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I kind of knew something was wrong but could not put my finger on it. | |
And you know it is evolved into the deep and rich understanding. | |
The diagnosis was a massive shock. | |
It's one of those big moments in your life. | |
and you're not quite sure what it means. | |
What was going on was that I had full blown Parkinson's running through my system. | |
So many things were out of kilter and out of balance and out of whack. | |
and you know the wheels were falling off. | |
And Kate and I were fairly new into a relationship. | |
we just had our first baby. | |
So she was asking some tough questions I think. | |
I go from being at peace to being very angry. | |
and I'll cycle through that all the time. | |
It's an eternal. | |
Its an eternal, you're always wrestling with it,so you've got to just be with that. | |
Parkinson's creeps up on you incrementally. | |
One of the things I've had to do is adjust my driving. | |
You can see my hand shakes. | |
and I was having trouble with my right leg transferring it from the accelerator to the break. | |
it just wasn't doing it in a timely manner shall we say. | |
So what I've done is I use my left foot on the brake and my right foot on the accelerator. | |
Hopefully not at the same time. | |
And now I've made the transition and the neural pathways have realigned themselves. | |
So it's my right side that is the weaker of the two. | |
Ok you have a lovely day. | |
There's a lot of pain in a person's, with Parkinson's, body. | |
When people see me they just go something's not right. | |
So if I don't deal with that quickly then they start filling in the gaps. | |
I'm in a place where I can't really hide it so I don't. | |
It won't affect anything I do and I'm not drunk or mad. | |
because it keeps me very mentally alive. | |
If I step away from this it will just be the right time for the right reasons. | |
It's very rewarding working with clients and helping them establish their values and their vision. | |
and then evolving their marketing and their brand. | |
And that's in my bank. | |
if I don't do that going forward it doesn't matter because I'll be doing something else. | |
And I've got some ideas about that. | |
but I'm not going to regret walking away from this career if I have to. | |
I don't have a lot of proactive energy. | |
We aren't growing the business at a rate that I feel is acceptable. | |
It's a merciless disease. | |
so I'm just working out what's next for me. | |
because you know stress and fatigue aren't good for me. | |
I might be holding him back so we're just talking about that. | |
it's an ever moving conversation. | |
It's an old person's disease. | |
People get it at sixty-five. | |
What we have underlying us if we didn't already have it before is a really profound friendship. | |
Firstly, I would say you've got to have confidence to wear trousers like this. | |
My mom was quite timid at this stage; | |
but I have a really good excuse. | |
Because last year, a woman who I don't know invited me to go on a three hundred ton boat with her for a week | |
And I said yes. | |
And I'm still alive,so my parents taught me a lot, | |
they probably didn't teach me stranger danger | |
But it was an incredible experience and one that I'm really proud of. | |
And I think the thing that runs through these three examples | |
where there are thousands more is blind faith in myself. | |
Something that my parents have always had in me, | |
it just took me that bit longer to find it in myself. | |
you can tell by the very sweet expression on her face. | |
you start saying to yourself what's the worst that can happen | |
What's the worst that can happen | |
I can get Parkinson's. | |
Done that tick | |
And it makes you think I can try some other things and see what happens | |
And so my parents gave me this great basis to build on,of love and support, | |
and actually, it being okay to fail, it not mattering at all, | |
but it took Parkinson's to draw it out from me. | |
And so I guess in a strange way I'm grateful to Parkinson's for doing that | |
Because I never would have known the measure of myself. | |
She was very timid, | |
because I am the complete mix of my parents | |
I'm going to end this speech in a way that shows confidence to me. | |
As a girl with Parkinson's I am going to juggle | |
And seriously what is the worst that can happen | |
and my dad was a bit of a ham,a confident person that would go into any room and tell a story and command a stage. | |
And I became a little bit of both of them. | |
Confident in my own little way confident among my friends confident in situation I was comfortable in | |
I was into drama in a big way | |
you'd put me on a stage and I'd be confident | |
but I'd come off as a little timid mouse afterwards. | |
But they never pushed me to be anything more than that. | |
My name is Emma | |
They were always incredibly accepting of me and who I was and what I brought to the world, | |
just as they were with each other. | |
There were such different people | |
and they looked at each other then they loved each other, | |
and they loved me for being a mix of the two of them. | |
And so I grew up in a situation feeling incredibly supportive,incredibly cared for | |
and as if it was okay to be me. | |
at this stage,I never really knew how important this would be for the rest of my life. | |
And I carried on much in the same way | |
until I became a small child all the way through to my teenage years right up until the end of my twentys, | |
and four years ago, the age of twenty nine,I was diagnosed with Parkinson's disease. | |
when my diagnosis of Parkinson's came it was a little bit of a shock | |
I'm not going to lie to you. | |
I'm not an older man, so I wasn't expecting it to be Parkinson's. | |
And when you're diagnosed with something long-term, | |
when you're diagnosed with anything, |
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