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My shoulder slips partly out when I reach overhead and I need advice on safe strengthening.
musculoskeletal_rehab
synthetic EDS patient experience
I keep spraining my ankles even on flat ground and want help with braces and stability exercises.
musculoskeletal_rehab
synthetic EDS patient experience
My knees feel unstable on stairs and I am afraid of falling.
musculoskeletal_rehab
synthetic EDS patient experience
Physical therapy helped before, but the exercises caused a flare when they progressed too quickly.
musculoskeletal_rehab
synthetic EDS patient experience
I need guidance on joint protection for cooking, typing, and carrying groceries.
musculoskeletal_rehab
synthetic EDS patient experience
My hip clicks and gives way during walking, especially after long days.
musculoskeletal_rehab
synthetic EDS patient experience
The splints for my fingers help writing, but I need a better plan for hand fatigue.
musculoskeletal_rehab
synthetic EDS patient experience
I am looking for an EDS-aware physiotherapist who understands hypermobility.
musculoskeletal_rehab
synthetic EDS patient experience
My jaw feels unstable and painful after dental work.
musculoskeletal_rehab
synthetic EDS patient experience
I dislocated my kneecap again and want to prevent it happening during exercise.
musculoskeletal_rehab
synthetic EDS patient experience
Occupational therapy might help because opening jars and using scissors hurts my hands.
musculoskeletal_rehab
synthetic EDS patient experience
I need advice on pacing strengthening without making my joints more painful.
musculoskeletal_rehab
synthetic EDS patient experience
My posture muscles fatigue quickly and I cannot sit upright for a full lecture.
musculoskeletal_rehab
synthetic EDS patient experience
I want help choosing mobility aids without losing too much strength.
musculoskeletal_rehab
synthetic EDS patient experience
Mina leder kŠnns instabila nŠr jag gŒr i trappor och jag behšver hjŠlp med trŠning.
musculoskeletal_rehab
synthetic Swedish EDS patient experience
When I stand up my heart races and I feel like I might faint.
cardiology_autonomic
synthetic EDS patient experience
I get dizzy in the shower and need to sit down before I pass out.
cardiology_autonomic
synthetic EDS patient experience
My wearable shows a huge heart-rate jump when I move from lying down to standing.
cardiology_autonomic
synthetic EDS patient experience
Salt and fluids seem to help, but I still get palpitations at work.
cardiology_autonomic
synthetic EDS patient experience
I had near-fainting episodes twice this month after standing in line.
cardiology_autonomic
synthetic EDS patient experience
My doctor mentioned POTS and suggested checking blood pressure and pulse changes.
cardiology_autonomic
synthetic EDS patient experience
I feel shaky, sweaty, and lightheaded after climbing one flight of stairs.
cardiology_autonomic
synthetic EDS patient experience
Compression socks help my dizziness, but symptoms are still limiting daily life.
cardiology_autonomic
synthetic EDS patient experience
I wake up with my heart pounding and it takes a long time to settle.
cardiology_autonomic
synthetic EDS patient experience
Standing during public transport makes me nauseated and faint.
cardiology_autonomic
synthetic EDS patient experience
Min puls rusar nŠr jag stŠller mig upp och jag blir yr.
cardiology_autonomic
synthetic Swedish EDS patient experience
I need help understanding whether my fainting episodes are related to dysautonomia.
cardiology_autonomic
synthetic EDS patient experience
My blood pressure drops during long appointments and I need to lie down.
cardiology_autonomic
synthetic EDS patient experience
I get chest fluttering sensations when I am dehydrated or overheated.
cardiology_autonomic
synthetic EDS patient experience
Exercise is hard because my heart rate spikes before my muscles feel tired.
cardiology_autonomic
synthetic EDS patient experience
I have reflux every night and abdominal pain after small meals.
gastroenterology
synthetic EDS patient experience
Constipation alternates with diarrhea and it is hard to plan my day.
gastroenterology
synthetic EDS patient experience
I feel full quickly and sometimes cannot finish a normal meal.
gastroenterology
synthetic EDS patient experience
My stomach bloating gets worse during pain flares.
gastroenterology
synthetic EDS patient experience
I need advice about nausea that appears when my autonomic symptoms are bad.
gastroenterology
synthetic EDS patient experience
Swallowing feels difficult and food sometimes seems stuck.
gastroenterology
synthetic EDS patient experience
I have abdominal cramping and urgent bathroom trips after eating.
gastroenterology
synthetic EDS patient experience
My diet has become very restricted because many foods trigger symptoms.
gastroenterology
synthetic EDS patient experience
The reflux medication helps a little, but I still wake up coughing.
gastroenterology
synthetic EDS patient experience
I want to discuss possible motility issues because meals sit heavily for hours.
gastroenterology
synthetic EDS patient experience
Jag fŒr ont i magen och blir illamŒende efter smŒ mŒltider.
gastroenterology
synthetic Swedish EDS patient experience
I need help tracking food, bowel symptoms, and pain before a clinic visit.
gastroenterology
synthetic EDS patient experience
My abdominal pain is affecting school attendance.
gastroenterology
synthetic EDS patient experience
I often feel nauseated when standing, eating, or during pain flares.
gastroenterology
synthetic EDS patient experience
I have trouble keeping weight stable because eating enough is difficult.
gastroenterology
synthetic EDS patient experience
My headaches start at the base of my skull and get worse when I sit upright.
pain_neurology
synthetic EDS patient experience
Nerve-like burning pain travels down my arm after my neck flares.
pain_neurology
synthetic EDS patient experience
I have widespread pain that is not controlled by my current plan.
pain_neurology
synthetic EDS patient experience
Migraines have become more frequent since my neck instability symptoms increased.
pain_neurology
synthetic EDS patient experience
I get tingling and numbness in my hands when my shoulders are irritated.
pain_neurology
synthetic EDS patient experience
My pain clinic appointment is coming up and I need to explain flares clearly.
pain_neurology
synthetic EDS patient experience
I wake at night from muscle spasms and nerve pain.
pain_neurology
synthetic EDS patient experience
Light and sound sensitivity come with my headache flares.
pain_neurology
synthetic EDS patient experience
The pain feels electric and shooting rather than sore or achy.
pain_neurology
synthetic EDS patient experience
I need help distinguishing migraine symptoms from neck-related pain.
pain_neurology
synthetic EDS patient experience
Jag fŒr domningar i hŠnderna och brŠnnande smŠrta frŒn nacken.
pain_neurology
synthetic Swedish EDS patient experience
Pain medication makes me sleepy but does not reduce the worst flares.
pain_neurology
synthetic EDS patient experience
My scalp and neck are tender during headaches and I cannot focus.
pain_neurology
synthetic EDS patient experience
I want to ask whether my new weakness and numbness should be evaluated.
pain_neurology
synthetic EDS patient experience
My pain is affecting sleep, mood, and ability to study.
pain_neurology
synthetic EDS patient experience
I want to know whether my symptoms fit hypermobile EDS or another connective tissue condition.
genetics_primary_care
synthetic EDS patient experience
Several people in my family are very hypermobile and have frequent dislocations.
genetics_primary_care
synthetic EDS patient experience
I need a clinician to coordinate referrals because each specialist looks at only one symptom.
genetics_primary_care
synthetic EDS patient experience
My primary doctor asked me to bring a symptom timeline and family history.
genetics_primary_care
synthetic EDS patient experience
I am trying to understand which EDS subtype evaluation is appropriate.
genetics_primary_care
synthetic EDS patient experience
My skin bruises easily and scars look unusual compared with my siblings.
genetics_primary_care
synthetic EDS patient experience
I need documentation for school accommodations related to EDS symptoms.
genetics_primary_care
synthetic EDS patient experience
No one is sure who should manage the overall care plan.
genetics_primary_care
synthetic EDS patient experience
I want a referral pathway because cardiology, physio, and gastroenterology are all involved.
genetics_primary_care
synthetic EDS patient experience
My clinician suggested genetic counseling because of family history and vascular concerns.
genetics_primary_care
synthetic EDS patient experience
Jag behšver hjŠlp att samordna vŒrden eftersom symtomen pŒverkar flera delar av kroppen.
genetics_primary_care
synthetic Swedish EDS patient experience
I need a letter explaining the diagnosis and why multiple specialties are involved.
genetics_primary_care
synthetic EDS patient experience
My Beighton score was high, but I still need a full assessment.
genetics_primary_care
synthetic EDS patient experience
I am collecting records before meeting a connective tissue disorder clinic.
genetics_primary_care
synthetic EDS patient experience
The main issue is not one symptom but finding a doctor who can coordinate the whole picture.
genetics_primary_care
synthetic EDS patient experience
After I have a big meal I feel like throwing up.
gastroenterology
user data
I can't hold a pen normally, my fingers extend and it hurts to write.
musculoskeletal_rehab
user data
Whenever I stretch my legs, I get spasms.
pain_neurology
user data
I have extreme headaches that make me throw up.
pain_neurology
user data
I have allergic reactions to all kind of makeup.
genetics_primary_care
user data
I am worried that a medication could interfere with EDS.
genetics_primary_care
user data
I subluxated my jaw at the dentist.
musculoskeletal_rehab
user data
I strained my shoulder.
musculoskeletal_rehab
user data
I wonder how hormonal IUDs work with eds.
genetics_primary_care
user data
I have nerve pain all over my body.
pain_neurology
user data
My knee issues are making my back hurt.
musculoskeletal_rehab
user data
I always feel super constipated.
gastroenterology
user data
I have anal fissures that won't go away.
gastroenterology
user data
I have weird spots all over my skin.
genetics_primary_care
user data
My gynocologist mentioned that I am at risk for pelvic prolapse.
genetics_primary_care
user data
I want to learn on how to tape my fingers for joint support.
musculoskeletal_rehab
user data
Every sleeping positioned that I tried leads to pain.
musculoskeletal_rehab
user data
I feel sick every time I eat.
gastroenterology
user data
My skin is burning.
genetics_primary_care
user data
My hips subluxate while walking.
musculoskeletal_rehab
user data
I have back pain every time I lay down.
musculoskeletal_rehab
user data
I have explosive migranes.
pain_neurology
user data
My rips hurts when I take deep breaths.
genetics_primary_care
user data
After I had covid my symptoms got worse.
genetics_primary_care
user data
I feel like I can't cope anymore.
genetics_primary_care
user data
End of preview. Expand in Data Studio

EDS Specialty Dataset

This dataset contains short patient-experience snippets related to Ehlers-Danlos syndromes (EDS), labeled by likely healthcare specialty area.

Labels

  • musculoskeletal_rehab
  • cardiology_autonomic
  • gastroenterology
  • pain_neurology
  • genetics_primary_care

Columns

  • text: patient-experience snippet
  • label: specialty label
  • source_note: brief provenance note

Notes

  • The dataset includes English and Swedish examples.
  • The examples are synthetic educational examples for an information retrieval assignment.
  • This dataset is not intended for diagnosis, emergency triage, or medical advice.
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