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under current federal data stand...
N
4.8
4.2
4.2
1632
Male
process, no written record. just a line officer can walk into a social service office and ask for information.
O
4.2
3.4
4.2
1633
Male
have a larger conversation, because i also want to point towards where the work has gone since the writing of the book.
N
3.4
3.6
4.4
Unknown
Unknown
but i think one thing that's really important to think through-
H
3.8
4.8
4.4
1633
Male
though i don't know what was in governor daniel's heart when he made the decisions he made to create the system. i do-
N
4.8
3.8
4.4
Unknown
Unknown
very well intentioned people who care deeply about the folks their agencies serve.
N
4.6
4
4.8
Unknown
Unknown
in the decision making. so these are actually some of the best tools.
H
5.2
5.2
4.4
1633
Male
how we are often sort of invisibly carrying forward this decision we made 200 years ago, that social service is more a moral thermometer than-
X
4.2
4.2
4.2
1633
Male
to talk about the intent of the designers. though of course that's interesting and important. then it is to talk about impact...
N
5.2
3.4
4.4
1633
Male
acts on targets. so that's one of the sort big picture things i'd like us to talk a little bit about. about how we can move the conversation-
O
4.4
4.4
3.6
1633
Male
plea for rooms that are technically sophisticated or policy sophisticated, that often what-
N
4.8
4.4
4.4
Unknown
Unknown
line during our adult lives, between the years of 20 and 64.
N
3.6
4
3.8
Unknown
Unknown
...welfare. so the story we tell that poverty is an aberration is a rare thing, is just simply untrue in-
X
4
3.6
4.4
Unknown
Unknown
if you're born poor, if you're caring for other people, if-
S
4
2.6
4.6
1633
Male
imagine different kind of politics that is more about building universal floors under all of us and distributing our shared wealth more evenly and more fairly.
H
4
5.2
4.4
Unknown
Unknown
you're desperate enough and deserving enough to receive help. because many of the things, many of the conditions i talk about in the book-
N
4.2
4.2
3.6
1633
Male
losing a child to the foster care system because you can't afford prescription medication. in other places in the world-
S
3.8
2.4
4.6
Unknown
Unknown
hear increasingly as systems engineering problems, actually says something very deep and troubling about the state of our national soul.
X
3.6
4.4
4.4
1633
Male
i think we need to get our souls right around that in order to really move the needle on these problems. and finally, in the meantime-
N
4.4
4.6
4.8
1633
Male
sorry, educating neutral education is education for the status quo, and it's the same around technologies. neutral-
N
5
4.4
4.6
1633
Male
technologies just means technologies designed to protect and promote the status quo. if we want to...
N
4.4
3.4
4.8
1629
Female
very full of twists and turns. now, if you build-
N
4.2
3.6
3.8
1634
Male
have the building gears to actually engage with the hills and the turns that exist in your landscape. we have to do that when we're building these-
X
4.2
4.4
4.6
1627
Male
-tion of our stories, because the way that stigma and poverty works in the united states makes us all feel like we're the only person this has ever happened to.
N
4.2
4
4.8
1627
Male
they want us to consult on the tool. we don't even know how to frame the questions.
X
4.8
3.2
4.4
Unknown
Unknown
i think we've opened up this really interesting set of questions about...
N
4.6
4.8
4.2
1627
Male
too often, these are exactly the people who aren't in the room when we make these decisions. if my book is any indication-
O
4
4
4.4
1629
Female
-parency, accountability and participatory decision-making, or...
N
4.2
3.4
4
1625
Female
advisors. that always ends up in paragraph 17 of these stories. so it's-
H
5
5
5.2
1625
Female
collaboration with these organizations has been thinking about what kind of questions do we want to ask in order to exert some control and power and to bring, like the...
N
4.2
4.6
4
1625
Female
groups like that.yeah. so i think that's a really crucial question for this political moment.
N
4
4.4
3.6
1625
Female
talking about our electronic benefits, transfer cards, a long story. i won't go into the whole story there.
X
5
4.2
3.8
1635
Male
virginia. you all should pay attention to what's happening to us, like folks on public assistance, because they're coming for you next.
X
4.2
3.8
4.2
1635
Male
think it's another reason to be always starting this work from the folks who are most directly affected, because we're just going to learn more about these systems-
X
3.8
3.4
4
1635
Male
moment where the country is trying to dismantle the social safety net entirely.
N
3.6
3
3.4
1635
Male
welfare applications, the rounding error of 100%.
N
3.2
3.2
3.8
1635
Male
folks like grandparents who are in nursing homes. that was a sort of moment where public opinion-
N
3.8
4
3.8
1635
Male
to that moment right now, but i do really believe we need to be doing the sort of deep work to build the coalition, and to build the connection, and to build an analysis that we'll have.
H
4.4
4.8
4
1635
Male
when one of these systems fails in a spectacular way that it impacts non poor people. that will create a sort of window to start-
X
3.8
4.4
4.2
1635
Male
for the health and safety of our people. i mean, from a moral point of view, we should do it earlier than that, because what happens to everyone happens to anyone happens-
H
5.2
4.4
5
1635
Male
one is if and in what ways the data set is discriminatory.
N
4.8
4.2
3.8
1635
Male
so i think the thing that's hard about that question is going to be different in every example. and it requires sort of knowing about how-
N
4.2
4
3.4
1635
Male
there's not enough data on actual physical harm to children to predict that actual outcome. they use...
X
4.6
3.2
4
1635
Male
there's a direct relationship between those two things, but they're no...
N
4.4
4
4.2
1636
Male
i don't know how you could talk to even two families who have gone through this process and not know about [inaudible 00:00:30] calling. so that's surprising to me.
A
4.4
3
4.4
1636
Male
...kazun height, as naturally creating these efficiencies because the speaker-
H
4.8
5.6
4.4
Unknown
Unknown
...skewers the fact that we're making really profound political decisions through these systems.
X
4.8
3.8
4.4
Unknown
Unknown
united states. part of the reason is they ended up being really expensive.
N
5.2
4.4
3.8
1635
Male
be more clear. so i think the primary issue is this issue around not seeing these as political decisions, and the solution-
O
3.8
3.6
4
1636
Male
and cost savings on purpose. and sometimes those values will be directly in conflict with one another. and then we have to have political ways to make decisions over what values we...
N
4.4
3.2
4.4
1636
Male
... directly impacted communities in ways that we can actually hear their questions and concerns and not just be coming to them after the fact.
N
4
3.8
3.8
1636
Male
forgetting that other people are good for helping people get to a place where they recognize the sort of extraordinary expertise of folks outside the...
N
4.4
4.8
3
1636
Male
what's your name? lucy suchman is doing some of that work, talking about automated military-
H
3.6
4.6
4.2
1635
Male
it takes forever. that can really be a step forward in making it easier to get the resources that you need and that you are entitled to and deserve.
H
4.2
5
3.6
1635
Male
to build that model. and that's, i think a better kind of question to think about. is like...
H
4.4
4.8
4.8
1636
Male
i hope that makes you feel old.
C
3
3.6
4.2
1636
Male
start getting paid and start meeting the requirements of the state. and also notice there's no red circle. so...
N
4.8
3.4
4
1636
Male
... abilities, and it's the place where i'm going to focus on when working through some digital health tools.
X
4
4.2
4.8
1636
Male
the first cut to try to find people with disabilities in the context of a medicaid work requirement program-
H
4.6
4.6
4.4
1635
Male
they've decided to exempt people who are in the process of applying for ssi, because that gets them out of this catch-22 of deciding whether to work or not.
S
3
3.4
4.6
Unknown
Unknown
... these processes could be used to help identify people with disabilities in the context of medicaid work requirements.
N
3.6
3.4
3.8
1635
Male
... people in this country when we have employment tied to health insurance, so closely-
N
4
4
3.8
1635
Male
...is a barrier to work, but it doesn't define-
X
3.8
3.4
4.4
Unknown
Unknown
they may have a process that's only available to medicaid recipients.
O
5
3.4
5.2
1635
Male
well. which government agency walks in and.
S
3.6
2.8
3.6
1635
Male
seems to be about an issue of bureaucratic capacity, but other-
X
3
4.2
4.2
1636
Male
disciplines will often talk about specifically...
N
3.8
4.2
3.8
1636
Male
... problem with politics. and to the extent that politics is involved at all is-
N
4.2
3.6
5
1636
Male
one of them the snap program.
N
3.2
3.8
3.4
1636
Male
who maybe qualifies for a lot of these benefit...
N
3.4
3.8
3.4
1636
Male
... to start investigating so it could work.
X
3.4
3
3.4
1636
Male
a lot of work, a lot of time and i'd like to help someone, but it's going to be a lot to...
X
4.2
4.4
3.8
1635
Male
became a lawyer, was the closest i could get. this is before-
H
5.2
5
5.4
1636
Male
i was just wondering if the system makes it easier for the employers to not provide health insurance.
H
5
4
4.2
1636
Male
... have the medicaid, even though they're working.
H
4.4
3.6
3.8
1636
Male
is that right?now you're calling me out on a ... what a employer's requirements are now under the affordable-
H
5.6
5
5
1636
Male
... research to try to determine how many people are in each of those groups, which would inform-
S
2.4
2.8
3.2
1635
Male
it's just unfathomable to a person of average intelligence. and do you think that this much-
A
4.8
2.6
4.8
1635
Male
and i keep talking arkansas. i don't mean-
H
5
3.8
5
1636
Male
importantly, these efforts are underpinned by a commitment to pioneering the ethical use of data from devising new ways to promote algorithmic fairness.
X
3.2
4.4
4.2
1636
Male
maintaining individual's privacy.
N
3.6
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4
1636
Male
center for law and technology in november of 2017.
N
3
3.2
3.6
1635
Male
... nature of world, pretty quickly. universities-
X
3.8
4
3.4
1637
Female
many third-parties see value in these data. and the brokering with third-parties is also what's complicating a lot of the issues that univer...
N
4
3.4
4.4
1637
Female
but at the same time, we need to be very aware of the public-
N
3.6
3.6
4.4
Unknown
Unknown
the move toward open data is much of what has really launched us into the opportunities and the challenges that we're facing.
N
3.4
4.2
4.8
Unknown
Unknown
... social sciences and parts of the humanities of wealth. anyone who really does-
H
4.4
4.2
4.6
1637
Female
does grant funding. in the book, which...
N
3.6
3.8
4.2
1635
Male
thirdly, you want to leverage investments and then more generally advancing research and innovation. the european policy really pushes on that last point quite a bit. okay...
H
4.8
5
5
1635
Male
... runs right here. you can put it in the national institute of health databases. it's biomedical.
X
4.8
4.8
5
1637
Female
.. probably about what's involved. but the idea is you want to release your data in ways that they're findable, accessible-
N
4.4
4.4
4
1637
Female
interoperable and reusable...
N
3.6
4.2
4.4
1637
Female
and i spent an entire chapter of the book on just the question of what are data you can get in-
N
4.4
3.6
4.6
1637
Female
and this is the idea that we are just generating massive kinds of-
O
4
3.6
4.4
1635
Male
data sometimes called data exhaust that comes off these systems-
N
2.8
4
4.4
Unknown
Unknown
is in the power of bringing these things together. so this is all-
N
3.8
4.2
4.2
Unknown
Unknown
now universities have many responsibilities of using these data-
N
3
3.8
4.2
1635
Male
the first of california, office of the president, several of you have had some affiliation with uc here.
N
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4
1635
Male
... top dealing with some of the governance and the institutional responsibility of how do you think about privacy and information security together-
N
3.4
3.4
4.2
1635
Male
[inaudible 00:01:12] and we made that distinction, not exactly along the legal lines, but the rough...
N
4.4
4.2
4.2
1637
Female