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yes I do just type tgifibro put down the pitchfork you all I was just think how relatively bless I am for my fibro compare to some of the other stuff it could have been on those scary test do fm hurt yes do it suck being chronically stuck in the loop of it yes do that mean it is the bad thing ever nope our pal mnfibro ...
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it is earth day let we all be count so that there may be more research and education http xmrv I uk I cfs global map php xmrv I uk use google map to raise awareness of cfs I fibromyalgia community map of misery go viral a surprise world wide hit london united kingdom december 16 2009 pr com a map create on google to he...
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my husband in addition to the 9 22 philadelphia translocation also have the 8 21 translocation for aml there have only been 5 or 6 case world wide the aml have take over now he have also a myeloid tumor in his spine which have render he unable to feel initially anything from his nipple down over the past 2 week he have...
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hi all I just join this group and look for some experience I have a lengthy medical history leukemia osteoporosis pcos migraines bad anxiety depression along with have quite a few surgery knee replacement kidney stone appendectomy tonsillectomy c section all this and ia m only 25 the last few year my anxiety have been ...
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I move this from another thread to help give it more exposure please help neeni45 if you have any thought or relate experience thank daveb hello all that is been lurk here for quite some time now I m 45 yrs old have a great family 4 child and a wonderful supportive husband I was diagnose on october 6th 2014 was tell I ...
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first of all the title of my discussion is mislead I am not new to hs per say I am just new to know what the heck it is that I am suffer from I have experience flare up in my armpit and around my breast for year the main problem area however is my underarm area I am currently sit here with a warm washcloth under my bef...
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hi to everyone my name is hannah I am 22 and have been deal with chronic pain since august of 2010 I will try and make a long story short thank you in advance for your patience I have suffer from anorexia and an addiction to exercise for many year I go to inpatient treatment from 2008 2009 in august of 2010 I decide to...
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hi I am see saw again just reminder have papillary carcinoma multifocal 2 node and microcarcinoma in adjoining lymphnode have my 2nd lobectomy a week ago which come back clear surround lymph as well so hav been build up to hypothyroid for rai ablation in about 2 week I have been read all the support site to see what to...
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its good to find a way to be able to be thankfull in all thing sometimes its a real challange to find that way to be thankfull deep down thankfull thankfull from the soul of your shoe anon65 send I a lovely massage and in it he express that he was glad I have been able to see dunk island and its beautiful papilio ulyss...
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my father pass away a month ago he have leukemia and was and hospice so I think I was prepared to deal with the grief when he pass away I was overcome with anger anger that towards lot of people one of the thing that come up was a grieving for my childhood when I was young my brother who is two year old than I have sev...
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I consider my home base here at ds the hepatitis c community as that is what bring I to discover this wonderful site full a great community for all I want to post this here because I think it may reach other with other acute disable disease and be helpful I find a social security advocate in my town today what a blessi...
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my brother die due to all august 10 2005 my mother bday what a fucking joke he battle leukemia for 18 month was in remission for a month and get relapse and it go even more serious I was 11 13 and he was 15 16 and to say the least our bond was very untypical to other sible relationship but in a sense perhaps I m say th...
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hello group I am now three month with cml I must say that every day do get well most of it at first is the shock phase then it transfer to the I want to learn about cml phase now I am try to get back to my old lifestyle with some major change when I say major change for I it was different for the past fourteen year I h...
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I have not been on in a while thing have seem to have get well been work spend time crochet and just try to have my own identity the last few year have been hard my husband abandon my about three year ago for a life of drug then in april 2014 my mother suddenly die from leukemia in march my father pass away suddenly so...
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since hiv was discover 30 year ago this week 30 million people have die from the disease and it continue to spread at the rate of 7 000 people per day globally the un say there is not much good news when it come to this devastating virus but that is perhaps why the story of the man scientist call the berlin patient is ...
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just a ramble of mine no one have to read it if you do not want to I just can not sleep and feel like cry I am disappoint in myself as of now I do so good for a few day then it all go to shit it is almost a never end battle with my brain a battle that was lose hmmm 8 year ago when I first start pull I am not entirely s...
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my name is daniel I am 18 I do not know if I am in the right category but I need to talk to someone my life have been so terrible I have been hide the secret of being gay for 16 year and then my family find out I have to run away from home I could not handle that look in their eye like if I was the bad thing in the wor...
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I do not know if its because I am out of the routine of take my vitamin and supplement daily or what s go on I noitce some of we have easy bruising and not a clue where they come from I find this article interesting some people especially woman are more prone to bruise than other so one possible explanation may be that...
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hi all I have my rny on the 1st of july my weight was 269lbs I now weigh 216lb I am totally happy with my loss the problem is I have have a series of very stressful situation I will go through the time line of stress 1 my partner I where live with each other 4days after surgery he do not want we to live in the same hou...
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I was do some research and find this online and want to share great news http www medicalnewstoday com article 192630 php follow a priority review the us food and drug administration fda have approve tasigna nilotinib 150 mg capsule for the treatment of adult patient with newly diagnose philadelphia chromosome positive...
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sorry I have not been on a few day hope you all are hold in there saturday night I was stand in my kitchen eat when suddenly it feel as if a bullet or that is pick jabbed my right eye and into my head I fall to the ground roaring and honestly think I was go to die scared I was have an aneurism by the time I take my han...
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hello all I am new to all this but I think perhaps it might help james pass away on february 25 2007 after five hour of surgery follow a car accident he was the first person I have ever lose I meet he february 14 2006 and from the beginning there was a connection it is like we d know each other our entire life he live ...
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iv been wonder this question myself since I come to the realization that I m one of those woman I swear to my mom I would never be countless time after she leave my biological dad but I guess I well start at the begining I meet ryan a few year ago when we first move to the town my parent now live in with my stepdad alt...
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I state cut my first fianc tell I over the phone that he have right sided heart failure and that he was not expect to live for more then 6 month and at the same time I was tell by my mom that my big sister the close one to I in age have just been diagnose with leukemia I look around I at a big house and I was all alone...
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on this day I am thankful for my wife there is no one who can truly understand what I go through more than she I write this email to she and all of my love one this morning and on this day I want to share it with you all the caregiver are the one I admire most I would take anyone of you who participate here as a caregi...
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hello my fine friend and fellow soldier I feel really awful I have not been able to reply to post for a few week but I have have a bit of a derailment on my june 3rd transplant blast have rise in my final biopsy prior to transplant and the flt3 mutation have show up in molecular cytogenetic arrgh at first I was despond...
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here is an email I receive from go2god I think it well just to post the entire message rather than try to reword her prayer request everyone plese join I in prayer for these people from go2god hug go2god send 8 21 08 10 42 am subject prayer request for witness group I believe we are suppose to send our prayer request t...
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I just waste two hour worry that a vein on my head was actaully a lump yesterday I waste the entire morning and afternoon convince I see a lump on my two year old neck and follow he around anxiously wait to catch glimpse of his neck in the daylight a few time I actually feel his neck to be sure nothing there the day be...
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http xmrv I uk I cfs global map php xmrv I uk use google map to raise awareness of cfs I fibromyalgia community map of misery go viral a surprise world wide hit london united kingdom december 16 2009 pr com a map create on google to help raise awareness of the plight of million of people suffer from cfs I and fibromyal...
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judy mikovits is set to make another webinar with paul cheney this saturday and suzanne vernon scientific director of the cfid association is go to do one tomorrow with update on the cfid associations research program link info below cfids vernon webinar tomorrow feb 18 2 pm eastern do you want to know what these scan ...
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hi everyone brand new here today and very scared right now my husband have been in remission 1 year to the date almost he is 41 was diagnose w aml inversion 16 and c kit negative last year at diagnosis his wbc was almost 160 000 with very low red and plate count he was in complete remission after induction and we do 4 ...
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hi I am heather I am 36 and my husband is 38 we have 4 kid age 12 9 6 and 2 my husband start have flu symptom on april 10th and by the night of the 12th we take he into an urgent care facility they do bloodwork and call we the next morning with news that his blood test were all screw up and they have already schedule h...
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hello I am new to the group I am have a rough weekend I believe my mother is either manic depressive bi polar or just plain mean this have happen so many time where we have a big blow out and then after a few day or a week she act like nothing happen I just can not handle it anymore I am deal with my own stress and hav...
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very bad news we receive word yesterday that sal have relapse already just 8 week after his last dose of chemo during his 4th round of consolidation he have get the all clear to return to work and was schedule to start on monday dec 30 we were tell that there was a 40 chance that sal was already cure he was very excite...
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http news yahoo com s usnw 20100628 pl_usnw dc26883_1 _ ylc x3odmtewamzqc2p0bf9taziwmjm4mjc1mjqezw1hawxjzamxmjc3nzqznza0 sixty two year old chemotherapy treatment show promise result on progressive multiple sclerosis patient new york june 28 study show itmtx may have beneficial role in progressive form of miss new york...
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hi I am a 36 yr old female that was diagnose in feb of 2008 I will give some background info and will try to make it as brief as possible in jan 2008 I become I will with flu like symptom after a trip to the er I was tell it was a viral infection and was send on my way a week after when I feel no well and have develop ...
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I am really feel depressed now I do not usually feel this way and it seem like thing in life came crash down on I too fast I understand that in life thing like this happen and that is the way I have always see life sad if something happy come my way I would be surprised because I was not use to it in these last few day...
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one of the rescue we have is a very sad kitty name daisy daisy come up to pink in our carport and collapse in front of she she bring she in the house and we nurse she back to health she want to go out all the time start after her fresh water and first meal we follow she to see where she would go she never leave the pro...
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in the last few year a number of new main miss treatment have been make available I am post this list so you can review your option and discuss they with your medical professional if you need to switch medication in the future crab drug that have been on the market the long with the least amount of side effect list by ...
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january 20th 2008 I lose my gramp to cancer it really was my first death that at the age of 17 I was able to comprehend it still do not make it any easy and I am at least glad that he was able to make it through christmas march 2009 my uncle was diagnose with leukemia he have since pass away lose to that terrible battl...
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my mom hear about this on a radio news station and call I london ap german drugmaker merck serono is one step close to release the first pill to treat multiple sclerosis the company say friday in a press statement merck say that patient take cladribine tablet have a nearly 60 percent low relapse rate than those on plac...
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angel are here to guide we guard we warn we comfort we teach we or just be a friend and companion they may appear as other human as glorious flash of light as a soft and unseen touch or as that still small voice that often speak to we in time of crisis as the follow story reveal angel will do just about anything to hel...
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thank you god I find this support group because I am struggle right now my husband chuy pass away on 8 31 2015 we date for 9 year and 3 year marry he was a very sick guy for most of his life my husband have leukemia when he was 5 year and have chemo radiation and bone marrow transplant he was diagnose with diabete at t...
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my 74 year old mother was diagnose with aml on april 17 she have been through 2 round of chemo that do not ever put she in remission on more diagnosis of her cell she was find to have the flit 3 gene she was recommend to city of hope hospital for a study however while we where there on that day she her blood level wher...
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news news home headline archive healthtalk news archive news thursday jun 12 2008 healthday cancer drug appear to help with aggressive miss thursday june 12 healthday news high dose of a drug use to fight cancer may reduce disease activity and disability in people with aggressive multiple sclerosis result of a small tr...
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my father have been ill for a number of year with a variety of illness we almost lose he for good two year go when his vocal cord become paralyzed and he was unresponsive he live in the intensive care unit for two month and surprise we all when he was able to come home almost the same except he would never be able to b...
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more conspiracy and x file aspartame kill you by degree part I october 06 2005 23 150 view spread the word to friend and family by share this article 0 inshare 1 109 email to a friend email print by pat thomas this article first appear in the september 2005 issue of the ecologist volume 35 no 7 aspartame is the most co...
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jack have been off asp for the past 13 day due to liver enzyme reading which reflect the stock market unpredictable his team have been in touch with astella pharm and decide that the liver problem are from gvhd and not asp the team have decrease many of his anti graft med as well as his antifungal because they were not...
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hey guy for those of you who would consider yourself recover from the surgery I have some question my surgery 1 was a year and a week ago unfortunately I am still have alot of issue I recently drop 10 pound and think it was relate to pouchitis however I can not seem to gain any of it back I weigh in at 89 pound I eat 4...
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ok my fiancee pass away from leukemia august 30 2008 well before he pass he want I to keep his account up to date for he about a week after his sister change all the password she still do not want to give the password to I after I tell she what they mean to I and she send back that she was not go to give they to I beca...
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will start off with background my mum and dad split up and got givorce when I was 7 or 8 my dad start a relationship with someone he go out with when a teenager and within 6months of my mum and dad divorce they were marry she do not really like kid and we do not get on all that well when I start get moody at about 11 s...
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we are just begin the parkinson journey well at least we think we are have not get the official dx yet but the neurologist is treat it as such we go back mid march and hopefully will have more answer so far all test have not point we in another direction my partner is currently take mirapex 2x a day which work in the b...
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hi all I was diagnose with cml on 1 11 13 I have struggle accept this diagnosis to this day I am look for a place to vent my feeling it is been 5 year since my diagnosis I always hear you do not look sick I feel like people forget what I am go through for example if I say I do not feel good do not want to go anywhere u...
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when everything go so bad in may I pretty much panicked how was I go to afford my apartment on my own with a child to support not that he really contribute much the last few year I could not wait the 6 month to a year it would have take to get into housing so I look for less expensive place to live come across this tow...
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I was dx in may 2010 have have little to no real issue with have cml in fact I have not have a cold or sore throat or anything in over 2 year my dr say I am the healthy leukemia patient he is ever have sound great right well I have been take gleevec 400 mg since my dx all was go great until about 4 mo ago the side effe...
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hi everyone my sister have been in icu in hartford since monday with what have been diagnose as aml no subtype have been ide yet that I know of she was fatigued but no one have any idea of underlie condition until she get so sick she was rush in obviously new to this forum but am appreciative about the thoughtfulness o...
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I have ib for several year which was not really an issue symptom were getting mildly constipate 1 or 2 day before my period and occasional attack of diarrhea especially after eat onion or garlic then in november 2007 I suddenly become incredibly constipate I have start take metamucil 6 month before which have seem to h...
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perhaps people with both fms and cfs should be test for both htlv human t cell lymphoma virus and xmrv xenotropic murine leukemia virus journal of rhuematology 2006 nov 33 11 2300 3 high prevalence of fibromyalgia in patient infect with human t cell lymphotropic virus type I cruz ba catalan soares b proietti f sourcerh...
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december 18 2009 milk thistle show protective effect against chemo induce liver inflammation one of the challenge of chemotherapy is the side effect of liver inflammation which can necessitate a reduction in dose or even discontinuance of the drug however a new study describe in an article publish online on december 14...
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hey lady sorry for take up all the good board space this week but I have one more thing that I could not journal about my journal is link to my facebook account and I can not figure out how to unlink it I do not want my family see this so that is why it is here and not in my journal anyhoo a month or so back I go to th...
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tomorrow will mark shoot 46 for I some of you use to know I as laperson like so many other I leave because of a certain someone that was harass I I just want to thank most of you for your support I being extremely lucky have very minimal side during treatment and go through hell the 1st 4 week not because of treatment ...
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I have my first child when I was fifteen everything was so simple back then I do not even know the guy I have sex with and when I become pregnant I was deffinently scared but I also feel happy there would be this lil baby who love I unconditionally I do not know the ammount of work then after jessica was bear I still d...
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xmrv I uk use google map to raise awareness of cfs I fibromyalgia community map of misery go viral a surprise world wide hit london united kingdom december 16 2009 pr com a map create on google to help raise awareness of the plight of million of people suffer from cfs I and fibromyalgia have become a surprise internet ...
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you know I have really have the most horrid last four day for a long time I whinge and moan in my journal entry about what I feel go back to bed to try and sleep now that sleep notion should have I in hysteric anyway the ruddy ambien do not help anyway I digress firstly I read a report a while back that someone send I ...
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I have been look forward to the word end of treatment for 10 month but now that it is here I am experience emotion I do not expect namely apprehension and fear after my fourth consolidation on 12 nov my platelet are now high than they have been since diagnosis in march 97 I am schedule for lab on friday and if a big if...
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from go2god hug go2god send 8 21 08 10 42 am subject prayer request for witness group I believe we are suppose to send our prayer request to you is that right my prayer request is below there are a lot of detail and you may share whatever you deem necessary with the group thank you tammy my cousin nine year old son jac...
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cdc have a new xmrv page up hopefully it will be expand on soon xenotropic murine leukemia virus relate virus xmrv http www cdc gov ncidod dhqp bp_xmrv html xmrv is a newly identify human retrovirus that is similar to a mouse retrovirus that scientist have know about for year xmrv refer to xenotropic murine leukemia vi...
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in an about face the government have disavow a 12 year old federal report that find little or no cancer risk for adult who live at camp lejeune and c where drinking water was contaminate for three decade up to a million people could have been expose to toxin that seep from a neighboring dry clean and industrial activit...
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from jan van roijen co cure network for further info http www wpinstitute org xmrv xm http www wpinstitute org xmrv xm whittemore peterson insitute for neuro immune disease the wpi have develop a blood test for the detection of xmrv we have an agreement with vip dx lab to license the test vip dx is a very qualified lab...
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I would like to share my experience of battle with mds my father have have anaemia symptom for a couple year and have been see hematologist he was suspect to have mds but no action was take because he was in stable condition until august 2009 his condition get bad the hemoglobin read drop to 70 g 125 g 170 g as normal ...
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greeting and blessing to all today I celebrate my 5 year since diagnosis of acute myeloid leukemia who celebrate being diagnose with aml or any cancer for that matter but leta s be honest in the cancer lottery aml is not one of the preferred at least if you cling to cancer stat which is something I highly discourage fi...
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hemispherx biopharma announce 9th clinical investigator conference ampligen clinical trial highlight conference explore potential relationship between chronic fatigue syndrome cfs and a novel retrovirus philadelphia march 7 2011 globe newswire hemispherx biopharma inc nyse heb hemispherx or the company announce that th...
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I go to a counselor for a few reason but the main one being that I am so overwhelmed with all my medical issue and doctor well before we could really get into much of that I have to get through a lot of family drama that was go on at the same time now that is not as bad as it was I am try to focus on I and my medical i...
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thank goodness as I need to get this off my chest and I know I am not alone from the outside look in you would never say there was a thing wrong I am a 30 year old attractive woman good job I have a wonderful husband and a smart beautiful healthy 8 year old girl my family is close I love they all and they would do anyt...
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http www petitiononline com go1315 petition html to for the awareness of the new retrovirus xmrv and a blood test cover by social security world wide dear president and minister of health I write these line to inform you of what is arguably the most important medical discovery in a decade on 8 october the journal scien...
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www medscape com close window author and disclosure journalist kathleen louden freelance writer gurnee illinois kathleen louden is a freelance writer for medscape kathleen f louden have disclose no relevant financial relationship from medscape medical news highly anticipate study is second to link chronic fatigue syndr...
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hey everyone I do not know where this topic would fall under but I decide to post it to anxiety since I feel this experience have contribute to my social anxiety with meet new people and also contribute to my fear of lose those I love to give some background I am 29 year old I grow up in a neighborhood heavily populate...
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hi I was in a relationship for two and a half year with someone that I only meet in the beginning out of spite that my ex break up with I the relationship last for two and a half year I develop strong feeling for he even though we were not marry we call one another husband and wife live together share everything I fall...
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this have been go on for about 9 year now I lose a baby in the second trimester in 2002 I deliver she at home she was alive and I watch she die in my hand from that traumatic experience I believe my body have something wrong with it I mean why else would a perfectly healthy baby die I find ache and pain that I self dia...
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hi ia m sarah ia m 19 and was just diagnose with vin I three week ago this come after 4 month of near constant pain in my vulva that start to severely limit my lifea I have to quit my job and was generally anxious every time I have to leave the house in fear of the pain start in a public place that I couldna t stop to ...
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I start this subject basicly keep track of what s go on with my wife diesese unload this stuff out of my head keep other up to speed on how therapy relate aml remember everyone is different and its effect change our life mentally physically and spirtually my wife was diagnose in may 2007 stage 3 breast cancer in novemb...
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I want to share some thing about my dad as a way to honor pay tribute to he at the bottom of this is something I say about my daddy at his funeral since his funeral two people have touch my heart with what they have say about dad the first take a picture of my dad and tap it to his dashboard to remind he of the kind of...
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ok since the new research say that the retrovirus is link to prostate cancer and cfs then I was wonder do any of you have family member or a family history of prostate cancer here is the late research I am refer to retrovirus link to chronic fatigue syndrome xmrv see in 2 3 of cfs patient 10 million in you s may carry ...
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I am sure all of we remember a point in time when we as kid think nothing could hurt bad than a stubbed toe since then as we have get more and more damage our definition of the bad pain ever have change and change again this is why I think the doctor ask I what my pain level is on a scale of 1 to 10 is so useless what ...
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hey first I would like to make some thing clear due to the reaction I have get when share this information 1 I am not a doctor or an expert but I have no vested interest 2 I am not tell anyone what to do or what to believe you must only convince yourself of what you feel is most likely 3 I am unemployed a full time act...
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my mother have leukemia a type of cancer and do not want to deal with it for the second time so she got prescribe all sort of shit please do not mind my spelling she have welbutrin for depression xanax for anxiety oxycodone for pain which stop work because she build up immunity go through some more which then lead to m...
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my first wife and I have a mutual friend that we have know for over 40 year on dec 5 I find out that she is in the hospital with leukemia so try to be nice I send my ex a text to let she know she thank I and I figure that would be the end of it wrong wednesday night she call I and I can tell after about 15 second that ...
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hello I am new to this forum finally just have time to sign up I have been highly encouraged reading through many of your post I apologize if I do not post this in the correct area or if I should not have start a new topic but I figure this was a good place to start I was diagnose with aml 2 6 2016 and immediately put ...
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timeline january dark mole that start grow while I was pregnant in 2010 come back abnormal february tongue start feel weird and burning go to doctor and he do blood work go to get the blood work and it was the day after the peak of a bad cold wbc count come back pretty low 2 9 doctor say it was probably because of cold...
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my initial diagnosis for depression was in 2002 after undergo several surgery to my spine one surgery hope the pain would stop I could go back to work turn into ten fail surgery leave I disabled can not work in a wheelchair my life end the depression constant chronic pain stress diabete leukemia chemo infusion blood tr...
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hello everyone iam new to this site and so grateful I find it everyone here are care and respectful so much support do anyone believe that drug alcohol abuse is a disease I have try alanon meeting and no matter how hard I try to understand the addiction I do not think it is a disease yes I do believe that heredity is a...
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in research emuaid I have find many mixed emotion and was unsure if I want to try it or not one of my hs site on facebook tell of an open trial they are do so I call the number today and am now a participant they will send out my free jar in a few day and then follow up by phone I will try free and even if it do not wo...
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have anyone have an elderly parent with aml and not know when it is time to stopy the fight my dad 74 was diagnose with aml m1 on november 2 2011 he was not a candidate for bmt or for chemo we have find some alternative treatment method but to date they do not appear to be work most recently it was recommend that we ad...
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I just read this on another site have anyone read this too 20 december 2010 last update at 09 33 et health reporter before christ news the virus is think to derive from mouse continue read the main story relate story blood donor ban for I patient study challenge I virus link I virus discovery raise hope a new study hav...
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I say that I would post the table that show the studied and research link to other disease and virus infection and condition that hhc people either suffer from or at risk of suffer as complication of iron overload it is from the article iron toxicity new condition continue to emerge link http www ncbi nlm nih gov pmc a...
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whoop my left hand is still learn to do all this typing and stuff solo or with only 3 finger on my right hand really work hand argh anway anyway ok autocorrect is now on sheesh do not shatter an before midday bone today google doodle honors lucy will who help prenatal care by study anemia and realize that folic acid wa...
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good morning why was I up so early oh right hubby no sleep I no sleep not his fault just how it end up blah hopefully we have a nice warm sunny day today here in case allthis predict rain actually occur I am not hold my breath in medical term lysis is the opposite of crisis but if you add a prefix lysis get nasty e g p...
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have been see alot of this come across my google alert will talk to msk doc tomorrow to see if they have hear anything http www uofmhealth org news archive 201312 new drug cut risk deadly transplant side effect half new drug cut risk of deadly transplant side effect in half first study in human show promise for prevent...
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some of you may know about abigail johnston but for thos who are new I tell you a bit about her first abby is the little 4 year old girl of a christian painter that we have do some paining in our house about a year ago a few month ago we hear that she have been medivacke via helicopter for emergency blood transfusion 2...
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here everything that is happen this past week in the wonderful world of celebrity in case you miss it feel free to comment on any of this week star news or share some celebrity news you hear from this past week that do not get a mention here or at least show we some love if you read the post but have nothing to comment...
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