinancial management and governance. The training of \nlocal data collectors followed. \nBased on specific criteria (such as population size \nand location), 103 health facilities were selected as \ndesignated data collection sites. ITPC signed an MoU \nwith each facility. Of these, 43 were large district-level ANNEX C\nCommunity treatment  \nobservatory case studies\nImproving access to viral load monitoring \nthrough the Regional Community Treatment \nObservatory in West AfricaCASE STUDY #1\nBuilding on previous work monitoring \nARV stock-outs in the region, the \nRCTO-WA aimed to increase HIV \ntreatment access in 11 West African \ncountries. \n\n  49   \nor regional hospitals, 28 were mid-level health centres, \n19 were non-governmental organizations, nine were \nlower-level clinics and four were community-level health \ncentres. From January 2018 to June 2019, the treatment \nobservatory completed 1,781 monthly monitoring reports, \n1,501 interviews and 143 focus group discussions.", "start_char_idx": 97381, "end_char_idx": 99459, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "6cfcd41c-bdf9-4017-8a1c-82c2b69dd31a": {"__data__": {"id_": "6cfcd41c-bdf9-4017-8a1c-82c2b69dd31a", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "f8567f45-a893-4eea-8d9a-b38742d416df", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "337614011ca3af337a6bc856aa858dad8dfabd909fabda5851130bab6f2e774c", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "908bfec0-d4da-4e5f-8cf6-9966bc6c360c", "node_type": "1", "metadata": {}, "hash": "2c68632be180a6e34eea62f25a7bd6ad5f8ec04b1b81de967bdf8e709a21fcd4", "class_name": "RelatedNodeInfo"}}, "hash": "d569698c7df2ce3732124955a42f91941d7d2351215cfee9bfaa5793b4cb1312", "text": "From January 2018 to June 2019, the treatment \nobservatory completed 1,781 monthly monitoring reports, \n1,501 interviews and 143 focus group discussions. The \ndata was analysed using a version of the \u201cfive As\u201d \n(availability, accessibility, acceptability, affordability \nand appropriateness) conceptual framework to assess \ngaps and opportunities for improvement along the HIV \ntreatment cascade. Feedback was provided to recipients \nof care, health centre staff and government decision \nmakers through real-time alerts, quarterly reports and \nmultistakeholder dialogues. \nThe initial findings of the RCTO-WA painted a clear and \nspecific picture of the experiences among communities \nin West Africa, with particularly acute gaps in viral load \nmonitoring. Just 20% of people living with HIV who \nwere receiving ART had a viral load test during the \nprevious six months. Only a quarter of viral test results \nwere returned within two weeks, and the average turnaround time for viral load test results was 4.5 \nmonths. Nearly one in 10 people cited the delay in the \nreturn of results as the reason for not accessing viral \nload testing services. Of those who received a viral load \ntest, less than half (48%) were virally suppressed. RCTO-\nWA data also show a relationship between receiving \ntimely viral load test results and the prevalence of viral \nload suppression. \nIt was clear that that the capacity and the critical \nneed for viral load testing were not being met \u2013 \nand even where it was, results often failed to reach \nrecipients of care, rendering the test meaningless to \npeople living with HIV. The RCTO-WA data showed \nthat routine viral load testing, as recommended by \nWHO, was not happening, and that test results were \nnot reaching recipients of care. Essential information \nwas not being used to help people living with HIV \nachieve and maintain viral suppression via receipt of an \nundetectable result or through adherence counselling \nand/or switching to a new regimen.", "start_char_idx": 99306, "end_char_idx": 101296, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "908bfec0-d4da-4e5f-8cf6-9966bc6c360c": {"__data__": {"id_": "908bfec0-d4da-4e5f-8cf6-9966bc6c360c", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "6cfcd41c-bdf9-4017-8a1c-82c2b69dd31a", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "d569698c7df2ce3732124955a42f91941d7d2351215cfee9bfaa5793b4cb1312", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "98864cd5-5e41-4b44-92cc-8334343571ab", "node_type": "1", "metadata": {}, "hash": "daf5917e8f3f4ffa535db79bd23f71e039cf5861872cdbdaec88163d4389b754", "class_name": "RelatedNodeInfo"}}, "hash": "2c68632be180a6e34eea62f25a7bd6ad5f8ec04b1b81de967bdf8e709a21fcd4", "text": "Essential information \nwas not being used to help people living with HIV \nachieve and maintain viral suppression via receipt of an \nundetectable result or through adherence counselling \nand/or switching to a new regimen. \nFIGURE 10 Total number of people living with HIV who received a viral load test \nversus the number who received their viral load test result within two weeks \n(JANUARY-JUNE 2018)\nANNEX CBENIN C\u00d4TE \nD\u2019IVOIREGAMBIA GHANA GUINEA GUINEA-\nBISSAULIBERIA MALI SENEGAL SIERRA\nLEONETOGONumber of people living with HIV who have \ndone a viral load test\nNumber of people living with HIV who received their viral \nload test result within two weeks of taking the test10,000\n9,000\n8,000\n7 ,000\n6,000\n5,000\n4,000\n3,000\n2,000\n1,000\n0\n\n50   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nFIGURE 11 Relationship between receiving timely viral load test results and \nprevalence of viral load suppression at RCTO-WA facilities (JANUARY-JUNE 2018)\nFIGURE 12 The RCTO\u2019s three advocacy priorities and seven key messagesArmed with data that clearly pointed to a problem \nwith routine viral load monitoring, the national-level \ncommunity treatment observatories (CTOs) began to \nset and implement data-driven advocacy agendas, with \nguidance from their community consultative groups (CCGs). A regional-level advocacy agenda was set \nduring a Regional Advisory Board meeting in October \n2018. For the third 90, three advocacy priorities were \nset, with seven key messages.\nBy 2020, 90% of all people receiving antiretroviral therapy will have viral suppression\nIncrease funding to \nensure the availability of \nadequate viral load testing \nmachines and laboratory \nsupplies >AIDS Watch Africa must hold countries accountable for their Abuja Declaration commitments \non health spending, ensuring ministries of finance provide ministries of health with adequate \nbudget for viral load machines, lab reagents and maintenance plans.", "start_char_idx": 101076, "end_char_idx": 103015, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "98864cd5-5e41-4b44-92cc-8334343571ab": {"__data__": {"id_": "98864cd5-5e41-4b44-92cc-8334343571ab", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "908bfec0-d4da-4e5f-8cf6-9966bc6c360c", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "2c68632be180a6e34eea62f25a7bd6ad5f8ec04b1b81de967bdf8e709a21fcd4", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "c0b03713-0d46-4b4a-b32e-4edd104f7ced", "node_type": "1", "metadata": {}, "hash": "61330e4d75ba4abc6bd641d397c3589be527600c27499da1bccdda638825c9e2", "class_name": "RelatedNodeInfo"}}, "hash": "daf5917e8f3f4ffa535db79bd23f71e039cf5861872cdbdaec88163d4389b754", "text": ">Country Coordinating Mechanisms (CCMs) must include additional viral load testing machines, \nincluding OPP technology, in their Global Fund proposals for the 2020-2022 funding cycle.\nEnhance knowledge \namong people living \nwith HIV and healthcare \nworkers to increase \ndemand for high-quality \nviral load testing services >People living with HIV must have up-to-date health and treatment education, including \nknowledge of viral load testing guidelines about when and how often they are entitled to a viral \nload test.\n >Health centres must train their staff on viral load monitoring and provide supportive supervision \nto ensure that providers are conducting viral load testing at the right time.\nEnsure effective treatment \nmonitoring through \nacceptable turnaround \ntimes for viral load test \nresults >The West African Health Organization (WAHO) must support countries to conduct HIV  \ndrug-resistance surveys and to collect and analyze early warning indicators. \n >Laboratories must batch and streamline samples, sending timely results back to facilities.\n >Health care providers must notify the client of their test result as soon as it is received from the \nlaboratory.BENIN\nC\u00d4TE \nD\u2019IVOIRE\nGAMBIAGHANAGUINEA\nLIBERIA\nMALI\nSENEGALSIERRA LEONETOGO\nPeople living with HIV who received their viral load tests result within two weeks of taking the test \nas a proportion of the total number of people living with HIV that received a viral load test80%\n70%\n60%\n50%\n40%\n30%\n20%\n10%\n0%\n0% 20% 40% 60% 80% 100% 120%People living with HIV who are virally suppressed\n\n  51   \n ANNEX CCTO data was used to influence actions by a diverse set \nof decision makers to improve a range of HIV services. \nImportant CTO success stories began to emerge.\nAt the Bethesda Hospital in Cotonou, Benin, CTO host REBAP+ noticed that \nthe site had not been supplied with lab reagents for more than 10 months. \nThis meant that patients were not receiving critical treatment monitoring \nservices, including viral load tests and CD4 cell counts. The CTO data on \nreagent stock was recorded in REBAP+\u2019s report, for presentation to the \nCTO\u2019s community consultative group (CCG).", "start_char_idx": 103017, "end_char_idx": 105167, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "c0b03713-0d46-4b4a-b32e-4edd104f7ced": {"__data__": {"id_": "c0b03713-0d46-4b4a-b32e-4edd104f7ced", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "98864cd5-5e41-4b44-92cc-8334343571ab", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "daf5917e8f3f4ffa535db79bd23f71e039cf5861872cdbdaec88163d4389b754", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "65207ada-d899-4448-8f36-e1ed6e4994ff", "node_type": "1", "metadata": {}, "hash": "7094e06a3a095e5edde6a92de95d6edc82bbd56dc926587d66b16f9afa0d8e00", "class_name": "RelatedNodeInfo"}}, "hash": "61330e4d75ba4abc6bd641d397c3589be527600c27499da1bccdda638825c9e2", "text": "The CTO data on \nreagent stock was recorded in REBAP+\u2019s report, for presentation to the \nCTO\u2019s community consultative group (CCG). During this meeting of the CCG, \nthe Deputy Coordinator of The National AIDS Control Program (Programme \nsant\u00e9 de lutte contre le Sida-PSLS) was confronted with REBAP+\u2019s CTO data \non reagent stock-outs. The CCG\u2019s function as a feedback mechanism for the \nCTO worked, and a solution was found. After the meeting, PSLS stocked \nBethesda Hospital with reagents.\nThe host of the national CTO in Mali, RMAP+, has used CTO data to improve \nquality of care in health facilities by improving data quality and individual \npatient monitoring. During a recent CTO monitoring visit to the Gabriel \nTour\u00e9 University Teaching Hospital in Bamako, RMAP+ drew the attention \nof health facility managers to data entry issues. Viral load test results were \nbeing transferred from patient registers to the central viral load databases \nin groups, clustered by date. Using their CTO data analysis, RMAP+ pointed \nout that it is better to record this data individually, for each patient.CTO SUCCESS STORIES\nBENIN\nMALI\n\n52   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nFIGURE 13 Key improvements at RCTO-monitored sitesAs a result of CTO data collection and data-driven \nadvocacy, there were key improvements in viral load monitoring at RCTO-monitored facilities during the \nproject. \nFrequency of recorded  viral load lab \nstock-outs  at RCTO-monitored facilities\nPeople who got their viral load result \nwithin 2 weeks at RCTO-monitored \nfacilitiesViral load tests performed at RCTO-\nmonitored health facilities\nRate of  viral load suppression  at RCTO-\nmonitored health facilitiesPERIOD 1\n(January\u2013June 2018)PERIOD 2\n(July-December 2018)PERIOD 3\n(January\u2013June 2019)17.2%\n7.", "start_char_idx": 105037, "end_char_idx": 106839, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "65207ada-d899-4448-8f36-e1ed6e4994ff": {"__data__": {"id_": "65207ada-d899-4448-8f36-e1ed6e4994ff", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "c0b03713-0d46-4b4a-b32e-4edd104f7ced", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "61330e4d75ba4abc6bd641d397c3589be527600c27499da1bccdda638825c9e2", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "4aba9428-edb9-4e74-ae8b-e088d2c17dac", "node_type": "1", "metadata": {}, "hash": "89912982ec2d0731fd9db44d3f199fab4200cedcbcecef083e4ad00141f86def", "class_name": "RelatedNodeInfo"}}, "hash": "7094e06a3a095e5edde6a92de95d6edc82bbd56dc926587d66b16f9afa0d8e00", "text": "3% 6.5%\nPERIOD 1\n(January\u2013June 2018)PERIOD 2\n(July-December 2018)PERIOD 3\n(January\u2013June 2019)26% 27%30%PERIOD 1\n(January\u2013June 2018)PERIOD 2\n(July-December 2018)PERIOD 3\n(January\u2013June 2019)16,53231,47233,376\nPERIOD 1\n(January\u2013June 2018)PERIOD 2\n(July-December 2018)PERIOD 3\n(January\u2013June 2019)48.4%67.9%77. 4%\n\n  53   \n \u2714Strong leadership is critical.  \nThe more successful observatories had strong leadership within the national network and  \nhigh-level political buy-in. In Benin, the Office of the Presidency chaired the CCG. Initiatives \nmust invest in strengthing the host organization, as well as feedback mechanisms (like the \nCCG), for the CTO to be successful. \n \u2714The model must be embedded in the national response.   \nWorking closely with governments and other key national stakeholders was vital. Rather than \nfinger-pointing, the treatment observatories created a culture of collective problem solving \namong health care workers, decision makers and recipients of care. Governments came to see \nthe networks of people living with HIV as an asset and ally in the response.\n \u2714Moving from ad-hoc alerts to systematic monitoring is key.  \nThis enabled the observatories to be proactive instead of reactive. By monitoring services along \nthe entire cascade, other issues, such as stigma and discrimination as a barrier to access and \ngender-related health inequities, were unearthed. \n \u2714Different observatories function at different levels.  \nThe differences in geographic coverage and the varying capacities of the national networks \npresented challenges. ITPC developed an accreditation tool, classifying the observatories \ninto tiers. \n \u2714Data-driven advocacy works.   \nResults and analysis from the C\u00f4te d\u2019Ivoire observatory caught the eye of Ambassador Deborah \nBirx, who was the United States Global AIDS Coordinator.", "start_char_idx": 106840, "end_char_idx": 108669, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "4aba9428-edb9-4e74-ae8b-e088d2c17dac": {"__data__": {"id_": "4aba9428-edb9-4e74-ae8b-e088d2c17dac", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "65207ada-d899-4448-8f36-e1ed6e4994ff", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "7094e06a3a095e5edde6a92de95d6edc82bbd56dc926587d66b16f9afa0d8e00", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "8361b4a7-a89c-42dd-bbdc-9afcd922a6e6", "node_type": "1", "metadata": {}, "hash": "89faf14580d9b7b27845550ac19fb2da0dfa7c18bf5bb9ab2bfe385713cabdc5", "class_name": "RelatedNodeInfo"}}, "hash": "89912982ec2d0731fd9db44d3f199fab4200cedcbcecef083e4ad00141f86def", "text": "\u2714Data-driven advocacy works.   \nResults and analysis from the C\u00f4te d\u2019Ivoire observatory caught the eye of Ambassador Deborah \nBirx, who was the United States Global AIDS Coordinator. This observatory was funded by \nPEPFAR in COP 19 and successfully advocated for the removal of user fees in the country.LESSONS LEARNED\n\n54   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nThe COVID-19 pandemic is a historic global challenge. \nMany of the health and development gains of the past \ntwo decades \u2013 realized through pointed advocacy and impassioned commitment to strengthening \npublic health and human rights \u2013 are threatened \nby the impacts of this new disease on the health \nand livelihoods of billions. In high-burden settings, \nthe COVID-19 pandemic may increase HIV- and TB-\nrelated deaths over five years by up to 10% and 20%, \nrespectively (Figure 14).4 The greatest impact on HIV \nis estimated to be from ART interruptions, which may \noccur during a period of high or extremely high health \nsystem demand. The greatest impact on TB is estimated \nto be from reductions in timely diagnosis and treatment \nof new cases, which may result from a long period of \ninterventions to suppress COVID-19 transmission.Adapting CLM in South Africa and Malawi \nfor COVID-19 realities CASE STUDY #2\nThe greatest impact on HIV \nis estimated to be from ART \ninterruptions, which may occur during \na period of high or extremely high \nhealth system demand.\n( 4 )  Hogan, A. B., Jewell, B. L., Sherrard-Smith, E., Vesga, J. F., Watson, O. J., Whittaker, C., ... & Baguelin, M. (2020). Potential impact of the COVID-19 pandemic on HIV, \ntuberculosis, and malaria in low-income and middle-income countries: a modelling study. The Lancet Global Health , 8(9), e1132-e1141.", "start_char_idx": 108487, "end_char_idx": 110255, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "8361b4a7-a89c-42dd-bbdc-9afcd922a6e6": {"__data__": {"id_": "8361b4a7-a89c-42dd-bbdc-9afcd922a6e6", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "4aba9428-edb9-4e74-ae8b-e088d2c17dac", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "89912982ec2d0731fd9db44d3f199fab4200cedcbcecef083e4ad00141f86def", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "670e9f27-ef65-475a-9a39-e8b8afd3fee3", "node_type": "1", "metadata": {}, "hash": "2ea309a44dc4ea1a38bca6c395dc0fd3ff85903fa478470cece7e94404b7cdce", "class_name": "RelatedNodeInfo"}}, "hash": "89faf14580d9b7b27845550ac19fb2da0dfa7c18bf5bb9ab2bfe385713cabdc5", "text": "Potential impact of the COVID-19 pandemic on HIV, \ntuberculosis, and malaria in low-income and middle-income countries: a modelling study. The Lancet Global Health , 8(9), e1132-e1141. Online at  https:/ /www.thelancet.com/\njournals/langlo/article/PIIS2214-109X(20)30288-6/fulltext  FIGURE 14  \nTotal deaths per million due to HIV under each COVID-19 epidemic scenario\nNO ACTIONSOUTH AFRICA MALAWI\n200\n180\n160\n140\n120\n100\n80\n60\n40\n20\n0HIV/hyphen.capRELATED  DEATHS PER MONTH \nPER MILLION POPULATION\nMITIGATION SUPPRESSION/hyphen.capLEFTUNMANAGED \nSUPPRESSIONWELL/hyphen.capMANAGED SUPPRESSIONJanuary\n2020January\n2021January\n2022January\n2023January\n2024January\n2025100\n90\n80\n70\n60\n50\n40\n30\n20\n10\n0\nJanuary\n2020January\n2021January\n2022January\n2023January\n2024January\n2025\n\n  55   \nIn September 2020, with support from the Gates \nFoundation, ITPC began establishing specialized, \nCOVID-19-sensitive CTOs in South Africa and Malawi. \nThe goals were to: strengthen community-based \nresponses to COVID-19 among people living with HIV \nand TB; improve public health outcomes in this time \nof crisis; and, ambitiously, to strengthen and empower \npublic health activists to confront and manage the \nnew pandemic. \nA policy and data mapping exercise was performed to \nadapt standard CTO indicators to the new reality of \nCOVID-19. This was done to ensure that the indicators \ntracked by the CTOs were relevant to national HIV \nand TB responses in the context of COVID-19. For \nexample, this exercise revealed that Malawi\u2019s COVID-19 Guidance for HIV Services states that facilities are \nto document all recipients of care with any of four \nsymptoms as \u201cTB suspected\u201d in the ART patient \nrecord to provide valuable routine data for COVID-19 \nsurveillance.", "start_char_idx": 110071, "end_char_idx": 111814, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "670e9f27-ef65-475a-9a39-e8b8afd3fee3": {"__data__": {"id_": "670e9f27-ef65-475a-9a39-e8b8afd3fee3", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "8361b4a7-a89c-42dd-bbdc-9afcd922a6e6", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "89faf14580d9b7b27845550ac19fb2da0dfa7c18bf5bb9ab2bfe385713cabdc5", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "ca29ad08-76c2-48b4-ad42-a83a53363352", "node_type": "1", "metadata": {}, "hash": "ae6df500d6816220ec880be59da7cddfb6652d3decd0d525a47218507678d053", "class_name": "RelatedNodeInfo"}}, "hash": "2ea309a44dc4ea1a38bca6c395dc0fd3ff85903fa478470cece7e94404b7cdce", "text": "South Africa is prioritizing the rapid \nscale-up of community pick-up points for ART (such as \npost offices, grocery stores, churches and community \nhalls) to decongest health facilities during COVID-19. \nMore than 400 new pick-up points were registered \nbetween January and June 2020, a 20% increase from \nDecember 2019. CTO indicators were developed with \nthese priorities in mind. \nExperts estimated that the impact of COVID-19 on \nexcess HIV-related deaths could be mitigated by \nmaintaining ART supply for current recipients of \nANNEX CANNEX C( 5 )  UNAIDS (2020) Rights in a Pandemic - Lockdowns, rights and lessons from HIV in the early response to COVID-19, pp. 31. Online at https:/ /www.unaids.org/en/resources/\ndocuments/2020/rights-in-a-pandemicTABLE 10  Example of COVID-sensitive CLM indicators \nINDICATOR  WHY IT IS RELEVANT IN THE CONTEXT OF COVID-19?  \nQUANTITATIVE  \nNumber of people living with \nHIV receiving multi-month \nART dispensing Countries are rapidly scaling up multi-month dispensing to decongest health facilities during \nCOVID-19. Yet, evidence from UNAIDS suggests that the supply of medicines dispensed does \nnot always match the policy, often due to stock unpredictability, which has been exacerbated \nby COVID-19. \nNumber of TB tests conducted \nusing rapid molecular \nplatformsGeneXpert machines are being repurposed to test for COVID-19. As a result, rapid molecular \nTB testing rates have reportedly plummeted in many countries. In South Africa, for example, \nusing these machines for COVID-19 testing resulted in a 48% decline in GeneXpert TB testing, \nwhich led to a 33% decline in the number of people diagnosed with TB and a significant \ndecrease in TB case notifications.\nNumber of people living with \nHIV on ART who are lost to \nfollow upPEPFAR data show a 1.5% decline in treatment retention in South Africa \u2013 about 100,000 \nindividuals lost from care \u2013 between 27 March and 5 June (during the Level 4-5 lockdown).", "start_char_idx": 111815, "end_char_idx": 113773, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "ca29ad08-76c2-48b4-ad42-a83a53363352": {"__data__": {"id_": "ca29ad08-76c2-48b4-ad42-a83a53363352", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "670e9f27-ef65-475a-9a39-e8b8afd3fee3", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "2ea309a44dc4ea1a38bca6c395dc0fd3ff85903fa478470cece7e94404b7cdce", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "3faa4fe5-99b5-41bf-b030-ee4d74d589f7", "node_type": "1", "metadata": {}, "hash": "98f1c6329ed7758a83ad68aa3a8c5b72ffffc1dc97a75dfa9fe9a2c10822f2e5", "class_name": "RelatedNodeInfo"}}, "hash": "ae6df500d6816220ec880be59da7cddfb6652d3decd0d525a47218507678d053", "text": "QUALITATIVE  \nWhat are the challenges that \npeople living with HIV face in \nadhering to ART now?Food insecurity, mental health and the suspension of support groups for people living with \nHIV have all been reported since COVID-19 began. These issues are likely to affect the ability \nof people living with HIV to adhere to their medication. \nHow do legal restrictions on \nmovement affect access to \nfood, health care, shelter or \nother basic needs?The Ugandan Medical Association reports that there have been delays in receiving travel \npermits during lockdown and that, in the interim, doctors who drive without them have been \nbeaten, arrested and tortured.\n\n56   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\ncare. As such, in Malawi, the government issued \nCOVID-19 Guidance for HIV Services , which provided \nfor dispensing a six-month supply of ARVs to people \nliving with HIV on certain regimens. In South Africa, \nmost provinces issued guidance that provided for \ndispensing a three-month ART supply. A UNAIDS \nstudy found that in Malawi, most people were \nreceiving six months of ART whereas in South Africa, \nmost people were receiving a two-month supply.5 ITPC \nidentified a critical need to monitor HIV responses in \nthe context of COVID-19, including the rapid scale up \nof multi-month ART dispensing.\nIn the context of COVID-19, more than indicators had \nto be adapted. COVID-19 prevention measures have \nled most people to work remotely, and academic \ninstitutions have implemented e-learning. During \nsocial distancing, isolation and quarantine, technology \nhas taken the place of physical interactions, including \nhow people seek and access services. COVID-19 has \nand will continue to transform the way CTOs use \ntechnology for data collection, community education, \nadvocacy and improving health systems and service \ndelivery. ITPC conducted a technology mapping/\nsituation analysis to explore how this could happen, \nwhich technology tools are currently being used, tools that could be useful and feasible, and how technology \ncould facilitate a cost-effective approach to multiscale, \nmultisite real-time community-led data collection, use \nand integration with routine facility and national data \nsystems. \nContingency plans for training and data collection \nhad to be put in place.", "start_char_idx": 113774, "end_char_idx": 116095, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "3faa4fe5-99b5-41bf-b030-ee4d74d589f7": {"__data__": {"id_": "3faa4fe5-99b5-41bf-b030-ee4d74d589f7", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "ca29ad08-76c2-48b4-ad42-a83a53363352", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "ae6df500d6816220ec880be59da7cddfb6652d3decd0d525a47218507678d053", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "8504bfc5-a9d2-4692-a474-bca6960e4b84", "node_type": "1", "metadata": {}, "hash": "9571cab2bc022923f8cd0fc7989af4dc5fb795d85e0b5a6a7456f7eb3d73cc37", "class_name": "RelatedNodeInfo"}}, "hash": "98f1c6329ed7758a83ad68aa3a8c5b72ffffc1dc97a75dfa9fe9a2c10822f2e5", "text": "Contingency plans for training and data collection \nhad to be put in place. ITPC planned a series of virtual \ncapacity buildings/trainings with the in-country \nproject teams to ensure that they had sufficient \nknowledge of HIV, TB and COVID-19, including \nguidelines for prevention, testing, care, treatment \nand service delivery, M&E, data collection and \nmanagement methods. These virtual trainings, which \nwould ordinarily be done in-person, enabled trainees \nto understand what should be monitored, identify gaps \nin treatment access and challenges in their respective \nenvironments, and collect evidence for advocacy to \nimprove health outcomes among recipients of care.\nNext, 30 high-burden health facilities were selected \nfor monitoring (15 in each country). Protocols were \ndeveloped for how data could be collected while \nobserving social distancing regulations or even \nremotely, if necessary. \n( 5 )  UNAIDS (2020) Rights in a Pandemic - Lockdowns, rights and lessons from HIV in the early response to COVID-19, pp. 31.  \nOnline at https:/ /www.unaids.org/en/resources/documents/2020/rights-in-a-pandemic\n\n  57   \nStarting CLM approaches in Namibia CASE STUDY #3\nImplementing CLM interventions was a key \nrecommendation for community systems \nstrengthening in Namibia\u2019s mid-term review of the \nHIV National Strategic Framework 2017-2022. \nJuly 2020:  Virtual consultations were held with \nCSOs and the National Monitoring and Evaluation \nTechnical Advisory Committee about collaboration \nwith UNAIDS and the United States Government to \nsupport CLM in Namibia.September 2020 to November 2020:   \nA transparent process was established for selecting \nCSOs to implement CLM, including a panel of \nrepresentatives from CSOs, the MoH, UNAIDS \nand the US Government. Contracts were made \nwith three independent organizations (Society \nfor Family Health, Positive Vibes, Catholic AIDS \nAction).\nITPC helped build consensus around the definition, \naim and scope of CLM. A national strategy for CLM \nwas adopted, with CSO and community leadership \nand ownership, and a government partnership was \nestablished for integration with its multisectoral \ninformation system.", "start_char_idx": 116020, "end_char_idx": 118191, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "8504bfc5-a9d2-4692-a474-bca6960e4b84": {"__data__": {"id_": "8504bfc5-a9d2-4692-a474-bca6960e4b84", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "3faa4fe5-99b5-41bf-b030-ee4d74d589f7", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "98f1c6329ed7758a83ad68aa3a8c5b72ffffc1dc97a75dfa9fe9a2c10822f2e5", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "b335e59c-58d3-45cc-be7e-52204b2a7061", "node_type": "1", "metadata": {}, "hash": "916033f98fc9b340a772b918389d1437ba62abf793c5fca1e5c14aa744f87567", "class_name": "RelatedNodeInfo"}}, "hash": "9571cab2bc022923f8cd0fc7989af4dc5fb795d85e0b5a6a7456f7eb3d73cc37", "text": "A national strategy for CLM \nwas adopted, with CSO and community leadership \nand ownership, and a government partnership was \nestablished for integration with its multisectoral \ninformation system. A CLM protocol was developed, with support from the US Centers for Disease \nControl and Prevention (CDC), USAID and PEPFAR, \nreviewed by ITPC, and cleared by Namibia\u2019s Ethical \nCommittee. CLM tools were developed and CSOs \nwere trained on their use\nCOVID-19 caused disruptions and delays; these \nchallenges were discussed during monthly \nmeetings with CDC, PEPFAR and UNAIDS.A PEPFAR-developed monitoring map was used to \ndetermine the best ways to continue delivering HIV \nprevention and treatment services.\nData collection was rolled out in April 2021 and \nis still taking place. Data validation and analysis, report writing, dissemination and advocacy will be \nsubsequently implemented. The CDC, PEPFAR and USAID provided guidance \nthroughout the process, from developing the CLM \nproposal to securing ethical clearance.  The Global Fund\u2019s Program Management Unit \nsupported national consultations and is actively \nsupporting the CSO/MoH support team by creating \nan enabling environment for, and providing \noversight of, CLM.Political engagement and mobilization of national stakeholders \nITPC support to UNAIDS/ Namibia\nChallenges\nNext stepsSupport from the Global Fund and the US Government\nANNEX C\n\n58   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\n \u2714The CLM approach in Namibia was institutionalized at the national level.  \nCivil society partners, the MoH and development partners (UNAIDS UCO, Global Fund, \nPEPFAR and CDC) convened to develop a National CLM Strategy, which was aligned to \nNamibia\u2019s National Strategic Framework. Although the CLM strategy design process included \nmultisectoral partners and stakeholders, ownership of the CLM strategy remained community-\nled. Three grassroots implementing partners were selected to lead the programme. This was a \nunique and good practice example of a nationalized and endorsed CLM approach.", "start_char_idx": 117994, "end_char_idx": 120062, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "b335e59c-58d3-45cc-be7e-52204b2a7061": {"__data__": {"id_": "b335e59c-58d3-45cc-be7e-52204b2a7061", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "8504bfc5-a9d2-4692-a474-bca6960e4b84", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "9571cab2bc022923f8cd0fc7989af4dc5fb795d85e0b5a6a7456f7eb3d73cc37", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "72a78295-6385-4628-871b-2fe1e5b6ecfb", "node_type": "1", "metadata": {}, "hash": "3b8586b5dd8bb50e4fac0663a6ed10fc68a2fb7af91cdf66c1a25b69d9974a40", "class_name": "RelatedNodeInfo"}}, "hash": "916033f98fc9b340a772b918389d1437ba62abf793c5fca1e5c14aa744f87567", "text": "Three grassroots implementing partners were selected to lead the programme. This was a \nunique and good practice example of a nationalized and endorsed CLM approach.\n \u2714The technical assistance support for Namibia was equally comprehensive, with \nsupport provided to: \n\u2022 Conduct a situational analysis and mapping of Namibia\u2019s HIV response \n\u2022 Host a CLM orientation webinar to build capacity and awareness of CLM methodology \n\u2022 Facilitate a series of community and stakeholder consultative sessions to identify and \nunpack CLM priorities \n\u2022 Develop a national CLM strategy and present the framework to the National Aids Council \n(NAC), MoH (M&E unit) and other technical working group meetings on strategic initiatives \nand M&E \n\u2022 Design and develop Namibia\u2019s CLM implementation plan, inclusive of indicators framework, \ndata management and tools, data collection processes, etc. \n\u2022 Provide training to implementing partners, Global Fund programme implementation unit \nand MoH on CLM methodology and data collection/M&E, HIV, TB & COVID-19 treatment \neducation training \u2013 for data collectors, programme officers and M&E personnel \n\u2022 Review of ethical clearance protocols \n\u2022 Provide technical support for pilot data collection and refining data collection tools and the \nCLM process \n \u2714UNAIDS UCO and the three implementing partners are set to conduct data \ncollection as of 1 April 2021 with full endorsement by the MoH. LESSONS LEARNED\n\n  59   \nCommunity-based organizations often struggle to meet \nthe evolving needs of people they serve, keep their \nstaff trained, develop strong governance structures and \nsustainability plans and, at the same time, fulfil donor \nreporting requirements. CLM and related advocacy \nare designed to improve quality of and access to \nHIV services, while strengthening community-based \norganizations and networks of people living with HIV. \nThe foundation of a sound CLM and related advocacy \nmodel is ensuring that the host organization has the \nrequisite skills and systems in place to implement \ninterventions, manage the team and oversee the \nfinancial management of any grants received. \nCLM host organizations and/or CLM implementers are \ndefined as community-led organizations representing \naffected and concerned populations, such as people living \nwith HIV, key populations, women and young people. \nThey are often a formal coalition of organizations with a \nwritten agreement covering ways of working together, \nmutual accountability and conflict resolution.", "start_char_idx": 119897, "end_char_idx": 122397, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "72a78295-6385-4628-871b-2fe1e5b6ecfb": {"__data__": {"id_": "72a78295-6385-4628-871b-2fe1e5b6ecfb", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "b335e59c-58d3-45cc-be7e-52204b2a7061", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "916033f98fc9b340a772b918389d1437ba62abf793c5fca1e5c14aa744f87567", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "e8b4d211-5b68-44f6-9090-ebe8d7b5909b", "node_type": "1", "metadata": {}, "hash": "0581c5fa720769bc0dc8268a25bc8745541093020978bc212a73de3f44301f4a", "class_name": "RelatedNodeInfo"}}, "hash": "3b8586b5dd8bb50e4fac0663a6ed10fc68a2fb7af91cdf66c1a25b69d9974a40", "text": "They are often a formal coalition of organizations with a \nwritten agreement covering ways of working together, \nmutual accountability and conflict resolution. \nHost organizations become custodians and gatekeepers \nof community data, so the network skills and systems \nneeded to implement CLM must be developed. Host organizations benefit from CLM evaluations and ongoing \nassessments of their functionality and overall health, \nwhich identify areas for improvement. When communities \nlead CLM interventions and approaches, there is: \n\u2022 Ownership of the process.  Communities have a \nvested interest in the outcomes; data that have \nbeen collected do not \u201cvanish\u201d as they often have \nwith traditional researchers. Community systems \nare also strengthened in the process: staff develops \nskills in data management, M&E and advocacy while \norganizations build and maintain their track records.\n\u2022 Appropriate and responsive interventions. \nSolutions are closer to the issues; community-led \ninterventions can generate more valuable and \nhonest insights to address pressing needs.\n\u2022 Action- and accountability-focused results.  Data \ncollection and analysis are for a purpose; they are \ndirectly linked to advocacy or other targeted action \nto improve quality and service delivery and hold \nthose in power accountable. \nAlthough not mandatory, an accreditation process helps \nbuild sustainable institutional systems for CLM and \nhost organizations to ensure quality and attract and \nmaintain donors. Once CLM has been embedded into the \noperations of the host organization, external reviewers \ncan assess the host organization\u2019s systems, policies and \ngovernance, and the effectiveness of CLM work can be \nrated across four areas (education, evidence, engagement \nand advocacy). Accreditation team reviewers develop \nrecommendations based on the overall assessment and \nscoring across different areas to strengthen the host \norganization and/or CLM implementers. ANNEX D\nCLM and community and  \ninstitutional systems strengthening \nCLM and related advocacy are designed \nto improve quality of and access to \nHIV services, while strengthening \ncommunity-based organizations and \nnetworks of people living with HIV.", "start_char_idx": 122238, "end_char_idx": 124447, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "e8b4d211-5b68-44f6-9090-ebe8d7b5909b": {"__data__": {"id_": "e8b4d211-5b68-44f6-9090-ebe8d7b5909b", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "72a78295-6385-4628-871b-2fe1e5b6ecfb", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "3b8586b5dd8bb50e4fac0663a6ed10fc68a2fb7af91cdf66c1a25b69d9974a40", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "f8e18270-c373-4301-a7ec-200decd1f1c9", "node_type": "1", "metadata": {}, "hash": "d912f438c96dc1a28c8007d9267ba7e4e2414848d582cfb8b3d3a5cc20c3cb56", "class_name": "RelatedNodeInfo"}}, "hash": "0581c5fa720769bc0dc8268a25bc8745541093020978bc212a73de3f44301f4a", "text": "ANNEX D\n\n60    HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nThe accreditation tool outlines standards for assessing the host organization across \nsix areas: \nOnce the assessment is complete, a team of reviewers meets with the host organization to discuss \nthe results, using an accreditation tool to generate scoring across ITPC\u2019s accreditation framework and \nstandards. (See Annexes D and E for more information about the accreditation process.)Existence of good governance and accountability practices , such as a board that \nmeets regularly. Board members need to have the requisite skills for oversight and good \ngovernance and management, and defined roles and responsibilities (that is, terms of reference \nfor the chair, treasurer, secretary). The board constitution and minutes from all board and staff \nmeetings are available and the organization complies with national laws and regulations. The \ndecision-making processes are clear and transparent. \nLeadership of the organization operates openly and transparently , following \nits governance policies. The decision-making process is clear, governance policies have been \nshared with staff, and staff is informed of key decisions. \nAdequate number of skilled staff to implement its functions (such as programme, \nfinance and M&E). Staff performance is continuously assessed, and refresher training to \nimprove the capacity of staff is provided. Existence of good policies that govern organizational operations . Policies are in \nplace (standardized procedures manual, templates for descriptions of governance structure and \nreports; organizational diagrams and job descriptions; financial and project reporting, policy, risk \nand fraud management). These are used to guide organizational operations. The organization \nhas a child protection policy, and safety and security policies for beneficiaries are in place. The \norganization has strong capacity and systems for effective management and oversight.\nLeadership and management structure , with the roles and responsibilities of the \norganization\u2019s leadership defined. Terms of reference or job descriptions or a human resources \nmanual are available and approved by the board.\nStrategic and resource mobilization plans outline the mandate of the organization and \nits plan to acquire funds to implement its key interventions.", "start_char_idx": 124448, "end_char_idx": 126804, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "f8e18270-c373-4301-a7ec-200decd1f1c9": {"__data__": {"id_": "f8e18270-c373-4301-a7ec-200decd1f1c9", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "e8b4d211-5b68-44f6-9090-ebe8d7b5909b", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "0581c5fa720769bc0dc8268a25bc8745541093020978bc212a73de3f44301f4a", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "7ab315f8-d722-4ee9-a841-e09e3106a5bb", "node_type": "1", "metadata": {}, "hash": "706857b436b229cf4ea1eefcd7d1d68483c300195902a38f40b7c96da2a6fd8f", "class_name": "RelatedNodeInfo"}}, "hash": "d912f438c96dc1a28c8007d9267ba7e4e2414848d582cfb8b3d3a5cc20c3cb56", "text": "Terms of reference or job descriptions or a human resources \nmanual are available and approved by the board.\nStrategic and resource mobilization plans outline the mandate of the organization and \nits plan to acquire funds to implement its key interventions. 1\n3\n52\n4\n6\n\n  61   \nANNEX E\nAccreditation process  \nANNEX EGOAL 1 ASSESSING THE EFFECTIVENESS OF CLM COMPONENTS  \nEducation Capacity buildingThe organization regularly and effectively builds the capacity of its \nmembers:\n >Clear informational and educational materials (such as fact sheets, \npresentations, training curricula and communications toolkits) about \nstandards and how to measure \u201cwhat is\u201d (actual practices and experience) \nagainst \u201cwhat should be\u201d (intended or desired policies, protocols, plans)\n >A process (a reading checklist with quizzes, online training portal or \nstandard training workshop agenda) through which individuals can \ngo through content and then document that they have absorbed the \ninformation and are now informed and competent\n >A process (discussion groups, regular briefings or trainings) through \nwhich individuals can update their knowledge and continually learn and \nexchange new information so that their levels of knowledge are current \nand up to date\nEvidence Data collection and storageThe organization has an established mechanism to systematically and \naccurately collect data at designated sites, transmit and store data securely, \nand establish a system for oversight of data collectors: \n >Evidence is community-generated  (people know that they can and \nshould collect evidence, know how to collect that evidence, and know how \nand where to post and share that evidence)\n >Evidence is  independently generated  (i.e. not wholly reliant on one \nfunder that has a specific bias or intent; collected and posted from \nmultiple perspectives and accountable to multiple audiences and \nstakeholders)\n >Evidence is ethically generated  (i.e. protecting confidentiality, security, \nconsent)\n >Evidence is routine, continuous and sustained  (i.e. not a snapshot but \ncollected and posted over time, so becomes significant as something \nanticipated and comparative over time)\n >Evidence is widespread  (i.e. collected and shared from multiple sites or \nlocations, so becomes significant as comparative)\n >Evidence is rigorous  (structured, systematically collected, reviewed, \ncleaned, synthesized, etc.", "start_char_idx": null, "end_char_idx": null, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "7ab315f8-d722-4ee9-a841-e09e3106a5bb": {"__data__": {"id_": "7ab315f8-d722-4ee9-a841-e09e3106a5bb", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "f8e18270-c373-4301-a7ec-200decd1f1c9", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "d912f438c96dc1a28c8007d9267ba7e4e2414848d582cfb8b3d3a5cc20c3cb56", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "857ae1cd-087a-4874-91b5-6cf3b3e33366", "node_type": "1", "metadata": {}, "hash": "fc08e3dd68ef5b26f70e04673a6ed5146bf9945af9a4e0ba3d48e02f8ec2c1ef", "class_name": "RelatedNodeInfo"}}, "hash": "706857b436b229cf4ea1eefcd7d1d68483c300195902a38f40b7c96da2a6fd8f", "text": "e. collected and shared from multiple sites or \nlocations, so becomes significant as comparative)\n >Evidence is rigorous  (structured, systematically collected, reviewed, \ncleaned, synthesized, etc. so that it is a valid and reliable reflection of \nwhat is truly there)\n >Evidence is actionable  (i.e. that it documents \u201cwhat is\u201d, can compare \nwith \u201cwhat should be\u201d, and is useful in developing recommendations and \nmobilizing coalitions and allies and persuading policy makers)\n\n62   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nGOAL 1  \n(CONTINUED)ASSESSING THE EFFECTIVENESS OF CLM COMPONENTS  \nEvidenceEthical clearance and \nconsentThe organization has acquired ethical clearance to collect data and obtained \nwritten or verbal consent from all respondents. \nCapacity of data collectorsThe organization has the requisite number of data collectors, who have the \nnecessary skills and training to collect information; a mechanism exists for \noversight of data collection processes. \nData capture and entryThe organization regularly and effectively transmits the data it has collected \nto a secure database. \nData qualityThe organization has the capacity to systematically perform quality audits \non the data it collects.\nData analysisThe organization has the capacity to systematically and accurately analyse \nCLM data. \nAdvocacyAdvocacyThe organization is able to undertake advocacy actions and interventions \nusing CLM data: \n >People\u2019s experience, skills and abilities  for understanding policy \nand advocacy issues; crafting advocacy goals, strategies, targets and \nmessaging; organizing coalitions and allies; communicating effectively; \nand their access and credibility with decision makers or other targets of \nadvocacy\n >People\u2019s independence , with resources and support, to work across \norganizations and interests and sustain that work in visible, vocal ways \nover time, especially when change takes years of pushing against \nentrenched interests, deep structural challenges, and cycles of negotiation \nand confrontation\n >Community structures,  such as advocacy networks or coalitions, \nwebsites and social media channels, or dedicated advocacy staffing at \norganizations, through which people can communicate and work together \nover time\nCommunicationsThe organization has the capacity to increase its visibility and promote its \nwork at the local, national, regional and global levels. \nEngagementOwnershipThe organization has demonstrated community ownership, innovation and \nadaptability in implementation in the national context.", "start_char_idx": null, "end_char_idx": null, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "857ae1cd-087a-4874-91b5-6cf3b3e33366": {"__data__": {"id_": "857ae1cd-087a-4874-91b5-6cf3b3e33366", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "7ab315f8-d722-4ee9-a841-e09e3106a5bb", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "706857b436b229cf4ea1eefcd7d1d68483c300195902a38f40b7c96da2a6fd8f", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "9a358288-158d-4073-bc12-284de0e08812", "node_type": "1", "metadata": {}, "hash": "27bc861ed15f611e44c9c0aca04a85bc5ec03259aad254c12b127e5049778636", "class_name": "RelatedNodeInfo"}}, "hash": "fc08e3dd68ef5b26f70e04673a6ed5146bf9945af9a4e0ba3d48e02f8ec2c1ef", "text": "EngagementOwnershipThe organization has demonstrated community ownership, innovation and \nadaptability in implementation in the national context.\nAcademic institutionThe organization has strong partnerships with local academic/research \ninstitutions or hires skilled consultants/individuals to support data analysis.\nCommunity consultative \ngroups The organization has a functional community consultative group that has \noversight of the CLM data and advocacy interventions.\nNational integrationThe organization is integrated into the national context, has established \nlocal and national partnerships to synchronize activities and avoid \nduplication, and is involved in the community consultative group and/or \nnational technical forums. \n\n  63   \nGOAL 2ASSESSING THE EFFECTIVENESS OF ORGANIZATIONAL SYSTEMS, POLICIES AND  \nGOVERNANCE\nGood governance and accountability The organization practices good governance and ensures accountability.\nPolicies The organization has established policies that govern operations.\nTransparencyThe organization\u2019s leadership demonstrates transparency in decision making \nand operations.\nLeadership The organization has a clear leadership and management structure.\nPersonnelThe organization has an adequate number of skilled staff members to \nimplement its essential functions (such as programme, finance and M&E).\nIT and technologyThe organization possesses appropriate technology tools and platforms to \nsupport CLM implementation. \nANNEX E\n\n64   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nANNEX F\nResource list\nGLOBAL AIDS STRATEGY\nUNAIDS CLM RESOURCES\nUNAIDS. End Inequalities. End AIDS.  \nGlobal AIDS Strategy 2021-2026.\nVIEW / DOWNLOAD:  https:/ /www.unaids.org/sites/default/files/media_asset/\nglobal-AIDS-strategy-2021-2026_en.pdf\nEstablishing community-led monitoring of HIV services \u2014 \nPrinciples and process | UNAIDS\nVIEW / DOWNLOAD:  https:/ /www.unaids.org/en/resources/documents/2021/\nestablishing-community-led-monitoring-hiv-services\nThe French, Russian and Spanish versions of the community-led guidance \ndocument and the accompanying frequently asked questions are now \navailable online. \nFRENCH:  https:/ /www.unaids.org/fr/resources/documents/2021/establishing-\ncommunity-led-monitoring-hiv-services\nRUSSIAN:  https:/ /www.unaids.", "start_char_idx": 131177, "end_char_idx": 133480, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "9a358288-158d-4073-bc12-284de0e08812": {"__data__": {"id_": "9a358288-158d-4073-bc12-284de0e08812", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "857ae1cd-087a-4874-91b5-6cf3b3e33366", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "fc08e3dd68ef5b26f70e04673a6ed5146bf9945af9a4e0ba3d48e02f8ec2c1ef", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "e12a571d-c353-4c0f-aad9-312c957cd07a", "node_type": "1", "metadata": {}, "hash": "c56e289e2f7906d65417120b28ba664f0f33af77a9fdb25ff3958a2d31e363fb", "class_name": "RelatedNodeInfo"}}, "hash": "27bc861ed15f611e44c9c0aca04a85bc5ec03259aad254c12b127e5049778636", "text": "FRENCH:  https:/ /www.unaids.org/fr/resources/documents/2021/establishing-\ncommunity-led-monitoring-hiv-services\nRUSSIAN:  https:/ /www.unaids.org/ru/resources/documents/2021/establishing-\ncommunity-led-monitoring-hiv-services\nSPANISH:  https:/ /www.unaids.org/es/resources/documents/2021/establishing-\ncommunity-led-monitoring-hiv-services\n\n  65   \n ANNEX FITPC PUBLICATIONS ON COMMUNITY-LED MONITORING\nIntegrating Community-Led Monitoring (CLM) into C19RM \nFunding Requests \nVIEW / DOWNLOAD:  https:/ /itpcglobal.org/resource/integrating-community-\nled-monitoring-clm-into-c19rm-funding-requests\nCommunity-led Monitoring Brief\nVIEW / DOWNLOAD:  http:/ /itpcglobal.org/wp-content/uploads/2020/02/\nCommunity-Led-Monitoring-Brief_full.pdf \nThe ITPC Community Treatment Observatory (CTO)  \nModel Explained\nVIEW / DOWNLOAD FULL REPORT:  http:/ /itpcglobal.org/wp-content/\nuploads/2019/02/ITPC-CTO-Model-Full-Eng.pdf\nVIEW / DOWNLOAD SUMMARY:  http:/ /itpcglobal.org/wp-content/\nuploads/2019/02/ITPC-CTO-Model-Summary-Eng.pdf\nWhy We Must Watch What Matters:  \nInitial Findings from the Regional Community  \nTreatment Observatory in West Africa\nVIEW / DOWNLOAD:  http:/ /watchwhatmatters.org/wp-content/\nuploads/2018/03/RCTO-WA-Baseline-Summary-Report-2017.pdf\nData for a Difference: Key Findings, Analysis and  \nAdvocacy Opportunities from the Regional Community \nTreatment Observatory in West Africa \nVIEW / DOWNLOAD:  http:/ /itpcglobal.org/wp-content/uploads/2019/06/RCTO-\nWA-Data-for-a-Difference-Advocacy-Paper.", "start_char_idx": 133337, "end_char_idx": 134848, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "e12a571d-c353-4c0f-aad9-312c957cd07a": {"__data__": {"id_": "e12a571d-c353-4c0f-aad9-312c957cd07a", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "9a358288-158d-4073-bc12-284de0e08812", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "27bc861ed15f611e44c9c0aca04a85bc5ec03259aad254c12b127e5049778636", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "e33fb731-88b1-4336-a9c5-da2e3044d481", "node_type": "1", "metadata": {}, "hash": "57cce46c23d41603c92ba58f2597ee10c2d665d69fec02285ce29e6309bd2d2f", "class_name": "RelatedNodeInfo"}}, "hash": "c56e289e2f7906d65417120b28ba664f0f33af77a9fdb25ff3958a2d31e363fb", "text": "org/wp-content/uploads/2019/06/RCTO-\nWA-Data-for-a-Difference-Advocacy-Paper.pdf \n\n66   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nITPC PUBLICATIONS ON COMMUNITY-LED MONITORING\nRCTO-WA Regional Fact Sheet: Understanding Gaps in the \nHIV Care Continuum in 11 West African Countries \nVIEW / DOWNLOAD:  https:/ /itpcglobal.org/resource/integrating-community-\nled-monitoring-clm-into-c19rm-funding-requests\nRCTO-WA Regional Fact Sheet: Improving Access to \nQuality HIV Treatment in 11 West African Countries \nVIEW / DOWNLOAD:  https:/ /itpcglobal.org/wp-content/uploads/2019/10/\nRCTO-Regional-Fact-Sheet-2-English.pdf \n\u201cThey Keep Us on Our Toes\u201d: How the Regional \nCommunity Treatment Observatory in West Africa \nimproved HIV service delivery, strengthened systems for \nhealth, and institutionalized community-led monitoring \nVIEW / DOWNLOAD:  https:/ /itpcglobal.org/wp-content/uploads/2020/10/ITPC-\n2020-They-Keep-Us-On-Our-Toes.pdf\nDoing Things Differently: Key Findings from  \nCommunity Treatment Observatories in Malawi,  \nZambia and Zimbabwe\nVIEW / DOWNLOAD:  https:/ /itpcglobal.org/wp-content/uploads/2020/10/\nsaCTO-Analysis_9-21_rev2-2.pdf\n\n  67   \n ANNEX FITPC COMMUNITY TREATMENT OBSERVATORY VIDEOS\nPEER-REVIEWED PUBLICATIONS ON ITPC\u2019S COMMUNITY  \nTREATMENT OBSERVATORY MODEL\nWhat is a Community Treatment Observatory?  \nShort video\nVIEW:  https:/ /www.youtube.com/watch?v=C0Y_4S_XFKI \nWatching What Matters:  \nITPC\u2019s Community Treatment Observatories\nVIEW:  https:/ /www.youtube.com/watch?v=TxbIOdKUVzA\nCommunity-led monitoring can work  \nanywhere in the world\nVIEW:  https:/ /www.youtube.com/watch?v=rHAQGbT_MYI \nBaptiste S, Manouan A, Garcia P, Etya\u2019ale  H, Swan T, Jallow W (2020).", "start_char_idx": 134771, "end_char_idx": 136483, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "e33fb731-88b1-4336-a9c5-da2e3044d481": {"__data__": {"id_": "e33fb731-88b1-4336-a9c5-da2e3044d481", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "e12a571d-c353-4c0f-aad9-312c957cd07a", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "c56e289e2f7906d65417120b28ba664f0f33af77a9fdb25ff3958a2d31e363fb", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "446d962c-da14-4785-b914-bc2f70b3908d", "node_type": "1", "metadata": {}, "hash": "cc378b53f6fed8f7354a1581384f9c7508ceb0cdf8b5307e9bf24cf94f37cbfe", "class_name": "RelatedNodeInfo"}}, "hash": "57cce46c23d41603c92ba58f2597ee10c2d665d69fec02285ce29e6309bd2d2f", "text": "Community-Led Monitoring: When Community Data Drives Implementation \nStrategies. Current HIV/AIDS Reports , 1-7 . \nVIEW / DOWNLOAD:  https:/ /link.springer.com/article/10.1007/s11904-020-00521-2 \nEllie MP, Kibe PW, Flomo BM, Ngwatu BK (2019). Breaking barriers: Using \nevidence from a Community Treatment Observatory (CTO) to enhance uptake of \nHIV services in Sierra Leone. The Journal of Health Design , 4(1). \nVIEW / DOWNLOAD:  https:/ /www.journalofhealthdesign.com/JHD/article/view/70 \nOberth G, Baptiste S, Jallow W, Manouan A, Garcia P, Traore AM, Murara J, Boka \nR (2019). Understanding gaps in the HIV treatment cascade in eleven West \nAfrican countries: Findings from a regional community treatment observatory. \nCentre for Social Science Research (CSSR) Working Paper No. 441 . ISBN: 978-1-\n77011-428-9.", "start_char_idx": 136485, "end_char_idx": 137299, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "446d962c-da14-4785-b914-bc2f70b3908d": {"__data__": {"id_": "446d962c-da14-4785-b914-bc2f70b3908d", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "e33fb731-88b1-4336-a9c5-da2e3044d481", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "57cce46c23d41603c92ba58f2597ee10c2d665d69fec02285ce29e6309bd2d2f", "class_name": "RelatedNodeInfo"}, "3": {"node_id": "c6eaa4f2-dc1a-4c09-aa73-2eda920fe16e", "node_type": "1", "metadata": {}, "hash": "5b0fa834353fd469114d34f26a0d5eacab4539e8d5b5ad316742a11da76337f0", "class_name": "RelatedNodeInfo"}}, "hash": "cc378b53f6fed8f7354a1581384f9c7508ceb0cdf8b5307e9bf24cf94f37cbfe", "text": "Centre for Social Science Research (CSSR) Working Paper No. 441 . ISBN: 978-1-\n77011-428-9. \nVIEW / DOWNLOAD:  http:/ /www.cssr.uct.ac.za/cssr/pub/wp/441\n\n68   HOW TO IMPLEMENT COMMUNITY-LED MONITORING: A COMMUNITY TOOLKIT\nITPC\u2019S COMMUNITY TREATMENT OBSERVATORY  \nCONFERENCE PAPERS\nAbstract-driven session at IAS 2019 in July 2019,  \nMexico City, Mexico \nVIEW / DOWNLOAD:  http:/ /programme.ias2019.org/Abstract/Abstract/2841 \nAbstract-driven session at ICASA 2019 in  \nDecember 2019, Kigali, Rwanda\nVIEW / DOWNLOAD:  https:/ /www.professionalabstracts.com/icasa2019/\niplanner/#/presentation/48Seminar at the Centre for Social Science Research, \nSeptember 2019, University of Cape Town\nVIEW / DOWNLOAD:  http:/ /www.cssr.uct.ac.za/event/understanding-gaps-hiv-\ntreatment-cascade-11-west-african-countries-findings-regional-community \nAbstract-driven session at CROI 2020 in March 2020, \nBoston, Massachusetts \nVIEW / DOWNLOAD:  https:/ /www.croiconference.org/abstract/improving-hiv-\ncare-in-west-africa-effects-of-a-community-treatment-observatory\nAbstract-driven session at AIDS 2020: Virtual in July 2020\nVIEW / DOWNLOAD:  https:/ /onlinelibrary.wiley.com/doi/full/10.1002/jia2.25547 \n\n  69   \n ANNEX FCOMMUNITY TREATMENT OBSERVATORIES IN THE PRESS\nAmong Second Batch of Regional Concept Notes,  \nA Community Approach to Treatment Access in West Africa\nVIEW:  https:/ /aidspan.org/en/c/article/3526 \nRegional Community Treatment Observatory Catalyses \nGlobal Fund Investments West Africa\nVIEW:  https:/ /www.aidspan.org/en/c/article/4971 \nLeakages in ART treatment cascades in  \nWest Africa and Zambia\nVIEW:  https:/ /www.aidsmap.com/news/aug-2019/leakages-art-treatment-\ncascades-west-africa-and-zambia \nOTHER PUBLICATIONS WITH INFORMATION ON ITPC\u2019S COMMUNITY  \nMONITORING MODEL  \nUNAIDS (2019).", "start_char_idx": 137208, "end_char_idx": 139007, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}, "c6eaa4f2-dc1a-4c09-aa73-2eda920fe16e": {"__data__": {"id_": "c6eaa4f2-dc1a-4c09-aa73-2eda920fe16e", "embedding": null, "metadata": {"document_name": "ITPC CLM Design"}, "excluded_embed_metadata_keys": [], "excluded_llm_metadata_keys": [], "relationships": {"1": {"node_id": "4b8e78fd-f93b-4987-85c9-870a48c77bab", "node_type": "4", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "f58054eb5cf4b180208df5caaf6c817383995039db7f5fec94473b59282ffe2a", "class_name": "RelatedNodeInfo"}, "2": {"node_id": "446d962c-da14-4785-b914-bc2f70b3908d", "node_type": "1", "metadata": {"document_name": "ITPC CLM Design"}, "hash": "cc378b53f6fed8f7354a1581384f9c7508ceb0cdf8b5307e9bf24cf94f37cbfe", "class_name": "RelatedNodeInfo"}}, "hash": "5b0fa834353fd469114d34f26a0d5eacab4539e8d5b5ad316742a11da76337f0", "text": "Power to the People.\nVIEW / DOWNLOAD:  https:/ /www.unaids.org/sites/default/files/media_asset/\npower-to-the-people_en.pdf \nUNAIDS (2020). Evidence for eliminating HIV-related \nstigma and discrimination.\nVIEW / DOWNLOAD:  https:/ /www.unaids.org/sites/default/files/media_asset/\neliminating-discrimination-guidance_en.pdf \n\nThe CLM UNAIDS Task Force (special thanks to  Carlos Garcia de Leon \nMoreno  and  Dasha Ocheret ), our national CLM community partners, Sam \nAvrett , Solange Baptiste , Helen Etya\u2019ale , Wame Jallow , Pedro Garcia , \nAlain Manouan , Keith Mienies , Gemma Oberth , Susan Perez , Nadia \nRafif , Emmanuel Simon and Tracy Swan  contributed to this guide.ACKNOWLEDGEMENTS\n\nABOUT ITPC  \nThe International Treatment Preparedness Coalition (ITPC) is a global \nnetwork of people living with HIV and community activists working to \nachieve universal access to optimal HIV treatment for those in need. To \nlearn more about ITPC and our work, visit itpcglobal.org . \nABOUT WATCH WHAT MATTERS  \nThis publication is part of Watch What Matters, a community-led monitoring \nand research initiative to gather data on access to and quality of HIV \ntreatment globally. To learn more, visit our website , and use hashtag \n#WatchWhatMatters  to join the global conversation.\nFOR MORE INFORMATION  \nTo learn more about Watch What Matters and our community-led \nmonitoring & advocacy work, contact admin@itpcglobal.org . \nDESIGN AND ILLUSTRATIONS BY: Trevor Messersmith, 80east Designadmin@itpcglobal.org /itpcglobal @itpcglobal\n/company/itpcglobal @itpcglobal /itpcglobal\n\n\n\u00a9 COPYRIGHT ITPC DECEMBER 2021To read or download this publication in English, French or Spanish, click  \nitpcglobal.org/blog/resource/how-to-implement%E2%80%A6nitoring-toolkit/", "start_char_idx": 139010, "end_char_idx": 140762, "text_template": "{metadata_str}\n\n{content}", "metadata_template": "{key}: {value}", "metadata_seperator": "\n", "class_name": "TextNode"}, "__type__": "1"}}, "docstore/ref_doc_info": {"4b8e78fd-f93b-4987-85c9-870a48c77bab": {"node_ids": ["6c3378d6-a7ea-47f9-8301-ee4eeb663977", "2e0e503e-6c1e-4d7f-98f8-a01b6b75d9b8", "57f60e4d-4399-47ea-a9be-66be4a54491c", "ef84916d-1be0-486b-bba6-24a2a30a831d", "dbc88557-6ee2-4e15-b409-e12f1148b5a4", "d6a49626-d66d-4a2e-892e-995a6deab2a2", "bd4a86b8-a394-4d67-9c49-ab13834df398", "dd7afb3c-f261-4a21-b441-be20225764e6", "99fc246d-f877-40dc-986c-03ba9bdbfa8c", "05b4dc8a-6f71-4b46-8773-0ae35d366f36", "d33293e6-33c2-4e12-9251-cde25e258f52", "4c9157e1-5c0f-4678-b596-4d156f4dc0c6", "929d2de3-b4bc-4b65-9020-7fe385e6080e", "86caabda-b266-4fdd-a78c-35e69b6a305d", "2c24a0d1-5e43-4a4b-9f32-441f0de211c2", "87cd4a76-b840-4d73-b089-e50f8d5ec7c1", "a67d6d45-c2f5-4ece-8920-f5bc902255d8", "331f8f6a-6a81-47e9-b7a0-bbb9413d5db3", "ae2d5f3d-7ee8-4df8-999f-296ec5a55574", "90c53de1-d757-4217-8236-4d8034016c5e", "052e2804-80ae-44e5-bf24-7698b128b5f0", "ba6324f3-7fe3-4b15-b33e-c785962700f2", "3450e324-a100-4f65-a818-7d86ef4dd1dc", "3cbc2cf8-de1c-4327-afa3-103dfe634c67", "e00a21d2-14b1-44c8-b74c-050de2c65312", "ad9a59bc-334b-479f-a54b-c1440d7b7bfd", "7fbe8d73-12bb-4056-aa6c-6d00ed9d4838", "ad3dee88-64c9-4cb7-a286-3b4c7794f4ff", "b9496872-1785-4099-9761-b8b87917398f", "d2d4d3e4-c82f-449b-9387-a330a21ac773", "cbb1190c-ac61-43d7-b888-2c9ef18433f2", "433072e1-a674-465d-a62b-00fcf13c7d5f", "d8e3ccac-e3b3-4aa6-a376-ffbbfb7cd54e", "dbd0cd2c-87b9-4d7e-a685-7bb9ea4ac016", "d0eb1163-e592-4e02-b4dd-617b5bf3f5f3", "820481a7-e07f-4279-8f29-49d0a4c881ea", "cb33807f-923b-4997-9e22-0b9829892ae0", "84daa2f1-187b-4070-a334-1afece7989c4", "08b5f61e-4e6a-4fd2-a36a-31d52277f386", "66e189be-64b2-45d1-bbf2-e55768a69e5a", "048f0268-8763-43da-9806-1b43cd906470", "aec81734-8793-4b67-86ee-0620d2506ceb", "2fc349ca-4084-4595-877c-0d3803935881", "ceb9e620-5cb2-4784-afae-8038a5c642b2", "a467986b-04af-4315-8547-fe0bf61d050c", "a2645756-b433-4218-a609-5b887b12a7d0", "f5dafec4-2a45-4caa-b68c-173ed1243d03", "d95e9fe4-62ae-4c64-b28c-85e656003809", "304d0a97-2c6c-4cca-bb2c-c059400e38e5", "51a476af-5865-4dbb-9f2f-a49de715b4ab", "f8567f45-a893-4eea-8d9a-b38742d416df", "6cfcd41c-bdf9-4017-8a1c-82c2b69dd31a", "908bfec0-d4da-4e5f-8cf6-9966bc6c360c", "98864cd5-5e41-4b44-92cc-8334343571ab", "c0b03713-0d46-4b4a-b32e-4edd104f7ced", "65207ada-d899-4448-8f36-e1ed6e4994ff", "4aba9428-edb9-4e74-ae8b-e088d2c17dac", "8361b4a7-a89c-42dd-bbdc-9afcd922a6e6", "670e9f27-ef65-475a-9a39-e8b8afd3fee3", "ca29ad08-76c2-48b4-ad42-a83a53363352", "3faa4fe5-99b5-41bf-b030-ee4d74d589f7", "8504bfc5-a9d2-4692-a474-bca6960e4b84", "b335e59c-58d3-45cc-be7e-52204b2a7061", "72a78295-6385-4628-871b-2fe1e5b6ecfb", "e8b4d211-5b68-44f6-9090-ebe8d7b5909b", "f8e18270-c373-4301-a7ec-200decd1f1c9", "7ab315f8-d722-4ee9-a841-e09e3106a5bb", "857ae1cd-087a-4874-91b5-6cf3b3e33366", "9a358288-158d-4073-bc12-284de0e08812", "e12a571d-c353-4c0f-aad9-312c957cd07a", "e33fb731-88b1-4336-a9c5-da2e3044d481", "446d962c-da14-4785-b914-bc2f70b3908d", "c6eaa4f2-dc1a-4c09-aa73-2eda920fe16e"], "metadata": {"document_name": "ITPC CLM Design"}}}}
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