{ "nodes": [ { "name": "study_registration_metadata", "description": "Export of the dbGaP FHIR API study registration metadata which provides study-level metadata for a specific PHS ID.", "links": [], "properties": [ { "name": "Accession", "description": "The accession number of the dbGaP study, which is the phs number prefixed with 'phs' and including the version, consent group, and participant set numbers (e.g., phs004055.v1.p1.c1).", "type": "string" }, { "name": "c", "description": "The c number denotes the consent group, which contains data from a set of participants who have all signed the same consent agreement. A study with multiple consent groups will have multiple consent group numbers (e.g., .c1, .c2). Data delivered for a single consent group will have the same Data Use Limitations (DULs).", "type": "string" }, { "name": "ConsentGroup", "description": "Text code that indicates data use restrictions (e.g., GRU=general research, HMB=health/biomedical only, DS-X=disease-specific, NPU=non-profit use, IRB=requires ethics approval) per Data Use Ontology (DUO).", "type": "string" }, { "name:": "p", "description": "The p number, also known as the 'participant set version', identifies a specific group of participants within a study. The number is incremented when the consent status of subjects in an existing study set changes, but not when new subjects are simply added.", "type": "string" }, { "name:": "phs", "description": "The phs ID of the dbGaP study; phs stands for Phenotype Study and indicates that the accession number is for a dbGaP study.", "type": "string" }, { "name:": "v", "description": "The v number is the study's version number. This number is incremented when changes are made to existing data or new data is added to a study.", "type": "string" }, { "name:": "Title", "description": "The title of the dbGaP study.", "type": "string" }, { "name": "handle", "description": "The human-readable ID or handle of the dbGaP study.", "type": "string" }, { "name": "Description", "description": "The description of the dbGaP study.", "type": "string" } ] }, { "name": "telemetry_report", "description": "Export of the dbGaP FHIR API subject telemetry report, which provides subject-level metadata for a specific PHS ID.", "links": [ "study_registration_metadata" ], "properties": [ { "name": "consent_code", "description": "The consent code assigned to a subject.", "type": "string" }, { "name": "dbgap_subject_id", "description": "The unique identifier for a subject in the context of a dbGaP study.", "type": "string" }, { "name": "submitted_subject_id", "description": "The unique identifier for a subject that was originally submitted by the data contributor.", "type": "string" } ] }, { "name": "derive13", "description": "Data from version 1 of the main study of the Atherosclerosis Risk in Communities (ARIC) study within the BioLINCC repository.", "links": [ "telemetry_report" ], "properties": [ { "name": "ID_C", "description": "The unique identifier for subjects in the ARIC (Atherosclerosis Risk in Communities) study dataset within the BioLINCC repository. The submitted_subject_id in the subject telemetry report.", "type": "string" }, { "name": "GENDER", "description": "SEX (from FTRA22)", "type": "string" }, { "name": "RACEGRP", "description": "RACE (from FTRA23)", "type": "string" }, { "name": "BMI01", "description": "BODY MASS INDEX IN KG/(M*M)", "type": "number" }, { "name": "CURSMK01", "description": "Current cigarette smoker", "type": "number" }, { "name": "EVRSMK01", "description": "Ever smoked cigarettes", "type": "number" }, { "name": "FORSMK01", "description": "Former cigarette smoker", "type": "string" }, { "name": "CIGT01", "description": "CIGARETTE SMOKING STATUS", "type": "number" }, { "name": "PIPE01", "description": "PIPE SMOKING STATUS", "type": "number" }, { "name": "CIGR01", "description": "CIGAR/CIGARILLO SMOKING STATUS", "type": "number" }, { "name": "CIGTYR01", "description": "CIGARETTE YEARS OF SMOKING", "type": "number" }, { "name": "PIPEYR01", "description": "PIPE YEARS OF SMOKING", "type": "number" }, { "name": "CIGRYR01", "description": "CIGAR/CIGARILLO YEARS OF SMOKING", "type": "number" } ] }, { "name": "dmri_ia1", "description": "Data from an ancillary study Diffusion Magnetic Resonance Imaging-1 (dmri-ia1) of the Atherosclerosis Risk in Communities (ARIC) study within the BioLINCC repository.", "links": [ "telemetry_report" ], "properties": [ { "name": "ID_C", "description": "The unique identifier for subjects in the ARIC (Atherosclerosis Risk in Communities) study dataset within the BioLINCC repository. The submitted_subject_id in the subject telemetry report.", "type": "string" }, { "name": "CURAGE16", "description": "Age at MRI visit", "type": "number" }, { "name": "HEIGHT16", "description": "Height (cm)", "type": "number" }, { "name": "WEIGHT16", "description": "Weight (lbs)", "type": "number" }, { "name": "BMI16", "description": "BMI (kg/m2)", "type": "number" }, { "name": "SBP", "description": "Systolic blood pressure", "type": "number" }, { "name": "DBP", "description": "Diastolic blood pressure", "type": "number" }, { "name": "HIBPMED", "description": "Hypertension medication use", "type": "string" }, { "name": "STROKE16", "description": "Stroke", "type": "string" }, { "name": "CURSMK16", "description": "Current cigarette smoker", "type": "string" }, { "name": "EVRSMK16", "description": "Ever smoked cigarettes", "type": "string" }, { "name": "FORSMK16", "description": "Former cigarette smoker", "type": "string" } ] } ] }