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daddit
Oh Dad , I'm so sorry for your loss.
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"To live in the hearts we leave behind is to live forever." -Carl Sagan
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daddit
I am so sorry that this happened. Grief is overwhelming at times. I’m not sure where you are in your journey with it. Our son died two years ago and today he should be turning ten. Today is the first time I have been able to watch videos of him and listen to his voice. It wasn’t easy but it felt somehow comforting today. I hope that you and your family have been or will be able to find those moments of comfort. Your boy is beautiful.
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daddit
I’m so, so sorry.
7,405
daddit
It’s crushing enough seeing a parent or grandparent go through dementia. I can’t imagine the pain of it being your child. You probably won’t see this, but sending you a hug, Dad. I am in awe of your strength.
7,406
daddit
I am in tears. Must have been so hard for you. I hope you are doing ok today. Big hugs man.
7,407
daddit
You loved him and he loved you. You were there for him. You're a great dad. I'm so sorry.
7,408
daddit
There arent any words.
7,409
daddit
I can't even imagine going through what you, your son, and your family had to go through. I know there's nothing I can do to ease your pain, but my heart goes out to you anyway.
7,410
daddit
My dad died unexpectedly on Wednesday, at 61 years old. And while that hurts, I know that he's at peace while my 84 year old grandpa is just heartbroken, saying it should have been him. Dads shouldn't outlive their children, at any age.
7,411
daddit
I am so very sorry for your loss.
7,412
daddit
That's heartbreaking. So sorry to to hear that and what you went through. Remember him well.
7,413
daddit
So sorry for your loss, I can’t imagine your pain. You deserve to find peace. He was lucky to have had such caring parents and you can feel proud that even though his life was cut short you gave him his best shot. He experienced love, some never do. All the best
7,414
daddit
Sorry for your loss… I just can’t imagine.
7,415
daddit
I'm so sorry. Hope u are all doing okey. I would not even know what and how to do my life. Wish u all the best. He will never be forgotten!
7,416
daddit
Whenever I think I have it rough, I think about people like you who have lost more than I can ever imagine. I’m so sorry for your loss, I can’t fathom the pain or how something like that changes you. If I lost my daughter, I would be hollow. I hope your finding some measure of peace. Love to you, brother.
7,417
daddit
Ah man I can't even imagine. You're a strong man and father to go through that and to tell the story. I hope you are doing OK, all the best.
7,418
daddit
I’m so sorry.
7,419
daddit
I am so sorry. I can't even imagine.
7,420
daddit
I am sorry man. As a fellow dad, this kills me. He was your buddy, the only comfort I can offer is to focus on all of the good memories you shared together. I hope you and your wife find joy in life.
7,421
daddit
I'm so sorry for your loss
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daddit
I’m so, so sorry, man. “Tragedy” is an understatement. I’m sure you’ve heard every attempt at comfort that exists. Still, at least Connor knew his mom and dad loved him with everything they had. I hope you and your family can find peace. Much love to you all - and to Connor’s memory.
7,423
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I'm so sorry you had to say goodbye to your boy. My son is just about to turn two. I know in my heart that Connor knew that you loved him and he loved you right back.
7,424
daddit
This honestly made me tear up so badly, I’m so sorry for you loss, though I’m glad you got to spend the remaining days with him.
7,425
daddit
I'm so sorry man. I'm getting choked up just reading this...can't imagine.
7,426
daddit
Oh my god, man, I am so sorry. This is heartbreaking. I have a two-year-old and I can't imagine getting such a diagnosis.
7,427
daddit
I don't even know what to say. Stay strong man.
7,428
daddit
I’m sorry for your loss, brother
7,429
daddit
I am so sorry for your loss. Things like that should never happen to small children. I am so sorry.
7,430
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Deep condolences to you and yours. Take care of each other today and all the days.
7,431
daddit
I’m so sorry my friend.
7,432
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Hey man. Let us know if we can do anything. We are here for you.
7,433
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I have nothing to offer other than condolences and a big virtual hug from an internet stranger, much love to you and your family
7,434
daddit
I'm at a loss for words. No one deserves this. Connor is lucky to have parents like you.
7,435
daddit
God damn
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Damn. My heart absolutely goes out to you. I can't even imagine what that was like. Hope you're doing alright, my dude.
7,437
daddit
I am so sorry. I can't conceive of the magnitude of this loss but know it is massive.
7,438
daddit
So sorry mate.
7,439
daddit
This breaks my heart, I'm so sorry for your loss. I hope you're finding your way forward.
7,440
daddit
And this is why I really struggle believing in a God. Doing this to a truly innocent and beautiful child....
7,441
daddit
I can't even begin to imagine the pain you and yours must have gone through. You're so strong, I'm so proud of you.
7,442
daddit
My heart aches for your loss. Stay strong.
7,443
daddit
I'm so sorry. Big love to you
7,444
daddit
Life is so unfair. Thank you for fighting for your son and holding him until the end. Thanks from him. Thank you for loving him selflessly and thank you for sharing his memory with us.
7,445
daddit
You gave him the best life he could have had and the most love he could have had, you're a great dad.
7,446
daddit
Nope, nope! why is it raining inside. I see you and hear you. I'm sorry.
7,447
daddit
Man. I'm so, truly sorry. I know nothing can make it better, but thank you for sharing this. Peace be with you.
7,448
daddit
I’m sorry for your loss and can’t imagine. Connor was lucky to have a great father. Take some comfort knowing that he knows he was so loved.
7,449
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>Sanfilippo Syndrome Sooo sorry for your loss. I hope that he is no longer in pain can give you some sort of peace.
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This is truly heartbreaking to read. I’m sure I speak for a lot of people around here when I ask if you’d like to share memories about your little guy with us.
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I am so sorry for your loss. Know that we and many others are holding you up today as you remember your sweet boy.
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I am sorry for your loss. I have a 8 month daughter an I cannot even fathom how it must feels to lose a son . My father however, lost a brother. I think he was 3 or 4 and his brother was 5 or 6. He also had two sisters. They were 4 in total. The loss of the brother completely destroyed the family. It affected my grandfather and grandmother. It therefore affected my father and his remaining sisters. They were never the same. Lets just say, I can see why my father sometimes treated me the way he did. What I am trying to tell you is, stay tight with your wife, an even though its hard, give your other children the best life possible.
7,453
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I'm sorry for your loss brother. He watching cheering you both on
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I’m sorry my brother, may you find peace in feeling a father’s love, an emotion many men may never have in their lifetime. Rest In Peace sweet boy!
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So so sorry, my man. I've lost a lot of people, but nothing can touch losing a son. Thinking of you, brother.
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You’re a good dad. Stay strong.
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daddit
As a father of a two year old I’m literally crying. That is so awful, I could not imagine what you are going through. Stay strong.
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So sorry, my sister was a caregiver for a girl with Sanfilippo. Such a terrible heartbreaking illness I can only hope it gets more attention and study. Stay strong.
7,459
daddit
I can't really say anything that hasn't been said already, but still I'm so sorry this happened! It's probably going to take a long time to find some peace in this, but for you and your wife I hope you will and that you can find and give support to each other.
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> we will never be the same. You’re correct, brother. A child’s death changes you and it’s really hard to recover. I’m coming up on five years since we lost Maddox, my first and I’m still a wreck every year. Stay strong.
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when i was in high school (class of '95) i volunteered at a camp for kids with special needs. one of the kids i helped take care of was a child with san filippo syndrome. it was sobering to read up about it. sorry for your loss dad. *bighugs*
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I’m sorry for your loss
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daddit
Fuck. That hurts. I worked with a family affected by this.
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Connor looks like a great kid, I know he is still with you in spirit.
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I'm sorry to hear this and I can't imagine what it must be going through this. But I want you to tell you a little personal story about someone I know with a similar disease (don't know if it's EXACTLY the same). This befriended family has also a son (their eldest) with this disease and they also were told he might wouldn't make it to his twenties. They had better and worse times, but they managed to raise him with discipline to do as much exercises as he wanted to and stay out of the wheelchair as long as he's able to and to experience sports mostly with as much fun as he could get. For him it was between the age of 12-16 that he could stay some times out of the wheelchair till it got worse. Time flies by, he managed to get a good job in the IT branch, was able to drive a special car just using his hands and his family built a little house next to theirs (with all imaginable helpful things like a shower he can roll into and sit in and a lower kitchen), so he could live on his own as far as he can, knowing there will always be a family member who could help him in case he falls out of his wheelchair or has any other problems, but still experiencing living alone. (His cellphone/ smartphone is always by his side) Now he's in his late 30s, still able to work part time in his job, married to a beautiful woman and also experiencing the dad-life. Of course it's hard for him and his family, but the support they give him is still melting my heart. Everyone in this family is so strong and full of life and humor, it's fascinating to see. So if this story may help you and spread some hope and warmth, it's all I've wrote it for. I'm sorry for every loss and hard times you are going through. Hope you and your kids will have a long and mostly healthy life with each other.
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daddit
The empathy here is very real. I am not one to cry or tear up over anything, but this was a hard post to see. My son just turned 6 and my daughter is at this little boys age at the time of the pic. I often think back to when my son was that young and can't even imagine what that would have done to us.
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It's unreal how being a parent changes your ability to emphasise with other parents. A colleague of mine lost their 2 year old to COVID last year and that made me think: before I was a parent I would have felt a 'normal' (for lack of a better word) sadness but when I heard this as a parent of a toddler myself it *really* hit me hard
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daddit
Growing up my family would watch the movie Hook every Friday. I enjoyed it immensely! Now that I'm a dad I can barely make it through thanks to the onion ninjas.
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daddit
I'm sitting outside a home visit for work right now with my chest feeling likes it's caving in on itself for this man and his family. It hurts to breathe thinking of the pain they have to endure. I also don't have the words for OP, but I'm keeping his family close to my heart today.
7,470
daddit
Exactly this. Being a parent… everything just hits differently. My heart is shattered in million pieces reading this post along with other parents’ posts who shared their loss. One after another I can’t stop crying. Nothing we say here will mend their broken hearts and that’s what breaks my heart even more. Life is so unfair sometimes.
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daddit
His son reminding me of my nephew does not help to reduce the feels one bit.
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daddit
You put into words exactly what I’m feeling as I sit here, crying my eyes out.
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daddit
I'm sorry to hear this. That sucks man.
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daddit
If you’re a dad, you get it.
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Please do. Every moment is precious.
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Just say some kind words, which you have. I appreciate you.
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Thanks for speaking up. I’m here for you, too, man. Hopefully my post lends some light on your loss, and subsequently, support.
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Thank you. It truly is a terrible disease—one of the worst things I can imagine for my child.
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daddit
Those words lose meaning and feel odd when hearing them too. You recognize that people mean well when they say them, but they really feel weird.
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This is the quote we chose for my son’s memorial card…today he should be turning ten. I take these little moments as sign he is still guiding me/us toward things and not just away from them.
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Goddamn it I made it through the post without crying but this broke me. Love to you op. Life is so unfair.
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You made me cry. Thanks for putting this here.
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daddit
“To die will be an awfully big adventure.” ― J.M. Barrie, Peter Pan
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>“How lucky I am to have something that makes saying goodbye so hard.” Winnie the Poo This quote right here did it for me, sent me into waterworks. We just put our dog down 8 days ago. Not the first waterworks for her. Won't be the last, either.
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daddit
> Winnie the Poo It's *Pooh*. *Poo* is something else. :)
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I spend a large amount of time sitting in my car for work and every single day I get really intrusive thoughts where either my babies are gone or I’m gone and not there for them. It pains me to think about it. I couldn’t imagine what our fellow has gone through. RIP little man.
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daddit
I don't know how you do what you do. I find it hard enough as a radiographer. Last week I had to CT scan a sadly deceased baby to check for NAI. Worst hour of my career so far.
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> the hardest part was knowing that those parents did nothing wrong, and there’s nothing preventing me from being on their side of the bed, watching their child fight for their life. There is no fairness in this life. I think people really want to believe there is because the idea of there being no ultimate force that's the arbiter of good and bad, fair and unfair, good guys winning in the end against the bad guys and balancing justice for all... is fairly terrifying, and looks just like what you got to see every day working on that floor. We love the idea that good people win in the end, wishes come true, and things always work out in the end. Its hard to face the realization that life doesn't actually work that way.
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daddit
You know, sometimes we need to remember this. OP couldn't control what happened to his baby. Nothing could have stopped it, nothing could have saved him. But OP was that boy's Dad, and he gave him the best life he could have had under the circumstances which he lived. There was nothing else he could do, but that little guy loved him as only a child could, and... you know, I thought saying all that would make me feel a little better but damn this one is too much.
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I was holding it together until this. God bless you and your family OP. u/thislooksprettyfun is right.
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wow, i like this quote a lot. off topic but i am making a music video to a song i made and the video entails clips of my childhood with my mom who i lost 8 years ago. i have Dr Seuss' quote on memory in the video but i am thinking now how powerful this quote is and may change it!
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I'm bawling my fucking eyes out and I never cry im so sorry op I hope things get easier with time.
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daddit
I’m so sorry for your loss. I hope you can find at least a tiny piece of solace in that my heart goes out to you.
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Same brother, same.
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Same here.
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Yes it is. But was this really the time and place to say so?
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daddit
I am sorry to hear about this. I hope your company have resources for counseling for things like this. Take care.
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I moved from peds to labour and delivery, so have spent a lot of time with parents who have lost their babies as well. It's hard work, and not for everyone, but to be able to bring a slice of comfort to a terrible situation is why we do it. We know nothing will make the hurt go away, but if we can bring something positive to the whole experience, it's worth it.
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Now I'm glad I looked it up instead of trying to quote it from memory
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Yeah, it's the NHS so they are pretty hot on staff support etc. Our pay is crap but the actual support for staff and days off etc is pretty good.