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I am 25 year old and was marry november 28 2009 about 3 day after my wedding my 51 year old dad was diagnose with aml it was a shock to we all he feel completely fine he have recently have his gallbladder remove and his blood count were continually off after the surgery which prompt more testing from the doctor then we...
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my husband just come out of a six day hospital stay because he collapse unable to walk or stand three mds could not decide what he have cellulitis vasculitis no one mention gout both of his foot were extremely swollen could not bear for anyone to touch they could not stand on they fever of 102 degree put on very high d...
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I was at this site since I was curious why some have joint pain and low grade fever because they are not fibro symptom guess I am worried some are just dxe wrong throw in the cart and label as fibro because their drs do not send they on to specialist or do not realize what else mimic fibro but yet different all fibro p...
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hi my name is lottie I was 25 and I live in nh my husband is 26 and a leukemia survivor dx 12 22 10 bone marrow transplant 3 2 11 I am worry now about my mom she is been have bad acid reflux for 2 month and finally go to see a specialist who do a scope yesterday he find what they are call a bump and he say he take a bi...
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dear all I am on a plane they have wifi fly from new york city after spend a wonderful time with my family in orlando back to tel aviv via istanbul on the line to board I notice a man with a silver colored container that seem to be hold something medical by coincidence he is sit on my row so I ask he what s in the cont...
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I am not sure where to start or what to say exactly I have never been a person who complain about anything life throw at I my wife of 25 year leave 2 month ago she say she feel like she was crazy no long know what she want other than her freedom to do whatever she want to do when she want she want space and time to her...
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my mom pass away eight month ago and I still hurt every single day I come to this site hope to find encouragement know there are other out there like I miss their mom my mom die from leukemia in july I still feel today as I do the day she pass everyday I manage to push the pain into a little box and move about my life ...
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once upon a time there was a little girl name alice insert many adventure here the end alice is my old daughter she pass away from leukemia friday morning december 11 at 12 45 am she was at home I was by her side with her husband and his mother she was at peace no pain no fear she have a little boy many people have bee...
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today I delete the goal to beat the acute myelogenous leukemia today take down the portrait that was use in the paper delete the email address but could not delete his phone number from my cell I still find it impossible to believe that he is go I know I am go to make it now I am feel the change every once in a while I...
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yep that is right I have yet another funeral to go to this one hit home my stepfather is about to die probably within the next 10 day he will be go they are pump full of pain killer to keep he comfortable they have stop the transfusion and the antibiotic he was admit just before christmas diagnose with leukemia I have ...
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the main source for most of my anxiety and depression lately is the fact that my son have leukemia and our household bill are start to pile up my problem is this I have been do a lot of research and and find some good site with other parent who are go through this but no single parent I know I can not be the only singl...
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my hubby was diagnose with all on march 28th 2008 he begin aggressive chemotherapy on the 31st we have been extremely bless rob have not suffer too many side effect he is easily tired he have lose about 20 pound his hair is almost all go he have deal with it very well I can not say the same for I I try to be strong for...
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a bit off topic but I want to share about my own personal celebration I have last night it is a great reminder that tough time come but we can get through they I walk in light the night a fundraising walk for leukemia and lymphoma I was able to walk as a survivor and celebrate two year of remission I was remind of my o...
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my husband just receive the shingle vaccine and mention they say not for weaken immune system here is what I find on web md http www webmd com skin problem and treatment shingles shingle vaccine who should not get the shingles vaccine accord to the cdc do not get a shingles vaccine if you have the follow a life threate...
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hello everyone I am jonny new to the forum I am 24 and have been take care of my grandfather as he battle for his life with aml his aml come from have myelodysplastic syndrome well 2 week ago he begin treatment for aml with chemotherapy and after the bone marrow biopsy the chemo have work and I believe he have low than...
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op ed contributor a case of chronic denial by hillary johnson publish october 20 2009 http www nytimes com 2009 10 21 opinion 21johnson html _ r 2 emc tnt tntemail0 y early this month a study publish in the journal science answer a question that medical scientist have been ask since 2006 when they learn of a novel viru...
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http www nytimes com 2011 09 23 health research 23fatigue html _ r 4 dash the hope of many people with chronic fatigue syndrome an eagerly await study coordinate by government health agency have not confirm a link between the illness and a virus call xmrv or other from the same class of mouse leukemia virus two researc...
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oh my god I have to say that is where this site is really useful when it give we a head up on how the government and medical personnel are watch we closely to make sure that we are really sick that is we are act like professional spend every minute research what s being do for our condition hmmm that should take a whol...
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the dopamine theory of fibromyalgia which dr wood instigate propose that a combination of genetic and environmental factor such as stress and trauma cause a reduction in the production of dopamine in the brain of people with fibromyalgia syndrome and the reduce level of dopamine then go on to cause other abnormality an...
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our son gregory is 25 year old he live in california for a while he do not feel well he was always tired no matter how much sleep he get he could not figure it out then last sunday it was afternoon here on the east coast he call from work he work at dominos as assistant manager he call to ask what side the appendix was...
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I do not know if I am step on anyone toe but here I go lucas bear cervone is age 05 he is battle leukemia for 3 year and win that round he go home to celebrate christmas 15 in february of this year 2016 with his big brother now a brain tumor have surface his love unselfish family have decide that lucas bear have been t...
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so lady gaga is raise awareness for hiv aids is anyone else confuse about all of this raise awareness crap how many time have we hear of someone raise awareness for cancer leukemia aid and so on I know there was stigma around these disease before but now not so much yet there is still so much stigma around being a woma...
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another sleepless night dec 20th my 29 year old sister lose her battle with leukemia I still struggle with the phrase my sister die all of 2011 was one treatment after another try to get she ready for a bone marrow transplant once they find a donor for she she never get her transplant for all of last year I do not work...
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I am go through a real bad time right now I have been seperate from my husband since last year on sept 9 2007 and I am start to do my own uncontested divorce kit I have to go have they serve to my exhusband on sept 16 and than it could take up to three mount to complete the divorce then on thursday sept 4 I just find o...
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hya there I have most of the information about my problem write on my pcos community info I have been to the hospital today and they say it could be a dermoid cyst or something like that and they want to operate on I they also want to do blood test just incase it is nothing nasty basically I am worried that something e...
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hello new here and like all of we I am here to find and give comfort and friend it would be great to sit in a room with a bunch of people to really get to know everyone the usual talking eat and being able to look one another in the face but it scare I to think of being alone but at the same time it is scary to make ne...
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am in second remission which have been go great blood work always look good and doctor even lower my visit to once a week still get spinal chemo once a month my spinal chemo have been clear for month but the one last week come back with rare atypical cell suspicious of aml a day after the chemo I awake with strange thr...
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my fellow friend and warrior I have a bad blood test today at sloan kettering immediately follow a bone marrow biopsy my doctor inform I the leukemia is back I am now refractory my sister is a perfect match test were do prior she ask I to admit to the hospital right away I ask for a day she consent I will be check into...
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happy tuesday everyone have anyone have the nodes swell at the groin same place as your hip joint my hip have bother I for a year now but usually right more than leave the mri last spring show the hip were ok but have copious amount of edema swell in right thigh groin muscle the last 6wks or so the left hip have been a...
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today I call the ua woman from philadelphia I have to call could not do it on skype due to call i d issue but we do a test on the symptom of underearne and I answer yes to 10 out of 12 idea deflection and undervaluing and underpricing have already been resolve now I will have to use a brand new time recording system on...
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I feel a little guilty with some of the setback report lately but I think we need to tell of the success story as well I have a bmb last week and get the result this morning I am finally 100 donor cell and there is no sign of leukemia no flt3 no nothing I am not out of the wood but I sure feel well about my survival th...
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this is a sweet 11 year old young lady and she is get depressed and need her spirit raise we are ds warrior and know what depression is like she have been battle leukemia since january and have been in the hospital for almost 3 month now imagine being 11 and have your world be entirely in the hospital and no thought of...
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it feel like I have finally get to a point in my life when I was able to say no to my borderline mother to say no to all her irrational demand and call her bluff on all the suicide threat now she have call I to tell I she have leukemia I actually do not even believe she at first it was not until I speak to her doctor t...
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I have been treat for c l l for 18 month my internist and oncologist are foreign educate husband wife czech and russian they are not afraid to suggest holistic solution my previous american doctor would not suggest vitamin d not f d a approve the oncologist prescribe green tea supplement in the 18 month the r before ch...
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I just recently get word that my girlfriend kill herself on may 30th and I am completely numb and hurt my heart hurt deeply and the bad part is I never get to meet she in person it is amazing how much a person can mean to you without physically being in front of you she was a mom and an amazing person and as much as I ...
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I pop in for some advice I am really not do well its just a mess my father was do well despite everything but have take a turn for the bad he is still hang in there though I have hope to get the all clear on my breast cancer but it look like its not to be no matter what they do I can not seem to get the all clear and a...
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you were an accident stranger have the good candy the little sissy who snitch some kitten can fly how to dress sexy for grownup get more chocolate on your face where would you like to be bury katy was so bad her mom stop love she the attention deficit disorder association book of wild animal of north amer hey let we go...
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for backgound gd w leukemia in our custody one year no dcf my son and his gf heroin old sis w she bio dad one year thur dcf all happen when mom was charge w neglect and both kid remove mom have subisdize housing my son live there unknown to authority son get himself expensive apt 6 month ago now housing authority have ...
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how ironic that the only other support link for this topic is create by a poster with questionable status the fact I was lucky do not get my leukemia back do not really faze I until I find out that friend of the family were not so lucky I was 36 when I was diagnose I figure I would go through treatment this once and ta...
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hello my 6 year old daughter was just diagnose with mds this is secondary mds due to chemo treatment receive to treat neuroblastoma cancer 2 1 2 year ago we are in shock back to back bone marrow biopsy show that the blast are still under 20 she do not have the leukemia marker but as you know once the blast start go ove...
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I post on here a couple of month ago about I being pregnant and they test I for hcv antibodys and it come back positive but I got test for the virus itself and it come back that I do not have it I have been so stress about what cause the first positive and I end up make myself go into labor 2 mth early she only weigh 2...
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I am wash up my funeral clothe today to attend a wake for my sister brother inlaw he die at a very young 57 year of age because he ignore his own health even though everyone who care about he tell he how bad he is been look for month his cause of death was smoke his diagnosis was small cell leukemia he die within 2 wee...
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I would like to share my first paranormal experience with you all please feel free to share your as well but please do not feel pressure into sharing I know it can be very personal when I was 8 yrs old my uncle was diagnose with leukemia he was in out of the hospital for about 2 yr one night we get a call from my aunt ...
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well I am look for other who ve experience this or those who can talk I off the ledge as most of you know I have been plague by slow count recovery mostly platelet so exactly one month ago I was deem in remission after ten month of induction and four consolidation session my bmb do on 17 jan 14 show no sign of leukemia...
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we have a small lap dog name molly she was always michael dog sweet loving and quiet michael play with she sleep with she was her good friend michael die two year ago when he was 15 of leukemia he was hospitalize for more than a year very rarely see molly after michael pass molly have become progressively noisy she is ...
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I am 38 and lose my daddy on january 17th to the monster of disease call acute myeloid leukemia he was 74 my dad was and always will be hero he and I and my mom are very close it seem that if a young child lose their parent someone lose their child a spouse lose a spouse it is ok to grieve and have a tough time with it...
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it have been quiet here over the last few day hope that mean that everyone is do okay and that you ve get big and well thing to be concern with than leukemia eddie I am wonder how the induction have been for you this time around I am sure you are tackle it with everything you have cliff hope you are completely do with ...
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I have not post for awhile as most of you know my x pass away in january everyone was deal with their emotion after that my daughter get a protective order against her boyfriend so I have been try to be supportive of her look like I will be help out financially soon and then on good friday my brother wife was admit wit...
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hi everyone I know I have severe fibro but I also have many lupus symptom and have been up and down with my rheumatologist test and sometimes have a high titer of ana 1 1280 I think and sometimes it is negative but what I really want to know is my joint and bone have been hurt out of control I was just lay in bed and I...
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cml awareness day event 9 22 12 for us patient family caregiver and friend live well with cml a virtual patient summit time 1 00 prime minister 6 30 prime minister est 10 00 am 3 30 prime minister pst cost free registration and information www cmlpatientsummit com this unique online educational program will be live str...
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I find out recently that my cancer is no long stabalize I need to have chemo again I have cll a type of leukemia my conflict is this my wife and kid do not know I have lose a lot of weight but they think it is due to divorce stress I am inclined to go thru chemo and see what happen if it look good then I have good news...
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my pm is a million time bad then it ever have been I feel completely and utterly out of control and I am have an extremely difficult time keep it managable my gbs was march 26 2012 and I have lose 92lb so far I have poly cystic ovarian syndrome pre surgery I maybe have 3 4 period a year now I am regular and it suck I a...
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this morning december 12 2013 heaven gain an angel name marleigh I have the honor of being her teacher for 2 year at daycare she was so smart beautiful sweet and her smile could light up a room she was diagnose with aml leukemia last year and relapse in april of this year after 2 bone marrow transplant and 2 round of c...
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well I have been diagnose recently being 21 year old I have to say it was a quick visit at the doctor a simple check tell I what it was and tell I to take doxycycline twice a day for 14 day nothing more I remember have an outbreak last year this recent one was small just two spot to deal with one on the waistline which...
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very abusive heated arguement with he last night he is ad military and 2000 mile away he have not give any support at all in the 8 month he have been there and I bite the bullet and call the csm to let he know we have been financially abandon well that turn into something else and he was speak to and let I tell you he ...
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hello all I want to share some interesting info I just receive in the mail the leukemia and lymphoma society is sponsor a telephone lecture on mds you call in on a toll free number to participate with dr alan list as speaker dr list work at moffit cancer center in tampa florida and lecture and attend conference worldwi...
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hello I have have complication twice from pulmonary embolus since I begin treatment for aml in march and I am wonder if there are other who have have this problem I have a pe back in 2005 from a long airplane flight and then was free of they and off warfarin until last fall when I have another after surgery as I was re...
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couple day ago I go to my base service unit reason I do not like my current pdoc its just something about that feel really smug I do an intake and now I am diagnose axis 1 ptsd bipolar axis 2 and a axis3my physical health history I tell the intake counselor I was gang rape my hubby pass from an acute leukemia despite e...
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I see my doctor this morning all is go well all number look good I am feel well my next and I hope last chemo session will begin june 16 we have to find a way to fit it in my increasingly busy summer schedule though of course I want to get this over as soon as possible and then go wild maybe of all her recent leukemia ...
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ten year ago I go through rectal cancer it was advanced but some how I make it but I was leave nine year with no control of my bowel last year I have vulvar cancer and spend several week in icu I end up with colostomy april of this year the cancer was try to come back and I go back in the hospital and have it remove I ...
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my mother die on april 10 2009 she was a wonderful person a good friend a confidant and a giver of unconditional love she love life and make the most of it she was a publish writer a world traveler an explorer of all thing and the most curious person I have ever meet she was only 76 year old and was still vibrant until...
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my six year old sister have acute lymphocytic leukemia she s been battele it for almost two year supposedly and I say supposedly cause less then five month later she was back in the hospital each time go into remission twice but now she s back and she s get weak I visit she as often as I can she barely stay awake now a...
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it is already thanksgive here it is very weird for we live here since no one celebrate thanksgiving and christmas is a minor holiday I have invite american family in my part of town to join we for dinner we should have 13 or so at the house tonight after the kid get home from school unfortunately there have been sad ne...
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for those of we that know and love he and that are miss he dearly many of his close friend feel that this should be post so that if anyone would like to make a donation in his memory they would be able to do so garnett david john pass away suddenly on saturday june 28 2008 at home mourn by his parent jack and ruth garn...
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I am feel so badly right now I just do not know what to do call my doctor but I do not have insurance now so it is hard to get treatment he say he is go to try to find a generic medication that will help but even then I really can not afford it since my son was diagnose with leukemia no one have actually step up and he...
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my surgeon call I early this morning as he want to see I again so I get dress in my sleep and head to his office he get another report from the lab about the cancer and want to discuss it with I he want to do another biopsy as the lab is show cell of aml leukemia he will do the test on 10 22 08 this is just a precautio...
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hi my name is amanda no idea where to start I am 17 year old and have been in the hospital go through more doctor and have have more test do then the average person cause of all my health problem I have chronic lymphocytic leukemia though I am in the remision completely deaf in both ear and dyslexic I have have cancer ...
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well first off happy thanksgiving I guess although I have absolutely nothing to be thankful for I am sick of live I hate life I have no idea what the fuck I want to do with my life just about a year ago my little brother was go to the doctor for leg pain then bam 4 day later he is diagnose with leukemia my love life is...
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find out today that I have achieve second remission follow my post transplant relapse I feel so happy and bless I know there is still work to be do and there are so many up and down but I believe in miracle this is a miracle my type of aml have prove to be quite aggressive but I have knock it out twice now when I relap...
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my little brother pass away 8 month ago from an end stage and aggressive leukemia they bombard he with chemo radiation and it wipe it all out he was get well and then suddenly bam it kill he the whole process from start to finish was 1 year why do cancer do that it feel evil it is like cancer have a life all on its own...
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my journey begin back in september when I begin run low grade fever and drop 12 pound seemingly overnight I weigh 128 prior to the weight loss then I start itch in november horrible itching like claw my skin off itching which was bad at night was test for thyroid issue autoimmune disorder leukemia and lymphoma also hav...
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hello everyone I am new to this group in fact this is my fist day I am a masters degree student study to be a school counselor one important thing that I learn was that a counselor must first deal with her own issue before they can be of any good to anyone else so I guess that is why I am here I have lose many people i...
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my husband die 47 day ago after being ill for 5 day from acute myloid leukemia it take he so fast we have no idea that he have that at all he have flu symptom for a couple of week our son and I were at his bedside in hospital 24 hrs a day the last 3 day and I hold his hand as he pass and was tell he how much I love he ...
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hello everyone after read alot of these post I feel sad but also fortuneate at the same time I was diagnose with aml in aug 2010 I am 41 and young for this type of leukemia I have inversion 16 cytogenetic most favorable and do not have to go the bone marrow route I just complete my 3rd consoldation chemo cytarabine and...
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my 15 y o dd have trich when she was bear she have thrush on her tongue I vividly recall the nurse predict that my daughter would have a weak immune system and that she would be prone to urinary tract infection yeast infection and so on the nurse suggest I breastfeed she which I do not do because I have such a horrible...
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I wish I could get to to point I could remember the good memory I dwell on the sad time when danny was so down all the blood transfussion the weakness from this condition that keep he wish he could do the thing he want to do look into his worried eye so afraid of leave I alone I want to feel his arm around I hear he sa...
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hey everyone I think it was time to swing back in and say hello to you all I hope everyone is do well and still fight the fight of hemochromatosis with everything that they have within themselves I have change school and my school load have ease up some my check up with my oncologist have been great it have been a year...
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happy birthday to I today I turn 1 year old it is the anniversary of my bone marrow transplant one year ago my sister donate her stem cell for my transplant I have to say this year have been a roller coaster of up and down but I am thrilled to still be alive this year I have 1 been hospitalize 5 time 2 been quarantine ...
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I mentor a kid through the big brother big sister program a few month after being match my bro was diagnose with leukemia it is now been 2 year he is 15 and have develop a bad attitude towards life a lot of it is base on typical 15 year old problem family issue and so on but I think the tipping point is this illness he...
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nov 5th will be 2 year since my brother pass away from leukemia I still think about my brother every day and about all that he have to endure before he pass and the wife and now 4 year old son he leave behind and now that the 2 year mark is approach that date and everything have been loom around in my head even moreso ...
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I want to post a discussion about radioactive iodine therapy rai for grave because I have receive some message from member about this 1 in the united states radioactive iodine is the treatment of choice for most patient with grave disease and toxic nodular goiter 2 it is inexpensive highly effective easy to administer ...
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hi all have not purposely ignore the group but life have been way too insane lately I relapse with the leukemia back in september so I ahve been in out of the hospital on top fo that I am at a cross road with my fiance I foudn out he lie to I about being release early something he keep lie about after my cancer return ...
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I lose my husband bob in january this year he was my true soul mate we were marry almost 41 year we love to study the bible together and we love the lord and we were watch the sign of his soon return he die of leukemia it was a hard battle when he pass away it was peaceful I was with he and hold his hand I play praise ...
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I have been away for a few month and I just want to let all of you know why my daughter siobhn who have a systemic juvenile arthritis was diagnose after being hospitalize due to a very high fever with macrophage activation syndrome mas in mid june a disorder that may occur in child with systemic inflammatory disease my...
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I am a single mother of two child my daughter have a good relationship with her father and see he often while my 4 year old son have no relationship with his dad and have not see he for a year and a half and before that there was really no relationship my son constantly talk about thing his dad say or do or what they d...
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so I have been depress and not on the site too much I have been bum that a match have not been find and the urgency is significntly increase now I meet withneal lflomenberg at jefferson on friday to discuss the two part approach and the general consensus with all of the doc in my circle is to have ac220 get I in remiss...
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after toss and turn all night I decide that I really need to go see my die mother this morning she have been in the hospital for a month she have kidney cancer unable to remove the cancer at this time she have leukemia is diabetic have pneumonia and now shingle she is on a feeding tube and under a 100 pound and can no ...
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do you really think that an apple start society and the way we live today do you really think that the bearded man was nail to a cross in the cruel intention to die then all of a sudden he come back to life well I have see many miracle in my life like my friend die of leukemia and pull through now that is a miracle not...
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I can not believe how depressed and suicidal I am right now I just can not find a good reason to be here I am sick and tired of just exist I have deal with depression and many other issue my whole life and the old I get the less energy I have to want to live I have no friend and little family who really do not care how...
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xmrv question and answer post 11 18 2009 http www cancer gov newscenter pressrelease xmrv_qanda key point xmrv is a virus that is closely relate to virus that cause cancer and other disease in mouse question 1 the role of xmrv in cancer and disease in human is unclear question 2 the virus have been link to prostate can...
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it is very hard to enjoy everyday life because of the emotion that go along with it by other people all I have is god the sadness from what other are do or say have make our life a live hell I am not try to repeat myself but ever since the year 2010 life have been totally alter it go from being peaceful to sadness and ...
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hello all I have been read the forum and really appreciate see so much positivity and helpfulness my mom was recently diagnose and have quickly deteriorate they just start her induction chemo yesterday but I feel like she was so far affect by it already it may not help I guess I am look for hope she feel fine one day t...
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1 you are different and that is bad 2 the boy who die from eat all his vegetable 3 dad new wife robert 4 fun four letter word to know and share 5 hammer screwdriver and scissor an I can do it book 6 the kid guide to hitchhike 7 kathy was so bad her mom stop love her 8 curious george and the high voltage fence 9 all cat...
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friend and newcomer I just want to report on my situation that many of you know for those who are new I will detail my case I was diagnose m5 aml on november 11th 2011 I do not get good result of cytogenetic for some reason old timer lovely dr decide I was good for just chemo I do induction and three round of consolida...
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I few month ago during routine blood work for a pre job screen it was find that I have a low white blood cell count this was no surprise since I have have low wbc since I was a baby still I was send to my gp to get check out and she then send my to a hematologist because she was not comfortable sign the form that state...
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ok since I have a another surgeon appt on the 28th I will hold out and see if he help I and do the surgery I need if I get blow off one more time I am go to have to take a leave from work which mean the stress center to get the paper I need to go on short term my therpist have want I in the stress center for over a mon...
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you may see this post other place I am try to reach as many staph suffer as possible I realize this is not the most attractive way to get word out but it is important have mrsa for more than eight year I have been search for meaningful way to treat and more importantly prevent outbreak a good friend of mine dr phil wri...
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my husband and I were talk last night I have fibro along with other thing but I also have hereditary hemochromatosis I have to get monthly phlebotomy at this point and it have been very stressful in talk with most hh patient I have find we have something in common our blood is very thick my mother who die last june wit...
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I am renew put my insanity on paper make this real for I I own a sense of urgency I know in a way I do not know before that to drink is to die no one is exempt from that reality a friend find out a week ago he have acute leukemia today he lie on his death bed there is nothing they can do to help he he must find a god a...
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no wonder more folk are die from cancer than ever before we wonder where this stuff come from but here is an example that explain a lot of the cancer cause incident hmmm many people are in their car first thing in the morning and the last thing at night 7 day a week as I read this it make I feel guilty and ill please p...
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