examples/example_real_source_model.json

{
    "nodes": [
        {
            "name": "study_registration_metadata",
            "description": "Export of the dbGaP FHIR API study registration metadata which provides study-level metadata for a specific PHS ID.",
            "links": [],
            "properties": [
                {
                    "name": "Accession",
                    "description": "The accession number of the dbGaP study, which is the phs number prefixed with 'phs' and including the version, consent group, and participant set numbers (e.g., phs004055.v1.p1.c1).",
                    "type": "string"
                },
                {
                    "name": "c",
                    "description": "The c number denotes the consent group, which contains data from a set of participants who have all signed the same consent agreement. A study with multiple consent groups will have multiple consent group numbers (e.g., .c1, .c2). Data delivered for a single consent group will have the same Data Use Limitations (DULs).",
                    "type": "string"
                },
                {
                    "name": "ConsentGroup",
                    "description": "Text code that indicates data use restrictions (e.g., GRU=general research, HMB=health/biomedical only, DS-X=disease-specific, NPU=non-profit use, IRB=requires ethics approval) per Data Use Ontology (DUO).",
                    "type": "string"
                },
                {
                    "name:": "p",
                    "description": "The p number, also known as the 'participant set version', identifies a specific group of participants within a study. The number is incremented when the consent status of subjects in an existing study set changes, but not when new subjects are simply added.",
                    "type": "string"
                },
                {
                    "name:": "phs",
                    "description": "The phs ID of the dbGaP study; phs stands for Phenotype Study and indicates that the accession number is for a dbGaP study.",
                    "type": "string"
                },
                {
                    "name:": "v",
                    "description": "The v number is the study's version number. This number is incremented when changes are made to existing data or new data is added to a study.",
                    "type": "string"
                },
                {
                    "name:": "Title",
                    "description": "The title of the dbGaP study.",
                    "type": "string"
                },
                {
                    "name": "handle",
                    "description": "The human-readable ID or handle of the dbGaP study.",
                    "type": "string"
                },
                {
                    "name": "Description",
                    "description": "The description of the dbGaP study.",
                    "type": "string"
                }
            ]
        },
        {
            "name": "telemetry_report",
            "description": "Export of the dbGaP FHIR API subject telemetry report, which provides subject-level metadata for a specific PHS ID.",
            "links": [
                "study_registration_metadata"
            ],
            "properties": [
                {
                    "name": "consent_code",
                    "description": "The consent code assigned to a subject.",
                    "type": "string"
                },
                {
                    "name": "dbgap_subject_id",
                    "description": "The unique identifier for a subject in the context of a dbGaP study.",
                    "type": "string"
                },
                {
                    "name": "submitted_subject_id",
                    "description": "The unique identifier for a subject that was originally submitted by the data contributor.",
                    "type": "string"
                }
            ]
        },
        {
            "name": "derive13",
            "description": "Data from version 1 of the main study of the Atherosclerosis Risk in Communities (ARIC) study within the BioLINCC repository.",
            "links": [
                "telemetry_report"
            ],
            "properties": [
                {
                    "name": "ID_C",
                    "description": "The unique identifier for subjects in the ARIC (Atherosclerosis Risk in Communities) study dataset within the BioLINCC repository. The submitted_subject_id in the subject telemetry report.",
                    "type": "string"
                },
                {
                    "name": "GENDER",
                    "description": "SEX (from FTRA22)",
                    "type": "string"
                },
                {
                    "name": "RACEGRP",
                    "description": "RACE (from FTRA23)",
                    "type": "string"
                },
                {
                    "name": "BMI01",
                    "description": "BODY MASS INDEX IN KG/(M*M)",
                    "type": "number"
                },
                {
                    "name": "CURSMK01",
                    "description": "Current cigarette smoker",
                    "type": "number"
                },
                {
                    "name": "EVRSMK01",
                    "description": "Ever smoked cigarettes",
                    "type": "number"
                },
                {
                    "name": "FORSMK01",
                    "description": "Former cigarette smoker",
                    "type": "string"
                },
                {
                    "name": "CIGT01",
                    "description": "CIGARETTE SMOKING STATUS",
                    "type": "number"
                },
                {
                    "name": "PIPE01",
                    "description": "PIPE SMOKING STATUS",
                    "type": "number"
                },
                {
                    "name": "CIGR01",
                    "description": "CIGAR/CIGARILLO SMOKING STATUS",
                    "type": "number"
                },
                {
                    "name": "CIGTYR01",
                    "description": "CIGARETTE YEARS OF SMOKING",
                    "type": "number"
                },
                {
                    "name": "PIPEYR01",
                    "description": "PIPE YEARS OF SMOKING",
                    "type": "number"
                },
                {
                    "name": "CIGRYR01",
                    "description": "CIGAR/CIGARILLO YEARS OF SMOKING",
                    "type": "number"
                }
            ]
        },
        {
            "name": "dmri_ia1",
            "description": "Data from an ancillary study Diffusion Magnetic Resonance Imaging-1 (dmri-ia1) of the Atherosclerosis Risk in Communities (ARIC) study within the BioLINCC repository.",
            "links": [
                "telemetry_report"
            ],
            "properties": [
                {
                    "name": "ID_C",
                    "description": "The unique identifier for subjects in the ARIC (Atherosclerosis Risk in Communities) study dataset within the BioLINCC repository. The submitted_subject_id in the subject telemetry report.",
                    "type": "string"
                },
                {
                    "name": "CURAGE16",
                    "description": "Age at MRI visit",
                    "type": "number"
                },
                {
                    "name": "HEIGHT16",
                    "description": "Height (cm)",
                    "type": "number"
                },
                {
                    "name": "WEIGHT16",
                    "description": "Weight (lbs)",
                    "type": "number"
                },
                {
                    "name": "BMI16",
                    "description": "BMI (kg/m2)",
                    "type": "number"
                },
                {
                    "name": "SBP",
                    "description": "Systolic blood pressure",
                    "type": "number"
                },
                {
                    "name": "DBP",
                    "description": "Diastolic blood pressure",
                    "type": "number"
                },
                {
                    "name": "HIBPMED",
                    "description": "Hypertension medication use",
                    "type": "string"
                },
                {
                    "name": "STROKE16",
                    "description": "Stroke",
                    "type": "string"
                },
                {
                    "name": "CURSMK16",
                    "description": "Current cigarette smoker",
                    "type": "string"
                },
                {
                    "name": "EVRSMK16",
                    "description": "Ever smoked cigarettes",
                    "type": "string"
                },
                {
                    "name": "FORSMK16",
                    "description": "Former cigarette smoker",
                    "type": "string"
                }
            ]
        }
    ]
}