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it was in the best interests of Baby Doe, and of their family as |
a whole (they had two other children), to refuse consent for |
the operation. The hospital authorities, uncertain of their legal |
position, took the matter to court. Both the local county court |
and the Indiana State Supreme Court upheld the parents' right |
to refuse consent to surgery. The case attracted national media |
attention, and an attempt was made to take it to the U.S. Supreme |
Court, but before this could happen, Baby Doe died. |
One result ofthe Baby Doe case was that the U.S. government, |
headed at the time by President Ronald Reagan, who had come |
to power with the backing of the right-wing religious 'Moral |
Majority', issued a regulation directing that all infants are to be |
given necessary life-saving treatment, irrespective of disability. |
But the new regulations were strongly resisted by the American |
Medical Association and the American Academy of Pediatrics. |
In court hearings on the regulations, even Dr C. Everett Koop, |
Reagan's surgeon-general and the driving force behind the attempt |
to ensure that all infants should be treated, had to admit |
that there were some cases in which he would not provide lifesustaining |
treatment. Dr Koop mentioned three conditions in |
which, he said, life-sustaining treatment was not appropriate: |
anencephalic infants (infants born without a brain); infants who |
had, usually as a result of extreme prematurity, suffered such |
severe bleeding in the brain that they would never be able to |
breathe without a respirator and would never be able even to |
recognise another person; and infants lacking a major part of |
their digestive tract, who could only be kept alive by means of |
a drip providing nourishment directly into the bloodstream. |
The regulations were eventually accepted only in a watereddown |
form, allowing some flexibility to doctors. Even so, a |
subsequent survey of American paediatricians specialising in the |
care of newborn infants showed that 76 percent thought that |
the regulations were not necessary, 66 percent considered the |
204 |
Taking Life: Humans |
regulations interfered with parents' right to determine what |
course of action was in the best interests of their children, and |
60 percent believed that the regulations did not allow adequate |
consideration of infants' suffering. |
In a series of British cases, the courts have accepted the view |
that the quality of a child's life is a relevant consideration in |
deciding whether life-sustaining treatment should be provided. |
In a case called In re B, concerning a baby like Baby Doe, with |
Down's syndrome and an intestinal obstruction, the court said |
that surgery should be carried out, because the infant's life |
would not be 'demonstrably awful'. In another case, Re C, where |
the baby had a poorly formed brain combined with severe physical |
handicaps, the court authorised the paediatric team to refrain |
from giving life-prolonging treatment. This was also the |
course taken in the case of Re Baby J: this infant was born |
extremely prematurely, and was blind and deaf and would probably |
never have been able to speak. |
Thus, though many would disagree with Baby Doe's parents |
about allowing a Down's syndrome infant to die (because people |
with Down's syndrome can live enjoyable lives and be warm |
and loving individuals), virtually everyone recognises that in |
more severe conditions, allowing an infant to die is the only |
humane and ethically acceptable course to take. The question |
is: if it is right to allow infants to die, why is it wrong to kill |
them? |
This question has not escaped the notice of the doctors involved. |
Frequently they answer it by a pious reference to the |
nineteenth-century poet, Arthur Clough, who wrote: |
Thou shalt not kill; but need'st not strive |
Officiously to keep alive. |
Unfortunately for those who appeal to Clough's immortal |
lines as an authoritative ethical pronouncement, they come |
from a biting satire - 'The Latest Decalogue' - the intent of |
205 |
Practical Ethics |
which is to mock the attitudes described. The opening lines, for |
example, are: |
Thou shalt have one god only; who |
Would be at the expense of two. |
No graven images may be |
Worshipped except the currency. |
So Clough cannot be numbered on the side of those who |
think it wrong to kill, but right not to try too hard to keep alive. |
Is there, nonetheless, something to be said for this idea? The |
view that there is something to be said for it is often termed |
'the acts and omissions doctrine'. It holds that there is an important |
moral distinction between performing an act that has |
certain consequences - say, the death of a disabled child - and |
omitting to do something that has the same consequences. If |
this doctrine is correct, the doctor who gives the child a lethal |
injection does wrong; the doctor who omits to give the child |
antibiotics, knowing full well that without antibiotics the child |
will die, does not. |
What grounds are there for accepting the acts and omissions |
doctrine? Few champion the doctrine for its own sake, as an |
important ethical first principle. It is, rather, an implication of |
one view of ethics, of a view that holds that as long as we do |
not violate specified moral rules that place determinate moral |
obligations upon us, we do all that morality demands of us. |
These rules are of the kind made familiar by the Ten Commandments |
and similar moral codes: Do not kill, Do not lie, |
Do not steal, and so on. Characteristically they are formulated |
in the negative, so that to obey them it is necessary only to |
abstain from the actions they prohibit. Hence obedience can be |
demanded of every member of the community. |
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